Lupus And Pain

A variety of disorders can cause pleuritic chest pain, oftenwith a pleural rub, but without a pleural effusion. Some ofthese conditions remain 'dry' but in most fluid may accumulate,and therefore many of the causes of a pleural effusionmust be considered in the differential diagnosis of drypleurisy.

Pleuritic pain is a common feature of many radiologicallyobvious pneumonias, but can also occur with minorbacterial and viral pulmonary infections not radiologicallyapparent. Epidemic myalgia (Bornholm's disease), mostcommonly due to the Coxsackie B virus, is primarily aninfection of intercostal muscle but occasionally the pleurais involved. The intercostal muscles are tender. There maybe associated pericarditis, myocarditis or orchitis. Pain mayrelapse and remit several times before finally settling.

PNEUMOTHORAX

Pneumothorax is air in the pleural space, as a consequenceof which there is partial or complete collapse of the lung.Owing to the recoil of the chest wall and the lung, the pressurewithin the pleural space is normally negative. Whenthe pleural membrane (visceral or parietal) is breached, airis sucked into the pleural cavity and the lung collapses.When the defect in the pleura seals, the pneumothorax isclosed and there is no movement of air in or out of thepleural cavity. When there is a persistent defect in thepleura the pneumothorax is open. When this defect is ofthe visceral pleura there is then a bronchopleural fistula,and air moves in and out of the pleural space duringbreathing. Occasionally the damaged visceral pleura actsas a valve, permitting air to enter the pleural space oninspiration but not to leave it on expiration, leading to atension pneumothorax.

A pneumothorax may be spontaneous, or follow chesttrauma, mechanical ventilation, ruptured oesophagus, orartificial induction. Causes of traumatic pneumothoraxinclude blunt trauma to the chest, commonly externalcardiac massage, and penetrating chest injuries (e.g. stabwounds or needle aspiration biopsies that breach thevisceral pleura from without) and transbronchial biopsyand positive-pressure ventilation that breach the visceralpleura from within.

Clinical featuresCharacteristically, there is a sudden onset of chest painlaterally, sometimes radiating to the shoulder. With substantialcollapse of the lung there is associated breathlessness,and a dry, irritating cough is common. Sometimes thepatient is aware of the partially collapsed lung floppingabout within the thorax. On examination the most strikingfindings are of reduced breath sounds and hyperresonantpercussion. A small left-sided pneumothorax may be associatedwith a clicking noise with each heartbeat, noted bythe patient and on occasions loud enough to be heard byothers. A large pneumothorax in a normal person causesbreathlessness, and in the presence of pre-existing pulmonarydisease a small one may cause severe respiratorydistress.Tension pneumothorax is a medical emergency. Thevalve action of the pleural tear results in a progressiveincrease in the size and pressure of the pneumothorax. Theunderlying lung is totally collapsed. The mediastinum isshifted to the contralateral side, compromising the functionof the opposite lung, and the high intrathoracic pressureelevates the jugular venous pressure, reduces venousreturn and causes tachycardia, low cardiac output, andeventually circulatory collapse and death.

Frequently Asked Questions

  1. QUESTION:
    Is the muscle and joint pain of lupus constant?
    I am trying to figure out whether I have lupus (waiting for results of blood tests) nd I was just wondering, is the lupus pain constant or does it go away in a day or two?

    • ANSWER:
      Lupus pain is constant. It waxes and wanes, but it's always there.

  2. QUESTION:
    What can I do when my Lupus pain gets really bad?
    I have prescription pain killers but I can take them all of the time. They make me out of it and they upset my stomach.

    • ANSWER:
      Sometimes what my wife does is have the doctor up her prednisone dosage...this seems to ease the joint pain. Just remember that by doing this you must commit to slowly tapering off the prednisone. Additionally, this cannot be a permanent thing as prednisone over time has very bad side effects. Also, something my wife does, is to break the pain pill in half so it's not as harsh on her stomach.

      Lastly, a warm jacuzzi can help a lot. If you don't have one at your home, try a local gym or go to a friends house. This helps her joint pain a lot too.

      Good Luck to you!

  3. QUESTION:
    Does anyone with Lupus suffer from hip pain?
    This question is about my 10 year old son.
    He has had extreme hip pain for almost a year and it has now spread into his lower back. He does have a positive ANA test but all others were negative including those for arthritis.
    I have had him to many specialists and they keep saying it is an auto immune problem but can not pinpoint what it is. They think Lupus may be possible cause of his symptoms and family history of it.
    Does anyone with Lupus suffer pain in the hips and back?

    • ANSWER:
      I'm being diagnosed with dermatomyositis and I have hip pain where I can't even walk across my campus. I'm only 20, and I can barely lift my arms anymore. A positive ANA could be dermatomyositis and it could be because his muscles are getting weak around those areas. Try to see if his arms are weak and hard to hold small things up like a coffee mug. If he gets tired quickly it could be muscle weakness. If you want to check the beginning of the long road starts at a blood test to check your creatinine kinase levels. Definitely look into what I say because there is Juvenile Dermatomyositis. It affects kids exactly that age. Shoot me an email through here I can help out with questions. Good luck

  4. QUESTION:
    Lupus pain, I'm afraid my doctor will think I'm an addict?
    I was diagnosed recently with Lupus.
    My problem now is that I am very chemical sensitive. I'm able to take Hydrocodene with no problem.
    My doctor started me on a low dose. It was not working. I went back and he increased it slighly. But it's not working...maybe a bit better, but not much. Now I'm afraid he may think I'm a addict.
    How do I explain it to him? I have never been in this situation.
    I thought soon as I got something it would be a magic pill and the pain would go away.
    I'm nervous?

    • ANSWER:
      Just be honest with him. Lupas is painful. Doctors will always try to start you off with the least amount of medication as possible and then work up to a higher dose. If you fell like your doctor is judging you then find another doctor that you are more comfortable with. I hope this info helps you. And good luck.

  5. QUESTION:
    Does marijuana help with lupus pain?
    I was recently diagnosed with lupus and at first it just started with me having a bunch of weird rashes and I went to the dermatologist and she treated the rashes with creams which were successful. I then went to see a rheumatologist and at the time i wasnt having any pain so he prescribed a drug called "plaquenil" for me to take twice a day. Needless to say, i looked up the side effects and threw it in the trash. NOW, i have been experiencing pain in my lower legs (from the knees down) and the pain is undescribable. Like a burning and aching pain in my bones. It hurts to even touch them sometimes. I dont want to result to pain killers because I am afraid of becoming addicted to them. I heard that marijuana helps alleviate some of the pain and i was wondering if anyone else knows the truth.

    • ANSWER:
      Marijuana will most likely help with the pain, though people have different reactions to marijuana. What the marijuana does is change your perception of the pain and help with an overall sense of well being and calmness. It is very effective with many people.

  6. QUESTION:
    Does joint pain from lupus hurt more or less when you move it?
    I do have a history of tendonitis my right elbow is the main source of pain,sometimes my left but not as bad and what is a FLARE?!! like i said in other posts my rash clears up with skin cream. Thank You!!! for the info!

    • ANSWER:
      I would think you would have more pain when you move your joints. However, this is a question for your physician.

  7. QUESTION:
    I have lupus with significant pain help with pain?
    I have lupus with significant pain and im on 100mg of morphine, this is not working. If anyone has any suggestions on what other painkiller for lupus patients please! Thankyou so much for your help God bless.

    • ANSWER:
      There are different pain protocols for various ailments. You may want to seek out a psychiatrist to prescribe you what you need.

      The psychiatrists should order a chronic pain protocol, but you have to be on at least one narcotic or you don't qualify.

      1. .25 mcg Fentynal
      2. 6mg Cesamet (marjauana)
      3. 100mg Nortitryptaline
      4. 150mg SR Welbutrin

      They can also send you to pain clinics and for further discovery.

      I have Anklosing Spondylitis.

  8. QUESTION:
    A friend of mine has Lupus and she started having some severe abdominal pain that usually lasts about 2 hours?
    a day why is she having this pain? Her lupus is untreated and she didn't know if it was the Lupus. what is the lupus doing to her abdominal area? She really really starts hurting right before she has a bowel movement or right before her cycle. I was just curious whats going on in her abdomen? She has almost went to the ER for it several times she says it hurts really bad.

    • ANSWER:
      Lupus that is not treated can result in permanent organ damage, organ failure and death. She needs to be under the care of a rheumatologist. Find one at www.rheumatology.org.

      There could be a hundred different reasons for her abdominal pain, lupus being the least likely. The ER will not treat lupus at all. They fix you up temporarily and then send you on your way. Ignoring lupus will not make it go away. There are usually no symptoms of the organ damage until it has progressed quite far.

  9. QUESTION:
    Is there anyone that has an experience with lupus and joints pain?
    I was diagnose with lupus 2 years ago, I am still debating if i should take allopatic drugs or dieting and natural route will help me to cure lupus. I am now considering homeopathic medicine and if any one have heard of it please let me know. Any one that have an experience positive or negative with plaquenil and prednisone please fell free to post it as well. Thanks
    Thanks Angie for your answer. and the link was very useful! God bless you.

    • ANSWER:
      Hi

      I have had systemic lupus for about 14 years and have experienced joint pain. This is one of the most common symptoms of lupus.

      I personally prefer to do without drugs but obviously in some cases people have to take prescribed medication. I follow the low gi diet which was clinically trialled at the lupus unit http://www.lupus.org.uk/information/information_informationforpatients_diet.htm

      I also exercise, again that has been clinically trialled an proved to be of great help in controlling lupus and my joints are much better since doing this.

      I try to keep a positive outlook which absolutely definitely helps people with chronic illness and doctors will confirm that.

      It may be that you have to try prescribed drugs to get lupus under control and then take the route I have, it's a very individual decision and the severity of someone's lupus will often be the deciding factor as to which route you take.

      The only thing I would say is be very, very wary of 'natural' supplements as they are not always as harmless as they might seem, one of our patients had a very bad experience: http://www.lupus.org.uk/patients/annewarning.html.

      Finally, you will never 'cure' your lupus - no matter what people on the internet may try and tell you! I'm afraid we have it for life (unless a cure is found!). What you can do is control it and even go into remission when lupus goes dormant, but even then it can flare up again, for example if you are very stressed.

      We have a nurse online that can answer any lupus questions you might have, it's a free service: http://www.lupus.org.uk/onlinenurse.htm

      Hope that helps.

  10. QUESTION:
    My wife suffers chronic pain from lupus. Joint pain, headaches,muscle pain, bone pain, sharp back pain and is?
    taking Demerol, lortab, trammadol for the pain; and is taking xanax for anxiety. She says the pain medication doesn't help. What would explain this

    • ANSWER:
      The pain associated with lupus is usually a result of inflammation. The inflammation is the result of an immune system that has gone mad. If the inflammation is not treated the pain will return as soon as the drugs wear off.

      Lupus patients on pain management (which I think is a good idea in this case) often change meds periodically because patients can build up a tolerance to the pain medications, rendering them less effective.

      The pain causes anxiety (fear, depression, etc) which in turn aggravate the lupus and create more inflammation and pain. When you feel like your life and your body are out of control, of course you will be anxious. And telling someone to "just think positive" only causes more aggravation when you are in pain and afraid.

      You wife might considering seeing a pain management specialist for the pain and a good mental health counselor to deal with the emotional issues that come along with a chronic and incurable illness like lupus. Psychologists who work with oncology (cancer) patients are likely to understand the issues.

  11. QUESTION:
    high thyroid antibodies/SEVERE joint pain/ LUPUS?
    Iv been seeing doctors for awhile now and recently did my thyroid antibodies and it came out to 852--- (not a typo)----- Also my TSH was 8 (so we know im HYPO)
    Also I'm changing rheumatologist, who I see to determine if I have lupus because more than a few have it my family. Because of my many different symptoms and joint pain ..

    So My question is Does anybody have Hashitmoto's disease and does it cause you SEVERE joint pain...... Im thinking this is what I have if i dont have LUPUS.

    also my ESR was at 25--- (sed rate)
    Triglycerides was 2192 (not a typo)
    Low B12
    Elevated white blood count (has gone alot in the last few years)
    Bad stomach pains ect.
    Severe headaches, Tired all the time, mild hair lose, obviously Im fat too lol. and Discoid Eczema, I also was diagnose with glaucoma when I was 22 years old. I am almost 25 now. Seriously bad OCD and different things trigger my anxiety.

    • ANSWER:
      A second opinion would be best. YA is probably not the best place to ask this, WebMD has something similar devoted entirely to medical questions and is usually monitored by physicians. Alternatives include MDtalks.com & justaskmedical.com

  12. QUESTION:
    does anyone have lupus that can help me or know anyone who has it?
    can anyone tell me what what to do to help for lupus pain other than pain pills. is there anything at all that helps with the pain any info at all would be great. my dad has lupus and hates taking any pills if he can avoid them. thank you to all who can help me xoxoxo

    • ANSWER:

  13. QUESTION:
    Can lupus cause excruciating knee pain?
    My 13 yr old son is still undergoing testing for a diagnosis. The drs think he may possibly have a Rheumatological disease (Lupus, Stills, etc). He may be having a "flare up" presently. He came down with a virus and 2 days later his knees began to hurt. They have been hurting so severely now for a week he hasn't been able to walk on them. Can Lupus or any other Rheum. disease cause this?

    • ANSWER:
      Yes, joint pain is a very common symptom of lupus. If your doctor does not know about this, you should notify him of it right away.

  14. QUESTION:
    can you help someone with lupus?authritis pain on hips,joints and dizziness.?

    • ANSWER:
      the help i was able to give to my friend who has lupus was to provide her with emotional support like listening to her voice frustrations, practical support like driving her to appointments, and let her know that i cared by asking about her all the time.

  15. QUESTION:
    Took Minocycline for acne and got the Lupus like symptoms, blood in my feces, & painful defecation. Help?
    I have stopped the Minocycline and the Lupus joint pain is gone but the other problem remains. I also have undigested food in my feces. All this started after starting the Minocycline, Differin, and Benzaclin treatment for my face. I don't want to have a colonoscopy if someone knows what is going on. Has anyone else had this happen and what did you have to do to treat it?

    • ANSWER:
      im sorry to hear this im sure you dont have lupis but i would seriously go to the doctors i had a colonoscpy 2 weeks ago and im only 17 and been diagnosed with ulcerative colitis ulcers on my colons and i will tell you that you should not be afraid of the colonoscpy the doctors are nice and they will put you to sleep so fast you wont even no what hit you and you wake up and they told you the prcedure took 2 hours but it feels like no time has gone buy
      be strong and see a doctor if i can do it you can best wishes and good luck plus if you go through with it which you shoudl the doctors can help you instead of you being scared

  16. QUESTION:
    Lupus/MS Chest pain vs. heart pain?
    If a person has MS/Lupus which is associated with pain especially chest pain, how can you tell the difference between a heart attack pain, acid reflux chest pain and Lupus/MS chest pain?

    • ANSWER:

  17. QUESTION:
    Anybody with Lupus (SLE) can tell me how the pain feels like?
    I am very worried that i might have Lupus, although my ANA test was negative but i have a higher than normal SED rate and everyday my body temperature is above normal. I feel pains in random parts throughout my body. The pain will randomly come in one spot, where it would hurt for less than one minute, then it disappears and some other time of the day i get another pain in somewhere else where it lasts for less than a minute also. Is it possible to go through a lupus flare that lasts less than a minute?

    Can you describe the duration of pain in lupus? If your leg joints are affected, does it continually hurt for days?

    • ANSWER:
      An elevated sed rate can come from multiple different sources. This is a very non specific test and is a marker of inflammation that can come from a great number of things including infection. A fever is also a non specific finding that can be related to lupus but can also be related to many other things. Your ANA was normal, so that speaks less for lupus. The sensitivity of the ANA test is very high at 99%. This means that if you take 100 people with lupus, 99 of them will have positive ANA results. So it is quite unlikely to have a false negative.
      Saying "random" pains is very non specific as well. Are the pains in different joints or just random parts of the body? As far as the joint pain goes, while all joints can be involved the most common are small joints such as those in your hands and wrists Lupus flares do not last minutes like that they go on for days or longer. Other symptoms you might see with lupus is fatigue, rashes, skin ulcers, problems with the blood, lung, and kidney issues. With your ANA result it is unlikely this is lupus. A lot of things can cause these problems you are describing. Where are you from? Have you been tested for Lyme's disease? Rheumatoid arthritis? Age is a factor as well

  18. QUESTION:
    Constant Pain, not lupus! HELP!!!?
    I have been in constant pain for almost a year now. I was in the hospital in January and February of this year, and I had the 5th disease (or Parvo, what ever you want to call it). I was on Prednisone for 3 months, and I am still hurting. They put me back on the steroid, but it actually made it worse. From the base of my skull, down behind my ears, down my neck to my shoulders and all the way to my hips, I hurt. My skin and my joints hurt. They tested me for Lupus, and for Rheumatoid Arthritis, and they both came back negative. I am only 30, and should not feel this way. I was leaning towards fibromyalsia, but I would like to talk to someone who has that. Please let me know! Thanks in advance!!!!

    • ANSWER:
      sounds like fibro to me. i suffered like that for 20 yrs. before i got a correct diagnosis. change doctors until you find one who knows the correct way to test you. they will feel tender points under the skin and then will know if you have that or not. i hope you don't have it.

  19. QUESTION:
    REALLY BAD JOINT PAIN"LUPUS FLARE"???
    can barley move my hands, shoulders and neck looks like my knees [or legs] want to start 2. i have lupus and since i've been diagnosed i've never had joint pain like this.. anything i can take? theres inflammation in my hands to. i can't grab anything and if possible dnt reccomend prednisone i get too depressed , anythingover the counter? for the pain i went to the hospital and perscribed viccadin and or tylenold my question for that is it going to stop the swelling and painn.. i took tylenold but it only helped for my fever, which i also have infection in my throat. anything pleaseee!!!

    • ANSWER:
      you need to take an anti-inflammatory. ie: naproxen, or ibuprofen. tylenol is not an anti-inflammatory, only a pain reliever/fever reducer. prednisone is a corticosteroid and is used only in severe cases of inflammation, but it does wonders.

      if you cannot take the steroids due to, as you say, depression, and the over the counter nsaid's are not working you may have to step it up to a prescription nsaid such as celebrex, but you will need to see a doc to get it.

      my suggestion is to go with naproxen (aleve) to start with. i've had better luck with it than ibuprofen. if that doesn't work then you will have to go with a prescription drug.

  20. QUESTION:
    Does medical marijuana help with the pain of lupus & rheumatoid arthritis?
    Hello,
    I have lupus & rheumatoid arthritis and I'm at the end of my rope. My doctors can't treat my condition & I have tried everything. Right now I'm on a medicine "cocktail" of morphine, vicodin & oxycodone which I'm sure is killing my liver. I have never done marijuana- not even in my younger days. I recently talked to someone else with lupus & they told me that medical marijuana helps her get through her day. Does anyone have insight or experience with this? I'm not sure what to do at this point..... I'm just in pain....

    • ANSWER:
      I have also been through this myself. On Fentanyl patches, other painkillers, muscle relaxers, sleep meds, etc. I have severe fibromyalgia, CFIDS and arthritic pain. But cannabis is the only thing that helps when the pain meds and muscle relaxers won't. And it also doesn't make me groggy & lose sight of what I should be doing. I just feel normal when I use it. If I'm in a very bad flare up, it may not make me able to do a regular day's worth of stuff, but I can tolerate the pain much, much better. I have no side effects from it as I do from other medications. I'd be more than happy to tell you everything I know about medical cannabis (which is a lot), all about my personal experience and what the research says. Just email me if you'd like more information. I'd love to help. You can message me through my Yahoo Answers profile. Peace to you.

  21. QUESTION:
    Aside from narcotic pain killers what else can you do for Lupus flare ups? see below?
    I am in the midst of one now. I also have fibromyalgia and have pneumonia. The pneumonia is slowly going away and now I am feeling the full effects of the Lupus flare up. I've got pain killers but they don't seem to be even "touching" the pain. I'm an extremely positive person and this is the first time a flare up has "knocked me off my feet". Any suggestions would help.

    • ANSWER:
      Not trying to be rude...but take more painkillers dude. Sounds like you aren't taking enough to get rid of the pain.
      Love Makes Everything Good

  22. QUESTION:
    Anyone with SLE Lupus having severe pain in their lower back?
    I was diagnosed with SLE (Lupus) a couple of years ago and I have been close to being in remission a few times. However, I am wondering if anyone else that has SLE has really bad pain in their lower back. Feels like someone has lit me on fire. But it is only inside my lower back. I have had some mild kidney and heart involement. I have been on several medications and nothing seems to be working. Although the plaquenil and predisone seem to be working well as far as some of my labs go. This last visit to my specialist was somewhat scary because one of my blood test came back elevated. That lab had something to do with the amount of damage that has occurred??? I am not exactly familiar with all of the labs and medical "talk". I did find some relief for the neorophathy when I had been taking Neorontin (sp???)
    I am just frustrated and trying to find someone who might have had the same problem and may have some advice.

    • ANSWER:
      I've had lupus for 10 years now, and the things that have caused pain in the lower back for me have been osteoartiritis in the spine, kidney stones and vasculitis and nerve damage. There are a lot of things that can cause pain in that area. If your lupus numbers are elevated, then it could be the beginning of a flare. I have a web page that has a lot of info that may help you learn your meds and what they do if you want to check it out.

      http://www.heatherslupus.com/index.html

  23. QUESTION:
    I have a family member who has lupus and has chronic flares she says she's in constant pain but she wont see?
    rhemutoligist she takes medicine but its pain medicine. Does her not treating the lupus decrease her life expectancy, and if so how many years can she live with untreated lupus? Will it eventually cripple her?

    • ANSWER:
      Untreated lupus can result in permanent organ damage and even organ failure. She is treating the symptoms and not the cause. The cause of her pain is that her immune system is attacking healthy parts of herself. The only way to stop that is to take immunosuppressive drugs.

      No one can predict life span. People with lupus are up to 6 times more likely to have heart attacks and strokes because of the chronic inflammation. The immunosuppressives help bring the inflammation under control. Lupus does not destroy joints the way rheumatoid arthritis does. But the constant pain means she will not want to exercise leading to loss of flexibility and range of motion as well as conditions like heart disease and obesity.

      All that said, she is an adult. You can give her the facts. You can't make her take care of herself. But as long as the family is giving her attention by worrying for her, she doesn't have to bother. Lay out the proof and let her decide. You can't control this.

  24. QUESTION:
    Can u have the butterfly rash without having lupus? I have joint pain, swelling and kidney problems.?

    • ANSWER:

  25. QUESTION:
    Is it arthritis, lupus or just pain?
    I have this dull achy leg pain for years now (since i was about 8) and my dad would always think it was growing pain, in my teens it got worst then of course it was shinned off as growth spurt. Now i am 21 and i still have it. the pain starts in my hip adn goes down my leg to my knee, i cant pin point f its in my muscle or my bones. At times i can not walk on it for a long period of time before it starts to really aggrevate it! I have an appt in two weeks so any advice or points of view would work (mature ones)! thanks in advance xoxo

    • ANSWER:
      That does not sound like lupus. I agree that it sounds like a nerve problem. However, when you go to the doctor, do not tell the doctor that you have been trying to diagnose yourself and that you think you have lupus or something else. That is the surest way for the doctor to blow you off. If that happens you won't get a diagnosis, you won't get help, and you won't get relief.

      When you go to the doctor be prepared to describe you symptoms clearly and concisely. When did it start? How often does it happen? Is there something that makes it worse? Is there something that makes it better? Describe the pain. Is it shooting? Throbbing? Dull? Do you experience stiffness? At what time of the day? (Yes this matters). To what degree does the symptom prevent you from performing basic activities of daily living?

      Then let the doctor do the job of diagnosing.

      Best wishes.

  26. QUESTION:
    Do you have any tips on how to deal with pain and stiffness caused by lupus and fibromyalgia?

    • ANSWER:
      There are different methods you can imploy. First of all, make sure you have a healthy diet. Lots of fruits & vegetables. Try to avoid a lot of processed foods, red meat, and wheat products. Omega 3 fatty acids can help, and this is found in fish oil - particularly, salmon.

      If you can, also try to exercise. Simple things like tai chi, stretching, or even yoga can help if you can't do regular aerobic exercise or weight training.

      I'd suggest trying to get a good liquid multivitamin as well.

      Other than that, there is traditional medicine. You can start with mild OTC meds like aleve, advil, etc. Some make special versions for arthritis. Otherwise, you can see a rheumatologist and try to get on some other medication that might suppress the diseases and hence relieve the pain and stiffness.

  27. QUESTION:
    I have had pain in my ankles. I have lupus and I have been wearing uggs?
    They feel better when I wrap them in ace bandages. I am slender and 63 y/o. Does anyone have any suggestions as to what could be going on?

    • ANSWER:
      When you have lupus, it sometimes leads to kidney malfunction (I don't want to say failure) and that alone can lead to swelling in tissue and joints, or if it has been recognized, then the treatment which is cortisone-based, or actually anything from steroidal to chemotherapy, can cause huge problems with swelling. I don't know if that's what's happening.

      In any case, if you've been taking chemo, scale it back or stop it. See a kidney specialist (Urologist) to ensure you don't have any form of Glomerulonephritis. Get bloodwork done to look for uric acid, gout and less serious liver problems as well. Do not take Tylenol or Acetaminophen. Try Advil or Ibuprophen.

      Avoid alcohol or foods which are prone to cause gout, such as really red meats.

      Consider the possibility of circulatory blockage or PAVD. Soak in warm then cold water, alternately.

      Do mild stretching exercise, and get exercise which is not pounding or strenuous. Walking or bicycle. Elevate the legs where possible, and do not cross them.

      Again, go back to the lab work and check for any sign of rheumatoid condition. Or else, maybe it is just time for osteo arthritis and a general weakening of bone and joints? Do not take very strong calcium replacement drugs which cause jaw problems, and loosen teeth. You may take regular calcium supplements (non-pharmaceutical, but OTC) and Vitamin B12 with iron for the blood, and other post menopausal hormone replacement therapies or vitamins like Centrum etc.

  28. QUESTION:
    I am looking for an article on Lupus and Chronic Pain.I found it once before, but I have forgotten where!?

    • ANSWER:
      Chronic Pain in Lupus
      by Karyn Moran Holton

      Chronic pain. Pain that goes from bad to worse to unbearable. Pain that lives with you every day of your life, never ceasing, not even long enough to get a night's sleep, is one of the worst things about having lupus.

  29. QUESTION:
    I have lupus and I have pain in my left foot ,its swollen and warm to the touch and very painful dose anyone h

    • ANSWER:
      Please see your doctor. Lupus patients should not "wait it out" with things that concern them. The fact that you posted here shows that you are concerned. Without knowing a whole lot more, we can't even guess. Your doctor is the best bet. Do call your doc so that you can perhaps prevent permanent damage.

  30. QUESTION:
    are joint and muscle pain signs of lupus?

    • ANSWER:
      Yes, they can be. They could also be signs of numerous other things. Only your physician can diagnose lupus or any other joint related disease.

  31. QUESTION:
    Steroid and pain shots for lupus, any info?
    I had a steroid shot in my butt cheek and i reamber it hurting real bad. My roummy wants to give me a shot for the joint pain i have been having in my hups, and knees. She also mentioned a pain shot....I do not know what any of this is, im kinda new to this whole lupus thing.
    yes it was a doctor that gave me the shot before haha. It was to help my daughters lungs devlop because i kept going into preterm labor
    well i did get both shots and wow, i feel awesome. I have not felt like this in a long time. I dont think my doctor would give me something that would be bad for me. I am sure that the benefits outweigh the risks

    • ANSWER:
      any treatment plan for lupus should be cleared with your doctor. Even "natural" approaches still have medical interactions. Find out exactly what your "roummy" wants to give you, and ask your doctor about it specifically.

  32. QUESTION:
    Do you have to be in pain to have Lupus?
    I think I may have Lupus.
    I have some rare symptoms that are connected to the disease
    My toes turn purplish blue sometimes, I have hair-loss (Alopecia), extreme fatigue etc.
    I just found it weird that no other disease has both Alopecia and Raynauds Syndrome (purple toes) as symptoms...

    The only things I DONT have are joint pain.. my knees do hurt sometimes but not enough to bother me.. and I've never got the "Butterfly Rash"

    I read that not all Lupus cases are the same so... is it possible I could have it?

    • ANSWER:
      Raynaud's and alopecia can occur all by themselves or in combination with other autoimmune conditions like lupus.

      Lots of people with lupus never get the butterfly rash. I have had lupus for 45 years and never got the rash, and at one point my case was life threatening.

      90-95% of lupus patients get joint pain.

      Fatigue could be caused by anemia, low blood sugar, thyroid issues, and a ton of other things.

      If you really think you might have lupus (I don't) then go to a rheuamtologist. You can find one at www.rheumatology.org. If you do see a rheumatologist, simply present your symptoms. If you go in having possibly diagnosed yourself, then you will not be taken seriously. Expect to have a lot of lab tests and spend several hundred dollars.

  33. QUESTION:
    Do I have and autoImmune problem? I have increasing fatigue and joint pain. but neg lupus and rheumatoid tests?
    I am 40 yrs old and over the past year or so have increasing severe fatigue, pain and aching in my back, neck, hips and shoulders. I now have about 10 "good" days out of each month. I also have been sick a lot, have had reoccurring shingles. I get hives out in the sun and burn in only a few minutes. And I get weird rashes on my body -usually down my back or my upper neck and chest area. I have low thyroid (but levels are in control with low dose of med) and occasional anemia. I am a healthy weight, healthy diet, and very active but now if I push myself too much with activity I get extremely nauseated. Rheumatoid and Lupus tests came back negative but my Igg (?) was low. Also a few weak positives. My doctor is trying to get me referred to a rheumatologist or immunologist but it has been months going through the hoops with poor medical insurance provider and still trying. Maybe a change in my diet could help if I knew what was wrong? I'm becoming more frustrated by the day.I have 4 months of nursing school left and have got to get better to make it through and finish! Any ideas whats wrong with me? Any thoughts or suggestions would be appreciated.

    • ANSWER:
      I am going to suggest two types of things that you may be eating that may be causing you problems.

      The first is gluten containing foods if you have developed celiac disease or a gluten intolerance. You can get tested for celiac disease by continuing to eat gluten found in wheat, rye and barley until you get tested with blood work and an endoscopy. Even if the tests are negative, go gluten free for 3 months to see if you have nonceliac gluten intolerance.

      The second type of foods are called nightshades which are tomatoes, potatoes, peppers, eggplant and a few others. They can cause joint pain and in some people, cause rashes, hives and other problems. You would have to quit eating them and see what happens.

      I see what you said about insurance providers so if you want an answer without testing, then you just go on a gluten free diet and see if you get better. After that go nightshade free if the problems persist.

      If the problems persist after the diet attempts, then you may need to see a team at a research hospital about the possibility of vasculitits or another autoimmune disease.

  34. QUESTION:
    My Doctor suddently stopped my pain meds, what do I do?
    Hi, I have severe chronic pain. Lupus (which attacks the joints), severe fibromyaligia, knee arthritis, neuromas(pinched nerves) in both feet, arthritis in my back and more. I can't function normally without pain meds. He has been prescribed vicodin for five years, no problem. Suddenly his brother joins his practice and brings along his nurse from hell. She rudely calls me and says, "you obviously have a drug problem, you need to go to pain management." I was shocked. Somethings happened and I'm at a loss. I have no medical insurance to pay for pain management! They want 380.00 just for a consultation!. So, now i don't know what to do. It would eat least be easier if he would taper my dose down until I figure out what to do but no, he just completely cut me off without warning. So, what can I do? please help!

    • ANSWER:
      well anyway you look at it, you need another doctor now. Cant you get back in to see your old doc and work on a pain management program with him/her? Probably not so you need a new doc.

      If you have been taking the same dose of vidodin for 5 years, you have built up a tolerance to it and it is doing you very little good at this point, for your actual pain.

      Go online and look for free or lowcost health clinics in your area. first and foremost you need a new doc.

  35. QUESTION:
    Does outdoor heat and indoor AC cause the same type of joint pain/aches in Lupus patients?

    • ANSWER:
      Jamie lupus reactions are highly variable, outdoors its the sunlight and not the heat in my understanding and indoor AC, I don't think causes harm like the outdoors in winters, if your symptoms are flaring frequesntly then talk to your rheumatologist again, good luck

  36. QUESTION:
    Does Lupus cause Jaw joint pain.?
    THe doctor checked me for Jaw joint pain and said I could only take Advil. A year ago, I had the lupus butterfly rash and a positive ANA test. The rash went away and the doctor told me not to worry. Any comments about the Jaw joint pain?

    • ANSWER:
      TMJ is a possibiliy. We don't realize we're gritting our teeth at night. The dentist gave me Flexerel for a month to stop the inflamation.

  37. QUESTION:
    Can I collect disability for having Lupus?
    I have Lupus. I am in pain and tired all the time. Can I collect Disability?

    • ANSWER:
      The diagnosis alone doesn't mean anything as to whether you can collect disability. They are only concerned with how severely your function is limited as a result. It is a very complicated formula that takes into account your function, age, education level, type of past work, etc. The diagnosis is only a teeny part.

  38. QUESTION:
    what kind of pain medicine are you supposed to take for lupus?
    i am not sure that i have it but the doctors think i do
    and i have tryed all kinds of pain medicine
    can someone help me know what is best to take please and thank you

    • ANSWER:
      Medications frequently used to control lupus symptoms are:

      nonsteroidal anti-inflammatory drugs (NSAIDs)- These are your advil, aleve etc. You can usually buy them over the counter. But doctors can prescribe higher strength versions.

      antimalarials- these were found to work accidentally. They work in mild cases without organ involvement. They have few serious side effects. The most common one is Plaquenil

      corticosteroids- these are steroids, but not the steroids that weight lifters take. Doctors usually wont want you on a high dose of a long period of time but they're good for flare ups. They can cause some serious side effects.

      immunosuppressives/disease-modifying anti-rheumatic drugs (DMARDs)- These are commonly prescribed to people with rheumatoid arthritis or severe cases of Lupus. They slow the disease and suppress the immune system. They come with serious side effects too.

      You need to discuss this with your doctor though. They will know what the best medications are to manage your illness.

      .....

  39. QUESTION:
    Anybody know the prognosis for Lupus?
    I recently have had alot of symptoms of Lupus(pleurisy, joint pain, low WBCs, positive ANA level, rash). I am 30 with 2 children. I just found out today that my ANA level was positive. I have an apt with a Rheumatoid MD Friday. I am a basket case. I feel positive one minute and then I look at my kids and lose it. Anybody know anyone personally who has had it a while or any info on prognosis. The internet will scare you to death.

    • ANSWER:
      I am nearly 57 and I have systemic lupus with organ involvement (heart, lungs, bone marrow, kidneys) and right now I am probably in remission. Lupus can range from mild to moderate to life-threatening. It affects each person differently and can change over time. Once you see the rheumatologist, make sure to follow your treatment plan. It is designed to prevent long term damage and address the underlying cause of your symptoms. Keep your appointments so that the doc can spot abnormalities early and intervene. The vast majority of people with lupus can live a relatively normal life span if they follow their treatment plan and see their doctors as required.

      By the way, I was on disability for 4 years because my flare was extreme and I was not diagnosed before hand. Now I work 7 days a week and can run circles around most folks my age.

      Stress plays a huge role in lupus. Learn stress management and reduction techniques. Get exercise, even though you don't feel like. A good walk will do wonders to relieve pain in the long run, help you sleep better, and balance your immune system. Avoid the sun. It's your enemy now. No tanning beds either! Eat a healthy diet, your body has enough to deal with without you feeding it junk. If you smoke-stop. Cigarette smoke is a HUGE trigger.

      Do not be afraid of the medcations. Instead, tell yourself how fortunate you are to live in a time and place where you can be diagnosed and treated. Many lupus patients in the world are not so lucky.

      Learn about lupus. The Lupus Book by Daniel Wallace is excellent, albeit it a little scarey. He describes everything that COULD happen, not everything that WILL happen.

      Remember to be kind to yourself. Rest when you are tired. If you push yoursel you can set off a far worse flare. Email me if you would like.

  40. QUESTION:
    have been diagnosed with SLE (Lupus),.I have severe pain throughout my body,is this normal.?
    Lupus is attacking my Lungs & Liver and I have also had a few blood clots recently. I have severe joint pains and feel generally very unwell.My doctor has now increased my steriods and I am also on Warfrain to keep my blood thin. Are these normal symptoms.

    • ANSWER:
      Hi, i'm sorry to say that it is quite normal. I have Lupus SLE, and was diagnosed just a year ago. When it was active, I was in pain in my hips, hands, and feet. Sometimes it was hard for me to walk normally (without waddling). Right now my lupus is in remission so I feel fine. At my worst time, the lupus was attacking my heart and lungs. I want you to know that although these symptoms are normal, once your lupus stabilizes or goes into remission, you will be fine. Just keep a positive outlook on life, eat healthy, exericise, and taking calcium + D supplements. Good luck!

  41. QUESTION:
    I have dual shoulder joint pain at night and it's occurring in both wrists. It's so severe tha I wake up
    crying. It's like my shoulders get locked and I have to have my hubby throw them over my head to break them free. Them same is starting in both wrists. I have been on anti-inflamitories and no help. In the mornings when I wake it's like there is a numb-muscle weakness in my joints its hard to lift my coffee cup.Once I get moving and about the house the pain and weakness almost subsides. I have tested negative for MS and Lupus . The pain is so excruciating and I'm a woman and only 37 years old. What could be going on?? Anyone with similar symptoms? The doctor just tells me to take an anti-inflamatory. It seems alot worse now the weather has turned colder. I need some type of relief here.PLEASE!!

    • ANSWER:
      during winter OA is at its peak better take advise about cortisones, consult and have a Q/A session with your orthopedic surgeon. OK

  42. QUESTION:
    Lupus , Btuuerfly rash and joint pain?
    My wife has tested positive for lupus and it is a while before we can go to the doctor to get spicific treat ment for her.
    She has the butterfly rash across her face, which im told really itches, and joint pain. Is there anything we can do before we get to the doctor to make her more comfortable?

    • ANSWER:
      Hi Frankie

      Here is an testimonial idea to try

      2/11/2007: Donna (hooper1[at]charter.net) from Tunnel Hill, GA writes, "The rash I had lasted for almost two years--tryed everything--natural--I do not like the medical field at all--so a friend of mine who is very much so into alternative medicine started researching about skin--well needless to say she came across and Idia site that said mix tomato juice(organic) and coconut oil(organic) to the rash--the rash was all over my body--I was in so much pain from the rash I was crying--so I mixed it in the blender--put towels down in my bathtub--so as not to make a mess--my husband bless his heart--took a big cooking spoon and pored it on me--as he was pouring I was rubbing it in--yes it had a very much so tingling effect--but we didn't stop--we did this for about 15 minutes--then I didn't wash it off we just kind off blotted it--put on some clothes I didn't mind messing up--the next morning the rash was almost gone--I did the treatment one more time--as of this day which has been about a year--I have seen no signs of the rash--hope this will help someone else--Donna"

      More ideas to try here
      http://earthclinic.com/cures.html

      Best of health to both of you

  43. QUESTION:
    Any good suggestions on how to alleviate osteoarthritis pain?
    For example - I know someone who has osteoatthritis and joint pain, some due to Lupus. I heard Glucosamine Chondroitin is good? Anything else? (traditional or alternative means - or home remedies )

    • ANSWER:
      take asprin reguraly , or advil to help with the pain. also apply aspercream often to the most painful places.use real warm towels to soak on the skin for 20 minutes 4 times daily. try walking some everyday--if possible. also take vitiman D everyday. drink fluids reguraly and eat foods rich in niacin and magnesium. good luck.

  44. QUESTION:
    Do I really have Lupus or something else?
    My ana was neg but my sed rate was at a 88, I have constant joint pain, mood swings, loss of concentration,hip pain,swelling of feet occasionally, trouble doing tasks that i used to do, I can peel about 4 potatoes then my hand gets stuck in the position its in,my primary dr says i have lupus with all of the signs and arthritis, but the rhuematologists is confused by the neg ana and said because when i come see him im not swollen or stiff then i cant have arthritis? trying for disability but they are only looking at neg ana and no other facts so i keep getting denied and it dont help that im 33 yrs old. What else could this be, if anyone has an opinion please share i will ask for the test. I have been tested for lupus and RA, I also had pluresy as a kid which is one of the affects of lupus? back pain as a kid as well Please someone help me.

    • ANSWER:

  45. QUESTION:
    i have lupus and suffer from very bad pain and swelling in my joints is there anything good for pain n swellin?

    • ANSWER:
      I am on Evening Primrose Oil as prescribed by my Physician since 1998, ten years and all those red hot joints are no more. Best of Luck

  46. QUESTION:
    I have lupus Arthritis , I am always in too much pain are there any home remedies for pain please help!?
    I am 22 yrs Old. I have lupus for past 4 yrs. I am always in pain. Medicines don't help much its hard for me to move around. walk around, knees and heels hurt..i need some advice and suggestions what should i do ,eat or use that would help me with my condition.

    • ANSWER:
      I have some suggestions for you. Try a jacuzzi, this seems to help my wife a lot. The warmth of the water and the jets seem to relax her joints and help her sleep. Luckily we have a jacuzzi at home but if you aren't so fortunate, you can try your local gym or maybe a friend who has one.

      When her knees and ankles are really aching she ices them down for a couple of hours, elevating them at the same time.
      This is best done when settling down for the night. One of the problems with this is her Raynaulds syndrome, so we make sure to keep the ice away from her fingers and toes. I acutally put a sock on her feet and put the ice on her ankles after the sock is on so that her toes won't get cold.

      Massage also helps. Whether it's from a loved one or professionally done. If going to a professional, make sure you let them know that you have a problem with your joints so that they don't over do it.

      Lastly, exercising in a pool also helps by keeping the shock of running/walking off the joints. This is something that my wife does three times a week...aqua aerobics. She does it at her local gym. Also she takes Yoga once a week at our city's community center.

      You should always eat a well balanced diet, keeping fast food and soda to a minimum. These tips can help to alleviate some of your pain.

      Good Luck!

  47. QUESTION:
    I have lupus and in a lot of pain sometimes can i get disability?

    • ANSWER:
      You cannot be considered for social security disability until you have been out of work for 6 months. Almost everyone gets denied 2 times. You should call around and see if you can find a social security disability attorney who will give you a free consultation. You want to do everything right from the very first encounter with the system.

      Don't expect to be able to live on ssd. I was making 50,000 a year and mine would have been 1,148 a month. Also, Medicare does not begin until two years after the date you filed. Unless you can cobra your current insurance you will spend two years being uninsured. If you are not working you will not be able to afford the roughly 800 a month in cobra payments.

      If you have private disability you may be able to get that sooner. In either case, pain from lupus is probably not going to get you disability. The lawyer will help you make sure that the right things get in your file. Also, make sure you tell your doctor EVERYTIME what your issues are. Social security will require the doctor's notes from each and every doctor and visit.

      Your doctors and three other people who know you will all have to complete forms attesting to your disability.

      Do some reading at the social security link below. Best wishes.

  48. QUESTION:
    Can lupus or scleroderma be resopnsible for abdominal pain?
    Recent blood tests indicate an autoimmune disorder, pointing towards scleroderma. I was advised this was in the early stages. I have experienced three seizsures in the last 2 yrs. and a bout of what was thought to be colitis that lasted for approx. 6-7 months. I am now experiencing a great deal of abdominal discomfort especially in the RUQ, RLQ as well to a lesser degree, LUQ. Blood tests, x-ray and ultra sound were negative, however the problem persists. Also suffering from intense fatique. Chronic neck/headaches present resulting from a vehicle accident 25yrs ago.

    • ANSWER:
      My aunt's mom has scleroderma, and she can barely eat anything. My aunt has lupus and really doesnt have a problem with her stomach. I dont want to scare you but they are both pretty serious, dont fall behind on getting them checked out.
      Hope this helps and good luck, i hope you dont have either.

  49. QUESTION:
    what is the average life span of someone with lupus?
    i was diagnosed 10 years ago with RA but found out 2 days ago that i tested neg for ra and positive for lupus. i am in constant pain and always tired.i am a single mom what can i expect? how long will i live?

    • ANSWER:
      I have been living with Lupus for 15 years. There is no cure (yet) but lifestyle changes are important! I ran a Lupus Support group for 3 years and it affected each individual different. There is no "average life span" of a Lupus patient. If the doctors tell you that you have a certain amount of time left don't listen! They told me that I would not live through the night and that was in 1992. If you have joint pain and fatigue then it is "mild" opposed to organ involvement which is severe. Don't start worrying about dying but rather just live life. None of us knows when we are leaving this earth (whether we have an illness or not) and it is only up to God when we do. Stay out of the sun, avoid stress as much as possible, try to stay away from chemicals in food and products you use on your body and learn to listen to your body. When you need to rest do it. You can live until you are 90 just like everyone else. Don't believe in quick fixes or a magic pill because there are a lot of people out there claiming they have that one cure for you and it is basically to fill their pocket full of money. Work with a doctor that will listen to you because it is your body and surround yourself with supportive people because even though you look completely fine sometimes you won't feel that way and it is good to have people that understand. Try and find a Lupus support group in your area. God Bless You.

  50. QUESTION:
    Do you think these pains could be lupus?
    I have pains in my knees, fingers and elbows which give me great discomfort. I also have an under-acative thyroid which leaves me feeling very tired and drained. I work in a kitchen so am on my feet alot but this past year the pain is worse. So days are better then others. My finger joints become hot and painful.

    • ANSWER:
      Lupus in its mildest form is treated with anti inflamatory tablets similar to arthritis ,also as it is an auto immune disease it can attack every bodily system,not easily diagnosed in the early stages unless you have the trademark butterfly rash it can be fatal


Lupus And Kidneys Problems

Glomerulonephritis may be acute, with a sudden onset and violent manifestations or chronic, with a slow evolution and asymptomatic in particular cases. If it occurs as a disease in itself, it is of primary type. Secondary glomerolunephritis is caused by other diseases such as lupus erythematosus, diabetes mellitus, Hodgkin disease or Goodpasture syndrome, an unusual type of polyarthritis.

Post-streptococcal glomerulonephritis is an unusual type of glomerulonephritis occuring especially in children. The disease occurs following a streptoccocal infection of the pharynx or of the upper airways. Seven to ten days after the infection occur the first symptoms of glomerulonephritis: burning micturition, diminished amounts of eliminated urine, hematuria (presence of blood in urine), or proteinuria (excessive amounts of proteins in the urine, a situation in which the urine is frothy at voiding).

The quick progressive glomerulonephritis is another particular form of glomerulonephritis: the glomerules are destroyed and the kidney functions are affected within several weeks or months. The inflammatory process is accompanied by glomerule necrosis. As symptoms, there are edemas, hematuria, diminished amounts of eliminated urine, difficult breathing, muscle pains, diarrhea, abdominal pains, coughing and high fever.

Untreated, glomerulonephritis causes the kidney blockage, manifested by: nocturia (the need to urinate at night), vascular tenderness (easy bruising and injuring), somnolence, lethargy, chronic fatigue, confusion, nausea, vomiting, major loss of weight, general indisposition, migraines, pruritus (itching), diminished amounts of eliminated urine, muscle spasms and cramps, convulsive fits and coma.

Causes

Among the causes of the primary glomerulonephritis are the following: repeated inappropriately treated or untreated renal diseases (renal infections, renal lithiasis and microlithiasis), certain sexual transmission diseases affecting the urinary tract, too, and certain congenital anomalies.

Treatment

Healing glomerulonephritis requires a complex treatment, as the kidneys hold and maintain the body's primary energy. Among others, the renal dysfunctions disturb the distribution of the primary energy in the body, energy that remains stuck at renal level. The combined and simultaneous participation of all the organs in a body restore the normal energy flow. The function rate of the organs will be changed in order to provide the kidneys with the energy and the material supply for the process of physical healing and energy release. Although the organs' rate of function is altered by special acupuncture techniques, the organs will still perform their daily functions. The areas of basal glomerular membrane will be restored and the accumulated toxins and the calcifications built in time are dissolved.

Frequently Asked Questions

  1. QUESTION:
    Has anyone ever been treated for lupus and kidney problems?
    I was recently diagnosed with SLE Lupus, and was told that the lupus was attacking my kidneys, so my kidneys were spilling protein... They began me on cytoxan for my kidneys... has anyone else had a similar case but is being treated with something else. Everyone I have talked to has never heard of being treated with chemotherapy for my condition... makes me wonder...

    • ANSWER:
      Were your BUN and creatinine elevated? I am sure they were since they put you on Cytoxan. It is normal to be treated with chemo drugs for Lupus. It is usally not the first line of treatment, but depending on how severe your kidney damage is they may have decided to start you on it. I sent you an e-mail too.

  2. QUESTION:
    Is drinking organic coffee bad for people with lupus and kidney problems?

    Please explain why.

    • ANSWER:
      Interestingly enough, coffee isn't bad for people with Lupus nor with kidney problems. In fact, quite the opposite may be true. A new study seems to indicated that caffine may help stop MS from progressing. MS is another auto immune disease different from Lupus but an auto immune disease, none the less. While no direct studies have been done to date on the possibilities of caffine as a treatment for Lupus I wouldn't rule it out. In any case, coffee isn't anything that someone with Lupus should avoid. Since coffee is a diuretic, it can actually help people with Kidney issues as well.

  3. QUESTION:
    I have a chronic kidney problems and Lupus. My BF is moving his kids in here. I fear my body take the stress
    The boys do not know how to clean up after themselves and they are plain lazy...My fiance says he will train them..They are 13 and 17. I am scared. I have a very hard time with my health. The hardest thing I ever did was raises my daughter and it was extra hard for me due to the health situation.

    • ANSWER:
      Hi Katz

      You need to take control of your health and stop being a victim. Make a decision today to take control of it and your body will start healing before your eyes. What you say and think about is what you get in life (positive or negative). Are you drinking a gallon of water a day to flush out the toxins? Learn about detoxifying the body and cleansing the waste out of your system. Colon and liver cleansing would do wonders for your health. Here are some more ideas on how to heal your condition.

      Cause
      Food allergies (there is a 100 percent correlation between lupus and food allergies), rheumatoid arthritis, other connective tissue diseases, parasites, candidiasis, bowel problems, and digestive enzyme deficiencies can create symptoms that mimic or exacerbate SLE. Migraines, epilepsy, and psychoses must also be ruled out before a proper course of treatment can be decided upon.

      Both forms of lupus primarily strike young women (90% of cases) and young children.

      The drugs hydralazine, procainamide, and beta blockers can cause false-positive readings of SLE, and can also produce a lupus-like condition that disappears when the drugs are no longer taken. Birth control pills and environmental stresses can also exacerbate lupus symptoms.

      --------------------------------------------------------------------------------

      Natural Cures

      Diet: Eat an organic, whole foods diet. Also avoid overeating and limit your intake of dairy, beef products, and polyunsaturated oils. Also screen for food allergies and avoid all foods to which you are allergic or sensitive. Increase your intake of vegetables, especially green, yellow, and orange, and consume non-farm-raised fish several times a week.

      Herbs: Supplementation with Swedish bitters with each meal can increase hydrochloric acid production. Also drink an infusion of nettle twice a day. Other useful herbs include echinacea, goldenseal, licorice, pau d`arco, and red clover

      Hydrotherapy: Hydrotherapy is the application of water, ice, steam and hot and cold temperatures to maintain and restore health. Treatments include full body immersion, steam baths, saunas, sitz baths, colonic irrigation and the application of hot and/or cold compresses. Hydrotherapy is effective for treating a wide range of conditions and can easily be used in the home as part of a self-care program. Many Naturopathic Physicians, Physical Therapists and Day Spas use Hydrotherapy as part of treatment. I suggest several at-home hydrotherapy treatments.
      Hyperthermia: Hyperthermia involves artificially creating fever in the body for the purpose of boosting immune function.

      Hyperthermia can be a highly effective method of eliminating toxins and heavy metals, as well as infectious bacteria and viruses that cannot survive in elevated body temperatures.

      *Purified water is essential for any hydrotherapy or hyperthermia treatment. Remedies for Treating Chlorinated Bath Water offers clear instructions and recommendations.

      Juice Therapy: Drink the juice of carrot, celery, flaxseed oil, black currant oil, and garlic.

      Nutritional Supplementation: Hydrochloric acid (HCL) deficiency is common in people with lupus, therefore HCL supplements with each meal is advised. Other useful nutrients include vitamin A with beta carotene, vitamin C and bioflavonoids, vitamin B complex, vitamin B5, vitamin B6, vitamin B12, calcium, magnesium, selenium, zinc, essential fatty acids, proteolytic enzymes taken away from meals, digestive enzymes taken with meals, and the amino acids L-cysteine, L-methionine, and L-cystine.

      Topical Treatment: PABA cream applied topically can help ease symptoms.

      Alternative Professional Care
      If your symptoms persist despite the above measures, seek the help of a qualified health professional. The following professional care therapies have all been shown to be useful for treating Lupus: Acupuncture, Biofeedback Training, Bodywork, Cell Therapy, Chelation Therapy, Detoxification Therapy, Environmental Medicine, Enzyme Therapy, Guided Imagery, Homeopathy, Juice Therapy, Light Therapy, Magnetic Field Therapy, Natural Hormone Replacement Therapy, Naturopathic Medicine, Oxygen Therapy, Qigong, Rolfing, and Traditional Chinese Medicine.

      Best of health to you

  4. QUESTION:
    Can u have the butterfly rash without having lupus? I have joint pain, swelling and kidney problems.?

    • ANSWER:

  5. QUESTION:
    I have lupus and something is still not right? What could be wrong?
    hey. so i have lupus, and im on certain medications for it. Lately i've been getting these really bad pains underneath my ribs and even what feels like my ribs hurt. about 2 weeks ago i had severely bad pains there and when i got up to take something, i got extremely dizzy and i passed out. i felt better after that, but about an hour later they got worst and then i ended up spending the day in the emergency room. the doctors said that i had lost a lot of weight and thought i was like annorexic (which im not) and they said it was like indigestion. i wasn't convinced and neither was my mom. so i stopped taking the medication they gave me for heart burn and it seems i haven't received that pain again. except for the pain around my kidney area, which isn't constant. i get dizzy sometimes, and the doctors said i had some white blood cells in my urine, which is blood when they took a test. But they checked my kidneys very briefly and said they were fine. Could this possibly mean i have kidney problems? i know lupus can cause kidney damage, but is that what it is? Should i be concerned? help!!!
    I've been having pain around my ribs where it kind of feels like they hurt but it's sort of beyond them. I'm tired a lot as well. Any ideas?

    • ANSWER:
      Of course you should be concerned.

      Immunosuppressive medications used by rheumatologists for autoimmune diseases are fraught with danger. That is the reason these drugs are used only by rheumatologists and not by internists, family physicians, or other medical specialists. Rheumatology is a medical specialty developed to prescribe and monitor the side effects of these high-risk medications.

      Doctors know the dangers of these drugs, and patients are supposed to be informed about them. Patients choose conventional medical care because they wrongly assume there is no other approach. The rationale for doctors is that we can’t have a person suffering with pain while their joints and internal organs are being destroyed by autoimmune illnesses. Patients and their doctors evidently believe the increased likelihood of cancer [400%] and a premature death from immuno-suppressive drugs is worth the risk. Unfortunately, patients are not informed of the nutritional options.

      .........................................................
      [testimonial]
      After hearing about Dr. Fuhrman, I took the train to New Jersey to meet him. He convinced me to take steps to regain my health. I decided to adopt a healthier diet and to do some fasting. Soon I felt like a teenager again. My face was cool and white for the first time in years, my joints felt great, and I had lots of energy. I lost a little weight and looked great. I went back to see my rheumatologist, who was on staff at a teaching hospital. I thought he’d be interested in my recovery. But when I started to tell him about my experience and my newfound health, he practically walked out of the room. He was not the least bit interested in hearing the details of my recovery, and he simply wrote “spontaneous recovery”on my chart. Nine years later, I remain symptom-free,and lupus is no longer part of my life. I play tennis and compete on a local team. No one who knows me today would ever guess that I used to be in such pain I couldn’t even shake someone’s hand.
      .....................................................
      The above is a partial quote from one of Dr. Fuhrman's newletters, available to subscribers only.

      I suggest reading Dr. Joel Fuhrman's books which of course are available everywhere. Or visit his website.

  6. QUESTION:
    How severe is this lupus?
    My mom has lupus and is now taking CellCept. She has kidney problems. She is okay now but I want to know if her's is severe. She goes to the doctor to check her protein level every month and it seems okay. She take like three pills of CellCept a night and day. She did have a history with steroids but not anymore. I just want to know how severe her lupus is. Thanks a lot.

    • ANSWER:

  7. QUESTION:
    Has anyone else been taking predisone (steriods) for legit health reasons?
    How long have you been taking them and what side effects do you have? I take them for Lupus and related kidney problems for six months now and am tired of the side effects, but will be on them indefinetly, if not forever. They have great healing powers I know, but some days I just want to be done with them.

    • ANSWER:
      I'm not on them now, but I was for several years. My weight ballooned while I was on them, and it has been almost impossible to lose it after I came off.
      Make sure you get checked regularly, because there are some severe potential side effects from the use. About a year after I went off, they were concerned that my brain had swollen, but thankfully, it had not. My Rheumatologist that I have now was surprised the one I had before I moved had kept me on it that long. Evidently, there is a question on how long to use it.
      I have schleroderma, so it may be different for you.

  8. QUESTION:
    Water Retention. What else can I do?
    Water Retention. Is there any thing else to do?

    I am 26 years old and have been retaining water in my legs for about 6 years. I have been to several different doctors, several different times. I have heard everything from Lymphadema, to its normal, to there is no way its normal. I have been tested for Rheumatoid Arthritis, liver problems, kidney problems, lupus, heart problems, diabetes, thryoid problems, all have been negative. Just recently I have been diagnosed with high blood pressure so they put me on 25mg of Hydrochlorthiazide that sometimes work and some times don't. When it comes to PMS I can gain up to 10 lbs a month. My Dr's don't seem to be too concerned but having to have 2 different sizes of clothes sucks. Is there anything else I can do? Maybe something natural?

    • ANSWER:
      Not being a physician and not being able to sit down across the table from you and ask all sorts of questions, this is a shot in the dark.

      Two things come to mind: 1. Food allergy and 2. Just because the tests are negative doesn't mean that it isn't caused by disease of the liver, KIDNEY, heart or thyroid.

      Here are some recommendations if you want to treat yourself, since the doctors aren't having much success.

      One would be to do a cleansing diet consisiting of foods known to be low on the scale of possible allergens, eating only organic tart cherries, rice and lamb. Go to the library or bookstore and get a book about food allergies. Try a Rotation Diet. Some of the most common allergens are MSG, sulfites, shellfish, food coloring, bananas, beef (esp. if not organic), caffeine, chocolate, citrus, corn, DAIRY, eggs, oats, peanuts, salmon, strawberries, wheat & tomatoes. (Dairy foods are especially suspect in water retention.)

      I would also query you about kidney function. Do you drink anything but pure water? Do you suffer from low back pain just to one side of your spine? Any problems with urinary frequency or unusual urgency? Is your urine sometimes a bit milky looking? Sick at your stomach (nauseated)? If this sounds like you, switch to purified water only (a good bottled brand), drink 2-3 cups daily of Dandelion Root Tea, take 2 capsules of Goldenseal Root 2 or 3 times daily for 10 to 14 days. If this seems to clear up the problem but it comes back, you may need antibiotics to get rid of an underlying kidney infection. These are often impossible to detect with tests.

      Faulty kidney function can cause release of ACE hormones, constricting blood vessels and raising blood pressure. Natural Vitality makes an herbal combination called "Kidney Rejuvenator" that can be helpful.

  9. QUESTION:
    Water Retention. Is there any thing else to do?
    I am 26 years old and have been retaining water in my legs for about 6 years. I have been to several different doctors, several different times. I have heard everything from Lymphadema, to its normal, to there is no way its normal. I have been tested for Rheumatoid Arthritis, liver problems, kidney problems, lupus, heart problems, diabetes, thryoid problems, all have been negative. Just recently I have been diagnosed with high blood pressure so they put me on 25mg of Hydrochlorthiazide that sometimes work and some times don't. When it comes to PMS I can gain up to 10 lbs a month. My Dr's don't seem to be too concerned but having to have 2 different sizes of clothes sucks. Is there anything else I can do? Maybe something natural?

    • ANSWER:
      This is rather difficult. Sitting around for long periods can sometimes cause water retention. Have you tried exercising ?
      I note you were prescribed one diuretic for your blood pressure. BP is an insidious disease and you would be advised to continue your medication.
      Have you been checked for diabetes mellitus ? Another question, have you been checked for cardiovascular problems ?

  10. QUESTION:
    Question about kidney problems?
    I am 19 and had so many kidney infections. For the past 4 months I have had problems with kidney stones. I have severe leg pain, back pain, headaches, sometimes dizziness. I have heard about different things like kideny failure, and lupus. Does anyone know what could be going on? I went to my Dr. and he is trying to tell me I have a back problem but I think it's more than that and I want a second opinion but I don't want to go and sound stupid. Thanks for any help!

    • ANSWER:
      Try a kidneyhttp://www.curezone.com/cleanse/kidney/default.asp
      http://www.ehow.com/how_12678_kidney-cleansing-fast.html
      http://www.falconblanco.com/health/cleansing/kidney.html
      http://www.healingdaily.com/colon-kidney-detoxification.htm
      http://www.healthfree.com/cleansing_programs_kidney.html cleanse

  11. QUESTION:
    I have lupus with a great amount of UTIs...?
    I've been having problems since almost the time I was diagnosed with lupus. Been in the doctor's office dozens and dozens of times with UTIs and Kidney problems and I'm only 18. I've gone to drinking just juices, no grape or orange jucies though. But I still feel i'm having problems.
    I also at some points have some odors that smell like REALLY strong pee.
    Are my kidneys to bad to fix? Should I get on a transplant list?
    I would really like some help.

    • ANSWER:
      This question should be for your personal doctor because no one else could give you an adequate answer without a complete understanding of your medical history. Please consult your physician. Lupus is a very complese immune disorder and no advice from people without your complete history should be taken.

      Good luck, I wish you the best.

  12. QUESTION:
    I already asked advice in regards to my fiance moving his 13 and 17 year old in to our house.?
    The mom is selfish and is on drugs and he wants the kids to come stay with us. I have been badly injured in a car accident in 1991 and I have Lupus and Kidney problems which make me ill several days during the week. I am not sure if I can adapt to this drastic change. How do I tell him, I think this is too hard on me. I am suppose to be working on my health.

    • ANSWER:
      You have to do what is in your best interest, if you are concerned with yourself, then you need to let him go, and move on with his life and the children's. It certainly isn't fair to him, the kids, and obviously yourself.

      End it now. Maybe when you recover, and if the atmosphere still exist, then you two and the kids can share a life.

  13. QUESTION:
    sharp pain in my body?
    I have terrible pain In my left rib area and in my back I feel neasue and it hurts to move & My throat is really dry And I am starting to worry I did set up a appointment with my Dr. But I thought I would come on here and see what someone thinks this could be I have lupus and kidney problems

    • ANSWER:
      Kidney problems from diabetes? Avoid sugar. get the a1c test.
      the flu?

  14. QUESTION:
    how much can a spuse with a child get when seperated from someone in the airforce?
    My husband and I seperated, we have one daughter together. His superior told him he had to only pay 200 a month to support my daughter and myself. I am real ill with lupus and kidney problems along with other things and i cant exactly work right now. i dono what to do!! he is a E-4. I found something online that said 1/2 of his base pay but that doesnt seem right, thats alot of money.
    look you prick, i am now a single mother in college with a chronic illness that causes large amounts of pain, with a kidney failing noteing that i only have ONE KIDNEY. dont you tell anyone they are being lazy your just flat out made your self look stupid.not to mention mt HUSBAND CHEATED ON ME! then does not want to pay anything to assist me with raising his daughter. dont talk about things u dont know about.

    • ANSWER:
      It will depend on what he is ordered to pay through the court. His superior has nothing to do with it. And depending on how long you have been married will determine if you get alimony or not

  15. QUESTION:
    how to gain weight when you have Lupus and a High metabolism....?
    I DON'T USUALLY TURN TO YAHOO ANSWERS TO FIND OUT THE ANSWERS I NEED, BUT WHEN YOU FINISH READING WHAT I'M ABOUT TO WRITE..YOU WILL UNDERSTAND!

    im a Senior in High school and i really need to gain muscle in one year, but there's 2 huge bumps in my journey! the first bump is my condition lupus..if you know about lupus. you know there is no known cures and there are many types! Older Women usually get lupus, but for some reason i was diagnosed with it. the second bump is that i have a high metabolism! which you already should know about..you have trouble gaining weight.

    so you put these two problems together and get me! Lupus prevents me from drinking protein shakes and working out like a normal person would..(due to possible kidney problems, bone structure(due to prednisone) many different pills, and sun avoidance).and my high metabolism prevents me from gaining weight like a normal person would also...

    IS THERE A WAY TO GAIN 35LBS IN 9 MONTHS WITH MY PROBLEMS?

    i will take all answers to consideration and i thank all who answer this question!
    im 5'7 and 113lbs

    • ANSWER:
      I was diagnosed with lupus as well, im sorry to hear about your condition. I have the exact problems as you but im a freshman. I am a girl, 5'6 and im only 83lbs. I am not ABLE to gain weight and most of the time i simply feel too weak to eat. Hopefully one of these days they will find a cure for lupus. I admire you though, i felt like i was the only one facing such struggles but its pretty apparent by reading this question that im not. Try to eat more and excersize as much as possible to gain muscle. I cant gain weight at all cuz im also a vegetarian but if you arent then you can eat meats for protein. I take supplements to get me to gain weight but they only helped a bit and they took a while to activate. I hope that you stay strong and continue to fight your illness. Good Luck!

  16. QUESTION:
    HI, my name is Molly and I am to be tested for Lupus. What are the chances I will have lupus?
    -I am 13 years old.
    -I have been suffering from extreme swelling of the lips for a period of a couple of months now. They believed it was caused by an egg allergy.
    - My family (particularly my mother) suffer from severe allergies.
    - I had specialist allergy testing and it showed that I have no allergies.
    -Since then, my joints have begun to swell on a regular basis.
    - My fingers swell in the same manner as my lips do.
    - My toes also swell sometimes.
    -I sometimes suffer from headaches and joint pains and sometimes I lose my personality and become tired (and as my parents describe it, I become 'flat')
    - I have trouble sleeping.
    -I suffer from very mild eczema (so does my mother, and most of my mothers family, though they have very severe cases)
    - Today, a lymph node in my neck also swelled.
    - I have also suffered from coughs and colds, on a regular basis.
    - I was born with a slight heart murmur (my two sisters were also born with heart murmurs, my mother has heart problems, and my maternal grandmother died at the age of 34 of heart and kidney problems during child birth)

    After I came home from school and discovered the swollen lymph node, my mum took me to the doctors, the doctor ordered for a number of blood tests, including for lupus, taking into account my medical problems.
    My mum is extremely worried that I may have lupus.

    What are the chances? Considering my symptoms?

    Thanks, molly x

    • ANSWER:
      The heart murmur may never give you trouble. Many people have them without any symptoms at all.
      As for lupus - SLE
      Lupus is a complex disease, and its cause is unknown. It is likely that a combination of genetic, environmental, and possibly hormonal factors work together to cause the disease.
      Reading through your concise list of symptoms it does point to some sort of auto immune disease, but nobody could possibly give you a diagnosis or the odds that you might or might not have lupus.
      IF you do have lupus, most patients with SLE lead full, active, and healthy lives.

      You have obviously read all about it and your mum sounds a smart lady to take you to see your doctor so promptly. I am sure you are both worried and wish you all the luck in the world.

  17. QUESTION:
    I will like to know more about lupus?
    My son was just told that he has lupus, he's only 19 and been having Kidney problems since the age of 12, they have done biopsys before and other test and said that it was not lupus ans now its here I need to know how to keep him out of pain until they start him on his meds. and anything about this lupus that can be told to me. Thanks in advance

    • ANSWER:

  18. QUESTION:
    Another wacko doctor decides what right for me? BP and Kidney problems?
    This is too funny... well not really! I have this rash, and go to a dermatalogist per my doctor for a skin biopsy! the Doctor tells me to take NO meds or Vitamins and only use his creams and prednisone in massive doses.
    I have High Blood Pressure and COPD along with LUPUS!!!
    (I am sorry but this is funny because this town is warped, gotta find humor some how... k?)
    So I go to ER last night and they take my BP and its 169/110 (normal for me, which is BAD!!!) I tell them about this doctor who TOLD me not to take my heart meds, and they said NO you MUST take them, as Its not good for your kidneys to have normal BP like that, its been like that for 6 years now, I am 42, and I am wondering why it will hurt my KIDNEYS to have high BP and why this doctor had me stop in order to pake Prednisone? as I believe now Prednisone can make things worse? Am I right?
    what is going on with my kidneys? thanks!
    Enrech: thank you I shall heed!

    • ANSWER:
      That's a lot of info...Don't stop taking the heart meds. and if you taking BP meds don't stop those either. The 169/110 may be normal for you, but it needs to be a little lower for your best heath. You didn't mention if your Lupus affects your organs or skin ect...Prednisone is a very powerful immune system suppressant and needs to be carefully monitored as to dose amount. It's typically started with very low doses and only increased if it appears not to be working.
      Blood pressure, high pressure does affect the kidneys. you know that high BP can damage the walls of vessels over time and the heart works harder to do it's job.IF the vessels in the kidneys are damaged they may stop doing their job of removing excess fluid and waste from the body that extra fluid will raise your BP as well. That's probably what the Dr was referring to. I know you've heard this before, but try to get the high BP under control to a point of 120/80 range...There's lots to do for that and I'm not talking about taking more meds. Walking daily, 2 grams of dark chocolate a day, An Omega 3 supplement or eat two servings of salmon a week. Dietary changes will have a better quality affect on you BP and you'll even enjoy eating some or the foods that help lower it.. Lupus sometimes affects the organs, but usually only one at a time. It sounds as if your Lupus may be causing your rash...if you've had it a while you know that can happen..Although you gave lost of info. I still don't have enough to advise otherwise and I'm not a doctor....only a long time paramedic. I deal with these issues every day..
      I hope it's been helpful.

  19. QUESTION:
    does anybody here have lupus?
    i have been with lupus for 3 years. now since i was 11. but the medicine that they give me makes is bad for my kidney and for that ive been added more medicine.. idk why but if my kidney problems dnt get better i might get a biopse or however you spell it and im really scared what should i do?

    • ANSWER:
      Biopsies are good things! They give the doctor more information so they can make a more accurate diagnosis and give you more effective treatment. My sister has lupus, I know its tough, but you'll get through this.

  20. QUESTION:
    Do you think I have lupus?
    I don't mean to be self-diagnosing or anything- I'm not a doctor, certainly- but I've been wondering something. I'm 16 and was diagnosed with epilepsy 4 months ago after 2 consecutive seizures. However, I have no familial history of epilepsy, and my EEG didn't show any signs of epilepsy, but my neurologist said that sometimes that happens. I've been on medication which controls the seizures and the medication doesn't have any bad side effects, which is good.

    But recently I've had lower back pain that seems consistent with kidney problems. I've always had really bad mouth sores, like canker sores, that I get all the time- once a month or so. My skin is also sensitive to light, and in the past few days I've had a rash across the bridge of my nose and onto my cheeks.

    But I've been Googling this rash and trying to figure out what the heck it is- and found that it's sign of lupus. And that light sensitivity, mouth sores, kidney disease, and seizures are all signs of lupus as well.

    Do you think my doctors were wrong? Do you think I have lupus, not epilepsy?

    • ANSWER:
      This sounds like lupus. Ask for a few tests to confirm the diagnosis - Anti-Nuclear Antibody (ANA) panel including Anti-DNA and Anti-Smith antibodies.

      http://arthritis-symptom.com/lupus/lupus-test.htm

  21. QUESTION:
    Cloudy Urine with white tissue like substance.?
    I'm seeing my doctor monday about this, just want others experience. About two weeks ago, I noticed white tissue like stuff in my urine, sometimes it got really big, it's not tissue paper, I check before and after I urinate. And a few times, my urine will get really cloudy, I watch when I urinate and see it swirling in there. I looked this up, and proteinuria could be the problem. I also read that Lupus can cause kidney problems, my aunt has Lupus so I have a fair chance of getting it, especially when I do have some symptoms.

    Just curious as to others experience with a lot of protein in their urine, what tests did you have to go through? Did you have to have a kidney biopsy?
    Any advice helps
    xoxo
    And I do have constant back pain if that has anything to do with it.

    • ANSWER:
      may cause by urinary tract infection and pyelonephritis (infection of kidney)

  22. QUESTION:
    What does a Lupus Rash look like?
    I'm a 16, year old Female, I weigh 108 Pounds, 5'2. My sister past away of Lupus in 2006 at age 28 from Lupus, who had also been diagnosed at 16 years old, and i have cousins in the family who suffer it. Could this rash be a symptoms of Lupus? http://yfrog.com/6gsnc00094yj ,I also have symptoms like a Malar rash off and on, joint pain, kidney problems such as frequent urination and small amounts, Raynaud's Phenomenon. I also take Adderall for ADHD, so i wasn't sure if that could cause this also. Help?
    http://yfrog.com/emsnc00095gj

    && these we're after a few minutes of sun, they get much darker. Plus it will be on my thigs, chest, and arms.

    • ANSWER:

  23. QUESTION:
    I need help editing my research paper. I'm really bad at papers.....please help!?
    Well, its on lupus. I have the intro and two body paragraphs, and I still need to do the conclusion. So, I was wondering what I should change on my paper, and what I need to add..? I also have to do a powerpoint based on the paper, that should last a minimum of 5 minutes up to 15.

    The reason why I chose this topic was because my dad has lupus, and I wanted to know more about the topic. He was diagnosed with lupus when he was about fourteen years old. He still receives treatment for it by going in for blood tests and taking medication He has the most common form of lupus, Systemic Lupus Erythematosus (SLE), in which causes the antibodies to react against his own normal tissue. He has arthritis and joint problems, but nothings wrong with his internal organs. To support my dad and other lupus survivors, my family and I all go to the lupus walk in honor of remembering the people who had lupus that died. The things the audience can expect to read in this paper are the different types of lupus, the symptoms, the treatment and cures.
    Lupus is the result of an unbalanced immune system that can be destructive to any organ in the body. It can be categorized into three groups: discoid lupus Erythematosus, systemic lupus Erythematosus, and drug-induced systemic lupus Erythematosus. DLE is always limited to the skin and is identified by a rash that may appear on the face, neck, and scalp. It can evolve into the systemic form, which can affect any organ or system of the body. Systemic lupus Erythematosus is more severe than discoid lupus and can affect almost any organ or organ system of the body. No two people with SLE will have identical symptoms. Drug-induced systemic Lupus Erythematosus occurs after the use of certain prescribed drugs. It is more common in men, because the drugs are given to them more often.
    Lupus is hard to diagnose because it has a wide range of symptoms involving various parts of the body; and symptoms differ from each person. Most people develop painful joints and a rash, but lupus may also cause fatigue, depressions, and kidney problems. The treatment of lupus varies from person to person because each person has different symptoms. Most people with SLE require a regular blood test to check for lupus flares. Medication is the primary medical treatment for lupus. Presently, there are no other methods available to treat lupus because there is nothing else that can have the necessary impact on the immune system. Currently, there is no cure for lupus, but with early diagnosis and proper medical treatment it can significantly help control the disease.

    thanks. it would be much appreciated!!!!

    • ANSWER:

  24. QUESTION:
    how do i know that i have a kidney problem?
    i have pain on my left side like i did on my right side and i lost my right kidney. i have lupus it hurts to move my body

    • ANSWER:
      First, you probably know that your body can fully function with one kidney. You shouldn't jump to obvious conclusions right away. Go to your doctor and ask him for two things, creatine serum level and for a ultrasound of your working kidney. This way you remove all doubt of whether it is a kidney problem or back pain. For now avoid in taking alot of salt and drink plenty of water. Good Luck

  25. QUESTION:
    Who knows about LUPUS disease.? I know there are several different categories of Lupus.?
    First I started going to a specialist about my kidneys. There are small problems there. now they are double checking me for Lupus. Is there no cure for this disease? I am seeing a neprologist and he sees alot of patients in 1 day. He is the only specialist around my area. Please need the true facts on Lupus disease.

    • ANSWER:
      I'm sorry to tell you that there is no cure for lupus. There are several ways doctors work to help prevent flare ups, pain, and any further damage but there is no actual way to rid your body of it completely. Fortunately, most people with Lupus are able to go on and live a basically normal life and have the same life expectancy as anybody else does.

      Lupus presents itself in many ways and is often the go to diagnosis when doctors don't really know what's going on. If you are diagnosed with Lupus, I suggest you insist your doctor go over all the other possibilities as there are several other disease that can appear to be Lupus.

      Good luck and I hope you are not unfortunate enough to be diagnosed with it.

  26. QUESTION:
    what causes bruises to appear when you haven't hurt yourself?
    i've had one on my finger joint and one on my ankle, i have lupus and problems with my kidneys and heart and take lots of meds

    • ANSWER:
      It`s a bit of a mystery, I seem to get lots on the inside of my thighs but I can never remember knocking myself there.

  27. QUESTION:
    What is the cause of foot,hand swelling and joint pain if all arthritis is ruled out?
    I`m a 34 year old that woke up one morning to swollen hands,feet along with pain in arms, shoulders, knee`s. Couldn`t make a fist with hands. My condition has worsened with prolonged pain in joints during the day, very uncomfortable sleeps (waking up to numbness pain and tingling of the arm, shoulder). I have been like this for a month and have been to the doctor to rule out liver kidney heart problems. Rheumatoid arthritis, lupus,thyroid, pv have been negative as well. The only thing that stands out irregularly on tests are my enlarged red blood cells. Doctors still haven`t diagnosed me and conditions are worsening with debilitating pain when I walk or try lifting anything light above my shoulders. My finger grip is painful even when I try lifting a pillow or trying to pull bed sheets over to my side at night. I`ve been talking about this to family and friends but trying to hide how much pain I`m really in. Sometimes I can`t even lye down beside my husband because I usually annoy him with constant turning positions as I can`t get comfortable at all when lying down, it`s so painful in shoulders, neck and arms resulting in numbness. I was prescribed teva-neproxin for pain and swelling ( a potent non-steroid drug to especially reduce swelling) this had absolutely no effect on me whatsoever. If anyone out there who might have some background on these symptoms could help...maybe direct me in the right step of where to go to get a diagnosis, or give me some idea`s as to what this may be I could share them with my doctor. Thanks

    • ANSWER:
      One question is how much exercise do you get? If you don't get much or none your body is building up waste materials inside because it takes the exercise to move it on out of your body. Drinking lots of water is best as well, and cutting way, way back on any sugar intake. If these things are under control you then have to look at some of the joints and pains you are having.
      You can have tight muscles in your back helping this to become a problem. Here is how to release that and do the neck as well:
      Neck
      Invert your hands and put them next to your head placing your thumbs in under your ears and you lower your head until your neck is fully extended, release the pressure but hold your head there for another 30 seconds.
      With your neck in the bent position, replace your thumbs in under the ears and your fingers behind your neck but right next to your skull this time. Press your fingers and thumbs together again and hold. Relax your body while waiting. When the muscles have all released, slowly lift your head until it’s level again, release the pressure but hold your head like that for another 30 seconds.
      Back:
      (do from a sitting position)
      Place your left hand on your left leg next to your body. Place your right hand over your left shoulder and find the muscles next to your spine and press on them and hold. After 30 seconds slowly lower your body forward and to the outside of your left leg, keeping your left arm fairly straight as you do. When you reach your lap remain there for another 10 seconds, release the pressure but rest there for another 30 seconds. Then reverse your hand positions and do your right side.
      Go through them once and see if you feel any difference. Then you said hands so you should do the wrists and that goes like this:
      Wrist:
      With hand resting in front of you and your wrist bent half way closed, press down hard slightly behind the wrist and hold that pressure. After 30 seconds slowly open your wrist up as far as you can, release the pressure but hold your wrist open for another 30 seconds.
      Try releasing your arms by pressing into the middle of the arm and holding pressure there for 30 seconds, then straighten your arm out, release the pressure but hold it straight for another 30 seconds.
      Then with your arm resting in your lap press into the bicep and hold the pressure there for 30 seconds. Then slowly straighten the arm out so the muscle is stretched, release the pressure and hold the arm stretched for another 30 seconds.
      for your legs, while sitting, wrap both hands around the muscle just behind the knee and squeeze and hold. Bigger muscle longer time. Also while holding the pressure, relax your body and try holding tension in your hands because of your grip. After one minute, slowly slide your foot forward until extended, release the pressure but continue to hold extended for another 30 seconds.
      For your lower leg, put it in your lap and wrap both hands around it about mid way , so you are kind of on the bottom of the muscle. Squeeze tight and hold. Relax again. after 45 seconds slowly raise your toes up as far as they will go, release the pressure but hold the toes up for another 30 seconds.
      See where this gets you and what pains you may have left. Let me know about them, if any, and I will try to help with them as well.

  28. QUESTION:
    Cause of knee,ankle and feet swelling with pain and stiffness?
    I have had blood tests taken and DO NOT have sugar,no kidney or heart problems and no rheumatoid arthritis,lupus or lyme disease.So what else is there that can be causing these symptoms?Left foot and ankle swells more than the right one.Swelling goes down at night after sleeping,but pain and stiffness when
    i get up.My knees are painful,too.

    • ANSWER:
      There is not one test for most of these conditions. Your doctor needs to go by your symptoms and blood tests. You need to find a doctor who will take you seriously. Take photos of all your swollen joints.

      Ignore the idiot who keeps posting about avoiding sugar.

      ...

  29. QUESTION:
    I had a swollen left ribs and often times it occurs with back aches.. what do you think it is?
    I have had kidney problems and that was because of my hereditary disease-Lupus..I was somehow relieved when I took Acalka(Potassium) and Polynerve(b1,b6,b12), but now I am suffering a swollen left ribs which also occurs with back aches, I was wondering why it suddenly happen well infact I was eating fishes and vegetables only.I also undergo water therapy,until now. I will post more of my observation with my body..

    • ANSWER:
      hmm.... maybe u should see your doctor?

  30. QUESTION:
    I just want to marry my high-school sweetheart...help! ?
    I'm an American and he is Canadian...but its complicated because i have lupus...my specialists are in the USA. John was going to move to the US but because of the unstable economy we feel it would be best for me to move to Calgary. we were going to be married in my home town but with the K-1 visa requirement in the us we are thinking it would be better to get married in Canada.
    Are there any requirements for us to get married there? do i need any special permission so we can get a marriage license? will i have to pass a physical to prove I'm in good health to stay in Canada...because i have kidney problems (to say the least, but that is only one element of the lupus) and i wont pass...help!

    • ANSWER:
      I'm Canadian and grew up around Calgary.

      You don't need any special license like a K1 but you will need to pass a physical when it comes time to move up (but not when its time to get married). Just bring at least 2 pieces of ID, one being a birth cert and the other a passport- and any other documentation (divorce papers, etc).

      The problems you will run into are more surrounded when you try to move up here. First off your fiance will be required to sponsor you as a spouse (see this page:)
      http://www.cic.gc.ca/english/immigrate/sponsor/spouse.asp

      Then, after he is approved to sponsor you (must prove himself financially able to support both of you for 4 years, and you will not qualify for medicare for at least 1 year, so thats a lot of out-of-pocket medical bills). You must also undergo a physical before you come. I don't think they can discriminate based on chronic conditions like yours though, but I dont know because in my circumstances we are both in good health.

      It takes approx 48 days for his application for sponsorship to go through then about 6 months for you to come up as a permanent resident under sponsorship from him. This is IF there are no delays and its all smooth (which it hardly ever is).

      Maybe ask an immigration officer what happens if you fail the physical.

      Hope I helped

  31. QUESTION:
    *********SEVERE KIDNEY PROBLEM PLEASE HELP!!!!!!!!!!!!!!!!!!!!!!!!?
    Severe ongoing kidney pain please help!?
    I had leukemia when I was a kid. In remission. Extensive chemotherapy for 3 years on and off. Tested for Lupus one year ago due to questionable symptoms. I know not everyone on here is a doctor but I need advice for the time being. My symptoms are severe kidney pain (right side) for AT LEAST one year now. Weird rash on hands-have to itch it with a brush and the skin peels of my fingertips and palms. I cant stand for a long time because my right kidney hurts so bad its debilitating. I know its not a joint/bone problem because I had some arthritis and RA testing done-alls well there. I cant drink soda's, juices, milk or coffee obviously this causes severe chronic pain. Kidney hurts whenever I have to urinate-which I do as soon as I feel the urge to go. I get nauseated often but dont vomit, and when I wake up in the morning Im in severe pain its hard to even get dressed. Ive read up on the symptoms of kidney disease but I dont want to sound like a hypochondriac to my doctor when I go. Please advise-anyone know anything about these symptoms. And yes, I constantly have kidney stones that pass and regenerate, and my urine is always foul smelling and extremely clouded. Please help-thanks so much.
    53 minutes ago - 1 week left to answer.
    Additional Details
    Also, I always feel like Im thirsty and I always have something to drink with me. I try as often as possible to drink water. I know the pain is kidney pain because I went to the ER and they said I had kidney inflammation. The pain takes m my breath away at points and their are times when I get extremely dizzy and faint.
    50 minutes ago

    • ANSWER:
      Hi Sassy!
      I think that you already know the obvious but perhaps need a little confirmation. Girl, there are a few organs within your body that strongly affect the total health and well being of your body as a whole. You probably know already that your kidneys are one of the primary organs that does influence your health. Two things that you have mentioned caught my attention. one is the "itchy rash" on your hands. That is a sure sign of nerves and in conjunction with your kidneys; actually create agitated conditions that intensify your kidney problems. The other is the 'foul smelling; cloudy urine. Of course this is brought on by the kidney infection 'but' it is a good sign that the kidneys are functioning and trying to cleanse themselves. I know this is not a time to be trying 'old remedies' but a few of them actually help. Most likely, you are drinking liquids that are cool or cold in temperature. The kidneys actually have to work harder at cleansing under these conditions. Try warming your liquids to slightly above body temperature (between 100* and 110*Max.). This will help. Also, in your case, please try to drink distilled water only, because; most bottled water is actually "pure tap water." To a healthy person, this does not create consequences of any magnitude. In your case, the slightest deviations of germs or enzymes, foreign in nature, can present problems. Please also try to drink considerable amounts of nothing but water. It may be painful to begin with but it does in fact help flush out those conditions that are helping to agitate your ailment. Now, for the "Old remedies." This one, I place quite a bit of faith in because I too have bouts with my kidneys. Honey is the only absolute pure energizing food that has zero harmful substances. It never has to be protected as it will 'never; spoil, period! You take two tablespoons of honey in the morning and the same before you retire at night. I will personally assure you that it will make a difference in your condition in a short time.(perhaps a week or less and you will notice a change for the better) Your pains will diminish and your nausea will subside. Other than this, I am going to strongly urge you to visit a good urologist. Perhaps you feel that it is an expense that you cannot incurr at present. I am going to tell you it is an action that you must take regardless of expense. (there are assisted programs to help you if this is actually one of your problems). Sassy; You owe it to yourself to take care of this "Now" and not put it off. "If" your kidneys actually start to fail, expense will no longer be an equation to consider. It will be a mandantory action that you will be forced to take at that point. Please get on girl with what you know you must do. I will pray for you and hope for your best.

  32. QUESTION:
    ANA 1:640 and no further action from the doctor?
    Last year i have problem with my lung, and when my doctor knew that my mother & younger sister have a lupus and my older sister has a RA, she asked me to test my blood for ANA which result negative.

    Last month i have problem with my stomach, he suspected that i have a kidney problem. But once he knew my family history he asked me to do some ANA test. ( i move to other town, so it was not with the same doctor). This time the results are positive, I have high ANA (1:640). So he suspected that i have some auto-immune disease but it is still not clear what is it. But the only thing he told me to do is to come back in a year and half to do the test again.

    is this normal? shouldn't i take other test and do something else beside waiting for 1,5 years?

    • ANSWER:

  33. QUESTION:
    is this story of mine at all good?! :D ?
    Intro.
    I never really had it all you could say. Most kids worried about wearing their brand named clothes, having amazing cars, and having the perfect boyfriend/girlfriend. Personally all i worried about something much bigger. All I want to do is live.
    My life was going great until i hit 14. My parents were constantly fighting, for reason i still don't know. They were at each other throats. So much, I thought eventually the neighbors would call the police. I had to be like a mom to my sister Lilly, 12 (who was also my best friend), even though she was only 2 years younger then me, since my mom would blame us for all the arguing.
    One morning after 2 agonizing years of hell my dad walked out on us. My mother became depressed. She saw a shrink 2 times a week and hardly got out of bed. and that put an enormous amount of pressure on me.. More then was already set on me. The pain of my dad leaving was pretty awful. After he left, a new burden began to show its ugly face.
    Oh i guess i never really introduced myself properly. My name is Kailey. I'm now 16 years old, and im dying.

    Chapter 1

    "Breathe in and out deeply," the nurse Sally said as she held a cold stethoscope to my chest. I did as I was told and answered a text message from Mona at the same time.

    "Come over tonight? My mom's out, and we can cook something strange! bring Lilly along!" -Mona.

    "Yeah sounds great! I have to ask my mom first of course. But you know her. So I will probably be there. What time?" I replied quickly, and put away my phone as the doctor walked in.

    "Hello, Kailey. How are you today?" Dr. Highman asked.
    "Same old. Same old. I havent been having as much axiety attacks lately." I said checking my phone seeing if the was a new text yet.
    "So, the pills are working then huh?"
    "Yup," i hiccuped. "Excuse me, but its not a thrill having to add another pill to my daily million of them." i said sarcastically.
    "I understand, but having Lupus, is a differicult disease to control." He said while writing something down on his clipboard.
    Lupus is the common name for systemic lupus erythematosus, also called SLE. Common symptoms include feeling very tired and having joint pain or swelling (arthritis), a fever, and a skin rash. Over time, some people with lupus have problems with the heart, lungs, kidneys, blood cells, or nervous system. I have it really bad in my nervous system, my joints, and my lungs and heart. Not to mention, my shortness in breath and how im tired often, and get feverish every once and a while. I guess having it since i was 4 has something to do with all the symtoms.
    I nodded my head in agreement.
    "So hows your mother doing? I noticed she isnt here," he looked up at the empty chair next to the examination table, "again," then at me.
    I looked away from his gaze and answered, "Well she doing fine i guess, still doesnt get out much. but im making sue she eats properly and takesher meds. Don;t worry about it doc." I smiled and looked up at him again.
    "Well that good. dont forget, her appointment is..."
    I cut him off, "Next week on tuesday, I know. I know." I rolled my eyes, upset that i was 16 already and now had to drive her everywhere.
    He nodded, "Ok. Well, miss. Kailey, you seem to be just fine, just keep up everything your doing. and here are your medication refills." He scribbled on a peice of paper and handed it to me.
    I looked at it and just slowly nodded.
    "See you next time." He walked out of the room.
    I sat in the room for a while. I felt my pocket vibrate and took out my phone.

    "hmm, around 5? you guys can spend the night too, if you want." -Mona.

    "Yeah ok sounds good. just got out of the doctors right now. heading home." Send.

    I got off the table and walked out of the room. I was heading out the doctores office, but then turned into the restroom. i set my phone on the sink and unzipped my pants and sat down. i didnt even have to go. My eyes felt droopy. I got back up and zipped my pants back up, put my phone in my pocket and turnined on the sink. I washed my hands then rinsed my face. I looked at myself in the mirror for a while. My auburn hair next to my ears were wet from wetting my face. My hazel eyes were bloodshot from my lack of sleep last night. I rinsed my face once more, dried it off and walked out of the restroom.
    I opened the door to my old beat up mustang, and sat down.

    "Oh? how'd it go?" -Mona.

    "Ya know.. The same." Send.

    "Nothing wrong?" -Mona.

    "Nope everythings A-OK. Well for me anyway. haha" Send.

    "Thats good. =] Are you nervous about starting junior year?" -Mona.

    I started the car and pulled out. I drove just down the road then stopped at a gas station for some snacks.
    I walked in the door and swear everyone stopped and looked at me. But I'm probably just paranoid. i walked around and grabbed a bag of hot fries, a 2 liter coke, a bag of chocolates, and some macrowaveable ravioli's. Yum, what a lunch.
    I paid

    • ANSWER:
      It sounds good to me.

  34. QUESTION:
    Which companies offer life insurance to clients who have chronic health problems?
    I am 37 years old with a diagnosis of lupus (not flaring) with a history of minor kidney involvement, deep vein thrombosis, and high blood pressure. I have been trying to get life insurance but have been consistently denied by the major companies to which I have applied. Does anyone have any suggestions? The only suggestion I received from one company was the hint to purchase Accidental Death and Disability, and if my medical condition worsened, to "have an accident". I am hoping for better advice.

    • ANSWER:
      Accidental Death and Disabily policies only pay out in less than 3% of the time. In my opinion, not worth the money.

      You would be able to look at a Guaranteed Issue Policy, which does not require any medical under writing, however most companies require that you are at least 45 years old (depends on the company and where you live). As a warning, these policies can be expensive becuase the insurance company takes on the risk of insuring you know matter what.

      Your best bet is to contact a liscensed insurance broker and discuss your situation with them. They will have access to almost any company on the market and will be able to find something that will suit your need if it's available.

  35. QUESTION:
    I want to ask from mgnysgtcappo lupus question.?
    my wife is also on cellcept since 8 months, but and having no heart problems, but suffering lupus nephritis, and creatnine is 3.2, and having pain in kidneys, just to know that for how long did wife used immunosuppressive cellcept/myfortic. and that is she get well because of Rituxan, if yes how much she has taken per day and for how long.
    Rituxan= /day/ months/years?
    cellcept 500mg= /day/months/years?

    is she on prednisolone now, how much she is taking?
    your information will help my wife treatment

    Regards.

    • ANSWER:
      You arent going to like this answer but it changed my life. Read a book called You Are WHat You Eat by Gillian Mc Keith so your wife can one day be healthy again. It really does work if you follow her 11 week plan. Its not about losing weight its about being healthy.

  36. QUESTION:
    lupus,kidney dialysis and traveling?
    my aunt has lupus disease and now shes having kidney failure and is currently on kidney dialysis every other day. she is living in another country and we are trying to get her to move here to live with us. does anyone now what type of traveling arrangements should we make.. we know what current medications shes on and we have all her medical records. theres a major hospital 15 minutes away from our house and a dialysis center thats right next to it. the traveling arrangements is the problem.. has anyone been through this that could help me? or even if they havent been through this atleast if they have some idea what we could do..

    • ANSWER:
      She should fly. Have a treatment the day before she is schedule to come in and then have a treatment set up for the day after she arrives so that she doesn't miss any treatments. Does your aunt have insurance that will be in effect once she arrives (I'm sorry I'm assuming that you're in the United States and she's coming in from elsewhere...this may not be the case). In any event, I would have her medical file copied and sent to the doctor and treatment center that you have lined up in your area for her. They'll need all the info to properly treat her.

      She will have no problem flying due to her dialysis. She may be uncomfortable due to the Lupus and her joints becoming stiff. Also, make sure the airline is aware of her medical issues and any special diet she may have. They'll be more than accomodating.

      Good Luck to you and your family!

  37. QUESTION:
    Chronic Kidney infection! Doctor won't help!?
    In past five years that I been having problem with my kidneys. I have decrease urine. I get really sick especially in the morning that I wake up feeling like aches and pain due high level fluid in my body. I went doctor many times. He said nothing wrong with my kidney and my bladder. I went more than 50 trips to different doctors, including kidney doctor and ER in past 5 years. YET, they can't find NOTHING!!! Only time they found that I had kidney infection that they treat me with Bactuim. It help me a lot and 2 months later that it return. I take small dose antibodies for 3 months. It help a lot and then I finish taking it. Then it returns. I can't take this antibodies anymore because it trigger Lupus Like symptoms and the doctor DON"T believe me. I am having sharp pain where my kidneys are located. I have two children that I have to look after. I am so frustrating that I don't get all the help that I need. I cry so hard yesturday because I don't know what to do now. I did everything I can do. I drunk down all 100 pure cranberry juice in one day and plus cranberry pill. It don't do anything! I went back to doctor and told them. They said your kidney function is FINE!! Of course I am stress because I don't get the help that I need! I change more than 4 doctors in past 5 years. I have low blood sugar problem, low iron, stomach ulcers. I have symptoms like Lupus that I get aches, pain in muscle and joints, mild red like rash on my face, seeing spot floater, flashing light. My toe will turn blue when I sit down too long and my brain feel so funny like it froze and stiff that I had hard time to focus and somtime the fog is so bad that I almost can't see. I have much more symptoms!!! I even get test for lupus twice and it came negative.. I don't have mental problems and that what doctor said!!! I am tired of it and I want to get well again and get treated properly. I even get on antidepressant, none of them help because I don't have mental problem that is why! I even went to eyes doctor and said it look fine! I don't know if doctor in Memphis, Tn are careless because they just want the money or what? They always help me when I used to live in California but I moved here because my reason. The more delay the doctor help me to treat, the more symptoms grows! It started in 5 years ago. My blood sugar was 49 and after I ate bowl of cerals and a orange juice that my blood sugar went up 144 after 2 or 3 hours that last I ate. If case that helps and it from doctor. He said I don't have dibetic because my blood sugar is normal 144. So please please help me. Im only 22 years old with two kids.
    Im sorry if my grammar isn't perfect because I am deaf. My grammar are good for as deaf person because most deaf can't write. No offend.

    • ANSWER:
      Your problem is that you're trying to diagnose yourself. Are you a doctor? I doubt it. You honestly sound like you're reading too much wikipedia, and are jumping to conclusions, based on that limited knowledge.

      YOu probably have stomach ulcers from drinking all that acid in the cranberry juice, and your blood sugar is supposed to go up after you eat.

      If they have tested your kidney function and tested you for lupus and it came back negative, then you are negative. You might have a problem, but it's not a kidney infection or Lupus.

      I suggest you find a doctor that doesn't know you. Go there and tell them your symptoms. Just tell them symptoms don't tell them you think you have lupus, or kidney disease or try to diagnose yourself, because they will just test you for that stuff again and it will come back negative again, and they will think you are just a hypochondriac, like your current doctor probably does.

      And take a grammar class, please.

  38. QUESTION:
    Is my cousin a MORON? Are her Dr.'s not helping her???
    I have a cousin that has Lupus. She will be 33 in May. She has 4 children at this point. Ages 17, 11, 3 & 1. She is currently pregnant with her 5th child. Her Lupus is VERY bad. She has kidney stones. Right now the Dr.s have a tube going from her kidney out thru her back and into a bag. Normally she doesn't have any problems with her lupus, however, being pregnant causes these problems. She has been in and out of the hospital more times than I can count. He lungs have collapsed, she had a shunt for the kidney stones. All of these problems that can eventually cause her death... My question is, at what point will the Dr.'s step in and tell her that having this baby is a BAD idea. She can't even take care of the kids that she has. She gave the 17 year old to his father to be raised and from the time the 11 year old was 2 until she was 6 I had her, while I was in school. The young boys... Don't even get me started. Now this one... if she survives.. Is it not the Dr's JOB to do something?

    • ANSWER:
      Yes, it is irresponsible of her doctors not to advise against having further children. Her home situation and caring for her children is not their concern, but if the pregnancy is causing her lupus to flare and endangering her health, then it is very much their prerogative to step in and warn her in the strongest terms that she is putting herself and her child at risk.

      That said, no doctor can *make* her stop having children if she chooses to go against their advice. Are you certain that they have not spoken to her about this, and she's not just ignoring their warnings?

      I'm actually shocked that she wouldn't have figured this out herself. I'm 34 weeks pregnant, and can't imagine facing pregnancy and childbirth while also in the throes of a lupus flare with multiple organs failing. And since she's on number 5, she obviously knows what she's getting into. Does she lack education about birth control, or have some moral reason to object to it? If not, then perhaps she has some psychological issues that are causing her to feel the need to keep giving birth. Understandably, many patients with chronic illness can become very depressed, and maybe having children satisfies some need she feels for fulfillment or companionship.

      I would suggest that she start seeing a different doctor, and also have a psychiatric evaluation.

  39. QUESTION:
    Has anyone been diagnosed with Lupus or misdiagnosed?
    Ok, so here's my problem. Last April I had kidney failure and the doctors could not find the problem that was causing it. They finally came to the conclusion that I had Lupus. First, he was going to do a kidney biopsy to test for it, but said it was not necessary because he was 99.9% sure. Now, I've been researching this disease and from what I've read, Lupus is hard to diagnose. I've finally decided to get a second opinion, because frankly I'm tired of taking all of these pills everyday, and if I don't need them, why take them. I do not have any of the symptoms of Lupus, and the ones that I did have (swelling, fatigue, protein and blood in urine) can also be associated with kidney failure. Anyone have any experience in this??? I am going on the 22nd for more test from another doctor, but was just curious as to what I can expect, because I ask questions at my doctor and they brush them off because he is so called 99.9% sure (well I'm not buying it anymore). Any input will help. Thanks

    • ANSWER:
      You're right - it IS hard to diagnose.

      Definitely go for the second opinion. See a rheumatologist, a doctor who specializes in auto-immune disorders.

      And if it's negative for lupus - go see a nephrologist (kidney specialist) to find out what's going on with your kidneys.

  40. QUESTION:
    Osteoporosis, Osteoarthritis, now right kidney failure. Could they all be connected? Lupus maybe?
    I am only 27 years old and have all these problems. I am about to start seeing a reumatologist and get tested. I'm worried I may have Lupus or something. I also have some fibromyalgia. My kidney has failed because of my ureter was completely blocked. (No stone) Could that cause the other problems? I have been having pain in my side for three years but no doctor has paid attention to me until now because I didn't have any insurance. Sucks, huh. What happened to being human? Anyway, my wonderful doctors now are working with me but I was just sitting here looking up info and was wondering what other thought. Thanks

    • ANSWER:
      I'm not really sure what else could happen or be effected by it. I do sympathize with you, because I know what it's like to have many health problems and be at the risk for more. I hope your find what you're looking for. I have MPGN type 2 kidney disease, this week I was diagnosed with IC. I also have to be watched for the risk of toxemia, osteoporsis, and lupus mostly because of medications I take but also because I have kidney disease.

      Next week I'm going for a cystoscopy and if they find something they are doing a bladder biopsy. Next month they are doing a kidney biopsy to check the status and progression of the disease.

      Trust me I know how bad it is to be on meds and constantly have problems ...if you ever want to talk email me:
      leanne_flora@yahoo.com
      also a helpful health websites I have found more recently you can check out is:
      http://www.noah-health.org/
      http://www.mayoclinic.org/nephrology-jax/index.html
      http://medlineplus.gov/
      http://www.medicine.uiowa.edu/kidneeds/
      http://www.mayoclinic.com/health/glomerulonephritis/DS00503/DSECTION=1
      http://www.webmd.com/
      (some of these medical websites that relate exactly to my disease but you can click the HOME button and search for yours!!)~Good Luck!~

  41. QUESTION:
    Is my lupus coming back?
    I am seventeen years old, about to start college, and about a year ago I was diagnosed with drug-induced lupus (the drug I was on was minocycline, which I had been on for about 3 years for minor acne). I had a rash on my face, kidney pain, joint pain/arthritis, mouth ulcers, anemia, pleuritis, and pneumonia (apparently an indirect association). Also, about six months before all this, I had three seizures and was diagnosed with epilepsy, but my doctor began thinking that that, too, might have been caused by the lupus. My ANA test was negative, but my doctor said the other symptoms were significant enough to be certain that it's lupus. So, naturally I was taken off the drug, and my symptoms cleared up pretty well.

    However, for the past few weeks, I've been noticing some of the same symptoms, and more. My kidneys have been hurting badly, I have a lot of joint pain, and I've gotten five mouth ulcers in two weeks. Also, I've been having heart palpitations and what feel like skipped heartbeats, though I never had heart trouble before. Fortunately I'm on a medication to control my seizures and that works very well, so I'm not worried about that.

    I would go to a doctor right away, except for one problem. I'm a cutter. (Yes, I know it's a really stupid thing to do. I'm not an idiot. I know that. I starting cutting back when I was having seizures because it all got to be too much to deal with, especially since I was having seizures during school and about 800 people witnessed them, and at the same time I was having another crisis in my personal life, and I just haven't been able to stop). Problem is, now I've got a few scars, some on my upper arm, some on my hip, some on my leg. And if I go to the doctor, I'll be thoroughly examined and I really can't have them finding those cuts, because I'm technically still underage and in my state they would be obligated to tell my parents. And no, that would not be better; it would only worry my parents unnecessarily (with my medical problems and my brother's suicidal depression, they already have plenty to be concerned about) and furthermore they would probably stop me from going away to college next year (I'm going to college outside the US). And that would only make everything worse for me.

    So though I really should, I can't go to the doctor, so I'm asking you.

    Do you think my lupus is coming back? Or am I just reading into my symptoms too much?

    • ANSWER:
      Firstly, a doctor is going to be respectful and non-judgmental about your self harming. They are there to help. I'm sure you're embarrassed (I know, I've been where you are), but doctors are understanding. They will not tell your parents if you're not risking your own life. They may suggest a course of anti-depressants or speaking with a therapist. I'd recommend speaking to someone about this anyway. The emotional baggage that comes with health conditions can be worse than the condition itself.

      It sounds like your Lupus could have come back or never left at all, but no one on here is qualified to tell you either way. Did you see a rheumatologist? I don't know much about drug induced Lupus, but from what I've read it says that in most cases when you stop the medication in most cases the Lupus goes away. So most cases, but not all cases.

      I think you should go back to your doctor. I'm not sure how drug induced lupus works, but I know with SLE they might prescribe Prednisone to knock a flare on it's head. This might be an option for you.

      There's another user on here who has Lupus and is very knowledgeable. She usually answers all the questions on here about Lupus, so I'm sure she'll find your question and answer it. You could also try and contact the local arthritis foundation or Lupus foundation in your area and see if they've got any information for you.

      Good luck.

      ....

  42. QUESTION:
    Advised by Doctor to have a tubal ligation due to medical reasons......anybody else?
    I am only 24 and having a consult in a few weeks for a tubal. I have two beautiful kids but I would like more if possible, although I know that isn't a good idea. I was diagnosed with Lupus (SLE) about 2 months ago after giving birth to my son. I had horrible pregnancies extremely high blood pressure and unbearable pain in my whole body (probably due to the Lupus but was diagnosed with pre-eclampsia at the time).

    I already have kidney, liver, gallbladder problems and hyper active thyroid from the SLE.
    I know its the mature decision to have the tubal and not put my health at risk and be a good healthy Mommy to my babies who are here and be thankful for that but part of me is still sad about it!

    Also I am stil exclusively nursing my Son and will be until he is around one. Can I have the tubal and still nurse safely after wards? He won't take a bottle. I need this before he is done nursing because I can't use any birth control because of the SLE so no mini pill.

    Anybody else been through this?
    Thank you both!

    Mason, my little guy, is taking solids twice a day already and doing great. I was just more concerned about him not taking a bottle for the 24-48 hours I wouldnt be able to nurse :( I do want this done right away. Its best for my whole family!

    I felt awful being in the hospital for days on end when I was pregnant with my son and missing my daughter and I dont want to do that again but missing two babies at home.

    Just feel judged becasue of my age. A lot of people dont understand Lupus and how serious it can be.

    thanks again.

    • ANSWER:
      I am 29 and going to have a tubal soon because I had very difficult pregnancies, 1 stillbirth because of birth defects, 3 c- sections, with the last one I lost alot of blood, they were all prem and two of them had heart conditions and my youngest almost died from her heart condition and has multiple disabilities and is lucky to be alive.
      Ive had type 1 diabetes for the past 19 years which makes pregnancies risky, and a hypo active thyroid .

      I shouldnt really have gone back for number 3, Im glad I did because I love her to bits, but if I had known what a struggle we would have on our hands I would have been content with my two healthy babies and not tempted fate.

      You dont want to be unhealthy for your other kids liver/kidney damage at 24 is not cool, if I were you I would be rocking up for the tubal pronto. They offered me one after my 2nd section for my 3rd born (2nd living) and i was 23 at the time and I said no because I felt I was too young, in retrospect it would have been the wiser thing to do.

      You can nurse after a tubal, its minor surgery and does not affect your hormones, all it does is stop the egg passing to the uterus.

  43. QUESTION:
    Do I have lupus, and how do you get diagnosed if you do have lupus?
    I had an ANA panel done, suggesting to my doctor that I think have lupus. I have researched my pain and other symptoms for years and think that this is what I have. My test was positive for double-stranded DNA. What does this mean? I have never actually met my doctor. I see a doctors assistant and I think she has no idea what she is doing. I am scheduled see a rheumatologist on April 14, but I really want to know what anyone with experience thinks about my condition before I see him. It has taken me 5 months to get this appointment after I could convince anyone at all of my symptoms. I hurt much more than a 27 year old should hurt. I have 2 kids that I need to be out running around with and it kills me that I hurt too bad to do the things I should be doing as a mother. Can anyone help me? Oh, I should add that Meloxicam helps my pain immensely, but I have been told to stop taking it because my kidneys are bad. Well, my creatonin (not sure of spelling) is high. It also helps my joints stop popping. They pop almost every time I move, so loud that everyone around me hears them! I am very tired all the time. I also feel like I am pulling half of my hair out every time I brush it. I get a puffy red rash the first time I get in the sun every summer. I have serious stomach problems. I have been diagnosed with Aspergers Syndrome which often comes with an autoimmune disorder. I really want to finally know what is wrong with me so I can treat it in some way. I am miserable and I have been for awhile. Even if I am going to die soon, I would just love to know why! Doctors can't find a cause for my problems even though they know I have them. HELP, PLEASE?!?!

    • ANSWER:
      If you have tested positive for a DS-DNA test then you most likely have Lupus. While there is no definitive test for Lupus the DS-DNA test is one of the best at ruling Lupus IN. That is to say that people with Lupus can test negative for the DS-DNA but there are very, very few false positives with this test.

      With your creatinine clearance being high, an indicator that your kidneys are in distress, you should not be taking the Meloxicam as this can put stress on them.

      The good news is that Lupus can be treated. You may need to have methotrexate or cytoxan to stop the Lupus Nephritis (when Lupus is attacking your kidneys). There is a new drug in phase three trials that is on a path to being approved for Lupus Nephritis, you may want to look into it...it's called Benlysta (Belimumab).

      You also may have to have a course of high dose oral steroids to help with the inflammation.

      There is a lot of help out there. Check out Lupus.org and look for a local support group in your area. Those who have dealt with the disease for years will have a lot of insight as to what to expect.

      Matador above has some good (although dated) information regarding the tests performed. The BILAG criteria that he mentions (four of eleven symptoms for diagnosis) was never meant to be used as a diagnostic tool it was for acceptance into a Lupus study. This criteria has been utilized for years by doctors who misunderstood its usage and is only now being quashed by the AMA.

      You appear to have kidney involvement and a biopsy may be necessary. A diagnosis of Lupus can be made if that biopsy shows Lupus Nephritis regardless if you have any of the other eleven criteria...thus the reason the BILAG criteria is just a guideline.

  44. QUESTION:
    what is wrong with me?is there anything actually wrong with me?
    i just don't really care about anything or let anything bother me ,my friends and family think i mite have some kind of depression illness but i don't feel like i have some mental illness or down or anything ,i do have a illness called lupus the same illness as seal the black soul singer had and the scar on his face, but i don't think that has anything to do with it. just don't think life's worth worrying about ,i got laid of at work because my illness and i was just like so who cares you know.i mean the illness i have is a bad ive had to deal with a lot but im dealing with it ,ive had to deal with hair loss ,kidney and heart problems and rashes on my face that are so bad but i wont let it get me down .maybe im just a strong minded person i don't know ,what do you think people?am i crazy mental lol or just to chilled out ,answers would be appreciated.

    • ANSWER:
      i just don't really care about anything or let anything bother me
      --That's more like being apathetic, not a psychological disorder.

      ,my friends and family think i mite have some kind of depression illness but i don't feel like i have some mental illness or down or anything ,i do have a illness called lupus the same illness as seal the black soul singer had and the scar on his face, but i don't think that has anything to do with it.
      --if you're not having long periods of sadness, hopelessness, feelings about suicide, fatigue, etc., then you're not depressed.

      just don't think life's worth worrying about
      --but do you have concerns? Do you care about anything?

      ,i got laid of at work because my illness and i was just like so who cares you know.
      --if you didn't really like your job then this makes sense, but if you liked your employment then I would think you should care.

      i mean the illness i have is a bad ive had to deal with a lot but im dealing with it ,ive had to deal with hair loss ,kidney and heart problems and rashes on my face that are so bad but i wont let it get me down .maybe im just a strong minded person i don't know ,what do you think people?

      Because it's an autoimmune disease, Lupus has some very serious symptoms, especially when they flare. The Mayo Clinic has this to say about taking care of yourself:
      "Simple steps can help you prevent lupus flares and, should they occur, better cope with the signs and symptoms you experience. Try to:

      Get adequate rest. People with lupus often experience persistent fatigue that's different from normal tiredness and that isn't necessarily relieved by rest. For that reason, it can be hard to judge when you need to slow down. Get plenty of sleep a night and naps or breaks during the day as needed. Friends and family members need to understand and respect your need for rest.

      Be sun smart. Because ultraviolet light can trigger a flare, wear protective clothing, such as a hat, long-sleeved shirt and long pants, and use sunscreens with a sun protection factor (SPF) of at least 15 every time you go outside, even if it's just a quick trip to the mailbox. Be sure that your ears, scalp and the backs of your hands are protected. Avoid tanning beds and stay out of the sun entirely when it's strongest, from 10 a.m. to 4 p.m. if possible. Because fluorescent and halogen lights also can emit ultraviolet (UV) rays and thus aggravate lupus, you may need to wear sunscreen and protective clothing indoors or use plastic devices that block UV emissions from indoor lights.

      Get regular exercise. Exercise can help you recover from a flare, reduce your risk of heart attack, help fight depression and promote general well-being. Exercise as much as your body allows — aim for 30 total minutes of activity most days of the week, which can be divided up throughout the day. You'll likely feel fatigued and not up to exercising sometimes, and that's OK. Rest when you need to. Time outdoor activities so that you avoid the sun when it's most intense, and if you're having a flare, stay out of the sun entirely.

      Don't smoke. Smoking increases your risk of cardiovascular disease and can worsen the effects of lupus on your heart and blood vessels.

      Eat a healthy diet. A healthy diet emphasizes fruits, vegetables and whole grains. Sometimes you may have dietary restrictions, especially if you have high blood pressure, kidney damage or gastrointestinal problems. And although no specific foods have been shown to cause or worsen lupus, it's best to avoid any food that seems to make your symptoms worse.

      http://www.mayoclinic.com/health/lupus/DS00115/DSECTION=lifestyle-and-home-remedies

      Lastly, you ask, "am i crazy mental lol or just to chilled out ,answers would be appreciated."

      --You sound like you have enough confidence to care for yourself with perhaps a bit of apathy thrown in as an anxiety buffer.

  45. QUESTION:
    Q for those knowledgeable about the body, esp. kidneys. proteinuria question?
    Two years ago I went to my primary care physician for a routine annual physical. My lab work came back abnormal. I was spilling very high amounts of protein and creatine. More tests followed and the same result was shown. I was sent to a Nephrologist.

    She was sure that I had some form of kidney disease. I was checked for the big diseases like lupus, cancers, etc. None. I held off on my kidney biopsy for several months; during that time I had frequent trips to the hospital for more blood and urine samples, all of which turned out very very high.
    I finally had a kidney biopsy. The results turned back negative for everything. She said my kidney tissue was very normal. She herself was shocked, and even had my test results ran through extra times and by different specialists, including those at the Mayo Clinic. Normal.
    However, the fact still remains to this day that I am spilling excessive amounts of protein in my urine.
    This is not normal.

    I never heard from my kidney specialist again. I was never diagnosed with anything, nor put on medicine, nor told to see anyone for checks on the matter or follow ups.

    The last time I saw my kidney specialist- when she told me I was fine she said "Well you probably had some IGA (nephropathy) brewing but stopped it by taking fish oil." wtf???

    My questions for you are:
    -should i be worried or do something about this?
    - am i okay just because my doctor sent me on my way or was she negligent?
    -can this proteinuria cause problems in the future or develop into a disease eventually?
    - would having proteinuria itself affect daily life? because i'm always tired and i wonder if this has anything to do with it
    -any other helpful comments

    to perhaps help you answer my question better; a little health info about me:

    -5'6". 120lbs.
    -17 at time this occured. currently 18
    -female
    -no drug use, do smoke cigarettes
    -no health history except for asthma and iron deficient anemia
    -family history includes heart disease, diabetes, high cholesterol, one case of teen leukemia, survived. other than that no other cancer, no kidney or strange diseases, no obesity.

    • ANSWER:

  46. QUESTION:
    Could I possibly have lupus?
    Ok. So, I had never even heard of this disease and I heard about it on the radio.
    So here are my symptoms:
    for three years now I have stomach problems.
    HORRIBLE pain in the upper right of my abdomen, I had kidney stones about 3 months ago. It hurt.
    gullbladder problems
    i have anemia
    am always depressed and have anxiety
    I am ALWAYS tired. I get plenty of sleep and am sooooo fatigued all the time.
    Just started having horrible back and joint (mainly knee and jaw) pain
    Whenever I get a cold, it immediately turns into broncitis or strep.
    Bad coughing anytime I lay down.

    Could this all be related to Lupus? Any information would be great!

    • ANSWER:
      The abdominal pain and kidney stones would not be symptoms of lupus.

      Fatigue, anemia and joint pain are symptoms of lupus, but they are also symptoms of other diseases.

      When those of us who have lupus get a cold, it is very hard to get rid of and often gets worse. But there could be other reasons for that.

      Lupus is tricky to diagnose. First talk to your primary care physician. Bring a detailed list of your symptoms. Do not act like you have diagnosed yourself or the doctor will not take you seriously. But you could simply ask, "Could I have lupus?" Then ask for a referral to a rheumatologist. You can find one at www.rheumatology.org

  47. QUESTION:
    If Lupus does not go treated for 12 years, what kind of damage can be done?
    I have been suffering form eposides of hives for the past 12 years and no doctor could tell me what was causing them till one ran some blood work and we learned I have had Lupus. I just got started on medication, but it doesnt seem to be helping my thought process. For months I have been having very bad memory loss that seems to get a little worse every day along with very bad fatigue that is effecting my every day activities. What kind of danage could have been done with 12 years of a disease such as this going untreated or noticed? I had a resting heart rate of 157 and saw a Cardi and he said that other then the rapid heart rate there is no problems with my heart. I also only have one kidney. Because this disease went untreated so long could it make my life span shorter?

    • ANSWER:
      Most cases of lupus are mild to moderate. Lupus patients who follow their treatment plan can expect to live a normal life span.

      The memory problem is known as lupus fog. Most of us have experienced it. As the disease comes under control, your memory should improve. The fatigue is a sign that your lupus is active. That will ease up as the disease comes under control, but you may still find that you tire more easily than totally healthy folks. Pushing makes it worse. Rest when you need to. In fact, rest before you need to!

      I was undiagnosed for 38 years. I was diagnosed at 51 during a pretty serious hospitalization brought on by the lupus. I am nearly 58, in remission (thanks to the medication), and live a very normal life with no permanent damage. I even have lupus kidney disease which is completely under control.

      Worry and anxiety that come along with feeling horrible and getting labeled with a diagnosis of a chronic illness can also affect your memory and cause fatigue. So, you get a double whammy.

      Practice asking yourself "What can I do to take care of myself right this minute?" and "Will this (food, activity) contribute to my overall health or take away from it?" Adopt the healthiest lifestyle you can. Journaling is an excellent way to sort out the difficult emotional issues that accompany any traumatic diagnosis. Please try it.

  48. QUESTION:
    Lupus.. what is it?
    I just got back from the clinic and am a slight bit worried now.
    I went in for back pains, during this he asked if I had other problems so I mentionned my reynolds. He then asked me if there's history in my family with clots (my grandma does), if I've had kidney disease, I've had kidney infections (disease I wouldn't know?), if I've had unexplained rashes.. well right there I had a rash on my neck, I had no idea, he's the one who saw it. He asked if I had a history of psychiatric problems.. I have had severe depression along with some great insomnia in the past. He asked other things that I can't remember anymore.. the only thing that didn't fit, which was mainly why I came in, was if my lungs were inflamed.. What was wrong was my muscle behind the shoulder blade was inflamed hurting when I would breathe.
    Ok so, now that he's gone through all that and only 1 out of all symptoms he's asked don't fit... what??
    I don't really know what lupus is safe for what I've just googled..
    Rusty:
    I know he can't diagnose based on history alone. He asked me a series of questions that made him think it's possible. Although, it didn't go much farther then his questions. Now what I wanted to know was the symptoms/how to get diagnosed. Basically, where would I go for help on this. I don't have my own doc so I'm kind of on my own.
    It had me concerned as many of the symptoms of lupus are similar to things that are happening with me. It's not to say I have it and don't wish to, I'm wanting to get informed.

    • ANSWER:
      I really do not understand from your question where lupus came into the discussion. Lupus is not diagnosed buy a doctor going over your medical history alone. Some of the things you mention can be seen in lupus patients.

      The American Rheumatism Association developed a list of symptoms used to diagnose Lupus. Research supports the idea that people who have at least four of the eleven criteria (not necessarily simultaneously) are extremely likely to have Lupus. The criteria are:

      * Butterfly rash
      * Discoid rash
      * Photosensitivity
      * Mouth ulcers
      * Arthritis
      * Inflammation of the lining of the lungs or the lining around the heart
      * Kidney damage, as noted by the presence of protein or other abnormal substances called casts in the urine
      * Seizures or psychosis
      * The presence of certain types of anemia and low counts of particular white blood cells
      * The presence of certain immune cells, anti-DNA antibodies, or a falsely positive test for syphilis
      * The presence of antinuclear antibodies.

      As to your question what is lupus.

      Lupus is an autoimmune disease. This means that a persons immune system is attacking their own body.

      Lupus is one of the more serious autoimmune disease. It can be mild with few symptoms or it can attack almost every system in the body.

      Lupus manifests as a chronic inflammatory connective tissue disease marked by skin rashes, joint pain and swelling, inflammation of the kidneys, inflammation of the fibrous tissue surrounding the heart (i.e., the pericardium), as well as other problems. Not all affected individuals display all of these problems.

      Rusty

  49. QUESTION:
    What are some of the most unusual things you have thanked God for in your life?
    I thank God for my illness's Lupus, Diabetes, and Kidney Failure. I thank God for my healing several months ago, for a recent infection that caused more problems and my return this week to needing dialysis. I may thank Him through the tears but I thank Him for EVERYTHING.

    Pax et Bonum,
    Debra

    • ANSWER:
      I'm grateful God let me grow up in poverty and hardship, because it has taught me more than a typical middle class upbringing ever would have, especially compassion for others' hardships.

  50. QUESTION:
    Are you believer? PLease Pray for me?
    Hi I'm 29, i was diagnose with Lupus 11 years ago and since then i suffer from a lot of joint pains and other health problems. 1 year ago my kidneys stopped working and I was forced to go into dialysis. in July of this year my mom gave me her left kidney, basically she gave me life for the second time. my husband is cheating and my heart is beyond broken. I love this man soo much that I would forgive what he did if he still wants to be with me. He says he loves me and he doesn't want to leave so it's hard for me to kick him out. 4 weeks ago i had a brain aneurysm that errupted and they had to do surgery right away. it was a very delicated brain operation that i had to go through. Doctors were telling my family to be prepare for the worst. my husband was there almost every day, and he says he wants to take care of me. right now i cannot stay alone, i have to have supervision at all times, so I decided to stay with my parents, but i miss him so much. I'm in pain emotionally, physically and mentally. Please keep me in your prayers for me to have peace and happiness and for anyone that is going though a rough time like i am.

    • ANSWER:
      Lord You have blessed this woman with the undying faith that comes through like a light in the pit of darkness. She has been blessed with a mother who readily made the sacrifice of self and heart. Her husband is wavering. He is uncertain of himself and how to handle himself in this crisis. Let him learn and accept the sacrifice that Jesus made so he can overcome his fears and become the steady companion who once stood by her in uncertain times. May they be reunited in Your love so together they can conquer the illls that torment her now. Lord I know it must seem overwhelming to her right now, but let her remember that You tested Job and he persevered and prospered. Let her look beyond herself and love others even as she is in utter torment so she can receive the blessing You bestowed on Job. Give her the security and strength to overcome this trial Lord. I know her family is praying for her. I am praying for her. She blesses other similarly afflicted, a sure sign of a good and grand heart and soul that knows and hears and sees beyond itself. Jesus grant her the peace and happiness she seeks. I ask this in Your name. Amen.


Lupus And Kidneys Transplant

How does CellCept work?

CellCept belongs to the immunosuppressant class of drugs. When an organ is transplanted from a donor to a recipient, there is production of antibodies against that organ transplanted.

The antibodies of the recipient then attack that organ and render it nonfunctional. This condition is known as transplant rejection.

Even though the organ is matched with the tissue type of the recipient, there is a chance of rejection. In order to prevent the antibodies from attacking the implanted organ, CellCept, an immunosuppressant, is given to the recipient to prevent rejection.

When will a generic be available for CellCept?

Visit TheDrugCompany.com and go through the detailed information on generic CellCept.

How do I use CellCept?

CellCept is started immediately after organ transplantation. The dosage of this medicine is prescribed by the physician, as transplantation of different organs require different dosages. It is advisable to not exceed the prescribed dosage.

How to buy a generic for CellCept?

Visit TheDrugCompany.com and get detailed information on generic CellCept.

How can I buy Cellcept online?

Visit TheDrugCompany.com and you will see the two prescription strengths CellCept, 250 mg and 500 mg. Hit the button of Click for Prices of the prescription strength you want to buy. When a new page pulls up, hit Buy CellCept. This will add the drug to your cart. Now you just need to pay it through your credit card and the medicine will be shipped to your address.

How to save money on Cellcept?

You can save huge if you buy from The Drug Company.

If you buy 100 caps of CellCept from your local pharmacy, you will be paying $5.44 per cap, which will make a total of about $544.

If you buy 100 caps of CellCept from The Drug Company, it will cost you $240.79, with each cap costing you about $2.41.

You can clearly see a huge difference when buying through your local pharmacy and The Drug Company.

Does Cellcept help with Immunosuppressant?

CellCept suppresses the antibody response to the transplanted organ and prevents organ rejection.

Is Cellcept the same as Mycophenolate Mofetil?

Yes, CellCept is the same as mycophenolate mofetil.

Where can I get information on how to use Cellcept?

Simply visit TheDrugCompany.com and get the detailed information on how to use CellCept.

How many people are taking Cellcept?

Organ transplantation is on the rise and CellCept is used as the drug of choice in all such patients.

Is cheap Cellcept available in countries other than the US?

Yes, CellCept is available at a lot cheaper prices in countries other than US.

Frequently Asked Questions

  1. QUESTION:
    My stepson has Lupus and couple of years back had a kidney transplant. Now he had a biopsy and shows that his?
    body is rejecting the kidney. Why does it happens and what medical treatment can help him? What can be done. Wwould he be able to continue with a regular healthy life or what is in for him & us if his condition worsens? Thank you in advance for your response.

    • ANSWER:
      Make sure your stepson takes his anti-rejection meds. These meds also help control the lupus by suppressing the immune system. You have to take them for life, no compromise!

      Even with anti-rejection meds it is possible for the body to reject a transplanted organ. And the immune system can also cause lupus disesease (nephritis) in the new kidney.

      You need to be asking these questions of the doctor, not a bunch of amateurs on Yahoo who may or may not give you accurate answers.

      If one kidney works, he will be OK. If both kidneys fail, he will go on dialysis and probably a chemotherapy like cytoxan plus steroids. The doctor will know which therapy is best based on which class of lupus nephitis your step son hs. He can be transplanted again if other health factors are favorable, which no one here can tell.

      No one predict what his life will be like. It will never be "normal" because he will always have to take drugs that suppress his immune system, he will always have to be careful about infections and he will always have to be monitored. If the lupus comes under control, and that can happen, he will live a mostly normal life as long as he follows his treatment regimen.

  2. QUESTION:
    I have Lupus, what if I get a kidney transplant?
    What are the risk and symptoms that I would have?
    Tengo Lupus, que pasaria si me hago un transplante de riñón?
    Cuales serian los problemas y sintomas que podría tener?

    • ANSWER:
      If you have lupus, you cannot get a transplant if your lupus is active. You must be in remission. If you do get a transplant there is always the danger of infection and rejection. You will have to take immunosuppressive medications like Cellcept for the rest of your life to prevent rejection. There is also a danger that the lupus could attack the new kidney.

      If you are asking about the symptoms of lupus nephritis, there are no noticeable symptoms until it becomes quite serious. Lupus patients should have regular urinalysis for protein excretion and cellular casts. These are the signs of lupus nephritis. In advanced cases, a person might have swelling in both feet and lower legs and elevated blood pressure. Some people will notice foamy urine which means there is protein in it.

  3. QUESTION:
    What are the steps in a kidney transplant?
    My brother has Lupus and he might need a kidney translpant. What are the steps as far as finding a donor up until after the surgery?

    • ANSWER:
      first step is blood test for all who volunteer and then a whole bunch of test . first a physical exam then blood test and urine test and a mental evaluation and then a MRI . and then right before the surgery some more test and a quick exam . and if every thing goes right the transplant happens.. one word is to keep bugging your transplant coordinator all the time or it will take longer.. moms knew all of us by name as we called her all the time..and it still took 6 months to get the transplant good luck

  4. QUESTION:
    Can radiation for breast cancer be given to someone with Lupus and Fibro Myalgia?
    Once again, this is sad, but supposedley my mom also has Lupus, and Fibro Myalgia(sp). Would this allow her to still go through radiation and work all the time and drink all the time. five years ago she supposedley needed a kidney transplant or she would die. Now, with still her own kidneys, she is an alcoholic, she drinks to dull the pain she says. Also, I was reading a website on BC, and it said that chemo is usually done before radiation. My boyfriends mom did radiation first, then the chemo, and all of her tumors are pretty much gone, thankfully. Again, only serious answers please, and thank you.

    • ANSWER:
      CHFpatients.com - The Beat Goes On heart forum Archives
      ...and can say your problems with fibromyalgia and lupus are familiar ... are side effects from the chemo and radiation during breast cancer...

      www.chfpatients.com/archives/archive1-2001b.htm

  5. QUESTION:
    I'm a 19 year old who needs a kidney transplant, can my relatives from Vietnam come to the U.S. to donate?
    I was diagnosed with lupus last summer and it completely destroyed my kidneys. As a result, I've had to be on hemodialysis for over a year now. My parents wanted to donate a kidney to me but they were denied because of medical reasons: dad has hypertension and mom is pre-diabetic. My only other relative is my brother, but he's only 17. I have no other relatives living in the U.S., but I have plenty who live in Vietnam. My aunt, uncles, and cousins have offered to donate, but I'm not clear what the process is like for someone wanting to acquire a visa in this situation. Please help with more information. Thank you.

    • ANSWER:
      I don't know what the law is regarding aliens coming to this country to donate organs, but if it's the only way to help you, I imagine they would go for it. However, you will definitely need a letter (or letters) from your medical team.
      My mother-in-law from the Philippines was just granted a visa to go to the USA to visit her ailing brother. The doctor wrote a letter to the immigration department stating that the brother was too ill to go to the Phils, so she should be allowed to come here.
      I hope everything works out for you!

  6. QUESTION:
    what can a person do to keep their kidneys healthy??
    someone who has diabetes and lupus? is on medication, but what is the most inportant factor to a healthy kidney? would a kidney transplant be an option for the future??
    dr batta- what the heck is microalbuminurea???

    • ANSWER:
      The number one thing you can do to have healthy kidneys is to keep the blood pressure low. Second is to control the lupus. Third is to control the sugar. Fourth is to eat a vegetarian diet. See http://www.pcrm.org/health/veginfo/vsk/index.html for a free vegetarian starter kit.

  7. QUESTION:
    kidney transplant and dogs?
    My cousin had an unsuccessful transplant (long story).
    She was told by doctors she was unable to have a dog.
    Why is this? And can she have one in time?
    A brief description of her condition: Severe Lupus, she needed a kidney asap so they gave her one that didn't match and hoped the anti-rejection drugs would allow it to survive. They haven't worked and because of the Lupus she already, obviously, has no immune system. What is it about dogs that can affect her at this time?

    She didn't ask the docs why so this is why i am asking yahoo-ers :)

    • ANSWER:
      I can only think it is because of fear of infection. The auto immune disease lupus has already compromised her immune system People with lupus are often very sensitive to allergens too - pollen & grass, pets
      Found this re liver transplant patients...
      Make certain any pets are carefully screened by a veterinarian. It is not advisable to have birds as pets, as their waste contains a high level of germs. Do not handle any type of pet waste.

  8. QUESTION:
    what does it mean if my bloodwork mentioned poikilocytosis, ovalcytes, and rare tear drop cells?
    I recently had a kidney transplant. I have lupus and have had anemia in the past.

    • ANSWER:
      Like the other fellow said, this is all about your red blood cells, or RBCs and most definitely these are results from a peripheral smear. Some less common anemias are diagnosed using peripherals.

      Poikilocytosis means that you have abnormally shaped red blood cells in your blood. Poikilocytes are abnormally shaped red blood cells with a variety of shapes, they're distorted, and words that end with "-osis" mean "a condition of". Poikilocytosis is usually seen in iron deficiency anemia.

      It's ovalocyte. Ovalocytes are egg-shaped, oval, red blood cells and moderate to large numbers are found in severe iron-deficiency anemia, megablastic anemia, heriditary elliptocytosis, myelophthistic anemia, thalassemias, congenital dyserythropoietic anemia and in sideroblastic anemias. These RBCs are also called elliptocytes, because of the oval/elliptical shape.

      Tear drops can be very few (rare), moderate or numerous. A tear drop is an RBC that's tear drop shaped and is also called a dacrocyte. Dacrocytes are found in iron deficiency, megaloblastic anemia, thalassemia, some of the hemolytic anemias, marrow infiltration and myelofibrosis and other myeloproliferative disorders.

      These results may be insignificant or not but this depends on the numbers that were found in your peripheral blood. In light of your medical history, I STRONGLY suggest you get your interpretation of your labs from the provider who ordered them. Although I'm a nurse, I cannot interpret labs (outside my scope of practice) and if I can't, then for sure no one else here can.

  9. QUESTION:
    Need information on kidney and liver transplant in Texas from criteria, cost to assistance programs.?
    My dad is in his 50's, on dialysis, needing a kidney/liver transplant. He was diagnosed with Lupus about 10 years ago and was placed on a kidney transplant list about 2 years ago. Last year he got "The Call" actually got about 30 minutes away from going into surgery and ONE Dr. asked him if anyone had checked his liver. The answer was no, no one had. Needless to say, everything was stopped. A workup on the liver also showed problems. He was told that he could be placed back on the list if and when the liver test were within normal range. 6 months later...tests are good but they feel he would benefit from both liver and kidney transplant which in Lubbock Tx. they don't do. My dad is stable and has learned how to live with dialysis in his life but that being said....He is a strong willed man. He (We) would like to know more on kidney /liver transplant both successful and failed. From hospitals, programs, assistance programs, cost both pre and post surgery. Thanks in advance, Tara

    • ANSWER:
      I am posting links that will help answer any
      questions he may have:
      The first one is a patients guide to liver
      transplant...it is posted by a Ca. transplant center
      but has major information:
      http://www.surgery.usc.edu/divisions/hep/patientguide/index.html

      http://www.transplantliving.org/

      http://www.unos.org/

      http://www.transplants.org/

      This is a link for cancer patients that need
      financial help, but it is also good to look at
      these for someone who needs a transplant
      http://www.cancer.gov/cancertopics/factsheet/support/financial-assistance

  10. QUESTION:
    I had a kidney transplant 6mths ago and itch all the time what could be causing it?
    i also have lupus SLE

    • ANSWER:
      Itching is a very common symptom of high phosphorus levels, something your kidney should be taking care of. I would recommend taking an OTC phosphorus binder like TUMS and see your nephrologist immediately. Be sure to take 1-2 TUMS during your meal so that it can properly bind the phosphorus.

  11. QUESTION:
    I need your support - Do you know someone who has LUPUS?
    Good Afternoon,

    Please share this to help find a cure for LUPUS

    My Name is Nilda and I’m 29 years old. I’ve been battling with Lupus for the past 10 years. I’ve been through ups and downs. I wake up every morning afraid to think what type of pain/discomfort will I feel. I’ve asked myself over and over again, why Lord? why me? Faith and the support of my family, friend, co-workers and my doctors keep me going. Early 2007 I had kidney failure. I was on dialysis for over a year and on July 3rd of this year I was able to get a Kidney Transplant. Despite my illness my family and I continue to hope for a cure. That’s why I’m asking for your support to broaden lupus awareness so that more attention would be given to those coping with the disease and the search for a cure.

    Please join me and my sister Maria on the annual walk or make a contribution to find the cause and cure for Lupus.

    *** Message from Maria ***
    Click on the link below for more information
    http://www.firstgiving.com/westchestermed

    You can donate to this very important cause or you can jon me in the walk September 21st. If you like to join us, you can create your Fundraising Page as well, click on the link.
    http://www.firstgiving.com/lupushudsonvalley

    • ANSWER:
      Lupus has severely affected my life as well and as a nurse i am upset to know that its not as well known as other helath problems, I have found that Lupus Research Institute donations are one hundred percent to research for a cure because their board pays their salaries so no donation money is used for administration costs. I found this uplifiting, also lupus foundation of america is great to help anyone who is interested in raising money for lupus research get started. My sister contacted them and they sent her a box of educationakl material, bracelets to give out or sale, ideas for fundraisers envelopes to mail donations in etc. they also answered all her questions about lupus and fundraising in a very kind and fast manner. You can sign up on their website to be informed of all bills going to washington that would help fund lupus research so that you can contact your representative and congressmen to vote for it.

  12. QUESTION:
    How can I find my way back to god?
    So,I used to be the normal christian. I went to church all the time, I prayed all the time. But many things have happened in the past few years. My dad is going to have to get a kidney transplant. My mom has lupus and is in bed all day, she has 18 other medical problems, and takes 56 pills a day. And now, If I died today, i'm not fully sure that I would go to heaven. I'm terrified. I don't know what to do anymore. I don't even remember to pray anymore, and when something is wrong, praying about it is my last resort. We never go to church anymore. And i'm scared. I want to find my way back to god but I don't know how. Any advice is appreciated.
    I'm not worried about not going to church. and my parents are very religious.
    Thank You So Much Everyone. You Have All REALLY Helped Me. Thank you for your prayers.

    • ANSWER:
      You are experiencing normal emotions for someone who is going through a lot. You and your family have my sympathies and prayers neighbor. God loves you unconditionally friend. His love is not dependent on our remembering to pray, going to church, or any other thing we may do or fail to do. Those are conditions, and he does not require any. You may have the feeling that you've lost touch, but he did not leave you or forget about you. Hang tough neighbor, life is rough sometimes. Thanks for sharing, those you reach out to are the hands and face of Christ. May God bless.

  13. QUESTION:
    Is it legal to ask for help ? Before it's to late? Help...?
    Is it legal to ask for help ? Before it's to late? Help...?
    Is it legal to ask for help ? Before it's to late? Help...?
    My little sister is going to die if we don't get her to a hopsptal where they will give her a kidney transplant.
    We can not afford this, it's hard enough to afford gas and accomadations for her two children during the grueling kidney dialisis she goes through all day long 3 times a week. If it is legal to ask for help please help, prayers for health are good if not.
    The hospital that (Angel) my sister currently goes to is the same place my mom has worked faithfully for ten years, and the same place were my Dad died earlier this year. My Dad hung him self on New Years and I think it was because Angels was Dying, or maybe he thought she could have one of his kidneys, I don't know. The hopsital refused to keep my father alive as long as the life support would allow, but we wanted him tested for his kidney, no they said and continue to say. They say angel is non compliant, they won't do it. Oh help! Mom is a nurse and takes care of Ang and there is no dought she is as compliant as pos

    Additional Details

    0 seconds ago
    We don't have time left. Angel will get another possible 25 years at life if she can have the transplant. She deserves to see her 2 daughter graduate high school. Life is to hard. She has lupus. She has a shunt in her heart to drain fluid, among other things. Please help if it is legal and you can, pray if you believe. for Angel Lee Sunshine
    P.O. BOX 3844
    Rapid City, SD, 57709

    Additional Details

    1 second ago
    Please do not be cruel, my heart is all ready broken
    Let's see some facts:

    What happens in autoimmune diseases like lupus?
    The immune system is designed to protect and defend the body from foreign intruders (bacteria, viruses). You can think of it like a security system for your body. It contains several different types of cells, some of which function like "security guards" and are constantly on patrol looking for any foreign invaders. When they spot one, they take action, and eliminate the intruder. In lupus, for some reason and we don't know why, the immune system loses its ability to tell the difference between a foreign intruder and a person's own normal tissues and cells. So, in essence, the "Security Guards" make a mistake, and they mistakenly identify the person's own normal cells as foreign (antigens), and then take action to eliminate them. Part of their response is to bring antibodies to the site that then attach to antigens (anything that the immune system recognizes as non-self or
    yes rhat is her real name

    • ANSWER:
      praying helps and i know it must be very hard at this time to hear that. hopefully she will get a kidney soon and maybe just maybe she will be well agian. my prayers are with you.

  14. QUESTION:
    I received several small white pills mixed in with my regular prescription. Can I sue?
    I ordered acetaminophen/hydrocodone (generic for Vicodin) from my pharmacy. I received my refill. When I opened it at home, I noticed several small white pills mixed in with the pain pills. I looked these pills up online with the information on the pill and found out that they were Lorazepam. (I verified this by checking the image as well and they were an exact match.) My prescribed number pills are accounted for and there are 30 Lorazepam tablets total. I separated them and put them in an old, empty medicine bottle that I had yet to discard.
    I take several medications due health problems caused by Systemic Lupus Erythmatosis. I take two separate anti-rejection medications for a kidney transplant (Tacrolimus Prograf and Mycophenolate Mofetil-generic for Cellcept,) one blood thinner (Warfarin Sodium-generic for Coumadin) due to an mechanical heart valve, and an anti=depressant (sertraline-generic for Zoloft)
    There are several medications that are contra indicative to these prescribed meds. I'm unaware if Lorazepam is one of them.
    Am I entitled to compensation for their negligence?
    No, I do not wish to use them for "recreational" purposes, and I will not simply toss them out. That is dangerous for many reasons. I called the pharmacy and am waiting to hear from them. It was NOT my first thought to sue! My first thought was that someone does not have their needed medication, mt second thought was that these pills mixed with mine, possibly contaminating them and I can not risk such contamination as it will mess up my blood thinner!
    I have waited for my pain medicine because I NEED IT! If you do not have Lupus you may not understand the need for pain relief.
    I only thought of a suit after two of my friends (1 in law school and one just graduated) told me that this was negligent on their part.

    I'm not a money grubber. I asked this question to get answers, not for criticism. Please understand that I have been through so many health problems for well over half of my life! I simply do not wish to add more to what I've already suffered.

    • ANSWER:
      Chances are because you did not take the medication and nothing happened to you, you can't sue them. I was given the wrong medication in the emergency room once and I had put it in my mouth and realized it had a funny taste and smell. I spit it out and asked if I could look at the little packet it came from. The nurse handed me the wrapper and when I read the contents I screamed and said what are you people trying to do to me kill me. I told yous I am allergic to this stuff.

      So the doctor came in and gave me the right stuff. Of course I would never go back there again but when I got home I called my lawyer. I'm not sue happy or anything but was curious. I told my lawyer what happened and asked him if anything could be done. He said did you take the medication? I said no if I did then I wouldn't be here talking to you.

      He very nicely said somebody would eventually have found me but as long as I did not take the medication and nothing happened to me then there is nothing he could do. He told me to write a letter to the director of the hospital and tell them what happened so they don't make that mistake again. So that's it there is nothing that you can do except talk to the pharmacist and always check your pills or don't go there anymore.

  15. QUESTION:
    how can i lose weight on prednisone quickly?
    i had a kidney transplant a year and a half ago and i have been taking prednisone since. i have taken it b4 for lupus but i gained no weight i was actually underweight then and wanted to get a lil thick. Now since i been on it for my kidney transplant i gained close to thirty pounds. My doctor changed it to 5 mgs every other day before i was taking 5mgs every day. That's really not a lot but damn i gained all that weight from it. i amgoing to a try to get my doctor to lower it to 2.5mgs every other day. summer is coming fast i been eating less trying to diet i am not seeing much change .... HELP ME PLEAse! WHaT CAN I DO? I MISS BEING SEXY

    • ANSWER:
      I am a kidney/pancreas recipient. I only had to be on prednisone for a few days.

      I wonder, if after a serious discussion w/ the transplant team, if you see how you do tapering off prednisone, or subbing another immunosuppressant. I'm taking Prograf and Myfortic w/ great results. Of course if it means the difference between a working kidney and rejection, you can't go that route. Sometimes as recipients, we just have to suck it up and thank God we did receive the organs. There are too many people waiting for a transplant, and dying waiting, to complain too much. Hey, the prednisone's got to be better than dialysis.

      (I'm not preaching here; just trying to find the good points). I know it must be frustrating when you are already trying to diet.

  16. QUESTION:
    why hasnt anything in my life gone right?
    well im 15 in september and i'll be honest i am sick to death with my life, nothing so far has gone right in it.. let me explain..

    well when i hit 5 my father went really ill with a severe illness called SLE (systemic lupus erythmatosis) he has always been ill for aslong as i can remember and missed out a lot of doing things with me as i grew up, he's weak and always over the hospital for either check ups or in there for weeks or sometimes months.. he has almost died i dont know how many times but he keeps fighting but i think 10 years of this illness is enough as he has done nothing wrong in his life, he's a hard working person and has worked from 16 and never been in trouble with the law..

    my mam tries her best to stay strong for my father and for me and has had to bring me up aswell as looking after my father..

    when i hit 10 and my father was at his real lowest my grandad (my fathers father) who was a healthy strong man who always took me places and also looked after my father died suddenly which also knocked my father back even more

    when i was 13 my mother gave my father a kidney as he also had kidney failure from being ill, i worried sick for them as the operation went wrong with my dad and he ended up being in hospital for 3months when he should have been in just over a week, and he had 3operations and almost died at one point.. things started looking up as my dad started to get better from the kidney transplant being a success but then last month my nan (who is my fathers mother) had a sudden very severe stroke and spent 2months in hospital basically like a cabbage on the bed doing nothing all that time we visited her everyday.. she passed away after 2months of suffering which the doctors said was for the best as she could have gone on like that for years, my father has lost both his parents in the space of 4years aswell as being ill all this time, i used to be okay with friends and school and things but lately a lot of stuff happened and a few of my friends have betrayed me, i always feel like an outsider in school and a shadow that no one really notices.. i am actually getting seriously fed up with life as also a girl who is my best friend has liked me for the past 3years and i never made a relationship with her and just told her things about other girls which obviously must have made her feel down(i did not do any of this on purpose by the way..) now i have realised she is the only girl for me and she is such a lovely and caring person and i told her all this and all she could say was 'im really sorry, i waited 3years for you and im finally over you and i cant go through all that again..' that really hurt me as i know i messed up so bad, nothing has gone right that i can think of in my life and it's just all negative memories, i am actually so pissed. it's killing me, what can i do..?
    thanks jessie thats really helped me try to think of things a bit better, i'll find someone to talk to, i would normally talk to that girl about things like this but lately we've been drifting after i told her how i felt.. and not being funny 'bees creech' i bmx and listen to metal and stuff and im really not the type to go and praise the lord or whatever.. thanks though :)

    • ANSWER:
      It does seem unfair that so many people get away with happy easy lives. Maybe read the new book out called 'mao's famine', it should help to put your life in persective compared to what the chinese went through in ththe 1950's , dont worry about the gf thing.

  17. QUESTION:
    Can i get SSI if i already receiving child disability benefits?
    Hi everyone, I'm 30 years old this year. I have had Lupus when I was 9. I've been in and out of hopsital throughout my whole life. I been near death experience like 3 times. I started receiving adult child benefits in 04 when my kidney failed. My dad is receiving SSD also and I get half of what he gets which is 1. I live with parents, i don't work. I use my money pay back my student loans, help pay the phone and trash bill for parent since i live there, and cc bills. That is where all my money goes. I was wondering if I can get SSI? Do i need to apply for this or get my file reevaluated? I do not have any assets myself. (no car, house, etc..). I think my medicare is almost going be obver because i believe after 36 mths after a kidney transplant it stops. so if you get ssi you will get medicaid. I don't know how i will be able pay for my immunopressent and dr bills. I have a lot of other problems but i don't want go into details. Any help i would gladly appreciate it. I'm from Tx.

    • ANSWER:
      No because you are living in the household of another. Even though you contribute to household expenses you are not paying your fair share. The benefit amount paid to someone living in the household of another is 9.34. It would be reduced by 1 (your social security benefit minus the discount) which results in zero payment.

      In order for a determination to be made that you are living in your own household so that some SSI could be paid to you, you would have to be paying your fair share of expenses which is figured like this: Total monthly rent/mortgage payments, all utilities and all groceries. Divide by the # of people living in the house. The result is the amount of money you would need to be contributing in order to be found to be living in your own household. If you live in your own household your SSI benefit would be 3.00.

  18. QUESTION:
    A difficult question regarding Lupus (SLE type) can a Dr. or other knowledable person tell help me?
    Okay, I was dx'd with lupus 23 yrs. ago. My kidneys failed requiring dialysis and a transplant about 13 years ago after a serious flare and a long hospital stay for treatment a Nocardia infection which left me with abscesses in my lungs and brain. The Nocardia was thought to be brought on by treatment for a serious flare in progress which was being treated with a once a month with IV therapy and tablets I took at home. I cannot remember the name of the med. but it was a drug used to treat some types of cancer. Yes, I was very ill, had seizures and required to have a ventilator and tracheotomy to breathe and was on TPN for a month and a half or better. My kidneys failed at that time. After I was well enough I had a transplant and subsequently put on immunosupressives to maintain the graft. I have had no flares since my extended hospital stay for the Nocardia. My nephrologist told me that many times Lupus kind of fizzles out after it destroys a major organ. Why they do not know, one theory is that the immunsuppressive therapy play a part which makes sense. If this is true then why do they not use these medications to treat a flare? Is this due to the potential complications associated with the immuosuppression therapy or another reason? Or is it something associated with losing my kidneys that burns the Lupus out? During the time in dialysis I also had no flares and was actually weaned completely off prednisone I might add.

    • ANSWER:
      Sometimes they do use them, but this is only a very recent development. Now that they have made the anti rejection drugs suffer they have been using them in limited cases of SLE and other immune conditions.

      I was recently treated in this way and it saved my kidneys.

      So all I have to say is THANK YOU VERY MUCH!!! Sadly, your suffering and others like you provides the research to use these medications on people more newly diagnosed.

      I am only sorry they didn't have the chance to use it for you.

      I wish you all the best and pray for your continued good health and longevity.

      My sincerest thanks
      C

  19. QUESTION:
    If a person has bed kidney function & is awaiting a transplant, are they permitted to drink soda (soft drinks)?
    I know it might be an old wives tale, but growing up I heard how bad soda was for my kidneys from my grandmother all the freaking time. I currently know someone who is suffering from kidney failure, is on a waiting list for a transplant (may take up to a year) and is still constantly drinking regular soda. I don't want to confront the person (as it isn't truly my business because I refuse to give her one of my kidneys) but was curious if my grandmother was actually correct. The kidney failure is a result of Lupus.
    **bad kidney**

    • ANSWER:
      Soda won't do your friend any harm. She knows what her diet is supposed to be. The main harm from soda is if you are diabetic and your body can't handle the extra sugar, or drinking soda instead of water. Water helps to keep your system healthy and makes things easier on your kidneys. As long as she is drinking more water than soda, it should not be a problem.

  20. QUESTION:
    Can a teenager give a kidney to an adult?
    So I am fourteen years old and my sister is twenty-eight. She has lupus and she is taking chemotherapy to put her kidneys in remission so they can avoid a transplant. But, if push comes to shove and she need a new kidney, could I give it to her? I'm in good health and everything like that. Thank you

    • ANSWER:
      Many of us with lupus nephritis manage to go into remission because of chemotherapy. Hopefully, this will be the case for your sister. You should really talk to your parents about the possibility of you being a donor if it becomes necessary. Of course, you would have to be a match. Also, if your sister does end up needing a transplant, they doctors will only do that if her lupus itself is in remission. You are a very kind and loving sister!

  21. QUESTION:
    If a person is in End Stage Renal Disease and needs a kidney, would liver damage exclude her from transplant?
    My girlfriend just found out she cannot take a certain immune suppressor due to cirrhosis of the liver, (Hepatitis C and Lupus damage). Now, if she can't take this drug, are there other drugs she can be prescribed for anti rejection that wouldn't affect her liver? Is she still a transplant candidate for a new kidney? She is currently a home dialysis patient. She also has Sjogren's syndrome, high blood pressure, systemic and subcutaneous Lupus with the Hepatitis C.

    • ANSWER:
      Short answer is that there are no anti-rejection medications that are not processed in the liver. With Hep C she won't be allowed to receive a kidney. I am very sorry to tell you this and wish the best for you both.

  22. QUESTION:
    I have lupus with a great amount of UTIs...?
    I've been having problems since almost the time I was diagnosed with lupus. Been in the doctor's office dozens and dozens of times with UTIs and Kidney problems and I'm only 18. I've gone to drinking just juices, no grape or orange jucies though. But I still feel i'm having problems.
    I also at some points have some odors that smell like REALLY strong pee.
    Are my kidneys to bad to fix? Should I get on a transplant list?
    I would really like some help.

    • ANSWER:
      This question should be for your personal doctor because no one else could give you an adequate answer without a complete understanding of your medical history. Please consult your physician. Lupus is a very complese immune disorder and no advice from people without your complete history should be taken.

      Good luck, I wish you the best.

  23. QUESTION:
    What are the risks of nephritis?
    One of my friends has been having trouble with what seems to be her kidneys for almost a year now. She's just gotten a biopsy, and is waiting on results.

    Her doctor believes she has nephritis, because she has every symptom associated with it.

    I'm clearly not an expert on the disease of nephritis, or Lupus nephritis, but can either be deadly?

    Because this has been going on so long, is there a high possibility of her needing to get either a transplant, or go on permanent dialysis, or could she even die from it at this stage?

    • ANSWER:
      The only thing I can answer is on lupus nephritis. Lupus does commonly affect the kidneys but these days treatments are very effective particularly if problems are detected quickly. 95% of patients with kidney problems respond to the treatments and don't go on to kidney failure.

      For more information on kidneys and lupus please visit www.lupus.org.uk and also see Charlie's story http://www.lupus.org.uk/information/information_lupuswhatsthatfilm.htm. Charlotte did have kidney failure and went on to have a very successful transplant. At the very end of the previous film to Charlie's (Aneal's story, the lupus specialist talks about kidney involvement in lupus).

      Hope that helps a bit.

  24. QUESTION:
    pls react on this journal... your reaction would be a great help...thanks God Bless?
    'Multi-target' Immune Therapy Improves Outcomes Of Severe Lupus Nephritis
    ScienceDaily (July 7, 2008) — A new treatment using a combination of drugs targeting different parts of the immune system improves the recovery rate for patients with severe lupus involving the kidneys, according to a new report.
    "In our study, multi-target therapy is shown to be superior to traditional therapy for inducing complete remission of class V+IV lupus nephritis, with few side effects," comments Dr. Lei-Shi Li of the Research Institute of Nephrology of Jinling Hospital, Nanjing University School of Medicine in Nanjing,China.
    The study included 40 patients with severe lupus nephritis. Lupus nephritis is inflammation of the kidneys occurring in patients with the immune system disease systemic lupus erythematosus (SLE). All patients had "class V+IV" disease, meaning widespread inflammation and decreasing function of the kidneys. "This is a severe form of lupus nephritis that is traditionally treated with a single immunosuppressant drug, but the efficacy is very poor," says Dr. Li. "We considered that, since the impact of severe SLE on the kidney involves various parts of the immune system, it is necessary to treat the different immune targets with a combination of immunosuppressant drugs."
    One group of patients received this "multi-target" therapy, consisting of the immunosuppressant drugs tacrolimus and mycophenolate mofetil--commonly used as anti-rejection drugs in transplant patients--plus a steroid. The other group received standard treatment with a single immunosuppressant drug (cyclophosphamide).
    The complete remission rate, with recovery of normal kidney function, was about four times higher among patients receiving the three-drug combination. "For patients receiving multi-target therapy, the complete remission rate reached 65 percent at nine months, versus only 15 percent under traditional therapy," says Dr. Li.
    Some patients in both groups had partial remission, with some return of kidney function. Overall, 95 percent of patients in the multi-target therapy group had partial or complete remission, compared to 55 percent with single-drug therapy. The rate of most adverse effects was also lower with multi-target therapy.
    Systemic lupus erythematosus is an autoimmune disorder, in which the immune system attacks healthy organs and tissues. By reducing immune system activity, treatment with immunosuppressant drugs has improved most outcomes for patients with SLE. However, class V+IV lupus nephritis continues to be a major problem--it has a poor response to traditional treatments and can lead to permanent kidney damage. "The prognosis is very poor, so it is important for us to develop a new regimen for the treatment of this type of lupus nephritis," says Dr. Li.
    Using a combination of drugs that affect different immune targets, multi-target therapy improves the chances of remission for patients with severe lupus nephritis. "The therapeutic effect of our multi-target therapy is apparently superior to traditional therapy for inducing complete remission of Class V+IV lupus nephritis, and also bears good tolerance under relatively lower dosages," Dr. Li adds.
    The authors stress that their study is only preliminary. The study includes a small group of patients from a single hospital, with a relatively short follow-up time. Larger randomized trials with longer follow-up are required.

    • ANSWER:
      ok, a journal on lupus

      intersting if your an immunologist or for this type of lupus a nephrologist or just interested in lupus

  25. QUESTION:
    My best friend is 30 yrs old. She has had Lupus since childhood and is in stage 5 kidney failure.?
    She is not a candidate for dialysis or a transplant right now because she has a lot of other complications. She has inflammation around her heart and lungs, weighs only 97 lbs from loss of appetite and fatigue. She has rheumatoid arthritis and maybe COPD. She is currently also on oxygen. Right now she is at a 4 week rehabilitation facility. Basically I'm wondering what her life expectancy could be without dialysis or a transplant or if there is a possibility of EVER being a candidate for dialysis or a transplant given her conditions?

    • ANSWER:
      You really should be asking her doctors and ones familiar with her situation these questions

      best wishes to both of you.

  26. QUESTION:
    Can my 27 year old daughter get a kidney from someone, after being 10 years on dialysis?
    Her name is Emi, she is American from DC. She has been on a transplant list for 4 years, but in vain. Where shall we turn for life saving help. Her blood type is A+ and her underlying disease is Lupus. She has been a TV and printed media advocate for ethical virtues, family values, healthy nutrition (her studies). She is willing to donate acres of land in Europe, inherited from he grandfather, for this life saving organ. Without function in both kidneys, with 3 times a week, four hrs at time, chained to the machine for 10 best years of her youth, deprived her of knowing what happiness and freedom is. Is there someone out there to want to contact us for a life-saving gift of the most precious that God has given to us: healthy living, upon which all prosperity on earth depends?!

    • ANSWER:
      Wow, I really feel for you. I don't really know what to say. All I can tell you is that sometimes out of the blue miracles do happen. To make an extremely long story short, in October of 2005 I ended up on dialysis after a protracted stay in the hospital. Both my kidneys completely failed and my liver was on it's last leg. I too have an autoimmune disorder like lupus but mine attacks the liver first; my kidneys went secondary to liver failure. I also went to dialysis 3 days a week for 4 hours a day and I thought my life was over. Against all odds, and for no explainable reason I started getting better. Long long story in between but today I am as healthy as I was before this happened, off of dialysis, and back to work.

      All I can tell you is to keep your spirits high. When you least expect it, is when it will happen. Now would also be a good time to remind everyone to sign your donor cards and make sure it's noted on your driver's license. There is no way for EMS personnel to know you are a donor if you don't. As morbid as this is going to sound, I am always on the lookout for a potential donor, sometimes there is just nothing else to do.

      I'm sure you are probably familiar with DaVita, but on the off chance you are not here is the website. http://www.davita.com/ They offer an abundance of resources for patients with chronic kidney disease and patients on dialysis.

      I wish you the best of luck.

  27. QUESTION:
    Is my sister really sick? or munchausen syndrome?
    My sibling has a list of diseases and I don't want to call her a liar, so I am just wondering if this many conditions is normal, or even probable. She has lied in the past and even tho you forgive and try to forget its so difficult with the multitude of disorders she has. please help! Here is the list she is a 34 yr old female, Fibromialga , Lupus, Diabetes, MS, Rumetoid Arthritis, Epilepsy, Cancer Tumors in the Stomach, and a detatched kidney and needs a transplant and dialisis shots at home???? She avoids anyone taking her to doc but her husband, all our info is through what she says. I want to do the right thing, i recently accused her of having only one disease Munchausen Syndrome, which is having a list of fictisious diseases to get attention. She has children which she has also labelled with Asbergers Syndrome, Diabetes and Bipolar, oh yeah Dislexia. she has disowned me and taken away my seeing my neices and i want to do the right thing if i made a mistake. any help is very appreciated.

    • ANSWER:
      Now you know your sibling best but I believe it's possible for her to have all of these things, but maybe she's a little confused by the amount of information she is given at the Dr's office.
      I have Lupus, Right sided brain seizures (I don't like the term epilepsy), osteoarthritis, reynaud's syndrome, a mitral valve prolapse, intersticial cystitis, ulcers in my mouth and a couple of other things that I've probably forgotten.
      She could very well be confused that she has all of these problems because they test for about everything you have mentioned to rule them out and if the Doctor didn't give a clear diagnosis she may have just assumed she had these things wrong. (Sorry about that long sentence). I hope that she doesn't have all these things wrong with her.
      So I guess my answer is, yes it's possible, but in my opinion not probable.
      Good Luck

  28. QUESTION:
    Took too much cellcept?
    Okay, I have SLE Lupus so I'm on a medication called cellcept. I took too much of it by accident. I took 750 mg and totally forget I did , and then like 10 minutes later I took another 750 mg.
    What are the side effects gonna be??
    helpppp.

    for those who don't know, cellcept is:
    "Mycophenolate (CellCept) is used with other medications to help prevent transplant organ rejection (attack of the transplanted organ by the immune system of the person receiving the organ) in people who have received kidney, heart, and liver transplants. "

    • ANSWER:

  29. QUESTION:
    Kidney donation question?
    I am going to donate my kidney for my sister who has lupus because she is going to need a transplant soon, and I wanted to ask if I am going to be put to sleep and how long will I stay in the hospital

    • ANSWER:

  30. QUESTION:
    If the doctors don't know what is causing kidney disease...?
    Someone very close to me has a high creatitine reading of 4.0 which puts the kidney function at 17% and a biopsy was done and the rheumatologist was seen but lupus and vasculitis were ruled out and the nephrologist stated that this is a very unusual case and they cannot figure out what is causing this. I have the same blood type as this person but they won't do a transplant yet since they have to know the cause first or they said the new kidney can also fail if that risk is taken (not knowing what caused kidney disease). An MRI has been scheduled and they are going to try blood thinners in the event there is a possible clot that is causing the blood not to flow well to the kidneys. What I am concerned with is that if this is not the case and they cannot still find out what is causing this, does that mean this person won't survive despite dialysis until they let me donate my kidney?

    • ANSWER:
      I'm sorry your friend is dealing with this! However, even if the cause is not yet understood, there is no reason to suspect that the dialysis will not work. A healthy kidney is constantly cleaning/filtering the blood; dialysis is basically an artificial way of cleaning the blood when the kidney is not able to do it. The dialysis machine should be able to clean the blood whether or not the Dr's understand why the kidneys are not working.
      Your friend is very lucky to have someone of the same blood type so willing to donate; however, please don't forget that blood type is not the only criteria. If your friend does need a transplant, the Dr's will need to do 'tissue typing' to make sure that you are a good and safe match.

  31. QUESTION:
    My little sister might die, what can I do and what do I say to comfort her ?
    My little sister has lupus and has had many complications. Her kidney functions were at 25% 2 weeks ago and now there down to 15%. She is on the list for a transplant, will it help? Can I be tested as a donor at a hospital in another state. My sister has two young daughters 3&5, she doesn't want to die. Please tell me how can I help her?

    • ANSWER:
      That's a tough burden, I'm sorry to hear that...

      It's been my experience that it's much harder to see someone you love in pain than it is to bear it yourself.

      My inadequate thoughts:

      Be there for her as much as possible, even though it hurts.

      Let her know she can talk to you about how she's feeling, and what she's thinking, even if you don't really feel like hearing it. Don't make her be the strong one and protect you.

      Let her know her daughters will never have to worry about anything if she isn't there for them.

      Do your own research and keep informed, sometimes we don't get lucky and have professionals who care about our loved ones, but sometimes we do.

      Pray for her and with her. I'm not a real religious kind of guy, but I know from experience that this can help.

      Take care...

  32. QUESTION:
    Just a rant b/c I have no one to talk to?
    I am about to turn 33 and I believe I have a perfectly valid reason for depression, so I am not looking to be talked out of it. First, the good stuff: I am finishing a PhD; have a very good, secure job in my dream field; have a beautiful apartment; and am reasonably attractive (people keep asking me if I am a model, but I think it is because I look interesting rather than because I am gorgeous and that's fine). Now the bad stuff: my kidneys failed when I was 25 because I have lupus so I started dialysis for 5 years while I worked and began my PhD program. I had very little help; I basically did these years alone. I got a transplant when I was 30 and 8 months after the transplant, I was diagnosed with lymphoma because of the immuno-suppressant drugs I was taking for the transplant. I did chemo for 6 rounds, then while recovering I found this new job in another city. I wanted to be away from all the sickness in the old city, so I moved. It has been good but stressful. A lot of long hours and travel. I found out a few months ago that my transplant is not doing great so I signed up for a transplant list again. After doing all the tests, my oncologist says that I would have to wait 3 years before I can get a new kidney...so my name will stay on the list, but I can't get an offer until 2011. I haven't dating anyone since I was 29 and am starting t feel very self-conscious around my friends and family with their husbands and children. Because of the chemo, I can't have kids (I don't even have my period anymore, so I feel less feminine). I am starting to have a hard time hanging out with these couples with their kids because I feel worse after a day with them than I do just sitting in the house alone. I have gone back and forth with wanting to kill myself, but in the end it is pretty lame though I don't rule it out. My stomach has been bothering me again lately and if it is cancer, I have decided not to treat it. I am going to check if refusal to treat counts as suicide. I want my mom to get my insurance and pension and 401k. If it doesn't, then I will take the minimum treatment. That's it. After a long weekend on the couch; I didn't want to bother any friends because they have their families to take care of. And I don't want to stress my mother out. Thanks for "listening."

    • ANSWER:
      You're right that you have many valid reasons for depression, but you also have so many reasons to be proud. One of my best friends died of Lupus at 17, so I know how difficult it can be, and yet you've survived it and thrived in your field and pursued a PhD. I have Hodgkin's so I do know what it's like to battle that disease, and I'm very scared about fertility too. (I'm 17.5 now). There are things you have no control over, and to an extent, there's freedom in that because you cannot berate yourself for failing to reach a mark. Keep on persevering, and seek help for your depression. I've been battling wicked mood swings and depression since starting chemo over the summer, and it's been really beneficial to go to therapy.

      33 is still very young. You have plenty of years ahead of you to marry and adopt, and you are not in a race with anybody else.

      I absolutely LOVE the site I'm Too Young for This, and have linked it below. It's a support group for young adults with cancer, and they're amazing.

      I bet more people admire you than you realize. Keep fighting.
      I admire all that you've accomplished.

  33. QUESTION:
    Is it legal to ask for help ? Before it's to late? Help...?
    Is it legal to ask for help ? Before it's to late? Help...?
    Is it legal to ask for help ? Before it's to late? Help...?
    My little sister is going to die if we don't get her to a hopsptal where they will give her a kidney transplant.
    We can not afford this, it's hard enough to afford gas and accomadations for her two children during the grueling kidney dialisis she goes through all day long 3 times a week. If it is legal to ask for help please help, prayers for health are good if not.
    The hospital that (Angel) my sister currently goes to is the same place my mom has worked faithfully for ten years, and the same place were my Dad died earlier this year. My Dad hung him self on New Years and I think it was because Angels was Dying, or maybe he thought she could have one of his kidneys, I don't know. The hopsital refused to keep my father alive as long as the life support would allow, but we wanted him tested for his kidney, no they said and continue to say. They say angel is non compliant, they won't do it. Oh help! Mom is a nurse and takes care of Ang and there is no dought she is as compliant as pos

    Additional Details

    0 seconds ago
    We don't have time left. Angel will get another possible 25 years at life if she can have the transplant. She deserves to see her 2 daughter graduate high school. Life is to hard. She has lupus. She has a shunt in her heart to drain fluid, among other things. Please help if it is legal and you can, pray if you believe. for Angel Lee Sunshine
    P.O. BOX 3844
    Rapid City, SD, 57709

    Additional Details

    1 second ago
    Please do not be cruel, my heart is all ready broken

    • ANSWER:
      Sounds fishy, especialy with the details in it. The other odd thing is the number of repostings of the exact same message, with the EXACT same Additional Details. Add in user is fairly new, and it doesn't seem legit.

  34. QUESTION:
    Is it legal to ask for help ? Before it's to late? Help...?
    Is it legal to ask for help ? Before it's to late? Help...?
    My little sister is going to die if we don't get her to a hopsptal where they will give her a kidney transplant.
    We can not afford this, it's hard enough to afford gas and accomadations for her two children during the grueling kidney dialisis she goes through all day long 3 times a week. If it is legal to ask for help please help, prayers for health are good if not.
    The hospital that (Angel) my sister currently goes to is the same place my mom has worked faithfully for ten years, and the same place were my Dad died earlier this year. My Dad hung him self on New Years and I think it was because Angels was Dying, or maybe he thought she could have one of his kidneys, I don't know. The hopsital refused to keep my father alive as long as the life support would allow, but we wanted him tested for his kidney, no they said and continue to say. They say angel is non compliant, they won't do it. Oh help! Mom is a nurse and takes care of Ang and there is no dought she is as compliant as pos

    Additional Details

    0 seconds ago
    We don't have time left. Angel will get another possible 25 years at life if she can have the transplant. She deserves to see her 2 daughter graduate high school. Life is to hard. She has lupus. She has a shunt in her heart to drain fluid, among other things. Please help if it is legal and you can, pray if you believe. for Angel Lee Sunshine
    P.O. BOX 3844
    Rapid City, SD, 57709
    Please do not be cruel, my heart is all ready broken.

    • ANSWER:
      i feel for you i had a kidney transplant 4 years ago and they are not cheap plus the med's are expensive after wards. i would go to the local churches and business in your town see if the will help you and your family i wish i was a millionaire because i would just write you a check i can not do that but i will pray for your sister and your family.

  35. QUESTION:
    Is it legal to ask for help ? Before it's to late? Help...?
    Is it legal to ask for help ? Before it's to late? Help...?
    Is it legal to ask for help ? Before it's to late? Help...?
    My little sister is going to die if we don't get her to a hopsptal where they will give her a kidney transplant.
    We can not afford this, it's hard enough to afford gas and accomadations for her two children during the grueling kidney dialisis she goes through all day long 3 times a week. If it is legal to ask for help please help, prayers for health are good if not.
    The hospital that (Angel) my sister currently goes to is the same place my mom has worked faithfully for ten years, and the same place were my Dad died earlier this year. My Dad hung him self on New Years and I think it was because Angels was Dying, or maybe he thought she could have one of his kidneys, I don't know. The hopsital refused to keep my father alive as long as the life support would allow, but we wanted him tested for his kidney, no they said and continue to say. They say angel is non compliant, they won't do it. Oh help! Mom is a nurse and takes care of Ang and there is no dought she is as compliant as pos

    Additional Details

    0 seconds ago
    We don't have time left. Angel will get another possible 25 years at life if she can have the transplant. She deserves to see her 2 daughter graduate high school. Life is to hard. She has lupus. She has a shunt in her heart to drain fluid, among other things. Please help if it is legal and you can, pray if you believe. for Angel Lee Sunshine
    P.O. BOX 3844
    Rapid City, SD, 57709

    Additional Details

    1 second ago
    Please do not be cruel, my heart is all ready broken
    Best Answer - Chosen By You

    Let's see some facts:

    What happens in autoimmune diseases like lupus?
    The immune system is designed to protect and defend the body from foreign intruders (bacteria, viruses). You can think of it like a security system for your body. It contains several different types of cells, some of which function like "security guards" and are constantly on patrol looking for any foreign invaders. When they spot one, they take action, and eliminate the intruder. In lupus, for some reason and we don't know why, the immune system loses its ability to tell the difference between a foreign intruder and a person's own normal tissues and cells. So, in essence, the "Security Guards" make a mistake, and they mistakenly identify the person's own normal cells as foreign (antigens), and then take action to eliminate them. Part of their response is to bring antibodies to the site that then attach to antigens (anything that the immune system recognizes as non-self or
    and yes that is really her name, I keep saying "god has enough Angels, why does he want to take ours.
    Yes she is very sick. This is ni joke, the poor kid has been through every thing. She was just released again from the hospitol for an infection in her blood. She is to tierd to wake up. My mom has her daughters and her other to granddaughters and her to care for, god help her too.
    Thank you so much for your prayers, every one helps. Thank you.

    • ANSWER:
      What are you asking for? Advice? Money? Kidney? I am sorry for the loss of your father and about your sister. We will be prying for her.


Lupus And Kidneys Symptoms

Frequent urination: Beat the Diabetic Blues

KNOWING FREQUENT URINATION

Frequent urination is urinating much more than is required. Frequent urination is a common problem among people suffering from problems in the prostate gland and the urethra. Frequent urination is also a symptom of many diseases. To understand the causes of frequent urination, we must first know what urination is all about.

WHAT EXACTLY IS URINE?

The urine is fluid made up of wastes produced within the body. Urine is transparent and yellow in color. The urine is made up of nitrogen compounds, salts, toxic wastes and excess water.

URINATION

Urination is a normal process of excretion. Urination excretes the toxic substances that form within our body. Urination occurs when the bladder gets filled up. Next, the receptors which are stretch sensitive get stimulated. Then the message is transmitted to the brains. During urination, the sphincter relaxes as the urine flows out from the urethra. The urge to urinate is generally quite intense. A person ready to urinate gets the relief only when he successfully expels the urine.

URINE AMOUNT OF A NORMAL PERSON

The approximate amount of urine daily produced by an adult body is 1.5 litres (three pints). The body needs to excrete daily not less than 0.5 litres (one pint) of these waste substances.

EXCESSIVE, LESS OR FREQUENT URINATION

Either state is a sure symptom of a serious dysfunction of the urinary system. Frequent urination is also a tell-tale sign of ailment.

DIAGNOSING DISEASES

The common method used to examine a patient's urine for diagnosing ailments is urinalysis. If the test indicates the presence of blood sugar or glucose, it is a sign of diabetes mellitus. And, if there is the presence of bacteria in the urine, the urinary system may be having some infection. What is more, presence of blood cells in the urine is a probable sign of cancer of the urinary tract.
Hence, it is important that one has a clear idea of the entire urinary system.

THE URINARY SYSTEM

The urinary system is constituted of the organs that produce and also secrete urine from the body. To know the causes of frequent urination, it would be first necessary to know of the organs involved in urination. Mentionably, frequent urination occurs when any (or all) of the main organs like the kidneys, the urethra, the bladder and the prostate gland does not function.

THE KIDNEYS & THE BLADDER

The kidneys are two bean-shaped organs. This duo produces urine by filtering substances from the blood. Urine flows from the kidneys via two thin tubes known as the ureters. Then, the ureters carry the urine to a muscular vessel called the bladder. The bladder of a normal adult has the capacity to store urine up to approximately 0.5 litres. From the bladder, the urine is excreted through the urethra tubes.

THE URETHRA

The urethra carries urine from the bladder to the penis. In a woman, the urethra is approximately 1.5 inches (3.8 cm) in length. This is strictly a urinary passage. However, in the case of a male, the urethra is about eight inches (20 cm). The urethra in a male passes through the penis which also conveys the semen during a sexual intercourse.

THE PROSTATE GLAND

In the case of a male, on either sides of the urethra are located the prostrate gland and the bladder. The chestnut-shaped prostate gland secretes the prostate fluid. This fluid constitutes the major portion of the released male semen during an intercourse. The diameter of the prostate gland measures approximately 1.2 inches (three centimeters).
The prostate gland is composed of muscle as well as glandular tissues. The muscle tissues aid the male ejaculation process. The glandular tissues produce the prostate fluid. This fluid keeps the semen-based sperm active and healthy. In other words, the prostate fluid helps the fertilization process.

CAUSES OF FREQUENT URINATION

Frequent urination may happen in person for various reasons. It may happen due to hot temperature and for hydration. The process of hydrate refers to a compound in which water is chemically combined with another compound or an element. Therefore, hydrating means to chemically combine with water. It may also refer to the cause to absorb water. The root of the word 'hydrate' is in French. It is related to hydro or water.

PROSTATE GLAND ENLARGEMENT & FREQUENT URINATION

Frequent urination is caused by prostate gland urination. The blown up prostate gland constricts the urethra. Thus the bladder is obstructed temporarily. This condition is called prostate enlargement. This happens because of the thickening of the bladder wall. This state may also lead to an intensive urge to urinate, difficulty in urination, nighttime urination. All of these are sure signs of a weak urinary system.
Frequent urination coupled with excessive thirst, blurred vision, sudden loss of weight, and fatigue may be symptoms of diabetes. Frequent urination is induced when the body reacts to high glucose levels in the blood. This again leads to perennial thirst. If such a condition persists, the person should immediately consult a urologist.

PROSTATE DISORDERS

There are several causes of prostate disorders. Such dysfunctions afflict men of all ages. BPH (Prostatic hyperplasia): This is a benign or non-cancerous and quite a common prostate ailment. The cause of BPH is still unknown. Prostatic hyperplasia occurs in almost 80- per cent of men after they cross their 70s or 80s. In such a state, the prostate gland may grow from the normal size of 20 g (0.71 oz) to that of 150 g (5.31 oz). Mentionably, the normal size of a prostate gland in a young man is 20 g (0.71 oz).

UROLOGISTS & URINARY SYSTEM DISORDERS

Urologists specialize in the treatment of disorders of the urinary system. Here is an overview of the different urinary system disorders.

Renal failure: This is a serious disorder. Renal failure happens when the toxic substances get stored inside the body. Renal failure is caused when the system filtering blood slows down or stops working. Renal failure can be caused by acute bleeding in the post-surgery stage, drug poisoning, heart failure (congestive), injury, bacterial infection, and shock.
Urologists address renal failure by first analyzing the root cause(s). The primary objective is to make the kidney function again. The methods adopted are surgery and blood transfusion. In the most severe instances, the patient may have to undergo kidney dialysis. Then, the blood is filtered mechanically.
Chronic Renal Failure: This is deterioration of kidney functioning in a progressive manner. Chronic renal failure can even damage the kidneys. Chronic renal failure is caused by many ailments like myeloma (cancer), AIDS (acquired immunodeficiency syndrome), lupus erythematosus, diabetes, and hypertension. Mentionably, if detected at the initial stages chronic renal failure can be slowed down but it cannot be reversed. The degenerative process can be kept under control to certain extent through various interventions. Such preventive measures are cutting down on protein and fluid intake and regularity in medication consumption. It is to be noted that proteins are the primary sources of waste products.

End-stage renal failure: This is a life threatening dysfunction of the kidney. Patients suffering from end-stage renal failures need long-term dialysis and may also have to go fro kidney transplant.

Urinary calculi: This disorder is popularly known as development of kidney stones. Urinary calculi build up over a period of time. These kidney stones are made up of the minerals and the crystallized salts that remain in the urine. Urinary calculi disorder of the kidney is usually accompanied by acute pain. The pain is caused when the kidney stones block the paths carrying urine. Generally, these stones move within and out of the urinary tract on their own accord. But if they fail to pass out of the body, they are surgically removed. At times, the urologists use the ultrasound technique called lithotripsy to break down the kidney stones non-surgically.

Bacterial infections: They are caused by Escherichia coli - a common bacterium present in the intestines. Such bacterial infection can attack any part of the urinary system. The normal treatment is antibiotics. There are instances of such bacterial infections becoming chronic and recurrent.

Bladder & Kidney Cancer: During the course of the last four decades, the incidence of people falling victim to bladder and kidney cancer has risen. The reason is the rise in the number of people leading sedentary lifestyles, and smokers. The other causative agents are obesity and environmental pollution including some industrial chemicals. Abuse of analgesics is also one of the primary causes in the rise of cancers even among the young people. The treatment for bladder and kidney cancer is removal of the cancerous tissues followed up by radiation therapy.

Polycystic renal diseases: These are inherited and congenital disorders of the urinary system. These polycystic renal diseases occur when numerous cysts form in the kidney. These cysts reduce the number of those renal tissues which function. The patients would have to undergo kidney transplantation or Kidney dialysis under such circumstances.

Hypospadias: This a congenital defect of the males. The urinary opening gets misplaced on the penis. The urinary opening may lie under the penis head or be located as far away as the scrotum. The immediate treatment is to go for surgery before the child reaches 24 months. Such prompt response and surgery can not only rectify the defect, but also permit normal urination and, later, sexual intercourse.

Frequently Asked Questions

  1. QUESTION:
    lupus symptoms can anyone help please?
    hi all. i have joint pain in my fingers and ankles, blisters in the back of my throat, feel sick, heavy flu like symptoms, pain near my right kidney and abdomen, feel vague, slight rash on my face which ive had for years which comes and goes. headaches and FATIGUE. i have lupus in my family could i have it? can anyone give me any advice please?

    • ANSWER:
      Those symptoms could mean lupus or any one of a number of other disorders/diseases. If someone in your family (first degree relative) has lupus then your chances are just a tiny bit higher than other folks. But there are cases of absolutely identical twins where one develops lupus and the other does not.

      You need to see a rheumatologist, the kind of doctor who is trained in diagnosing lupus. Sadly, most general doctors are not good at this. When you see the doc, simply present your symptoms. If you go in having diagnosed yourself you won't get anywhere.

      Lupus kidney disease does not cause kidney pain. Most people don't know they have it until the kidneys are seriously involved. It is usually diagnosed because protein and/or cellular casts appear in the urine.

      Tell the doctor what your symptoms are, how long you have had them, how severe they are, what makes them feel better or worse and then let the doctor make the diagnosis.

  2. QUESTION:
    Tourette like symptoms from a reaction to medication. How to get it under control?
    Hi, I have been diagnosed with stage 1 chronic kidney disease and I also have some lupus symptoms. I take a ton of medication and I believe I'm having a very bad reaction due to them. Here are my symptoms...

    - Jerking, involuntary movement
    - Very detailed oriented when I speak (I explain everything even for the simplest sentences.)
    - Easily upset
    - involuntary movement of my mouth

    Does anyone know what type of reaction this is called?

    • ANSWER:
      This sounds like tardive dyskinesia...a disorder that causes involuntary muscle contractions that can result in involuntary movements and postures in various parts of the body, particularly chewing or lip-smacking movements of the mouth, jaw and face.

      It can be caused by dopamine agonists-- which include psychiatric drugs, and some anti-nausea drugs.

      You need to talk to your doctor about this. the involuntary movements can become permanent.

      How do I know? I have tardive dyskinesia myself, though mine effects my entire body, which makes it impossible for me to walk.

      You need to talk to your doctor about this, ASAP. You don't want to ignore this. It needs to be adressed before it gets worse...or possibly permanent.

  3. QUESTION:
    Is there anyone taking CellCept? If so, how long did you take it and what symptoms did you have?
    SERIOUS REPLIES ONLY. THANKS!

    Hi, I was diagnosed with lupus almost 2 years ago after over 11 years of dealing with various symptoms and flares and kidney disease. Right now I am only taking 1/2 a 250 mg chloroquine tablet once a day but I still have pain and fatigue and my sed rate is going up slowly, which it does during seasonal changes. My doctor wants me to start chemo or steroids, which scares the crap out of me. I saw online that there is something called CellCept that may work to reduce lupus symptoms that may have more tolerable symptoms than chemo, but I don't want to jump into anything. Can someone who has lupus who has or is using CellCept tell me if it works, how long it works, if you experienced any really bad side effects and if so did you recover? And did the lupus come back? Thank you for your help.

    • ANSWER:
      My wife has been taking cellcept for her Lupus for the last two and a half years with little side effects. She was a little sick to her stomach at first but now it really doesn't affect her. It has done wonders for her Lupus flare ups though. She hasn't had kidney involvement since being on the drug and she is only taking 5 mg of prednisone right now. She also has antiocardiolipid syndrome and takes coumadin to thin her blood. If you have any more questions or would like some more detailed info please feel free to email me

  4. QUESTION:
    I have a lot of the signs and symptoms of lupus how do I get tested I also have no primary doctor?
    I have horrible rashes rashes on my hands and feet that just progressively get worse they almost look like little blisters in clumps and they make the skin raw. I get fatigued for standing it seems like or any other activity. My hands and feet turn blue when i am tired or cold.Ihave had chronic urinary tract and kidney infection since i started menstrating 9 years ago. This time frame is similar to when all other symptoms started. also any herbal naturopathic or homeopathic remidies for these symptoms would be helpful. (must be safe to use while breastfeeding)

    • ANSWER:
      Go see a naturopathic doctor, if you can. They can order all the blood tests that may be relavant. Lupus is very difficult to diagnose since everyone presents differently, so don't be to quick to self-diagnose, you could be adding to your stress by doing so. For the time being, try ginger tea (grate fresh ginger, or powder into a cup of boiling water). It helps with poor circulation.
      Raynauds and diabetes also presents with circulatory problems to the hands and feet.

  5. QUESTION:
    could my symptoms equal lupus?
    I am a 20 year old white female. I have had a very sever scaly rash on my scalp belly and legs for almost 3 years now. Around the time it first showed up I had a doctor tell me it was psoriosis but no medication has ever made it go away. I have a rosy colored painless redness that goes across my cheeks and nose. I always have ulcars in my mouth and never really think anything of it. Ever since I was little I have had terrible kidney infections and have been hospitalized twice for them. I am always sleepy and never feel like I am fully rested. I am nervous that this is all sounding like lupus symptoms. could anyone give me any feedback before i go to a physician?

    • ANSWER:

  6. QUESTION:
    If you have lupus (SLE), can you describe your early symptoms?
    I have not seen a doctor about it yet and my husband thinks I am crazy, but here are several things I have been noticing about myself.

    1) A rash on my face. For a couple of years I've had this circular-elongated rash (1.5 inches in diameter) on my left cheek. It was not very noticeable. Lately it became more red (several times people asked whether I scratched my face or sunburned), and I noticed a similar patern spreading to my other cheek. Can the SLE butterfly rash develop in this manner? Can it spread or does it develop on both sides simultaneously?

    2) Also for several years I have been having mild dull pain in kidney area. Can it be a symptom of an early SLE? Or is kidney pain a late complication in all SLE cases?

    3) Also I am tired often, but I wouldn't say chronically fatigued.

    Having all this in mind, can I have early symptoms of SLE? Did SLE manifest in this way to anybody here?

    • ANSWER:
      I think to be diagnosed with Lupus you need to have multiple symptoms going on because with just a couple of symptoms that could easily cover many other different causes. The kidney thing doesn't sound like Lupus but the distinct facial rashes could be an early sign. There is a blood test but if you are in the very early stages of Lupus nothing may show up initially. I would go see a Dermatologist for your face rashes first.

  7. QUESTION:
    Does this sound like lupus or a kidney infection of some sort?
    Last night before going to bed my hole face got really hot. Well my right side of my back hurt. (where kidney is). I was just wondering I am have the symptoms of a kidney infection and I think I have a kidney infection. When I woke up this morning my side felt swollen and full of something. I was so weak and tired.

    My symptoms are:
    Getting the chills, weak, tired, tickling feeling in side, I don't pee a lot (pee color is clear), I can't sit without feeling like something is there very uncomfortable, when lye down It hurts and uncomfortable, walking it hurts, I get the feeling of something jumping in my side (very scary), that something is moving in my side, very painful when I can't do a lot, when my side hurts my back is arched downwards and walking weird and slow,

    Why dose it feel like something is there my side like a tightening feeling, Is this bad?
    What will the doctors do if I do have a kidney infection?
    Why does it feel like my bladder is full but when I go to the washroom nothing really come out? (started to have this feeling when I got this pain in my right back)
    When will I know if it gets severe?

    I'm seeing a doctor Monday for an ultra sound.
    If the doctor do find something wrong will he send me to the hospital right then and there?

    • ANSWER:

  8. QUESTION:
    Iga nephropathy or lupus?
    I'm 15 and was diagnosed with iga nephropathy in September, Now it's may and I am still really sick. I get so tired and worn out from basically doing nothing, my doctors are not doing much to help me and the prednisone is making me more sick than I already am. I have almost all the symptoms of lupus but my tests are coming back normal. I constantly have joint pain, pain in my kidneys, my hand and ankles swell extremly bad. If anyone has iga nephropathy and these same symptoms, please help!

    • ANSWER:
      Prednisone is a corticosteroid and an immunosuppressant drug. It's normal that you will experience weakness/body malaise.

      Joint pain, pain in the kidneys, swelling on both hands and ankles are side effects of prednisone. Talk to your doctor about it.

      If you don't know, one of prednisone's indications is used to treat auto-immune diseases. And in your case, IgA nephropathy is an auto-immune disease where in your own IgA or Immunoglobulin A (proteins that fi) attacks your own kidneys this will cause severe damage. Prednisone will suppress your immune system to avoid IgA from destroying your kidneys.

      Hope it helps

  9. QUESTION:
    I have Lupus, what if I get a kidney transplant?
    What are the risk and symptoms that I would have?
    Tengo Lupus, que pasaria si me hago un transplante de riñón?
    Cuales serian los problemas y sintomas que podría tener?

    • ANSWER:
      If you have lupus, you cannot get a transplant if your lupus is active. You must be in remission. If you do get a transplant there is always the danger of infection and rejection. You will have to take immunosuppressive medications like Cellcept for the rest of your life to prevent rejection. There is also a danger that the lupus could attack the new kidney.

      If you are asking about the symptoms of lupus nephritis, there are no noticeable symptoms until it becomes quite serious. Lupus patients should have regular urinalysis for protein excretion and cellular casts. These are the signs of lupus nephritis. In advanced cases, a person might have swelling in both feet and lower legs and elevated blood pressure. Some people will notice foamy urine which means there is protein in it.

  10. QUESTION:
    Do I really need a final diagnosis for lupus?
    Im so sick of going to a 1000 different dr's. Is a diagnosis really that important, or can i just continue to take all the freekin meds they have me on... I think the stress of all if this is makin me feel more crapy. Since there is no cure and nothin they can really do about it can't I just Ignore it and deal with the symptoms when they come. Oh why all the meds? doesn't that make it harder on my kidneys and liver?

    • ANSWER:
      Yes Michelle unfortunately you do. The reason being is the treatment for lupus is so specific to that disorder. Autoimmune disorders are often hard to diagnose because the symptoms tend to mimic each other. All the meds are to keep your immune system from seeing your organs as the "enemy" . Hopefully in time you will go into remission and be able to taper of the meds. Good luck .

  11. QUESTION:
    Kidney Disease.?
    I have been diagnosed with lupus for 3+ years, and I've recently started to have back pains where my kidneys are supposed to be. I got kicked off my parents health insurance plan when i turned 22 this summer, so at the moment I don't have health insurance. Is there any information you can give me about kidney disease symptoms or any other info, so i can make an education guess if i have it or not.

    • ANSWER:
      well there is the national kidney foundation.....
      ya need a urinalysis and cbc,cmp to see what your function is at now...........good luck

  12. QUESTION:
    Do you know someone with Systemic Lupus?
    Lupus is an auto-immune disease that causes inflammation throughout the body. Your own immune system attacks your internal organs such as kidneys, liver, heart, lungs, and central nervous system. It also attacks your joints causing arthritis like pain. Other symptoms include butterfly shaped rash covering the cheeks and nose, hair loss, extreme fatigue, anemia or blood clotting issues, pleurisy, and ulceration in the nose and mouth.

    • ANSWER:
      i used to. i heard her talk about it. but thats about it

  13. QUESTION:
    Is my lupus coming back?
    I am seventeen years old, about to start college, and about a year ago I was diagnosed with drug-induced lupus (the drug I was on was minocycline, which I had been on for about 3 years for minor acne). I had a rash on my face, kidney pain, joint pain/arthritis, mouth ulcers, anemia, pleuritis, and pneumonia (apparently an indirect association). Also, about six months before all this, I had three seizures and was diagnosed with epilepsy, but my doctor began thinking that that, too, might have been caused by the lupus. My ANA test was negative, but my doctor said the other symptoms were significant enough to be certain that it's lupus. So, naturally I was taken off the drug, and my symptoms cleared up pretty well.

    However, for the past few weeks, I've been noticing some of the same symptoms, and more. My kidneys have been hurting badly, I have a lot of joint pain, and I've gotten five mouth ulcers in two weeks. Also, I've been having heart palpitations and what feel like skipped heartbeats, though I never had heart trouble before. Fortunately I'm on a medication to control my seizures and that works very well, so I'm not worried about that.

    I would go to a doctor right away, except for one problem. I'm a cutter. (Yes, I know it's a really stupid thing to do. I'm not an idiot. I know that. I starting cutting back when I was having seizures because it all got to be too much to deal with, especially since I was having seizures during school and about 800 people witnessed them, and at the same time I was having another crisis in my personal life, and I just haven't been able to stop). Problem is, now I've got a few scars, some on my upper arm, some on my hip, some on my leg. And if I go to the doctor, I'll be thoroughly examined and I really can't have them finding those cuts, because I'm technically still underage and in my state they would be obligated to tell my parents. And no, that would not be better; it would only worry my parents unnecessarily (with my medical problems and my brother's suicidal depression, they already have plenty to be concerned about) and furthermore they would probably stop me from going away to college next year (I'm going to college outside the US). And that would only make everything worse for me.

    So though I really should, I can't go to the doctor, so I'm asking you.

    Do you think my lupus is coming back? Or am I just reading into my symptoms too much?

    • ANSWER:
      Firstly, a doctor is going to be respectful and non-judgmental about your self harming. They are there to help. I'm sure you're embarrassed (I know, I've been where you are), but doctors are understanding. They will not tell your parents if you're not risking your own life. They may suggest a course of anti-depressants or speaking with a therapist. I'd recommend speaking to someone about this anyway. The emotional baggage that comes with health conditions can be worse than the condition itself.

      It sounds like your Lupus could have come back or never left at all, but no one on here is qualified to tell you either way. Did you see a rheumatologist? I don't know much about drug induced Lupus, but from what I've read it says that in most cases when you stop the medication in most cases the Lupus goes away. So most cases, but not all cases.

      I think you should go back to your doctor. I'm not sure how drug induced lupus works, but I know with SLE they might prescribe Prednisone to knock a flare on it's head. This might be an option for you.

      There's another user on here who has Lupus and is very knowledgeable. She usually answers all the questions on here about Lupus, so I'm sure she'll find your question and answer it. You could also try and contact the local arthritis foundation or Lupus foundation in your area and see if they've got any information for you.

      Good luck.

      ....

  14. QUESTION:
    Protein and blood in urine & Lupus?
    I already know I have grade 4 lupus nephritis (glomerulornephritis) , but today I did a urine dipstick test myself ( I am a student Nurse) and I the results said * BLO LARGE * and *PRO >=300mg/dl*. I also have been experiencing backache near my kidneys. What should I do? I do not have any symptoms of a lupus flare but I am really worried as I have had acute renal failure because of my lupus before and I really really don't want to go through that again. Could it be because of the small amount of permanent damage they said I had last time, or is this still abnormal?

    • ANSWER:

  15. QUESTION:
    What does a Lupus Rash look like?
    I'm a 16, year old Female, I weigh 108 Pounds, 5'2. My sister past away of Lupus in 2006 at age 28 from Lupus, who had also been diagnosed at 16 years old, and i have cousins in the family who suffer it. Could this rash be a symptoms of Lupus? http://yfrog.com/6gsnc00094yj ,I also have symptoms like a Malar rash off and on, joint pain, kidney problems such as frequent urination and small amounts, Raynaud's Phenomenon. I also take Adderall for ADHD, so i wasn't sure if that could cause this also. Help?
    http://yfrog.com/emsnc00095gj

    && these we're after a few minutes of sun, they get much darker. Plus it will be on my thigs, chest, and arms.

    • ANSWER:

  16. QUESTION:
    what is lupus?
    Defining Lupus

    A chronic, inflammatory, connective tissue disease that can affect the joints and many organs, including the skin, heart, lungs, kidneys, and nervous system. It can cause many different symptoms; however, not everyone with lupus has all of the symptoms. Also called systemic lupus erythematosus (SLE

    • ANSWER:
      I think you answered your own question. I have Lupus and have had it for a long time. The only thing you didnt put is that it is an autoimmune disease where our own cells attack each other because they become hyperactive, and do not know they are attacking their own healthy cells. So Dr's use immunosuppresents, chemotherapy, and prednisone, to suppress the immune system, in hopes of quieting a flare or pushing it down into remmison,

  17. QUESTION:
    Has anyone been diagnosed with Lupus or misdiagnosed?
    Ok, so here's my problem. Last April I had kidney failure and the doctors could not find the problem that was causing it. They finally came to the conclusion that I had Lupus. First, he was going to do a kidney biopsy to test for it, but said it was not necessary because he was 99.9% sure. Now, I've been researching this disease and from what I've read, Lupus is hard to diagnose. I've finally decided to get a second opinion, because frankly I'm tired of taking all of these pills everyday, and if I don't need them, why take them. I do not have any of the symptoms of Lupus, and the ones that I did have (swelling, fatigue, protein and blood in urine) can also be associated with kidney failure. Anyone have any experience in this??? I am going on the 22nd for more test from another doctor, but was just curious as to what I can expect, because I ask questions at my doctor and they brush them off because he is so called 99.9% sure (well I'm not buying it anymore). Any input will help. Thanks

    • ANSWER:
      You're right - it IS hard to diagnose.

      Definitely go for the second opinion. See a rheumatologist, a doctor who specializes in auto-immune disorders.

      And if it's negative for lupus - go see a nephrologist (kidney specialist) to find out what's going on with your kidneys.

  18. QUESTION:
    Has anyone been diagnosed with Fibromyalgia only to find out later they had Lupus?
    My 29 yr. old son was just diagnosed with Fibromyalgia. He has all the symptoms plus... enlarged heart, spleen, and gallbladder. Also, bloodclots, fatty liver and kidney. His ANA was 1:40 and speckled. Doctor says he doesn't have Lupus and refused to address all these other syptoms. Help!

    • ANSWER:
      ITS NEVER LUPUS

      //
      Golgothor
      //

  19. QUESTION:
    blood work for my kidney were normal ?
    blood work for my kidneys was done and thank God the results were great. now the rheumatoid dr will do a urine test can there still be the possibility's of finding protein.? Or if my lab work was great the dr will not find protein? im scared . MY ANA was positive I thing i have no symptoms but a little pain on my middle finger that comes and goes until i vacuum or nudge it with the door handle. What does it mean joint pain for one day or for a long time? Im just going by some of the lupus symptoms. my hair has been falling for years it falls then i can see tiny little hairs growing. im really afraid i just turned 37 and i have a positive ANA of 1/320 its high. i don't have much pain sometime my knee hurts but the next day its gone never swelling i know my lower back hurts but with a heat pad its goes away. i don't know what they mean by joint pain is it something that comes and goes or the pain stays for weeks. anyone with lupus please tell me or a Dr that my be reading this please I need help. i have been doing lots of reading but i don't no if joint pain is for a long time or what? Anyone that can direct me to stories of pt's with lupus thank you

    • ANSWER:
      Your joint pain can come and go. What other tests besides an ANA have your had run? You need a double strand DNA test, an ANTI-SM (Smith) test run as well. These can help pinpoint a diagnosis. In order to be diagnosed with Lupus you must have four of the eleven agreed upon Lupus symptoms. These can occur at any time and do not have to occur together. I would recommend that you get referred to a rheumatologist to be further evaluated.

  20. QUESTION:
    My LYMPH NODES are extremely palpable (for years) i have lost TOO MUCH WEIGHT, what is wrong?
    Hello....if anyone would like to try to DIAGNOSE ME, I'd be SO GRATEFUL AT THIS POINT!
    ..... i'm 30 year old female, with a 10 year old son and had a thoracic fore gut tumor(benign) removed from my chest @ 15, a good portion of which was attached to my lungs, aorta,esophagus, Trachea.
    To Date- no known complications or regrowth.
    109 lbs
    5'3"
    hypothyroid, on synthroid
    Had IUD recently placed in cervix
    amphetamine salts,celexa, lorazapam for depression/fatigue and ADD
    MY SYMPTOMS:
    CURRANTLY AND THIS PAST YEAR: Generalized Swollen lymph glands(some firm and hard in groin area. Also where my hairline is in the back of my neck behind my ear i guess, and a few large ones up the side of my neck aligned with my shoulder), Re currant low Grade Fever(no higher than 101 w/out infection),Itchy Skin, Memory Loss,Hair loss, Acne,Bowel Changes,On and Off fatigue, mucus in my stool(for one year at least.More mucus than actual stool on average! SORRY TO BE SO GRAPHIC! Lower Back Pain, DULL ACHING PAIN on the inside of my knees,stiff neck,ankle pain after being on my feet for more than an hour.Also extremely dry; mouth,skin,hair,eyes,&nostrils, dizziness upon standing, sweats,wounds heal slowly, weird painless swelling above my butt where my dimples are(no dr has been able to guess why/what this swelling might be),diarrhea and constipation, tenderness above my belly button, hyper pigmentation on abdomen, arms and feet, anxiety, blood pressure has steadily increased throughout all of my many dr's visits this past yr.
    ADDED RECENT SYMPTOMS:Kidney pain, visible blood in urine: for 2 months now! it was bright red and then less visible for awhile and now dark brown like tea and extremely strong smelling, hardening and bloating of abdomen, extreme fatigue, productive cough, chest pain, neck pain,easily exhausted, unexplainable bruises, muscle spasms and bulging type pain JUST under my rib on both sides separately, weird stabbing pain on my left groin area near my larger lymph glands that makes my tendon look swollen, thrush, protein in urine, HI albumin in urine, repetitive rbc in urine, BUT NO INFECTION!! (multiple negative cultures), kidney stone shows on CT in an area that is expected to be asymptomatic and may not even pass. BUT I DO HAVE difficulty urinating and cramping JUST PRESCRIBED CIPRO FOR A SECOND TREATMENT. (not sure exactly why since culture is consistantly negative)

    Many tests HAVE BEEN DONE: .....All Basics(CB C's, liver, etc panels) + Lyme Disease,Hep(B,C etc), ANA,Sed Rate,R.F.,AIDS, Celiac Disease,Fecal Bacterial+Viral cultures,Lupus,Syphilis, Gonorrhea, Chlamydiae,Anemia, scleroderma, h. pylori, bladder cancer,
    P.C.P. says: hematologist &will do allergy & routine testing upon insurance ok
    E.N.T(ear,Nose&throat) says: inflammation or irritation down deep in my throat(but i smoke so...)
    GASTROENTROLOGIST says: gastritis, hemorrhoids,IBS, lymphoid aggragates in non lymph areas
    UROLOGIST says: extreme gross & microscopic unexplained hematuria, referral to hematologist(concerned about enlarged lymph's in groin and unexplained hematuria---------says kidney stone most likely not causing this amount of rbc,did FISH URINE TEST...NO CALL SO I'M GUESSING ALL CLEAR ON RESULTS)
    HEMATOLOGIST says: i'm thin so nodes are more palpable s we should wait. does not believe biopsy is neccessary at this point
    RHUEHEMATOLOGIST says: no signs autoimmune, non arthritic/ lupus like disease
    GYNOGYNECOLOGIST says: no infection, no discharge see urologist...
    DERMOTOLOGIST says: see rhuemotologist! lol, biopsied pigmented marks(inconclusive-possibe allergic reaction)

    i am waiting on results of a chest CT from HEMATOLOGIST because he heard alot in my lungs and another aids test(that'll be 4 tests in the last yr(all negative)

    I'M SURE THERE IS MORE INFO I"M NOT OFFERRING
    but i can't remember everything! lol any EDUCATED ADVICE would be appreciated
    THANK YOU!!!! i feel so helpless when i am sooo tired or weak..... i just want a solution!
    PLEASE HELP!

    • ANSWER:
      See what the CT results are. If you get no answers there, I would go to a different hematologist and insist on a biopsy. If you can't get answers switch to a hospital that specializes in diagnostics.

  21. QUESTION:
    People diagnosed with Lupus... need help and info!?
    I do not wish to write a paper about all the details and symptoms, so I'll just summarize, then ask my question.

    Over the last 5 years, I have had symptoms of EXTREME fatigue, joint pain, canker sores, mild hair loss, etc. I am also anemic (which no amount of iron or B vitamins changes in the slightest). In this time, I have also had a false positive Syphilis test, and chronic kidney stones (3 in 7 years).

    In August of 08, I developed a cough that STILL has not gone away. I have been to TONS of doctors and been diagnosed with pneumonia, asthma, bronchitis, allergies, etc, and put on more antibiotics than I care to think of... all the antibiotic treatments actually made me feel worse.

    I also developed a sudden, strange rash on my leg after being out in the sun for a couple days... which also has not gone away. And more recently, I have a light butterfly rash on my face.

    Last month, I finally found a doctor that said "Wow... 8 of the 11 symptoms of Lupus... let's get you tested." I was x-rayed to check for Pleurisy (in the lung tissue), and put through about 10 blood tests (also checking for lyme disease, just in case).

    Even after the false positive Syphilis, and the anemia, I tested negative on the ANA test. Kind of. I tested higher than normal, but apparently too low to make a full diagnosis of Lupus.

    What does this mean exactly? Is there such a thing as borderline Lupus? And I know there are a few other diseases that mimic Lupus... but what are they? I know that Fibromyalgia is one of the "mimic" diseases, but would that also account for the blood disorders that I DO have and the rashes?

    I do have another appointment with my doctor in a couple weeks, and I also know that making a Lupus diagnosis can sometimes take a while... but has anyone had the negative ANA issue and still been diagnosed with SLE? And what was your experience... anything I should ask my doctor to look for on the next visit?

    Thanks!
    Oh, they did also check my thyroid... everything normal there.

    And should I mention, also, that my symptoms began during pregnancy and have gotten progressively worse? This has been going for about 5 years... and just now I've screamed loud enough that I am being taken seriously.

    • ANSWER:
      Unfortunately it may take years to DX Lupus. I had all of the symptoms you do and saw a Rheumatologist for about 5 years before my ANA was positive. In the 5 years I also had a pos. Scleroderma and Sjogrens. All along my doctor said that probably I would develop Lupus buy it was a wait and see. Keep a diary of your symptoms and continue to see your doctor. Hope this helps.

  22. QUESTION:
    Anyone has lupus/or has gotten kidney biospy?
    My kidney doctor said i might lupus, but i don't any symptoms, only tiredness, but i think i'm just lazy..lol...anyways, so he is going set up an appointment to do a kidney biopsy. Does it hurt to get kidney biopsy. I can't take pain at all. And for those who have lupus, what changes did you do for your lupus? Do you eat different or exercise more?

    Thank You

    • ANSWER:
      I had a kidney biopsy and did not find it painful. The doctor numbs your back in the area where the kidneys are. A hollow needle is inserted. Another smaller needle is inserted through the first and little snippets of tissue sample are taken from the kidney. You go home the same day and you are usually awake for the procedure. I cried for days in fear before my biopsy and now I look back and realize it was not a big deal at all.

      Tiredness is a symptom of lupus. I thought I was lazy or defective too!!!

      The would not do a biopsy unless you had other symptoms of lupus kidney involvement like protein in the urine or an abnormal creatine clearance in the blood.

      Changes? I practice yoga. Walk almost every day for an hour. Stay out of the sun. Avoid stress. Rest when I'm tired. Eat a diet rich in fresh fruits and vegetables with very little animal products. I try to avoid processed foods. I take my meds faithfully. I meditate.

      I have been on plaquenil since Feb 2003 and Cellcept since Oct. 2003. My tests are great and most of the time I feel better than I have in years. (In 2003, I had bone marrow failure, congestive heart failure and beginning kidney failure. Now I am working full time again.)

  23. QUESTION:
    Have any moms had an Abo Incompatibility with their baby? If so has it affected your health?
    ive been tested for everything under the sun (lupus, kidney disease, cancer, etc etc) and I am still suffering with no diagnosis. I have many symptoms (low wbc 3.0, fingernail color changes, fatigue, burning throughout body) If anyone has gone through this, please share your stories.

    • ANSWER:

  24. QUESTION:
    Kidney Biopsy and Lupus?
    My kidney doctor said i might lupus, but i don't any symptoms, only tiredness, but i think i'm just lazy..lol...anyways, so he's going set up an appointment to do a kidney biopsy. Does it hurt to get kidney biopsy. I can't take pain at all. I'm so scared.. And for those who have lupus, what changes did you do for your lupus? Do you eat different or exercise more?

    Thank You

    • ANSWER:
      If your dr has done blood tests, and found issues with your blood, and certain protiens in your urine, it may be suggestive of Lupus nerphritis. A different type of Lupus Then Systemic Lupus. Your symptoms may very well be different.

      I have Systemic Lupus (SLE). I havent needed a kidney biopsy, but did have a Liver Biopsy because I have Lupoid Hepatitis (autoimmune Hepatitis, fr the Lupus. I know this much, as with a liver Biopsy they do put you to sleep, so you arent awake. The liver biopsy when I woke, was sore, but no massive pain, plus most dr's and surgons will give you pain killers for the after surgery.

      If your super freaked, call the doctor, and ask him to explain his exact reasoning why he thinks you may have Lupus nephritis. If you don't like the answer, get a second opinion. But If you do have Lupus Nephritis, you do need treatment right away. It is a needed organ, and you can't sit and do nothing, the longer it sits, and the more ill you may become. I Co-Own a Lupus/autoimmune support group, several have Lupus Nephritis, and because they acted fast, and take their meds, are able to work, and live thier lives.

      They may change your diet, and some moderate, or mild exersice to begin with can only make you stronger. I swim, to help me with the times when I am down with severe flares (periods of moderate/severe disease activity). Lupus can range from Mild to Severe. He may have also done some pre bloodwork, for autoimmune disease that has come back positive as well.

      The changes I made for lupus over the years have been many as my life and illness have changed. But I have a lot of Central Nervous System Problems, not all with Lupus do. So I had to stop working. I eat better, I took swimming again a few years ago, I created an online support group, I pay more attention to my health, dont drink alcohol anymore or very little. I try to enjoy the good days, weeks or months a lot more, and appreciate them. I rest when my body tells me to. Oh and for the 1st time in my life I actually take most perscriptions perscribed....there are a few, and my dr knows which ones, I just physically can not tolerate. So we found ones I could.

      Good luck,
      Chris

  25. QUESTION:
    i have lupus and horrible doctors how can i get a good doc to treat my symptoms seriuously?
    i suffered w/ chronic pain for a year before i was admittedin the hospital and finally dignosed its been five yrs now and class 3 nephritis w/good kidney function, i take 10 mg of predisone, 150mg of imuran and 400mg of plaqunil, also i take 8, 40 mg of oxycotin, i just want to stop living in pain, and have another child, when i talk to the doctors they act like theres nothing wrong, but tell me i should never try to have a child again, what can i do to get the help i need and stop this diesease?

    • ANSWER:
      Lupus can't be cured and you definitely can't stop the disease process... Some have worse symptoms than others, but my mom was diagnosed 5 years after I was born, but started getting symptoms once I was born... They don't know what causes it exactly, but something about childbirth tends to "set it off"...You can have another child, my mom had my sister 6 years afterwards, but she "acquired" more symptoms... Be careful with prednisone my mom took it for years---it's a miracle short term drug but when taken long term like my mom did will deteriorate your bones---I'm not trying to scare you but my mom isn't even 40 and has 2 prostetic hips---she's had it for almost 20 years and looking at her you can't tell there's anything "wrong" til you watch her... The pain will be bearable some days and not so bearable on others... Weather has an effect on it as well especially if you have arthritis... The best thing you can do for your child is be strong... The disease is an autoimmune disease which affects everything in your life... from sun exposure (can't have too much or you can get a butterfly rash and or lesions) to feeling like you don't want to do anything whatsoever... Finding a good doc is difficult especially cause most have either just heard of lupus or know little to nothing about it... I do feel for you and hope the best with you and your child and hopefully another in the future...

  26. QUESTION:
    Could I have Lupus?
    I often am fatigued and have been for many years, I would say extremely so. I DO NOT get butterfly rashes, however I do get hot cheeks, and often have small rashes on my body that lead to small sores. I do get swollen eyes, and have aches in the morning. Only my hands sometimes feel "inflamed" but not my legs. I have shooting pains in my wrists but I always thought I had carpel tunnel until I realized this is also a sign of lupus. I have had more than a few kidney infections in the past. . . but as extreme as all this sounds, I'm not chronically ill. I have a normal life and would seem healthy to others. I'm not sure if these symptoms could be Lupus because I'm generally "not sick" and Lupus seems so extreme. Any help/advice/suggestions would be great. Also, I don't have insurance but am going to look into getting tested at my local hospital.

    • ANSWER:
      Not all lupus patients get the butterfly rash or have skin involvement. I have SLE with organ involvement and do not get the rash.

      You could have lupus, or a whole host of other things. Lupus is called the "great imitator" because it mimics so many other diseases. Rheumatoid arthritis and thyroid disease are two examples.

      There is no single test for lupus. A diagnosis of lupus is made
      1. based on symptoms
      2. based on a variety of lab tests
      3. when other diseases and disorders have been eliminated

      It takes most lupus patients several years and several doctors before they are properly diagnosed. A positive ANA or antinuclear antibody test is only one sign of lupus, and can occur during other conditions-even pregnancy!

  27. QUESTION:
    *********SEVERE KIDNEY PROBLEM PLEASE HELP!!!!!!!!!!!!!!!!!!!!!!!!?
    Severe ongoing kidney pain please help!?
    I had leukemia when I was a kid. In remission. Extensive chemotherapy for 3 years on and off. Tested for Lupus one year ago due to questionable symptoms. I know not everyone on here is a doctor but I need advice for the time being. My symptoms are severe kidney pain (right side) for AT LEAST one year now. Weird rash on hands-have to itch it with a brush and the skin peels of my fingertips and palms. I cant stand for a long time because my right kidney hurts so bad its debilitating. I know its not a joint/bone problem because I had some arthritis and RA testing done-alls well there. I cant drink soda's, juices, milk or coffee obviously this causes severe chronic pain. Kidney hurts whenever I have to urinate-which I do as soon as I feel the urge to go. I get nauseated often but dont vomit, and when I wake up in the morning Im in severe pain its hard to even get dressed. Ive read up on the symptoms of kidney disease but I dont want to sound like a hypochondriac to my doctor when I go. Please advise-anyone know anything about these symptoms. And yes, I constantly have kidney stones that pass and regenerate, and my urine is always foul smelling and extremely clouded. Please help-thanks so much.
    53 minutes ago - 1 week left to answer.
    Additional Details
    Also, I always feel like Im thirsty and I always have something to drink with me. I try as often as possible to drink water. I know the pain is kidney pain because I went to the ER and they said I had kidney inflammation. The pain takes m my breath away at points and their are times when I get extremely dizzy and faint.
    50 minutes ago

    • ANSWER:
      Hi Sassy!
      I think that you already know the obvious but perhaps need a little confirmation. Girl, there are a few organs within your body that strongly affect the total health and well being of your body as a whole. You probably know already that your kidneys are one of the primary organs that does influence your health. Two things that you have mentioned caught my attention. one is the "itchy rash" on your hands. That is a sure sign of nerves and in conjunction with your kidneys; actually create agitated conditions that intensify your kidney problems. The other is the 'foul smelling; cloudy urine. Of course this is brought on by the kidney infection 'but' it is a good sign that the kidneys are functioning and trying to cleanse themselves. I know this is not a time to be trying 'old remedies' but a few of them actually help. Most likely, you are drinking liquids that are cool or cold in temperature. The kidneys actually have to work harder at cleansing under these conditions. Try warming your liquids to slightly above body temperature (between 100* and 110*Max.). This will help. Also, in your case, please try to drink distilled water only, because; most bottled water is actually "pure tap water." To a healthy person, this does not create consequences of any magnitude. In your case, the slightest deviations of germs or enzymes, foreign in nature, can present problems. Please also try to drink considerable amounts of nothing but water. It may be painful to begin with but it does in fact help flush out those conditions that are helping to agitate your ailment. Now, for the "Old remedies." This one, I place quite a bit of faith in because I too have bouts with my kidneys. Honey is the only absolute pure energizing food that has zero harmful substances. It never has to be protected as it will 'never; spoil, period! You take two tablespoons of honey in the morning and the same before you retire at night. I will personally assure you that it will make a difference in your condition in a short time.(perhaps a week or less and you will notice a change for the better) Your pains will diminish and your nausea will subside. Other than this, I am going to strongly urge you to visit a good urologist. Perhaps you feel that it is an expense that you cannot incurr at present. I am going to tell you it is an action that you must take regardless of expense. (there are assisted programs to help you if this is actually one of your problems). Sassy; You owe it to yourself to take care of this "Now" and not put it off. "If" your kidneys actually start to fail, expense will no longer be an equation to consider. It will be a mandantory action that you will be forced to take at that point. Please get on girl with what you know you must do. I will pray for you and hope for your best.

  28. QUESTION:
    Chronic Kidney infection! Doctor won't help!?
    In past five years that I been having problem with my kidneys. I have decrease urine. I get really sick especially in the morning that I wake up feeling like aches and pain due high level fluid in my body. I went doctor many times. He said nothing wrong with my kidney and my bladder. I went more than 50 trips to different doctors, including kidney doctor and ER in past 5 years. YET, they can't find NOTHING!!! Only time they found that I had kidney infection that they treat me with Bactuim. It help me a lot and 2 months later that it return. I take small dose antibodies for 3 months. It help a lot and then I finish taking it. Then it returns. I can't take this antibodies anymore because it trigger Lupus Like symptoms and the doctor DON"T believe me. I am having sharp pain where my kidneys are located. I have two children that I have to look after. I am so frustrating that I don't get all the help that I need. I cry so hard yesturday because I don't know what to do now. I did everything I can do. I drunk down all 100 pure cranberry juice in one day and plus cranberry pill. It don't do anything! I went back to doctor and told them. They said your kidney function is FINE!! Of course I am stress because I don't get the help that I need! I change more than 4 doctors in past 5 years. I have low blood sugar problem, low iron, stomach ulcers. I have symptoms like Lupus that I get aches, pain in muscle and joints, mild red like rash on my face, seeing spot floater, flashing light. My toe will turn blue when I sit down too long and my brain feel so funny like it froze and stiff that I had hard time to focus and somtime the fog is so bad that I almost can't see. I have much more symptoms!!! I even get test for lupus twice and it came negative.. I don't have mental problems and that what doctor said!!! I am tired of it and I want to get well again and get treated properly. I even get on antidepressant, none of them help because I don't have mental problem that is why! I even went to eyes doctor and said it look fine! I don't know if doctor in Memphis, Tn are careless because they just want the money or what? They always help me when I used to live in California but I moved here because my reason. The more delay the doctor help me to treat, the more symptoms grows! It started in 5 years ago. My blood sugar was 49 and after I ate bowl of cerals and a orange juice that my blood sugar went up 144 after 2 or 3 hours that last I ate. If case that helps and it from doctor. He said I don't have dibetic because my blood sugar is normal 144. So please please help me. Im only 22 years old with two kids.
    Im sorry if my grammar isn't perfect because I am deaf. My grammar are good for as deaf person because most deaf can't write. No offend.

    • ANSWER:
      Your problem is that you're trying to diagnose yourself. Are you a doctor? I doubt it. You honestly sound like you're reading too much wikipedia, and are jumping to conclusions, based on that limited knowledge.

      YOu probably have stomach ulcers from drinking all that acid in the cranberry juice, and your blood sugar is supposed to go up after you eat.

      If they have tested your kidney function and tested you for lupus and it came back negative, then you are negative. You might have a problem, but it's not a kidney infection or Lupus.

      I suggest you find a doctor that doesn't know you. Go there and tell them your symptoms. Just tell them symptoms don't tell them you think you have lupus, or kidney disease or try to diagnose yourself, because they will just test you for that stuff again and it will come back negative again, and they will think you are just a hypochondriac, like your current doctor probably does.

      And take a grammar class, please.

  29. QUESTION:
    I have severe Lupus SLE and Kidney disease, is there any programs that will dissolve my student loans?
    I was a teacher for eight years until I got sick with stage 2 of 4 kidney disease from my Lupus SLE. I had to leave that job that I loved because of so many reasons. Well I decided after my symptoms got under control some that I would find another profession that would allow me to help children. So for two years I have been earning a Masters in professional counseling, God willing I will graduate this fall. However I have debt still from my fist degree and now the masters. All I want to do is help children but with the degree I will have I will not be making much. Most of my money will go to health up keep. I don' even have a car or house anymore. I gave up my care and now share an apt with a roommate. My symptoms are worse at times and better others. However I am in so much debt with student loans I don't know what to do. If anyone has any ideas, or experience with this please let me know. It is hard I was a good student both times and will graduate in the fall with honors and a bill that I can not pay.
    For those who said I should have thought about this before I went into debt. I thought I was going to always be a teacher. Do you know what I got when I got sick, was so sorry, we have to take your health insurance because you have a preexisting disease. I used my money to help get my student what they needed and in return I was told I was an excellent teacher, but now that you have a chronic illness so sorry..... It so easy to tel some one to go get a job, or why did you do something when you are not in the situation. Kidney disease is not fun or easy. I have worked my whole life. Think before you speak, because it could be you who could be loosing everything, life does not recognize last names, race,or gender.

    • ANSWER:
      My sister has cerebral palsy and she attended college on and off for about 20 years( I guess she was bored). In that time she racked up about ,000 worth of school debt and was unable to pay it. She called her loan companies (the people who funded her tuition) and explained to them her situation and the sent her some papers to fill out, it think it's called a Permanent Disability Waiver. Her doctor also had to verify that she was disabled, so they have forgiven about ,000 of the debt but the only catch is that she is not supposed to work for the next 2 or 5 years (not sure). If she starts even a part-time job she will have to pay the money back. I pray this helps you and good luck, and get well!

  30. QUESTION:
    Can I have Lupus?(people who know)?
    I went to the doctor, and did urine test and blood test, and he told me i had blood in the urine. Then he did more studies, and he said i might have Lupus. I have none of symptoms ie, rash,lost of hair,pain,ankle swelling. He told me i had something high, i'm not sure what is was, but it was 1.6. So now he is going to do kidney biopsy to see what is happening. You think i have lupus? Oh yeah, he said I have no protein in my urine, so that is a good sign he said. If i do lupus, can t be cured if it's low?

    • ANSWER:
      Hi Im Chris, I have had Lupus for 20+ years, own a Lupus support group and do research on lupus. having blood in your urine can mean your passing protien from your kidneys, or have a severe Urinary tract infection.

      The test he is talking about where the titer was 1.6 is called the ANA or Anti Nuclear Antibody test. and while 95% of people who have Lupus have a positive ANA healthy people can alos have a positive ANA, for any number of reasons. It can run in familes, high estrogen levels, just having had a baby, infection, and more.

      Also even if you have a positive ANA and say a kidney infection, that alone does not qualify you for having Lupus. You must meet 4 of 11 diagnostic critera. Which I will post.
      I suspect he may want to do a kidney biopsy to rule out
      Lupus nerphritis. A type of lupus that attacks the kidneys, and is mainly contained to the kidneys, but usually will also involve your skin, joints, possibly hair loss, and other issues as well. I think he may be jumping the gun a bit, but from my expreiences I have delt with Lupus paitents diagnosed and undiagnosed for 10 years, your lucky you have one that is concearned enough to take extra steps to look into this further. Some who clearly meet all the critera can wait 5 years to get diagnosed, and even when diagnosed still have problems getting proper treatment. all because their dr's are just egomaniacs, or dont realy know what they are doing. so be grateful this dr is trying to rule it out.

      About Lupus being cured. There is no cure. Lupus is an autoimmune disease. In an autoimmune disease our own bodies belive they are under attack from an outside forigen invader. so our own cells start to attack our own cells and organs. The only thing dr's can to is try to hold symptoms at bay, and hopefully put us into remmissons from what are called flare ups during very active times of the disease.
      many of the drugs used are prednisone (which is a streroid, but not a performance enhancing one), antimalarial drugs, and immunosuppresents (many which started as chemotherapy drugs, that did little to kill cancer, but work well in suppressing Lupus and other autoimmune over active immunesystems). Some people have very mild cases of Lupus. Others moderate, still others very serious to life threatening. Personally mine is severaly moderate to serious, and have had to be treated with the strongest of the immunosuppresents. But I have had a few remmissons in the 20 or so years. I also know several that are still able to work. Below is the diagnostic critera. and I will include the link to the group I own with a couple others.
      Good luck

      Diagnostic criteria for lupus
      The following criteria are used to distinguish lupus (systemic lupus erythematosus, or SLE) from other autoimmune and rheumatic diseases.

      A person with 4 of these 11 conditions can be diagnosed with lupus; 3 symptoms suggest that lupus is probably present, and 2 raise the possibility of lupus. Symptoms may be present all at once or appear in succession over a period of time. 1

      Butterfly (malar) rash on cheeks
      Rash on face, arms, neck, torso (discoid rash)
      Skin rashes that result from exposure to sunlight or ultraviolet light (photosensitivity)
      Mouth or nasal ulcers, usually painless
      Joint swelling, stiffness, pain involving two or more joints (arthritis)
      Inflammation of the membranes surrounding the lungs (pleuritis) or heart (pericarditis). This inflammation is called serositis.
      Abnormalities in urine, such as increased protein or clumps of red blood cells or kidney cells, called cell casts, in the urine
      Nervous system problems, such as seizures or psychosis, without known cause
      Problems with the blood, such as reduced numbers of red blood cells (anemia), platelets, or white blood cells
      Positive antinuclear antibody (ANA) test
      Signs of increased autoimmunity (antibodies against normal tissue), as shown by laboratory tests
      References

  31. QUESTION:
    Do I have lupus, and how do you get diagnosed if you do have lupus?
    I had an ANA panel done, suggesting to my doctor that I think have lupus. I have researched my pain and other symptoms for years and think that this is what I have. My test was positive for double-stranded DNA. What does this mean? I have never actually met my doctor. I see a doctors assistant and I think she has no idea what she is doing. I am scheduled see a rheumatologist on April 14, but I really want to know what anyone with experience thinks about my condition before I see him. It has taken me 5 months to get this appointment after I could convince anyone at all of my symptoms. I hurt much more than a 27 year old should hurt. I have 2 kids that I need to be out running around with and it kills me that I hurt too bad to do the things I should be doing as a mother. Can anyone help me? Oh, I should add that Meloxicam helps my pain immensely, but I have been told to stop taking it because my kidneys are bad. Well, my creatonin (not sure of spelling) is high. It also helps my joints stop popping. They pop almost every time I move, so loud that everyone around me hears them! I am very tired all the time. I also feel like I am pulling half of my hair out every time I brush it. I get a puffy red rash the first time I get in the sun every summer. I have serious stomach problems. I have been diagnosed with Aspergers Syndrome which often comes with an autoimmune disorder. I really want to finally know what is wrong with me so I can treat it in some way. I am miserable and I have been for awhile. Even if I am going to die soon, I would just love to know why! Doctors can't find a cause for my problems even though they know I have them. HELP, PLEASE?!?!

    • ANSWER:
      If you have tested positive for a DS-DNA test then you most likely have Lupus. While there is no definitive test for Lupus the DS-DNA test is one of the best at ruling Lupus IN. That is to say that people with Lupus can test negative for the DS-DNA but there are very, very few false positives with this test.

      With your creatinine clearance being high, an indicator that your kidneys are in distress, you should not be taking the Meloxicam as this can put stress on them.

      The good news is that Lupus can be treated. You may need to have methotrexate or cytoxan to stop the Lupus Nephritis (when Lupus is attacking your kidneys). There is a new drug in phase three trials that is on a path to being approved for Lupus Nephritis, you may want to look into it...it's called Benlysta (Belimumab).

      You also may have to have a course of high dose oral steroids to help with the inflammation.

      There is a lot of help out there. Check out Lupus.org and look for a local support group in your area. Those who have dealt with the disease for years will have a lot of insight as to what to expect.

      Matador above has some good (although dated) information regarding the tests performed. The BILAG criteria that he mentions (four of eleven symptoms for diagnosis) was never meant to be used as a diagnostic tool it was for acceptance into a Lupus study. This criteria has been utilized for years by doctors who misunderstood its usage and is only now being quashed by the AMA.

      You appear to have kidney involvement and a biopsy may be necessary. A diagnosis of Lupus can be made if that biopsy shows Lupus Nephritis regardless if you have any of the other eleven criteria...thus the reason the BILAG criteria is just a guideline.

  32. QUESTION:
    HELP - What do these bloodwork results mean? HIGH white blood cells, platelets, neutrophils, and lymphocytes.?
    I have EVERY symptom of Lupus. My doc sent me for bloodwork and had an ANA test done to see if I have Lupus. The ANA came back negative. However, for OVER A YEAR NOW, my white blood cell count has been high (13.3), my platelets have been high (416), my spleen, liver and left kidney have been swollen (ultrasound), and I have had a LOT of pain under my rib cage on both sides, especially my left side. If I stand or sit for too long, my stomach bloats out (esp when standing). The doctors around here don't seem too concerned about the constant pain I'm in, which has made me lose even MORE faith in doctors. Someone please help me!

    My bloodwork results are as follows:
    White blood cell (13.3)
    Red blood cell (4.43)
    Hemoglobin (14.4)
    Hematocrit (42.7)
    MCV (96.4)
    MCH (32.6)
    MCHC (33.8)
    RDW (12.8)
    Platelet (416)
    Absolute Neutrophils (8326) - 62.6%
    Absolute Lymphocytes (3963) - 29.8%
    " Monocytes (705) - 5.3%
    " Eosinophils (266) - 2%
    " Basophils (40) - 0.3%
    ANA - neg
    HgA1C - 5.0

    • ANSWER:
      For those with systemic lupus erythematosus the symptoms are as follows: 95% have joint pain, 90% have a fever of greater than 100 degrees, 90% have arthritis/swollen joints, 81% have extreme fatigue, 42% have the classic butterfly rash or discoid rash, 74% have body rashes, 71% have anemia, 50% have kidney involvement, 45% have chest pain on deep breathing or have pleurisy, 30% are sun or light sensitive, 27% have hair loss, 20% have abnormal blood clotting, 17% have Raynaud's phenomenon, 15% have seizures and 12% have aphthous (mouth) ulcers. Those with SLE can also have pericarditis. The white blood cell count will usually be decreased. Yours is slightly elevated. You say you have all the symptoms. Do you really?

      I've reviewed your blood work. Your WBCs are, as I said, a little high but certainly not alarmingly so. The high end of normal is 10. Levels can be elevated due to stress, smoking, medications, infection, tissue necrosis, collagen disease, histamines, cancer and certain anemias.

      Your basophils are slightly decreased. The range is 0.4-1.0. 0.3 isn't alarming. Can be due to stress, hypersensitivity reactions and pregnancy. MCH is mean corpuscular hemoglobin and is a measurement of the weight of your RBCs. Yours is slightly elevated and this can be due to macrocytic anemias. Your platelets are also slightly elevated. The range is 150-400. This can be due to infections, acute blood loss, splenectomy, polycythemia vera and myeloproliferative disease.

      The rest of your values are completely within normal limits. One caution, the conditions that can cause abnormal values do not necessarily apply to you. These must be looked at as a total picture and taken into consideration with other diagnostic test results and can't be considered individually. By this I mean that, for instance, your platelet & WBC counts don't mean you have both cancer and ploycythemia vera. T

      I don't know how large your internal organs are, how much outside the norm. An enlarged spleen and liver can certainly cause pain and these, along with an enlarged left kidney, are signs of an underlying problem. Have you had a urinalysis, urine culture and sensitivity, renal and liver function tests to rule out disease or infection of these areas? A nuclear spleen scan? Have any GI diagnostics been done?

      Have you insisted that attention be paid to your pain? Have you stressed the pain you're having? Are you walking away from appointments without having your pain addressed?

      I'm just not convinced, based on what information you've provided, that SLE is the cause and I think you're looking in the wrong direction. Without more diagnostics, I can't even speculate on what the underlying problem may be. But please be assertive about further tests and pain management. If you can, let me know how this progresses.

  33. QUESTION:
    I need help editing my research paper. I'm really bad at papers.....please help!?
    Well, its on lupus. I have the intro and two body paragraphs, and I still need to do the conclusion. So, I was wondering what I should change on my paper, and what I need to add..? I also have to do a powerpoint based on the paper, that should last a minimum of 5 minutes up to 15.

    The reason why I chose this topic was because my dad has lupus, and I wanted to know more about the topic. He was diagnosed with lupus when he was about fourteen years old. He still receives treatment for it by going in for blood tests and taking medication He has the most common form of lupus, Systemic Lupus Erythematosus (SLE), in which causes the antibodies to react against his own normal tissue. He has arthritis and joint problems, but nothings wrong with his internal organs. To support my dad and other lupus survivors, my family and I all go to the lupus walk in honor of remembering the people who had lupus that died. The things the audience can expect to read in this paper are the different types of lupus, the symptoms, the treatment and cures.
    Lupus is the result of an unbalanced immune system that can be destructive to any organ in the body. It can be categorized into three groups: discoid lupus Erythematosus, systemic lupus Erythematosus, and drug-induced systemic lupus Erythematosus. DLE is always limited to the skin and is identified by a rash that may appear on the face, neck, and scalp. It can evolve into the systemic form, which can affect any organ or system of the body. Systemic lupus Erythematosus is more severe than discoid lupus and can affect almost any organ or organ system of the body. No two people with SLE will have identical symptoms. Drug-induced systemic Lupus Erythematosus occurs after the use of certain prescribed drugs. It is more common in men, because the drugs are given to them more often.
    Lupus is hard to diagnose because it has a wide range of symptoms involving various parts of the body; and symptoms differ from each person. Most people develop painful joints and a rash, but lupus may also cause fatigue, depressions, and kidney problems. The treatment of lupus varies from person to person because each person has different symptoms. Most people with SLE require a regular blood test to check for lupus flares. Medication is the primary medical treatment for lupus. Presently, there are no other methods available to treat lupus because there is nothing else that can have the necessary impact on the immune system. Currently, there is no cure for lupus, but with early diagnosis and proper medical treatment it can significantly help control the disease.

    thanks. it would be much appreciated!!!!

    • ANSWER:

  34. QUESTION:
    What could kidney pain be a symptom of ?
    lupus ?

    I feel tired alot, but then i dont get much calories

    knee pain, but then again i walk to school every day and run

    my hands and feet get cooled sometimes but that could be from times that i've overexposed them to the cold and got raynauds

    my urine seems normal

    though proccessing is normal

    i do drink milk alot
    and i switched from 7 up to water

    , i know its not cirrosis

    i'm male, 17

    • ANSWER:
      Hi GrimmJow

      Drinking milk isnt helping the kidney (or any other body part) I can tell you that. I wont go into all the details, but if you do research on milk you'll see it's not all the hype they make it to be ( I drink a gallon of water a day). Pain is a signal the body indicates to you to assist with the internal issues (blood, organs, and/or respitatory).

      Look closely at the suggestions I make below (look at #4 especially), regardless of the health issue. If you do these steps below, you'll give the body time to heal the issue without having to digest meat. dairy, manmade chemicals, preservatives, etc.

      Here is a list of important health topics people dont realize or take for granted and thus causes issues.

      1. stress = most of it is self induced. Even thinking and actually talking about negative means you attact more negative energy. Visualize and "Feel" a healthy beautiful body (end result) and you'll have it before you know it.
      Once the body breaks down from stress then its much easier to get sick or unhealthy for that matter.

      Obviously exercise helps manages stress tremendously!

      Remember what you focus on (negative or positive) is what you will attract in your life. This universal law is called "The Law of Attraction".

      2. Lack of water. Drink a gallon of distilled water to hydrate the body and flush out the excess waste and toxins out of the blood.

      3. Nutrition = this helps heal the body and will gives it energy to work on the internal issues. Mainly raw organic fruit and vegetables. If you only ate organic raw F & V for 7-10 days and drank distilled water you would see a change in your energy and be on your way to better health. Letting the body rest from digesting meats, dairy, and processed foods would do wonders for you.

      4. clogged colon = Not eliminating the processed food and chemicals we eat every day will give anyone an illness and/or disease. If doctors we're actually taught this, our society would be much improved. DO a colon and liver cleanse to clear out excess waste and toxins in the blood. This will help heal any illness or disease.

      Best of health to you

  35. QUESTION:
    HI, my name is Molly and I am to be tested for Lupus. What are the chances I will have lupus?
    -I am 13 years old.
    -I have been suffering from extreme swelling of the lips for a period of a couple of months now. They believed it was caused by an egg allergy.
    - My family (particularly my mother) suffer from severe allergies.
    - I had specialist allergy testing and it showed that I have no allergies.
    -Since then, my joints have begun to swell on a regular basis.
    - My fingers swell in the same manner as my lips do.
    - My toes also swell sometimes.
    -I sometimes suffer from headaches and joint pains and sometimes I lose my personality and become tired (and as my parents describe it, I become 'flat')
    - I have trouble sleeping.
    -I suffer from very mild eczema (so does my mother, and most of my mothers family, though they have very severe cases)
    - Today, a lymph node in my neck also swelled.
    - I have also suffered from coughs and colds, on a regular basis.
    - I was born with a slight heart murmur (my two sisters were also born with heart murmurs, my mother has heart problems, and my maternal grandmother died at the age of 34 of heart and kidney problems during child birth)

    After I came home from school and discovered the swollen lymph node, my mum took me to the doctors, the doctor ordered for a number of blood tests, including for lupus, taking into account my medical problems.
    My mum is extremely worried that I may have lupus.

    What are the chances? Considering my symptoms?

    Thanks, molly x

    • ANSWER:
      The heart murmur may never give you trouble. Many people have them without any symptoms at all.
      As for lupus - SLE
      Lupus is a complex disease, and its cause is unknown. It is likely that a combination of genetic, environmental, and possibly hormonal factors work together to cause the disease.
      Reading through your concise list of symptoms it does point to some sort of auto immune disease, but nobody could possibly give you a diagnosis or the odds that you might or might not have lupus.
      IF you do have lupus, most patients with SLE lead full, active, and healthy lives.

      You have obviously read all about it and your mum sounds a smart lady to take you to see your doctor so promptly. I am sure you are both worried and wish you all the luck in the world.

  36. QUESTION:
    being tested for lupus could i have it?
    my symptoms are:

    red rash like eczema on nose and cheeks
    fatigue
    high blood count
    headaches
    liver spots
    aching joints
    constant ear, kidney and water infections

    does this sound like lupus?
    i've also had 1 eptopic and 14 miscarriages which i was told was due to sticky blood, have weight gain, sore scaly face and in mornings i have trouble walking more so if i'm cold

    • ANSWER:
      If I was in your situation and I got a lupus diagnosis-I would consult private doctors who may offer tests and treatments not available on the nhs-The private hospital below may investigate possible infections causing ,or contributing to ,your symptoms. Lupus can easily be a misdiagnosis,if for example someone has lyme disease.
      If I had your symptoms and didnt get a diagnosis,I would head straight for the private hospital below.

  37. QUESTION:
    Do I have Lupus or Rheumatoid Arthritis?
    I was diagnosed with Rheumatoid Arthritis 12 years ago (I am now 53), and have since developed additional symptoms. I have debilitating fatigue, unexplained fevers, a "butterfly"rash on my face, severe anemia, frequent nausea and vomiting, pain, numbness, tingling and swelling in my hands, fingers and one of my knees, headaches and "hazy" urinalyses. I have also had 2 hospitalizations (once for 3 weeks) this year for kidney failure secondary to dehydration. My rheumatoid factor has been positive since the time I was diagnosed, but I cannot locate any blood work where an ANA test was performed. My doctor is suspicious that I may actually have Lupus, because of some of these more recent symptoms, and the fact that I have yet to develop any deformity in my joints. I have been on methotrexate and Enbrel for many years. Can you give me an opinion? I do not have health insurance, so I am saving up to pay for the additional blood work I need. In the meantime, I am trying to get some feedback on these symptoms. I also suffer from fibromyalgia, migraines, and have had 5 surgeries on my cervical and lumbar spine. Thank you.

    • ANSWER:
      sounds as if you were misdiagnosed iwth FMS and really have Lupus.....that was just mild before..

      most docs are incompetant when it comes to fms and use it as general label for pain..so most people really have something else...

      your spinal issues alone with mimic fms...lupus mimics fms...

      it is possible to have fms and those, but being that you weren't properly diagnosed with other conditions--once you can get competant care you need to reassess if you really have fms

      you can have RA and Lupus too

  38. QUESTION:
    Does this sound like Lupus? Test results inside.?
    I got my test results back today. I will be seeing my Dr. next week. All signs point to lupus or MCTD. I have felt lousy for ten years. Bad fatigue that is unrelieved by rest and aches/pains, as well as just feeling crummy in general. I also have Raynaud's that affects my toes as well as a sleep study that has documented sleep disturbances.

    The ANA titer was 1:40, so not bad I believe.
    The pattern was speckled.
    It says ANA: POS

    MY SED rate and my C Reactive Protein were high, as always, so that shows inflammation. There were some other markers that were high as well: Basophils and Eosinophils. I looked tem up and it looks like they have to do with immune issues/inflammation.

    Can anyone help me interpret? I can't see this as anything but Lupus or MCTD. I don't have the hallmark symptoms of Scleroderma or Sjorgens. My Rhematoid Factor was normal.

    With these results and a decade worth of symptoms.....

    *Also BUN/Creatinine ratio was 23, so slightly elevated...know this has to do with kidney function :(

    • ANSWER:
      Your ANA would be considered negative by most doctors. My rheumatologist said anything below 1:80 is considered negative.

      Lupus is a very complex disease, although you can have an autoimmune disease without an ANA is it quite unlikely with a negative/very low ANA.

      Are you being seen by a rheumatologist? Have you had the anti-CCP test done? Or an ENA panel?

      The ESR and CRP are markers of inflammation, but this doesn't automatically mean the inflammation is in your joints or organs. These tests can also be elevated for other reasons and they've very non-specific.

      There are many things that could be wrong, not just Lupus or MCTD. You need to see a rheumatologist, they're the ones who'll be able to make the diagnosis.

      .....

  39. QUESTION:
    Lupus Question......?
    Not long ago my ANA test for lupus was +, which didnt surprise me as my mum and sister also test positive. I moved town not long after so no more lupus diagnostic tests were done. Im concerned because lately ive had about 5 urinary tract infections in 2 months, ive also had a kidney infection and none of the doctors in this town will do any other lupus tests....they just keep handing out antibiodics for the infections. my only symptoms are protein in urine (which shows up each time i get another uti), rash, joint pain...... am i over reacting?? Does this sound like lupus??

    • ANSWER:
      You need to get expert attention for lupus. It is a serious disease. One thing that you can do on your own that costs nothing, in fact you might actually save money by eliminating processed food, is to eliminate gluten from your diet. You may be gluten intolerant. That is wheat and related grains that contain gluten. Try that for a while to see if there is an improvement. If there is, then it would be worth it to get tested for gluten intolerance by your doctor.

  40. QUESTION:
    Could all these symptoms have one root cause?
    Could these symptoms/diagnosis be all related?
    40 year old female, smoker (shame)
    Kidney stones 2 yrs ago
    Pre-cancerous Breast Calcifications current and 1 year ago
    Raynauds Syndrome diagnosed last month (had for years though)
    Multiple Miscarriages
    Tested for Lupus last year=negative
    Sore bones, especially arms & legs.
    Currently taking Norvasc for Raynauds & Celexa for anxiety/depression. (Past 30 days)

    I will be back at the doctors in a week or so & will ask him, but I can't help but wonder if all of these thing weren't inter-related or if there wasn't a common thread through all of them.

    Any ideas or experiences?

    My apologies, last year, as well as about 10 years ago and twenty years ago...I was tested for thyroid disease because of another strange symptom (breast sporadically secreting clear and/or white fluid)...each test has come back normal.

    • ANSWER:
      it sounds like you also have arthritis.

  41. QUESTION:
    symptoms for months with no diagnosis. any ideas at all?
    for the past nine months i have had:
    - severe bouts of join pain, and possible deterioration of my joints.
    - fatigue
    - red rashes on my face an neck area
    - kidney infections and proteinuria.

    i have been tested for and do not have:
    - RA
    - lupus
    - fibromyalgia
    - lymes disease

    i'm constantly going to doctors and they can't figure out what is going on.
    any suggestions at all on testing ideas or possible diagnosis would be greatly appreciated!!

    • ANSWER:
      When you have them check you thyroid also have them check you parathyroid. You would be surprised!!

      nfd♥

  42. QUESTION:
    Should I get tested for Lupus?
    Hi, I'm 16 years old. I've been suffering from bumps and redness on my face (cheeks, mostly), and it's been something which I cannot get rid of. I thought it was just acne. My mom, however, is currently studying to be a nurse, and in her textbook she stumbled upon a picture of the butterfly rash often associated with systemic lupus erythematosus (known as Lupus/SLE). I didn't think much of it, until my mom and I researched the symptoms.
    These are the symptoms I'm currently experiencing:
    *Rash?
    *Extreme fatigue
    *Depression
    *Joint pain (mostly in my knees and ankles)
    *Migraine-like headaches almost every day for the past month
    *Difficulty concentrating
    *Psychosis
    *Inflamation of organs-last year I was diagnosed with gastreoenteritis.
    *Also, about a week and a half ago my back (around the kidney area) started hurting
    *I thought it was my period, but I have dried up blood that comes out everytime I wipe after urinating.
    *I have virtually no appetite.
    *My vision has been blurred the past few days.
    *The "flares" started about 2 weeks after the fatigue.

    What do you think about it?
    Thank you in advance.

    P.S- The symptoms listed started before I found out about the disease...less chance of psychosomatic diagnosis :)

    • ANSWER:
      Yes, you should probably get tested!

      Lupus is an Autoimmune disease, which is caused by both genetic and environmental factors, so, if you have a family history of auto immune diseases (Such as Crohns Disease, Scleroderma, Rheumatoid Arthritis ect...) You are at an increased risk, also if you are female and between 15 to 45.

      It takes awhile to diagnose Lupus, but your doctor will (most likely) refer you to an Internal Medicine Doctor, or may order the test themselves (Blood test! Urine test!) And depending on what the doctor thinks, the blood test will include an ANA (Antinuclear Antibody) test (Very important test!!! if this comes out positive, it could mean Lupus, or another auto-immune disorder!!!)

      Some other blood tests may also include tests for Hep. C, and Hep D, along with a Creatinine test, Bilrubin and Albumin test (Too much to type- Google it!) and ALT test (To see how epic your liver is doing!)

      So YES. Get tested; because like I said, it takes awhile to diagnose because the symptoms mimic so many other diseases; it could take months.

      Good Luck! :)

      I'm 17 and had Lupus symptoms too; test results come back in January (Next month!) Hope 4 the best!

  43. QUESTION:
    Lupus.. what is it?
    I just got back from the clinic and am a slight bit worried now.
    I went in for back pains, during this he asked if I had other problems so I mentionned my reynolds. He then asked me if there's history in my family with clots (my grandma does), if I've had kidney disease, I've had kidney infections (disease I wouldn't know?), if I've had unexplained rashes.. well right there I had a rash on my neck, I had no idea, he's the one who saw it. He asked if I had a history of psychiatric problems.. I have had severe depression along with some great insomnia in the past. He asked other things that I can't remember anymore.. the only thing that didn't fit, which was mainly why I came in, was if my lungs were inflamed.. What was wrong was my muscle behind the shoulder blade was inflamed hurting when I would breathe.
    Ok so, now that he's gone through all that and only 1 out of all symptoms he's asked don't fit... what??
    I don't really know what lupus is safe for what I've just googled..
    Rusty:
    I know he can't diagnose based on history alone. He asked me a series of questions that made him think it's possible. Although, it didn't go much farther then his questions. Now what I wanted to know was the symptoms/how to get diagnosed. Basically, where would I go for help on this. I don't have my own doc so I'm kind of on my own.
    It had me concerned as many of the symptoms of lupus are similar to things that are happening with me. It's not to say I have it and don't wish to, I'm wanting to get informed.

    • ANSWER:
      I really do not understand from your question where lupus came into the discussion. Lupus is not diagnosed buy a doctor going over your medical history alone. Some of the things you mention can be seen in lupus patients.

      The American Rheumatism Association developed a list of symptoms used to diagnose Lupus. Research supports the idea that people who have at least four of the eleven criteria (not necessarily simultaneously) are extremely likely to have Lupus. The criteria are:

      * Butterfly rash
      * Discoid rash
      * Photosensitivity
      * Mouth ulcers
      * Arthritis
      * Inflammation of the lining of the lungs or the lining around the heart
      * Kidney damage, as noted by the presence of protein or other abnormal substances called casts in the urine
      * Seizures or psychosis
      * The presence of certain types of anemia and low counts of particular white blood cells
      * The presence of certain immune cells, anti-DNA antibodies, or a falsely positive test for syphilis
      * The presence of antinuclear antibodies.

      As to your question what is lupus.

      Lupus is an autoimmune disease. This means that a persons immune system is attacking their own body.

      Lupus is one of the more serious autoimmune disease. It can be mild with few symptoms or it can attack almost every system in the body.

      Lupus manifests as a chronic inflammatory connective tissue disease marked by skin rashes, joint pain and swelling, inflammation of the kidneys, inflammation of the fibrous tissue surrounding the heart (i.e., the pericardium), as well as other problems. Not all affected individuals display all of these problems.

      Rusty

  44. QUESTION:
    what can influence a mildly positive ana .. besides lupus?
    i had hives... went n got blood work ... now they say I have a mildly positive lupus test results... BUT she said that my blood count was fine liver and kidney and thyroid was fine blood work fine...Im going for a second opionion. I have noooooo symptoms .. only thing i have is hives. none of tht other stuff. so im wondering wt else could have effected this test. n why the hell would he think to test for lupas from HIVES.

    • ANSWER:
      There are a lot of other causes of a higher than normal ANA. Most are auto-immune related but if you have no other symptoms and all your other blood work is clean it sounds like this doctor is jumping the gun... a lot! Did he do any allergy testing for your hives? ANA's come back slightly positive quite often in the normal healthy population. If can be meaningless and of an unknown cause. It is a good idea to watch out for auto-immune conditions in the future (thyroid, lupus, celiac disease, arthritis, MS... there are a ton of causes). So have it re-checked sometime in the future but definitely get a second opinion as this guy sounds a little out there. Good luck!!

  45. QUESTION:
    Could I possibly have lupus?
    Ok. So, I had never even heard of this disease and I heard about it on the radio.
    So here are my symptoms:
    for three years now I have stomach problems.
    HORRIBLE pain in the upper right of my abdomen, I had kidney stones about 3 months ago. It hurt.
    gullbladder problems
    i have anemia
    am always depressed and have anxiety
    I am ALWAYS tired. I get plenty of sleep and am sooooo fatigued all the time.
    Just started having horrible back and joint (mainly knee and jaw) pain
    Whenever I get a cold, it immediately turns into broncitis or strep.
    Bad coughing anytime I lay down.

    Could this all be related to Lupus? Any information would be great!

    • ANSWER:
      The abdominal pain and kidney stones would not be symptoms of lupus.

      Fatigue, anemia and joint pain are symptoms of lupus, but they are also symptoms of other diseases.

      When those of us who have lupus get a cold, it is very hard to get rid of and often gets worse. But there could be other reasons for that.

      Lupus is tricky to diagnose. First talk to your primary care physician. Bring a detailed list of your symptoms. Do not act like you have diagnosed yourself or the doctor will not take you seriously. But you could simply ask, "Could I have lupus?" Then ask for a referral to a rheumatologist. You can find one at www.rheumatology.org

  46. QUESTION:
    I am so afraid to take plaquenil for lupus treatment! any natural cure?
    Does anyone has an experience with plaquenil? or some one knows a natural way to cure lupus? I am currently taking oil fish, cellfood and recovery( for joint pain) and multi-vitamins.

    I am 30 yrs and was diagnose 8 months ago, no internal organs involves and the only symptoms are fatigue and joints pain.

    Please help if you have experience plaquenil as treatment or someone else. I am afraid of side effects ( affects lung, kidney, bones , eye etc.) it help now but causes you trouble later on.

    I am going to see my rhumatologist tomorrow but I haven't decided yet if i am going to start the treatment.

    thanks

    • ANSWER:
      You do realize what lupus is right?

      Listen, I know you're scared. Anybody would be with that diagnosis. But the drugs are safe. The side-effects are minimal. Not taking the drugs and pretending that there is a natural cure is dangerous. You need to understand that the drug was prescribed because it was proven effective in the treatment of lupus. There are side-effects with any drug, even natural ones. What you need to do is weigh the potential benefits of taking the drug versus the potential consequences of side effects and of not taking the drug. Lupus is a highly treatable disease but there is no cure for it. The treatments are proven to be effective and safe as long as you follow the doctors orders.

  47. QUESTION:
    Symptoms for 7 months, no diagnosis. Excessive hair loss, muscle pain, swollen nodes.?
    Hello!

    I`m a 19 year old female who`s been experiencing a series of symptoms for the past 7 months that doctors have been unable to diagnose.

    Firstly, my hair has been falling out and as you can imagine, this has been very emotionally stressful. Since about 7 months ago, I`ve lost more then 75% of hair from all over my head. The hair loss is not patchy, but has been thinning all over. I used to have long, extremely thick and beautiful hair, and now its almost gone. The hair loss is not localized to my head as I've even noticed that the hair on my legs and in my pubic area have barely been growing back after shaving. I did see a dermatologist and he said that I must have an underlying autoiumme disease that's causing the hair loss. He suspects lupus or a related disease, but as of yet, blood tests have shown no irregularities.

    Since around the same time my hair has been falling out, Ive noticed that the lymph nodes in my neck have been swollen. Sometimes they are red and sensitive (especially after drinking alcohol or smoking) but usually they're painless. I've also been experiencing a lot of joint/muscle pain and stiffness. Some days it gets really bad and I can barely move, even typing/writing is difficult because the muscles in my hands are so stiff. I feel like every muscle and joint in my body is inflamed. I'm only 19 and I'm having as hard of a time moving around as my 55 year old mother with MS.

    Lastly, (and I'm not sure if this is related at all) my skin has been really dry and especially itchy. I'm not sure if I've noticed any rashes, but I have noticed some redness (light red spots) randomly on my skin.

    My family doctor did a thorough blood analysis and everything came back normal. There is no sign of vitamin deficiency, my thyriod was normal, no diabetes, my blood cell count was normal, kidney/liver function was normal, and I'm clean for STD's/STI's. I really don't know where to go from here and im terrified that if I don't find out whats wrong, I'm going to go bald.

    Does anyone know what these symptoms indicate? Any advice as to what I should get tested for/where I should go from here would be great.

    Thank you in advance for the help!

    • ANSWER:
      my endocrinolgist , said i had sluggish thyroid normal levels, my VIT D was dangerously low my vit b 12 was low i have hypo thyroid symptoms normal thyroid I HAVE goitors never knew it until i choked and had ENT do a nasal scope, so follow my advice my endocrinologist put me on synthyroid , 37.5 mcg works for me VIT D and VIt B 12 also AVOID wheat products you could be celiac syndrome try eatting oatmeal rice potatoes NO wheat pasta buy rice and corn pasta drink V* 8 splash change your diet

  48. QUESTION:
    What could all these strange symptoms be?
    Throughout the last 6-7 years of my life (I am currently 21) I've had numerous medical problems, all of which had "no explanation." My symptoms have included:
    Age 14-present: Severe hypertension (Average BP is approx 150/95), Severe tachycardia (resting HR approx 110-120), Severe chest pain, Elevation in white blood count with no signs of infection, Fevers with no infection, Massive hair loss, Cankers
    Age 17-present: Photosensitive (burning badly and easily), "Burning skin sensation", Extreme fatigue, Rashes on both hands
    Age 18: Unexplained paralysis of left side (no signs of stroke)
    Age 20-present: Butterfly rashes, Inability to keep food down, Partial seizures, Blackouts, Kidney Infections

    I also have a diagnosis of Schizoaffective Bipolar if that helps at all.

    My doctor has done an ANA blood test, but results results were negative. It's to my understanding that Lupus can be very hard to diagnose, but if it isn't Lupus, can all these problems possibly be something else? I am sick and tired of being sick and tired and I just want answers!

    • ANSWER:
      Food allergies

  49. QUESTION:
    Cause of knee,ankle and feet swelling with pain and stiffness?
    I have had blood tests taken and DO NOT have sugar,no kidney or heart problems and no rheumatoid arthritis,lupus or lyme disease.So what else is there that can be causing these symptoms?Left foot and ankle swells more than the right one.Swelling goes down at night after sleeping,but pain and stiffness when
    i get up.My knees are painful,too.

    • ANSWER:
      There is not one test for most of these conditions. Your doctor needs to go by your symptoms and blood tests. You need to find a doctor who will take you seriously. Take photos of all your swollen joints.

      Ignore the idiot who keeps posting about avoiding sugar.

      ...

  50. QUESTION:
    What are the risks of nephritis?
    One of my friends has been having trouble with what seems to be her kidneys for almost a year now. She's just gotten a biopsy, and is waiting on results.

    Her doctor believes she has nephritis, because she has every symptom associated with it.

    I'm clearly not an expert on the disease of nephritis, or Lupus nephritis, but can either be deadly?

    Because this has been going on so long, is there a high possibility of her needing to get either a transplant, or go on permanent dialysis, or could she even die from it at this stage?

    • ANSWER:
      The only thing I can answer is on lupus nephritis. Lupus does commonly affect the kidneys but these days treatments are very effective particularly if problems are detected quickly. 95% of patients with kidney problems respond to the treatments and don't go on to kidney failure.

      For more information on kidneys and lupus please visit www.lupus.org.uk and also see Charlie's story http://www.lupus.org.uk/information/information_lupuswhatsthatfilm.htm. Charlotte did have kidney failure and went on to have a very successful transplant. At the very end of the previous film to Charlie's (Aneal's story, the lupus specialist talks about kidney involvement in lupus).

      Hope that helps a bit.


Lupus And Kidneys

The kidney acts as a sift for blood, making urine and remove waste crop from the body.

It also helps control electrolyte levels that are significant for body purpose. Urine drains from the kidney into the bladder through a narrow tube called the ureter.

When the bladder fills and there is an urge to urinate, the bladder empty through the urethra, a much wider tube than the ureter.

Kidney stones are small, solid crystals that develop when salts or raw materials in urine become solid in the kidneys or uterus.

The solid masses may be too little as a grain of sand or as big as a lemon. Tiny crystals leave the body while urinating with no any pain or harm.

A kidney stone is a hard, crystalline mineral material formed inside the kidney or urinary tract. Kidney stones are a frequent cause of blood in the urine and often stern pain in the abdomen, flank, or groin.

Causes of Kidney Stones

Men are four times more probable to get kidney stones than women, and if you have previously had a kidney stone then you will have a 50 percent chance of mounting another one inside five years.

Most people have no predispose factors to explain why they develop kidney stones. You may have an increased risk of increasing kidney stones if you:

1. have a family the past of kidney stones
2. are aged between 20 and 50
3. are taking certain medicines - for example indinavir (in the treatment of HIV infection) and taking too many laxatives or taking them too often

Kidney Stone Symptoms

When the tubular arrangement is getting infertile, pains are generate in waves and body tries to unblock the barrier. These pain influence are called as colic.

1. Renal colic which is related to the kidney has a typical appearance when the kidney stone is passed.
2. The pain is powerful and come on fast.
3. It is usually located in the side or the flank of the mid back and emit to the groin.

Those who gets exaggerated can not find appropriate place and many twist in the pain.

Treatment of Kidney Stone

Your first diagnoses of kidney stones often occur when you see your doctor or go to an emergency room since you are in great pain.

Your doctor may propose that you wait for the stone to pass and take soreness medicine or have a process to remove the stone.

Most small stones [less than 5mm] move out of the body (pass) with no the need for any treatment other than taking pain medicine and eating enough fluids.

Home Remedies for Kidney Stone

1. Water! I be familiar with it sound too simple to be true but water has some astounding capability. And one out of the thousands is to logically flush your body of impurity. In most cases, kidney stones are caused by dehydration.

2. Citric Acid! This natural acid has been known to dissolve hard materials, as well as kidney stones. A great citric acid fruit to choose is a lemon. Tip: Add a lemon to your water when you get the option.

4. Drink a soft drink! What? If you drink at least 10 tall glasses of water per day and then escort it with a soft drink, you can in fact prevent the configuration of kidney stones. A recent study has established that phosphoric acid (in soft drinks) could dissolve and pass kidney stones in fewer than one day.

5. A water-soluble fiber flush! That is a lot of words to say that you might need to eat a diet in high fibers to flush your body of all as well as kidney stones. Water-soluble fibers contain most vegetable and fruits.

For more information please visit http://www.getallabout.com/natural-home-remedies/home-remedies-for-leg-pain.htm

Read more on Home Remedies for Leg Pain and Honeymoon Destinations

Frequently Asked Questions

  1. QUESTION:
    I am o positive and in need of a kidney. Lupus attacked my kidneys. I will be truly grateful.?
    I have been on dialysis for 2 years and I am on the waiting list. My doctor told me it could take years, so I am asking in faith that someone would want to help me.

    • ANSWER:
      Honestly if i was your blood type i would ,but i am A POSITIVE I won't foget you in my prayers....

  2. QUESTION:
    Can lupus affect both the kidneys and the brain simultaneously?
    Can the disease lupus affect both the kidneys and the brain in the same patient, at the same time?

    • ANSWER:

  3. QUESTION:
    How Long Can Someone Live With Lupus Nephritis?
    My best friend has Lupus Nephritis, (kidney lupus). And everyone else in her family who has had lupus has lived for up to 2-3 years with it. She was diagnosed in around 2006 or 2007 I think. Can someone who is well educated help me answer this question?Thank you. And just to let you know, I'm 13 and so is she, and she means the world to me so I'm just trying to figure this out. Thanks again.

    • ANSWER:
      If talking to her parents about her disease was not satisfying to her, then she can google search it and find out information. However when one looks up such information, it is 'generalized' and all cases are different, because there are other factors that affects the course of disease with each individual. I suggest she speak to her doctor and ask him to hold nothing back and tell her what the 'medical facts' are if she is so concerned. I, personally, put my faith in God. For only he knows how long we have. Knowing the facts of the disease isn't always good for some. Sometimes the medical opinions prevent those people to continue to hope. One has to know the 'whole' person to make such a decision (meaning, their feelings, thoughts, their attitude...their spirit.

  4. QUESTION:
    Lupus..kidney failure?
    My friend has lupus and her both kidneys have shut down. The doctors have put her on dialysis. Are there any chances that her kidneys will start working again? For how long, is she going to stay on dialysis?

    • ANSWER:
      There are 5 different World Health Organization classifications for lupus kidney disease. A kidney biopsy is required to determine which kind. It is impossible to know what will happen with your friend's kidneys without a lot more information. Lupus can and does affect every organ in the body. 53% of people with lupus have kidney disease. There is an excellent section on lupus and kidneys on the Lupus Foundation of America website www.lupus.org.

  5. QUESTION:
    Has anyone ever been treated for lupus and kidney problems?
    I was recently diagnosed with SLE Lupus, and was told that the lupus was attacking my kidneys, so my kidneys were spilling protein... They began me on cytoxan for my kidneys... has anyone else had a similar case but is being treated with something else. Everyone I have talked to has never heard of being treated with chemotherapy for my condition... makes me wonder...

    • ANSWER:
      Were your BUN and creatinine elevated? I am sure they were since they put you on Cytoxan. It is normal to be treated with chemo drugs for Lupus. It is usally not the first line of treatment, but depending on how severe your kidney damage is they may have decided to start you on it. I sent you an e-mail too.

  6. QUESTION:
    Is drinking organic coffee bad for people with lupus and kidney problems?

    Please explain why.

    • ANSWER:
      Interestingly enough, coffee isn't bad for people with Lupus nor with kidney problems. In fact, quite the opposite may be true. A new study seems to indicated that caffine may help stop MS from progressing. MS is another auto immune disease different from Lupus but an auto immune disease, none the less. While no direct studies have been done to date on the possibilities of caffine as a treatment for Lupus I wouldn't rule it out. In any case, coffee isn't anything that someone with Lupus should avoid. Since coffee is a diuretic, it can actually help people with Kidney issues as well.

  7. QUESTION:
    I have lupus (nephritis-kidney), is there any harm eating beets? Will they affect me or help me?
    Any tips on aching joints? I also, have raynaud's syndrome (hands) and my hands are constantly stiff and cold. Very hot water helps out during showers. Taking Motrin, but I don't want to make it into a habit.
    *******Serious answers plz*******
    Thx so much!!

    • ANSWER:
      The only reason you would have diet restrictions is if you were taking coumadin for APS(antiphospholipid syndrome), a secondary disease commonly found in people with Lupus. In this case you're supposed to watch your vitamin K intake as it can affect the coumadin dosing. As far as Lupus Nephritis goes, usually your nephrologist will tell you to moderate your intake of protein as this is what your kidneys are 'spillling' when your kidney's are acting up. Protein in the urine is not a good thing. There are mixed studies regarding this however, with some doctors feeling that your diet really has no effect. If you're taking prednisone then you should be watching your sugar (carb) and salt intake as prednisone can cause you to become diabetic as well as cause bloating which is increased with a high salt diet.

      As far as your stiff joints go, be careful with the motrin as it can cause stomach issues. I would look to take something like Norco, basically vicodin with a small amount of tylenol. This is a narcotic so you'll want to guard against addiction however this can really knock the immediate pain out allowing you to do other activities that may help to decrease your pain level.

      As far as non medication route, try warm jacuzzi soaks (if you don't have one, check your local health club where you may be able to use one). Also yoga can help with flexibility which can assist the joints. Unfortunately, there is no cure for sore and aching joints as this is a symptom of your Lupus. If they get really bad you may need to start taking or up your dosage of prednisone which will help the arthritic pain.

      Be careful with your Raynauld's as left unchecked this can cause necrosis. If you notice that it is becoming unbearable then you may want to take a vasodialator, a heart medication which helps to keep the capilaries in your fingertips open (the reason that you're feeling pain with the cold).

      I wish you the best!

  8. QUESTION:
    lupus,kidney dialysis and traveling?
    my aunt has lupus disease and now shes having kidney failure and is currently on kidney dialysis every other day. she is living in another country and we are trying to get her to move here to live with us. does anyone now what type of traveling arrangements should we make.. we know what current medications shes on and we have all her medical records. theres a major hospital 15 minutes away from our house and a dialysis center thats right next to it. the traveling arrangements is the problem.. has anyone been through this that could help me? or even if they havent been through this atleast if they have some idea what we could do..

    • ANSWER:
      She should fly. Have a treatment the day before she is schedule to come in and then have a treatment set up for the day after she arrives so that she doesn't miss any treatments. Does your aunt have insurance that will be in effect once she arrives (I'm sorry I'm assuming that you're in the United States and she's coming in from elsewhere...this may not be the case). In any event, I would have her medical file copied and sent to the doctor and treatment center that you have lined up in your area for her. They'll need all the info to properly treat her.

      She will have no problem flying due to her dialysis. She may be uncomfortable due to the Lupus and her joints becoming stiff. Also, make sure the airline is aware of her medical issues and any special diet she may have. They'll be more than accomodating.

      Good Luck to you and your family!

  9. QUESTION:
    lupus, kidney disease, anemia, diabetes?
    I recently had bloodwork done as well as a urine sample.
    I gained about 25 pounds last year in a short period of time.
    I have been very tired as well, for most of the year.
    I took depoprvera and ended up having bloodclots for 6 months (not very fun if that was my first six months of marriage)
    And have been miserable since....

    My mother has lupus, but in our family it seems to skip generations.

    things that were 'out of range' were:

    platelet count: 431 (when it should be between 150-400.)
    urine: cloudy.
    urine protein: >0.15 (when it should be <0.15.)
    urine keytones: >1.5 (when it should be <1.5)
    ferritin: 14 (normal range is 15-180)

    Anyone know anything about any of this?

    Please let me know, thanks so much!
    I am going to add symptoms like: night sweats, always itchy, want to pass out after lunch, go pee in the middle of the night, veeeeery tired all the time, no energy, always hungry but nothing appeals, blood clotty periods, cold feet.

    Might I also add that I have been on anti-depressants (zoloft) for about two years, (I have very unstable emotions).

    5'0
    130lbs
    20.5yrs

    Scottish, English, Irish, Norweigian, Hawaiian, Indian (like canadian aboriginal), Italian and Flemmish.
    Also, I might add I was diagnosed with anemia in grade 2. My mother said when I was 11, when I got my first period, she took me in for a blood test, and they said I was anemic then too.

    And also, when I was 16, I had a kidneystone. I never found out why, or what kind it was though...

    • ANSWER:
      The normal range for platelet counts differs from lab to lab, and many labs use 150-450. Moreover, slightly high platelets are of no consequence. So, no need to worry about your platelets.

      Ferritin that low usually indicates low iron levels in the body, which can lead to iron-deficiency anemia. (Was your hemoglobin normal?) Due to menstrual blood loss, young women are particularly likely to have low iron levels. You can increase your iron levels by taking supplements/vitamins, or naturally through high-iron foods.

      Cloudy urine can mean many different things -- one of which is small amounts of blood in the urine, which is a sign of kidney disease. Does your test report say whether your urine was positive or negative for blood?

      High urine protein is also a sign of kidney disease, but can go up temporarily after rigorous exercise or during a bladder infection. You should have your urine test repeated to make sure the urine protein returns to normal.

      Having ketones in the urine is also abnormal. While it can occasionally happen during starvation (if you fasted for a long time), it can also be a sign of diabetes mellitus ("sugar diabetes"). What does your test report say about sugar in the urine? More importantly, what was your blood sugar?

      With your recent weight gain, urine protein and urine ketones, you should definitely be screened for diabetes. If your recent blood tests didn't include fasting blood sugars (glucose), ask your doctor to have that done.

      Finally, lupus can be extremely hard to diagnose, especially in the early stages. None of the tests you gave above is a good test for lupus (although having a low ferritin and normal/high platelets make active lupus less likely), so if you are really worried, talk to your doctor to have a blood test called ANA (anti-nuclear antibodies) done.

      Good luck!

  10. QUESTION:
    I can't have children yet because I have lupus and kidney failure. What does it feel like to be pregnant ?

    • ANSWER:
      It is a very personal experience for each woman...
      it's wonderful to feel a new life growing in your body...
      it feels like butterflies in your stomach...& it can hurt a little when your baby kicks you...
      You feel your body get stretched. During the 3rd trimester, it will be difficult to lie on your back...& you will need to sleep on your side...because the baby is crushing your organs...
      but you take this all in stride...
      it doesn't happen all @ once...
      It is an amazing journey...
      Some women feel nausea during different times of the pregnancy...especially in the first trimester....when your body is adjusting to the surge of hormones....
      Even-though childbirth is quite painful, women usually don't remember too much....once you see your baby being born & hold the child in your arms...& start nursing....
      I spent a week in the hospital when I had my son...
      I could tell you a story...

  11. QUESTION:
    Have any moms had an Abo Incompatibility with their baby? If so has it affected your health?
    ive been tested for everything under the sun (lupus, kidney disease, cancer, etc etc) and I am still suffering with no diagnosis. I have many symptoms (low wbc 3.0, fingernail color changes, fatigue, burning throughout body) If anyone has gone through this, please share your stories.

    • ANSWER:

  12. QUESTION:
    what types of foods are approprite to eat if one has lupus and kidney failure?

    • ANSWER:
      Animal protein is hard on the kidneys.
      Lupus people should limit fats to the good kinds (plant based) and not get too many calories from fat.

      Outside of that, a healthy balanced died is all you need to follow.

      It's wise to eat 5 fruits or vegetables per day.
      Avoid processed food if possible.
      Get plenty of fiber.

  13. QUESTION:
    What is Systemic Lupus, specifically related to the kidneys, and what are the long term effects of it?

    • ANSWER:
      Systemic Lupus Erthematosis;Another member of collagen disease characterised by 1-widespread lesions in the skin in the form of butterfly patch of erythema involving the nos & cheeks 2- lesions in the kidney [wire loop glomerulosclerosis]3- atypical verrucous vegetations on the valves of the heart 4- enlargement of the spleen & lymph nodes.The vascular lesions take the form of fibrinoid necrosis of the media & perivascular fibrosis in the form of concentric rings of collagen fibers [onion skin appearance]

  14. QUESTION:
    Can someone with Lupus and Antiphospholipid syndrome whose kidneys start failing, go from 37% to49 w/o dialysi
    This is on my sister and she is always taking off work lately and
    finally told me about her kidneys failing, she said she was at 37%, then got it back up to 49%, I want to know if she is telling
    me the truth, she says the doctors say she is ok at 49%, I want
    to know if she is taking dyalysis and doesnt want me to know
    I know about a month ago she said she was going in for a hysterectomy, but did not want anyone from the family coming
    to the hospital, did she have a shunt put in for dyalisis. She has had Lupus for 23 years and always keeps a lot of secrets
    from me. I am a recovering Meth addict and I think she thinks if I find out she is dying that I will relapse, also she has SLE the worst kind of lupus you can have and over the years she has lost 5 babies, she has gottten rheumatoid arthritis,and she breaks out recently with some terrible rashes ! please help me
    undertand whats going on. My sister is only 47 years old ! Help

    • ANSWER:
      Kidney failure is a tricky thing to intrepret... The percentages you are quoting sound like glomerular filtration rates (GFR), which are dependent on serum creatinine, age and sex. The serum creatinine is a tricky thing in itself in that it is very sensitive to many things - the most common being hydration status. That is because most blood tests are a fraction (e.g., what you are looking for/volume).

      If you are are dehydrated, it will make your creatinine rise and your GFR decrease.

      Kidneys are wonderful organs. One's GFR has to be between 10-15% before dialysis is usually considered. Unfortunatley SLE and Antiphospholipid are rough on the kidneys and usually progressive. However, most people die WITH kidney failure, not OF kidney failure

  15. QUESTION:
    Does anyone know how to care for a dog with Skin discoid lupus?
    I have a dog, name CiCi who was diagnosted with Sking discoid lupus, her liver and kidneys are doing good.. Has anyone ever had this condition and what did they use to control it? Right now she has it on her nose and is on cordasteroids till it heals.

    • ANSWER:
      Sorry to hear that. The vet thought my GSD had it, but turned out to be allergies.

      www.azmira.com Under products, and topicals "Rejuva Spray." This might be helpful in the event of future breakouts, also Vitamin E can help control the disease, any dog should have added vitamin E to their diet everyday. This is a REALLY good site, I use a lot of products from Azmira. Vitamin C may help as well, considering it is an anti-everything bacteria and viral.

  16. QUESTION:
    my sis has lupus and kidney failure. ?
    the docs started her on chemo pills today cuz her kidneys r @ 50% function. none of tthis makes sence to me. ive looked it up but i still dont understand. can someone please help me understand

    • ANSWER:
      i think the chemo pills are to lower ur sis immune system.
      which will reduce the damage to the kidneys.
      (lupus is an autoimmune disease where the body makes antibody to its own tissues. so i am thinking that lupus is causing the damage to the kidneys, therefore when u weaken the immune system, less antibodies will be produced, less attack on kidneys

  17. QUESTION:
    if you have lupus and it attacked kidneys can?
    lupus attack other organs in the future

    • ANSWER:
      Lupus is an autoimmune multisystematic disease.This means that it can attack many organs in the body.It can affect the skin,most of the body's joints,the heart and the lungs,the liver,the kidneys,the blood and the bone marrow and also the central nervous system.

      Of course this doesn't mean that a patient with lupus will develop all these problems.Many people only have arthritis and joint pain combined with a light-sensitive rash.Some others develop nephritis(kidney inflammation) which can be very severe.

      With modern drugs recession can be achieved,but follow-up must be thorough because lupus can come back unexpectedly.

  18. QUESTION:
    will my mother die? She will lose two kidneys and she has lupus....?
    My mother was just diagnosed with lupus less than a month ago, she has been admitted to the hospital. The doctor stated she is having blood pressure issues as well as blood clotting issues. She was told today that she will loose both her kidneys. Will she survive if so how long?

    • ANSWER:
      I don't know where she is located but at Wake Forest Hospital, located in winston Salem, NC they have a tissue regeneration center where they are able to draw a person's blood and make up to 22 different kinds of organs. This process takes approximately 8 weeks to do. I have a son who was born with a congenital kidney birth defect and this was recommended to us. You should look into it for your mother to see if she is a candidate.

      The very best of luck to your mother and you.

  19. QUESTION:
    Stem Cell Therapy for Lupus and Kidney Failure... I need leads, please?
    Hello, I'm a 30 year old who has Lupus and kidney failure (I'm on dialysis) and would like to know if there is a doctor in another country who has cured Lupus or regenerated kidney tissue. Any help would be appreciated cos I don't even know where to start, as this sort of thing isn't commonplace in America. I'm willing to travel so if it's Sao Paulo or Germany, I'm willing to go. Where can I go for Stem Cell therapy?

    • ANSWER:
      I am waiting for my call to the Mayo Clinic in Rochester Minnisota for Stem Cell harvesting and in plant.. they are one of the biggest stem cell implant hospitals in the world.. Go to mayoclinic.com and you can get right to the root of your problem... do it ASAP... Good luck and God bless Grant M in Pennsylvania

  20. QUESTION:
    i filed bankruptcy now i been diagnosed with lupus i cant work wife working any asst. or help for me? texas?
    bankruptcy was hard but i got over that lots of restrictions i have to follow, the lupus is causing kidney failure, sleepyness, i have had back surgery, and stomach surgery im 29 . i love my famiy and hate to see them suffer because im broken down there has to be some type of help for people like me that have just been delt a bad hand of cards.

    • ANSWER:
      1. Check with social security to see if you have enough quarters to possibly qualify for social security disability
      2. If you have enough quarters, have a consultation with a social security attorney BEFORE you file a single paper. You can't put the toothpaste back in the tube if you say something wrong on the papers.
      3. If you do not have dependent children it is not likely that you will get cash assistance from the government. You can try.
      4. Call your state food stamp office. You may qualify.
      5. Call your county social services to see if they have medical assistance for the uninsured if that is your condition
      6. Apply for help with meds through www.pparx.org or www.needymeds.com
      7. Apply for copay assistance at www.copays.org
      8. Call 211 and ask the United Way operator who answers what kind of assistance is available
      9. Call you local Catholic church and ask for the St. Vincent de Paul Society (NOT CATHOLIC CHARITIES!!!), They can usually help in the short term and will know about other resources.
      10. Call and/or write your congressional representative and Senators asking them to support the Lupus REACH amendments so maybe we can find a cure
      1

  21. QUESTION:
    Does medicaid cover removing mercury fillings and replacing them?
    If not, are there any supplements or anything I can do in the meantime to reduce the toxicity in my body until I can afford to remove them? I have systemic lupus and kidney disease and am wondering if I can get this procedure (9 mercury fillings put in 2 years ago!) covered.
    Thanks, Holly G. Why don't you try having an incurable illness sometime.

    • ANSWER:
      most likely they are not covered unless there is a leak which means it is neccessary to replace them. the dentist needs to do an examination and you need to have x rays done to make sure. I dont know about any medication that youcan take. Sorry.

  22. QUESTION:
    Feeling of constant urination and numbness with out urinating in Lupus patient?
    I know someone who has lupus with internal damage to kidneys and tissue around lungs. He's 47 yr's old. He was already checked for any kinds of infection and came up negitive. He has knumbness in his private and feeling of having to pee all the time or feeling like he is peeing but nothing coming out. Can someone give me some opinions on what this could be. It would be much appreciated..thanks

    • ANSWER:

  23. QUESTION:
    Can anyone tell me what I might be up against here ?I found out that I have LUPUS. One Kidney works 24% .?
    I go out and get pimple looking spots on nose,cheeck,ankles.Right upper arm hurts like someone twisted it hard, left elbow hurts when bend it ,right hip hurts, eat bbq and get sore on top of mouth,back hurts ,and bottom of feet . need help

    • ANSWER:
      50% of people with lupus have kidney involvement. The only way to find out how serious it is, is to do a 24 hour urine test for protein excretion along with creatine clearance in the blood. If the numbers are far enough out of whack, you will need a kidney biopsy to find out which kind of lupus nephropathy it is. That determines the treatment. A kidney biopsy is not as bad as you think. Many of us have had them. Email me if you want to know more.

      The rash and lesions mean that you have cutaneous as well as systemic lupus. Stay out of the sun PERIOD. Avoid things that irritate your mouth. Talk to your doctor about your symptoms. Do your best to reduce stress-it makes lupus worse. 95% of lupus patients experience joint pain.

      Learn more at the link below.

  24. QUESTION:
    Can't afford to get mercury fillings removed- are there supplements in the meantime to guard against toxicity?
    In addition, I have lupus and kidney disease. Thanks.

    • ANSWER:
      This might seem like a strange answer, but if it at all possible drink water that's not fluorinated.
      The biggest problem with mercury fillings in that they react with fluoride to form a metal complex which is extremely toxic (and leeched out of the fillings).
      Additionally, Fluoride often taxes the kidneys, to the point that dialysis machines (used when complete kidney failure happens) use reverse osmosis filtered water specifically to take fluoride out of water (and the kidney association has come out saying fluroide trashes the kidneys).
      I know fluoride sometimes causes lupus, but that part isn't as strongly shown/proven. The main thing which causes lupus is aspartame, you might want to look into your diet and see if that's anywhere.
      Also by any chance have you been suffering from thyroid problems?

      Anyhow, other than fluoride removal, most of the treatments I know of for mercury detox are somewhat of a pain.
      They include;
      Don't eat food with mercury (ie. fish up in the food chain)
      Use chelating agents (ie. edta, chlorella), which is a pain because other than chlorella, every single one basically needs a doctor to help you (which starts to add up cost wise).

      Hope that helps. Ideally you want the fillings out, but I understand the limitations you have, so hopefully that works.
      If you'd like any more info on fluoride (ie. a copy of an excellent book written on it) I'd be happy to send you it if you give me your email!

  25. QUESTION:
    Is there any insurance my sister can get she just turned 19 and her medicaid was cancelled.?
    We live in Atlanta, GA. My sister just turned 19 and her medicaid was canceled, im trying to see if there's any coverage or medicaid she can apply for. She has Lupus and kidney malfunction due to her lupus her treatments and medications are to expensive for us and were really struggling with the bills and trying to pay for her treatments. Any help or information will be greatly appreciated! Thank You.

    • ANSWER:
      All individual policies will decline to accept her. GA does have a Medically Needy Medicaid program; contact her caseworker for more information. Also, the Pre-existing Conditions Insurance Plan will accept her but she'll need to be without insurance coverage for 6 months. You can get more information concerning the GA plan here: http://www.yourhealthplanadvisor.com/PCIP.html

      EDIT to Stephen: You do not need a denial anymore, as of July 1, 2011. All you need is a signed statement by a doctor or an insurance agent stating you have a pre-existing condition.

  26. QUESTION:
    Is it true that most people parasites and toxic gunk in their bodies?
    A woman I know recently told me about a detoxification program she went through when she had graves disease and all the disgusting things that came out of her body...I have lupus and kidney disease and would like to do a detox but I'm not sure what kind of program I need to go on....your thoughts?
    typo: is it true that most people HAVE parasites....etc.

    • ANSWER:
      I believe that a detox can help.

      I'm actually on one right now to get all the excess synthetic hormones (from birth control stopped 5 months ago), toxins, and built up colon matter.

      BTW, to the 2 posters who are asking what "toxins" are... There are so many, that natural health companies probably can't list them all, and there's that small problem of the government and Big Pharma controlling what they put on their labels. They can't claim it helps anything, as no one besides the natural health company makes any profit from it, and Big Pharma can't patent it. Toxins include pesticides, air pollution breathed, and any other synthetic particles that aren't supposed to be in your system. As well, most people do not have normal bowel movements, especially people with constipation. Most of your body's toxins are released from your body through the colon (through feces). When you're constipated, it allow toxins in the feces to be reabsorbed into your bloodstream, as your bowels aren't moving as fast.

      Most skeptics have never experienced a cleanse before. Only 2 weeks into my cleanse, I already feel a difference. The only difference that I can notice right now is my libido change (sorry for the personal info, but it has to be explained). I used to have perfectly fine sexual health, until I started birth control pills 4 years ago. After going through 5 brands of birth control pills, having: no libido, migraines, severe GAD (caused by the BCP's), and the onset of menopause (also the cause of BCP, I'm in my early 20's, the 'menopause' symptoms stopped when I stopped the pills). Even after stopping my birth control, I didn't find any change in my sexual health/libido. Only now, taking my cleanse, I'm finally noticing a BIG difference!

      As for which detox you want to take, anything that cleanses the kidneys I guess, which is almost all of them.
      The cleanse I'm taking right now is called Cleanse Smart by Renew Life. It cleanses the 7 channels of elimination: lungs, blood, liver, kidneys, colon, skin, and lymphatic system.
      Another cleanse that is really popular is Colonix.

      Hope this helps!
      Good luck with your cleanse.

  27. QUESTION:
    Any good recipes for someone with a really bad appetite due to illness?
    Hi, I’ve got lupus and kidney disease and as a result a REALLY bad appetite and often have stomaches. Sometimes I don’t eat for most of the day, everything seems so unappealing. I’m also hypoglycemic so I need a fair amount of animal protein in my diet in order to function.

    Any suggestions or recipes for a healthy fairy simple LOW SODIUM and easily digestible diet (I’ve just discovered congee) like soups, stews, porridges that include chicken, beef and fish (veggies welcome too)? Anything other type of dishes are fine too.

    Also how do you make chicken and beef really tender and yummy? My diet must be tasty otherwise I just won’t eat! I plan on going to grow an herb garden (basil, oregano, mint, cilantro, etc.) I hear using the crockpot is simple and really brings out the flavor in food. Any suggestions are very much appreciated!

    DIETARY RESTRICTIONS: eggs, dairy (unless a recipe calls for just a little dairy), white rice/flour/pasta/bread. I’m allowed some but not a whole lot of tomatoes, eggplants and potatoes. I can use some cheese, such as parmesan, as flavoring. I also cannot digest beans, legumes, nuts and seeds. Thank you again!

    • ANSWER:
      Well, this isn't a food recipe but it is really good for your body and it helps to give you a boost. I drink it every morning. It is pretty much water, but with some other properties that are very nutritious.
      Its called sassy water and it has lemon, ginger, cucumber & spearmint.

  28. QUESTION:
    Why does my mom embrace her illnesses????
    It seems that she needs, she wants to remain sick!
    She has lupus and sjogrens which I know are hard and difficult to deal with. I know! i suffer from severe dry eyes and chronic fatigue too but i try my best! my mom noooo she adopted her illnesses as a new member of the family, we need to talk about this eveyrday! She then says "its better to be prepared to die, because u know im dying right?" She has a mild case of lupus and sjogrens can be easily helped with the same gel that i use..she refuses to use it just to be able to complain abt it!
    Every single one of her talks are abt lupus, kidneys, doctors etc! people avoid her! She claims that she has seizures at night (when doctors found nothing) and that she is losing all he rmemory! when she drives she pretends to get lost on the street she drobe by miuntes before! when her stomach hurts she goes to bed and begs for an ambulance and we did call an ambulance once and they found nothing wrong! they thought it was something on the intest
    intestines and she forced us to help her pay for a super expensive thing that revealed that nothing was wrong with her! but she talked about for 5 months and claimed that it had been a miracle of God! I love my mom with all my heart but why? she even cried when we went to disney and she got in a kids ride! she was crying her eyes out..saying "oh im more fragile than u dont blame me, i get seizures!" oh my!!!!! hh#$##$$!! why? We give her lots and lots and lots of atention and yet she is the same! she even wants to be disabled becvause her brain cant function and her legs are weak..she says. why? what can i do????

    • ANSWER:
      I don't know why but it is possible that your mom has some psychological problems. Maybe suggest that she seek counselling to deal with her pain/medical problems and then the therapist can more deeply explore her need to be sick. Another possibility is that she is scared and talks about death and her disease because it helps to ease her pain. Maybe rather than letting her approach the subject you could ask her how she's doing with specific questions like, how are your legs feeling today, i know they were a bit shaky yesterday? She will tell you and then you can end the conversation. That way she knows you are listening and also knows that you care. Try it and see if it works.

  29. QUESTION:
    I have lupus and something is still not right? What could be wrong?
    hey. so i have lupus, and im on certain medications for it. Lately i've been getting these really bad pains underneath my ribs and even what feels like my ribs hurt. about 2 weeks ago i had severely bad pains there and when i got up to take something, i got extremely dizzy and i passed out. i felt better after that, but about an hour later they got worst and then i ended up spending the day in the emergency room. the doctors said that i had lost a lot of weight and thought i was like annorexic (which im not) and they said it was like indigestion. i wasn't convinced and neither was my mom. so i stopped taking the medication they gave me for heart burn and it seems i haven't received that pain again. except for the pain around my kidney area, which isn't constant. i get dizzy sometimes, and the doctors said i had some white blood cells in my urine, which is blood when they took a test. But they checked my kidneys very briefly and said they were fine. Could this possibly mean i have kidney problems? i know lupus can cause kidney damage, but is that what it is? Should i be concerned? help!!!
    I've been having pain around my ribs where it kind of feels like they hurt but it's sort of beyond them. I'm tired a lot as well. Any ideas?

    • ANSWER:
      Of course you should be concerned.

      Immunosuppressive medications used by rheumatologists for autoimmune diseases are fraught with danger. That is the reason these drugs are used only by rheumatologists and not by internists, family physicians, or other medical specialists. Rheumatology is a medical specialty developed to prescribe and monitor the side effects of these high-risk medications.

      Doctors know the dangers of these drugs, and patients are supposed to be informed about them. Patients choose conventional medical care because they wrongly assume there is no other approach. The rationale for doctors is that we can’t have a person suffering with pain while their joints and internal organs are being destroyed by autoimmune illnesses. Patients and their doctors evidently believe the increased likelihood of cancer [400%] and a premature death from immuno-suppressive drugs is worth the risk. Unfortunately, patients are not informed of the nutritional options.

      .........................................................
      [testimonial]
      After hearing about Dr. Fuhrman, I took the train to New Jersey to meet him. He convinced me to take steps to regain my health. I decided to adopt a healthier diet and to do some fasting. Soon I felt like a teenager again. My face was cool and white for the first time in years, my joints felt great, and I had lots of energy. I lost a little weight and looked great. I went back to see my rheumatologist, who was on staff at a teaching hospital. I thought he’d be interested in my recovery. But when I started to tell him about my experience and my newfound health, he practically walked out of the room. He was not the least bit interested in hearing the details of my recovery, and he simply wrote “spontaneous recovery”on my chart. Nine years later, I remain symptom-free,and lupus is no longer part of my life. I play tennis and compete on a local team. No one who knows me today would ever guess that I used to be in such pain I couldn’t even shake someone’s hand.
      .....................................................
      The above is a partial quote from one of Dr. Fuhrman's newletters, available to subscribers only.

      I suggest reading Dr. Joel Fuhrman's books which of course are available everywhere. Or visit his website.

  30. QUESTION:
    What steps can I take to help relieve a Lupus patient?
    My girlfriend has Lupus. And when ever we go out together, sometimes her kidneys hurt really bad. And I panic because I don't know how to assist her because I am not a doctor. But What can I do, in the meantime to help relieve her pain? I can't stand watching her to be in such pain. I feel helpless at times like this.

    • ANSWER:
      My sister had lupus symptoms and she changed her diet to a vegan one. Within a year she got completely better.

      Tai Chi also does wonders, as my sister did this and it helped with overall relaxation and blood flow throughout the body.

  31. QUESTION:
    why would a doctor ask you to fast before a kidney ultrasound?
    I only have one kidney and lupus and my doctor is just seeing how my kidney is doing because i have had increasing numbers of protine in my urine, but why would I need to fast??

    • ANSWER:
      well i havent been asked to fast before..

      but it would be so you dont have a load of food lest in your intestines,, because that covers part of the ureta on the scan :)

  32. QUESTION:
    Mystery diagnosis..............?
    I have a friend that has been in the hospital at least forty five times in the past five years. This person is in their late twenties and relatively fit. This person always says "I think I have m.s., diabetes, migraines, lupus, kidney disease, cancer, colitous and numerous other various diseases but there is never a diagnosis and the illnesses are always vague. We quit following up on the illnesses because they are always vaguely dismissed. One minute this person will be visiting with friends having a great time (never mentioning not feeling well ) an hour later this person will be in the hospital and we are all dumbfounded. This person's family will go on vacations while this person is in the hospital. There is not a detox unit or mental health ward at the hospital this person goes to. Should we be worried??

    • ANSWER:
      It's possible that she has a mental illness, but sometimes when you have an obscure diagnosis, it's very very difficult to find out what is wrong.

      I, too, have watched Mystery Diagnosis and feel a great deal of empathy towards the people on the show. I am a healthcare provider and so I understand.

      On the other hand, it's true that there are many people out there with a mental illness.

      Does your friend seem to have consistent symptoms--or do her symptoms change? Is it possible that she is abusing drugs or alcohol?

      I'd recommend that you just be a good listener--but a discerning listener.

  33. QUESTION:
    My ESR test result is 39 and my ankles are swollen; what's the problem?
    One day the inside (kind of toward the front) of my right ankle hurt a little, and within a few days the entire ankle was swollen and painful. Not too bad, though; I could still get around. About a week later, my other ankle started to hurt in the same place, and it had swelled up, too, in a few days. About a week and a half after my right ankle started to hurt, both ankles ballooned and I had to crawl around for an hour after I got out of bed because it hurt too much to stand. I went to a walk-in clinic, and they did a blood test and gave me Ibuprofen. That was 5 days ago, and the pain is gone and the swelling is almost completely gone. The nurse practitioner I saw called me, though, to tell me that my ESR result was 39. I've looked at possible conditions that could be indicated by a slightly elevated ESR rate, but I just don't know which ones correlate with swollen ankles. Lupus? Kidney disease? Please say no... By the way, I'm 31 years old.

    • ANSWER:
      Erythrocyte sedimentation rate is a non specific test. it can not be used to diagnose anything. the ESR is performed by placing your blood in a meter and wait 1 hour to see how much the formed elements settle (move down). The test is done to monitor inflammation and some cancers. Like i said this test does not tell us much except that your ESR is a little high so additional test will be done. as for swelling ankles, there are so many causes to list. the most common cause to my knowledge is kidney disease. kidney disease begins at any age. glomularnephritis is common in people 20 to 30 yrs of age. More test will be done to see if you have problems.

  34. QUESTION:
    Where i can ask for help? ?
    i'm financially drain.. i want som ehelp for my sisters medicine.. Oh mY... how? where? she's having a lupus.. kidney disease.. dont tell me about gov of phil.. they cant help alot.. and also hospital in philippines... they cant also help alot.. My sister is undergoing peritoneal dialysis.. is anyone outder.. that can help us??

    P.S. she's 15..
    actually.. NKTI gave us discounts.. but still we cant cope up with th expenses.. my sister is having 6 dialysis per day.. it cost about 1 400 pesos plus alot of oral medicines.. and injectibles which cost.. 1500 pesos each..

    • ANSWER:
      For information on getting help, try contacting:

      National Kidney & Transplant Institute
      East Avenue, Diliman
      Quezon City 1100
      Philippines

      NKTI Numbers

      Phone:

      (63) (2) 924-3601 to 19

      Fax: (63) (2) 922-5608 / (63) (2) 928-0355 (PRO)

      Email Address: pro@nkti.gov.ph

  35. QUESTION:
    What are all of the side effects of hashimoto's disease?
    I'm told that it can cause kidney failure, lupus, RA and more. I'm told that it can cause sponutaneous abortions (miscarriages) etc...I have looked on the internet but it's not really saying much about the harsh effects of it. Are there certain foods that make it worse, can you exercise to help relieve the muscle/joint pains...what can you do for that?

    • ANSWER:
      I was diagnosed with Hashimoto's disease. I am a 25 year old male, and usually this occurs in middle aged women, so I don't know how I got it except that it runs in my family. Hashimoto's disease is an autoimmune disease that occurs in the thyroid gland. Over time, it destroys good thyroid cells so that your thyroid becomes underactive, so everything that comes along with an underactive thyroid you could start to experience. I have not heard of the long term ramifications, however, I know that you should get treated and take thyroid medicine once you become underactive. I make visits to see the Endocrinologist once every 6 months or year to monitor my thyroid.

  36. QUESTION:
    How likely is someone to die from lupus?
    My dad has had lupus for 2-3 years now. So far, it has affected his muscles, joints, and caused him to be tired, sensitive to sunlight, and has affected his kidneys. Because it has affected one organ, would it most likely affect others?

    Does anyone know of statistics for the death rate of this disease?

    Also any general or treatment info would be great.

    Or if you have Lupus.. It would be great to read your story.

    Thanks,
    Ashley

    • ANSWER:
      Sever lupus can be life threatening.

      Healthy helpful steps to prevent lupus flares include:

      * maintain a healthy diet
      * get enough rest and quiet
      * pay attention to your body
      * moderately exercise when possible
      * limit the time you spend in the sun
      * develop coping skills to help limit stress
      * learn to recognize when a flare is coming
      * slow down or stop before you get too tired
      * learn to pace yourself by spreading out work and other activities

  37. QUESTION:
    I have severe Lupus SLE and Kidney disease, is there any programs that will dissolve my student loans?
    I was a teacher for eight years until I got sick with stage 2 of 4 kidney disease from my Lupus SLE. I had to leave that job that I loved because of so many reasons. Well I decided after my symptoms got under control some that I would find another profession that would allow me to help children. So for two years I have been earning a Masters in professional counseling, God willing I will graduate this fall. However I have debt still from my fist degree and now the masters. All I want to do is help children but with the degree I will have I will not be making much. Most of my money will go to health up keep. I don' even have a car or house anymore. I gave up my care and now share an apt with a roommate. My symptoms are worse at times and better others. However I am in so much debt with student loans I don't know what to do. If anyone has any ideas, or experience with this please let me know. It is hard I was a good student both times and will graduate in the fall with honors and a bill that I can not pay.
    For those who said I should have thought about this before I went into debt. I thought I was going to always be a teacher. Do you know what I got when I got sick, was so sorry, we have to take your health insurance because you have a preexisting disease. I used my money to help get my student what they needed and in return I was told I was an excellent teacher, but now that you have a chronic illness so sorry..... It so easy to tel some one to go get a job, or why did you do something when you are not in the situation. Kidney disease is not fun or easy. I have worked my whole life. Think before you speak, because it could be you who could be loosing everything, life does not recognize last names, race,or gender.

    • ANSWER:
      My sister has cerebral palsy and she attended college on and off for about 20 years( I guess she was bored). In that time she racked up about ,000 worth of school debt and was unable to pay it. She called her loan companies (the people who funded her tuition) and explained to them her situation and the sent her some papers to fill out, it think it's called a Permanent Disability Waiver. Her doctor also had to verify that she was disabled, so they have forgiven about ,000 of the debt but the only catch is that she is not supposed to work for the next 2 or 5 years (not sure). If she starts even a part-time job she will have to pay the money back. I pray this helps you and good luck, and get well!

  38. QUESTION:
    My mother has LUPUS what is the best Corticosteroid with the least side effects?
    My mother has lupus and was told she has lost one kidney and may lose another, the doctor suggested Corticosteroids. She is afraid the side effects are too severe. She's thinking of just forgetting about taking corticosteroids and starting dialysis, is this a good decision? And if not what are the best corticosteroids with the least side effects.

    • ANSWER:
      No, that is a very bad decision. The reason people with lupus die is because they don't follow their doctors advice. I have had moderate lupus for 6 years and been on pretty high doses of prednisone for the whole time. There are some side effects: thinning bones and weight gain and memory impairment. The bone loss can be prevented with Fosamax, and the weight gain can be controlled through diet and exercise. Dialysis three times a week is horrible. I've seen people on dialysis, and personally, i would rather die than go on dialysis. Dialysis will only buy her time until a kidney transplant, but if she is not following her doctors advise and not treating her lupus properly, there is no point in having a transplant.

  39. QUESTION:
    how can i start a fundraiser ?
    my mother has lupus and kidney failure. and i want to raise money to help the lupus foundation. however i cannot get money from others because they simply don't care. is there a way i can start a fundraiser that will actually raise money and have people look ? oh and btw i'm only a teenager. so not very many heads toward me

    • ANSWER:
      Im really sorry for you hunnie :( Well me and my sister and our close friends sold icy pioles donated by local milkbars and places, made cards, scrunchies and an artist made us 50pairs of gold earings!!!!! for free and we have sold them at school to go to an orphanage in fiji so make things set a good price and then give all the money to the charity xx

  40. QUESTION:
    please help, I just threw up a pinkish red with a foamy look.?
    I have lupus and kidney issues, which i dont think are having anything to do with it, but i was huring so I took a hydrocodene. about a hour later I threw up a pinkish red mixed in with food and it there was a whiteish foam and floating. I ate Roman noodles, a pretzle and a few tatortots. is this normal maybe acid reflix?

    • ANSWER:
      Dani J- Was the medication you took reddish? It might not have dissolved completely. I know they come in red capsules. Maybe you didn't drink enough water......
      Bless you. :)

  41. QUESTION:
    Does this sound like lupus or a kidney infection of some sort?
    Last night before going to bed my hole face got really hot. Well my right side of my back hurt. (where kidney is). I was just wondering I am have the symptoms of a kidney infection and I think I have a kidney infection. When I woke up this morning my side felt swollen and full of something. I was so weak and tired.

    My symptoms are:
    Getting the chills, weak, tired, tickling feeling in side, I don't pee a lot (pee color is clear), I can't sit without feeling like something is there very uncomfortable, when lye down It hurts and uncomfortable, walking it hurts, I get the feeling of something jumping in my side (very scary), that something is moving in my side, very painful when I can't do a lot, when my side hurts my back is arched downwards and walking weird and slow,

    Why dose it feel like something is there my side like a tightening feeling, Is this bad?
    What will the doctors do if I do have a kidney infection?
    Why does it feel like my bladder is full but when I go to the washroom nothing really come out? (started to have this feeling when I got this pain in my right back)
    When will I know if it gets severe?

    I'm seeing a doctor Monday for an ultra sound.
    If the doctor do find something wrong will he send me to the hospital right then and there?

    • ANSWER:

  42. QUESTION:
    What are some of the true symptons of Lupus?
    Does it really affect your liver or kidneys and what is the life expectancy of a person with Lupus

    • ANSWER:
      painful or swollen joints and muscle pain
      unexplained fever
      red rashes, most commonly on the face
      chest pain upon deep breathing
      unusal loss of hair
      pale or purplr fingers or toes from cold or stress
      sensitivity to the sun
      swelling in the legs or around the eyes
      swollen glands
      extreme fatigue
      the following systems can be affected kidneys, lungs, central nervous system, blood vessels, blood, heart
      You can get a copy of the book and more information at

  43. QUESTION:
    My stepson has Lupus and couple of years back had a kidney transplant. Now he had a biopsy and shows that his?
    body is rejecting the kidney. Why does it happens and what medical treatment can help him? What can be done. Wwould he be able to continue with a regular healthy life or what is in for him & us if his condition worsens? Thank you in advance for your response.

    • ANSWER:
      Make sure your stepson takes his anti-rejection meds. These meds also help control the lupus by suppressing the immune system. You have to take them for life, no compromise!

      Even with anti-rejection meds it is possible for the body to reject a transplanted organ. And the immune system can also cause lupus disesease (nephritis) in the new kidney.

      You need to be asking these questions of the doctor, not a bunch of amateurs on Yahoo who may or may not give you accurate answers.

      If one kidney works, he will be OK. If both kidneys fail, he will go on dialysis and probably a chemotherapy like cytoxan plus steroids. The doctor will know which therapy is best based on which class of lupus nephitis your step son hs. He can be transplanted again if other health factors are favorable, which no one here can tell.

      No one predict what his life will be like. It will never be "normal" because he will always have to take drugs that suppress his immune system, he will always have to be careful about infections and he will always have to be monitored. If the lupus comes under control, and that can happen, he will live a mostly normal life as long as he follows his treatment regimen.

  44. QUESTION:
    How would you feel if none of your relatives even offer to donate one of their kidneys to you?
    I have a kidney failure and the waiting list for a kidney where I live can take between 7-10 years longer for me since I am Type O positve. For now I've been getting dialysis treatment 4 times a week and am getting worse since now I also have Lupus. One of my sisters had hers tested but when UCLA called her to let her know that she's a match, she never called them back. My Dad and sister would tell people how sorry they feel for me and that they want to donate their kidney but it's all talk. When they needed things from me, I was always helping, now that I need help, they are all gone. How would you feel about this situation? I have 3 kids and my husband is not a match so he can't donate. I've decided to stay out of my familys life for now because it hurts to know that no one seems to care.
    My sister has no kids and she can no longer have one per MD because of her age. No husband either. But everytime she needs someone, it is who is there for her.

    • ANSWER:
      I would be CRUSHED to know that a family member of mine was a match and did nothing to help me! I was always taught that your family are the only people you can count on! I am
      O-something, but I drink twice a week, so I doubt you would want MY kidney!!! But I would GLADLEY give it to you !!!
      When it comes right down to it, blood is all that matters! You turn your back on blood, no matter what the circumstances, shame should come to you, TENFOLD!!!
      I am SO SORRY you have to go through all of this!!!
      Worst comes to worse, if they will take it, you can have one of mine!!!
      Good luck to you and Godspeed!!!
      (Seriously, I would do it!!!)

  45. QUESTION:
    I have Lupus, what if I get a kidney transplant?
    What are the risk and symptoms that I would have?
    Tengo Lupus, que pasaria si me hago un transplante de riñón?
    Cuales serian los problemas y sintomas que podría tener?

    • ANSWER:
      If you have lupus, you cannot get a transplant if your lupus is active. You must be in remission. If you do get a transplant there is always the danger of infection and rejection. You will have to take immunosuppressive medications like Cellcept for the rest of your life to prevent rejection. There is also a danger that the lupus could attack the new kidney.

      If you are asking about the symptoms of lupus nephritis, there are no noticeable symptoms until it becomes quite serious. Lupus patients should have regular urinalysis for protein excretion and cellular casts. These are the signs of lupus nephritis. In advanced cases, a person might have swelling in both feet and lower legs and elevated blood pressure. Some people will notice foamy urine which means there is protein in it.

  46. QUESTION:
    I have Lupus and now I've been dizzy and have a burning in my lower abdomin could my kidneys be failing now?
    I get UTI's quite often but, this is different

    • ANSWER:
      I don't know if you been tested for lupus.Or if this is a self diagnoses. This is not a disease you should seek treatment for over the phone or advise really. You should seek an immunologist. I think this is a disease that there is only treatment no cure. How ever while your waiting to see an immunologist life style is important no alcohol or other vices. You need to eat right exercise and get plenty of sleep. The immune system is effected buy all this factor. Don't worry its not that bad. Your body should heel its self if you let it.

  47. QUESTION:
    I caused my Lupus?
    A woman I know that had Lupus ten years ago said she mentally made her white blood cells fight her Lupus and that's how she went into remission. She had Lupus for just over two years. Now she gets an occasional mouth sore and achy joints.

    This woman said I caused my Lupus and that all Lupus is the same just in different degrees of how it affects you. I have Lupus nephritis (of the kidneys) and when not on medication I have antibodies detected via blood tests (Complement 3 and 4) that are attacking my kidneys. Without medication I would die. I have the typical really bad joint pain to the point of not being able to walk at night or move my hands. I have sharp kidney pains that stab me once in a while and really scare me. I am doing all right though.

    Did I cause my Lupus? Did I make this happen? This woman says I did. She is crazy?

    • ANSWER:
      Dude, she's crazy. I wouldn't even talk to her, unless you do so to be amused. No need for that kind of hysterical negativity in your life.

  48. QUESTION:
    Anyone with SLE? How are you coping with the disease?
    I am 18 years old and got diagnosed with a severe case of SLE that's affecting my kidneys (lupus nephritis) in December of 2008. I'm under 11 different kinds of meds--like prednisone, cellcept, plaquenil..etc--If you have lupus or know anyone with lupus how are they coping with this? I've gained weight due to the steriods and my face is a lot rounder, which makes me a little sad, but I am thankful that the meds are helping me out! Well I'd love to hear your stories to help me cope with my disease!

    Thank you!

    • ANSWER:
      I'm sorry to hear of your diagnosis. My wife has had severe organ involved SLE for 20 years. It has attacked her heart (she had 8 heart attacks in 2007) and her kidney's. We have two adopted children ages 13 and 11. We also run a Lupus Support group in Southern California. We decided early on that no matter what, Lupus wouldn't control our lives. We knew that no matter what happened we would live our lives to the fullest each and every day. My wife is a practicing dentist and has refused to allow Lupus to take charge of her life. Sure there are times when we get depressed, when we spend months on end in the hospital but we know that we have each other and our kids. It has brought our family closer together.

      Becoming active in the Lupus Foundation of America was a great way for us to meet other people like ourselves who were coping with Lupus each and every day. Knowing that you're not alone is a big relief. I think that if you surround yourself with family and friends that no matter what happens you can deal with it. This is how we've been able to survive for so long with this dreadful disease. Good Luck to you!

  49. QUESTION:
    Can radiation for breast cancer be given to someone with Lupus and Fibro Myalgia?
    Once again, this is sad, but supposedley my mom also has Lupus, and Fibro Myalgia(sp). Would this allow her to still go through radiation and work all the time and drink all the time. five years ago she supposedley needed a kidney transplant or she would die. Now, with still her own kidneys, she is an alcoholic, she drinks to dull the pain she says. Also, I was reading a website on BC, and it said that chemo is usually done before radiation. My boyfriends mom did radiation first, then the chemo, and all of her tumors are pretty much gone, thankfully. Again, only serious answers please, and thank you.

    • ANSWER:
      CHFpatients.com - The Beat Goes On heart forum Archives
      ...and can say your problems with fibromyalgia and lupus are familiar ... are side effects from the chemo and radiation during breast cancer...

      www.chfpatients.com/archives/archive1-2001b.htm

  50. QUESTION:
    Kidney Biopsy and Lupus?
    My kidney doctor said i might lupus, but i don't any symptoms, only tiredness, but i think i'm just lazy..lol...anyways, so he's going set up an appointment to do a kidney biopsy. Does it hurt to get kidney biopsy. I can't take pain at all. I'm so scared.. And for those who have lupus, what changes did you do for your lupus? Do you eat different or exercise more?

    Thank You

    • ANSWER:
      If your dr has done blood tests, and found issues with your blood, and certain protiens in your urine, it may be suggestive of Lupus nerphritis. A different type of Lupus Then Systemic Lupus. Your symptoms may very well be different.

      I have Systemic Lupus (SLE). I havent needed a kidney biopsy, but did have a Liver Biopsy because I have Lupoid Hepatitis (autoimmune Hepatitis, fr the Lupus. I know this much, as with a liver Biopsy they do put you to sleep, so you arent awake. The liver biopsy when I woke, was sore, but no massive pain, plus most dr's and surgons will give you pain killers for the after surgery.

      If your super freaked, call the doctor, and ask him to explain his exact reasoning why he thinks you may have Lupus nephritis. If you don't like the answer, get a second opinion. But If you do have Lupus Nephritis, you do need treatment right away. It is a needed organ, and you can't sit and do nothing, the longer it sits, and the more ill you may become. I Co-Own a Lupus/autoimmune support group, several have Lupus Nephritis, and because they acted fast, and take their meds, are able to work, and live thier lives.

      They may change your diet, and some moderate, or mild exersice to begin with can only make you stronger. I swim, to help me with the times when I am down with severe flares (periods of moderate/severe disease activity). Lupus can range from Mild to Severe. He may have also done some pre bloodwork, for autoimmune disease that has come back positive as well.

      The changes I made for lupus over the years have been many as my life and illness have changed. But I have a lot of Central Nervous System Problems, not all with Lupus do. So I had to stop working. I eat better, I took swimming again a few years ago, I created an online support group, I pay more attention to my health, dont drink alcohol anymore or very little. I try to enjoy the good days, weeks or months a lot more, and appreciate them. I rest when my body tells me to. Oh and for the 1st time in my life I actually take most perscriptions perscribed....there are a few, and my dr knows which ones, I just physically can not tolerate. So we found ones I could.

      Good luck,
      Chris


Lupus And Kidneys Disease

Individuals with chronic renal failure and uremia show a constellation of symptoms, signs, and laboratory abnormalities additionally to those observed in acute kidney injury. This reflects the long-standing and progressive nature of their renal impairment and its results on many kinds of tissues.

Causes like pylonephrosis, nephrosclerosis, glumerolunephritis, obstructive kidney conditions due to blocking kidney stones and birth anomaly- congenital malformations, effects of some drugs especially when abused and over use of pain killer have been implicated in the chronic renal failure disease.

For which ever cause, the result is always same- retention of dangerous waste products/fluids of nitrogenous bases, causing electrolyte imbalance and death if unchecked.

In most cases where chronic renal failure is diagnosed, the exact cause of the disease is usually unknown and treatment is aimed at management of the disease. Some of the common signs found in cats with CRF are a poor appetite, weight loss, and dehydration. You will notice an increase in thirst in the affected cat as well as excessive urination (CRF cats increasingly lose the ability to concentrate urine and will drink and urinate more and more often).
The management of chronic renal failure consists of treatment of the underlying cause if possible, aggressive treatment of high blood pressure and other symptoms, liquid and diet control, cessation of smoking, and finally, with end-stage disease, resorting to dialysis or a kidney transplant.
The Ayurvedic treatment of chronic renal failure is based on three principles: (i) treating the damaged kidneys (ii) treating the body tissues (dhatus) which make up the kidneys and (iii) treating the known cause.

CRF has many causes including glumerolunephritis, nephrosclerosis, obstructive kidney diseases such as kidney stones and birth defects, diabetes mellitus and systemic lupus erythematosus, and most recently discovered illicit drugs and excessive analgesic use.

Regardless of the cause, the result will be the same: retention of nitrogenous wastes, fluid imbalances, electrolyte deficiencies and more. All of which affect multiple body systems.

Traditional Ayurvedic medicines which are useful in chronic renal failure are: Gokshuradi Guggulu, Punarnava Guggulu, Punarnavadi Qadha(decoction), Arogya Vardhini, Chandraprabha Vati, Gomutra Haritaki, Surya Kshar and Yava Kshar. Single herbal medicines useful in this condition are: Gokshur (Tribulus terrestris), Punarnava (Boerhaavia diffusa), Shilajit (Purified Bitumen), Varun (Crataeva nurvala), Manjishtha (Rubia cordifolia),Saariva (Hemidesmus indicus), Apamarg (Achyranthus aspera) and Haritaki (Terminalia chebula).

The first evidence of difficulty is usually loss of normal energy and increased fatigue on exertion. For example, the child may prefer quiet, passive activities rather than participation in more active games and outdoor play. The child is usually somewhat pale, but it is often so inconspicuous that the change may not be evident to parents or others. Sometimes the blood pressure is elevated.

Diet and intravenous fluids are the most common therapies for cats with CRF. Dietary management means feeding a diet lower in protein, salt and phosphorous. Reducing these things will help the kidneys function better. A lower protein diet takes some of the burden off the kidneys for filtering waste, as protein molecules tend to be larger and create a heavier burden on the kidney.

Frequently Asked Questions

  1. QUESTION:
    lupus, kidney disease, anemia, diabetes?
    I recently had bloodwork done as well as a urine sample.
    I gained about 25 pounds last year in a short period of time.
    I have been very tired as well, for most of the year.
    I took depoprvera and ended up having bloodclots for 6 months (not very fun if that was my first six months of marriage)
    And have been miserable since....

    My mother has lupus, but in our family it seems to skip generations.

    things that were 'out of range' were:

    platelet count: 431 (when it should be between 150-400.)
    urine: cloudy.
    urine protein: >0.15 (when it should be <0.15.)
    urine keytones: >1.5 (when it should be <1.5)
    ferritin: 14 (normal range is 15-180)

    Anyone know anything about any of this?

    Please let me know, thanks so much!
    I am going to add symptoms like: night sweats, always itchy, want to pass out after lunch, go pee in the middle of the night, veeeeery tired all the time, no energy, always hungry but nothing appeals, blood clotty periods, cold feet.

    Might I also add that I have been on anti-depressants (zoloft) for about two years, (I have very unstable emotions).

    5'0
    130lbs
    20.5yrs

    Scottish, English, Irish, Norweigian, Hawaiian, Indian (like canadian aboriginal), Italian and Flemmish.
    Also, I might add I was diagnosed with anemia in grade 2. My mother said when I was 11, when I got my first period, she took me in for a blood test, and they said I was anemic then too.

    And also, when I was 16, I had a kidneystone. I never found out why, or what kind it was though...

    • ANSWER:
      The normal range for platelet counts differs from lab to lab, and many labs use 150-450. Moreover, slightly high platelets are of no consequence. So, no need to worry about your platelets.

      Ferritin that low usually indicates low iron levels in the body, which can lead to iron-deficiency anemia. (Was your hemoglobin normal?) Due to menstrual blood loss, young women are particularly likely to have low iron levels. You can increase your iron levels by taking supplements/vitamins, or naturally through high-iron foods.

      Cloudy urine can mean many different things -- one of which is small amounts of blood in the urine, which is a sign of kidney disease. Does your test report say whether your urine was positive or negative for blood?

      High urine protein is also a sign of kidney disease, but can go up temporarily after rigorous exercise or during a bladder infection. You should have your urine test repeated to make sure the urine protein returns to normal.

      Having ketones in the urine is also abnormal. While it can occasionally happen during starvation (if you fasted for a long time), it can also be a sign of diabetes mellitus ("sugar diabetes"). What does your test report say about sugar in the urine? More importantly, what was your blood sugar?

      With your recent weight gain, urine protein and urine ketones, you should definitely be screened for diabetes. If your recent blood tests didn't include fasting blood sugars (glucose), ask your doctor to have that done.

      Finally, lupus can be extremely hard to diagnose, especially in the early stages. None of the tests you gave above is a good test for lupus (although having a low ferritin and normal/high platelets make active lupus less likely), so if you are really worried, talk to your doctor to have a blood test called ANA (anti-nuclear antibodies) done.

      Good luck!

  2. QUESTION:
    I have severe Lupus SLE and Kidney disease, is there any programs that will dissolve my student loans?
    I was a teacher for eight years until I got sick with stage 2 of 4 kidney disease from my Lupus SLE. I had to leave that job that I loved because of so many reasons. Well I decided after my symptoms got under control some that I would find another profession that would allow me to help children. So for two years I have been earning a Masters in professional counseling, God willing I will graduate this fall. However I have debt still from my fist degree and now the masters. All I want to do is help children but with the degree I will have I will not be making much. Most of my money will go to health up keep. I don' even have a car or house anymore. I gave up my care and now share an apt with a roommate. My symptoms are worse at times and better others. However I am in so much debt with student loans I don't know what to do. If anyone has any ideas, or experience with this please let me know. It is hard I was a good student both times and will graduate in the fall with honors and a bill that I can not pay.
    For those who said I should have thought about this before I went into debt. I thought I was going to always be a teacher. Do you know what I got when I got sick, was so sorry, we have to take your health insurance because you have a preexisting disease. I used my money to help get my student what they needed and in return I was told I was an excellent teacher, but now that you have a chronic illness so sorry..... It so easy to tel some one to go get a job, or why did you do something when you are not in the situation. Kidney disease is not fun or easy. I have worked my whole life. Think before you speak, because it could be you who could be loosing everything, life does not recognize last names, race,or gender.

    • ANSWER:
      My sister has cerebral palsy and she attended college on and off for about 20 years( I guess she was bored). In that time she racked up about ,000 worth of school debt and was unable to pay it. She called her loan companies (the people who funded her tuition) and explained to them her situation and the sent her some papers to fill out, it think it's called a Permanent Disability Waiver. Her doctor also had to verify that she was disabled, so they have forgiven about ,000 of the debt but the only catch is that she is not supposed to work for the next 2 or 5 years (not sure). If she starts even a part-time job she will have to pay the money back. I pray this helps you and good luck, and get well!

  3. QUESTION:
    My mom have Lupus she Just find out that she have a kidney disease.But all i ask is a pray for my mom?
    My mom have Lupus she Just find out that she have a kidney disease and her Lupus rate is getting high and it's stressing her out. I know it's millions of people that ask for a cure . But all i ask is a pray for her. My mom have a good heart and she all i have ,no one else. So please pray for her. My mom name is Tanya Parrish. I no i should not gave out names but when it comes to your mom that you love and care about and She a hero to you. You think of least anything to make the pain stop for her But my name is Clois Knight and I thank everyone for reading this. Thanks‘!

    • ANSWER:
      Clois there aren't many kids who would be as brave and calm as you if there mom was to get very sick. It proves that you are a good child and that your mom is doing a good job here. You have a good and believing heart. And God sees that too. So believe and don't get discouraged no matter what God's outcome is here. Just pray and God will do what is best here. Now is the time for you to be a good child to your mom. All you have to do is help her out in any way that you can. Do chores or just be with her. Tell her you love her very much. Just remember that not only am I praying for your mom, many, many others are. God listens to that. Also know that in this time of trial for your mom and yourself that he will be there for you two. He will help you get through this. He is a hero to everyone and in His eyes you are a hero here also. And when you need a friend-- he is the friend that has always been there for you. He has always and will always love and care for you and your mom. You two are in good hands.

      Dear Lord I ask that you grant your healing touch to Tanya. Comfort and protect them both. Lift the worries away from her Jesus. Make them both whole in belief and united in you as they are a good family. I humbly ask this in your name Jesus. Amen.

      † Equitable Prayer Warrior †

  4. QUESTION:
    Can lupus affect both the kidneys and the brain simultaneously?
    Can the disease lupus affect both the kidneys and the brain in the same patient, at the same time?

    • ANSWER:

  5. QUESTION:
    Have any moms had an Abo Incompatibility with their baby? If so has it affected your health?
    ive been tested for everything under the sun (lupus, kidney disease, cancer, etc etc) and I am still suffering with no diagnosis. I have many symptoms (low wbc 3.0, fingernail color changes, fatigue, burning throughout body) If anyone has gone through this, please share your stories.

    • ANSWER:

  6. QUESTION:
    Kidney Disease Campaign?
    Hi, I'm doing some work for a non-profit organization benefiting those living with kidney diseases and I was asked to come up with a campaign leading up to one of our big events. The campaign is to be through facebook and I've thought of a couple of options:

    1. We ask facebook fans to write something on their arm in support of kidney disease survivors (options for the words to be written: hope, faith, stand up)

    take a picture of the temporary tattoo and post it as their profile picture

    2. An art competition to come up with either a new logo or symbol for kidney disease. Lupus, for example, has the symbol of a purple butterfly representing a hope for a cure from the disease. Kidney diseases, as far as I am aware, do not have a similar symbol.

    I was just wondering what you thought of these ideas:

    Would you participate?
    What other words do you think could be used?
    How would you show your support for the cause?
    Any other ideas for campaigns?
    Oxford's minority, I realize this. We already have a facebook group with thousands of members and we have been receiving emails and messages asking of ways that they can easily volunteer and show support without donating money (we don't like to encourage not donating but raising awareness is one of our main goals).

    That is why we are creating a little contest/campaign to add to our already large facebook group in order to promote awareness as well as lead up to one of our events.

    • ANSWER:

  7. QUESTION:
    Does medicaid cover removing mercury fillings and replacing them?
    If not, are there any supplements or anything I can do in the meantime to reduce the toxicity in my body until I can afford to remove them? I have systemic lupus and kidney disease and am wondering if I can get this procedure (9 mercury fillings put in 2 years ago!) covered.
    Thanks, Holly G. Why don't you try having an incurable illness sometime.

    • ANSWER:
      most likely they are not covered unless there is a leak which means it is neccessary to replace them. the dentist needs to do an examination and you need to have x rays done to make sure. I dont know about any medication that youcan take. Sorry.

  8. QUESTION:
    Can't afford to get mercury fillings removed- are there supplements in the meantime to guard against toxicity?
    In addition, I have lupus and kidney disease. Thanks.

    • ANSWER:
      This might seem like a strange answer, but if it at all possible drink water that's not fluorinated.
      The biggest problem with mercury fillings in that they react with fluoride to form a metal complex which is extremely toxic (and leeched out of the fillings).
      Additionally, Fluoride often taxes the kidneys, to the point that dialysis machines (used when complete kidney failure happens) use reverse osmosis filtered water specifically to take fluoride out of water (and the kidney association has come out saying fluroide trashes the kidneys).
      I know fluoride sometimes causes lupus, but that part isn't as strongly shown/proven. The main thing which causes lupus is aspartame, you might want to look into your diet and see if that's anywhere.
      Also by any chance have you been suffering from thyroid problems?

      Anyhow, other than fluoride removal, most of the treatments I know of for mercury detox are somewhat of a pain.
      They include;
      Don't eat food with mercury (ie. fish up in the food chain)
      Use chelating agents (ie. edta, chlorella), which is a pain because other than chlorella, every single one basically needs a doctor to help you (which starts to add up cost wise).

      Hope that helps. Ideally you want the fillings out, but I understand the limitations you have, so hopefully that works.
      If you'd like any more info on fluoride (ie. a copy of an excellent book written on it) I'd be happy to send you it if you give me your email!

  9. QUESTION:
    Is it true that most people parasites and toxic gunk in their bodies?
    A woman I know recently told me about a detoxification program she went through when she had graves disease and all the disgusting things that came out of her body...I have lupus and kidney disease and would like to do a detox but I'm not sure what kind of program I need to go on....your thoughts?
    typo: is it true that most people HAVE parasites....etc.

    • ANSWER:
      I believe that a detox can help.

      I'm actually on one right now to get all the excess synthetic hormones (from birth control stopped 5 months ago), toxins, and built up colon matter.

      BTW, to the 2 posters who are asking what "toxins" are... There are so many, that natural health companies probably can't list them all, and there's that small problem of the government and Big Pharma controlling what they put on their labels. They can't claim it helps anything, as no one besides the natural health company makes any profit from it, and Big Pharma can't patent it. Toxins include pesticides, air pollution breathed, and any other synthetic particles that aren't supposed to be in your system. As well, most people do not have normal bowel movements, especially people with constipation. Most of your body's toxins are released from your body through the colon (through feces). When you're constipated, it allow toxins in the feces to be reabsorbed into your bloodstream, as your bowels aren't moving as fast.

      Most skeptics have never experienced a cleanse before. Only 2 weeks into my cleanse, I already feel a difference. The only difference that I can notice right now is my libido change (sorry for the personal info, but it has to be explained). I used to have perfectly fine sexual health, until I started birth control pills 4 years ago. After going through 5 brands of birth control pills, having: no libido, migraines, severe GAD (caused by the BCP's), and the onset of menopause (also the cause of BCP, I'm in my early 20's, the 'menopause' symptoms stopped when I stopped the pills). Even after stopping my birth control, I didn't find any change in my sexual health/libido. Only now, taking my cleanse, I'm finally noticing a BIG difference!

      As for which detox you want to take, anything that cleanses the kidneys I guess, which is almost all of them.
      The cleanse I'm taking right now is called Cleanse Smart by Renew Life. It cleanses the 7 channels of elimination: lungs, blood, liver, kidneys, colon, skin, and lymphatic system.
      Another cleanse that is really popular is Colonix.

      Hope this helps!
      Good luck with your cleanse.

  10. QUESTION:
    Any good recipes for someone with a really bad appetite due to illness?
    Hi, I’ve got lupus and kidney disease and as a result a REALLY bad appetite and often have stomaches. Sometimes I don’t eat for most of the day, everything seems so unappealing. I’m also hypoglycemic so I need a fair amount of animal protein in my diet in order to function.

    Any suggestions or recipes for a healthy fairy simple LOW SODIUM and easily digestible diet (I’ve just discovered congee) like soups, stews, porridges that include chicken, beef and fish (veggies welcome too)? Anything other type of dishes are fine too.

    Also how do you make chicken and beef really tender and yummy? My diet must be tasty otherwise I just won’t eat! I plan on going to grow an herb garden (basil, oregano, mint, cilantro, etc.) I hear using the crockpot is simple and really brings out the flavor in food. Any suggestions are very much appreciated!

    DIETARY RESTRICTIONS: eggs, dairy (unless a recipe calls for just a little dairy), white rice/flour/pasta/bread. I’m allowed some but not a whole lot of tomatoes, eggplants and potatoes. I can use some cheese, such as parmesan, as flavoring. I also cannot digest beans, legumes, nuts and seeds. Thank you again!

    • ANSWER:
      Well, this isn't a food recipe but it is really good for your body and it helps to give you a boost. I drink it every morning. It is pretty much water, but with some other properties that are very nutritious.
      Its called sassy water and it has lemon, ginger, cucumber & spearmint.

  11. QUESTION:
    Q for those knowledgeable about the body, esp. kidneys. proteinuria question?
    Two years ago I went to my primary care physician for a routine annual physical. My lab work came back abnormal. I was spilling very high amounts of protein and creatine. More tests followed and the same result was shown. I was sent to a Nephrologist.

    She was sure that I had some form of kidney disease. I was checked for the big diseases like lupus, cancers, etc. None. I held off on my kidney biopsy for several months; during that time I had frequent trips to the hospital for more blood and urine samples, all of which turned out very very high.
    I finally had a kidney biopsy. The results turned back negative for everything. She said my kidney tissue was very normal. She herself was shocked, and even had my test results ran through extra times and by different specialists, including those at the Mayo Clinic. Normal.
    However, the fact still remains to this day that I am spilling excessive amounts of protein in my urine.
    This is not normal.

    I never heard from my kidney specialist again. I was never diagnosed with anything, nor put on medicine, nor told to see anyone for checks on the matter or follow ups.

    The last time I saw my kidney specialist- when she told me I was fine she said "Well you probably had some IGA (nephropathy) brewing but stopped it by taking fish oil." wtf???

    My questions for you are:
    -should i be worried or do something about this?
    - am i okay just because my doctor sent me on my way or was she negligent?
    -can this proteinuria cause problems in the future or develop into a disease eventually?
    - would having proteinuria itself affect daily life? because i'm always tired and i wonder if this has anything to do with it
    -any other helpful comments

    to perhaps help you answer my question better; a little health info about me:

    -5'6". 120lbs.
    -17 at time this occured. currently 18
    -female
    -no drug use, do smoke cigarettes
    -no health history except for asthma and iron deficient anemia
    -family history includes heart disease, diabetes, high cholesterol, one case of teen leukemia, survived. other than that no other cancer, no kidney or strange diseases, no obesity.

    • ANSWER:

  12. QUESTION:
    Who knows about LUPUS disease.? I know there are several different categories of Lupus.?
    First I started going to a specialist about my kidneys. There are small problems there. now they are double checking me for Lupus. Is there no cure for this disease? I am seeing a neprologist and he sees alot of patients in 1 day. He is the only specialist around my area. Please need the true facts on Lupus disease.

    • ANSWER:
      I'm sorry to tell you that there is no cure for lupus. There are several ways doctors work to help prevent flare ups, pain, and any further damage but there is no actual way to rid your body of it completely. Fortunately, most people with Lupus are able to go on and live a basically normal life and have the same life expectancy as anybody else does.

      Lupus presents itself in many ways and is often the go to diagnosis when doctors don't really know what's going on. If you are diagnosed with Lupus, I suggest you insist your doctor go over all the other possibilities as there are several other disease that can appear to be Lupus.

      Good luck and I hope you are not unfortunate enough to be diagnosed with it.

  13. QUESTION:
    Fun activities and things for a person with an autoimmune disease to do?
    I have lupus SLE and kidney disease, and since I am very very sensitive to the light the summer is sad and depressing for me. I am getting tired of staying in the house, I also want to do things that can be done alone to since all of my friends work and I don't. I also am looking for some ideas about some activities I can do at night to which would be great. I also need activities that I can do with my friends when they are available that will be fun but do not require me to be out side or over do it physically. Please hep I am feeling like I am been cut off from the world because I have a disease that limits me physically

    • ANSWER:
      Dear Kenbfos,
      I feel for you. I have discoid lupus. I can feel my skin burn in sunlight. I wear prescription sunblock even at night.
      I go to the beach; when it rains, I go to the aquarium, and the Bronx Zoo, I fly my Radio Control Helicopter under the Pkwy.
      Go bowling, Museums, movies, casinos, dinner.... travel to other cities and repeat this formula w/ gps (try washington DC) use the subway, when above ground walk on the side of the street with shadows

  14. QUESTION:
    Mystery diagnosis..............?
    I have a friend that has been in the hospital at least forty five times in the past five years. This person is in their late twenties and relatively fit. This person always says "I think I have m.s., diabetes, migraines, lupus, kidney disease, cancer, colitous and numerous other various diseases but there is never a diagnosis and the illnesses are always vague. We quit following up on the illnesses because they are always vaguely dismissed. One minute this person will be visiting with friends having a great time (never mentioning not feeling well ) an hour later this person will be in the hospital and we are all dumbfounded. This person's family will go on vacations while this person is in the hospital. There is not a detox unit or mental health ward at the hospital this person goes to. Should we be worried??

    • ANSWER:
      It's possible that she has a mental illness, but sometimes when you have an obscure diagnosis, it's very very difficult to find out what is wrong.

      I, too, have watched Mystery Diagnosis and feel a great deal of empathy towards the people on the show. I am a healthcare provider and so I understand.

      On the other hand, it's true that there are many people out there with a mental illness.

      Does your friend seem to have consistent symptoms--or do her symptoms change? Is it possible that she is abusing drugs or alcohol?

      I'd recommend that you just be a good listener--but a discerning listener.

  15. QUESTION:
    My ESR test result is 39 and my ankles are swollen; what's the problem?
    One day the inside (kind of toward the front) of my right ankle hurt a little, and within a few days the entire ankle was swollen and painful. Not too bad, though; I could still get around. About a week later, my other ankle started to hurt in the same place, and it had swelled up, too, in a few days. About a week and a half after my right ankle started to hurt, both ankles ballooned and I had to crawl around for an hour after I got out of bed because it hurt too much to stand. I went to a walk-in clinic, and they did a blood test and gave me Ibuprofen. That was 5 days ago, and the pain is gone and the swelling is almost completely gone. The nurse practitioner I saw called me, though, to tell me that my ESR result was 39. I've looked at possible conditions that could be indicated by a slightly elevated ESR rate, but I just don't know which ones correlate with swollen ankles. Lupus? Kidney disease? Please say no... By the way, I'm 31 years old.

    • ANSWER:
      Erythrocyte sedimentation rate is a non specific test. it can not be used to diagnose anything. the ESR is performed by placing your blood in a meter and wait 1 hour to see how much the formed elements settle (move down). The test is done to monitor inflammation and some cancers. Like i said this test does not tell us much except that your ESR is a little high so additional test will be done. as for swelling ankles, there are so many causes to list. the most common cause to my knowledge is kidney disease. kidney disease begins at any age. glomularnephritis is common in people 20 to 30 yrs of age. More test will be done to see if you have problems.

  16. QUESTION:
    Where i can ask for help? ?
    i'm financially drain.. i want som ehelp for my sisters medicine.. Oh mY... how? where? she's having a lupus.. kidney disease.. dont tell me about gov of phil.. they cant help alot.. and also hospital in philippines... they cant also help alot.. My sister is undergoing peritoneal dialysis.. is anyone outder.. that can help us??

    P.S. she's 15..
    actually.. NKTI gave us discounts.. but still we cant cope up with th expenses.. my sister is having 6 dialysis per day.. it cost about 1 400 pesos plus alot of oral medicines.. and injectibles which cost.. 1500 pesos each..

    • ANSWER:
      For information on getting help, try contacting:

      National Kidney & Transplant Institute
      East Avenue, Diliman
      Quezon City 1100
      Philippines

      NKTI Numbers

      Phone:

      (63) (2) 924-3601 to 19

      Fax: (63) (2) 922-5608 / (63) (2) 928-0355 (PRO)

      Email Address: pro@nkti.gov.ph

  17. QUESTION:
    What can cause kidney damage or failure in a 22 year old?
    After seeing a regular doctor and kidney specialist we have found that my kidneys are not functioning properly. There is protein and blood in urine and a low creatinine clearance level in urine. I don't know the results of the blood yet. Symptoms are mainly frequent urination, frequent hunger and thirst, headaches, weight loss, fatigue and slight to moderate kidney / lower back pain. We have already ruled out diabetes.

    I am an otherwise healthy 22 year old woman with two children. Never had any major abnormal test results in my life. The major diseases that pop up (besides diabetes) are polycystic kidney disease and lupus.

    The kidney specialist is ordering an ultrasound and biopsy of my kidneys within the next 2 months. I had a CT scan done but she kind of avoided my question when I asked if she found anything. All she said was there were no stones found. I go back and see her next week.

    What the heck can possibly be wrong?
    I am very petite but have never had any eating disorders. I take Tylenol once a month, if that. I am not an alcoholic lol.

    • ANSWER:

  18. QUESTION:
    Am I able to take adipex-p if I am diagnosed with a type of kidney disease?
    I was diagnosed with lupus nephritis and I am currently prescribed CellCept. What interactions and side effects could occur?

    • ANSWER:
      Here's the deal. There isn't necessarily an contraindication with Cellcept. However, adipex-p is known to increase blood pressure and shouldn't be taken by anyone with high blood pressure. Because you have Lupus Nephritis you are prone to high blood pressure due to your renal function. Has a doctor actually prescribed adipex-p to you? I would find it hard to believe that an MD who knows your Lupus Nephritis diagnosis would prescribe this medication for you. How overweight are you? What is your diet like? Do you exercise? These are all better options than taking a 'fat' pill. You need to be careful because taking these kinds of medications put stress on the body and we all know that stress causes Lupus flares. If I were you I would avoid this medication like the plague, but at the very least discuss it with your nephrologist and your rheumatologist prior to taking it.

  19. QUESTION:
    lupus,kidney dialysis and traveling?
    my aunt has lupus disease and now shes having kidney failure and is currently on kidney dialysis every other day. she is living in another country and we are trying to get her to move here to live with us. does anyone now what type of traveling arrangements should we make.. we know what current medications shes on and we have all her medical records. theres a major hospital 15 minutes away from our house and a dialysis center thats right next to it. the traveling arrangements is the problem.. has anyone been through this that could help me? or even if they havent been through this atleast if they have some idea what we could do..

    • ANSWER:
      She should fly. Have a treatment the day before she is schedule to come in and then have a treatment set up for the day after she arrives so that she doesn't miss any treatments. Does your aunt have insurance that will be in effect once she arrives (I'm sorry I'm assuming that you're in the United States and she's coming in from elsewhere...this may not be the case). In any event, I would have her medical file copied and sent to the doctor and treatment center that you have lined up in your area for her. They'll need all the info to properly treat her.

      She will have no problem flying due to her dialysis. She may be uncomfortable due to the Lupus and her joints becoming stiff. Also, make sure the airline is aware of her medical issues and any special diet she may have. They'll be more than accomodating.

      Good Luck to you and your family!

  20. QUESTION:
    Tourette like symptoms from a reaction to medication. How to get it under control?
    Hi, I have been diagnosed with stage 1 chronic kidney disease and I also have some lupus symptoms. I take a ton of medication and I believe I'm having a very bad reaction due to them. Here are my symptoms...

    - Jerking, involuntary movement
    - Very detailed oriented when I speak (I explain everything even for the simplest sentences.)
    - Easily upset
    - involuntary movement of my mouth

    Does anyone know what type of reaction this is called?

    • ANSWER:
      This sounds like tardive dyskinesia...a disorder that causes involuntary muscle contractions that can result in involuntary movements and postures in various parts of the body, particularly chewing or lip-smacking movements of the mouth, jaw and face.

      It can be caused by dopamine agonists-- which include psychiatric drugs, and some anti-nausea drugs.

      You need to talk to your doctor about this. the involuntary movements can become permanent.

      How do I know? I have tardive dyskinesia myself, though mine effects my entire body, which makes it impossible for me to walk.

      You need to talk to your doctor about this, ASAP. You don't want to ignore this. It needs to be adressed before it gets worse...or possibly permanent.

  21. QUESTION:
    If the doctors don't know what is causing kidney disease...?
    Someone very close to me has a high creatitine reading of 4.0 which puts the kidney function at 17% and a biopsy was done and the rheumatologist was seen but lupus and vasculitis were ruled out and the nephrologist stated that this is a very unusual case and they cannot figure out what is causing this. I have the same blood type as this person but they won't do a transplant yet since they have to know the cause first or they said the new kidney can also fail if that risk is taken (not knowing what caused kidney disease). An MRI has been scheduled and they are going to try blood thinners in the event there is a possible clot that is causing the blood not to flow well to the kidneys. What I am concerned with is that if this is not the case and they cannot still find out what is causing this, does that mean this person won't survive despite dialysis until they let me donate my kidney?

    • ANSWER:
      I'm sorry your friend is dealing with this! However, even if the cause is not yet understood, there is no reason to suspect that the dialysis will not work. A healthy kidney is constantly cleaning/filtering the blood; dialysis is basically an artificial way of cleaning the blood when the kidney is not able to do it. The dialysis machine should be able to clean the blood whether or not the Dr's understand why the kidneys are not working.
      Your friend is very lucky to have someone of the same blood type so willing to donate; however, please don't forget that blood type is not the only criteria. If your friend does need a transplant, the Dr's will need to do 'tissue typing' to make sure that you are a good and safe match.

  22. QUESTION:
    Kidney Disease.?
    I have been diagnosed with lupus for 3+ years, and I've recently started to have back pains where my kidneys are supposed to be. I got kicked off my parents health insurance plan when i turned 22 this summer, so at the moment I don't have health insurance. Is there any information you can give me about kidney disease symptoms or any other info, so i can make an education guess if i have it or not.

    • ANSWER:
      well there is the national kidney foundation.....
      ya need a urinalysis and cbc,cmp to see what your function is at now...........good luck

  23. QUESTION:
    Do you think I have lupus?
    I don't mean to be self-diagnosing or anything- I'm not a doctor, certainly- but I've been wondering something. I'm 16 and was diagnosed with epilepsy 4 months ago after 2 consecutive seizures. However, I have no familial history of epilepsy, and my EEG didn't show any signs of epilepsy, but my neurologist said that sometimes that happens. I've been on medication which controls the seizures and the medication doesn't have any bad side effects, which is good.

    But recently I've had lower back pain that seems consistent with kidney problems. I've always had really bad mouth sores, like canker sores, that I get all the time- once a month or so. My skin is also sensitive to light, and in the past few days I've had a rash across the bridge of my nose and onto my cheeks.

    But I've been Googling this rash and trying to figure out what the heck it is- and found that it's sign of lupus. And that light sensitivity, mouth sores, kidney disease, and seizures are all signs of lupus as well.

    Do you think my doctors were wrong? Do you think I have lupus, not epilepsy?

    • ANSWER:
      This sounds like lupus. Ask for a few tests to confirm the diagnosis - Anti-Nuclear Antibody (ANA) panel including Anti-DNA and Anti-Smith antibodies.

      http://arthritis-symptom.com/lupus/lupus-test.htm

  24. QUESTION:
    Lupus.. what is it?
    I just got back from the clinic and am a slight bit worried now.
    I went in for back pains, during this he asked if I had other problems so I mentionned my reynolds. He then asked me if there's history in my family with clots (my grandma does), if I've had kidney disease, I've had kidney infections (disease I wouldn't know?), if I've had unexplained rashes.. well right there I had a rash on my neck, I had no idea, he's the one who saw it. He asked if I had a history of psychiatric problems.. I have had severe depression along with some great insomnia in the past. He asked other things that I can't remember anymore.. the only thing that didn't fit, which was mainly why I came in, was if my lungs were inflamed.. What was wrong was my muscle behind the shoulder blade was inflamed hurting when I would breathe.
    Ok so, now that he's gone through all that and only 1 out of all symptoms he's asked don't fit... what??
    I don't really know what lupus is safe for what I've just googled..
    Rusty:
    I know he can't diagnose based on history alone. He asked me a series of questions that made him think it's possible. Although, it didn't go much farther then his questions. Now what I wanted to know was the symptoms/how to get diagnosed. Basically, where would I go for help on this. I don't have my own doc so I'm kind of on my own.
    It had me concerned as many of the symptoms of lupus are similar to things that are happening with me. It's not to say I have it and don't wish to, I'm wanting to get informed.

    • ANSWER:
      I really do not understand from your question where lupus came into the discussion. Lupus is not diagnosed buy a doctor going over your medical history alone. Some of the things you mention can be seen in lupus patients.

      The American Rheumatism Association developed a list of symptoms used to diagnose Lupus. Research supports the idea that people who have at least four of the eleven criteria (not necessarily simultaneously) are extremely likely to have Lupus. The criteria are:

      * Butterfly rash
      * Discoid rash
      * Photosensitivity
      * Mouth ulcers
      * Arthritis
      * Inflammation of the lining of the lungs or the lining around the heart
      * Kidney damage, as noted by the presence of protein or other abnormal substances called casts in the urine
      * Seizures or psychosis
      * The presence of certain types of anemia and low counts of particular white blood cells
      * The presence of certain immune cells, anti-DNA antibodies, or a falsely positive test for syphilis
      * The presence of antinuclear antibodies.

      As to your question what is lupus.

      Lupus is an autoimmune disease. This means that a persons immune system is attacking their own body.

      Lupus is one of the more serious autoimmune disease. It can be mild with few symptoms or it can attack almost every system in the body.

      Lupus manifests as a chronic inflammatory connective tissue disease marked by skin rashes, joint pain and swelling, inflammation of the kidneys, inflammation of the fibrous tissue surrounding the heart (i.e., the pericardium), as well as other problems. Not all affected individuals display all of these problems.

      Rusty

  25. QUESTION:
    short dark streaks under the tips of fingernails?
    this started a few weeks ago, starting with one hand and spreading to all my finges. They're basically small dark streaks under my fingernails, right at the tip of my fingers. They are barely noticeable.

    what could it be, I am really scared.

    cancer? kidney disease? heart disease? heavy-metal poisoning? lupus? help!!!

    • ANSWER:

  26. QUESTION:
    Do I Have Lupus? Im so scared?
    Since 2 years old I have Chronic kidney disease and when ever it gets to winter and when the heat is on, my face gets really red. It gets red after a hot shower too. The redness on my face is like two circles on my cheek. That time I didn't really care. Lately my skin on my face is kinda dry and itchy. It gets kinda red like circles again. It itchy. Im only 16 this year. Somebody help. PS: Does lupus cause proteniria?
    Oh yeah theres this spot on my lower cheek and it itches. It red... looks like a mosquito bite.

    • ANSWER:
      Dear Billy,I noticed that you said you're 16,so that means that your
      parents are still responsible,to see that you get the best of health care.
      I trust that they have sought a dermatologist for your skin condition.
      I have "discoid" lupus sometimes with systemic symptoms,meaning
      achy joints.I was told at age 30,I'm now 57.
      I have to avoid the sun,excess heat also worry and stress can cause a flare up.I will be praying for you.I feel that your symptoms are probably caused from another skin disorder.A simple biopsy can show
      lupus.My Best To You,Mary PS I too have protein spill into the urine
      which means the kidney filtering system is not working properly.I too have had this since age 13.

  27. QUESTION:
    Question on Decreasing GFR and Kidney Disease?
    I am 37, normally 127 lbs, 5'7" with Lupus CNS. I have had hematuria (white & red cell casts) for a year or two, epithelial cells and off and on protein in my urine. Two weeks ago I gained 20 lbs and developed chest pain. I had a low GFR of 59.4. Last week I started having mild flank pain and my GFR fell to 53.4. I do not have kidney stones nor infection according to the ER. I will go back next week to my doctor but I'm not sure what to ask or if this is something I should worry about. I took a diuretic so some of the edema went down and no more chest pains. I still have a little trouble breathing and feel real heavy/ tired. I'm tired of the 20 lbs. and feeling crappy. Does anyone have any suggestions? Thanks - Kris

    • ANSWER:
      Kris, you have described many serious complications which should be referred to a specialist. The kidney failure which you are experiencing sounds severe and the cause should be investigated.

      Apart from any medication which your doctor may recommend, I will suggest that you pay particular attention to your diet. You should be consuming a more plant-based diet rather than animal-based. In other word, cut back on red meats and dairy products.

      You may also want to detoxify your major organs and systems (colon, kidney, lymphatic, etc.) Ask a naturopath (doctor who treats patients with natural and homeopathic products), to recommend a good, safe product.

      Finally, you may want to consider juicing vegetables and fruits on a regular basis. This is sometimes the best way to extract the nutrients to provide the most benefit to your body.

      Discuss these suggestions with your doctor or dietitian. Above all, have faith and put your trust in Jesus Christ. All things are possible to those who believe.

      God bless, and I pray that your will medical challenges will be overcome soon.

  28. QUESTION:
    Uncommon reasons for walking difficulty/muscle weakness?
    I've been dealing with episodic walking difficulty/muscle weakness for about 3 years, and my doctor has no idea why. It worsens whenever I get cold or am sleep-deprived/fatigued, so I get most attacks in the winter. I've had cranial MRIs (two), EEGs, and an EMG on my legs, but they were all normal. I've also been tested for Lyme disease, celiac disease, lupus (my ANA is only slightly positive, likely because of my thyroiditis, which I've had for nearly 10 years). The only abnormality that's been discovered is periodic electrolyte deficiencies, but no subsequent kidney or liver disease. Can anyone suggest possible uncommon conditions that might cause something like this?

    • ANSWER:
      Could be a neuromuscular disorder. Dystrophies (there are over 30 kinds) Myopathies, auto immune disorder. I would get refered to a neuroligist as many dystrophies and myopathies will not show on the tests you have recieved.

  29. QUESTION:
    has anyone with "lupus sle" managed to lose all the weight that the disease and the medication make you gain?
    i have been fighting this disease for 8yrs now, and the effects are horrible. plastic surgery is out of the question because no doctor will perform it because i am such a high risk. all i want to do is fit back into my clothes and also to be able to recognize my own reflection in the mirror. it is not beacuse of vanity that i want to lose the weight, i just want to be myself again. i have tried almost everything and nothing is working. i can't drink lots of water because the disease destroyed my kidneys, and i can't run because the medication made my bones so fragile, and i get overheated in a matter of a few seconds and my heart starts to race because the disease also attacked my heart. the prednisone that i have to take because my disease is so aggresive is what is really causing all the weight gain. i would appreciate any advice. i am 29yrs old and a female, (if that makes any difference). thank you

    • ANSWER:
      Having had to take Prednisone for an autoimmune disorder, I do feel for what you're going through. . Because the pred raised my blood sugar, I had to be on a very strict diet, so I didn't gain much weight. If you have the moon face that comes with using pred, then it won't go away until you get off of it. I think that's the thing that bothered me the most, and there's just nothing you can do about that. Prednisone has awful side effects, but I had to take it. I wish I had better advice to give you. I don't know what dosage you have to take, but hopefully at some point you can get on a lower dose, and that might help. Good luck.

  30. QUESTION:
    Is there anyone taking CellCept? If so, how long did you take it and what symptoms did you have?
    SERIOUS REPLIES ONLY. THANKS!

    Hi, I was diagnosed with lupus almost 2 years ago after over 11 years of dealing with various symptoms and flares and kidney disease. Right now I am only taking 1/2 a 250 mg chloroquine tablet once a day but I still have pain and fatigue and my sed rate is going up slowly, which it does during seasonal changes. My doctor wants me to start chemo or steroids, which scares the crap out of me. I saw online that there is something called CellCept that may work to reduce lupus symptoms that may have more tolerable symptoms than chemo, but I don't want to jump into anything. Can someone who has lupus who has or is using CellCept tell me if it works, how long it works, if you experienced any really bad side effects and if so did you recover? And did the lupus come back? Thank you for your help.

    • ANSWER:
      My wife has been taking cellcept for her Lupus for the last two and a half years with little side effects. She was a little sick to her stomach at first but now it really doesn't affect her. It has done wonders for her Lupus flare ups though. She hasn't had kidney involvement since being on the drug and she is only taking 5 mg of prednisone right now. She also has antiocardiolipid syndrome and takes coumadin to thin her blood. If you have any more questions or would like some more detailed info please feel free to email me

  31. QUESTION:
    Lupus......?
    In 4th grade I am going into 9th I was diagnosed with Lupus. An internal my kidneys where daautoimmune disease... I recently had a very bad flare up and it raised the chances of me dying earlier(some organs seriously damaged). When I was diagnosed I was told that dying was a possibility but most likely not until i got older... but i still I get seriously sick every year and am limited in activities. The type of Lupus i have makes my immunine system shut down, all my muscles give out (Legs, arms, etc) and face blow up and get beat red whenever I am in the sun... there is no cure . Especially in the summer I am secluded into my house it is either that or get sick again (my specific condition is so serious that not even suntan lotion and a hat can help me in the sun...i can not even take a hot shower...Kids at school tease...this year I stayed home from school for 2 wks afraid of what they would say to the looks of my face and inability to walk(I limp on good days and in wheelchair on bad

    • ANSWER:
      Half of being strong is making up your mind to do something. Keep your head on straight and keep focusing on being well. Remember mind over matter. Don't try to figure out ways to get through the week, just focus on the minute and it will be a lot easier.

      You are in my heart and prayers.

  32. QUESTION:
    a patient has both systemic lupus erthematosus, which has damaged her liver, and insulin-dependent diabetes...
    which has damaged her kidneys. as the disease have progressed, the edema she experiences has worsened. why?

    -liver damage prevents her from making suffiecient plasma proteins

    - kidney daage allows some of her plasma protein to be excreted

    -kidney damage allows olittle fluid to accumuate in the bowmans capsule

    • ANSWER:
      - kidney damage allows some of her plasma protein to be excreted

      excess glucose in the urine (glucosuria) tends to happen with patients exhibiting type 2 diabetes. this glucose should not be going through the glomerular filtration barrier within bowman's capsule as its molecular weight is too high. thus i believe that her serum albumin levels would be low as the GFR has been broken down, allowing other biological molecules (albumin, aka a protein) to be lost within the urine. thus serum albumin levels are depressed.

  33. QUESTION:
    *********SEVERE KIDNEY PROBLEM PLEASE HELP!!!!!!!!!!!!!!!!!!!!!!!!?
    Severe ongoing kidney pain please help!?
    I had leukemia when I was a kid. In remission. Extensive chemotherapy for 3 years on and off. Tested for Lupus one year ago due to questionable symptoms. I know not everyone on here is a doctor but I need advice for the time being. My symptoms are severe kidney pain (right side) for AT LEAST one year now. Weird rash on hands-have to itch it with a brush and the skin peels of my fingertips and palms. I cant stand for a long time because my right kidney hurts so bad its debilitating. I know its not a joint/bone problem because I had some arthritis and RA testing done-alls well there. I cant drink soda's, juices, milk or coffee obviously this causes severe chronic pain. Kidney hurts whenever I have to urinate-which I do as soon as I feel the urge to go. I get nauseated often but dont vomit, and when I wake up in the morning Im in severe pain its hard to even get dressed. Ive read up on the symptoms of kidney disease but I dont want to sound like a hypochondriac to my doctor when I go. Please advise-anyone know anything about these symptoms. And yes, I constantly have kidney stones that pass and regenerate, and my urine is always foul smelling and extremely clouded. Please help-thanks so much.
    53 minutes ago - 1 week left to answer.
    Additional Details
    Also, I always feel like Im thirsty and I always have something to drink with me. I try as often as possible to drink water. I know the pain is kidney pain because I went to the ER and they said I had kidney inflammation. The pain takes m my breath away at points and their are times when I get extremely dizzy and faint.
    50 minutes ago

    • ANSWER:
      Hi Sassy!
      I think that you already know the obvious but perhaps need a little confirmation. Girl, there are a few organs within your body that strongly affect the total health and well being of your body as a whole. You probably know already that your kidneys are one of the primary organs that does influence your health. Two things that you have mentioned caught my attention. one is the "itchy rash" on your hands. That is a sure sign of nerves and in conjunction with your kidneys; actually create agitated conditions that intensify your kidney problems. The other is the 'foul smelling; cloudy urine. Of course this is brought on by the kidney infection 'but' it is a good sign that the kidneys are functioning and trying to cleanse themselves. I know this is not a time to be trying 'old remedies' but a few of them actually help. Most likely, you are drinking liquids that are cool or cold in temperature. The kidneys actually have to work harder at cleansing under these conditions. Try warming your liquids to slightly above body temperature (between 100* and 110*Max.). This will help. Also, in your case, please try to drink distilled water only, because; most bottled water is actually "pure tap water." To a healthy person, this does not create consequences of any magnitude. In your case, the slightest deviations of germs or enzymes, foreign in nature, can present problems. Please also try to drink considerable amounts of nothing but water. It may be painful to begin with but it does in fact help flush out those conditions that are helping to agitate your ailment. Now, for the "Old remedies." This one, I place quite a bit of faith in because I too have bouts with my kidneys. Honey is the only absolute pure energizing food that has zero harmful substances. It never has to be protected as it will 'never; spoil, period! You take two tablespoons of honey in the morning and the same before you retire at night. I will personally assure you that it will make a difference in your condition in a short time.(perhaps a week or less and you will notice a change for the better) Your pains will diminish and your nausea will subside. Other than this, I am going to strongly urge you to visit a good urologist. Perhaps you feel that it is an expense that you cannot incurr at present. I am going to tell you it is an action that you must take regardless of expense. (there are assisted programs to help you if this is actually one of your problems). Sassy; You owe it to yourself to take care of this "Now" and not put it off. "If" your kidneys actually start to fail, expense will no longer be an equation to consider. It will be a mandantory action that you will be forced to take at that point. Please get on girl with what you know you must do. I will pray for you and hope for your best.

  34. QUESTION:
    Do you know someone with Systemic Lupus?
    Lupus is an auto-immune disease that causes inflammation throughout the body. Your own immune system attacks your internal organs such as kidneys, liver, heart, lungs, and central nervous system. It also attacks your joints causing arthritis like pain. Other symptoms include butterfly shaped rash covering the cheeks and nose, hair loss, extreme fatigue, anemia or blood clotting issues, pleurisy, and ulceration in the nose and mouth.

    • ANSWER:
      i used to. i heard her talk about it. but thats about it

  35. QUESTION:
    i think something's wrong with me...?
    ok, so i'm an 18, almost 19 year old girl/woman? and i just cant talk to people face to face and cant make friends. i do have some friends but that was before i started noticing something wrong with me. whenever people talk to me, i always seem to be fidgeting and as emotional as i may feel, my face always seems to look blank.
    i feel suicidal at times but then i get scared.
    last year i got diagnosed with lupus (where the body's immune system attacks itself which can lead to kidney disease, pancreatitis, pleurisy, vasculitis, pericarditis, and cancer) and the treatment i take for it gives me mood swings, insomnia, dizziness...i sometimes think that my medicine is making me detached from others but my awkward manner has been around since before i can remember.
    i sometimes seem to have arguments with myself or with things that aren't alive. just yesterday i choked a spoon and told it to go f**k itself because it hit against my knuckles. the arguments i have with myself really seem to put me down. i feel like there might be two other people inside me and none of them have a positive effect on me. i know i dont have split personalities because these people are inside me.
    i like to wash my hands a lot and if i dont dry them i feel infected and imagine some shadow creeping up my hands.
    i always get angry easily and for no reason. I'm feeling increasingly depressed. i feel like i'm the least favored by anyone and everyone.
    i used to see a psychologist because i jumped into a bush and slammed my head into a pole which knocked me out for several minutes and left me feeling dizzy for hours after. i think he seemed to think that there was something wrong with me but i moved and we had no contact.
    i hate exercising but i like sporty games, i'm a call of duty addict (wierd for a girl), i love to play video games, i sing and write songs and people tell me that i have a good voice but singing is not approved in my family. music seems to be the only escape for me.
    my mom is the perfect person to cry to but she thinks that theres nothing wrong with me. and most of the time she's too busy to pay attention to me.
    soo...um any suggestions?

    • ANSWER:
      im awkward, i play call of duty, im a girl, and i constantly think there's something wrong with me.
      nobody is "normal".
      the best advice anyone could give you is to go see a professional. doctor, therapist, psychologist, etc.
      good luck doll, and keep your head up. :)

  36. QUESTION:
    Lupus... Help... Hospital?!?
    I have a deadly disease called Lupus and it just so happens my kidneys are not dueing so well so i puked and then passed out at school... I think they way over reacted i mean i came to before the ambulance arrived but whatever...o well could be worse... ha ha...

    so right now all i have is my laptop and a tray full of disgusting hospital food with wires and tubes all over me! I hate blood transfusions and dialysis... and worst of all biopsies.... i mean i have had them all so many times it is ridiculous...i so wish i could just go back to school...AWWW! there is no saying how long i will be in here! they said at least 5 days or until my kidneys start getting better... but they don't know if my lungs or liver or any other organs are going to start failing so i am stuck here... o well i could have cancer and know i am dieing now... Whatever life is good..ha haha...

    So i am so so bored! what would you do if you had like a week in the hospital... i have been in this positions a ton before but i am super duper bored this time! HELP!!!

    FYI i am 14 years old

    • ANSWER:
      I know that this is hard for you. It would be hard for anyone.
      I spent 6 months in the hospital in 2006 myself. It sucked. But there was no alternative. I too have Lupus. It is not a fun illness. Your mental state of being can affect your physical state of being when you have Lupus. Try to read or do some craft projects. Something to keep busy.

  37. QUESTION:
    How likely is someone to die from lupus?
    My dad has had lupus for 2-3 years now. So far, it has affected his muscles, joints, and caused him to be tired, sensitive to sunlight, and has affected his kidneys. Because it has affected one organ, would it most likely affect others?

    Does anyone know of statistics for the death rate of this disease?

    Also any general or treatment info would be great.

    Or if you have Lupus.. It would be great to read your story.

    Thanks,
    Ashley

    • ANSWER:
      Sever lupus can be life threatening.

      Healthy helpful steps to prevent lupus flares include:

      * maintain a healthy diet
      * get enough rest and quiet
      * pay attention to your body
      * moderately exercise when possible
      * limit the time you spend in the sun
      * develop coping skills to help limit stress
      * learn to recognize when a flare is coming
      * slow down or stop before you get too tired
      * learn to pace yourself by spreading out work and other activities

  38. QUESTION:
    What are all of the side effects of hashimoto's disease?
    I'm told that it can cause kidney failure, lupus, RA and more. I'm told that it can cause sponutaneous abortions (miscarriages) etc...I have looked on the internet but it's not really saying much about the harsh effects of it. Are there certain foods that make it worse, can you exercise to help relieve the muscle/joint pains...what can you do for that?

    • ANSWER:
      I was diagnosed with Hashimoto's disease. I am a 25 year old male, and usually this occurs in middle aged women, so I don't know how I got it except that it runs in my family. Hashimoto's disease is an autoimmune disease that occurs in the thyroid gland. Over time, it destroys good thyroid cells so that your thyroid becomes underactive, so everything that comes along with an underactive thyroid you could start to experience. I have not heard of the long term ramifications, however, I know that you should get treated and take thyroid medicine once you become underactive. I make visits to see the Endocrinologist once every 6 months or year to monitor my thyroid.

  39. QUESTION:
    If Lupus does not go treated for 12 years, what kind of damage can be done?
    I have been suffering form eposides of hives for the past 12 years and no doctor could tell me what was causing them till one ran some blood work and we learned I have had Lupus. I just got started on medication, but it doesnt seem to be helping my thought process. For months I have been having very bad memory loss that seems to get a little worse every day along with very bad fatigue that is effecting my every day activities. What kind of danage could have been done with 12 years of a disease such as this going untreated or noticed? I had a resting heart rate of 157 and saw a Cardi and he said that other then the rapid heart rate there is no problems with my heart. I also only have one kidney. Because this disease went untreated so long could it make my life span shorter?

    • ANSWER:
      Most cases of lupus are mild to moderate. Lupus patients who follow their treatment plan can expect to live a normal life span.

      The memory problem is known as lupus fog. Most of us have experienced it. As the disease comes under control, your memory should improve. The fatigue is a sign that your lupus is active. That will ease up as the disease comes under control, but you may still find that you tire more easily than totally healthy folks. Pushing makes it worse. Rest when you need to. In fact, rest before you need to!

      I was undiagnosed for 38 years. I was diagnosed at 51 during a pretty serious hospitalization brought on by the lupus. I am nearly 58, in remission (thanks to the medication), and live a very normal life with no permanent damage. I even have lupus kidney disease which is completely under control.

      Worry and anxiety that come along with feeling horrible and getting labeled with a diagnosis of a chronic illness can also affect your memory and cause fatigue. So, you get a double whammy.

      Practice asking yourself "What can I do to take care of myself right this minute?" and "Will this (food, activity) contribute to my overall health or take away from it?" Adopt the healthiest lifestyle you can. Journaling is an excellent way to sort out the difficult emotional issues that accompany any traumatic diagnosis. Please try it.

  40. QUESTION:
    Can my 27 year old daughter get a kidney from someone, after being 10 years on dialysis?
    Her name is Emi, she is American from DC. She has been on a transplant list for 4 years, but in vain. Where shall we turn for life saving help. Her blood type is A+ and her underlying disease is Lupus. She has been a TV and printed media advocate for ethical virtues, family values, healthy nutrition (her studies). She is willing to donate acres of land in Europe, inherited from he grandfather, for this life saving organ. Without function in both kidneys, with 3 times a week, four hrs at time, chained to the machine for 10 best years of her youth, deprived her of knowing what happiness and freedom is. Is there someone out there to want to contact us for a life-saving gift of the most precious that God has given to us: healthy living, upon which all prosperity on earth depends?!

    • ANSWER:
      Wow, I really feel for you. I don't really know what to say. All I can tell you is that sometimes out of the blue miracles do happen. To make an extremely long story short, in October of 2005 I ended up on dialysis after a protracted stay in the hospital. Both my kidneys completely failed and my liver was on it's last leg. I too have an autoimmune disorder like lupus but mine attacks the liver first; my kidneys went secondary to liver failure. I also went to dialysis 3 days a week for 4 hours a day and I thought my life was over. Against all odds, and for no explainable reason I started getting better. Long long story in between but today I am as healthy as I was before this happened, off of dialysis, and back to work.

      All I can tell you is to keep your spirits high. When you least expect it, is when it will happen. Now would also be a good time to remind everyone to sign your donor cards and make sure it's noted on your driver's license. There is no way for EMS personnel to know you are a donor if you don't. As morbid as this is going to sound, I am always on the lookout for a potential donor, sometimes there is just nothing else to do.

      I'm sure you are probably familiar with DaVita, but on the off chance you are not here is the website. http://www.davita.com/ They offer an abundance of resources for patients with chronic kidney disease and patients on dialysis.

      I wish you the best of luck.

  41. QUESTION:
    pls react on this journal... your reaction would be a great help...thanks God Bless?
    'Multi-target' Immune Therapy Improves Outcomes Of Severe Lupus Nephritis
    ScienceDaily (July 7, 2008) — A new treatment using a combination of drugs targeting different parts of the immune system improves the recovery rate for patients with severe lupus involving the kidneys, according to a new report.
    "In our study, multi-target therapy is shown to be superior to traditional therapy for inducing complete remission of class V+IV lupus nephritis, with few side effects," comments Dr. Lei-Shi Li of the Research Institute of Nephrology of Jinling Hospital, Nanjing University School of Medicine in Nanjing,China.
    The study included 40 patients with severe lupus nephritis. Lupus nephritis is inflammation of the kidneys occurring in patients with the immune system disease systemic lupus erythematosus (SLE). All patients had "class V+IV" disease, meaning widespread inflammation and decreasing function of the kidneys. "This is a severe form of lupus nephritis that is traditionally treated with a single immunosuppressant drug, but the efficacy is very poor," says Dr. Li. "We considered that, since the impact of severe SLE on the kidney involves various parts of the immune system, it is necessary to treat the different immune targets with a combination of immunosuppressant drugs."
    One group of patients received this "multi-target" therapy, consisting of the immunosuppressant drugs tacrolimus and mycophenolate mofetil--commonly used as anti-rejection drugs in transplant patients--plus a steroid. The other group received standard treatment with a single immunosuppressant drug (cyclophosphamide).
    The complete remission rate, with recovery of normal kidney function, was about four times higher among patients receiving the three-drug combination. "For patients receiving multi-target therapy, the complete remission rate reached 65 percent at nine months, versus only 15 percent under traditional therapy," says Dr. Li.
    Some patients in both groups had partial remission, with some return of kidney function. Overall, 95 percent of patients in the multi-target therapy group had partial or complete remission, compared to 55 percent with single-drug therapy. The rate of most adverse effects was also lower with multi-target therapy.
    Systemic lupus erythematosus is an autoimmune disorder, in which the immune system attacks healthy organs and tissues. By reducing immune system activity, treatment with immunosuppressant drugs has improved most outcomes for patients with SLE. However, class V+IV lupus nephritis continues to be a major problem--it has a poor response to traditional treatments and can lead to permanent kidney damage. "The prognosis is very poor, so it is important for us to develop a new regimen for the treatment of this type of lupus nephritis," says Dr. Li.
    Using a combination of drugs that affect different immune targets, multi-target therapy improves the chances of remission for patients with severe lupus nephritis. "The therapeutic effect of our multi-target therapy is apparently superior to traditional therapy for inducing complete remission of Class V+IV lupus nephritis, and also bears good tolerance under relatively lower dosages," Dr. Li adds.
    The authors stress that their study is only preliminary. The study includes a small group of patients from a single hospital, with a relatively short follow-up time. Larger randomized trials with longer follow-up are required.

    • ANSWER:
      ok, a journal on lupus

      intersting if your an immunologist or for this type of lupus a nephrologist or just interested in lupus

  42. QUESTION:
    Anyone with SLE? How are you coping with the disease?
    I am 18 years old and got diagnosed with a severe case of SLE that's affecting my kidneys (lupus nephritis) in December of 2008. I'm under 11 different kinds of meds--like prednisone, cellcept, plaquenil..etc--If you have lupus or know anyone with lupus how are they coping with this? I've gained weight due to the steriods and my face is a lot rounder, which makes me a little sad, but I am thankful that the meds are helping me out! Well I'd love to hear your stories to help me cope with my disease!

    Thank you!

    • ANSWER:
      I'm sorry to hear of your diagnosis. My wife has had severe organ involved SLE for 20 years. It has attacked her heart (she had 8 heart attacks in 2007) and her kidney's. We have two adopted children ages 13 and 11. We also run a Lupus Support group in Southern California. We decided early on that no matter what, Lupus wouldn't control our lives. We knew that no matter what happened we would live our lives to the fullest each and every day. My wife is a practicing dentist and has refused to allow Lupus to take charge of her life. Sure there are times when we get depressed, when we spend months on end in the hospital but we know that we have each other and our kids. It has brought our family closer together.

      Becoming active in the Lupus Foundation of America was a great way for us to meet other people like ourselves who were coping with Lupus each and every day. Knowing that you're not alone is a big relief. I think that if you surround yourself with family and friends that no matter what happens you can deal with it. This is how we've been able to survive for so long with this dreadful disease. Good Luck to you!

  43. QUESTION:
    Cause of knee,ankle and feet swelling with pain and stiffness?
    I have had blood tests taken and DO NOT have sugar,no kidney or heart problems and no rheumatoid arthritis,lupus or lyme disease.So what else is there that can be causing these symptoms?Left foot and ankle swells more than the right one.Swelling goes down at night after sleeping,but pain and stiffness when
    i get up.My knees are painful,too.

    • ANSWER:
      There is not one test for most of these conditions. Your doctor needs to go by your symptoms and blood tests. You need to find a doctor who will take you seriously. Take photos of all your swollen joints.

      Ignore the idiot who keeps posting about avoiding sugar.

      ...

  44. QUESTION:
    has anyone ever had dialysis and for how long?
    i have a disease called lupus and i am going through chemotherapy and just got a surgery for dialysis because my kidneys are in failure stage,kinda scared only 15 years old!

    • ANSWER:
      I sympothize your condition and at only 15. Dialysis is usually for life, if for some reason your kidneys come back, then you will go off of dialysis. I've only heard of one person who's kidneys came back after 7 months of dialysis. Good luck

  45. QUESTION:
    what is lupus?
    Defining Lupus

    A chronic, inflammatory, connective tissue disease that can affect the joints and many organs, including the skin, heart, lungs, kidneys, and nervous system. It can cause many different symptoms; however, not everyone with lupus has all of the symptoms. Also called systemic lupus erythematosus (SLE

    • ANSWER:
      I think you answered your own question. I have Lupus and have had it for a long time. The only thing you didnt put is that it is an autoimmune disease where our own cells attack each other because they become hyperactive, and do not know they are attacking their own healthy cells. So Dr's use immunosuppresents, chemotherapy, and prednisone, to suppress the immune system, in hopes of quieting a flare or pushing it down into remmison,

  46. QUESTION:
    People diagnosed with Lupus... need help and info!?
    I do not wish to write a paper about all the details and symptoms, so I'll just summarize, then ask my question.

    Over the last 5 years, I have had symptoms of EXTREME fatigue, joint pain, canker sores, mild hair loss, etc. I am also anemic (which no amount of iron or B vitamins changes in the slightest). In this time, I have also had a false positive Syphilis test, and chronic kidney stones (3 in 7 years).

    In August of 08, I developed a cough that STILL has not gone away. I have been to TONS of doctors and been diagnosed with pneumonia, asthma, bronchitis, allergies, etc, and put on more antibiotics than I care to think of... all the antibiotic treatments actually made me feel worse.

    I also developed a sudden, strange rash on my leg after being out in the sun for a couple days... which also has not gone away. And more recently, I have a light butterfly rash on my face.

    Last month, I finally found a doctor that said "Wow... 8 of the 11 symptoms of Lupus... let's get you tested." I was x-rayed to check for Pleurisy (in the lung tissue), and put through about 10 blood tests (also checking for lyme disease, just in case).

    Even after the false positive Syphilis, and the anemia, I tested negative on the ANA test. Kind of. I tested higher than normal, but apparently too low to make a full diagnosis of Lupus.

    What does this mean exactly? Is there such a thing as borderline Lupus? And I know there are a few other diseases that mimic Lupus... but what are they? I know that Fibromyalgia is one of the "mimic" diseases, but would that also account for the blood disorders that I DO have and the rashes?

    I do have another appointment with my doctor in a couple weeks, and I also know that making a Lupus diagnosis can sometimes take a while... but has anyone had the negative ANA issue and still been diagnosed with SLE? And what was your experience... anything I should ask my doctor to look for on the next visit?

    Thanks!
    Oh, they did also check my thyroid... everything normal there.

    And should I mention, also, that my symptoms began during pregnancy and have gotten progressively worse? This has been going for about 5 years... and just now I've screamed loud enough that I am being taken seriously.

    • ANSWER:
      Unfortunately it may take years to DX Lupus. I had all of the symptoms you do and saw a Rheumatologist for about 5 years before my ANA was positive. In the 5 years I also had a pos. Scleroderma and Sjogrens. All along my doctor said that probably I would develop Lupus buy it was a wait and see. Keep a diary of your symptoms and continue to see your doctor. Hope this helps.

  47. QUESTION:
    What are the risks of nephritis?
    One of my friends has been having trouble with what seems to be her kidneys for almost a year now. She's just gotten a biopsy, and is waiting on results.

    Her doctor believes she has nephritis, because she has every symptom associated with it.

    I'm clearly not an expert on the disease of nephritis, or Lupus nephritis, but can either be deadly?

    Because this has been going on so long, is there a high possibility of her needing to get either a transplant, or go on permanent dialysis, or could she even die from it at this stage?

    • ANSWER:
      The only thing I can answer is on lupus nephritis. Lupus does commonly affect the kidneys but these days treatments are very effective particularly if problems are detected quickly. 95% of patients with kidney problems respond to the treatments and don't go on to kidney failure.

      For more information on kidneys and lupus please visit www.lupus.org.uk and also see Charlie's story http://www.lupus.org.uk/information/information_lupuswhatsthatfilm.htm. Charlotte did have kidney failure and went on to have a very successful transplant. At the very end of the previous film to Charlie's (Aneal's story, the lupus specialist talks about kidney involvement in lupus).

      Hope that helps a bit.

  48. QUESTION:
    If a person is in End Stage Renal Disease and needs a kidney, would liver damage exclude her from transplant?
    My girlfriend just found out she cannot take a certain immune suppressor due to cirrhosis of the liver, (Hepatitis C and Lupus damage). Now, if she can't take this drug, are there other drugs she can be prescribed for anti rejection that wouldn't affect her liver? Is she still a transplant candidate for a new kidney? She is currently a home dialysis patient. She also has Sjogren's syndrome, high blood pressure, systemic and subcutaneous Lupus with the Hepatitis C.

    • ANSWER:
      Short answer is that there are no anti-rejection medications that are not processed in the liver. With Hep C she won't be allowed to receive a kidney. I am very sorry to tell you this and wish the best for you both.

  49. QUESTION:
    Can I sue a doctor for neglect/medical malpractice if he didn't properly follow my disease?
    I was diagnosed with Lupus Nephritis in Sept 07 when I just turned 19. I was told to follow up with the rheumatologist that saw me in the hospital. I did a biopsy and i was found to have stage 3 lupus nephritis so i started seeing a nephrologist. long story short, the rheumatologist didn't get along with the nephrologist so he told me to stop seeing him and convinced me that he could control my lupus and told me he had many patients with lupus. he slowly started tapering my prednisone and told me i was going into remission. then one month later he lost my blood tests and did not request em back from Labcorp and did not tell me till the next month. within that month i was not on my cellcept and i was on a very low dose of prednisone (10mg) at that point my disease was eating away at my kidneys. that month i went from stage 3 to 4. the next time i saw him he told me that i would have to do chemo. i went to get a second opinion from my nephrologist.

    the nephorlogist requested my records from the rheumatologist and when my records were recieved the rheumatologist sent only a small part and only the last 6 months of blood tests. my nephrologist then brought to my attention that the rheumatologist the whole time was doing the wrong blood tests and not watching my disease as closely as he should have been.

    so my question is.. can i sue the rheumatologist for not monitoring my disease and falsely assuring me that he had alot of experience with lupus, when in actuality he did not?

    i have suffered so much because he slipped up. i had to do 6 months of chemo which caused me to withdraw from school and get in debt with student loans.. i cant work.. my disease got worse..and the high dose of prednisone caused me to gain over 70 lbs.

    • ANSWER:
      This sounds like a terrible last few years. I had a malpractice case that I sued for last year and was compensated for my injuries. I used http://www.badproducts.com/ because they offered a free consultation online. They set me up with some lawyers in my area who did a great job. I don't know if they can help you, but that's been my experience. Hope everything turns out for you!

  50. QUESTION:
    I had a swollen left ribs and often times it occurs with back aches.. what do you think it is?
    I have had kidney problems and that was because of my hereditary disease-Lupus..I was somehow relieved when I took Acalka(Potassium) and Polynerve(b1,b6,b12), but now I am suffering a swollen left ribs which also occurs with back aches, I was wondering why it suddenly happen well infact I was eating fishes and vegetables only.I also undergo water therapy,until now. I will post more of my observation with my body..

    • ANSWER:
      hmm.... maybe u should see your doctor?


Lupus And Kidneys Cysts

Arthritis is the name given to a group of related diseases, which include osteoarthritis (degenerative arthritis), rheumatoid arthritis, juvenile arthritis, psoriatic arthritis, ankylosing spondylitis, lupus and fibromyalgia. In its various forms, arthritis affects the young and old, both sexes and all races. Although there are over 100 kinds of arthritis, they share one thing: they all rob otherwise healthy people of their quality of life by making even the simplest of movements painful. This pain is caused by inflammation of the lining of the body’s joints.

How do we treat the illness that affects so many people? On answer is with drugs, such as the “NSAIDs.”

Pronounced “ensayds,” these drugs help reduce pain and swelling in the joints while decreasing stiffness. When taking a low dose, NSAIDs control pain, but higher doses are required to reduce inflammation. The problem with NSAIDs is their side effects. Taking more than one NSAID at a time increases the possibility of heartburn and severe side effects such as ulcers and bleeding. NSAIDs inhibit the blood’s ability to clot properly and may therefore interact with blood-thinning medications such as coumadin. In addition, kidney disease is considered as a side effect. While the over the counter alternatives are safer, they often need to have other remedies used as well to achieve arthritis pain relief.

However, when the NSAIDs do not work, there are other things, less orthodox, to try. Here are a few tips, for arthritis relief.

1. Exercise is a great option at your disposal when looking for natural alternatives for your arthritis pain relief. Walking is especially good; it is easy to do and does not put too much unneeded pressure on the joints. Other forms of exercises that are especially good for arthritis sufferers are balancing types of movements, such as Tia Chi and water walking. While these activities can help build muscle strength, they may cause some discomfort in the joints. If this happens, stop the exercise, if the pain persists more than a couple of days speak with your physician.

2. Rest. As important as exercise is, rest is at least as critical when it comes to arthritis pain control. It is particularly important that you pay attention to your symptoms. If your joints are inflamed and sore, take it easy. Your doctor might advise you to continue range-of-motion exercises, but do not tire yourself.

3. Losing weight is another great way to find some relief from your arthritis pain. That happens because ten extra pounds adds thirty pounds of stress to the knees. Therefore, losing extra weight will be very effective for arthritis pain relief.

4. Heat / cold. Using ice packs can reduce acute pain while heat loosens joints and increases blood flow. Try sitting in a whirlpool before exercising and icing an irritated spot after exercising to provide soothing relief.

5. Researching and using any product that will make your daily life easier, will also indirectly help ease the pain associated with arthritis, reduce discomfort and disability, and, at the same time, reduce your dependence upon others. For example, using a shower seat will allow you to shower without much of the pain that can result from extended period of time standing, or the Foot Funnel, a modern day type of shoehorn, is an assistive device that is been recommended if you have difficulty putting on your shoes. Other helpful examples include cervical pillows, custom-made foot orthotics and canes.

Put these tips into action and you should get at least some relief from the pain of arthritis.

Frequently Asked Questions

  1. QUESTION:
    always exhausted and sick?
    Im always exhausted. I can sleep for 15 hrs and wake up feeling like i slept 2. I have headaches all the time. I occasionally get vertigo for 2 days straight. what could be wrong with me??

    I have juvenile rheumatoid arthritis, lupus,pericarditis, ovarian cysts, medullary sponge kidney, bilateral kidney stones, asthma, and reynaud's phenomenon but my doctors have ruled out all my problems as being the cause of these symptoms. any ideas??

    • ANSWER:
      im guessing your on a lot of medications like prednisolone (steroids) or immunosuppressive medication for your lupus and JRA and they have many side effects and exhaustion and fatigue are common while you are taking these medications. Also, you may have sleep apnea which usually affects over weight ppl but sometimes regular size ppl...what happens is a person would have multiple episodes of no breathing which lasts for for 15 or 20 seconds and this way a persons sleep is disturbed and they actually are wake and then fall asleep so quickly that they dont realize it. And when they wake up for real they calculate when they actually fell asleep and are surprised why they still feel tierd after sleeping that long. To check for that problem you can go to a "sleep lab" where they hook you up with monitors while you sleep the night there and monitor your breathing brain waves.

      good luck

  2. QUESTION:
    Is it normal to have a cyst in your kidney?I have one in each kidney and have had cancer before in the left.?
    I always have blood in my urine,protein,and most of the time i have kidney stones.I've also had kidney failure in the past but i no longer have to get that treatment.I'm just wondering if i should go back to the cancer doc.I'm always in pain from my kidneys and i'm only 27.My liver has also shut down on me before but i got that back 100%,i started having seizures in 2002 just out of no where.Please somebody help me i've been tested for lupus but thats always neg.I know it can take awhile to get a postive one if u have it but does anybody else have anything they can think of?Help would be wonderful. bren

    • ANSWER:
      NO IT IS NOT NORMAL YOU MAY HAVE TO GET IT SURGICIALLY REMOVED...PLZ SEE A DOCTOR

  3. QUESTION:
    I need help understanding my CT Scan results!!!!?
    Here is my 1st CT Scan performed in 2009: There is Hepatomegaly measuring 16.5 cm craniocaudally withnormal hepatic attenuation. No evidence for liver mass. There is a right upper pole renal cortica cyst measuring 2.7 cm in greatest dimension w/calcification within the posterior aspect of cyst. Note is made of duplicated right renal collecting system. Subcentimeter small bowel msentric lymph nodes are noted which are most likely benign.
    Recently I have had very painful, cronic diarrhea with some blood. I went to see a Gastroenterologist who ran multiple tests and found nothing other than slight swelling in intestines and my Sedementation rate was elevated. For a month and a half I have had A LOT of lower back pain in both left and right side. At times it is almost unbearable. I had another CT Scan done this past Wednesday with these results: 2 cm well-circumscribed predominantly fluid density cyst in the posterior mid to superior right renal pole. There is some dependant coarse calcification in its posterior wall. No other cysts seen. There are a few mildly prominent lymph nodes in the central mesentery measuring up to about 8mm in diameter.
    My questions are these: Is there anything that should be considered a concern in these results considering the fact that I have had the same cyst on my right kidney for 2 years? I have a LONG history of cancer in my family (Mother has thyroid cancer) and Lupus, should the lymph nodes or cyst be considered for a biopsy? Please help!
    Also, I dont know how to respond to answers on here if you could tell me how.. THANK YOU SO MUCH!!!

    • ANSWER:

  4. QUESTION:
    could i have a thyroid problem?
    I'm 40 year old female with symptoms of tiredness, cramps extreme exhaustion (no its not the hot weather as I feel cold most of the time).
    2 years ago i was diagnosed with over active thyroid and was put on carbimazole for 12 months - there was no follow up and I have since moved counties and have a new doctor - i dont think the new doctor has my old notes so they wouldnt know to test me. Is it possible that I'm now under active. I have vitiligo since 16 - have also tested positive for an ANA test (lupus test done - negative) - I have low blood sugar problems. Both my mum and sister are under active.

    I walk 3-4 times a week (power walk) up hills etc always have found it difficult but now I'm in severe leg pain as though they cramp up and ache so badly it takes my breath away - just below my calf muscles at the back - why?
    I've had blood test 2 weeks ago and was told anemic so eat more iron rich foods - been doing that now for 2 weeks

    I drink a lot during the day to stay hydrated cos If I miss a drink I get severe headaches and my kidney hurts so I drink at least 4 pints of diluted juice and about 5-6 cups of tea or coffee

    Everytime I go to the docs they tell me - yes your cyst is still there your kidney function (creatinine clearance) is still low - was 66 now 71 should be about 100 I think - yes your legs are swollen but your heart sounds fine your anemic yes - but go home - its as though I am making a fuss. I understand that I should be more assertive and say - Look I know there is something wrong please help me - Sorry to go on - is there anyone who can understand what could be wrong with me - also I cannot shift any weight - it just seems to be going up

    I have since been back to my doctors with all my symptoms (I was assertive) and because I am so breathless when I talk - I was told that all the tests have been done - and - they are concerned about my breathing - the doc thinks I am hyperventilating - she is referring me to a physio - I cannot believe they havent thought about testing my thyroid - I came out of the doctors and broke down crying - I have lost all faith in GP's now and I am seriously considering going private.!!!!!
    well I'[m not sure why someone would just reply with - go private then ........ - is this meant to help me
    thank you both for your helpful replies - I do believe that everyone shouldn't ever feel like they are wasting doctors time as I feel like that everytime I visit mine - maybe its me maybe I research my symptoms and explain what it could be - i know it sounds like I am trying to do the doctors job for them but I'm not I know how important their time is so I stay as little as necessary - i just think I am helping by saying what could be the problem - i'm not though am i

    • ANSWER:
      You have such a multitude of symptoms that it is difficult to identify the possible cause of all of them. The possibilities that initially come to mind are: Diabetes, thyroid function, possibly early menopause/hormone imbalance. It is also highly likely that you are worsening your symptoms by drinking so much coffee and tea. Caffeine will act as a diuretic and contribute to dehydration. You roughly need twice the amount of water to coffee in order to balance your hydration levels. I also suggest that you switch to water rather then juice (even if you dilute you juice).

      You need to take charge of your health and insist on getting the help that you need and perhaps look elsewhere if necessary. We are our own health care managers and we absolutely have the right to fire and find a new doc if we don't feel that they are meeting our needs. Nothing is more important then your health.

  5. QUESTION:
    Achy joints (Serious answers preferably from medical professional please)...?
    Okay, so I'm a medical professional too, but this is not my area of specialty and I'm curious for more information from someone who has personal experience, or from someone who is also a medical professional who knows more about this. Please give sources if you have them.
    Here's the deal:
    I went to the doctor the other day because here lately (for about the last 2-3 mos) I have been EXTREMELY fatigued and just very weak. I also started getting lesions on my scalp and began losing patches of my hair around the hair line. My acne was getting a little worse, irritable off and on, and just overall a feeling that something is wrong. Then, my right thumb started getting really sore around the bottom joint (the joint closest to my palm). I thought maybe I did something to it, so I treated it, but it's not getting better. In fact, it's getting worse. It feels like I need to pop it, but if I pull it or move it a certain way, it hurts really bad. Then, my left middle finger started doing the same thing. It's in the middle joint though. I also sleep on the heating pad every night because my back seriously hurts. Well, what sent me to the doctor out of real concern, is about two weeks ago, I woke up from a nap and came to sit on the couch. I was just sitting there and all of a sudden I started feeling REALLY bad. I got real sick to my stomach, started shaking all over, my limbs felt really heavy, and the thought of moving anything was unbearable. When I finally started feeling a little stronger, I got up to go the bathroom to get a wet rag. When I stood up and began walking, I passed out. I was out for about 2 minutes and woke up very weak. I think maybe my blood sugar dropped, but I am not sure, as I've never been diagnosed hypoglycemic, but the symptoms matched that exactly. I ate some sugary foods, then stabalized myself with some peanut butter and crackers. About an hour later I felt better, but just worn out.
    So, I saw the doctor this last week and she said she felt it was my blood sugar that made me pass out as well, but was not real sure about everything else. She said she's going to test me for rheumatoid arthritis and lupus. She's also going to check my cortisol levels, which I'm assuming is because she thinks my adrenal glands may not be functioning very well.
    I am under a massive amount of stress (no joke), sometimes only get about 3-5 hours of sleep a night, and am required to be active all day. My past medical problems/surgeries are:
    tachycardia
    hypotension
    8 kidney stone removals with stint placement
    gallbladder removed
    appendix removed
    c-section
    anxiety
    ovarian cysts
    endometriosis

    I have no other medical issues that I know of. The medications I'm on are:
    Lexapro
    BCP
    Phentermine (I'm 5'9" tall and weigh 168 lbs currently)

    Is there anyone who knows more about rheumatoid arthritis, lupus, and adrenal disease? Or do you know of anything else that could be going on? I just have a feeling something is wrong inside, but I don't know for sure. I'm having blood work done this week. Just a bit concerned, so any advice, or answers, you may have would be greatly appreciated. Thank you so much!

    • ANSWER:
      I'm sure the reason your doctor is checking your cortisol level is to rule out/diagnose Cushing Syndrome; which fits a lot of your symptoms. Since you already have ovarian cysts, you probably have Polycystic Ovary Disease; your symptoms match there too. Are you around menopausal age? Menopause has a lot of those symptoms too. It is good that you are getting checked for arthritis and lupus too. Another question, how long have you been on the Lexapro? It has a lot of yucky side effects that could be causing some of your symptoms. I've kind of thrown a lot out there but just trying to give you some ideas. I've listed the links to sites about the info I stated above. I hope all this helps. Best of luck!

      Praying you are able to get a diagnosis soon and relief from your symptoms.


Lupus Affects Nervous System

A very high value for the main diseases caused by stress is 80%. An increase in heart rate, blood pressure, glucose levels, adrenaline, cortical, free radicals and oxidative damage are also side effects of stress. You can increase the power of the immune system, addressing your stress factors. In the process of all this stress can disrupt the digestive balance.

What we are seeing is if you can increase the power of the immune system, making things that make you happy, you will be healthier. Immune cells spend much of their lives that circulate in the blood of these systems vessels. Immune optimistic people have been found to fare much better under stressful conditions than those with a negative attitude.

There is no doubt that good nutrition is necessary for a healthy immune system and this means that a variety of healthy proteins, carbohydrates, fats, minerals, vitamins, fluids, etc. The options for food and emotions can have a major impact on your body's ability to keep your energy levels and immune system.
In a study, researchers found that moderate exercise of three or more times per week increased the immune cell count in women treated for breast cancer returns to normal levels, and also improved the mood of women and capacity to handle their feelings comfortably. A healthy immune system regulates our process of healing the body and protects it against infections and diseases. Premature aging and fatigue are just part of the problem with stress and your immune system. Sleep time is when your body and immune system that most of its repairs and rejuvenation. Tea is a drink wonders how these have the ability to strengthen the immune system and fight germs.

Several studies in this area indicate that the physical and emotional stress can be good or bad effects on the immune system response. Autoimmune diseases are a result of this attack and very sensitive to any kind of stress and symptoms worsen during that time. It is also interesting to note that many autoimmune disorders like lupus, thyroid and rheumatoid arthritis disease, occur more commonly in women than in men. A positive attitude, the connection with other human beings, and minimizing stress all have much to do with the health of the immune system, too.

Protect your immune system is a vital part of living longer, feeling younger and being healthy. Healing process of a person is dependent on a healthy system, which also protects against infections and diseases. Stress influences our health so profoundly because of the way it affects our nervous and immune systems. Stress management should be a major concern for a healthy lifestyle. Think of your health for a moment. And also the health of people you know. As we learn to cope with stress is a huge difference in how healthy we are. Studies have shown that how a person copes with stress affects your health.

Frequently Asked Questions

  1. QUESTION:
    What is the difference between Lupus affecting the nervous system and MS?
    What symptoms are different for each? How are they different and how are they the same? How common is it to have Lupus (SLE) and a neurological disorder such as MS?

    • ANSWER:
      Both lupus and multiple sclerosis are autoimmune disease in which the immune system goes haywire and attacks healthy parts of the self.

      In multiple sclerosis, the immune system destroys the myelin sheath or fatty covering of the nerves. This can result in loss of transmission of signals.

      In lupus, neurological symptoms can include things like seizures and neuropathy, or nerve pain. The mechanism by which lupus causes these things is not the same as in MS.

  2. QUESTION:
    I have been possibly exposed to chickenpox, and have lupus, what should I do?
    I found out tonight that my 3-year-old daughter was directly exposed to chickenpox in preschool (one of her best friends has it). They can't disclose who has it, but I did have direct contact with 3 of her close friends Thursday morning....close enough to become infected. I am 39, have severe SLE, mostly affecting my central nervous system, with joint and some skin involvement, and have had some problems with my heart and lungs. I have never had chicken pox, and cannot get the vaccine due to my medical history.

    I am currently in an active flare, with worsening neural problems. I haven't had an LP for this flare, but my symptoms are consistent with previous high cranial pressure. I am due for another round of rituxan, which will stop SLE but destroy what is left of my immune system.

    The rheum. on call advised I get a dose of IGIV ASAP, but it is Fri. night and no ER or UC have any available.

    Is there anything else I can do? Should I worry?

    Thnx.

    Michelle

    • ANSWER:
      Call the doctor on call and leave this message as you have put on here, if there is anything he can do he will call you back. You have serious health problems and normally people don't break out for 2 weeks but you; however, maybe a different story. I wouldn't want to take a chance with your life, and I 'm sure it will affect you a little more than someone with and normal immune system. Good Luck and God Bless You

  3. QUESTION:
    what is lupus?
    Defining Lupus

    A chronic, inflammatory, connective tissue disease that can affect the joints and many organs, including the skin, heart, lungs, kidneys, and nervous system. It can cause many different symptoms; however, not everyone with lupus has all of the symptoms. Also called systemic lupus erythematosus (SLE

    • ANSWER:
      I think you answered your own question. I have Lupus and have had it for a long time. The only thing you didnt put is that it is an autoimmune disease where our own cells attack each other because they become hyperactive, and do not know they are attacking their own healthy cells. So Dr's use immunosuppresents, chemotherapy, and prednisone, to suppress the immune system, in hopes of quieting a flare or pushing it down into remmison,

  4. QUESTION:
    Circulation problems in teenager (long)?
    Hi I'm 16 and female and have circulation problems. First some background information
    when i was 8, my appendix became inflamed while traveling to mexico. It burst and I didn’t get any vital medical attention, so all those little burst particles started rotting out my entire abdomen for the next10-14 days.
    I eventually got help and was left with 2 stomas (removed several months later) and all of these other issues. I had pneumonia, a hernia, bowel obstruction, and I don’t even know what else.
     
    Anyways, problems with my bowel movement have persisted my entire life, usually problems with diarrhea, never issues with barfing.
     
    Beginning at age 11-12 my left pinky toe would become swollen, strangely colored, numb, but also hurt a lot. After a while, my doctor became concerned and noted circulation problems throughout my foot. I had EKG or ECG to show that there was no necrosis and my nervous system was fine. I was just told to deal with my problems, wear socks, and all that.
     
    A couple years later I was tested for lupus, anemia, thyroid disorders, and more- as I was visiting a psychologist who, for diagnosis, needs to eliminate those factors. Results from all tests typical from blood sample were negative.
     
    Now, almost a year after that, I’ve been having circulation problems.
    I became sick over spring and from that, got an ear infection. And somewhere around this time my circulation got worse. I visited the doctor’s after feeling better, and they were concerned about my pulse and blood pressure because I was feeling kind of dizzy. I needed to get back to school, so they couldn’t do anything.
     
    That evening, I had back pains. After lying in bed I started feeling weird lumps in my lower abdominal, on the left side (where I usually don’t have problems because it wasn’t so affected during operations). I took a shower and noticed my stomach was bloated, but the bloats would move in waves.  Those “lumps” in my lower abdomen slowly moved. If I leaned towards a lump, it would be hard to stand back straight up. There was a lot of what seemed like pressure “in between” my rib cage. This lead to me having trouble breathing, shallow breaths seemed “deep,” and I started hyperventilating.
     
    I got out of the shower, and tried making it to my bed with difficulties walking. I lied on my stomach and tried to fall asleep. I eventually did, but in the morning I began throwing up clear substances.
     
    Since then for the past month, I often barf in the morning or feel as if I will. I have had little appetite. When I stand up for more than a few minutes my knees and joints turn purple. In the shower my legs look completely bruised all over, and are nearly black at the knees. I’m usually a little “out of it”—I’m now used to feeling lightheaded on a regular basis. I have a dry mouth and have a lot of cravings for liquids.  My pulse stays around 110. And by now that pinky toe basically has a lot of dead tissue on it. I noticed a lot of blood problems have joint issues too, so Id thought I'd mention I haven't been able to straighten my elbows since I was 12, there's like a calcification
     
    So yeah, I’ve been to the doctor’s, only advice I’ve gotten so far is to elevate my legs. I know I can’t get a diagnosis through the internet, but there are countless issues circulation problems could be from, and I’d like help narrowing them down. Also any vocabulary I should use upon my next visit, or things I should go further into detail about (I haven’t always visited this doc)…?

    • ANSWER:
      sounds like necrotising vasculitis with immune deficiency syndrome, please refer text book, harrison's principles of internal medicine, part 13 chapter 319 and associated chapters.


Lupus Affects Women

I always like to start out by stating I am not a doctor, I am not offering cures or medical advise. I am a concerned citizen who is interested in researching alternative options for health and wellness.

Since the 1930's, American women have been trained to think that a "natural" part of growing older is Menopause, this "disease condition" requiring treatment. If Menopause is a disease, how did millions of women go through history without Hormone Replacement Therapy (HRT) drugs to deal with it? How do women in third world countries handle going through it without HRT's?

Diet plays an enormous part in how we "go through" Menopause. For instance, Shangri-La place in the Himalayas called Hunza Land, famous for longevity to 120 years old, symptoms of Menopause were unheard of.

Natural Phytoestrogens (plant-estrogens) are found in plants like, licorice, soybeans, alfalfa, and many others. Phytoestrogens are weak estrogens and have the ability to block the stronger forms.

In 1966 a best seller, Feminine Forever, by Robert Wilson, a New York Gynecologist, explained that Menopause is an Estrogen- dificiency disease. Insufficient Estrogen supposedly caused women to lose her youth, beauty, cheerful attitude, vaginal dryness, hot flashes, bone density, all at once, with the onset of Menopause. The drug industry in a heart beat donated $1.3 million to set up the Wilson Foundation for the sole purpose of developing and promoting Estrogen drugs. The FDA's approval for sythetic Estrogen was given based on one study. Throughout 1964 and 1965, fueled by advertising powers, Estrogen Replacement Therapy (ERT), a synthetic Estrogen was being popularly prescribed.

In 1975 a little snag came up, findings of increased Endometrial Cancer cases had gone up by 5 times. Unless they had been using the drugs for longer than seven years, then it was 14 times the normal incidence.

WHAT IS ESTROGEN?

Estrogen is really a general term for three seperate Hormones, Estriol, Estradiol and Estrone.

Estrogen is produced in three main places in a woman's body, in the Ovaries, Adrenal Glands and the Fat Cells.

What is Estrogen's Main Purpose? The main purpose of Estrogen is the make the uterine lining, the endometrium, ready to implant a fertilized egg in the event fertilization occures. To aid in this function, Estrogen will promote...water retention, fat storage and maturation of the female adolescent. This is all fine, if pregnancy is likely, but EXCESS Estrogen throws off the timing. Excess Estrogen causes the body to prepare for embryo implantation all the time. This state of over-preparation is the cause of , sluggish blood circulation, migraines, increased clotting, high stroke risk, fibroids, endometriosis, weight gain and a host of other conditions as well as disrupted copper/zinc ratios in brain cells attributing to mood swings.

Estrogen has a sister hormone called Progesterone, whose functions are equally important.

What is Progesterone? Progesterone is the other primary female hormone. It is produced in the ovaries. It is the precursor for both Estrogen and Testosterone. Progesterones functions include, maintaining the endometrium in pregnancy, new bone formation, regulation of blood pressure, fat conversion, sugar metabolism, maintaining myelin sheath (nerve insulation) and regulates the Estrogen Production.

When an egg is presented once a month from the ovaries, wrapped in an envelope called a follicle. After the follicle lets go of the egg, the egg journeys down the Fallopian tubes on its way to the uterus, where it awaits possible fertilization. The burst follicle still has an important job to do: it begins to produce Progesterone, for the next two weeks. Progesterone's job is to maintain the uterine lining until one of two things happen. Pregnancy or no Pregnancy, if Pregnancy occurs Progesterone production is taken over by the developing lining itself - the Placenta. If no Pregnancy occurs, the follicle stops producing Progesterone, which triggers the collapse of the blood-rich lining, which is then expelled as the woman's monthly cycle.

So, these two hormones are responsible for entire infastructure of reproduction. So what then is the problem?

Back to Estrogen Dominance. If Estrogen is too high, Progesterone cannot keep the dynamic of balance. How does Estrogen get too high? Overrefined diets, external toxins from the environment, (xenoestrogens), and lack of excersise. These can raise abnormal levels of Estrogen. Lets focus on Xenoestrogens, or "foreign" Estrogens. Many external Toxins have been found to have Estrogen-like effects in the body, most are from Pesticides and Fertilizers, Petroleum Derivatives, Plastics, Soaps, (foaming agents, hormone laced meat and milk products, etc. This affects everyone on a daily basis, men, women and children. The research has shown that high levels of Estrogen in Men show Gonad shrinkage as well as up to a 50% drop in sperm count, in Women, overdeveloped Ovaries as well as the host of problems listed earlier and in children early onset of Puberty. Progesterone is simply overwhelmed by the dominance of Estrogens.

As Estrogen levels build up to twice the normal level, many systems of the body are adversely affected. Our Body Fat stores Estrogens. Estrogen Dominance can cause Sugar Metabolism Defects leading to Diabetes, Endometrial Cancer is increased by 5-14 times, Osteoporosis, Toxemia ( blood poisoning), leading to autoimmune disorders such as, Lupus, Chronic Fatigue, and Arthritis. The increase risk of Stroke is 50% with extrogen, according to an extensive project, known as the Boston Nurses Questionnaire Study, of 121,000 nurses. Estrogen Dominance can lead to Fibroids, Breast Cancer and it has a detrimental affect on B Vitamin depletion, leading to fatigue, sluggish memory and hair loss. "The only known cause of Endometrial Cancer is unapposed Estrogen," Dr. Lee, author "What Your Doctor May Not Tell You About Menopause."

A growing number of medical researches who do not represent interests of the drug cartels are stepping forward to show that the symptoms of menopause are not caused by too little Estrogen, but by too much. American women arguably are among the most stressed people in history, emotionally and nutritionally, as well as environmentally. It is well known that stress depletes the Adrenal Glands. When this happens, Progesterone is converted to Adrenal Hormones, like Cortisol, to take up the slack and try to keep up with Adrenal demands. Remember Progesterone is their precursor. The result is further depletion of Progesterone, again promoting Estrogen Dominance.

Hormone Replacement Therapy, is this the right option?

There are MANY side effects of HRT (Hormone Replacement Therapy), those of you who have either been on them or researched them know the whole list of possible side effects, many deadly. Synthetic Drugs, even ones that include "Synthetic Progesterone" is not handled by your body like a "Natural Progesterone," one that is bio-identical to your bodies own Progesterone Hormone.

What Solutions are available to combat Estrogen Dominance?

Many of you may have already heard of Natural Progesterone Therapy. This is usually of Topical Cream applied for Transdermal absorption of a "Bio-Identical Progesterone Hormone", one that your body will recognize and utilize. This is extremely important to incorporate into your daily routine to start reducing the effects of Estrogen Dominance.

We also need to focus on eliminating or at least becoming aware of the Xenoestrogens around us and find Alternatives. Many companies now are making Green Alternatives, including Natural Pesticides, SLS Free Shampoo's, Soaps, Laundry and Dishwashing Detergents, Himalayan Salt Crystal Lamps, (which help combat negative ions in the air), Air Purification and Water Filtration, (filtering Chlorine & Flourides from your bathing and drinking water), Organic Clothing, (processed without chlorines, dyes and chemical agents), Solar options to try and avoid emitions from electronics, and much more. Also, supplementing with B Vitamins that can become depleted through Estrogen Dominance and the usage of an Organic Natural Progesterone Cream. One that I have found is NATPRO, an Organic All Natural Progesterone, made in the USA and available at http://www.mysmartalternatives.com

There are also, many of the other Green Alternatives and Supplements available at that website that you can start making positive changes to a healthier you!

I hope some of this information was helpful and can lead you to do some of your own research and educate and explore what options may be available to avoid the need for HRT's. I would like to explore in a future article more in depth information on HRT's and Health Related Issues to long term and in some cases short term use of these types of drugs.

Frequently Asked Questions

  1. QUESTION:
    Systemic lupus erythematosus is a condition that sometimes affects young women. It is a .....?
    chronic (persistant) inflammation that affects all or most of the connective tissue proper in the body. Suzy is told by her doctor that she has lupus, and she asks if it will have widespread or merely localized effects in the body. What do you think the doctor will answer and why?

    • ANSWER:
      And the reason you are asking the same question over and over is????????????????

  2. QUESTION:
    What is lupus, and what does it affect?
    I know lupus affects a lot of women, and I know it must be bad, but I don't really know what it is. Can someone explain it?

    • ANSWER:

  3. QUESTION:
    What are the chances of a person undergoing chemotherapy for lupus getting a girl pregnant?
    I'm aware that the lupus chemodrug Cyclophosphamide is known for killing your sperm count and ruining sperm motility, at least temporarily.

    How good are your chances of concieving a child? If they're pretty low... anyone have an idea how long it takes to recover your counts?

    I spoke with my doctor about this, but he says that since Lupus is a disease that affects far more women than men, it's hard for him to say with any assurance.

    • ANSWER:
      there are other therapies which will help more with this problem and the only reason you are being recommended that route is because of profit
      look into what edgar cayce said on lupus
      spiritual healing and reiki can help too
      not to mention
      bob beck protocol
      raymond rife machine may help too
      google search them all

  4. QUESTION:
    Systemic lupus erythematosus??
    Systemic lupus erythematosus(often simply called lupus) is a condition that sometimes affects young women. It is a chronic (persistent) inflammation that affects all or most of the connective tissue proper in the body. Suzy is told by her doctor that she has lupus, and she asks if it will have widespread or merely localized effects within the body. What would the physician answer?

    • ANSWER:
      Lupus is unpredictable and can range from mild to severe and life threatening. Lupus can also affect virtually every organ in the body. Additionally, lupus is a flaring remitting disease but at this point in time is not curable.

      If Suzy receives regular medical monitoring and follows her treatment regimen she can minimize the likelihood of serious organ damage.

  5. QUESTION:
    How many people in America suffer from Antiphospholipid Antibody Syndrome, and what is the life expectancy?
    It is a rare hypercoagable blood disorder that I suffer. It affects mostly women, and is often associated with Lupus.

    • ANSWER:
      Women are more likely than men to be affected by Antiphospholipid Antibody Syndrome. Some estimates say that 75% to 90% of those affected are women. For example, it has been estimated by some doctors that one third of all of young strokes (defined as under the age of 50) are due to Antiphospholipid Antibody Syndrome. In obstetrics it is estimated by some doctors that up to 25% of all women with 2 or more spontaneous miscarriages have Antiphospholipid Antibody Syndrome. It is also believed by some doctors that 1 in 5 of all Deep Vein Thrombosis (DVTs), Pulmonary Embolisms (PEs) and even worse, amputations are caused by Antiphospholipid Antibody Syndrome. And it is believed that 10-15% of patients with Lupus also have Antiphospholipid Antibody Syndrome.

  6. QUESTION:
    This is a lot to ask, I know. But if someone could review my APA paper I would GREATLY appreciate it. ?
    I think my greatest problem is with grammer errors and my in-text citations. Also, all of those citations that repeat themselves look funny to me. They can't be right? Can they? I'm also confused with secondary citations. I think they're a no no but I can't get a clear answer on what they are. Here's the paper. Please kindly review if you'd like. I'd love yah for it.

    Kisses
    Mandi

    (Title page not included)

    Introduction
    Lupus is an autoimmune disease that permits the affected body to build antibodies to attack its own cells as if they were foreign. There are three main types of lupus. They are discoid, drug induced, and Systemic lupus erythematosus (Encyclopedia Britannica, 2009). Doctors must be careful in diagnosing lupus since it can easily be confused with other diseases (Rahman & Isenberg, 2008). Lupus is capable of attacking any part of the body but for the most part it mainly affects the skin, kidneys, joints, heart, gastrointestinal tract, and serous membranes (Encyclopedia Britannica, 2009). The cause of Lupus is currently unknown. Lupus truly is a sickness of mystery since the cause and cure have currently been unidentified. However, there are known genetic (Encyclopedia Britannica, 2009) and environmental (Rahman & Isenberg, 2008) aspects that have been known to trigger this illness. On an inspiring note, there is presently a study being conducted with mice in search for the cure of lupus.

    Discussion
    Lupus is an autoimmune disease that is known to be a chronic (continuous or reoccurring) inflammatory illness that has the ability to attack any region of the body (Encyclopedia Britannica, 2009). The symptoms of the disease are painful or swollen joints and muscle pain, unexplained fever, red rashes, chest pain when breathing deeply, loss of hair, pale or purple fingers or toes from cold or stress (also known as Raynaud's phenomenon), sensitivity to the sun swelling in legs or around eyes, mouth ulcers, swollen glands and extreme fatigue (WebMD, 2008). Those that suffer from lupus may never have the same symptoms as another person with the disease (Encyclopedia Britannica, 2009). However, the most common areas of the body affected are the skin, kidneys, joints, heart, gastrointestinal tract, and serous membranes (Encyclopedia Britannica, 2009).. Also in most cases in order for a doctor to diagnose lupus the patient must illustrate at least four (Encyclopedia Britannica, 2009) of the listed symptoms.
    The actual cause of the disease is unknown. However, there are genetic and environmental characteristics that could trigger lupus to develop. Many patients that suffer from lupus have a genetic association with the disease (Encyclopedia Britannica, 2009). Lupus could be the result of mutated genes of interferon and the genes that play vital roles in regulating the immune response (Encyclopedia Britannica, 2009). If a patient has a genetic link to lupus there are also environmental aspects that could trigger lupus. They are infection, ultraviolet light, certain drugs like; procainamide, hydralazine, and quinidine (Rahman & Isenberg, 2008), and extreme stress (Encyclopedia Britannica, 2009). Factors that potentially contribute to the progression of lupus are interleukins and interferons (immune molecules). Interleukins and interferons have been shown to control the autoantibody release in response to certain bodily stimuli (Encyclopedia Britannica, 2009).
    Lupus commonly affects women, African Americans, and Asians more than any other group (Rahman & Isenberg, 2008). Since 90% of all patients with lupus are female, women between the ages of 15-50 should be tested for lupus if they portray at least one of the symptoms (Rahman & Isenberg, 2008). Also, there is an increased risk of lupus in people who already have the Epstein-Barr virus. (Rahman & Isenberg, 2008)
    The healthy immune system’s mission is to protect the body from infections and foreign objects within the body. When the immune system is working properly it will recognize the foreign bacteria, virus, or objects as non-self. Upon recognition that something does not belong, it will build antibodies against the unwanted agent, attack and destroy it (Marieb, 2009, p. 408 & 410). However, the activities of the immune system are much different when the body is affected with lupus. Instead of the body producing antibodies against foreign bacterial that do not belong, the immune system will produce an autoantibody that attacks the body’s own cells and tissues. The reason for this is because they can not recognize their own cells or tissue as self. When an autoantibody attack occurs, the autoantibodies will attach themselves to various tissues and cells (Rahman & Isenberg, 2008). When this happens the body’s inflammatory response occurs. The same thing happens when we have been hurt and the tissue has truly been damaged.
    There are a few different ways Lupus can affect the body, for example in nearly all individuals that suffer from lup

    • ANSWER:
      It's a pretty good paper but in the beginning you made an error. There are four types of Lupus. Neo Natal (babies), Drug Induced, Discoid and Systemic. Then after that you should state that your paper is talking about Systemic Lupus because they symptoms you go on to describe are those of Systemic Lupus. Your citings follow the APA guidelines. I couldn't see the entire paper as it got cut off. Also couldn't see your works cited page. You don't show any quotation marks so I'm assuming that you didn't plagerize any of the information directly from the material.

  7. QUESTION:
    What are the signs/ symptoms that you might have lupus and how do they test you for it? My lower back?
    has not been healing up and its been 1 year I am fixing to be refereed to a specialist and I am beginning to think it may be lupus. Lupus runs in my family in the women side. I have lost 2 relatives to lupus and I have several relatives suffering from it. What are the symptoms of lupus? Can it affect the lower back? How do they test you for it? Can a MRI detect if you have lupus or not? What about a blood test can it detect it?

    • ANSWER:

  8. QUESTION:
    I caused my Lupus?
    A woman I know that had Lupus ten years ago said she mentally made her white blood cells fight her Lupus and that's how she went into remission. She had Lupus for just over two years. Now she gets an occasional mouth sore and achy joints.

    This woman said I caused my Lupus and that all Lupus is the same just in different degrees of how it affects you. I have Lupus nephritis (of the kidneys) and when not on medication I have antibodies detected via blood tests (Complement 3 and 4) that are attacking my kidneys. Without medication I would die. I have the typical really bad joint pain to the point of not being able to walk at night or move my hands. I have sharp kidney pains that stab me once in a while and really scare me. I am doing all right though.

    Did I cause my Lupus? Did I make this happen? This woman says I did. She is crazy?

    • ANSWER:
      Dude, she's crazy. I wouldn't even talk to her, unless you do so to be amused. No need for that kind of hysterical negativity in your life.

  9. QUESTION:
    Anatomy&Physiology Homework Help needed.?
    Systemic lupus erythematosus (often simply called lupus) is a condition that sometimes affects yound women. It is a chronic (persistent) inflammation that affects all or most of the connective tissue proper in the body. Suzy is told by her doctor that she has lups, and she asks if it will have widespread or merely localized effects within the body. What would the physician answer? and why.

    • ANSWER:
      Since this is an A and P class, not Rheumatology, the answer involves where connective tissue is in the body. Basically, it's everywhere. It's true that Lupus is variable in symptoms from patient to patient, but it has the potential to cause inflammation in essentially the entire body. The answer is the effects will be widespread, due to the wide spread nature of connective tissue in the body.

  10. QUESTION:
    Anyone understand anatomy?
    1. Systemic lupus erythematous (often simply called lupus) is a condition that sometimes affects young women. It is a chronic (persistent) inflammation that affects all or most of the connective tissue proper in the body. Suzy is told by her doctor that she has lupus, and she asks if it will have widespread or merely localized effects within the body. What should her physician answer?

    2. Mrs. Lindsey sees her gynecologist because she is unable to become pregnant. The doctor discovers granulation tissue in her vaginal canal and explains that sperm are susceptible to some of the same chemicals as bacteria. What is inhibiting the sperm?

    Please help!!

    • ANSWER:
      1 - systemic means it affects the whole body. the effects will be widespread (muscoloskeletal, cardiac, dermathologic, hemathologic...)

      2- it probably is an actinomycosis, but i do not know what molecule exactly is inhibiting the sperm

  11. QUESTION:
    Lupus ??? .(more info)?
    I'm a Hypochondric Person, . I know that this disease is a "woman's disease"(but can also affect Men) , i just want to make sure that i will not develop this disease, >>
    What are the main causes of Lupus ??
    Is Lupus is heredity ?
    Is Stress,depression and Anxiety can trigger Lupus ???
    What drugs can trigger Lupus ?
    And how to prevent Lupus ?

    • ANSWER:
      Lupus is an autoimmune disease. Which means basically that your immune system attacks not only viruses and bacteria, but healthy tissue as well. Doctors don't know for sure what causes the immune system to do this. It's probably a combination of your genetics and environment. That's what they think.

      You can inherit a predisposition to lupus, but not necessarily lupus itself. If you have a predisposition it can sometimes develop into lupus.

      Stress can cause the symptoms of lupus to be worse, and can cause the first appearance of lupus, but I don't think stress by itself causes the immune system to go crazy.

      There are a few drugs that can trigger lupus, like drugs for high blood pressure, or TB, or anti-psychotics, but usually that's after long term use of such drugs

      Since it's an autoimmune disease, and doctors don't really know what causes those, there's no way to prevent lupus, especially if you have an inherited predisposition to it. There are certain things that can help prevent flares, but not prevent lupus itself.

  12. QUESTION:
    Joint swelling and pain, stiffness, and fatigue- but it's not Lupus or R.A. What is it???
    I am a 34 year old woman, and I have suffered from bouts of sever, unexplained, sudden joint pain and swelling since my mid 20's. The flare ups occur a couple to a few times per year, and usually affect my wrists, elbows, fingers, toes, or ankles. I have also experienced it in my hips and my neck. The flare ups are usually resolved quickly when treated with steroids. But, the joints of my arms and hands are almost always tender now. Recently, I have been losing hair at an alarming rate. I have been tested for everything from Lupus to R.A., and have been told that I am negative for everything. My mom (now 66) suffers from the same condition, and had also gone undiagnosed since her 20's. We are told that, on paper, we are the picture of health. If I'm so healthy, why do I feel like crap?

    • ANSWER:
      I was undiagnosed then misdiagnosed for years. I have spondylar arthritis. It's hard to diagnose these autoimmune diseases because it's a process of elimination. Keep complaining to your rhuematologist. Keep a record of your flare ups and what parts of your body they affect. It's the squeaky wheel that gets the grease. Even though they didn't really definitely diagnose me with RA, they finally thought I might be working on getting it (blood work was elevated but not severely). After one miserable vacation that was spent mostly in bed, I went to the rhuemy with a list covering the front of a notebook page. They finally started me on plaquenil, voltaren, and sulfasalazine. It took almost 5 months for the meds to kick in, but now I'm about 90% better. Good luck to you. You may need to find a different doctor. Best wishes.

  13. QUESTION:
    is this a good research project please be honest?
    Cortlin Harrison Science 10-12
    Mrs. Cooney/ Mrs. Barends ELA 21-23
    May 19, 2009
    Antiphospholipid Syndrome

    Antiphospholipid Syndrome is a disorder in which the body recognizes certain normal components of blood and/or cell membranes as foreign substances and produces antibodies against them. This disorder is non-infectious which means that this disorder can’t be passed from person to person by contact. Pregnant women are more prone to get this disorder than anyone else, and African Americans, and Hispanics but like other disorders anyone can get Antiphospholipid Syndrome

    The symptoms and characteristics of this disorder are not hard to spot. Some symptoms of the disorder are veins or arteries of the arms or legs may cause pain, numbness, tingling in the feet. Arteries of the heart may cause chest pain or heart attack, the individual with this disorder may have heart murmur. In pregnant women with Antiphospholipid Syndrome, miscarriage can occur prior to 20 week of gestation, while pre-eclampsia is reported to occur after that time. Blood vessels of the skin - may cause painful bruises (purpura) or a condition called livedo reticularis. Blood vessels of the brain - if a clot cuts off blood supply to a part of the brain, this causes a stroke. An individual with APS may also experience migraine headaches or seizures.

    There is no cure and there is no way to avoid getting this disorder. There are many treatments for this disorder. But the most successful treatment is anticoagulant therapy. This is usually successful in preventing further blood clots. This disorder can severely damage the body in many different ways because good cells attack other good cells and that causes chaos through the body. And when a weak or strong pathogen enters the body it can be deadly.

    Some other information about Antiphospholipid Syndrome is, 1-5% of the world population is known to have this disorder, and 40-50% of patients with lupus also have APS. One third of strokes occurring in younger people (under the age of 50) are due to Antiphospholipid Syndrome. One third of patients with Antiphospholipid Syndrome are said to have lupus, and or Raynaud disease. APS is more common in young to middle-aged adults; however, it also manifests in children and elderly people. Disease onset has been reported in children as young as 8 months.

    This disorder is very rare and not very deadly but this disorder can still affect your way of life, the way you think, and can make you dizzy and other things. My mom has this disorder and sometimes it’s hard to get around and such, but you can still fight back by eating a healthy diet and seeing a special doctor called a Rheumatologist, this doctor specializes in these types of rare disorders.

    • ANSWER:
      very cool research project!
      Especially when someone yu kno very well has it...

  14. QUESTION:
    think im jealous of my friends?
    is it normal to feel jealous of your bestfriend, ok the thing is i am not a high school student going through raging hormones i am a 28 year old woman, me and my bestfriend have known eachother since i was 8 and she was 6 we’ve been bestfriends for about 13 years. i feel myself become jealous of her we both have a disability called cerebral palsy and we both use wheelchairs and we are both apart of the LGBT community(shes a lesbian and im pansexual)but people seem to accept her more shes extroverted very friendly and seems to have know problem in the dating area and shes also society’s definition of ethnic pretty(she has an hour glass shaped curly hair pretty skin and shes puerto rican) i’m a very introverted person very shy, dont really have much confidence and i have low self esteem(i suffer from depression) i take medication that makes me eat so i’m a bit on thicker side, have have lupus and that affects my skin sometimes so every now and then i’ll get rashes and on african american skin it looks horrible, i compare myself to her all the time and when she tells me things i’m hapy for her on the outside but im dying of jealous shes the lucky how do i get over the this please its really affecting me emotionallly and i dont want to tell her cause i dont want to make her feel bad actually im jealous of a few of my friends the ones that i think are doing better than myself

    • ANSWER:
      I'm sorry you feel this way, but be reassured, it's pretty normal. We all get jealous.

      It sounds like you have a really good friendship with her. You seem to be able to share your experiences and I know, when you have a physical disability it makes such a huge difference to be able to talk about it with someone who understands!

      I'm sure that you have many qualities that your friend envies. And I'm sure your friend also feels a bit insecure about many things that you wouldn't even think about!

      I guess what I'm trying to say, is that unfortunately or fortunately we are in the position we are in life. There are things we can't change and there are things we can. Looks and our health are things that we can't really change, but our attitude we can. Consider how lucky you are to have good friends =]

      ....

  15. QUESTION:
    Breast Enlargement Idea ~I'd like some feedback~?
    PLEASE READ, THIS IS VERY BENEFICIAL. I've spent hours upon hours reading different ways to increase breast size.
    The pills are worth hundreds of dollars, with only a slight chance of working, why would you do that? Also with breast enhancement pills, there are other ingredients in those pills the manufacture isn't making completely known, only after doing research on different pills have I found out what is in them. Some have little bits of harmful ingredients while others are completely filled. Some are made all natural, but still have that little hint of danger, and still, are all expensive.
    Breast Augmentation is something completely different. Costing a range anywhere from 00-,000. Going under the knife, leaves scars and sometimes unevenness. Would you really waste 00 on lopsided breasts? Good idea for some, not so for others. Either not having the money, or the dangers involved. They do say breast augmentation has gotten safer over the years, but still, there is ALWAYS a danger with any type of surgery.
    Between the pill and the surgery, I've considered one, then the other, then back to one. I'm unhappy with the size of my breasts, and I always have. I can easily have the money for surgery, but don't want the scars, I'm not wasting money on pills that can damage my health and have no affect on my bust.
    So, sitting and reading on what affects breast and their growth, I've read a few good things.
    -Estrogen is a hormone that comprises a group of compounds, including Astron, Estrada and Estrella. It is the main sex hormone in women and is essential to the menstrual cycle. Although estrogen exists in men as well as women, it is found in higher amounts in women, especially those capable of reproducing. Anyways, when you're pregnant your estrogen levels rise, and well, your breast are noticeably larger. After reading and confirming, estrogen is the main hormone connected with breast growth. If you want larger breasts, here's what you can do:
    Start eating different foods that have a higher level of estrogen. Apples, Cherries, Grapes, Tomatoes, and Pomegranates all have a good amount of estrogen. Apples especially. Alfalfa has high traces of phytoestrogens which is called dietary estrogens. Which means it acts like estrogen. Soy is also very high in estrogen, but a warning, soy extracts are BAD for you. If you are going to eat soy, cook your own soy, no soy extracts. Protein laden foods such as: fresh milk, fish, soy products, nuts and seafood, are also said to increase bust. Very last, flaxseed oil! Flaxseed oil is high in fatty acids and omega 3, 6+9. Very good to take for breast enhancement. And if in the end you don't see you bust grow, flaxseed oil capsules also:
    Lower cholesterol, protect against heart disease and control high blood pressure, Counter inflammation associated with gout, lupus and fibrocystic breasts, Control constipation, haemorrhoids, diverticular disorders and gallstones, Treat acne, eczema, psoriasis, sunburn and rosacea, Promote healthy hair and nails, Minimise nerve damage that causes numbness and tingling as well as other disorders, Reduce cancer risk and guard against the effects of ageing, Treat menopausal symptoms, menstrual cramps, female infertility and endometriosis, Fight prostate problems, male infertility and impotence.
    All the food I've listed are healthy, and are not harmful to your health. Also, if you plan to change your diet, as with any diet do not do it in an extreme way. Slowly work the different foods into your already existing diet, this is best for you and your body.

    • ANSWER:
      I think that's great advice. You did a great job with the research, information and such.

  16. QUESTION:
    Have you done your H1N1 (Swine Flu) shot research? Read this.....?
    My bf did research on a article....kinda long but important, just do a quick read and you see the important parts!!!

    Excerpts from TORONTO STAR article:
    Pregnant women will get a shot of Aussie H1N1 vaccine
    October 27, 2009

    OTTAWA–Pregnant women will be able to get an alternative version of the H1N1 vaccine by early next week.The Australian imports do not contain adjuvant – a substance added to the vaccine to stretch supply and boost immunity. (YOU HAVE TO ASK YOURSELF, WHY CAN'T ALL OF OUR VACCINES BE OF THIS KIND?)

    The adjuvant used in most of the 50.4 million doses being produced by GlaxoSmithKline Inc. at its plant in Ste. Foy, Que., is a mixture of squalene (derived from fish oil), tocopherol (containing vitamin E) and an emulsifier called polysorbate. (SO WHAT ARE THEY NOT TELLING US? WELL LETS DO OUR OWN LITTLE RESEARCH. LET'S LOOK BELOW

    Sweden's Karolinska Institute found that on injection, an "otherwise benign molecule like squalene can stimulate a self-destructive immune response," even though it occurs naturally in the body.

    Other research shows that squalene is the experimental anthrax vaccine ingredient that caused devastating autoimmune diseases and deaths for many Gulf War veterans from the US, UK, and Australia, yet it continues in use today and for new vaccines development in labs.

    Other autoimmune diseases are also linked to humans injected with squalene. "... squalene-based adjuvants can induce autoimmune diseases in animals...observed in mice, rats, guinea pigs and rabbits.
    -Micropaleontologist Dr. Viera Scheibner conducted research into the adverse effects of adjuvants in vaccines and wrote:

    Squalene "contributed to the cascade of reactions called "Gulf War syndrome. (GIs developed) arthritis, fibromyalgia, lymphadenopathy, rashes, photosensitive rashes, malar rashes, chronic fatigue, chronic headaches, abnormal body hair loss, non-healing skin lesions, aphthous ulcers, dizziness, weakness, memory loss, seizures, mood changes, neuropsychiatric problems, anti-thyroid effects, anaemia, elevated ESR (erythrocyte sedimentation rate), systemic lupus erythematosus, multiple sclerosis, ALS, Raynaud's phenomenon, Sjorgren's syndrome, chronic diarrhea, night sweats and low-grade fever."

    The Washington Post also confirmed that the H1N1 flu vaccine l contains the mercury derivative thiomersal, a toxin linked with autism and neurological disorders.

    The swine flu shot ingredients also include formaldehyde, a known carcinogen, and Polysorbate 80, a preservative which causes infertility in mice.

    -polysorbate
    It is toxic and should not be eaten, drunk, put on the skin or injected.

    Polysorbate 80 is a ubiquitously used solubilizing agent that can cause severe nonimmunologic anaphylactoid reactions."

    Put in plain English, polysorbate 80 can affect your immune system and cause severe anaphylactic shock which can kill.

    THIS IS ONLY THE TIP OF THE ICEBERG OF REAL PROFFESIONAL RESEARCH
    ALL YOU HAVE TO DO IS A LITTLE RESEARCH YOURSELF AND YOU'LL GET THE TRUTH
    so do you really want to drink the kool-aid now?

    SO my question is...how many people are planning to get this shot without knowing what is in it? What are your thoughts on the shot?

    Thanks everyone!
    Anything AFTER the LOOK BELOW is outside research not from the article, the article tells you that it is safe, yet research can show otherwise.

    • ANSWER:
      You have been mislead by the anti-vaccine propoganda machine. With their half-truths and inflammatory language they have been deceiving the public for too long. I also think you need to reconsider your use of the phrase "real professional research".

      Were you aware that vaccines that don't contain adjuvants have to have far more toxin (antigen) in them than vaccines that have adjuvants? We use adjuvants to be able to provide a vaccine with less toxin and still get the same immune response. Why can't all our vaccines be like that? There is the answer.

      The studies you mention are being taken completely out of context and many of them cannot be applied to the presence of these substances in vaccines. (I checked up on your sources..ps. The Karolinska Institute thesis where the info was derived from does not say what you say it does...it is being horribly misinterpreted by people without a scientific knowledge base) It's like providing someone with the toxicity information of formaldehyde in mass quantities (it can cause this and that and do this....ooooh it's so scary) and talk about that in relation to vaccines that MAY contain microscopic traces of formaldehyde in them, and ignoring the fact that an infant has 10x more formaldehyde coursing through his/her veins produced as a metabolic intermediary than could be found in 10 vaccines. Do you see how this information is easy to misconstrue? Formaldehyde that may be present in some vaccines cannot cause cancer. Why is there formaldehyde traces in vaccines.....they prevent bacterial and viral contamination. Before the inclusion of formaldehyde in the production process (again only trace elements of it are left, if any at all, in the final vaccine product).....people died from bacterial contamination of vaccines. The only people at risk are those who are allergic to formaldehyde and I have not heard reference in the literature to this allergy being common.

      This is one of the main tactics behind the propganda machine. Twisting things and using studies out of context, or using studies that are not scientifically sound and have not been peer-reviewed. And, the general public is not informed enough to be able to be critical of the information and so are easily mislead by the lies and inflammatory language

      Saying that squalene was responsible, or even "contributed to the cascade" with deaths/illness in Gulf War veterans who received Anthrax vaccinations is patently untrue and completely innacurate. There have been no deaths caused by squalene in vaccinations. A micropaleontologist provided that gem of a quote, I see. Are you aware of what a micropaleontologist is? Hint hint: paleontology is the study of the forms of life existing in prehistoric or geologic times, as represented by the fossils of plants, animals, and other organisms. She sounds super-qualified to be doing research on vaccines!

      Saying that squalene in vaccines has induced autoimmune diseases (they are referring to arthritis which is an AI disease) happened when the mineral oil was applied generously to the exterior of these animals' mucosal membranes in quantities so much larger than what would be contained in a vaccine.....again with the twisting.....

      Oh, and ANY foreign substance can cause severe anaphylaxis if you are allergic to it.....but in the context of what you were writing it makes it seem like it is common and very scary. Squalene has not, to my knowledge, ever been associated with allergies in large amounts of people (or even a smallish number of people)

      And PLEASE, mentioning the "link" between autism and other neurological disorders......which is again, hogwash. No link has ever been established. And how is information on this being twisted by the anti-vaccine propaganda machine?. Check out the difference between methyl mercury and ethyl mercury...one of which is a possible ingredient in some vaccines and the other (VERY DIFFERENT) chemical is what causes environmental neourological disorders when a person is exposed for a lengthy time. Often when the anti-vaccine propaganda machine uses information about mercury...they forget to tell people the information they are providing is for a completely different chemical. Ethyl mercury (thimerosal) has been shown to clear the body very quickly. Methyl mercury (not used in vaccines, but found in some industrial workplaces) is a chemical that our body's cannot clear quickly and which result in long term exposure. We know, conclusively, that mercury causes brain damage only through long term exposure. Ethyl vs. methyl.....didn't see you talk about that in your post. The link does not exist.

      And now to address polysorbate 80. Polysorbate 80 is an emulsifier and solubilizer that is used in MANY foods (including ice cream) and is used in MANY medications that are given using an IV. Ever had IV meds before?

      In conclusion, your data is bogus and at the very least, taken completely out of context. The real professional research you have done has been to visit websites created by the anti-vaccine propaganda machine and taken the bait hook, line, and sinker.

      My problem with your posting has to do with the fact that you are passing on the lies and misinformation that will end up causing more deaths and anguish. That is dangerous, unethical, and egregious. Please stop spreading lies.

  17. QUESTION:
    What could cause a low white blood cell count, High BUN levels, and high blood pressure/heart rate?
    I am a 27 yr. old female. Not over weight. Very healthy. Before I had my son, my blood pressure was generally 100/70 range, since I had him it stays pretty high (140/90) sometimes actually higher and sometimes lower than normal. I went to the dr. because my blood pressure was 170/111. My heart rate was 115. It scared me. I have a sore throat, so I don't know if I am sick or not. No fever. Anyways, the blood test results said my white blood count was 4100, which is on the low side. It also said my BUN levels were at 20 on the high side. The dr. is not worried. He said that it was all normal and didn't suggest any problems. The EKG was normal. He let me go with no medicine for BP stating that sometimes especially younger women have SVP and they will have fast heart rates and high BP for no reason. I have normal blood pressure about half the time and the other half its sky high. No happy medium. I have been on birth control for years, so I'm wondering if it is affecting my blood pressure? Should I worry about the low white blood count? I've had an HIV and Lupus test which are two main causes of low WBC, but they were both negative. What could be causing it? I went ahead and made another appt. with another dr. I mean, is it safe for my BP to be running high and not do anything only because I am young?

    • ANSWER:
      I think you need to confront the doctor again, he sounds rather unimpressing. At 27 you should not have that high a blood pressure at any time, and no it is not common for it to happen for no reason, he was really off on a statement like that. With an elevated BUN, my concern would be for renal hypertension. If your regular doc won't help you , see either a urologist or a cardiologist but do something to get the pressures under control.
      Then get a book, it's written by Dr. Louis Ignarro (Nobel prize winner for this work) it's titled NO More Heart Disease, and he addresses the reasons and homeopathic treatment for vascular disorders, like heart disease and hypertention. I read his book, started taking the supplements he recommends and I got off my blood pressure meds altogether. But first get those pressures under control, then you can try the supplements to see if you can keep it under control without prescriptive meds, or at least lower doses of prescriptive meds.

  18. QUESTION:
    UNUSUAL SYMPTOMS- NO RIGHT DIAGNOSIS?
    MY DAUGHTER (24 YEARS OLD NOW) HAS BEEN SUFFERING FOR 2 YEARS WITH BACK PROBLEMS, (STARTED AS A LOW BACK PAIN) THAT EVENTUALLY AFFECTED HER KNEES, LATER ON... HER RIGHT HIP, GROIN, PELVIS, NECK AND SHOULDERS.... AND NOW BOTH ARMS AND HANDS GET TINGLING AND ALSO NUMBNESS!
    I HAVE SPENT THOUSANDS OF DOLLARS IN MEDICAL BILLS.... SHE RECEIVED SPINAL DECOMPRESSION (LIKE 50 TREATMENTS) FOR A MILD ANNULAR TEAR OF THE LUMBAR SPINE AT THE LEVEL OF L4 AND L5..... THE SPINAL DECOMPRESSION WAS DONE ON A MACHINE CALLED THE DRX9000...
    SHE HAS BEEN DIAGNOSED HAVING A TILTED PELVIS, HAVING A LEG LENGTH DISCREPANCY, ETC....SHE HAS BEEN GIVEN ORTHOTICS TO WEAR, AS WELL AS A HEEL LIFT.... AND ABSOLUTELY NOTHING HAS HELPED HER.... I BELIEVE THE MILD ANNULAR TEAR IS ALREADY HEALED...... BUT SHE CONTINUES EXPERIENCING NUMBNESS AND TINGLING DOWN THE BACK OF HER THIGHS ..... "ESPECIALLY" EVERY TIME SHE TRIES TO SIT....
    SHE HASN'T BEEN ABLE TO SIT FOR OVER A YEAR NOW....WE HAVE SEEN NEUROLOGISTS, SEVERAL CHIROPRACTORS, PHYSICAL THERAPISTS, ACUPUNCTURISTS, MASSAGE THERAPISTS, DEEP TISSUE MASSAGE, ACUPRESSURE, ETC, ETC, YOU NAME IT!!!
    SHE HAS HAD MRI'S DONE ON HER NECK, PELVIS, HIPS, AS WELL AS X-RAYS.... SHE HAS BEEN CHECKED FOR SACROILIAC JOINT DYSFUNCTION, AND NOTHING LOOKS ABNORMAL.
    UP TO THIS DATE WE DON'T KNOW WHY SHE IS HAVING ALL THOSE SYMPTOMS, AND ESPECIALLY GROIN AND HIP/PELVIS PAIN... SHE HAD BLOOD TESTS DONE FOR , JUVENILE ARTHRITIS, LUPUS, LYME DISEASE, ETC, ETC....EVERYTHING COMES BACK NEGATIVE....
    SHE HASN'T HAD AN ACCIDENT OR SPORT INJURY, SHE HASN'T FALL ON HER BACK EITHER......"THIS" ALL STARTED WITH LOWER BACK PAIN THAT PROGRESSIVELY AFFECTED OTHER PARTS OF HER BODY.... MANY DOCTORS HAVE TOLD ME THAT SHE HAS A TILTED ROTATED PELVIS.... AND A LEG LENGTH DISCREPANCY... BUT YET "NOT ONE DOCTOR" HAS BEEN ABLE TO HELP HER...SHE LIVES IN CONSTANT PAIN...AND THE RIGHT SIDE OF HER BODY SEEMS TO BE MORE AFFECTED BY THIS....BEFORE ALL OF THIS SHE WAS A HEALTHY COLLEGE STUDENT WITH NO HEALTH PROBLEMS WHATSOEVER!...HER LEG LENGTH DISCREPANCY IS ONLY 1CM... NOT THAT MUCH!
    .IT'S JUST VERY STRANGE THAT A YOUNG WOMAN WOULD GET ALL OF THIS PAIN AT ONCE.....TINGLING OF BOTH ARMS AND HANDS MIMICKING CUBITAL AND CARPAL TUNNEL SYNDROME..... SHE ALSO SUFFERS FROM A STIFF NECK AT TIME...I TRULY BELIEVE THAT THIS IS A CHAIN REACTION FROM HER PELVIS BEING MISALIGNED AND PERHAPS THERE'S SOMETHING WRONG WITH HER SACROILIAC JOINT THAT NO ONE HAS BEEN ABLE TO DETECT......

    I'M IN DESPERATE NEED OF AN OPINION
    I wanted to add that she has been checked for neurological disorders and she doesn't fit in that category, as well as Rheumatoid Arthritis... A few doctors agree that she has a rotated (anteriorly) pelvis and it could be the main reason for all of her problems, tight psoas muscles, etc.... I haven't been able to find a doctor that truly knows how to manipulate the pelvis back into place, if that is the problem....

    • ANSWER:

  19. QUESTION:
    I have been made physically ill from work harrasment.?
    please help me. To cut a long story short i started a job a year ago and it was a male manager called Peter who interviewed me. he called back that day to offer me the job. He was so friendly and said although i didnt have the experience hed train me well. Into my first week of the job i took lupus an autoimmune disease and was too exhausted to go to my training.

    When I got back a female manager (who clearly flirts with the male manager) demanded i saw her in her office. She said i was affecting the company and asked me how long i would be taking off this year from work. I told her that was an impossible question to answer and she went off on one asking me how long i took off in other jobs .

    The male manager came in to the office and when i burst into tears (because i had been at a friends funeral the day before) he kept trying to console me.

    The female manager said they would be analysing my work on a daily basis to see if i was suitable and she said peter would not train me but a woman called nina. Nina is a muslim convert and instead of training me she kept banging on about islam .Im not disrespectful but i asked her to get on with the training. I was then pulled back into the female managers office and told nina wouldnt train me but another manager called Jason .

    Jason was very nice but kept looking me up and down and would leave the room to go and talk to the other male managers. The would then all look round at me and it made me feel they were talking about me. Jason never fuly trained me as he had to take time off cos he got another female worker of 17 years pregnant (hes 35 years old) .

    I started the job but after a month the famale manager informed me i was in breach of data protection because they had recorded a call where i never took the customers tel number. They then said i was ten mins late. I apologised and made up the time after work.

    Over the next few months peter and i got close. the female manager used to stare at me and kept pulling peter aside. Then peter told me i was to attend a diciplinary because i had messed up a refund for a customer.

    I took ill again and when i came out hospital i had another diciplinary meeting for being 3 minues late of 3 occasions. I work unpaid overtime an was insulted by this.

    Then nina told them i had not applied myself to training and jason had left so they gave me extra training but my stats came down. Nina asked me to help her with her work and i did for an hour of unpaid overtime. She again went on about islam.

    Finally, the famale manger said i was late again by a minute and i was given a final warining. last week nina told them i hadnt done anybetter in my work and peter confirmed that even though the areas they said i wasnt doing were not in the training jason gave me.

    I was fired and have now taken ill again because of the stress what can i do :( i feel like not living anymore

    • ANSWER:
      Wow, that's a long story - you're probably best contacting ACAS for advice as they are the experts in employment matters. FYI - you were not in breach of data protection for not taking a telephone number - your employer has no idea what they are talking about there - perhaps you were in breach of company policy.

      Good luck

  20. QUESTION:
    What do I do about a prolonged neuroma in my foot?
    I have a large neuroma on my left foot between my 2nd and 3rd metatarsal. It hurts so bad that I cant put any pressure near the ball of my foot or else I will just collapse in pain. So I was put in a boot. It helps take away pressure but if I lean too forward, it is just as bad as it is without the boot.

    The pain started when I was a freshman in high school. I have seen two podiatrists. The first was my in my sophomore year and the doctor was rude and didn't listen to me. So he told me I was just growing, to buy a pair of orthotics, and he sent me on my way.

    my pain has continued to affect my life since.

    I am now a sophomore in college and finally saw another podiatrist a month ago. I was so relieved when he listened to me and expressed concern. He took x-rays but nothing came up. So he did an ultrasound and found the neuroma causing me so much pain.
    He was shocked that I have had this ongoing neuroma for going on 6 years!
    I was given two shots of Cortisone and it did not help at all!! in fact i was in more pain for about 4 days.
    because the cortisone, padding, icing, medicine, and boot didnt work, I had a blood test taken to see if maybe the arthiritic blood in my family had something to do with it.
    Everything came up negative except for some protein/something or other/inbalance.... cant remember what it was but it meant that i may have actually been positive for some kind of arthiritis or lupus or some other disease!
    He didnt perform another test because he was stumped.
    He referred me to a rheumatoid arthritic specialist but heres the curveball- I dont have health insurance anymore! my father just quit the company we had insurance through.
    I cant afford to go to the doctors anymore....

    SO THE POINT OF ALL THIS....

    Anyone have a similar experience?
    Are you a doctor willing to give some advice?
    Any help or advice is greatly appreciated.

    Im only 19 years old and feel like an elderly woman. Working in the fashion industry doesnt help either- I just want to wear heels like everyone else!!!
    I'm desperate at this point!

    • ANSWER:

  21. QUESTION:
    Do I have gout? I'm a woman in mid 30's & not sure. Please someone help?
    For the last 7 or 8 years I have been getting periods where I have intense pain in my feet & ankles. It then moves to my knees, hands, wrists, elbows & hips. It only happens about every 2 years & will last for about 2-3 months. All that time doctors have been telling me it's in my head & I'm depressed. I recently had a dr check me for lupus (neg), rheumatoid arthritis (neg), diabetes (neg) & others (all neg). Then they checked my uric acid & it was 37. I thought normal was 0-20. The dr now says maybe gout. My dad has gout & also my sister. She was diagnosed with gout when she was in her early 30's (I'm 35). I thought gout only lasted for around a week & only affected your big toe. I'm so tired of the pain all the time. It's like walking on broken glass. I am waiting to see a specialist in this area. Does this sound familiar to anyone? Any ideas on what it could be & what I can do to stop the pain (without huge amounts of painkillers!)? I live in remote oz with not many ulternatives.

    • ANSWER:
      I have read that 100% cherry juice (unsweetened) helps dissolve gout crystals. Or else eating 20 or so cherries a day. Be warned though the cherry juice is unsweetened and is extremely tart. You should feel relief in 2 weeks with 8 ounces of juice or 20 cherries a day. Do a Yahoo!! Search of "gout and cherries". I hope this helps you!!

  22. QUESTION:
    My family is screwed up =[ & it's affecting my grandmother?
    My grandmother obviously has a drug problem. It's been discussed by several members of my family & everybody just sits back & lets it happen. She has my uncle & his wife & kids living there ( my uncle has a drug & alcohol problem & his wife has a drug problem ). It's severely effecting our entire family. She takes medicines for blood pressure & things like that, but she also takes Xanax. It was prescribed to her when her mother died. But now she can't function without them. She takes like 6 pills a day ( .5mg each ) which is a lot.

    My uncle lives with her & he is HUGE burden on her. Him & his family have so many problems it's crazy. My uncle got the gastric bypass surgery a few years ago & did great. But now he doesn't work because he has something wrong with his hip. No matter what, there's always a reason why he can't work. My uncle's wife is a dead woman walking. In the past 2 years she's claimed to have breast cancer, lupus, uterine cancer, brain cancer & a few other things. They have a 13 year old daughter that just confided in me & told me that she thinks she's pregnant. They have a 17 year old son who dropped out of school, doesn't work (none of them work) & has a girlfriend that's coming to live in my grandmother's house also.

    The rest of the family refuses to go over to my grandmother's house because my uncle's vicious dog is there. I can't go over there because they have 2 cats & I'm highly allergic. The house is a huge mess. It stinks.

    On Mother's Day my grandmother came to my house & told me & my mom that my uncle tried to commit suicide saying that he has nothing to offer anyone.

    I feel so bad for my grandmother. I don't know what to do. Is there anything I can do? I know there's senior services, but how do I contact them? What do I say? I don't want to make my family upset. I'm 21 years old, so it's not like I'm a child. It's really upsetting to see my grandmother going through this. =[

    • ANSWER:
      Social services from your town, city, county, or state should be notified by you or your parents. They may find that senior abuse of your grandmother is going on in that house, besides the responsible adults not being able to care for themselves. The kids may be better off in foster homes.

  23. QUESTION:
    This is a lot to ask, I know. But if someone could review my APA paper I would GREATLY appreciate it. ?
    I think my greatest problem is with grammer errors and my in-text citations. Also, all of those citations that repeat themselves look funny to me. They can't be right? Can they? I'm also confused with secondary citations. I think they're a no no but I can't get a clear answer on what they are. Here's the paper. Please kindly review if you'd like. I'd love yah for it.

    Kisses
    Mandi

    (Title page & reference page not included)

    Introduction
    Lupus is an autoimmune disease that permits the affected body to build antibodies to attack its own cells as if they were foreign. There are three main types of lupus. They are discoid, drug induced, and Systemic lupus erythematosus (Encyclopedia Britannica, 2009). Doctors must be careful in diagnosing lupus since it can easily be confused with other diseases (Rahman & Isenberg, 2008). Lupus is capable of attacking any part of the body but for the most part it mainly affects the skin, kidneys, joints, heart, gastrointestinal tract, and serous membranes (Encyclopedia Britannica, 2009). The cause of Lupus is currently unknown. Lupus truly is a sickness of mystery since the cause and cure have currently been unidentified. However, there are known genetic (Encyclopedia Britannica, 2009) and environmental (Rahman & Isenberg, 2008) aspects that have been known to trigger this illness. On an inspiring note, there is presently a study being conducted with mice in search for the cure of lupus.

    Discussion
    Lupus is an autoimmune disease that is known to be a chronic (continuous or reoccurring) inflammatory illness that has the ability to attack any region of the body (Encyclopedia Britannica, 2009). The symptoms of the disease are painful or swollen joints and muscle pain, unexplained fever, red rashes, chest pain when breathing deeply, loss of hair, pale or purple fingers or toes from cold or stress (also known as Raynaud's phenomenon), sensitivity to the sun swelling in legs or around eyes, mouth ulcers, swollen glands and extreme fatigue (WebMD, 2008). Those that suffer from lupus may never have the same symptoms as another person with the disease (Encyclopedia Britannica, 2009). However, the most common areas of the body affected are the skin, kidneys, joints, heart, gastrointestinal tract, and serous membranes (Encyclopedia Britannica, 2009).. Also in most cases in order for a doctor to diagnose lupus the patient must illustrate at least four (Encyclopedia Britannica, 2009) of the listed symptoms.
    The actual cause of the disease is unknown. However, there are genetic and environmental characteristics that could trigger lupus to develop. Many patients that suffer from lupus have a genetic association with the disease (Encyclopedia Britannica, 2009). Lupus could be the result of mutated genes of interferon and the genes that play vital roles in regulating the immune response (Encyclopedia Britannica, 2009). If a patient has a genetic link to lupus there are also environmental aspects that could trigger lupus. They are infection, ultraviolet light, certain drugs like; procainamide, hydralazine, and quinidine (Rahman & Isenberg, 2008), and extreme stress (Encyclopedia Britannica, 2009). Factors that potentially contribute to the progression of lupus are interleukins and interferons (immune molecules). Interleukins and interferons have been shown to control the autoantibody release in response to certain bodily stimuli (Encyclopedia Britannica, 2009).
    Lupus commonly affects women, African Americans, and Asians more than any other group (Rahman & Isenberg, 2008). Since 90% of all patients with lupus are female, women between the ages of 15-50 should be tested for lupus if they portray at least one of the symptoms (Rahman & Isenberg, 2008). Also, there is an increased risk of lupus in people who already have the Epstein-Barr virus. (Rahman & Isenberg, 2008)
    The healthy immune system’s mission is to protect the body from infections and foreign objects within the body. When the immune system is working properly it will recognize the foreign bacteria, virus, or objects as non-self. Upon recognition that something does not belong, it will build antibodies against the unwanted agent, attack and destroy it (Marieb, 2009, p. 408 & 410). However, the activities of the immune system are much different when the body is affected with lupus. Instead of the body producing antibodies against foreign bacterial that do not belong, the immune system will produce an autoantibody that attacks the body’s own cells and tissues. The reason for this is because they can not recognize their own cells or tissue as self. When an autoantibody attack occurs, the autoantibodies will attach themselves to various tissues and cells (Rahman & Isenberg, 2008). When this happens the body’s inflammatory response occurs. The same thing happens when we have been hurt and the tissue has truly been damaged.
    There are a few different ways Lupus can affect the body, for example in nearly all individuals tha

    • ANSWER:
      Get rid of all the citations that are repeating themselves,that a big no no.Use each citation only once ok.I think alround its great and you should get a good grade.Hope it helps


Lupus Affects Brain

The shoulder blade, otherwise known as the scapula is the bone structure in the upper back part of the body connecting the arm to the thorax (chest wall). The shoulder blade also forms part of the socket, which connects the upper arm to the socket. It is surrounded by muscles and tissues which cushion the bone structure allowing the shoulders to move smoothly. Thus, the shoulder blade is largely involved in the different movements of the human arms. Like any other parts of the body however, the shoulder blade may suffer swelling and inflammation, which lead to what is commonly referred to as shoulder blade pain.

However, pain between shoulder blades may be caused by a number of factors. The pain may be sourced from inflammation of the tissues or tendons surrounding the scapula or the shoulder blade. Muscles surrounding the shoulder blade may have been torn or strained due to some strenuous activities. The same case may also apply as regards the tendons and ligaments in the scapula region. Joint dislocations may also lead to shoulder blade pain as a result of a strong trauma after an accident or during a play of a sport. Shoulder blade pain may also involve infection or bone tumor in the region of the scapula; but cases of this type are very infrequent.

Although pain between shoulder blades may signal that there is something wrong with the tissues, joints, ligaments or muscles around and within the shoulder region, it is not however always the case. Not all types of pain between shoulder blades are indicative of infection, inflammation, or problems within the scapula region. Pain between the shoulder blades may be an indicator of a disease other than that which is directly related to infection in the scapula; such pain may be a signal warning from one of the organs of the body. This type of pain is considered as areferred paina.

Shoulder blade pain may signal any pain from another part of the body the severity of which may range from mild to severe. Thus, the pain may be a referred pain from the lower part of the neck, or from the lower part of the back. This may be caused by too much stress or too much time spent in front of the computer. This may also indicate a posture problem. If the person has a bad posture, the spine may be affected and therefore it refers the stress and pressure to the shoulder blade area.

On the other hand, pain between shoulder blades may indicate severe medical problems or conditions in the other organs of the body. It may mean an impending heart attack; it has been documented that prior to a heart attack, most are experiencing pain between their shoulder blades. Gallbladder disease may also manifest in the form of pain between shoulder blades. This may oftentimes be accompanied by vomiting. It may also be caused by liver cancer and esophageal cancer or cancer in the esophagus due to an abnormal growth of cells and tumors in a person's esophagus.

Frequently Asked Questions

  1. QUESTION:
    Can Lupus affect the brain and be confused for MS?
    I was diagnosed with Lupus and now they are seeing Dysmyelination in my MRI, and I have symptoms that can be seen in both Lupus and MS. But I never read anything about Lupus affecting the brain and causing dysmyelination....was I not diagnosed right?

    • ANSWER:
      It is possible. There are certain diseases out there that are often misdiagnosed for one another...MS, Lupus, Lyme Disease. People I know with these diseases were tested over and over and diagnosed and misdiagnosed...an endless cycle. Ask for repeat blood tests, even though the tests are not definitive, something could have changed to give you a clearer answer. Ask for the tests to be repeated often.

  2. QUESTION:
    Can lupus affect both the kidneys and the brain simultaneously?
    Can the disease lupus affect both the kidneys and the brain in the same patient, at the same time?

    • ANSWER:

  3. QUESTION:
    what to do about evil family?
    i was just diagnosed with lupus.my entire family does not give a s***.they all talk about me behind my back and make fun of me and say that because the lupus is affecting my brain that i am dilusional and am making it up.i wanna cry.this is my mom and sister,my husband and kids.they never call or come by,even though i do everything in the world for them.care for them when they are sick,care for their pets and so on.my heart is sad.

    • ANSWER:
      Threaten to commit suicide. I do that, and then people finally take me seriously. I actually do it with suicidal intent.

  4. QUESTION:
    Cytoxan for Lupus.?
    My daughter started cytoxan treatment last month. I heard of alot of seriuos side effects.

    She has Lupus and she just suffered cerebritis to the right side of her brain, so the doctors say the cytoxan is the best choice to treat it. Thank God my daughter is alright and she didnt seem to have a negative reaction to the first treatment last month.

    Is or has anyone taken this drug (intravenous) for Lupus also. Has anyone had any bad side affects or none at all?

    • ANSWER:
      I had IV cytoxan for a period of once every month for 6 months, then once every 2 months for 2 years. Then I started a medication that is explained below. It all ended about 3 years ago. I did not use it for the same reason, my lupus decided to attack my kidneys. My side effects were minimal at best- but it would have been much worse if it were not for the anti nausea med Zofran, so the majority of my nausea was under control with a steady supply of that in me for a few days after, and an IV dose during or right before the cytoxan. I also found a trick in that I did not get nauseated if my stomach was not empty- so I had quite a few graham crackers and saltines. I did have hair loss in that first 6 month period of the once a month part of the treatment- but it was not total. It was strangely only on my head in the parts of where my head slept on my pillow at night- meaning just the sides and back but I kept about 95% of what I had on top.
      I know nothing about Lupus and cerebritis as mine affected my kidneys- but you might want to ask your doctor about a medication called mycofenolate-mofetil (brand name Cell-Cept) and ask if it would be an alternative to Cytoxan treatment. At the end of my treatment- it was decided that enough testing had been done of the drug with kidney problems in comparison to Cytoxan that it did just as well a job in curing the problem and that was going to be the newer standard of treatment. There may have been similar comparison studies for people with cerebritis for that drug. It is an immuno-suppressant that is a bit stronger than say Imuran or Methotrexate that are common lupus treatments, but is being used for the treatment of more serious cases of lupus especially when it picks on organs, and it put me in full remission for the past 3 years except for a few sun problems with my skin.
      I hope that helps some.

  5. QUESTION:
    RE: Lupus - Is there any place one can go for specialty treatment?
    I have heard that some places do extensive blood work, etc. to find out everything that is going on with you.

    I stay so exhausted, and I am afraid it is affecting me neurologically. I always seem to have this "brain fog". I live in a rural area, and there are no good rheumatologists here. I just want a really good, comprehensive exam.

    • ANSWER:
      If you live within driving distance of Tennessee, try Dr. James Holbert. He is the best in the Mid-South. Patients come from all over to see him. My girlfriend has lupus and she is patient of his.
      Hematology and Oncology Specialists
      5220 PARK #150
      Memphis, TN 38119
      Phone: (901) 767-1011

  6. QUESTION:
    Should I see a doctor?
    Someone told me today that I might have lupus. I have seizure that are induced by stress and i was told flashing light affects my brain. I am always tired, I pass out instantly when I sit down. I have alot of back pain and knee pain but when I seen the doctor they told me my disc is slightly thinner then the rest. They give me 3 different muscle relaxers and pain meds and none of them work. My doctor wants me to start going to a pain clinic but I don't want to be put on harsh pain meds. I get headachs and I forget things all the time but I thought it was to deal with the seizures. But someone started asking all these questions and they told me to look up Lupus. My cousin on my dads side also has it and she is the same ago as me. I just want an opinion, I never thought about it cause my cousin is loosing hair and sometimes is down for days. I'm only 28 and i'm a little nervous and I don't want to waste my time at a doctor for no reason. Not the biggest fan of tests and hospitals.

    • ANSWER:

  7. QUESTION:
    is this a good research project please be honest?
    Cortlin Harrison Science 10-12
    Mrs. Cooney/ Mrs. Barends ELA 21-23
    May 19, 2009
    Antiphospholipid Syndrome

    Antiphospholipid Syndrome is a disorder in which the body recognizes certain normal components of blood and/or cell membranes as foreign substances and produces antibodies against them. This disorder is non-infectious which means that this disorder can’t be passed from person to person by contact. Pregnant women are more prone to get this disorder than anyone else, and African Americans, and Hispanics but like other disorders anyone can get Antiphospholipid Syndrome

    The symptoms and characteristics of this disorder are not hard to spot. Some symptoms of the disorder are veins or arteries of the arms or legs may cause pain, numbness, tingling in the feet. Arteries of the heart may cause chest pain or heart attack, the individual with this disorder may have heart murmur. In pregnant women with Antiphospholipid Syndrome, miscarriage can occur prior to 20 week of gestation, while pre-eclampsia is reported to occur after that time. Blood vessels of the skin - may cause painful bruises (purpura) or a condition called livedo reticularis. Blood vessels of the brain - if a clot cuts off blood supply to a part of the brain, this causes a stroke. An individual with APS may also experience migraine headaches or seizures.

    There is no cure and there is no way to avoid getting this disorder. There are many treatments for this disorder. But the most successful treatment is anticoagulant therapy. This is usually successful in preventing further blood clots. This disorder can severely damage the body in many different ways because good cells attack other good cells and that causes chaos through the body. And when a weak or strong pathogen enters the body it can be deadly.

    Some other information about Antiphospholipid Syndrome is, 1-5% of the world population is known to have this disorder, and 40-50% of patients with lupus also have APS. One third of strokes occurring in younger people (under the age of 50) are due to Antiphospholipid Syndrome. One third of patients with Antiphospholipid Syndrome are said to have lupus, and or Raynaud disease. APS is more common in young to middle-aged adults; however, it also manifests in children and elderly people. Disease onset has been reported in children as young as 8 months.

    This disorder is very rare and not very deadly but this disorder can still affect your way of life, the way you think, and can make you dizzy and other things. My mom has this disorder and sometimes it’s hard to get around and such, but you can still fight back by eating a healthy diet and seeing a special doctor called a Rheumatologist, this doctor specializes in these types of rare disorders.

    • ANSWER:
      very cool research project!
      Especially when someone yu kno very well has it...

  8. QUESTION:
    What neurological condition do I have? Doctors only?
    I was told by a neurologist that it is slowly progressive and starts in the brain stem and also affects the substantia nigra and some cranial nerves.

    I get migraine variants - particularly hemiplegic migraine. I have myoclonic jerks in my thighs and arms, foot drop, get cramps, it's given me Horner Syndrome 3 times left eye, muscle spasms;fasiculations,my reflexes are grossly exaggerated , it affects my voice - I loose it and sometimes it is strained; it has given me COPD like asthma and GORD . I have hypothyroidism also and ANS failure : BP everywhere and dropping.

    The doctor told me it has now affected every nerve it was going to and it wont get any worse; just complications on what it's got already. He said plasmapharesis wont do for me any more as I have had kidney infections, brachial neuritis and infections related to DUs. I'm on 7 different meds . I also get mild Lupus. I know it is a motor neurone thing but which one hasn't been confirmed. Please help
    Edit. the neurologists said it is a demyelinating condition. When the myelin goes it is not replaced and the ventricles get larger

    • ANSWER:
      Hello, I am not a dr. I just wanted to say I will Pray for you...GOD BLESS...Mary

  9. QUESTION:
    Y were the Experts working the the Mass Media blind about the history of Donald Rumsfeld & his Bird Flu gift?
    Posted: May 9, 2004
    12:18 AM Eastern
    by NWV Staff Writer
    © 2004 NewsWithViews.com

    Aspartame is an additive found in diet soft drinks and over 5,000 foods, drugs and medicine. It was approved in 1983 for use in carbonated beverages.

    In reality, aspartame is a drug, not an additive. It interacts with other drugs, has a synergistic and additive effect with MSG, and is a chemical hyper-sensitization agent. Dr. John Olney, who founded the field of neuoscience called excitotoxicity, attempted to stop the approval of aspartame with Attorney James Turner back in 1996. The FDA's own toxicologist, Dr. Adrian Gross told Congress that without a shadow of a doubt, aspartame can cause brain tumors and brain cancer and violated the Delaney Amendment which forbids putting anything in food that is known to cause Cancer.

    Dr. Ralph Walton, Professor and Chairman of the Department of Psychiatry, Northeastern Ohio Universities College of Medicine has written of the behavioral and psychiatric problems triggered by aspartame-caused depletion of serotonin.

    Aspartame causes headache, memory loss, seizures, vision loss, coma and cancer. It worsens or mimics the symptoms of such diseases and conditions as fibromyalgia, MS, lupus, ADD, diabetes, Alzheimer's, chronic fatigue and depression. Further dangers highlighted is that aspartame liberates free methyl alcohol. The resulting chronic methanol poisoning affects the dopamine system of the brain causing addiction. Methanol, or wood alcohol, constitutes one third of the aspartame molecule and is classified as a severe metabolic poison and narcotic.

    The history of aspartame and its approval has a political history as well as a scientific one. According to Dr. Martini,

    "When Donald Rumsfeld was CEO of Searle, that conglomerate manufactured aspartame. For 16 years the FDA refused to approve it, not only because its not safe but because they wanted the company indicted for fraud. Both U.S. Prosecutors hired on with the defense team and the statute of limitations expired. They were Sam Skinner and William Conlon. Skinner went on to become Secretary of Transportation squelching the cries of the pilots who were now having seizures on this seizure triggering drug, aspartame, and then Chief of Staff under President Bush's father. Some of these people reach high places. Even Supreme Justice Clarence Thomas is a former Monsanto attorney. (Monsanto bought Searle in 1985, and sold it a few years ago). When Ashcroft became Attorney General, Thompson from King and Spalding Attorneys (another former Monsanto attorney) became deputy under Ashcroft. (Attorneys for NutraSweet and Coke).

    • ANSWER:
      I always knew that stuff was poison !

  10. QUESTION:
    WHAT LAB OR WHO WILL BENEFIT FROM TRYING TO FIND A VACCINE FOR THE SWINE FLU = RUMMY RUMSFOOK & CORP?
    http://www.youtube.com/watch?v=r42oejmpkgw

    and was that guy in the corner = Cheney?

    &

    Posted: May 9, 2004
    12:18 AM Eastern
    by NWV Staff Writer
    © 2004 NewsWithViews.com

    Aspartame is an additive found in diet soft drinks and over 5,000 foods, drugs and medicine. It was approved in 1983 for use in carbonated beverages.

    In reality, aspartame is a drug, not an additive. It interacts with other drugs, has a synergistic and additive effect with MSG, and is a chemical hyper-sensitization agent. Dr. John Olney, who founded the field of neuoscience called excitotoxicity, attempted to stop the approval of aspartame with Attorney James Turner back in 1996. The FDA's own toxicologist, Dr. Adrian Gross told Congress that without a shadow of a doubt, aspartame can cause brain tumors and brain cancer and violated the Delaney Amendment which forbids putting anything in food that is known to cause Cancer.

    Dr. Ralph Walton, Professor and Chairman of the Department of Psychiatry, Northeastern Ohio Universities College of Medicine has written of the behavioral and psychiatric problems triggered by aspartame-caused depletion of serotonin.

    Aspartame causes headache, memory loss, seizures, vision loss, coma and cancer. It worsens or mimics the symptoms of such diseases and conditions as fibromyalgia, MS, lupus, ADD, diabetes, Alzheimer's, chronic fatigue and depression. Further dangers highlighted is that aspartame liberates free methyl alcohol. The resulting chronic methanol poisoning affects the dopamine system of the brain causing addiction. Methanol, or wood alcohol, constitutes one third of the aspartame molecule and is classified as a severe metabolic poison and narcotic.

    The history of aspartame and its approval has a political history as well as a scientific one. According to Dr. Martini,

    "When Donald Rumsfeld was CEO of Searle, that conglomerate manufactured aspartame. For 16 years the FDA refused to approve it, not only because its not safe but because they wanted the company indicted for fraud. Both U.S. Prosecutors hired on with the defense team and the statute of limitations expired. They were Sam Skinner and William Conlon. Skinner went on to become Secretary of Transportation squelching the cries of the pilots who were now having seizures on this seizure triggering drug, aspartame, and then Chief of Staff under President Bush's father. Some of these people reach high places. Even Supreme Justice Clarence Thomas is a former Monsanto attorney. (Monsanto bought Searle in 1985, and sold it a few years ago). When Ashcroft became Attorney General, Thompson from King and Spalding Attorneys (another former Monsanto attorney) became deputy under Ashcroft. (Attorneys for NutraSweet and Coke).

    • ANSWER:
      Actually you should check Al Gore

      April 25, 2009...02:44
      Venture capital firm (Kleiner Perkins = AL Gore) set to reap rewards on swine flu…
      http://nwoobserver.wordpress.com/2009/04/25/venture-capital-firm-set-to-reap-rewards-on-swine-flu/

      LOS ANGELES (Reuters) - The swine flu outbreak is likely to benefit one of the most prolific and successful venture capital firms in the United States: Kleiner Perkins Caufield & Byers, Thomson Reuters Private Equity Week reported on Friday.

      Shares of the two public companies in the firm’s portfolio of eight Pandemic and Bio Defense companies — BioCryst Pharmaceuticals and Novavax — jumped Friday on news that the swine flu killed a reported 60 people in Mexico and has infected people in the United States.

      The World Health Organization (WHO) said the virus appears to be susceptible to Roche’s flu drug Tamiflu, also known as oseltamivir, but not to older flu drugs such as amantadine.

  11. QUESTION:
    My family is screwed up =[ & it's affecting my grandmother?
    My grandmother obviously has a drug problem. It's been discussed by several members of my family & everybody just sits back & lets it happen. She has my uncle & his wife & kids living there ( my uncle has a drug & alcohol problem & his wife has a drug problem ). It's severely effecting our entire family. She takes medicines for blood pressure & things like that, but she also takes Xanax. It was prescribed to her when her mother died. But now she can't function without them. She takes like 6 pills a day ( .5mg each ) which is a lot.

    My uncle lives with her & he is HUGE burden on her. Him & his family have so many problems it's crazy. My uncle got the gastric bypass surgery a few years ago & did great. But now he doesn't work because he has something wrong with his hip. No matter what, there's always a reason why he can't work. My uncle's wife is a dead woman walking. In the past 2 years she's claimed to have breast cancer, lupus, uterine cancer, brain cancer & a few other things. They have a 13 year old daughter that just confided in me & told me that she thinks she's pregnant. They have a 17 year old son who dropped out of school, doesn't work (none of them work) & has a girlfriend that's coming to live in my grandmother's house also.

    The rest of the family refuses to go over to my grandmother's house because my uncle's vicious dog is there. I can't go over there because they have 2 cats & I'm highly allergic. The house is a huge mess. It stinks.

    On Mother's Day my grandmother came to my house & told me & my mom that my uncle tried to commit suicide saying that he has nothing to offer anyone.

    I feel so bad for my grandmother. I don't know what to do. Is there anything I can do? I know there's senior services, but how do I contact them? What do I say? I don't want to make my family upset. I'm 21 years old, so it's not like I'm a child. It's really upsetting to see my grandmother going through this. =[

    • ANSWER:
      Social services from your town, city, county, or state should be notified by you or your parents. They may find that senior abuse of your grandmother is going on in that house, besides the responsible adults not being able to care for themselves. The kids may be better off in foster homes.

  12. QUESTION:
    M 6yr Old has had hives for 3 weeks?
    My 6 year old has had hives for 22 days now to this posting. Let me give you a bit of history. He was POS for strep back in April and was put on Amoxicillin. He finished the dosing. He soon got sick again within a few weeks and tested POS for strep AGAIN!!. He was put on Cephalexin(keflex). He continued the keflex and the sore throat and fever were not getting any better about 5 days later. We took him to the ER who did a chest X-ray and said he had pneumonia. They told me to stop all other meds and gave him a shot of penniciilin in the ER and put him on Cefdinir. Then....about 10days to 2 weeks later he broke out in hives while he was healthy and has had them for over 3 weeks. I have been an emotionaly wreck for the most part. I mean...just how do you have hives for 3 weeks? I took him to the childrens clinic twice, ER once with the hives when they got so bad they were on his face, then his pediatrician who referred us to an allergist. The benadryl didnt touch him. He was scrathing like a dog for 3 weeks day & nite and I have barely slept worried about him. They wrote me a script for an epi-pen to carry. So....I have racked my brain trying to figure out what he has gotten into. I gave away all of my laundry soap and started to wash everything in just water although the allergist strongly feels this was medication related. I asked them to do bloodwork because when you google 'chronic hives' it talks about lupus, cancer, lukemia, e.t.c so I have been a mess crying for the past 3 weeks worrying about him. The bloodwork ALL CAME BACK FINE. The hives really don't really seem to phase him except for the itching. I JUST DONT UNDERSTAND HOW THISHAS HAPPENED??? I have read where some people have hives for years; he's only six.....I NEED HELP??? The allergist just put him on Zyrtec, Hydroxizine(itch) and Prenisolone (for 15 days. We are on day 5 and the side affects are making me want to discontinue the meds. He has been unbearable and complaining of muscle and joint pain. this is something I've NEVER heard out of my six year old. He's cranky and hyper but the hives have somehwhat went away except for a few where there is friction such as the waistline, neckline, e.t.c I have decided on my own to DETOX him while he's on this medicine and had to put a lock on the fridge. I only want hime to drink water and yogurts with pro-biotics, and fruits and veggies and it has been hard keeping him out of junk food because he's akid. Has anyone else ever experienced this with your young child? Will they go away OR come back and do you think this is a medication allergy and what do I do if he gets sick and needs antibiotics? HELP????

    • ANSWER:
      If the allergist believes that the hives are related to his Cefdinir, they very well might be. Sometimes it takes several weeks to months for reactions to drugs to calm down. Some people with Sulfa drug allergies, for example, become deathly ill weeks and weeks after stopping the meds. (My best friend who is a physician had this personally happen to her.)

      Please reconsider "detoxing" your child. There are no controlled experiments that demonstrate that a "detoxing" diet will rid a person of any illness. (Do not confuse testimonials or limited studies of a small amount of people for a large scale experiment.)

      Your child's diet should be clean for sure, limit the processed foods, etc. But don't limit lean meats or dairy, especially if the child has not demonstrated an allergy to them before this event occured.

      Hives are annoying but not life-threatening. If the child is not responding to the allergy medicines, bring him back to the allergist. Also ask about testing for allergies related to the 3 antibiotics he has taken in the past few months. It could be any of those.

      Soothing oatmeal baths and topical anti-itch ointments may get him through the worst days until you get this sorted out. Until then, I'd get a second allergist's opinion if you can afford it. I'd also make a second appt with the allergist who is currently treating him.

  13. QUESTION:
    Constant pain - no answers?
    I have constant pain in my feet and hands. Moderate to severe pain in my jaw - causes sometimes ear aches and headaches. Now the pain seems to be setting up shop in my back, one elbow and both knees. I have been seen by several doctors, reumotologist, neurologist, etc. for the past 3 years. No one has any answers or Solutions. They have ruled out lupus, lyme disease, carpal tunnel, nerve disorders and I have tested negative for Rheumatoid. They have tried several steroids, with no affect.Even an antidepressant to "rewire my brain". that did not work either. Now they just give me pain meds that i hate. I take tylenol/aspirin or motrin several times a day and an occasional hydrocodone.

    I don't sleep, exercise makes everything worse and my constant fatigue encourages poor eating habits. (I crave caffeine and sugar when sleepy) I have found no relief and am having more and more trouble keeping up with my 3 small children (4, 3, &1).

    I have come to the point where I do not know what to try next. The last word from the doctor was wait and see. uhhh!!

    Does any one know what it could be or what I should do?
    I have been told my symptoms do not fit Fibromyalgia

    • ANSWER:

  14. QUESTION:
    Sarcoidosis with Pulmonary Hypertension anyone??
    I am a 34 year old female with this condition & everything that my doctor has tried has failed in getting it under control. Currently I am on oxygen 24/7 and I have a CPAP machine with oxygen at night due to sleep apnea. Unfortunately, I also have seizures, fibromyalgia, rheumatiod arthritis, lupus, depression, panic/anxiety disorder, I also have 4 spots on the front of my brain which my doctor does not know what it is. I know that sarcoids can spread to other organs but doctor says that it generally stays in place?? However, I have been having vision loss in my right eye, my pcp checked my eyes and I could only read one letter on the 2nd line. Can sarcoids be affecting my eyes now. I am scared. My lung doctor has dismissed me as a patient due to the this statement: I don't know if I can help you, more than likely you have had this disease for over 10 years and the other doctors just let it go. So in other words he didn't want to be stuck in the middle. Waiting on disability court date
    My apologies for not listing my meds.
    Tylox for pain
    Demerol for pain
    Duragesic patch for pain
    Keppra for seizures
    Flexiril for Fibromyalgia
    Zanaflex for Fibromyalgia
    Prednisone for Sarcoidosis & Lupus
    Phenegran for nausea
    Celexa for Depression
    xanax for panic/anxiety disorder
    methotrexate for Sarcoidosis & Lupus
    CPAP w/oxygen for sleep apnea
    oxygen for Sarcoidosis & P. Hypertention
    And I am currently on a heart & diabetes diet. And I don't have diabetes (unless they just have told me yet) "sigh"
    Carla, thanks for all the websites, they will be helpful & I will email you because I have questions that you may be able to help me with.

    Canajoh, my husband & I feel the same way. We are questioning the sarcoids. I have already had a 2nd opinion which came back inconclusive for sarcoids but they still said it was sarcoids. This is my health they are playing with. By the way, my doctor is making arrangements for me to go to the Barnes-Jewish Hospital in St. Louis, MO. but they have been booked up. Sad to say.

    Thanks to all for your support.

    • ANSWER:
      whoa! reading your question, i can almost feel the pain -- that's tough. all i know is the reason why you're having pulmonary hypertension is because you're having lung problems that's why you're on oxygen and cpap. but the rest? not really in my area of expertise but looks like your problems stems from neuromuscular disorders. and now they found spots in your brain to which your doctor would not do anything? try seeking second opinion -- to tell you the truth, if i were the doctor and you have all of these conditions -- it IS tough and i wouldn't know where to start.

      i think they should have tests done to you to see where the root of all problems originates and try to fix that and slowly working outwards to other problem areas as well. the most important thing is to find out where it all originated and treat that. because im guessing the symptoms you're getting right now are side effects of that "root problem"

  15. QUESTION:
    How do I find a reputable doctor of TCM/any of this sound familiar?
    Western medicine has completely failed me. I deal with chronic pain, fatigue, muscle cramps, brain fog, etc., that is pretty constant but with a clear cyclical component.

    It is, according to all available tests, physicals, and evaluations of other kinds, NOT fibromyalgia, chronic fatigue syndrome, stress, depression, MS, lupus, rheumatoid arthritis, celiac disease, or any other of myriad disorders Western doctors are halfway familiar with.

    I'm not a hypochondriac or an attention seeker, and this issue is really affecting my quality of life.

    MY best guess is myofascial pain, but I'm not sure. I definitely have the ropey knots of trigger points, but pressing them brings relief in a "good pain" kind of way, not discomfort. The knots can never be worked out with massage, though. I don't have any tender points in the traditional sense.

    For awhile I really wanted a diagnosis, something to validate what I was going through and open up treatment options. Now I really just want it to stop.

    So what kind of title should I look for beside the name of a practitioner? I want someone highly trained in several forms of alternative medicine, not just an acupuncturist or herbalist.
    Interesting, Dave. I suppose it's the lack of a centralized accrediting system I was wondering about - is there, in fact, no such agency at all, or is there one agency more widely respected than others? It's hard to imagine that there is no body widely recognized as the authority, even though there clearly are charlatans out there. If there is one widely respected body, I'd like to know which agency that is.

    I'm not sure how one would use the placebo effect knowing what it is. Once you know something is a placebo, haven't you effectively guaranteed its ineffectiveness? As an analogy, you can't undo a disbelief in Santa Clause.
    Interesting, Dave. I suppose it's the lack of a centralized accrediting system I was wondering about - is there, in fact, no such agency at all, or is there one agency more widely respected than others? It's hard to imagine that there is no body widely recognized as the authority, even though there clearly are charlatans out there. If there is one widely respected body, I'd like to know which agency that is.

    I'm not sure how one would use the placebo effect knowing what it is. Once you know something is a placebo, haven't you effectively guaranteed its ineffectiveness? As an analogy, you can't undo a disbelief in Santa Clause.
    Edit: Just wanted to let you know I didn't give the thumbs down. I appreciate any thoughtful answers and never thumbs down real responses.
    Sorry, Gary Y., didn't mean to offend. I thought it would be clear from the context that "in this instance" was implied, though it was not written. And yes, in this instance, Western medicine HAS completely failed me. Doctors have been all too happy to order bloodwork and then shake their heads and shrug when it comes back negative. I had a neurologist tell me that I couldn't POSSIBLY have MS because I had a negative brain MRI - so I asked about spinal lesions, and asked why the MS Society said five percent of MS patients showed no brain lesions. His response? He said, "The MS Society lies," and went on to say checking for spinal lesions would be a possibility if I'd had vertigo. My response? "Vertigo is on the list of my symptoms I just handed you!"

    Far too many people seem to go into medicine with no curiosity, and that's not the field you should go into if you're not curious.

    I'm not picking on doctors - far too many people in EVERY field are incompetent, my own included.

    • ANSWER:
      You may want to consider a Naturopathic Doctor?

      NDs have all of the same basic training as a general practitioner MD. In addition to the basic, laboratory and clinical sciences, NDs are trained in acupuncture/TCM, botanical medicine, nutrition & nutraceuticals, as well as physical medicine (modalities, minor adjustments, some massage, etc.).

      Philosophically, NDs differ from the average MD in that we'd suggest that the body/mind/spirit must be treated as an inseparable whole. EG: Sometimes chronic pain that cannot be attributed to a physical pathology has roots in an emotional/spiritual issue.

      NDs ARE regulated in Canada and in many US states. And regardless of whether a specific state is regulated, NDs are governed by our professional association. Our boards do indeed hold us accountable for the medicine we practice (just like the College of Physicians and Surgeons.) We're required to carry malpractice insurance, etc.

      In order to register/license as an ND, one MUST have graduated from an accredited school and MUST have successfully completed 2 series of extensive written and practical board examinations.

      ***NDs are qualified, primary care physicians.***
      We practice science-based medicine (contrary to some people's misinformation.) And while placebo effect should never be discounted, there's a lot more in our tool boxes than placebo. I'm a science geek from way back. And I'm always happy to share the science, if there's something specific at issue. :)

      Qualified NDs will be registered with their respective associations in Canada and the US... and you can find a qualified ND through these associations. Here are the links:
      http://www.cand.ca/
      http://www.naturopathic.org/

      The association sites also have some great information on Naturopathic Medicine, if you'd like to learn more.

      And there are also links to the accredited colleges/universities which have their course catalogues available for interested parties, should they wish to learn more about our training and qualifications.

      Whatever route you choose, I wish you the very best for your health. Clearly you've met some challenges along the way and I applaud your tenacity in advocating for your own health!! Hope you find a health care provider who gets you some answers and results! Good luck.

  16. QUESTION:
    Unexplained Symptoms and no diagnosis?
    My mother is having a terrible time getting to the bottom of her medical issue. Any good solid information is welcomed.

    She states:

    I have been diagnosed with Hashimotos Thyroiditis and Low Vitamin D.
    Although my labs show that I am in the early stages of the disease and there is no evidence that I have been affected by the disease (in the form of hypothyroidism) I have all the symptoms one could imagine.

    I have had every lab test I can think of and an ultrasound that showed goiters on my thyroid. Biopsy showed no cancer.

    I have had TSH, Free T4, T3, am still waiting on results for Free T3. I have had a full range of hormone test. I cannot think of anything I have not had that might tell me something, but then, I am not the doctor.

    I have been tested for Celiac Disease, Pernicious Anemia, Lupus low calcium and everything comes out negative, everything.

    I have strange symptoms that don’t seem to fit hypothyroidism, exactly, but could fit low T3 or low Dopamine. They are: poor balance, tingling in face, lips, and hands. In addition to the typical ones for hypothyroidism. I also am experiencing rather extreme jolts as I sleep, as if I am having a seizure and strange sensations in my legs, mostly left leg.

    So far, my doctors have no explanation. My endocrinologist agreed to put me on a very low dose of thyroid replacement. My neurologist thinks I would be helped with antidepressants. I have had one MRI to rule out MS and am having another to rule out further diagnosis of MS and may have a spinal tap to rule out any odd infections of the brain. I have symptoms of Parkinson’s, or rather, low dopamine.

    So, my next Dr. visit is with a Rheumatologist. I have also seen an alternative Dr. and am awaiting test results. He said it looked like MS and also thyroid issues. He feels, like me, that we are just missing one important piece of information. We are both hoping it is the Free T3.

    Any suggestions?

    • ANSWER:
      I've given you a star hoping my Alternative Medicine friends will see this. This is not an area I'm familiar with, but I know some of my friends are! If you post this question in the Alternative Medicine section, you might get some relevant answers.

      Hope your mom finds the answers.

      Oh, if you post in Alt Med, add any other medications she may be on to the question. It was actually medication issues when my mom was trying to sort through her issues. Once she dropped them, she did better. She also did better removing all fluoride and triclosan (antibacterial soaps, etc) from her life. She too was suffering from thyroid related issues, but had others like blood sugar problems in the mix. The fluoride and triclosan were things she needed to remove to get to the bottom of the thyroid issues.