How To Treat Lupus Rash

Sensorineural hearing loss or Nerve deafness is one type of hearing loss that affects the inner ear or the acoustic or vestibulococlear nerve or both. This happens when the hair cells which transmit sound to the brain is damaged and could not function properly.

Most of the time the sufferer may not be aware of his/her condition. It is friends and family members that notice the symptoms of sensorineural hearing loss. The symptoms include unable to hear high tones, the need to ask to repeat certain words, loud TV and radio volume and because of the hearing loss physical and social activities can also be affected which could to irritability, moodiness and depression.

To diagnose sensorineural hearing you need to consult the doctor and tests will include CT scan, Magnetic resonance imaging(MRI) and EEG that evaluate activity in the brain.

The usual cause of sensorineural hearing loss includes head or ear injury caused by physical trauma, medication side effects specifically from ototoxic medicines, ear infection, Presbycusis or the gradual loss of hearing due to old age, tumors, and hereditary. Other less known cause is anemia, heart problems and lupus or any condition that reduces the supply of oxygen to the brain.

For sensorineural treatment hearing aids and cochlear implants are frequently use. Hearing aid is a small electronic device that is put behind the ear. Hearing aid components include tiny microphones, which gather sound and convert it to electrical impulses, amplifier that increases the strength of these impulses and battery for energy supply. Another treatment available is cochlear implant this a small complex electronic device implanted behind the ear, this device directly stimulate the auditory nerves. This type of treatment requires the patient to have surgical procedure and therapy.

There are natural remedies for sensorineural hearing loss most of these natural treatments are mostly preventive measures. One way to prevent or delay hearing loss is proper diet or nutritional therapy. One reason or cause of sensorineural hearing loss is recurring viral or bacterial infections. This could be cause by weak immune system and bad hygiene. To strengthen the immune system take vitamin c, zinc is used to cure ear infections. Another way to prevent ear problem is to eat healthy so better to avoid junk and processed food and take nutritional supplements like vitamin B-complex, iron and calcium, these supplements reduce the risk ear infection. There are also studies that show that food rich in Vitamin A and folic acid also delays hearing loss.

Popular Herbs such as Echinacea, which can strengthen the immune system and goldenseal or yellow root, which stimulates the secretion and flow of bile, it is also used against variety of bacteria, yeast, and fungi, such as E. Coli and Candida which can cause ear infections. Chinese herbal therapy is also generally accepted in treating ear infections. Another widely used is garlic juice, which is a powerful and natural antiseptic herb.

There are many natural alternatives to treat and delay causes of hearing loss. They are safe and even good for the general health.

Frequently Asked Questions

  1. QUESTION:
    To sufferers of immune disorders: How can I treat myself for possible lupus/rheumatoid arthritis? (detailed)?
    Allergic to dust/grass as a child, but allergy-free from age 13 until recently (I'm now in my late 20's).

    Hep C

    Early 20's: diagnosed with Hep C (untraced source). I was suddenly cured after 1 mo. My doctor said my own body got rid of it, which is rare for hep C patients.

    Several months later I noticed when I'd lay on my left side, there's a tingly, tender sensation. There's no pain and I got used to it so I'm just living with it.

    Arthritis?

    8 mos ago: sudden onset of stiffness/jammed feeling on both wrists (overnight). Always had weak/inflamed knees since 4 yrs back, would disappear with regular exercise.

    Got Sick

    Late last year I had flue more than a month. I was diagnosed with bronchitis, was on antibiotics and was cured right away.

    I started lightly working out again and just a month later I WAS SICK AGAIN! I was down for only 3 days though compared to the last time. Coughed 1 month. I was on stronger antibiotics and cured. I also saw an allergy doctor and was diagnosed with sinusitis and now on corticosteroids.

    Results

    My ANA blood test turned out POSITIVE. My doctor ordered a 2nd test for next month. She said it's an indication of possible lupus or rheumatoid arthritis.

    Extra info:

    Never been overweight my whole life.
    Ethnicity: Asian.
    My other "illnesses" recently diagnosed: costochondritis.
    Always had: severe dandruff, on and off but worse now; dandruff-related facial rash, only shows up on the same spots - left cheek near nose, between eyebrows.
    Falling hair is worse now.

    I'm a copywriter for more than 3 yrs. I admit my posture is VERY bad, often sitting or lying on my stomach on the bed (probably caused the costochondritis). Was diagnosed 4 yrs ago with borderline anemia (mother is anemic). Prescribed iron supplements but I stopped cos of side effects which is diarrhea.

    THIS IS MY DILEMMA: I was thinking of eating healthier and exercising again. But wouldn't raising the immune system make things even worse? I just hate the idea of being on immune-suppressing drugs, considering my now sensitive liver. I would be more open to "natural" treatments. How do I go about this?

    • ANSWER:
      When you have autoimmune disease you have to be an active PART of the treatment plan. Your doctor is the other active part.

      You have classic lupus symptoms. If lupus is not properly treated, you can end up with permanent organ damage or worse. It is not natural for your immune system to turn against you.

      You can eat healthier and exercise and that will certainly help. Words are often used incorrectly when it comes to the immune system. Healthy eating and exercise BALANCE the immune system. This is desirable.

      Everyday you are exposed to thousands of toxins...in your food...in your personal hygiene products...in the air...in the water...in your food...coming from your clothes...coming from your furniture and flooring...and much more. You can't eliminate all of them. Therefore, a totally "natural" approach to autoimmunity is impossible.

      Next, factor in stress. Stress is the single biggest factor in making lupus flares worse. What do you to do manage/reduce stress?

      You are Asian which means you have a siginficantly higher chance of developing lupus. You are 20 which increases your chances even more. You are a woman. 9 out of 10 lupus patients are women. Lupus develops most often in women between the ages of 14 and 45.

      There are 23,5 Americans with autoimmune disease and 2 million with lupus. 40% of us develop lupus nephritis. If left untreated, it can kill you.

      The doctors will monitor your liver function frequently. You may only need the weaker immunosuppressive medications. If you do go on the heavier ones, it is not ususally for an extended period of time, but just long enough to bring the flare under control.

      Everything we do is a matter of risk versus benefit. It is more so when you develop a chronic illness and are looking at treatment options. Do your homework, talk to your rheumatologist and then make an informed decision.

      I have systemic lupus with major organ inovlvement (heart, lungs, joints, brain, bone marrow, blood, and kidneys). In 2003, I was not expected to live. I take my meds, have a very healthy diet, exercise daily and practice meditation and yoga. After 4 years on disability, I returned to work 4.5 years ago. I am 59. Without the medication, I would most likely be on dialysis right now.

  2. QUESTION:
    Is it normal to get a bad rash while using retin a ?
    I was prescribed retin a by my dermatologist to lighten freckles and help get rid of acne on my face. The first day i brought it home i applied a fairly light amount to only affected areas on my face and automatically felt a stinging sensation were i had applied it , which i guess was normal since that was one of the side affects. The third day of use still the same affect but now only that my skin was irritated red , itchy ,dry and it felt like i had a pony tail on so tight that it made me feel like my skin was stretched out to the point i even felt Chinese . I automatically stopped use of it and noticed only now that my skin started peeling on the fourth to fifth day and was also accompanied now with a red irritated itching hurt to touch rash . The truth is that it even looks like a swollen sunburn or even like a bad case of lupus rash only around my eyes, cheecks, and chin that hurts . I am to embarresed to come out of my house cause of the way i look and am running out of ideas. So i would appreciate some good experienced advice on how to treat it and if it is normal or not to be experiencing these side affects with this medication.

    • ANSWER:

  3. QUESTION:
    i think i have lupus, but how do i ask my doctor?
    i have an aunt with systematic lupus so i know what it is and what the symptoms are, i am sure i have it too, i have everything she has and sometimes worse than hers, ive had the discoid lupus rash since i was 12 but when i went to the dermatologist he looked at it for like a second and decided it was impatigo, i was in his office for less than a minute, even though i was in waiting room for over 2 hours which is wrong in so many ways >.< it continues to come back but everytime they just give me antibiotics and send me on my way.
    i went to a GP and told her i thought i had lupus and she told me not to self diagnose, i was told all my symptoms could be explained by mental and physical stress and anemia, i should relax and rest when my joints hurt. she was quite mean and it upset me, she treated me like a hypochondriac. i havent wanted to bring it up again and i dont go to the doctors with relating symptoms anymore because they flick through my history and tell me its stress again or try to make me eat more iron. i am a very laid back person and i do no physical exertion to make my joints like this either. its gotten to the point where im ill more than i am healthy and i can bearly get out of bed in the mornings.
    now im an adult its pathetic, but every time i go to the doctor i feel really young and insignificant again.
    i really need help with this as im moving out of my mums house in a few months and will be on my own,,
    how do i make the doctor test me for lupus without me demanding it?
    i need for them to come to it on their own conclusion, when i go into that little room my head goes completely blank and i turn very monosyllabic and everything i meant to say doesnt come out.
    ive tried to show them the malar rash but by the time i get to the appointment its gone >.<

    anyone have any solutions to help me??

    • ANSWER:
      I am sorry for the experience you have had with these doctors. I am going to school now to be a doctor and it is stories like yours that helps with driving me toward this. In my opinion the doctors should have investigated this. It is their job to increase your quality of life.

      I think that you should first of all not go back to where you were treated with such poor service. If your doctor does not have time for you, well don't make time for him. Go see someone else.

      Maybe you could write down your symptoms that you are experiencing, so that you can get all of the information to the doctor. There are tests that can be ran to determine if you have a autoimmune deficiency, and I think that they are relatively easy to do.

      Again I am sorry for your poor treatment. You know your body better than anyone else, and if you are worried that something is wrong it does not need to be discarded. If going somewhere else and you are treated this way again then I believe you should demand that you are tested. If it does not come out right when you are there then I would call for an appointment strictly to be tested for lupus.

      Your quality of life should be their number one priority. I am tired of hearing stories of doctors that dismiss their patients in this way.

      Oh yeah maybe you could take a picture of the rash too when it does come about, but really you should not have too. I'm sure your eyes are perfectly fine and you probably have a very accurate visual image of it as well.

      Anyway I hope you get help with this and think you for another story of why I want to be a doctor. I am going to go study now, so I can be an advocate for you and others.

  4. QUESTION:
    Do I have lupus, and how do you get diagnosed if you do have lupus?
    I had an ANA panel done, suggesting to my doctor that I think have lupus. I have researched my pain and other symptoms for years and think that this is what I have. My test was positive for double-stranded DNA. What does this mean? I have never actually met my doctor. I see a doctors assistant and I think she has no idea what she is doing. I am scheduled see a rheumatologist on April 14, but I really want to know what anyone with experience thinks about my condition before I see him. It has taken me 5 months to get this appointment after I could convince anyone at all of my symptoms. I hurt much more than a 27 year old should hurt. I have 2 kids that I need to be out running around with and it kills me that I hurt too bad to do the things I should be doing as a mother. Can anyone help me? Oh, I should add that Meloxicam helps my pain immensely, but I have been told to stop taking it because my kidneys are bad. Well, my creatonin (not sure of spelling) is high. It also helps my joints stop popping. They pop almost every time I move, so loud that everyone around me hears them! I am very tired all the time. I also feel like I am pulling half of my hair out every time I brush it. I get a puffy red rash the first time I get in the sun every summer. I have serious stomach problems. I have been diagnosed with Aspergers Syndrome which often comes with an autoimmune disorder. I really want to finally know what is wrong with me so I can treat it in some way. I am miserable and I have been for awhile. Even if I am going to die soon, I would just love to know why! Doctors can't find a cause for my problems even though they know I have them. HELP, PLEASE?!?!

    • ANSWER:
      If you have tested positive for a DS-DNA test then you most likely have Lupus. While there is no definitive test for Lupus the DS-DNA test is one of the best at ruling Lupus IN. That is to say that people with Lupus can test negative for the DS-DNA but there are very, very few false positives with this test.

      With your creatinine clearance being high, an indicator that your kidneys are in distress, you should not be taking the Meloxicam as this can put stress on them.

      The good news is that Lupus can be treated. You may need to have methotrexate or cytoxan to stop the Lupus Nephritis (when Lupus is attacking your kidneys). There is a new drug in phase three trials that is on a path to being approved for Lupus Nephritis, you may want to look into it...it's called Benlysta (Belimumab).

      You also may have to have a course of high dose oral steroids to help with the inflammation.

      There is a lot of help out there. Check out Lupus.org and look for a local support group in your area. Those who have dealt with the disease for years will have a lot of insight as to what to expect.

      Matador above has some good (although dated) information regarding the tests performed. The BILAG criteria that he mentions (four of eleven symptoms for diagnosis) was never meant to be used as a diagnostic tool it was for acceptance into a Lupus study. This criteria has been utilized for years by doctors who misunderstood its usage and is only now being quashed by the AMA.

      You appear to have kidney involvement and a biopsy may be necessary. A diagnosis of Lupus can be made if that biopsy shows Lupus Nephritis regardless if you have any of the other eleven criteria...thus the reason the BILAG criteria is just a guideline.

  5. QUESTION:
    i have to take 2-10mg hydrocodone every 4hr for pain is there anything else less harmful for my organs?
    hydrocodone is for my chronic pain the doctors are trying to find out how best to treat it but im looking for pain management alternatives i live in texas so im limited to pain management treatments. i have a liver problem they are looking into also so the hyd. will not be able to be taken for much longer i have looked for substatutes and have found nothing, my pain is in my body flu like feeling muscles, back, neck, chest, hands arms joints , headaches skin rashes and the heat gives me upset stomach and tiredness and body aches. im currently being treated for lupus but they are not sure if they know just yet they are 100 percent right.

    • ANSWER:
      There are a number of other opioids (same class of drugs as hydrocodone) that do not contain acetaminophen, or how its probably labeled, APAP, which is just tylenol. The narcotic portion of the combination you take is very safe and does not damage organs at all but the tylenol in it is very bad for your liver. They make a drug called vicoprofen which is a combination of hydrocodone and ibuprofen. The ibuprofen (commonly found in motrin) is not harmful to the liver but if you have gastric issues like ulcers or acid reflux it wouldn't be the best choice.

      There are also dozens of preparations that do not contain a combination but only a narcotic aka opioid. Opioids if taken long term can produce physical dependence however they do not harm your organs at all. You can get extended release or regular 4 hour doses of morphine or oxycodone. I find the latter to be the closest in effect to hydrocodone. Other single product opioids include 72-hour transdermal fentanyl, methadone, levorphanol, pentazocine, oxymorphone and hydromorphine. There are many so I am probably leaving one or two out but they all have essentially the same effect. There is also another, newer drug called tramadol (brand name ultram) that is not quite an opioid but largely binds to the same receptors and therefore has a similar effect although I'm not sure it would be strong enough for you.

      Are you being treated with immusuppressants like prednisone for the possible lupus? Not only would these help any possible autoimmune disorders like lupus, but they will help with muscle pain and joint pain if there is inflammation present. If steroids like prednisone helped reduce some of pain you could take less hydrocodone (or whatever drug) placing less strain on your liver.

      I hope you find a regimen that relieves your pain. I also suffer from chronic pain and I don't envy anyone who has to deal with it. Feel free to email me if you have any questions about what I discussed here or if you have any other questions about pain medicine. I hope you feel better! Take care

  6. QUESTION:
    Lupus questions?
    If you are diagnosed with lupus, since it is incurable, does it mean that you are going to die? I know they can treat the symptoms, but how long can you live with it for? Is it contagious in any way? My girlfriend was just diagnosed with it...can I get it from kissing her or putting creams on her rashes or anything like that?

    These questions, probably sound pretty ignorant, but I guess that's why I'm asking! Any additional information anyone might have would be appreciated! thanks

    • ANSWER:
      Lupus is a non contagious autoimmune disorder. One thing you might want to look into... Most modern medicine techniques only treat symptoms not causes. There is a lot of belief out there that most auto immune disorders and other non pathogen diseases are the result of being exposed to chemicals in our modern food supply or even because of the foods we choose to eat. Changing the diet can cause drastic improvements in these diseases. Check out www.mercola.com and also the book "the metabolic typing diet" by William Wolcott.

  7. QUESTION:
    I think I could have lupus but I am not sure how to talk to my dcotor about it..?
    When I was younger I tested positive for Lupus but my pediatrician said because I didn't have a butterfly rash, he didn't think I had it. So he gave me athritis meds and said I had rheumatoid athritis and sent me on my way. Years later I still suffer from the joint pain in my hands, hips, back and legs. I am exausted all the time, I have been diagnosed with anemia. I have been having emense pain in my lower back but it doesnt feel like my spine. I can't stretch it out, I feel as if I am being stabbed. I am also on meds to control night terrors, paranoia and hypopalmic Hallucinations. I have super bad dry skin that causes these red bumps all over my arms form the wrist up even to my back and my face feels like sand paper. I feel as if they are treating the symptoms but not the problem. They give me ambien to force me to sleep. I have sever headaches and even dizzy spells. When I talk to my doc, he never runs tests just tells me to buy lotion which I own tons and pills for motion sickne
    ss. I just want to feel well again. I am tired of being in Pain. I need referals to go somewhere and he doesnt't even refer me to a specialsist to get answers

    • ANSWER:
      You need to demand that you see a specialist. A doctor has an obligation to help you feel better. If he can't then he needs to send you to someone who does.

      Here's what you should do. Call and make and appointment with him. Prior to going to your appointment make a list of every symptom that you are having along with all the medications that you are taking. Have a family member come with you as an advocate. When the doctor comes into the room calmly and methodically go over the list of symptoms and medications that you are taking. Tell him that you don't feel better and all of the medications aren't helping. Tell him that you desire a second opinion and need a referral to a rheumatologist.

      He'll either do one of two things. He'll either refer you to a rheumatologist or he'll tell you that you don't need to see anyone else. If he gives you the referral then you're good.

      If not then you let him know that you'll be making an appointment on your own to see a rheumatologist for a second opinion. If they find something that he failed to test for then you will report him to the AMA for possible malpractice.

      Once you mention this he'll give you the referral. No doctor wants to be wrong but no doctor wants to be reported to the AMA for failing to listen to a patients complaints only to have those complaints validated. I know it sounds harsh but you really need to get some answers. This will work 100% of the time.

      Having a family member or a friend in the room with you during this will also put more pressure on him/her as it's not just your word against his/hers anymore you have a third party involved.

      The stabbing pain you feel in your back could be kidney issues. Have you had a urine test recently? I would make sure you follow up as soon as you can because if you do have Lupus and it has attacked your kidneys, time is of the essence.

      I wish you all the best!

  8. QUESTION:
    Have you ever judged someone based on hearsay & rumour only to learn later?
    that the person's actions stemmed from an illness beyond his control?

    (CNN) -- Michael Jackson's single white glove was his trademark -- an iconic image for a performer whose career constantly set, then redefined, pop culture trends.But it also was an early effort to mask a skin condition that he would struggle with for the rest of his life, say some who were close to him.

    "The glove was to cover the vitiligo; that's how that glove came into being."

    Jackson's dermatologist, Dr. Arnie Klein, told CNN that Jackson suffered from vitiligo, a disease that causes blotches of lightening skin, as well as a form of lupus that led to rashes and flaking of skin on his scalp.

    "His was bad because he began to get a speckled look over his body," Klein said. "All over his body -- on his face and hands, which is hard to treat."It's a report that rings true to others with the disease.

    "I have to wear sleeves and carry an umbrella," said Lee Thomas, who wrote a memoir called "Turning White," which discusses his physical and mental struggles as an African-American man whose skin changes because of vitiligo. "It totally makes sense to me." "I got [white spots] on one of my hands, so I used to wear a glove to hold a microphone," he said.

    Dr. James Norlund, a dermatologist, never treated Jackson, but said the singer's use of the gloves and lipstick was consistent with the patterns of vitiligo, since the spots frequently first appear on the hands and face, including the lips.

    Klein said he treated Jackson's vitiligo with a cream that eventually bleached Jackson's darker pigmentation to even out his skin color. He said it was that treatment -- not a once-rumored desire by Jackson to be white -- that lightened his skin over the years.

    "Michael was black," Klein said. "He was very proud of his black heritage."

    http://edition.cnn.com/2009/SHOWBIZ/07/09/michael.jackson.glove/index.html
    Edit: GeeCee, exactly! x

    • ANSWER:
      I agree with Brian. Rumours and hearsay with a desire to hurt and dismantle someone is pernicious. And as you said once in another post, useless to defend yourself when a person's mindset is immovable.
      I can understand the Lupus rash for obvious reasons, although it was the one thing my daughter was never afflicted with severely, now and then she did have patches of dry skin that turned red and brown and were very painful and as a result she never wore dresses or skirts in the summertime so if Michael wore a glove to try and disguise his condition why does anyone have a problem with that?
      He's going to be judged no matter what facts come out to the contrary sadly


How To Treat Lupus Holistically

Were you aware that without your knowledge, and in the background, your immune system is on call constantly to protect you from diseases, infections and viruses? Sometimes, however, situations occur where our immune system mistakenly interprets our normal bodily functions as threats and attacks them in order to prevent them from damaging our body.

Diseases of our autoimmune system can affect our muscles, tissues, nerves, or the digestive or endocrine functioning in our bodies and can be very serious and debilitating.

There is no known cure for diseases autoimmune, however, there are ways to control the symptoms and possibly prevent them from ever occurring.

Some of the more common diseases autoimmune are;

1. Rheumatoid Arthritis

2. Lupus

3. Multiple Sclerosis

4. Hepatitis

5. Addison's Disease

6. Grave's Syndrome and there are others as well

Many people are living fairly normal lives with an autoimmune disease and so can you.

With rheumatoid arthritis for example one natural remedy for the stiffness in the joints, that sufferers of this disease experience, is Apple Pectin. You can find this in pill form and take it to alleviate some of the pain and stiffness in your joints.

Here are some other natural remedies that can be helpful in the treatment of the symptoms of diseases autoimmune:

1. Herbal remedies - many of the autoimmune disease that cause joint pain have shown promise when treated with Feverfew which you can get at a natural health store either as a tea or in pill form.

2. Meditation - This can help you to focus on the positive aspects of your life which help to reduce stress and helps the body to perform better overall

3. Nutrition - Keep a food diary and note especially what foods seem to cause problems for you as not everybody is the same. In most cases a safe bet is to include fresh fruits and vegetables in your diet. Omega 3 fatty acids have proven helpful also and you can find these in flaxseed oil as well as salmon.

4. Hot and Cold Treatment - This works for anyone suffering from all over pain. You basically start with a very hot bath that you sit in for anywhere from 5-10 minutes, Then you end the therapy by taking a cold shower. In both cases, make the bath as hot as you can stand and make the shower a cold as you can stand. It's amazing that something so simple can be so effective but try it yourself and see if it works for you.

You will most likely go through a period of trial and error while you try to figure out how to cope with the symptoms of whichever autoimmune disease you are suffering from. Do not give up. There are answers out there for you and the thousands of others suffering from this type of disease. There are supplements you can get that boost your immune system so this would be one of the first strategies you should try.


How To Treat Lupus Headaches

Natural relief for any disease is preferred by many people these days because of the fact that many medications give unpleasant side effects and they minimize the resistance power of the body. Even though it is very easy to take care of headache with some of the medications, there are as many natural therapies available to take care of headache. With these therapies you don't have to worry about the side effects created by drugs and chemicals.

Herbal remedies for headaches are there since the cavemen used the plants to treat their ills but from recent past, we have moved more towards the chemical solutions to get the faster treatments. But, time has come that we should come back to the basics since natural pain relief techniques are not only effective and having no side effects but they are cheaper compared to the chemical solution medications.

Here are some of the natural ways to get rid of headache:

Drink Cup of Tea:

Herbal treatments are one of the best remedies when it comes to relieving the pain particularly the pains related to migraines and tension headaches. In such conditions person should get relaxed and should have one cup of tea. One should take care that the tea have enough herbs of right content and they can have powerful natural pain killer in your hands very easily. One can also try the chamomile mixed with a feverfew for a soothing tea that can eliminate or at least reduce the headache.
Take a Massage:

Headaches related to tensions are caused by the muscle tightening, that is often due to the stress of overwork or unaccustomed exercise. A massage to swiftly stretch these tightened muscles will help a person to release the tension. With manipulating the muscles particularly in shoulders and necks and at the base of the skull, the tightness will be eased and pain in the muscles will go off. This is the exercise that can be done by you. Here you have to work on the areas where your neck muscles attacked to the skull but it does work best of if it is done by somebody else with the experience and it will give you pain relief very soon.

Drink Water:

Do you know the fact that 75% of Americans are dehydrated most of the time? Most of the people prefer the soft drink with the snacks and meals. Unfortunately, having a cola will not going to rehydrate and in the worst case if you will take the soda, you will avoid to drink water. If this is the case, the state of dehydrations can cause headaches. So, drinking water is very important to prevent the headaches and also can be used to treat the headaches as well. If you have a doubt that the headache is because of the dehydration, drink two to three glasses of water and you will be alright in sometime.

Use Acupressure:

Acupuncturing is one of the very famous alternatives to the medical care required for some of the health problems, but the good part about this is that it can be done even without needles. Try to squeeze the fleshy area between thumb and forefinger for 5 minutes for quick headache relief.

Frequently Asked Questions

  1. QUESTION:
    i have to take 2-10mg hydrocodone every 4hr for pain is there anything else less harmful for my organs?
    hydrocodone is for my chronic pain the doctors are trying to find out how best to treat it but im looking for pain management alternatives i live in texas so im limited to pain management treatments. i have a liver problem they are looking into also so the hyd. will not be able to be taken for much longer i have looked for substatutes and have found nothing, my pain is in my body flu like feeling muscles, back, neck, chest, hands arms joints , headaches skin rashes and the heat gives me upset stomach and tiredness and body aches. im currently being treated for lupus but they are not sure if they know just yet they are 100 percent right.

    • ANSWER:
      There are a number of other opioids (same class of drugs as hydrocodone) that do not contain acetaminophen, or how its probably labeled, APAP, which is just tylenol. The narcotic portion of the combination you take is very safe and does not damage organs at all but the tylenol in it is very bad for your liver. They make a drug called vicoprofen which is a combination of hydrocodone and ibuprofen. The ibuprofen (commonly found in motrin) is not harmful to the liver but if you have gastric issues like ulcers or acid reflux it wouldn't be the best choice.

      There are also dozens of preparations that do not contain a combination but only a narcotic aka opioid. Opioids if taken long term can produce physical dependence however they do not harm your organs at all. You can get extended release or regular 4 hour doses of morphine or oxycodone. I find the latter to be the closest in effect to hydrocodone. Other single product opioids include 72-hour transdermal fentanyl, methadone, levorphanol, pentazocine, oxymorphone and hydromorphine. There are many so I am probably leaving one or two out but they all have essentially the same effect. There is also another, newer drug called tramadol (brand name ultram) that is not quite an opioid but largely binds to the same receptors and therefore has a similar effect although I'm not sure it would be strong enough for you.

      Are you being treated with immusuppressants like prednisone for the possible lupus? Not only would these help any possible autoimmune disorders like lupus, but they will help with muscle pain and joint pain if there is inflammation present. If steroids like prednisone helped reduce some of pain you could take less hydrocodone (or whatever drug) placing less strain on your liver.

      I hope you find a regimen that relieves your pain. I also suffer from chronic pain and I don't envy anyone who has to deal with it. Feel free to email me if you have any questions about what I discussed here or if you have any other questions about pain medicine. I hope you feel better! Take care

  2. QUESTION:
    I think I could have lupus but I am not sure how to talk to my dcotor about it..?
    When I was younger I tested positive for Lupus but my pediatrician said because I didn't have a butterfly rash, he didn't think I had it. So he gave me athritis meds and said I had rheumatoid athritis and sent me on my way. Years later I still suffer from the joint pain in my hands, hips, back and legs. I am exausted all the time, I have been diagnosed with anemia. I have been having emense pain in my lower back but it doesnt feel like my spine. I can't stretch it out, I feel as if I am being stabbed. I am also on meds to control night terrors, paranoia and hypopalmic Hallucinations. I have super bad dry skin that causes these red bumps all over my arms form the wrist up even to my back and my face feels like sand paper. I feel as if they are treating the symptoms but not the problem. They give me ambien to force me to sleep. I have sever headaches and even dizzy spells. When I talk to my doc, he never runs tests just tells me to buy lotion which I own tons and pills for motion sickne
    ss. I just want to feel well again. I am tired of being in Pain. I need referals to go somewhere and he doesnt't even refer me to a specialsist to get answers

    • ANSWER:
      You need to demand that you see a specialist. A doctor has an obligation to help you feel better. If he can't then he needs to send you to someone who does.

      Here's what you should do. Call and make and appointment with him. Prior to going to your appointment make a list of every symptom that you are having along with all the medications that you are taking. Have a family member come with you as an advocate. When the doctor comes into the room calmly and methodically go over the list of symptoms and medications that you are taking. Tell him that you don't feel better and all of the medications aren't helping. Tell him that you desire a second opinion and need a referral to a rheumatologist.

      He'll either do one of two things. He'll either refer you to a rheumatologist or he'll tell you that you don't need to see anyone else. If he gives you the referral then you're good.

      If not then you let him know that you'll be making an appointment on your own to see a rheumatologist for a second opinion. If they find something that he failed to test for then you will report him to the AMA for possible malpractice.

      Once you mention this he'll give you the referral. No doctor wants to be wrong but no doctor wants to be reported to the AMA for failing to listen to a patients complaints only to have those complaints validated. I know it sounds harsh but you really need to get some answers. This will work 100% of the time.

      Having a family member or a friend in the room with you during this will also put more pressure on him/her as it's not just your word against his/hers anymore you have a third party involved.

      The stabbing pain you feel in your back could be kidney issues. Have you had a urine test recently? I would make sure you follow up as soon as you can because if you do have Lupus and it has attacked your kidneys, time is of the essence.

      I wish you all the best!

  3. QUESTION:
    Can some one tell me whats wrong with me?
    there is something wrong with me but i can figure it out.
    Symptoms:
    hair loss
    lump under eyelid/above eyeball
    bruises easily
    tired and worn out a lot
    toes and fingers turn white when cold
    headaches/migraines
    dizzy spells
    mouth sores
    joints and muscles sore(mainly knees, legs, and feet)

    Any ideas? i don't know what to do. I'm thinking it's Lupus but thats one thing i don't want.

    Does any one know how one gets Lupus?
    and how is it treated?
    I cant figure out whats wrong with me... any tips

    • ANSWER:
      Sounds like you should have "thyroid problem" stamped on your forehead.

      Every single symptom you mentioned points to it. Go and get yourself tested with a TSH, free T3, free T4 and a thyroid antibody test (TPO).

      There is much debate in the medial community on how to interpret these results. I have given you a link to sites that will help you understand what is going on and how it should be interpreted.

      Good luck

  4. QUESTION:
    I have been sick for 3 years. I have a positive ANA and have had 2 positive lymes tests?
    I was first diagnosed with lupus and then told no you dont have it. I have had 3 lymes tests 2 positive and the last one negative. Doctors wont even treat me for that. Doctors keep wanting to treat me for depression instead of the problem. Antidepressants dont help. My symptoms are this...extreme Fatigue, headache, memory issues, numbness in my toungue and my lips feel funny, TMJ, dissyness , blurred vision, greyness in vision, slight hearing loss, depression. What could my symptoms be and how to I get a correct diagnosis? I have been sick for a long time and just want an answer...

    • ANSWER:
      You are lucky to have a positive test as Lyme's Disease testing is fraught with false negatives. You need to see a Lyme's specialist and take all your results with you. I have had your symptoms but mine was from vitamin B12 deficiency. Both conditions affect the nerves so they can mimic each other. It can't hurt to test your vitamin B12 (methylmalonic acid test is the most accurate along with a B12 serum test) but with the positive Lyme's test, you have Lyme's Disease.

      Why Lyme's Disease comes up negative:
      http://hubpages.com/hub/Why-You-Can-Have-Lyme-Even-if-You-Test-Negative

      Lymes Disease - under our skin documentary trailer:
      http://www.youtube.com/watch?v=uSsnMQHIJZk&feature=channel


How To Treat Lupus Flare

For treating Cold Sore in Your Mouth or lips, you use carmex on the outside of lips, not inside your mouth. That'll probably give you a wicked stomach ache. They have stuff at walgreens/cvs/drug stores for cold sores inside the mouth... which is technically called herpes. Totally common though. Campho-Phenique GEL works better than ANYTHING else and numbs it and I put it in my mouth all the time. I had an uncle who put it in his eyes, ears, mouth, and nose every night before bed and it never hurt him although, he was senile!

If it is in your mouth it is a canker and carmex won't help because it won't stay there. Get a really good mouth wash and rinse your mouth a few times a day with that. AH you have herpes in your mouth! That's really what it is. So safe sex everybody how would you like to have that pain down there! i wouldn't trust it they have better solutions. If it's in your mouth try gargling warm salt water. Camex works great, but I'm not sure about in the mouth. Yu can also Go to the drug store and get something called canker.
Cold sores are caused by the herpes type 1 virus. You get it by kissing or otherwise touching the lips/face of someone who has an active breakout. Once you have the virus it doesn't go away, it stays dormant in your system and flares up from time to time. The mark will eventually fade away by itself; for Treating Cold Sore in Your Mouth or lips, you can use a vitamin-E based skin cream to help with that.

Best prevention: in addition to a daily Lysine supplement of which you can get from Wal-Mart in the vitamin section is a tube of sunblock chapstick and apply it anytime you go out in the sun ... sunshine is the number one catalyst to activate cold sores. The best medicine is prevention ... I used to get cold sores once or twice a month. Now I use Lysine supplements and lip block and haven't had one in nearly two years now, and I have used prescriptions and about everything known for cold sores... nothing helped much ... that is until I learned about using sunblocking chapstick ... it is the best prevention tool available and it needs to be SPF 30 or greater.

Do you want to discover the best and most effective cold sore treatment? If yes, then I suggest you get a copy of the Cold Sore Free Forever guide.

Click here ==> cold sore free forever review, to read more about this natural treatment manual, and discover how its been helping 1000's of cold-sore sufferers allover the world.

Frequently Asked Questions

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  3. QUESTION:

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How To Treat Lupus Face Rash

The poison ivy plant creates a special liquid recognized as toxin urushiol oil. This is a liquid that hundreds of people are allergic to - which is why when someone's skin comes into contact with it they will break out in a rash that is able to extend all over their bodies' and be passed to other individuals, and stimulate them to itch.

There are dozens of things that might care for these rashes and everyone will want to find out on their own what will function best. Each of these treatments are distinct and counting on the extent of the impairment, how old you are, and what you like to utilise will determine the treatment that is strongest for you.

One of the most general treatments that individuals choose to use is calamine lotion. This can console the skin so that it is able to stop the itching. It is made with special ingredients that leaves behind a residue of pwder that will soak up the oozing stimulated by the skin rash and it will create a layer of crust. This layer will also serve to speed up the healing process.

It is manageable to utilise lotions that contain antihistamines like Benadryl and different painkillers. This will help some people who have a more severe response and to help take care of the rash much faster.

Be careful about the other types of soothing lotions that you can pick out because they might be produced with alcohol and this can cause it to burn. If you must, apply them just until the skin rash has finished oozing. If you keep applying it the rash will dry out a great deal more and will crack. This will only step-up the itching and keep it from healing.

While cortisone creams may not be capable in addressing the poison ivy rash it has the power to help with the itching. It is better to utilize this if the other treatment you are utilizing is not enough or if you have nothing else with you to utilize. To aid with the blisters you are able to utilise colloidal oatmeal to handle poison ivy.

Frequently Asked Questions

  1. QUESTION:
    Is it normal to get a bad rash while using retin a ?
    I was prescribed retin a by my dermatologist to lighten freckles and help get rid of acne on my face. The first day i brought it home i applied a fairly light amount to only affected areas on my face and automatically felt a stinging sensation were i had applied it , which i guess was normal since that was one of the side affects. The third day of use still the same affect but now only that my skin was irritated red , itchy ,dry and it felt like i had a pony tail on so tight that it made me feel like my skin was stretched out to the point i even felt Chinese . I automatically stopped use of it and noticed only now that my skin started peeling on the fourth to fifth day and was also accompanied now with a red irritated itching hurt to touch rash . The truth is that it even looks like a swollen sunburn or even like a bad case of lupus rash only around my eyes, cheecks, and chin that hurts . I am to embarresed to come out of my house cause of the way i look and am running out of ideas. So i would appreciate some good experienced advice on how to treat it and if it is normal or not to be experiencing these side affects with this medication.

    • ANSWER:

  2. QUESTION:
    I think I could have lupus but I am not sure how to talk to my dcotor about it..?
    When I was younger I tested positive for Lupus but my pediatrician said because I didn't have a butterfly rash, he didn't think I had it. So he gave me athritis meds and said I had rheumatoid athritis and sent me on my way. Years later I still suffer from the joint pain in my hands, hips, back and legs. I am exausted all the time, I have been diagnosed with anemia. I have been having emense pain in my lower back but it doesnt feel like my spine. I can't stretch it out, I feel as if I am being stabbed. I am also on meds to control night terrors, paranoia and hypopalmic Hallucinations. I have super bad dry skin that causes these red bumps all over my arms form the wrist up even to my back and my face feels like sand paper. I feel as if they are treating the symptoms but not the problem. They give me ambien to force me to sleep. I have sever headaches and even dizzy spells. When I talk to my doc, he never runs tests just tells me to buy lotion which I own tons and pills for motion sickne
    ss. I just want to feel well again. I am tired of being in Pain. I need referals to go somewhere and he doesnt't even refer me to a specialsist to get answers

    • ANSWER:
      You need to demand that you see a specialist. A doctor has an obligation to help you feel better. If he can't then he needs to send you to someone who does.

      Here's what you should do. Call and make and appointment with him. Prior to going to your appointment make a list of every symptom that you are having along with all the medications that you are taking. Have a family member come with you as an advocate. When the doctor comes into the room calmly and methodically go over the list of symptoms and medications that you are taking. Tell him that you don't feel better and all of the medications aren't helping. Tell him that you desire a second opinion and need a referral to a rheumatologist.

      He'll either do one of two things. He'll either refer you to a rheumatologist or he'll tell you that you don't need to see anyone else. If he gives you the referral then you're good.

      If not then you let him know that you'll be making an appointment on your own to see a rheumatologist for a second opinion. If they find something that he failed to test for then you will report him to the AMA for possible malpractice.

      Once you mention this he'll give you the referral. No doctor wants to be wrong but no doctor wants to be reported to the AMA for failing to listen to a patients complaints only to have those complaints validated. I know it sounds harsh but you really need to get some answers. This will work 100% of the time.

      Having a family member or a friend in the room with you during this will also put more pressure on him/her as it's not just your word against his/hers anymore you have a third party involved.

      The stabbing pain you feel in your back could be kidney issues. Have you had a urine test recently? I would make sure you follow up as soon as you can because if you do have Lupus and it has attacked your kidneys, time is of the essence.

      I wish you all the best!

  3. QUESTION:
    Have you ever judged someone based on hearsay & rumour only to learn later?
    that the person's actions stemmed from an illness beyond his control?

    (CNN) -- Michael Jackson's single white glove was his trademark -- an iconic image for a performer whose career constantly set, then redefined, pop culture trends.But it also was an early effort to mask a skin condition that he would struggle with for the rest of his life, say some who were close to him.

    "The glove was to cover the vitiligo; that's how that glove came into being."

    Jackson's dermatologist, Dr. Arnie Klein, told CNN that Jackson suffered from vitiligo, a disease that causes blotches of lightening skin, as well as a form of lupus that led to rashes and flaking of skin on his scalp.

    "His was bad because he began to get a speckled look over his body," Klein said. "All over his body -- on his face and hands, which is hard to treat."It's a report that rings true to others with the disease.

    "I have to wear sleeves and carry an umbrella," said Lee Thomas, who wrote a memoir called "Turning White," which discusses his physical and mental struggles as an African-American man whose skin changes because of vitiligo. "It totally makes sense to me." "I got [white spots] on one of my hands, so I used to wear a glove to hold a microphone," he said.

    Dr. James Norlund, a dermatologist, never treated Jackson, but said the singer's use of the gloves and lipstick was consistent with the patterns of vitiligo, since the spots frequently first appear on the hands and face, including the lips.

    Klein said he treated Jackson's vitiligo with a cream that eventually bleached Jackson's darker pigmentation to even out his skin color. He said it was that treatment -- not a once-rumored desire by Jackson to be white -- that lightened his skin over the years.

    "Michael was black," Klein said. "He was very proud of his black heritage."

    http://edition.cnn.com/2009/SHOWBIZ/07/09/michael.jackson.glove/index.html
    Edit: GeeCee, exactly! x

    • ANSWER:
      I agree with Brian. Rumours and hearsay with a desire to hurt and dismantle someone is pernicious. And as you said once in another post, useless to defend yourself when a person's mindset is immovable.
      I can understand the Lupus rash for obvious reasons, although it was the one thing my daughter was never afflicted with severely, now and then she did have patches of dry skin that turned red and brown and were very painful and as a result she never wore dresses or skirts in the summertime so if Michael wore a glove to try and disguise his condition why does anyone have a problem with that?
      He's going to be judged no matter what facts come out to the contrary sadly


How To Treat Lupus

I'm sure you have heard about supposed natural remedies for ITP blood disorder. Relaxation techniques, homeopathic remedies, eating blueberries, and a host of other natural treatments. You or someone you love might have even tried or is trying some of these natural remedies.

If you will keep on reading you will discover why natural remedies don't work for everybody. This is a serious issue because ITP blood disorder is a serious condition and doctors do not take it lightly. Drugs such as Prednisone, Danazole and others are standard treatments, not to mention spleen removal.

With so much at stake many look to natural remedies to defeat ITP instead of drastic treatments mentioned above in hopes of avoiding the expense of the terrible side effects. Why so many get little results is because they use a "shotgun" approach. Using broad remedies instead of specific ones. ITP blood disorder has multiple factors as it cause, so the natural treatment is only going to be good if it addresses the exact cause or causes of your particular case.
For example: One of the natural remedies being promoted for platelet dysfunction is vitamin D. Many who suffer from low platelet count are taking large doses of D because it has been proven to be effective in regulating the immune system. Sometimes the autoimmune condition of ITP will even respond to this natural treatment.

The problem is however, if vitamin D deficiency is not the cause of your ITP blood disorder you will be wasting your time. In fact high doses of vitamin D when not needed can create a toxicity in your body causing further damage. That is why it is important to take a blood test to identify deficiencies first so you can be more targeted in your approach.

My uncle was juicing carrots by the bag full to naturally treat his condition with high doses of vitamin A. He added a little apple and some celery to make things taste better. He didn't know if he was deficient in A, he just heard it might help. It didn't but he did turn orange!

One day he was dumping a whole bunch of celery juice down the drain that my 10 year old son had over produced in his zeal to help. My husband drank it instead of seeing it go to waist. My husband had been suffering from headaches in the hot afternoons. The next day, no headache. None for the rest of the week!

My husband was suffering from dehydration and since celery is high in sodium it supplied the natural salts needed for his deficiency. This happen quite by accident but shows how a natural remedy can help in a specific situation.

The point is always make sure the remedy is for you. Consult a nutritionally oriented or naturopathic doctor before using a natural treatment you know little of. I am not talking about eating foods that are good for you or taking a quality multi-vitamin but rather using high doses of something that could harm you if you don't need it.

Natural remedies for ITP blood disorder are effective. You just need to do the proper research and be sure to find what will work for you.

Frequently Asked Questions

  1. QUESTION:
    How is it that doxycycline (or any tetracycline) can both cause and treat Lupus?
    Some websites say that doxycycline can lead to drug-induced lupus, while others say that the drug can be used in TREATING lupus. Can someone clarify this? Thanks.

    • ANSWER:
      It can cause SLE and it should not be given to patients with SLE where it could exacerbate or worsen the said condition. Therefore, it cannot be used to treat lupus.

      Antibiotics, such as tetracycline, are often used for a given time frame to be able to work its best. Unfortunately, some people think that it would be better to take it for an extended period of time to make sure that it does its work completely. This is a misconception since the body has a way of getting immune to antibiotics. When this happens, it can produce adverse results instead of helping the body out such as growth of other organisms, and inducing other conditions to arise.

  2. QUESTION:
    HydroxyChloroquine availability in India to treat Lupus?
    My daughter has a rare condition called Lupus. It can be treated (or contained) by taking HydroxyChloriquine. I live in India. Unfortunately I have been unsuccessful in getting this from any pharmacy so far.

    Can some one tell me where I can get this medicine in India or whether (and how) it can be imported from any other country.

    I live in India.

    Thanks,
    Raghu

    • ANSWER:
      Lupus is not rare. About 5 million people worldwide have it. 90% of lupus patients are women. Women of color, including Indian women, get it 3 times more often than white women.

      Hydroxychloroquine is an antimalarial. You need a prescription to get it. This is the link for the manufacturer of the drug. Call or email them.

      You daughter needs to be under the care of a rheumatologist familiar with lupus.

      Please learn about lupus at the link below.

      Best wishes from a lupus patient in the USA.

      http://www.contactus.sanofi-aventis.us/contactcenter/index2.jsp

  3. QUESTION:
    How can I treat lupus symptoms without any dangerous medicines?
    I got lupus over the summer so now I have to go to school with lupus. I've been waking up in the morning felling pain in my heels when i put pressure on them. I also fell nauseous when I eat more than I want to. I also cannot stretch my arm out all the way without my elbow hurting, I can only stretch it about half way. I got tapered off of prednisone about two weeks ago so I am no longer taking prednisone and now I take 200 mg of plaquenil daily and that medicine isn't supposed to take effect until about a month (doctor said plaquenil takes a very long time to take effect) My doctor also said it may be a different kind of lupus because i only have four symptoms which are joint pain muscle pain appetite loss and fevers. I forgot to mention i was a 12 year old male since lupus is more common in females. My family including my extended family and ancestors also have no evidence of lupus. I also try to exercise in PE at school every day but become short of breath a lot faster than when i didnt have lupus (doctor also said it mightve been because i was inactive with absolutely NO exercise for a month. And also if you know about something that could open my appetite please tell me about it. I have had absolutely NO medical problems in my entire lifetime other than a couple of colds flus and this lupus. So if you know of any herbs or herbal teas that could help me please tell me thank you very much and i forgot to mention i got a cat 6 month before the symptoms started showing up

    • ANSWER:
      Hi, My name is Jenn Summers Im a Bio-nutritional Practitioner Your health problem is not unique to us. We address the cause of your health problem. It's all about Cell Health. Go to www. sharcare.usana.com
      when the cells in the body get all the bionutritionals they require the human body can maximize its ability to defend, prevent or stop ddebilitating disease and chronic pain. The sscienceof Bionutritional Medicine is sixteen years old and presently is not taught at any of the medical schools in the USA
      There are many MD's in the USA starting to use Bionurititional in there praactice. Presently we habve over 120 protocals.There are no side effects with this all anturaal patented products. The Bionutritional are pharmacutical grade and are in the Physicians Desk Guide, PDR. Scripts can be written by your Doctor so that your health insurance providercan reimburse you.
      Call me at 440.688.4051 and ask for Jenn . Iat that time I will give you more details and set up a Free Health Assesment to get you started on this new and exciting 21 st Century Health Sceince..Improvemment should start in a week or so with the Lupus protocal.

  4. QUESTION:
    been very ill- could i have lupus?
    for the last year ive been really sick. ive had numerous test done and been put on a hole mess load of medications. but nothing seems to help and im just getting worse. im in constant pain and cant hardly eat. my entire stomach hurts and my food doesnt digest and i have no bowel movements. it hurts to empty my bladder and my lower back feels like its breaking. mostly i get pains under my ribs and on my sides. but i also get shooting pains every where at different times.

    well ive been doing a lot of research on my own because my doctors cant seem to find out whats wrong with me. and i came across lupus. all i know about it now is its an auto- immune disease and it can affect your organs and make you lose function of them. so i wondering if i could have it. i dont have a history of any gastric problems in my family except acid reflex but ive been tested for that.

    what are the symptoms of lupus? how do you test for lupus? how do you treat lupus?

    i just what to know as much as possible about lupus or any other illness that can cause my symptoms. if any one could give me some information i would really appreciate it!

    thank you

    -sam

    • ANSWER:

  5. QUESTION:
    How would a clinical immunologist treat/diagnose SUSPECTED SLE (Lupus) compared to other specialists?
    DIAGNOSIS HAS NOT BEEN CONFIRMED.

    Would it be appropriate to see a clinical immunologist, as the problem is likely autoimmune in nature? If so, how would he treat the problem and confirm the diagnosis compared to the rheumatologists and internal medicine doctor I have already seen? Would the immunologist's approach vary considerably or slightly?

    Thanks!

    • ANSWER:
      Immunologist do not routinely take care of people with SLE and they would approach the diagnosis of SLE the same as any other doctor. Rheumatologist are actually the doctors that take care of SLE and many other autoimmune disorders. There are guidelines with specific criteria from the American College of Rheumatology regarding the diagnosis of SLE which ALL doctors are to follow no matter what their specialty. This is mainly based on physical exam findings and blood tests. An immunologist will look for the same physical exam findings and will also check the same labs.

  6. QUESTION:
    Can hepatitis cause lupus or lupus cause hepatitis?
    I was told I have lupus by my dr and then I saw him not long ago and I said how tired I am ALL the TIME! He said that he wanted me to be tested for hepatitis A, B and C. So.. I am, but can one cause the other, or make the other worse? I have a friend that wants me to treat my lupus and possible hepatitis naturally, but I don't know if It would work and I dk what to do. I haven't got the test done yet, but I lost alot of weight and got sent to the dr and he said back then I might have lupus then last year I saw him later in the year again and he said I have it but then I saw him this year and he said since I'm tired all the time to get this test done, I heard if you have hep and lupus that if you try to treat the hep that it can make lupus worse. And my friend wants me to get this stuff treated naturally. :/ I jus don't know what to do and Idk if either way is good. I'm currently not on any medicine for lupus. Ty for your help. Happy Resurection Day and HUGS :) )
    Ohh.. I guess cuz my Dr. thought it was mild. O_O I have no idea. Ty for ur help though=)

    • ANSWER:
      Hepatitis is inflammation of the liver. It is caused by a virus. It is contagious. Lupus is an autoimmune disease. The two are not related. When you have lupus, you do have a harder time fighting infection.

      Absolutely do not let your friend treat either disease. You are gambling with your life. Some things that are "natural" actually make lupus worse. I have to wonder why you are not on medication for lupus. With lupus, you can develop permanent organ damage and you won't have symptoms until you are in serious trouble.

      It is not natural for your immune system to turn against your body. That's what happens in lupus. If you are going to look at the larger picture, you should eliminate all toxins from your food, water, clothing, personal hygiene products, carpeting, paint, soaps, atmosphere, etc. You can reduce the body burden but you can't eliminate it. Also, exercise and stress reduction are essential to managing lupus.

      It is your body and your life. Don't be swayed by pressure from people who rarely have solid scientific evidence. Ask your friend for articles that report on double blind placebo studies with good sized popluations and that are published in peer reviewed journals. You won't get any. You will get anecdotes about somebody who got better. But were they like you? Same age? Gender? Medical history? Combination of conditions? Same lifestyle? Same genetics?

      Remember that hemlock and arsenic are natural, and they can kill you.

  7. QUESTION:
    Can a corticosteroid drug cause your blood pressure to rise drastically?
    I'm being treated for lupus with prednisone. Before I started taking this medicine, I had no blood pressure issues. Over the past two weeks, my blood pressure has been spiking. Last night it was 205/125 and that is a first for me. I am now told it could be worse and keep an eye on it. Well, I am just now wondering if it is the prednisone since it is a corticosteroid. I'm not sure how it works. Does anyone know?

    • ANSWER:
      Steroids like prednisone if given long term can cause increased blood pressure chiefly due to fluid retention which is associated with sodium retention.
      Similarly sudden withdrawal of a steroid can cause a dangerous fall in blood pressure due to suppression of the adrenal gland. That is why withdrawal of steroids is done slowly.
      In your case the steroids have an effect in raising the blood pressure, but there may be additional causes too.
      You should inform your physician and get yourself investigated, but do not stop or reduce the steroids on your own.
      I am a medical doctor.

  8. QUESTION:
    To sufferers of immune disorders: How can I treat myself for possible lupus/rheumatoid arthritis? (detailed)?
    Allergic to dust/grass as a child, but allergy-free from age 13 until recently (I'm now in my late 20's).

    Hep C

    Early 20's: diagnosed with Hep C (untraced source). I was suddenly cured after 1 mo. My doctor said my own body got rid of it, which is rare for hep C patients.

    Several months later I noticed when I'd lay on my left side, there's a tingly, tender sensation. There's no pain and I got used to it so I'm just living with it.

    Arthritis?

    8 mos ago: sudden onset of stiffness/jammed feeling on both wrists (overnight). Always had weak/inflamed knees since 4 yrs back, would disappear with regular exercise.

    Got Sick

    Late last year I had flue more than a month. I was diagnosed with bronchitis, was on antibiotics and was cured right away.

    I started lightly working out again and just a month later I WAS SICK AGAIN! I was down for only 3 days though compared to the last time. Coughed 1 month. I was on stronger antibiotics and cured. I also saw an allergy doctor and was diagnosed with sinusitis and now on corticosteroids.

    Results

    My ANA blood test turned out POSITIVE. My doctor ordered a 2nd test for next month. She said it's an indication of possible lupus or rheumatoid arthritis.

    Extra info:

    Never been overweight my whole life.
    Ethnicity: Asian.
    My other "illnesses" recently diagnosed: costochondritis.
    Always had: severe dandruff, on and off but worse now; dandruff-related facial rash, only shows up on the same spots - left cheek near nose, between eyebrows.
    Falling hair is worse now.

    I'm a copywriter for more than 3 yrs. I admit my posture is VERY bad, often sitting or lying on my stomach on the bed (probably caused the costochondritis). Was diagnosed 4 yrs ago with borderline anemia (mother is anemic). Prescribed iron supplements but I stopped cos of side effects which is diarrhea.

    THIS IS MY DILEMMA: I was thinking of eating healthier and exercising again. But wouldn't raising the immune system make things even worse? I just hate the idea of being on immune-suppressing drugs, considering my now sensitive liver. I would be more open to "natural" treatments. How do I go about this?

    • ANSWER:
      When you have autoimmune disease you have to be an active PART of the treatment plan. Your doctor is the other active part.

      You have classic lupus symptoms. If lupus is not properly treated, you can end up with permanent organ damage or worse. It is not natural for your immune system to turn against you.

      You can eat healthier and exercise and that will certainly help. Words are often used incorrectly when it comes to the immune system. Healthy eating and exercise BALANCE the immune system. This is desirable.

      Everyday you are exposed to thousands of toxins...in your food...in your personal hygiene products...in the air...in the water...in your food...coming from your clothes...coming from your furniture and flooring...and much more. You can't eliminate all of them. Therefore, a totally "natural" approach to autoimmunity is impossible.

      Next, factor in stress. Stress is the single biggest factor in making lupus flares worse. What do you to do manage/reduce stress?

      You are Asian which means you have a siginficantly higher chance of developing lupus. You are 20 which increases your chances even more. You are a woman. 9 out of 10 lupus patients are women. Lupus develops most often in women between the ages of 14 and 45.

      There are 23,5 Americans with autoimmune disease and 2 million with lupus. 40% of us develop lupus nephritis. If left untreated, it can kill you.

      The doctors will monitor your liver function frequently. You may only need the weaker immunosuppressive medications. If you do go on the heavier ones, it is not ususally for an extended period of time, but just long enough to bring the flare under control.

      Everything we do is a matter of risk versus benefit. It is more so when you develop a chronic illness and are looking at treatment options. Do your homework, talk to your rheumatologist and then make an informed decision.

      I have systemic lupus with major organ inovlvement (heart, lungs, joints, brain, bone marrow, blood, and kidneys). In 2003, I was not expected to live. I take my meds, have a very healthy diet, exercise daily and practice meditation and yoga. After 4 years on disability, I returned to work 4.5 years ago. I am 59. Without the medication, I would most likely be on dialysis right now.

  9. QUESTION:
    i have to take 2-10mg hydrocodone every 4hr for pain is there anything else less harmful for my organs?
    hydrocodone is for my chronic pain the doctors are trying to find out how best to treat it but im looking for pain management alternatives i live in texas so im limited to pain management treatments. i have a liver problem they are looking into also so the hyd. will not be able to be taken for much longer i have looked for substatutes and have found nothing, my pain is in my body flu like feeling muscles, back, neck, chest, hands arms joints , headaches skin rashes and the heat gives me upset stomach and tiredness and body aches. im currently being treated for lupus but they are not sure if they know just yet they are 100 percent right.

    • ANSWER:
      There are a number of other opioids (same class of drugs as hydrocodone) that do not contain acetaminophen, or how its probably labeled, APAP, which is just tylenol. The narcotic portion of the combination you take is very safe and does not damage organs at all but the tylenol in it is very bad for your liver. They make a drug called vicoprofen which is a combination of hydrocodone and ibuprofen. The ibuprofen (commonly found in motrin) is not harmful to the liver but if you have gastric issues like ulcers or acid reflux it wouldn't be the best choice.

      There are also dozens of preparations that do not contain a combination but only a narcotic aka opioid. Opioids if taken long term can produce physical dependence however they do not harm your organs at all. You can get extended release or regular 4 hour doses of morphine or oxycodone. I find the latter to be the closest in effect to hydrocodone. Other single product opioids include 72-hour transdermal fentanyl, methadone, levorphanol, pentazocine, oxymorphone and hydromorphine. There are many so I am probably leaving one or two out but they all have essentially the same effect. There is also another, newer drug called tramadol (brand name ultram) that is not quite an opioid but largely binds to the same receptors and therefore has a similar effect although I'm not sure it would be strong enough for you.

      Are you being treated with immusuppressants like prednisone for the possible lupus? Not only would these help any possible autoimmune disorders like lupus, but they will help with muscle pain and joint pain if there is inflammation present. If steroids like prednisone helped reduce some of pain you could take less hydrocodone (or whatever drug) placing less strain on your liver.

      I hope you find a regimen that relieves your pain. I also suffer from chronic pain and I don't envy anyone who has to deal with it. Feel free to email me if you have any questions about what I discussed here or if you have any other questions about pain medicine. I hope you feel better! Take care

  10. QUESTION:
    Please help me, I am in serious need of a medical opinion re: high WBC count, chronic infections, pnuemonias?
    I've had lung issues ever since suffering 5 pulmonary emboli 3.5 years ago. The issues have been severe pleuritic chest pain and coughing up of blood (hemoptysis).

    Recently March I suffered from pneumonia and have gotten sick over and over since.

    Occurence #1

    I go to the emergency room coughing up blood and my white count is 18.9, platelets 23 (i have a platelet disorder called ITP) the doctor takes an xray and reads it quickly saying it is just a bronchitis. He prescribed Azithromycin 250mg twice a day for 5 days.

    Occurence 2:

    2 days after finishing the Azithromycin from "Occurence #1" I end up in the emergency room with a fever of 100.3 and I see the same doctor who again prescribes Azithromycin but in stronger dosages. 500mg twice a day for 7 days.

    Occurence 3:

    4 days after occurence 2 I again go into the emergency room coughing up COPIOUS amounts of blood and I am admitted to hospital instantly for 7 days. I am told I have a very severe pneumonia (White blood cell count of 32) that the previous 2 doctors on the other occurences had somehow failed to see and that now it was "a very bad case of pneumonia". I am started on Vancomycin intravenously with Azithromycin 500mg per day orally. After 7 days of Vancomycin and Azithromycin I am released and feeling better.

    Occurence 4:

    2 weeks after occurence #3 I am admitted to hospital again with a white count of 29 and pneumonia, I am treated with intravenous Ceftriaxome, Levaquin, and Azithromycin. I am released after 7 days, and sent home with 7 extra days of Levaquin and a drug called Cefuroxime as well as Azithromycin.

    Occurence 5: I present to the emergency room urgent care unit with cough and the coughing up of blood and severe pain in my left lung. The Xray is clear of pneumonia but my white count is 27. I am given Cefuroxime and Clarithromycin. I start feeling better after a week.

    Occurence 6,

    2 weeks after occurence 5 I am back in the urgent care unit and my white count is found to be 19.8 again antibiotics are prescribed because of the WBC and the coughing I am suffering from as well as I have a fever/chills. Diagnoses is "viral bronchitis" supposedly. I am discharged and sent home on Cefditoren, and Levaquin for 7 days each.

    So now I am on Cefditoren and Levaquin i'm starting to feel better but I have a feeling as soon as the antibiotics are out of my system my WBC count is going to skyrocket again and I will start coughing.

    What could be causing this ? All of this has happened since March of this year!!! That's alot of antibiotics to have been on and considering my White blood cell count keeps climbing once they are gone I don't know how I am going to get this under control.

    I do have ITP which is an autoimmune disease causing decreased platelets but it's not known to cause this kind of problem. I have suffered from fevers ever since I had the ITP (when I was 18 and now I am 25) Basically my health has been terrible and i've been bed ridden since 18 years of age.

    The doctors have investigated me for lupus and all sorts of other things, cancers etc but I know there is something going on that they can't pinpoint.

    It doesn't take a doctor to realize all of this is not normal. I've been on about 10 different antibiotics several times, by mouth, by IV it doesn't matter the strength, my white blood cell count and pneumonia or bronchitis comes back.

    I don't have Tuberculosis......I don't have HIV/AIDS I am stumped! Ideas would be appreciated.

    The only thing that comes to my mind is maybe leukemia or some type of cancer or that it is lupus that is flying under the radar. I know you can have lupus without any of the tests being positive but doctors will almost never diagnose you as that unless you are positive for their tests. I have been treated for lupus with one drug when one doctor about 5 years ago said I could have it despite my tests not showing anything. After I tried the Hydroxychloroquin (plaquenil) she said i can't have it or my symptoms would have all went away. I know that is complete rubbish because there at least 10 more drugs used to treat lupus and giving me one drug and not having very positive results does not mean I don't have it.

    What do you all think?
    I know they tested me for TB, I believe they test everyone who comes in with respiratory problems for TB and other things.

    I was put in a negative pressure isolation room for my admittance each time. I was in a room alone because I was coughing up blood everywhere I guess? They said I wasn't infectious after being on antibiotics for 24 hours which I found to be kind of ridiculous.

    I was tested for HIV again. I personally asked to be tested since I haven't been tested in 2-3 years, and I haven't heard that I have HIV so I'm guessing it's not that or they would've given me the health canada shakedown and informed me of all my obligations as an HIV positive person to not spread it blah blah. So it's negative.....

    It could be viral but why do i feel better when I take antibiotics. I know it's not a placebo effect because my white count does decrease and I got better enough to go fishing with my father for the first time in almost a year and a half.

    I'm really stumped.

    I am going to s

    • ANSWER:
      Sorry to hear you are having so many problems... Have they tb tested you? Or have they just given you the its likely it's not tb talk. Your WBC count is up prob bc or the auto immune disease or because what's happening in your lungs is an attack from some sOrt of pathogen. I am guessing since u have not responded to all the antibiotics that it's viral, but shame on them for giving you such a cocktail. That could cause more problems in the end. What i recommend is going to see a resp. Specialist who knows better than Er docs. Really they are just there for emergency situations and are not the best for 100% specialty diagnosis. Really hope u figure this out

  11. QUESTION:
    Many OBVIOUS questions about health care reform aren't being answered.?
    There are many questions about this health care reform that aren't being answered.

    If you have a child who is on State Health care simply because you can't afford health care will State Health care still exist when the reform is in effect? Or will families need to pay for their children's health care too?

    If you make under ,000 a year you will have your health insurance subsidized. So what percentage of my income will I be spending on health care?

    Will there still be co-pays?

    Do we really not get to choose our doctors? What happens if you are being treated for Lupus or have a doctor that isn't sympathetic with your needs?????? So does this mean I'll need to go too a normal doctor to get the ok to see a dermatologist?

    How much coverage will we get? I can't image we'll get much.....

    Is dental and vision included for adults?

    Lets say I think this is BS and don't want to pay or can't pay. Then they charge me the fine and I don't pay that either. Because if I can't afford health care what makes you think I can afford a fine????
    Will they put me in jail? For how long?

    Do we get to choose our own insurance coverage? Or have to be told what to get? Maybe I need something specific like back care....do I have a say at all?

    • ANSWER:
      I agree, and it is going to be a dilly of a couple of months leading up to the elections.

  12. QUESTION:
    What is the most effective treatment for the swelling seen with Lupus?
    It can take upto 7 years to diagnose Lupus, but I'm swelling up all the time. My doctor has tried a couple of different medications to increase urination to decrease swelling, but I'm still swelling. If I have lupus or a closely related disorder, how do doctors treat the swelling.

    • ANSWER:
      Lupus is an inflammatory disease. In other words, it causes swelling. The treatment depends on the nature of the swelling. If your joints are swollen, then you would take a nonsteroidal anti-inflammatory like ibuprofen or naproxen. It it is very bad you might add steroids. If you have inflammation in organs chemotherapies or biologics would be prescribed. If you are retaining fluid, which is what it sounds like, you should restrict salt intake and take diuretics as prescribed by your doctor.

  13. QUESTION:
    How common is it to have both Lupus and Emotional issues?
    I've seen various sites talking about bipolar disorder and lupus, or severe depression and lupus, and I know that I, personally, was treated for bipolar disorder before they found out I was LA+. (I don't have lupus, I'm RO-, but I have lots of lupus-related symptoms, so I'm being treated for them.) I was just wondering, how common is it for people who have lupus to have emotional issues as well?

    • ANSWER:
      I have both! I'd say very common but I don't think much research has been done to really find out!

      But here's what I found....

      According to The Lupus Foundation of Americas pathetic website ...
      Some psychiatric and medical studies state that 15 percent of those with a chronic illness suffer from clinical depression; others place this figure as high as 60 percent. Although clinical depression is certainly more common in people with chronic medical illness, (e.g., lupus) than in the general population, not every patient with a chronic illness suffers from clinical depression.

      For patients with systemic lupus erythematosus (SLE), symptoms of depressive illness that quite naturally can be attributed to the lupus condition include:

      inactivity
      loss of energy and interest
      insomnia
      pain intensification
      diminished sexual interest and/or performance.
      What causes depression in lupus?

      There is no one cause of clinical depression in lupus; rather, there are various and different factors contributing to depression in chronic illnesses such as lupus.

      The most common cause is the emotional drain from the continuous series of stresses and strains associated with coping with the chronic illness and medical condition.
      Other causes may be the many sacrifices and losses required by the continuous life adjustments that a patient with a chronic illness must make.
      Various medications used to treat lupus, such as steroids (e.g., prednisone), may bring about depression.
      Lupus involvement of certain organs (e.g., the brain, heart, or kidneys) can lead to clinical depression.
      There also are many unrecognized or unknown factors (which may or may not be related to lupus) which may cause depressive illness.
      Of course, there are people who would develop clinical depression whether or not they had lupus. In fact, it is the most common psychiatric condition seen in the general population-20 percent of women and 10 percent of men-as well as in medical practice.

  14. QUESTION:
    Can lupus be diagnosed as leukemia at the beginning?
    I am no medical expert, but with today's technology, can a person with lupus be initially diagonsed with leukemia?

    In addition, for both illness, do you treat them with chemotherapy and/or radiation? Which one makes you lose hair? Can you only lose some but not all? And with each session of chemo or radiation, how soon can you recover enough to go back to work?

    • ANSWER:
      The Dr of a person with undiagnosed SLE type lupus would include leukemia into the possibilites of a potential diagnosis before doing various tests and finally diagnosing lupus.
      Lupus is made by a diagnosis of exclusion rather than any one test that determines you have lupus. A person with lupus can have a variety of seemingly unconnected symtoms that when there are enough symptoms present and lab values present will allow the Dr to make a diagnosis of lupus. Usually you must have 4 or more of the 11 potential symptoms and blood work results indicating potential lupus to make a definitive diagnosis of lupus.
      http://www.lupus.org/education/articles/diagnosis.html

      If you had numerous unexplained symptoms then leukemia would be one disease that would have to be investigated and tossed out before a diagnosis of lupus could be made. I hope that I adequately explained what I am trying to convey to you.

      http://www.lupusontario.org/symptoms.htm

      You don't use chemotherapy or radiation to treat lupus although a couple of the drugs used to treat lupus are sometimes used to treat various cancers. Lupus treatments don't usually affect your hair. It would depend on your particular treatment regimen whether hair loss would occur when treating leukemia. How soon you got back to work would again depend on what type of leukemia and what type treatments. There is no one size fits all rule. Hope this helps.

  15. QUESTION:
    I have lupus (sle) Can anyone advise me on the long term affects of Plaquenil?
    I have sle (lupus) and am on the drug plaquenil which apparently is a drug that they use to treat malaria with. They say it can cause you to lose your eyesight - Is there anyone out there on the same drug and how do you feel about it. I went off it for a couple of month's against my Doctor's advice and regretted it as I got sick again. Thanks for your help.

    • ANSWER:
      Long term effects can be damage to vision, liver and kidneys. Plaquenil is an old medication and is used by doctors who aren't very current in their Lupus medications. Presently, Cellcept is a much better medication to treat Lupus flares (Myfortic is Cellcept in a time released form and can be used if stomach issues arise). Cellcept was initally used as an anti rejection medication for transplant patients but it's ability to lower the immune system response has proven it to be very effective in controlling SLE.

      There are many additional drugs in Phase II and Phase III clinical trials. Most recently, Rituxan has been used to target the "B" cells of the immune system and seem to be showing good progress.

      I would suggest bringing up the names of these medications with your rheumatologist and inquiring to their benefits in your case. Obviously, every case of SLE is different and there may be specific reasons why your doctor has kept you on Plaquenil but in most cases we find that it's more a lack of current education rather than any specific objection to newer medications.

      If you have any additional questions please do not hesitate to contact me.

  16. QUESTION:
    i have lupus and horrible doctors how can i get a good doc to treat my symptoms seriuously?
    i suffered w/ chronic pain for a year before i was admittedin the hospital and finally dignosed its been five yrs now and class 3 nephritis w/good kidney function, i take 10 mg of predisone, 150mg of imuran and 400mg of plaqunil, also i take 8, 40 mg of oxycotin, i just want to stop living in pain, and have another child, when i talk to the doctors they act like theres nothing wrong, but tell me i should never try to have a child again, what can i do to get the help i need and stop this diesease?

    • ANSWER:
      Lupus can't be cured and you definitely can't stop the disease process... Some have worse symptoms than others, but my mom was diagnosed 5 years after I was born, but started getting symptoms once I was born... They don't know what causes it exactly, but something about childbirth tends to "set it off"...You can have another child, my mom had my sister 6 years afterwards, but she "acquired" more symptoms... Be careful with prednisone my mom took it for years---it's a miracle short term drug but when taken long term like my mom did will deteriorate your bones---I'm not trying to scare you but my mom isn't even 40 and has 2 prostetic hips---she's had it for almost 20 years and looking at her you can't tell there's anything "wrong" til you watch her... The pain will be bearable some days and not so bearable on others... Weather has an effect on it as well especially if you have arthritis... The best thing you can do for your child is be strong... The disease is an autoimmune disease which affects everything in your life... from sun exposure (can't have too much or you can get a butterfly rash and or lesions) to feeling like you don't want to do anything whatsoever... Finding a good doc is difficult especially cause most have either just heard of lupus or know little to nothing about it... I do feel for you and hope the best with you and your child and hopefully another in the future...

  17. QUESTION:
    I have lupus, I just found out I need to start being treated with cytoxin. How scared should I be?
    I'm only 15, my mom is a wreck, I'm scared. I want to have kids, I don't want to loose my hair and I don't want to be sick for the rest of my life. Inspirational songs will help too.
    fyi: my mom is a wreck because she's scared too, not like any other way.:)

    • ANSWER:
      Now, the first and most important thing is to get your immune system to stop attacking you. If the doctors tried other things and they have not done the job, then cytoxan is the one of the big guns. Can you be just a wee bit thankful that you live in a time and place where we have cytoxan to treat your lupus complications? A lot of people all over the world wish they had your option. Take it.

      You may or may not be able to have kids after cytoxan. If you can't, there are other options, several in fact. But what kind of mom would you be if you did not get the lupus under control? And think about your mom. As any mom will tell you, the most important thing is for the kids to be OK. Try to imagine what you would tell your child if you were the healthy mom and you had a daughter with lupus.

      As horrible as it seems to lose your hair, it will grow back. I am guessing that you may have lupus kidney disease. I have that, too. Mine responded to Cellcept, a kind of chemo you take in a pill, but I will have to be on it for the rest of my life.

      I know several people who have had cytoxan for lupus and are doing fine now. You can write to me if you want.

      Linda

  18. QUESTION:
    What do you know about drug induced lupus?
    My husband has been diagnosed with this. How is it treated and how long will it take to go away.

    • ANSWER:
      these websites have some good info:
      http://www.lupus.org/education/brochures/drug.html

      http://en.wikipedia.org/wiki/Drug-induced_lupus_erythematosus

  19. QUESTION:
    Who has/knows a lot about Lupus?
    Im 17 years old,female and I had positive AnA and now have to be tested for lupus. Im very very scared. If I have it the docs are predicting a minor case of it,but im still very nervous? Do all lupus patients go on chemo? How do they treat a minor case? Will I lose all my hair and have scaring skin? Im sorry if I sound stupid im just scared.
    I know positive ana doesn't mean lupus,but I have symptoms of it.

    • ANSWER:
      A positive ANA does not necessarily mean lupus. You need further testing to determine that.

      Most people who have lupus (90%) are female. One out of five women have a positive ANA test, but obviously 20% of the female population is not debilitated with the symptoms of lupus. Many women with a positive ANA have another disorder or will never get sick with anything.

      Also, while some with lupus may require chemotherapy, others do not. Chemotherapy is, to quote the Johns Hopkins page on lupus, "the gold standard for the worst lupus." I think medications by mouth are much more common. And the chemo is not the long, drawn out kind of chemo you get with cancer. It's a little bit different and has a pretty good remission rate.

      Lupus used to be a life-shortening illness to the point where only 50% of people survived for 5 years after diagnosis. Today, about 90% of lupus patients are still alive 5 years after diagnosis. Lupus is not curable, but it is highly treatable. I wish you the best and I hope you feel better soon.

  20. QUESTION:
    I have discord lupus...anyone else has it and how are you treating it?
    Its in my hear, ear, on my face and spreading to my chest and back. I am on medication but its just spreading. I avoid the sunlight as much as possible yet it burns and itches. They are light read and 1st and once the medication goes on ther darken. Any advice would be appreciated. Thanks.

    • ANSWER:
      Hi, we have many friends that have cutaneous lupus and I have SLE. I'm sorry you're suffering so much.

      My friends use their meds and SPF clothing (shirts, jackets, hats, glasses, etc.) but I know they still suffer. I think every litttle bit helps, though.

      Has your Rheum offered any other advice on soothing baths, showers, etc?

      I know about the itching and the side effects and I'm very sorry. Please make sure your doctor knows about this as maybe changing your medicines may help.

      God Bless.

  21. QUESTION:
    Does anyone have lupus, how did you know, what are your symptoms & how are you treating it?!?
    I have a lot of symptoms I think of it & am a female in the right age range. I will go see the dr as soon as I can but just wanted to know...

    • ANSWER:

  22. QUESTION:
    Can someone explain to me what lupus is? what causes it? and how it's treated?
    I looked it up but I still don't really understand. I'm looking for a simple yet an informative answer.
    i don't know anyone with it, i'm just curious...can i get a real answer please?

    • ANSWER:
      There are a couple of diseases, one is Lupus Erythematosus which is a disorder characterzed by skin inflammation or Lupus Vulgaris which is a tuberculous disease of the skin with the formation of soft brownish nodules with ulceration and scarring. Go to about.com and type in both to read more about them!

  23. QUESTION:
    Confused and Afraid about Lupus?
    My older sister was recently diagnosed with having Lupus probably about 5 weeks ago. Well this past weekend she went into seizure and may have possibly had a stroke. Her kidneys also dont seem to be working and she is disoriented. Me and my family are basically doing a waiting game right now because the doctors cant treat her if they cant pinpoint exactly what has happened. My question is does anybody out there know anything about this disease, how to treat it and will she get better? She's only 32 and was a healthy young woman before any of this happened. Thanks.

    • ANSWER:
      http://cure4lupus.org/

      here is a bunch of info on the subject. I am researching it because my mother was diagnosed and I am trying tio determine the possibility of me having it as well. It's a good site.

  24. QUESTION:
    I need some help on a language paper (10 points)?
    We are soposed to write about a vocation we want to do, and mine is pediatrician and we had to answer 15 questions and answer them in paragraphs, and I've done all of them but I need help with one, it asks what inspires you to be in this profession? I'll tell you why and can you put it in a paragraph form for a paper cause I've tried and everything I put sounds bad! Lol
    The reasons why I wanna be a pediatrician:
    Ever since I was little I was fascinated with doctors stuff, I was also a very sick kid growing up I was one of those kids that was ALWAYS sick dispite how much I kept my hands out of my mouth and stayed healthy, I've also seen how some doctors have "blown" me off in a way and 5 years later and 10 doctors later someone FINALLY found out what was wrong and I know that happens to other kids, and I know that sometimes your just not gonna know what to do, but that strives me to become one, so I can help those kids that were simply put down and said to "sweat it" off.
    Thanks guys! I know it's a big task but I would appreciated it so much, I've spent forever on this paper. Oh also what I'm talking about up there if your interested is when I was little I was always sick with every disease...when I was 11 I stared having severe breathing issues, I went to doctor after doctor was hospitalized tons of times over a time period of 5 years, they kept saying it was anxiety/asthma and after 5 years they finally diagnosed me with lupus, and they have treated it and it helps WONDERS and it makes me mad because I think about "well what if they figured that out 5 years ago? I would've had a completely different life" kinda thing. But anyway THANKS AGAIN.

    • ANSWER:

  25. QUESTION:
    I have Lupus. My Doctor diagnosed me w/ fibromyalgia ALSO. WHY?
    I have had SLE (lupus) for 1 year now and have been treated with cellcept and prednisone.
    At my last Dr. appt., my doctor diagnosed me with fibromyalgia.
    She did no tests or anything. How does she know?
    I played football for 6 years(many injuries)--I know i have a high pain tolerance.
    ****She said that because my joints were not swollen, I must be amplifying the pain!!***--(amplified pain is the definition of fibromyalgia-you interpret pain as being worse than a normal person)

    I am really angry that my doctor would tell me that I'm just complaining--she's always telling me to tell her all my symptoms.

    IS SHE CORRECT TO GIVE ME THIS NEW DIAGNOSIS ON TOP OF MY PREVIOUS DIAGNOSIS OF LUPUS???????

    • ANSWER:
      Fibromyalgia often occurs in overlap with lupus. They are both autoimmune. Fibro is usually diagnosed by having pain on symmetrical pressure points in the body.

      If you want to know how you doctor knows, ask the doctor. We don't know what your doctor was thinking or how the diagnosis was made.

      If you don't trust your doctor, get one you can trust. Lupus is too serious to be treated by a doctor with whom you do not have an open and honest relationship.

      We dont' know if she was right because we don't know your symptoms and we don't know what information she used to make that diagnosis.

  26. QUESTION:
    what is lupus symtoms and treatments?
    how to find out if you have it and how to treat it

    • ANSWER:

  27. QUESTION:
    Lupus questions?
    If you are diagnosed with lupus, since it is incurable, does it mean that you are going to die? I know they can treat the symptoms, but how long can you live with it for? Is it contagious in any way? My girlfriend was just diagnosed with it...can I get it from kissing her or putting creams on her rashes or anything like that?

    These questions, probably sound pretty ignorant, but I guess that's why I'm asking! Any additional information anyone might have would be appreciated! thanks

    • ANSWER:
      Lupus is a non contagious autoimmune disorder. One thing you might want to look into... Most modern medicine techniques only treat symptoms not causes. There is a lot of belief out there that most auto immune disorders and other non pathogen diseases are the result of being exposed to chemicals in our modern food supply or even because of the foods we choose to eat. Changing the diet can cause drastic improvements in these diseases. Check out www.mercola.com and also the book "the metabolic typing diet" by William Wolcott.

  28. QUESTION:
    Do I have lupus, and how do you get diagnosed if you do have lupus?
    I had an ANA panel done, suggesting to my doctor that I think have lupus. I have researched my pain and other symptoms for years and think that this is what I have. My test was positive for double-stranded DNA. What does this mean? I have never actually met my doctor. I see a doctors assistant and I think she has no idea what she is doing. I am scheduled see a rheumatologist on April 14, but I really want to know what anyone with experience thinks about my condition before I see him. It has taken me 5 months to get this appointment after I could convince anyone at all of my symptoms. I hurt much more than a 27 year old should hurt. I have 2 kids that I need to be out running around with and it kills me that I hurt too bad to do the things I should be doing as a mother. Can anyone help me? Oh, I should add that Meloxicam helps my pain immensely, but I have been told to stop taking it because my kidneys are bad. Well, my creatonin (not sure of spelling) is high. It also helps my joints stop popping. They pop almost every time I move, so loud that everyone around me hears them! I am very tired all the time. I also feel like I am pulling half of my hair out every time I brush it. I get a puffy red rash the first time I get in the sun every summer. I have serious stomach problems. I have been diagnosed with Aspergers Syndrome which often comes with an autoimmune disorder. I really want to finally know what is wrong with me so I can treat it in some way. I am miserable and I have been for awhile. Even if I am going to die soon, I would just love to know why! Doctors can't find a cause for my problems even though they know I have them. HELP, PLEASE?!?!

    • ANSWER:
      If you have tested positive for a DS-DNA test then you most likely have Lupus. While there is no definitive test for Lupus the DS-DNA test is one of the best at ruling Lupus IN. That is to say that people with Lupus can test negative for the DS-DNA but there are very, very few false positives with this test.

      With your creatinine clearance being high, an indicator that your kidneys are in distress, you should not be taking the Meloxicam as this can put stress on them.

      The good news is that Lupus can be treated. You may need to have methotrexate or cytoxan to stop the Lupus Nephritis (when Lupus is attacking your kidneys). There is a new drug in phase three trials that is on a path to being approved for Lupus Nephritis, you may want to look into it...it's called Benlysta (Belimumab).

      You also may have to have a course of high dose oral steroids to help with the inflammation.

      There is a lot of help out there. Check out Lupus.org and look for a local support group in your area. Those who have dealt with the disease for years will have a lot of insight as to what to expect.

      Matador above has some good (although dated) information regarding the tests performed. The BILAG criteria that he mentions (four of eleven symptoms for diagnosis) was never meant to be used as a diagnostic tool it was for acceptance into a Lupus study. This criteria has been utilized for years by doctors who misunderstood its usage and is only now being quashed by the AMA.

      You appear to have kidney involvement and a biopsy may be necessary. A diagnosis of Lupus can be made if that biopsy shows Lupus Nephritis regardless if you have any of the other eleven criteria...thus the reason the BILAG criteria is just a guideline.

  29. QUESTION:
    Would it be dangerous for a person who has lupus to date someone who has MRSA?
    I've met a wonderful man who is unfortunate enough to have contracted MRSA. He has explained to me how people treat him, sometimes. There is definitely prejudice out there among people with contagious conditions. And I don't want to be another person who treats him in such a manner.

    However, I do have a legitimate concern about my own health. If I were a healthy person I wouldn't hesitate to date him, knowing that I just have to be extra cautious with hand-washing, etc.

    But as I have lupus, and am on immunosuppresive drugs....I am wondering if this doesn't increase my risk of getting MRSA myself. And wouldn't such an illness make my system go totally berserk, possibly killing me?

    I just don't know what to do. Please help advise and educate me. I really like this man.

    • ANSWER:
      First of all, America is that last place on earth that actually believes the body's immune system attacks itself. The rest of the world understands that it is INFECTION that causes these problems. To take immunosuppressant drugs is a choice you have to make based on education, not indoctrination. Do your homework and decide.

      MRSA is becoming more and more prevalent due to Genetically Engineered Foods be promoted and consumed, larger and larger mercury body burdens that make bacteria resistant, and prescription drugs that have huge so called side effects on the body. The body's immunity is what stands between you and being dust in a couple weeks. Do you actually believe suppressing that is good? Have you ever known anyone that was deficient in drugs?

      Did you know that corn plants are now registered by the FDA as an insecticide? Most of the corn plants are now genetically engineered and contain insecticide genes in each of the kernels. Yummy. When you eat the corn, you are eating the insecticide, just like the bugs it kills when the eat it. All the high fructose corn syrup contains this garbage. Still want to drink that soda? NOT. So you think you are NOT eating GMO foods? Think again. Thanks to the FDA that is run by mostly ex-Monsanto people, GMO foods are listed as SAFE so they do NOT require labeling! ! Only in the U.S. The rest of the world understands the problems and labels theirs.

      3/4 of the body's immune system is from the intestinal flora. Taking just one antibiotic destroys those bacteria. Does that make sense to you? The medical community follows the allopathic philosophy of medicine and ignores the body's innate ability to heal. In fact, many of the drugs and therapies are directly counterintuitive to how the body heals, leaving it vulnerable and causing lots of doctor induced illnesses. Looking statistically at how we are doing against disease in today's modern medicine, it looks pretty dismal. In fact, the number one killer of Americans today is NOT disease, NOT cancer, NOT heart disease, NOT stroke, but prescription drugs, doctor induced illnesses and medical malpractice. Over 786,000 people died of this last year. Over 106,000 people died in hospitals from taking FDA approved, prescription drugs legally prescribed by doctors for the illness the people had. Compare that number of deaths to what happened in Iraq in a war zone and the fact that illegal drugs caused about 10,000 to 20,000 max deaths last year and ask yourself, "is our war on drugs aimed at the right people?" Anyone of those 106,000 people that died in that hospital room may have an opinion, but they have no voice in the matter now. And some people believe our government can manage a health care program? Yikes!

      Lupus is a degenerative disease and you don't have to suffer with this. MRSA invades a body that is NOT healthy and with a weak immune system. If you focus on building health and not just treating symptoms with "MAKE BELIEVE HEALTH," your body has an innate intelligence that knows just what to do to make you healthy when you support good nutrition and are focused on health building, not drugs that damage the body. I recommend you see a practitioner that understands QRA testing and they can help you and your boy friend.

      good luck to you

  30. QUESTION:
    Inflammation of the fatty layer under the skin of the skull?
    I have LUPUS SLE and BEHCET Syndrome. I get sudden lumps all around the skull and forehead which are very painful. To the extent that I cannot rest my head on a pillow. My Dr. said it is inflmmation of the fatty layer of skin and I would like to know what next? And what excatly causes it or how to treat it, if any treatment? Thank you.

    • ANSWER:
      I would say anytime that happens - grab some Vodka and Orange juice, and have a few drinks or more.. Get drunk!
      The reason it does that is because its a bacterial infection in your system and thats where it shows itself... Alcohol kills bacteria. So, start drinking and you will be able to tame and maybe completely eliminate it from your system.

  31. QUESTION:
    How do I know if I have a uterine infection after giving birth and if Keflex is the right atbc to treat it?
    Hi! I just gave birth to my first child 10 days ago and had really bad complications after the delivery. I was in labor for 27 hours, pushed for an hour, and got the usual Pitocin and epidural. My OB had manually pulled out my placenta immediately after the delivery of my baby and I had not asked him to! I was hemorrhaging for the 1st 2 days. I even passed out 2 hours after I gave birth, as soon as I transferred to the maternity ward! The same night, I was about to pass out a 2nd time and my blood pressure dipped at its lowest. They had to call an emergency code and all of the doctors and nurses rushed into my room. The reason for my postpartum hemorrhage was because I had retained fragments of the placenta in my uterus and a dr. had to manually push the clot out! On top of that, I had a distended bladder and couldn't urinate on my own, so they had to Foley cath me for 3 days. I didn't have an episiotomy or any tears, but had a few abrasions inside my vagina. I also had a hematoma on the left labia. I lost so much blood, 55%, I became anemic and was supplemented with a stronger iron than what I was taking during pregnancy. I was on IV fluids for 3 days and stayed in the hospital for 4 days. Ever since I got home, my lochia had been getting less and less but the hematoma on my left labia became so painfully excruciating it had even turned hard even with the sitz baths I've been taking. It was so painful every time I went to the bathroom, to urinate or pass a bowel. Even on pain meds, the vaginal pain was so severe, I had to go to the emergency. I was examined and they told me in time, it will heal and go away on its own and the hematoma is too small to cut open and drain.

    Then today I noticed I started bleeding more and even passing big clots, whereas previous days, my bleeding was brown and very small, like dime sized amounts with no clots at all. In addition, I've been having extreme severe abdominal pains since this morning. I saw my OB today and he examined my uterus by pressing down on my belly and I grimaced so much because the pain was so bad. He told me it's not supposed to be that painful at this point, 10 days after giving birth. He concluded that I had a uterine infection and put me on Keflex 4 times a day for 10 days. I'm not sure if he diagnosed me correctly since he only pressed down on my tummy and didn't run any tests to confirm that it's an infection. Also, how would he know what kind of antibiotic to prescribe to me if he doesn't even know what kind of uterine infection is invading me? I know there are different kinds of uterine infections based on the different types of bacteria! I'm a new grad LVN (practical nurse) and even though I haven't worked since I got pregnant during school, I know that I should be skeptical of something about his diagnosis! I don't have a fever or any other signs and symptoms of an infection other than the extreme abdominal pain and painful urination/ bowel movements. The emergency department took a urine sample from me and a bladder infection or UTI came out negative so I know I don't have that! Someone out there please help me! I just want to make sure my OB and medical team during my labor and delivery have the best interest in taking good care of me instead of killing me! I just want to be alive and healthy to raise my daughter and for my uterus to not be affected so I can have more children after this! Thank you so much in advance!

    FYI: I also have Lupus, but a mild form of it since none of my organs are affected....only Raynaud's Disease and eczema which is about it!

    • ANSWER:
      Keflex is a broad spectrum antibiotic and will cover you regardless of what specific bacteria you have. He's probably giving you the antibiotics as a prophylaxis, just in case. I would venture to say that you'll improve over the next couple of days.

  32. QUESTION:
    a question about lupus?
    How to you get it and if you don't get treated for it, how long can you live with it before you die? Also, did people in 1910's know about lupus and did they get it?

    • ANSWER:
      Once lupus has been diagnosed it is very treatable. We have patients that are living normal long and full lives (I have had it for about 14 years). Lupus is different in every patient, some are affected very badly, others have mild lupus that is 'annoying' but that's all.

      Yes it can be fatal, usually when it attacks internal organs. Awareness is vital as often misdiagnosis has led to the internal organs being attacked by the bodies own immune system. Medication can help calm the immune system to stop this happening.

      It is believed Beethoven had lupus - if you look at painting of him there is a facial rash that was put down to drinking! (A distinct butterfly shaped facial rash appears on some lupus patients). However, his diaries are describing lupus symptoms. It has been around a very long time but due to lack of knowledge and awareness it was usually misdiagnosed (and often still is!).

      Please go to www.lupus.org.uk for more information including on people such as Beethoven.

      Hope that helps.

  33. QUESTION:
    Can some one tell me whats wrong with me?
    there is something wrong with me but i can figure it out.
    Symptoms:
    hair loss
    lump under eyelid/above eyeball
    bruises easily
    tired and worn out a lot
    toes and fingers turn white when cold
    headaches/migraines
    dizzy spells
    mouth sores
    joints and muscles sore(mainly knees, legs, and feet)

    Any ideas? i don't know what to do. I'm thinking it's Lupus but thats one thing i don't want.

    Does any one know how one gets Lupus?
    and how is it treated?
    I cant figure out whats wrong with me... any tips

    • ANSWER:
      Sounds like you should have "thyroid problem" stamped on your forehead.

      Every single symptom you mentioned points to it. Go and get yourself tested with a TSH, free T3, free T4 and a thyroid antibody test (TPO).

      There is much debate in the medial community on how to interpret these results. I have given you a link to sites that will help you understand what is going on and how it should be interpreted.

      Good luck

  34. QUESTION:
    i think i have lupus, but how do i ask my doctor?
    i have an aunt with systematic lupus so i know what it is and what the symptoms are, i am sure i have it too, i have everything she has and sometimes worse than hers, ive had the discoid lupus rash since i was 12 but when i went to the dermatologist he looked at it for like a second and decided it was impatigo, i was in his office for less than a minute, even though i was in waiting room for over 2 hours which is wrong in so many ways >.< it continues to come back but everytime they just give me antibiotics and send me on my way.
    i went to a GP and told her i thought i had lupus and she told me not to self diagnose, i was told all my symptoms could be explained by mental and physical stress and anemia, i should relax and rest when my joints hurt. she was quite mean and it upset me, she treated me like a hypochondriac. i havent wanted to bring it up again and i dont go to the doctors with relating symptoms anymore because they flick through my history and tell me its stress again or try to make me eat more iron. i am a very laid back person and i do no physical exertion to make my joints like this either. its gotten to the point where im ill more than i am healthy and i can bearly get out of bed in the mornings.
    now im an adult its pathetic, but every time i go to the doctor i feel really young and insignificant again.
    i really need help with this as im moving out of my mums house in a few months and will be on my own,,
    how do i make the doctor test me for lupus without me demanding it?
    i need for them to come to it on their own conclusion, when i go into that little room my head goes completely blank and i turn very monosyllabic and everything i meant to say doesnt come out.
    ive tried to show them the malar rash but by the time i get to the appointment its gone >.<

    anyone have any solutions to help me??

    • ANSWER:
      I am sorry for the experience you have had with these doctors. I am going to school now to be a doctor and it is stories like yours that helps with driving me toward this. In my opinion the doctors should have investigated this. It is their job to increase your quality of life.

      I think that you should first of all not go back to where you were treated with such poor service. If your doctor does not have time for you, well don't make time for him. Go see someone else.

      Maybe you could write down your symptoms that you are experiencing, so that you can get all of the information to the doctor. There are tests that can be ran to determine if you have a autoimmune deficiency, and I think that they are relatively easy to do.

      Again I am sorry for your poor treatment. You know your body better than anyone else, and if you are worried that something is wrong it does not need to be discarded. If going somewhere else and you are treated this way again then I believe you should demand that you are tested. If it does not come out right when you are there then I would call for an appointment strictly to be tested for lupus.

      Your quality of life should be their number one priority. I am tired of hearing stories of doctors that dismiss their patients in this way.

      Oh yeah maybe you could take a picture of the rash too when it does come about, but really you should not have too. I'm sure your eyes are perfectly fine and you probably have a very accurate visual image of it as well.

      Anyway I hope you get help with this and think you for another story of why I want to be a doctor. I am going to go study now, so I can be an advocate for you and others.

  35. QUESTION:
    Anyone know much about lupus?
    My grandma has lupus. She hardly had any problems with it other than her hands would get cold and purple and sometimes she would get a little swelling in her feet.

    Her husband of 55 yrs died Oct. 30th of this year. Since then her lupus has went crazy. It's destroying her liver. She holds fluid around her lungs. Her heart is enlarged due to the fact it has to work harder because of her lungs.

    The Doctors just tell my mom to enjoy her time with her. They don't say how long she has and the aren't hardly treating her other than a few meds and oxygen at night.

    She is also having stomach pain and that doctor is going to decide soon if they even want to bother checking to see if her stomach is messed up too.

    How long does she have? I mean an estimate? Is this how lupus usually goes? nothing for years then everything all at once?
    mary boo she has only ever really had symptoms 8 and 9 and possibly 5. Hers is attacking her organs now.

    • ANSWER:
      Stress makes lupus flare. Losing her husband is a HUGE stress.

      Fluid in the lungs and heart as well as inflammation of the lungs are very common.

      The issue with the hands is Raynaud's Phenomenon. Many of us have it. Swelling in her feet could mean several things and should be brought to the attention of her doctor.

      She needs to be under the care of a rheumatologist. If she does not have one, your family might want to look into one.

      No one can tell how long she will live. When I was 51 years old in 2003, I had early stage kidney failure, fluid in the heart, fluid in the lungs, inflammation in the lungs, bone marrow failure that caused severe anemia and constant fevers. The docs told my kids I would most likely not live. I work full time again and am writing to you from a hotel room where I am on vacation. I practice yoga, can do an hour on an elliptical trainer and manage an hour long zumba cardio class. The docs don't always know. Lupus affects each person differently.

      The reason it is so severe now is the stress. She may feel that without her husband her life is over. A good grief counselor might also be useful.

      Good luck and I will keep her in my prayers.

  36. QUESTION:
    I think I could have lupus but I am not sure how to talk to my dcotor about it..?
    When I was younger I tested positive for Lupus but my pediatrician said because I didn't have a butterfly rash, he didn't think I had it. So he gave me athritis meds and said I had rheumatoid athritis and sent me on my way. Years later I still suffer from the joint pain in my hands, hips, back and legs. I am exausted all the time, I have been diagnosed with anemia. I have been having emense pain in my lower back but it doesnt feel like my spine. I can't stretch it out, I feel as if I am being stabbed. I am also on meds to control night terrors, paranoia and hypopalmic Hallucinations. I have super bad dry skin that causes these red bumps all over my arms form the wrist up even to my back and my face feels like sand paper. I feel as if they are treating the symptoms but not the problem. They give me ambien to force me to sleep. I have sever headaches and even dizzy spells. When I talk to my doc, he never runs tests just tells me to buy lotion which I own tons and pills for motion sickne
    ss. I just want to feel well again. I am tired of being in Pain. I need referals to go somewhere and he doesnt't even refer me to a specialsist to get answers

    • ANSWER:
      You need to demand that you see a specialist. A doctor has an obligation to help you feel better. If he can't then he needs to send you to someone who does.

      Here's what you should do. Call and make and appointment with him. Prior to going to your appointment make a list of every symptom that you are having along with all the medications that you are taking. Have a family member come with you as an advocate. When the doctor comes into the room calmly and methodically go over the list of symptoms and medications that you are taking. Tell him that you don't feel better and all of the medications aren't helping. Tell him that you desire a second opinion and need a referral to a rheumatologist.

      He'll either do one of two things. He'll either refer you to a rheumatologist or he'll tell you that you don't need to see anyone else. If he gives you the referral then you're good.

      If not then you let him know that you'll be making an appointment on your own to see a rheumatologist for a second opinion. If they find something that he failed to test for then you will report him to the AMA for possible malpractice.

      Once you mention this he'll give you the referral. No doctor wants to be wrong but no doctor wants to be reported to the AMA for failing to listen to a patients complaints only to have those complaints validated. I know it sounds harsh but you really need to get some answers. This will work 100% of the time.

      Having a family member or a friend in the room with you during this will also put more pressure on him/her as it's not just your word against his/hers anymore you have a third party involved.

      The stabbing pain you feel in your back could be kidney issues. Have you had a urine test recently? I would make sure you follow up as soon as you can because if you do have Lupus and it has attacked your kidneys, time is of the essence.

      I wish you all the best!

  37. QUESTION:
    Anyone with SLE (lupus) during pregnancy?
    I have SLE and hypothyroidism and I'm pregnant. My OB just scared me so badly about miscarriage and other risks. Can anyone share with me your pregnancy stories, details on how you were treated during pregnancy, and if you were told to do/not do anything during pregnancy to increase your chance of a successful pregnancy? I'm not sure that my OB is really familiar enough with treating SLE patients and would like to make sure I'm also on top of things. Any information is appreciated. I'm stressed right out right now.

    • ANSWER:
      hey, well i don't have lupus... but my best friend has it... during her pregnancy she just relaxed, didn't work to much, and ate really healthy...the doctor told her to keep her feet up as much as possible.... her daughter is now 2 and very healthy!!

  38. QUESTION:
    when basically called a liar by dr. for Social Security,anything that can to done to Dr. when diagnosed Lupus?
    I now see 3 specialists due to extreme pain and diagnosed with Lupus. After applying for social security disability for the second time, they sent me to another specialist of their choice who did not do blood work or exam. Stopped just short of calling me a liar and said nothing is wrong with me, I was just there for Social Security money. I will appeal, but hate the idea that others in genuine need will be treated the same. Left there in tears and crying ever since. How can I stop him and Social Security from doing this to more people?

    • ANSWER:
      Continue your appeal.

      In the meantime, contact your state's medical board, and report this doctor. He provided a diagnosis, without doing any testing, which is clearly unethical.

      It may not stop the problem for all future patients, but if you can get this doctor off of SSA's "approved" list, then it will stop it for some.

  39. QUESTION:
    is there some one with lupus?
    im scared and really dont know what to say or do. with no medical insurance how do i get treated

    • ANSWER:
      Have you been diagnosed? often the doctors are hesitant to diagnose lupus because there is no test just for lupus, and because symptoms of lupus are similar to so many other diseases. However if you are diagnosed and needing treatment without insurance there are a few things i would think of, first you could contact lupus research institute and lupus foundation of america regarding clinical trials and if you qualify because you would be receiving the newest treatments in clinical trials and you dont pay and often they pay you to participate. Another option may be for you to call local teaching hospitals, or red cross to find groups in your area that donate money to people to get treatment that cant afford it. There are often government grants and foundations that will pay for people to get medical treatment that cant afford it on their on. I hope this helps in some way. I have Lupus and it has been life altering. I dont wish it on anyone. It affects people in so many different ways there are some people that get lupus adn hardly know they have it and then there are those like me who get lupus and their whole life is turned upside down and inside out, i was bed/couch bound for a year. and just now getting to where i can have maybe one to 3 active days a week. Getting a good doctor and the right treatment makes a world of difference.

  40. QUESTION:
    I have to take narcotic pain meds & am sick of being treated like a criminal : How do I stop this attitude?
    I have systemic lupus with a plethora of related health issues, resulting in unbearable chronic pain with breathrough pain attacks from hell. 5 yrs. ago I came to a point where I had no choice but to go on Narcotic Pain meds or commit suicide. Fortunately, my Dr. referred me to a Pain Management Specialist who is caring, compassionate and totally understanding of the living hell my life had become. Every time a new problem with new/additional pain has presented itself, she has been there for me and has never let me suffer further if a change in or an additional medication could help. She is extremely knowledgable in her field of medicine. What really gets me steamed is the huge number of Dr.'s out there who don't know squat about this kind of Pain Therapy and how well it works for some people. For me, it literally gave me back my life. Yet, every time I've had to go to the ER or a hospital stay I've been treated like a drug addict or criminal by Dr's. and Staff. Solutions?

    • ANSWER:
      I have Chrones and my trips to the ER were trated the same way. Im sorry to say. However the best way around it is to be a firm as you can be right before they even say anything. You set the tone. Thats how I do it. F' Them i have pain help me.

  41. QUESTION:
    Is Wegener's Graulomatosis and type of leukemia?
    My bro was diagnosed with WG and they said it was similar to lupus and I also herd lupus was like a type of leukemia. So I was wondering if WG is like lupus then is WG also a type of leukemia? I am just trying to figure out what type of disease it is. I know what it affects and how they treat it what I don't get is what type of disease it is.

    • ANSWER:
      It's a kind of vasculitis, not a kind of cancer

  42. QUESTION:
    Just diagnosed with Lupus, why is everyone makeing such a big deal out of it?
    I have read up on it and I know it is something that will not go away, but treated with medication to prevent flair ups, but why is everyone treating me like they just told me I have cancer?! I know it is systemic but that is all I know till my blood work comes back telling us how bad it is and what not.
    iv been having heart problems, my card. started me on toprol, and I only have one kidney. might be why they are conserned.
    i have also had lupis for 12 years untreated.

    • ANSWER:

  43. QUESTION:
    how to respond to a mother in law that treats my family like trash including me?
    my mother in law lives 300 feet from us due to financial problems because of an illness i have lupus, she and husband have talked down about me to my wife and when the chance presents its self she will make fun of me and encourage my children to do the same she is not a good role model for my children and feel its damaging them and its also put stress on me and my wife's relationship any help full ideas would be appreciated thanks

    • ANSWER:

  44. QUESTION:
    Any information regarding lateral epicondylitis (tennis elbow) treatments?
    I have been suffering from "tennis elbow" in my right elbow (I am right handed) for the past 14 months. I also have lupus and my rheumatologist has been treating me at my routine visits for the elbow as well. He gave me hand outs of exercises & stretches to do which I have done faithfully and prescribed Mobic for inflammation. He has also done cortisone injections on 3 different occasions. The first injection provided excellent relief for 6 months. The next injection lasted 4 1/2 months and this last one never did provide any relief at all. He didn't want to do anymore injections, referred me to physical therapy, and scheduled an appt. with an orthopaedic dr.

    I have been going to physical therapy 3 times a week for the past month. They are doing ultrasound for 10 mins, then stretches, tendon excercises, iontophoresis for 25 mins, then ice for 10 mins.

    After therapy the pain is about 50% better that day but by the next day it is back just as before.

    I have noticed progressive weakness in my right arm and hand over the past year from me not being able to use it like before. It is extremely painful, tender, and lifting only the slightest of weight sends the pain radiating down to my hand.

    I am a stay at home mom and do not participate in sports. Of course they say to stop doing the activity that is causing the injury. I don't do any repetitive type activites they I am aware of (other than normal housework, etc).

    My appt. with the ortho dr. is in 2 more weeks and I was just wondering what anyone with experience with this problem think my next step would be.

    The handouts that I have list: 1. Rest, 2. Ice, 3. Anti Inflammatories, 4. Physical Therapy, 5. Cortisone Injections, 6. As final resort: Surgery.

    I was hoping to avoid the surgery but I'm afraid we have already tried every other treatment without results.

    I didn't know how long the problem would need to persist before surgery would be considered.

    Also, for anyone that has had surgery : was it beneficial and provide relief and also how long of a recovery period is required, and how difficult was the recovery.

    Thank you in advance for any info.

    • ANSWER:
      This is a great question and I see a lot of this in my practice. People come in with extremity complaints and have no idea what's going on and they have "tried everything."
      Quickly let me explain the anatomy of the Nervous System. The nerves that go to you shoulder, arm, elbow, and hands come from your neck. Sometimes these get impinged where they exit the neck and this causes the feeling of nerve entrapment in the shoulder, elbow and hands. Similar to what you are experiencing. Most MDs and PTs will treat the area that has the pain, but not the area that is CAUSING the pain.
      So, when I get these patients, typically I simply adjust their neck and the pain starts to reside and the body is now allowed to heal ITSELF. No meds or surgery or gadgets involved. Try looking up your local Upper Cervical Specific Chiropractor (www.upper-cervical.com). Keep me updated! I hope this helps. You still have options!

  45. QUESTION:
    Please help. Sona Medspa owes me a full refund on services but they are avoiding me!?
    I recently purchased several laser hair removal packages & paid up front for them(total 00 split between 2 credit cards). When I came in for my first treatment, they said they could not treat me because I have a history of skin lupus & they would need a note from my doctor. They apologized that they forgot to discuss this during the consultation. My doctor sent a note disapproving of the procedure at this time, so Sona Medspa told me that I am eligible for a refund.

    Before Xmas, I filled out their refund form, but they said their Clinical Manager has to process the refund (she won't be back til after the holidays which is around Jan 5th.) I have called twice since Jan 5th & both times I am unable to get a hold of the consultant that helped me, they will not let me speak to their clinical manager, & that girl has not replied to my voicemails.

    Please help me with ideas on how to get them off their butts & process the refund. Or how can I scare them into not avoiding me! I really would like my refund so that I can use the money on something else!!!

    • ANSWER:
      Contact your credit card companies immediately and dispute the charges. Tell them that you didn't receive the services that were promised by the charges. They will hold the money in suspense and contact the business for you. If they can't prove that services were provide then the credit card company will refund your credit cards. It's a pretty simple procedure.

      Good Luck

  46. QUESTION:
    Is anyone getting treated for Ulcerative Colitis?
    Is it usually treated by steroids, and if it is, is there a general amount that they give? I was on steroids a long time ago for my lupus and absolutely hated the side effects, so I was just wanting to get an idea of how much I'm looking at.

    • ANSWER:
      hi, I have crohns, another form of IBD like UC. Has your GI looked into treating your UC with Remicade? It's been approved for it recently along w/another newer drug (I forget the name). you can find more information on the latest treatments,diet, surgery, coping, and local support groups in your area by going to the Crohns & Colitis Foundation site.

      I've met alot of ppl w/ UC at the local chapter & have learned that we are so much alike in dealing w/this illness that's a pain in the butt. (no pun intended).

      Also, if you have any questions regarding diet, check out your MD for a referral for a dietician at the local hospital. Or check out the site below as well to find one in your area. They are well versed in treating pts. with IBD since they do internships & have 4 yrs. of schooling. They know how to help UCs & crohnies. Good luck to you.

  47. QUESTION:
    need information....?
    anybody know anything about LUPUS?
    like what the signs of it are...
    and how to treat it...
    any information will be helpful

    • ANSWER:
      Lupus has many different symptoms. The best resouse for the answer to your question, of course, is your doctor. However, if you want some information before you see your doctor, there are a couple of websites you might want to visit for research.

      http://www.lupus.org/webmodules/webarticlesnet/templates/new_about2.aspx?articleid=74&zoneid=23

      http://lupus.about.com/od/signsandsymptoms/p/SignsSymptoms.htm

      http://www.rheumatology.org/public/factsheets/sle_new.asp

      I hope this helps. See your doctor for diagnosis.

  48. QUESTION:
    Michigan Automated Prescription Program?
    I recently lost my youngest child (daughter) through suicide. She was just a beautiful, kind-heartted but depressed young lady. She not only left her family but she also left 3 young children ages 9, 10 & 11.

    Approximately 1-month ago, she received a Physician termination letter from her primary (who is a Certified Nurse Practitioner) stating that she was being released (in 30-days). It also stated that she would continue to be treated for things that were deemed only "medically necessary". Once I received the call (from her) in Texas, I immediately came to Michigan because she was so distraught. She began thinking that she was about to be arrested and go off to prison. My husband and I just could not calm her down. At any rate, after taking the letter to several of my physician and pharmacist friends here in the Michigan area, we were told that basically she could in fact go to another doctor and still obtain her prescriptions. We were also told that this system is not a mandate and everyone doesn't use it. They also informed us that for the physicians, pharmacists and other health professionals that use it, because of HIPPA Laws not just anyone can go in and look up a patients information.

    At any rate, my daughter had Lupus Erythematosus, Fibromyalgia and had more recently been treated for a Cancerous Tumor in her lower Intestines. She way on a myriad of medications including the narcotic Tylenol #4. Because she was so depressed, a lot of the medications she would not take because she didn't like feeling "loopy or down". She had a Rheumatologist and most recently had been trying out a new physician because she was going to leave the Certified Nurse Practitioner and transfer over to the new physician. Now, to sum it all up, I know that physicians have a right to dismiss patients because of whatever suspicions and/or reasons. I am just so furious because my daughter had been telling her primary that her pain was so severe and it was just not word of mouth. Her blood pressure was always high, swelling all over her body, hand and feet disfiguration, severe, severe depression and other medical symptoms. She had also been given something called Neurontin to which I am told is a muscle relaxer. I cannot tell you how many trips we have made to the Michigan area to assist my daughter in her time of need. Additionally, she was not the type of person who felt-sorry for herself. She had been working her entire life and was 6 classes from obtaining her Masters Degree. She was also raising her children on her own (widowed) and had only began not working in 2004 and thats only because she had become so ill that her dad and I encouraged her to apply for the Michigan State Disability Program.

    I know that any answers I receive will not bring my child back, but I also have a right to my opinions and one of them is that I think that this MAPS Sytem is flawed. Does the patient not have a right to explain their side of the story, whatever it is, addiction or otherwise? If there is a suspected problem what responsibility does the Health Practitioner have moral or otherwise? Do you just turn the person in to the Gestapo (not trying to offend anyone-please forgive if I did) (MAPS System)? If a patient is turned in then what, what happens after that, what is the patients rights?

    Obviously, my daughter had began obtaining too many (narcotic) prescriptions in a month and I do agree that it was too many. But, how many narcotics is one allowed in a month? In Texas, my neighbor receives 120 Vicodin from one physician and 90 Tylenol #3 from another. I realize that this is not Texas but, I am just saying. Furthermore, since all pharmacy computers are not linked and because she did received them, I am pretty sure if was very easy for her to do so if it had not been for this MAPS System. Yahoo Memebers, please note that I am not condoning the act or otherwise. I have been blessed to live my 61 years in a fairly healthy state. I have not had to walk in her shoes. One thing I do know for sure is that, she was not a drug abuser, drug addict or drug seller. And yes, maybe I am being a little defensive, but I have lost my child, FOREVER!

    The MAPS System as we were told, is only for the use of health care providers. A "patient" is not allowed to receive or request their own information from this system. I would like to know once your name comes up in this system, is the patient red or blacked-flagged of sorts? Michigan, like a lot of states has problems with drug abuse, drug addicts, dope dealers, etc. You will always have someone who abuses and finds a way around the system. In my opinion, the system is a double edged sword. Good for seeking out drug abusers and flawed because it will turn in everyone who may or may not be an abuser. The physicians are somewhat turning into police. Are their Michigan Laws against "Doctor-Shopping"?.

    I would like to thank anyone who can assist me

    ADDITIONAL DETAILS:
    If I didn't state, I

    • ANSWER:
      The doctors will do everything & anything to cover their backs.

      In MI at a medical malpractice lawsuit trial only MI doctors can testify against other MI doctors. You won't find many, if any, MI doctors that will testify against their own kind.

  49. QUESTION:
    Anyone else living with fibromyalgia?
    After a lot of tests, pain and even wrong diagnosis (I was told I had lupus), it was determined I had lymes disease and fibromyalgia. I've been living with it for two years, avoiding medication, but now the pain and flares are too frequent to not have some help. I'd like to know what you are taking for medication, how you deal with the pain, and any recommendation's you might have. I was treated for lyme disease but I am still dealing with some residual problems as it went so long untreated.

    • ANSWER:

  50. QUESTION:
    I don't know how to handle my health and my family's reaction to it.?
    I am seriously ill with Lupus and it is causing liver and kidney failure along with joint damage and if anyone understands Lupus then they would know that it is not a fun disease to have. I am in the hospital several times a year and take a lot of medication but I am not depressed over being sick and basically I live as if I don't have the disease. My problem is that with Lupus one doesn't appear to be "sick" like maybe a person with cancer does so my family seem to forget that I have many days that I really don't feel well and treat me as if I am just a kid trying to get out of going to school by faking being sick. Some days I can't move very easily and some days I am so tired but no one seems to remember that I am ill and I hate to keep reminding them because I am not wanting their pity--just their understanding. My husband says that it is hard to believe that I am so sick because I basically look healthy and I almost feel guilty that I don't look worse then I do but the fact is that this disease is killing me and I need my family to understand that I am not able to function and do all the things expected out of me by them because I really am sick. It is as if no one will talk about it and I feel like I am fighting this battle alone. If anyone understands what I am trying to say, please tell me what to do because it is really making me feel that I am letting them down by being sick. We are raising grandchildren that are young and my husband's business envolves a lot of shovel work and when I am not up to helping very much with either, I get treated as if I did something wrong rather then recognizing that it may be a bad day for me. It really hurts my feelings..
    I don't need someone trying to sell me on products, I need someone to honestly want to help me deal with my family and my illness.

    • ANSWER:
      Though the disease is different, the situation
      is exactly the same. From personal experience,
      I can tell you that there isn't much you can
      do about it...whether it is family or friends.
      It seems that people only take notice to
      what they see. You can tell them over and
      over what restrictions the doctors have for
      you, what is wrong with you, and how you feel...
      and for some reason...it doesn't register.

      I think it isn't because of you and that they
      don't care...it is that sickness is something
      everyone avoids. They don't understand
      about these diseases and therefore, they
      don't understand why you are or are not
      allowed to participate in what they want
      you to do. It is very difficult to explain to
      them what you are going through and why.
      This is where becoming part of a support
      group with people who have the same
      medical condition helps. They realize
      more what is involved in your situation,
      what pain you are feeling, and the difficulty
      of coping. They even can give you advice
      because they are going through, or have gone
      through, the same things you are.
      You have a common ground.

      With family...try to tell them a little about the
      disease and then explain about the restriction
      you have or how you feel. Family will usually
      take the time to listen, if they are not busy
      in their own life. With friends, they mostly
      don't want to know unless it involves some
      idea that is totally new to them...that they
      can learn from and pass onto others.

      Yahoo Groups does have groups that you
      can join for free. You could talk with
      others from all over the world who have this disease.....
      Just click on the link below to see the
      different ones:
      http://health.dir.groups.yahoo.com/dir/1600061714

      I have joined such a group and they have
      become like family to me.

      Wish I could be of more help.


How To Treat Lupus Disease

Fish Diseases and How To Treat Them

There are two categories of fish diseases, infectious and non-infectious. Non-infectious diseases are usually caused by unbalanced or dirty water, or poor feeding conditions, most of the time it can be easily reversed by balancing the water, or changing the temperature. Infectious diseases are more dangerous for the entire tank. It can spread easily to other fish and can easily clear out the entire aquarium.

Infectious diseases usually never go away on their own and will need to be treated as fast as possible. It is best to watch your aquarium daily to observe the fish's behavior or appearance. If you see a fish that might be behaving differently then normal it is best to isolate the fish just in case it has an infection and so you can protect the life of the other fish.

Ick "White Spot" which is the most common disease seen in fish, can be very deadly. They appear as little white specks all over the fish, looking like salt. Sometimes the fish may have cloudy eyes, clamped fins, labored breathing, loss of appetite, and acting really lethargic. Some treatments include "Aquarium Salt," raising the temperature of the water, and than there are the copper-based medications. All of which you would need to find out the directions depending on how many fish are in your tank and which kind of fish.

Another common disease is Fungus. Fungus appears on the fish as gray or white patches that look like cotton. This disease is usually caused by sores or wounds on the fish. For adult fish the recommended treatment is using a phenoxethol solution or a commercial antifungal medicine. For treating and preventing fungus on egg and fry and Methylene blue solution is recommended.

Bacterial Infections are hard to recognize.

It can be fatal if not treated as quickly as possible. Sometimes these bacterial infections can eat away at the fins, and tail. You might also see blotches or streaks on the fishes body. A chemical change in the water can also cause this so before buying a medication you should test the chemical balance of your water. If the chemicals are not off balance, you may try treating it with a few water changes. If you see no results from that then you will need to get anti-biotic medication.

Just keep an eye on the fish and overall activities and you should be able to find ot which ones need the most attention.

Frequently Asked Questions

  1. QUESTION:
    been very ill- could i have lupus?
    for the last year ive been really sick. ive had numerous test done and been put on a hole mess load of medications. but nothing seems to help and im just getting worse. im in constant pain and cant hardly eat. my entire stomach hurts and my food doesnt digest and i have no bowel movements. it hurts to empty my bladder and my lower back feels like its breaking. mostly i get pains under my ribs and on my sides. but i also get shooting pains every where at different times.

    well ive been doing a lot of research on my own because my doctors cant seem to find out whats wrong with me. and i came across lupus. all i know about it now is its an auto- immune disease and it can affect your organs and make you lose function of them. so i wondering if i could have it. i dont have a history of any gastric problems in my family except acid reflex but ive been tested for that.

    what are the symptoms of lupus? how do you test for lupus? how do you treat lupus?

    i just what to know as much as possible about lupus or any other illness that can cause my symptoms. if any one could give me some information i would really appreciate it!

    thank you

    -sam

    • ANSWER:

  2. QUESTION:
    Confused and Afraid about Lupus?
    My older sister was recently diagnosed with having Lupus probably about 5 weeks ago. Well this past weekend she went into seizure and may have possibly had a stroke. Her kidneys also dont seem to be working and she is disoriented. Me and my family are basically doing a waiting game right now because the doctors cant treat her if they cant pinpoint exactly what has happened. My question is does anybody out there know anything about this disease, how to treat it and will she get better? She's only 32 and was a healthy young woman before any of this happened. Thanks.

    • ANSWER:
      http://cure4lupus.org/

      here is a bunch of info on the subject. I am researching it because my mother was diagnosed and I am trying tio determine the possibility of me having it as well. It's a good site.

  3. QUESTION:
    Anyone else living with fibromyalgia?
    After a lot of tests, pain and even wrong diagnosis (I was told I had lupus), it was determined I had lymes disease and fibromyalgia. I've been living with it for two years, avoiding medication, but now the pain and flares are too frequent to not have some help. I'd like to know what you are taking for medication, how you deal with the pain, and any recommendation's you might have. I was treated for lyme disease but I am still dealing with some residual problems as it went so long untreated.

    • ANSWER:

  4. QUESTION:
    Please help me, I am in serious need of a medical opinion re: high WBC count, chronic infections, pnuemonias?
    I've had lung issues ever since suffering 5 pulmonary emboli 3.5 years ago. The issues have been severe pleuritic chest pain and coughing up of blood (hemoptysis).

    Recently March I suffered from pneumonia and have gotten sick over and over since.

    Occurence #1

    I go to the emergency room coughing up blood and my white count is 18.9, platelets 23 (i have a platelet disorder called ITP) the doctor takes an xray and reads it quickly saying it is just a bronchitis. He prescribed Azithromycin 250mg twice a day for 5 days.

    Occurence 2:

    2 days after finishing the Azithromycin from "Occurence #1" I end up in the emergency room with a fever of 100.3 and I see the same doctor who again prescribes Azithromycin but in stronger dosages. 500mg twice a day for 7 days.

    Occurence 3:

    4 days after occurence 2 I again go into the emergency room coughing up COPIOUS amounts of blood and I am admitted to hospital instantly for 7 days. I am told I have a very severe pneumonia (White blood cell count of 32) that the previous 2 doctors on the other occurences had somehow failed to see and that now it was "a very bad case of pneumonia". I am started on Vancomycin intravenously with Azithromycin 500mg per day orally. After 7 days of Vancomycin and Azithromycin I am released and feeling better.

    Occurence 4:

    2 weeks after occurence #3 I am admitted to hospital again with a white count of 29 and pneumonia, I am treated with intravenous Ceftriaxome, Levaquin, and Azithromycin. I am released after 7 days, and sent home with 7 extra days of Levaquin and a drug called Cefuroxime as well as Azithromycin.

    Occurence 5: I present to the emergency room urgent care unit with cough and the coughing up of blood and severe pain in my left lung. The Xray is clear of pneumonia but my white count is 27. I am given Cefuroxime and Clarithromycin. I start feeling better after a week.

    Occurence 6,

    2 weeks after occurence 5 I am back in the urgent care unit and my white count is found to be 19.8 again antibiotics are prescribed because of the WBC and the coughing I am suffering from as well as I have a fever/chills. Diagnoses is "viral bronchitis" supposedly. I am discharged and sent home on Cefditoren, and Levaquin for 7 days each.

    So now I am on Cefditoren and Levaquin i'm starting to feel better but I have a feeling as soon as the antibiotics are out of my system my WBC count is going to skyrocket again and I will start coughing.

    What could be causing this ? All of this has happened since March of this year!!! That's alot of antibiotics to have been on and considering my White blood cell count keeps climbing once they are gone I don't know how I am going to get this under control.

    I do have ITP which is an autoimmune disease causing decreased platelets but it's not known to cause this kind of problem. I have suffered from fevers ever since I had the ITP (when I was 18 and now I am 25) Basically my health has been terrible and i've been bed ridden since 18 years of age.

    The doctors have investigated me for lupus and all sorts of other things, cancers etc but I know there is something going on that they can't pinpoint.

    It doesn't take a doctor to realize all of this is not normal. I've been on about 10 different antibiotics several times, by mouth, by IV it doesn't matter the strength, my white blood cell count and pneumonia or bronchitis comes back.

    I don't have Tuberculosis......I don't have HIV/AIDS I am stumped! Ideas would be appreciated.

    The only thing that comes to my mind is maybe leukemia or some type of cancer or that it is lupus that is flying under the radar. I know you can have lupus without any of the tests being positive but doctors will almost never diagnose you as that unless you are positive for their tests. I have been treated for lupus with one drug when one doctor about 5 years ago said I could have it despite my tests not showing anything. After I tried the Hydroxychloroquin (plaquenil) she said i can't have it or my symptoms would have all went away. I know that is complete rubbish because there at least 10 more drugs used to treat lupus and giving me one drug and not having very positive results does not mean I don't have it.

    What do you all think?
    I know they tested me for TB, I believe they test everyone who comes in with respiratory problems for TB and other things.

    I was put in a negative pressure isolation room for my admittance each time. I was in a room alone because I was coughing up blood everywhere I guess? They said I wasn't infectious after being on antibiotics for 24 hours which I found to be kind of ridiculous.

    I was tested for HIV again. I personally asked to be tested since I haven't been tested in 2-3 years, and I haven't heard that I have HIV so I'm guessing it's not that or they would've given me the health canada shakedown and informed me of all my obligations as an HIV positive person to not spread it blah blah. So it's negative.....

    It could be viral but why do i feel better when I take antibiotics. I know it's not a placebo effect because my white count does decrease and I got better enough to go fishing with my father for the first time in almost a year and a half.

    I'm really stumped.

    I am going to s

    • ANSWER:
      Sorry to hear you are having so many problems... Have they tb tested you? Or have they just given you the its likely it's not tb talk. Your WBC count is up prob bc or the auto immune disease or because what's happening in your lungs is an attack from some sOrt of pathogen. I am guessing since u have not responded to all the antibiotics that it's viral, but shame on them for giving you such a cocktail. That could cause more problems in the end. What i recommend is going to see a resp. Specialist who knows better than Er docs. Really they are just there for emergency situations and are not the best for 100% specialty diagnosis. Really hope u figure this out

  5. QUESTION:
    How do I know if I have a uterine infection after giving birth and if Keflex is the right atbc to treat it?
    Hi! I just gave birth to my first child 10 days ago and had really bad complications after the delivery. I was in labor for 27 hours, pushed for an hour, and got the usual Pitocin and epidural. My OB had manually pulled out my placenta immediately after the delivery of my baby and I had not asked him to! I was hemorrhaging for the 1st 2 days. I even passed out 2 hours after I gave birth, as soon as I transferred to the maternity ward! The same night, I was about to pass out a 2nd time and my blood pressure dipped at its lowest. They had to call an emergency code and all of the doctors and nurses rushed into my room. The reason for my postpartum hemorrhage was because I had retained fragments of the placenta in my uterus and a dr. had to manually push the clot out! On top of that, I had a distended bladder and couldn't urinate on my own, so they had to Foley cath me for 3 days. I didn't have an episiotomy or any tears, but had a few abrasions inside my vagina. I also had a hematoma on the left labia. I lost so much blood, 55%, I became anemic and was supplemented with a stronger iron than what I was taking during pregnancy. I was on IV fluids for 3 days and stayed in the hospital for 4 days. Ever since I got home, my lochia had been getting less and less but the hematoma on my left labia became so painfully excruciating it had even turned hard even with the sitz baths I've been taking. It was so painful every time I went to the bathroom, to urinate or pass a bowel. Even on pain meds, the vaginal pain was so severe, I had to go to the emergency. I was examined and they told me in time, it will heal and go away on its own and the hematoma is too small to cut open and drain.

    Then today I noticed I started bleeding more and even passing big clots, whereas previous days, my bleeding was brown and very small, like dime sized amounts with no clots at all. In addition, I've been having extreme severe abdominal pains since this morning. I saw my OB today and he examined my uterus by pressing down on my belly and I grimaced so much because the pain was so bad. He told me it's not supposed to be that painful at this point, 10 days after giving birth. He concluded that I had a uterine infection and put me on Keflex 4 times a day for 10 days. I'm not sure if he diagnosed me correctly since he only pressed down on my tummy and didn't run any tests to confirm that it's an infection. Also, how would he know what kind of antibiotic to prescribe to me if he doesn't even know what kind of uterine infection is invading me? I know there are different kinds of uterine infections based on the different types of bacteria! I'm a new grad LVN (practical nurse) and even though I haven't worked since I got pregnant during school, I know that I should be skeptical of something about his diagnosis! I don't have a fever or any other signs and symptoms of an infection other than the extreme abdominal pain and painful urination/ bowel movements. The emergency department took a urine sample from me and a bladder infection or UTI came out negative so I know I don't have that! Someone out there please help me! I just want to make sure my OB and medical team during my labor and delivery have the best interest in taking good care of me instead of killing me! I just want to be alive and healthy to raise my daughter and for my uterus to not be affected so I can have more children after this! Thank you so much in advance!

    FYI: I also have Lupus, but a mild form of it since none of my organs are affected....only Raynaud's Disease and eczema which is about it!

    • ANSWER:
      Keflex is a broad spectrum antibiotic and will cover you regardless of what specific bacteria you have. He's probably giving you the antibiotics as a prophylaxis, just in case. I would venture to say that you'll improve over the next couple of days.

  6. QUESTION:
    Is Wegener's Graulomatosis and type of leukemia?
    My bro was diagnosed with WG and they said it was similar to lupus and I also herd lupus was like a type of leukemia. So I was wondering if WG is like lupus then is WG also a type of leukemia? I am just trying to figure out what type of disease it is. I know what it affects and how they treat it what I don't get is what type of disease it is.

    • ANSWER:
      It's a kind of vasculitis, not a kind of cancer

  7. QUESTION:
    Isn't it annoying how some diseases and disorders aren't as socially acceptable?
    If you have some sort of autoimmune disease like lupus or something, then "oh, poor thing, is there anything I can do to help?".
    But oh, if you're an alcoholic it's, "Jesus christ, why the hell did you get yourself into this mess? Sober up, you slob."

    One of my best friends is an alcoholic, and people treat her like it's all her fault. No one treats people with other disorders like that. I know it is a result of her drinking, of course, but there are other factors, like the genetic factors (hereditary).

    Same with depression. When I was diagnosed clinically depressed, people were like "Oh, Meagan, cheer up, we'll get some ice cream." I mean hell, I'm not SAD, it's a chemical imbalance!! Or, "Meagan, just pull yourself together. Your not the only one with a tough life you know." It's like people think I have CHOSEN to have a serotonin deficiency !!!

    Don't you find that annoying??? Any thoughts?

    • ANSWER:
      I think it is sad that people condemn others because of uncontrollable natural occurring problems. I know how bad depression feels, but in my case there was a reason, withdraw symptoms. If it occurs naturally, it must be that much more frustrating. Depression sucks, but it's not your fault. Only uneducated people would believe it is.

  8. QUESTION:
    Dealing with exes that really pull on your heart strings?
    My ex really didnt treat me right when we were together. In fact, i had committed myself to hating him. I don't see him at all in the same way. I regret even meeting him in fact bc of how he tortured me emotionally. Recently i have had bad things come into my life. I have been recently diagnosed with lupus, an autoimmune disease that is very aggressive - attacks all systems of the body and can even be fatal. My grandfather has been diagnoses with cancer and the prognosis is only 12% and he's not in good shape.. thin and weak. He will like;y die. And like an idiot i reached out to my ex and now he wants to call and talk. Now what do i say after bringing him into my life again and changing my mind.

    There is nothing to say. I really hate him.

    • ANSWER:
      there are some people you shouldn't be with and sounds like you have one of those. its as simple as ignore him if you see a phone call or text emails or whatever from him ignore it if you give him attention he is going to keep bugging you if he doesn't leave you alone then get the cops into it your safety is first. and you don't deserve to be treated that way.

  9. QUESTION:
    I need some help on a language paper (10 points)?
    We are soposed to write about a vocation we want to do, and mine is pediatrician and we had to answer 15 questions and answer them in paragraphs, and I've done all of them but I need help with one, it asks what inspires you to be in this profession? I'll tell you why and can you put it in a paragraph form for a paper cause I've tried and everything I put sounds bad! Lol
    The reasons why I wanna be a pediatrician:
    Ever since I was little I was fascinated with doctors stuff, I was also a very sick kid growing up I was one of those kids that was ALWAYS sick dispite how much I kept my hands out of my mouth and stayed healthy, I've also seen how some doctors have "blown" me off in a way and 5 years later and 10 doctors later someone FINALLY found out what was wrong and I know that happens to other kids, and I know that sometimes your just not gonna know what to do, but that strives me to become one, so I can help those kids that were simply put down and said to "sweat it" off.
    Thanks guys! I know it's a big task but I would appreciated it so much, I've spent forever on this paper. Oh also what I'm talking about up there if your interested is when I was little I was always sick with every disease...when I was 11 I stared having severe breathing issues, I went to doctor after doctor was hospitalized tons of times over a time period of 5 years, they kept saying it was anxiety/asthma and after 5 years they finally diagnosed me with lupus, and they have treated it and it helps WONDERS and it makes me mad because I think about "well what if they figured that out 5 years ago? I would've had a completely different life" kinda thing. But anyway THANKS AGAIN.

    • ANSWER:

  10. QUESTION:
    What do you know about dysplasia?
    Around 1992 I had a hysterectomy due to PID (pelvic inflammatory disease) and the doc also found severe endometriosis. In 2000 I had 'beyond' severe dysplasia, I believe it was very early stage of cancerous. For 10 weeks I had to use Efudex 7 to treat this. This was a vaginal cream insertion on a daily basis. After a few days I noticed a discharge that was beyond anything I had ever had. I would become every morning shortly after each treatment so I called the pharmacist to inquire. I was told this was a chemo treatment. I had no idea! Anyway time moves on and I have to have paps every 3-6 months depending on what result the OBGYN-Oncologist finds. Dysplasia is always there, varying from mild to moderate. All of these problems have been going on for 18 years. This concerns me. I have a rheumatoid disease, Sjogren's Syndrome/Lupus, which keeps my immunity down. My WBC is always low. I am 47 and factoring that in is in my mind as well. Also, a few years back my blood counts were so haywire the State got hold of them, b/c of my T-cell results the guy was insistent of gaining info on my HIV status. ???? I don't have HIV. My information was placed with the state.

    Bottom line, how concerned should I be? I keep hearing that routine Paps aren't as accurate as they should be. I have colposcopy's about every other time I visit the Oncologist.

    • ANSWER:
      You are throwing in a lot of extra information. Pap smears are very good. There is no sharp line between dysplasia and neoplasia which is cancer. If the dysplasia invades the basement membrane it is called cancer. If it hasn't done that yet, it is called Carcinoma in situ. It is believed that if Ca in situ is left untreated it will progress to cancer eventually. You were treated with Efudex which is chemotherapy and burns the abnormal tissue causing a discharge of dead tissue. You also have colposcopies which means the doctor is doing his job of looking for evidence of spread of the abnormal tissue. Regular pap smears and colposcopies is the way of monitoring the dysplasia so if it is seen to invade the basement membrane you can get further treatment. To me it sounds like you are in the hands of a good OB-GYN. He is keeping a close eye on your condition. You haven't said what the T-cell test showed beyond the fact that you are HIV negative. Your connective tissue diseases would seem to be separate and unrelated. I would say that you can rest easy knowing you are in the hands of a good MD. This is not to say that bad things cannot happen unpredictably, but that is the same boat we are all in.

  11. QUESTION:
    I don't know how to handle my health and my family's reaction to it.?
    I am seriously ill with Lupus and it is causing liver and kidney failure along with joint damage and if anyone understands Lupus then they would know that it is not a fun disease to have. I am in the hospital several times a year and take a lot of medication but I am not depressed over being sick and basically I live as if I don't have the disease. My problem is that with Lupus one doesn't appear to be "sick" like maybe a person with cancer does so my family seem to forget that I have many days that I really don't feel well and treat me as if I am just a kid trying to get out of going to school by faking being sick. Some days I can't move very easily and some days I am so tired but no one seems to remember that I am ill and I hate to keep reminding them because I am not wanting their pity--just their understanding. My husband says that it is hard to believe that I am so sick because I basically look healthy and I almost feel guilty that I don't look worse then I do but the fact is that this disease is killing me and I need my family to understand that I am not able to function and do all the things expected out of me by them because I really am sick. It is as if no one will talk about it and I feel like I am fighting this battle alone. If anyone understands what I am trying to say, please tell me what to do because it is really making me feel that I am letting them down by being sick. We are raising grandchildren that are young and my husband's business envolves a lot of shovel work and when I am not up to helping very much with either, I get treated as if I did something wrong rather then recognizing that it may be a bad day for me. It really hurts my feelings..
    I don't need someone trying to sell me on products, I need someone to honestly want to help me deal with my family and my illness.

    • ANSWER:
      Though the disease is different, the situation
      is exactly the same. From personal experience,
      I can tell you that there isn't much you can
      do about it...whether it is family or friends.
      It seems that people only take notice to
      what they see. You can tell them over and
      over what restrictions the doctors have for
      you, what is wrong with you, and how you feel...
      and for some reason...it doesn't register.

      I think it isn't because of you and that they
      don't care...it is that sickness is something
      everyone avoids. They don't understand
      about these diseases and therefore, they
      don't understand why you are or are not
      allowed to participate in what they want
      you to do. It is very difficult to explain to
      them what you are going through and why.
      This is where becoming part of a support
      group with people who have the same
      medical condition helps. They realize
      more what is involved in your situation,
      what pain you are feeling, and the difficulty
      of coping. They even can give you advice
      because they are going through, or have gone
      through, the same things you are.
      You have a common ground.

      With family...try to tell them a little about the
      disease and then explain about the restriction
      you have or how you feel. Family will usually
      take the time to listen, if they are not busy
      in their own life. With friends, they mostly
      don't want to know unless it involves some
      idea that is totally new to them...that they
      can learn from and pass onto others.

      Yahoo Groups does have groups that you
      can join for free. You could talk with
      others from all over the world who have this disease.....
      Just click on the link below to see the
      different ones:
      http://health.dir.groups.yahoo.com/dir/1600061714

      I have joined such a group and they have
      become like family to me.

      Wish I could be of more help.

  12. QUESTION:
    Have you ever judged someone based on hearsay & rumour only to learn later?
    that the person's actions stemmed from an illness beyond his control?

    (CNN) -- Michael Jackson's single white glove was his trademark -- an iconic image for a performer whose career constantly set, then redefined, pop culture trends.But it also was an early effort to mask a skin condition that he would struggle with for the rest of his life, say some who were close to him.

    "The glove was to cover the vitiligo; that's how that glove came into being."

    Jackson's dermatologist, Dr. Arnie Klein, told CNN that Jackson suffered from vitiligo, a disease that causes blotches of lightening skin, as well as a form of lupus that led to rashes and flaking of skin on his scalp.

    "His was bad because he began to get a speckled look over his body," Klein said. "All over his body -- on his face and hands, which is hard to treat."It's a report that rings true to others with the disease.

    "I have to wear sleeves and carry an umbrella," said Lee Thomas, who wrote a memoir called "Turning White," which discusses his physical and mental struggles as an African-American man whose skin changes because of vitiligo. "It totally makes sense to me." "I got [white spots] on one of my hands, so I used to wear a glove to hold a microphone," he said.

    Dr. James Norlund, a dermatologist, never treated Jackson, but said the singer's use of the gloves and lipstick was consistent with the patterns of vitiligo, since the spots frequently first appear on the hands and face, including the lips.

    Klein said he treated Jackson's vitiligo with a cream that eventually bleached Jackson's darker pigmentation to even out his skin color. He said it was that treatment -- not a once-rumored desire by Jackson to be white -- that lightened his skin over the years.

    "Michael was black," Klein said. "He was very proud of his black heritage."

    http://edition.cnn.com/2009/SHOWBIZ/07/09/michael.jackson.glove/index.html
    Edit: GeeCee, exactly! x

    • ANSWER:
      I agree with Brian. Rumours and hearsay with a desire to hurt and dismantle someone is pernicious. And as you said once in another post, useless to defend yourself when a person's mindset is immovable.
      I can understand the Lupus rash for obvious reasons, although it was the one thing my daughter was never afflicted with severely, now and then she did have patches of dry skin that turned red and brown and were very painful and as a result she never wore dresses or skirts in the summertime so if Michael wore a glove to try and disguise his condition why does anyone have a problem with that?
      He's going to be judged no matter what facts come out to the contrary sadly

  13. QUESTION:
    Is my mother abusive or a narcisist?
    Okayy... since I was little I have had tourettes (tics) and a "listening problem". The neurologist said that my "listeining problem" was ADHD and I had Asperger's syndrome. Yet, to this day, my mother still puts me down for not listening and screams at me and says "NOBODY wanted to play with you when you were little because your behaviour was so WIERD. You wanted to play and talk about the SAME THINGS OVER & OVER." I now have a special plan @ school, where I can get xtra time on tests and type certain tests, but when I first told my mother how I have trouble (physically) writing and comprehending reading, she screamed @ me and said it was an "excuse." Meanwhile, one of my doctors says I probably have dysgraphia or something like that. She always makes fun of me for being clumsy, uncoordinated, and unathletic, and laughs out loud. I had digestive and menstrual issues (irregular periods and embarassing gas), and my PSYCHIATRIST repeadely told her to get those things checked out. She never did, and now that I am 18, I made appointments w/ DRs. and was told that I have PCOS, Hashimotos, and Celiac disease). Whenever we went shopping in the past, she always put down anything I bought. She would always say, oh no, you can't wear that b/c its not enhancing to your thighs. Whenever she would shop for me, she would pick EVERYTHING out in a size LARGE, when in reality I am usually a size small and wear a 4-6. When I started shopping on my own and picking out my own clothes, she seemed to resent it. I am now a DD/DDD cup bra, and she yells at me saying my bras look ridiculous and definiltey do not fit. (She says I am like an A-B cup bra, yet she has not seen me shirtless for over two years). I got VERY sick this winter, and was out of school for a month and a half & she kept screaming at my daddy saying it was psychological and DONT take her to all these doctors. My doctor said do not listen to your mom, (this was the time I was told I have autoimmune thyroid problems, PCOS, and Celiac/Gluten intollerance). My mother still offers me shrimp and bread (even though I am gluten intollerant and allergic to shellfish) and she sneaks butter into my food even though I am allergic/sensitive to cow's milk. After telling her what the doctors said, she said without much tone in her voice "Oh, ok. What they gonna do about it?" The doctor thinks I could have lupus or some rheumatic problems in conjunction of these other things, and my mother would still make me do physical things and forbid me to nap, because she said these things were not real. I had a Halloween party, and she got drunk, started screaming, trying to make my friends do what SHE wanted to do, and told her my plans and decorations were stupid. It was soo bad that we had to drive to my other friend's house for Halloween (and she would not let us trick or treat). My daddy and I are VERY close, and she always calls him slob and idiot, because he is quite disorganized, runs late, and a procrastintor. Meanwhile, he is VERY smart, was part of MENSA (for a very short time), and a VERY hard worker. I am close to my granmda and aunt (daddys mother and sister), and she says my aunt is a looser (meanwhile has a very, good high paying job) and grandmas is narcisitic and crazy. Lately, she has been pretty nice to me, beause I have been doing what she wants me to do, and I am going to a highly competitive college. She is routing for me as far as my prom date is concerned, which is a good thing. She has been having a progressivley worsening alcohol problem and says that she is the boss. She goes to town meetings, and tells my father and I what an a*** hole everybody is, and how she cursed them out. I have been told, her insults are displaced anger and her insecurities. But is this abusive behavior?
    Her good friend's son is a straight A student and in AP/High honors classes: She BEAMS and is always talking about how "wonderful" he is and says "oh, he's soo smart & is a wonderful musician" & goes on and on.

    • ANSWER:
      Wow...um first off I believe your mom is in some serious denial about your life and harboring those feelings with some serious drinking. A very common thing with parents wanting the "perfect child". At some you have to put ur foot down and tell her something like "yes, I have all these problems but I'm living my life to the best of my ability and I would like you to help and share it with me" and then like do the whole intervention thing with her drinking.

      If things doesnt change I would also just leave. I dont feel its neccesary to stress you life more with such insults between you and your dad's side of the family cause yea that some emotional and verbal abuse you mom is dishing out there.And maybe your dad should do some counseling with her as well.

  14. QUESTION:
    High Neutrophils, Low Lymphocytes, High Sed Rate?
    Normal (High end) Platelets, High Neutrophils, Low Lymphocytes (What does it mean)?.My doctor asked me to go for blood test because he suspected LUPUS.In the report everything was normal except Neutrophils(High), Lymphocytes (Low), Platelets 2 pts from being too high. Sed Rate is also high. What does it mean. Does it signify any disease. I have a test two years ago too and the same thing in it but now it is higher. Im very worried regarding this report. How can I make neutrophils,lymphocytes and platelets normal. Currently, being treated with Celebrex for stiffness, and I have Raynauds. I'm developing a sensitivity to the sun. All tests are negative for Lupus.

    • ANSWER:
      Get diagnosed by Medical Doctor. Here is some educational information, which may help you!
      Leukocytes (WBC)

      WBC are measured to test the ability to respond to infection, confirm presence of infection, help to tell type of infection, monitor response to treatment for infection, monitor for side effects of therapy, and monitor for complications of illness

      There are two types of cells:
      Myeloid - made in bone marrow. Includes granulocytes (neutrophils and bands, basophils, eosinophils) and monocytes.
      Lymphoid: made and stored in lymph tissue. Includes lymphocytes.

      We have two methods of measuring WBCs: total count and differential

      Critical Values

      WBC < 2000 or > 30,000
      Lymphocytes < 500 (this is an absolute number)
      Neutrophils < 500 (this is an absolute number)

      Absolute cell count = % of cells X WBC

      For example:

      WBC = 6000 Neutrophils = 60%
      Bands= 2% Basophils = 1%
      Eosinophils = 2% Monocytes = 5%
      Lymphocytes = 30%

      Calculate the absolute count of each.

      v Neut = 6000 X .60 = 3600
      v Bands = 6000 X .20 = 120
      v Baso = 6000 X .10 = 60
      v Eos = 6000 X .20 = 120
      v Monos = 6000 X .10 = 60
      v Lymphs = 6000 X .30 = 1800
      total = 6000

      Types of Immunity

      Cellular immunity involves the following cells: T lymphocytes, monocytes, neutrophils
      Humoral immunity involves antibodies formed by B lymphocytes. Several types of humoral immunity occurs. The primary response involves the antibodies IgG and IgM. The secondary response begins immediately and results in long term recognition of specific antigens.

      Leukocytosis - WBC > 10,000

      Usually only one cell type is increased. If all cell types are increased, consider hemoconcentration. Leukocytosis occurs only in acute infections. In chronic infections, you may have high WBC but usually not above 10,000.

      Causes of leukocytosis: Myeloproliferative diseases, leukemia, trauma or tissue injury, malignant neoplasms (esp. bronchogenic cancer), acute hemolysis, issue necrosis, toxins (uremia, coma, eclampsia, thyroid storm), drugs, acute hemorrhage, after splenectomy, polycythemia vera.

      Leukocytosis is sometimes found without evidence of disease: Sunlight, ultraviolet irradiation, physiologic leukocytosis (excitement, stress, exercise, pain, heat or cold, anesthesia), nausea & vomiting, seizures, steroid therapy. ACTH causes leukocytosis in healthy person. ACTH masks leukocytosis in persons with severe infection .

      Leukopenia - WBC < 4000/mm3

      Causes of leukopenia: Viral infections, some bacterial infections, overwhelming bacterial infections, hypersplenism, bone marrow depression, primary bone marrow diseases, immune-associated neutropenia, diseases occupying the bone marrow, iron deficiency anemia.

      Nursing care of the patient with leukopenia

      WBC Differential: there are 5 types of WBCs. The differential can tell you what type of infection is present.

      Neutrophils

      Also called PMNs, segs or polys .
      Normal is 50-60%; absolute cell count 3000-7000
      Neutrophils are the first cells to enter infected area. Their primary function is phagocytosis. Bands or stabs are immature neutrophils (1-3%). The life span is 6 hours.

      Neutrophilia - Relative percent >70%; absolute neutrophils > 8000

      Causes of neutrophilia: acute bacterial infection, inflammation, metabolic or chemical poisoning, acute hemorrhage, acute hemolysis, myeloproliferative diseases, tissue necrosis, early stages of some viral diseases.

      Interfering factors: stress, excitement, fear, anger, joy & exercise temporarily cause neutrophilia. Crying babies have neutrophilia.
      Labor & delivery, menstruation causes neutrophilia. Children have greater neutrophilic response than adults. Some elderly patients have little or no neutrophilic response. People of any age who are debilitated, may not have neutrophilic response.
      Number of neutrophils decrease greatly with overwhelming infection, resistance exhausted, approaching death.

      Ratio of segs to bands

      Shift to left ß Increased bands Means acute infection, usually bacterial.
      Shift to right à Increased mature cells

      Degenerative shift to left : Overwhelming infections, increase in bands without leukocytosis
      Regenerative shift to left: Increase in bands with leukocytosis, bacterial infections, Good prognosis
      Shift to right: Few bands with neutrophilia, liver disease, megaloblastic anemia, hemolysis, drugs, cancer, allergies
      Hypersegmentation without bands: Pernicious anemia, chronic morphine addiction

      Neutropenia
      Absolute count < 1800 in Caucasians, < 1000 in African-Americans
      Relative percent < 40%
      < 5000 in neonates or < 1000 in infants

      Causes of neutropenia: acute overwhelming bacterial infection, viral infections, rickettsail diseases, some parasites, drugs, chemicals, toxic agents, radiation, blood diseases, anemias, hormonal disorders, anaphylactic shock, renal disease, autoimmune diseases, hypersplenism.

      Agranulocytosis (marked neutrophenia & leukopenia) is dangerous. Body is unprotected against invading agents. Requires reverse isolation.
      Nursing care of the patient with neutropenia

      This site discusses the granulocytes (neutrophils, eosinophils and basophils): http://www.proiris.com/clinfx/hemat/hematpri/granulo.htm

      Eosinophils

      Concentrated in respiratory tract and GI tract. Activated by allergic reactions, foreign proteins and parasites. Diurnal rhythm – lowest in morning. Stress (physical or emotional) decreases count. Eosinophils disappear with corticosteroids.

      Eosinophilia - > 500 or > 5%
      Causes of eosinophilia: Allergies, asthma, parasitic diseases, Addison’s disease, hypopituitarism, myeloproliferative disorders, immunodeficiency disorders, chronic skin disorders, pulmonary infiltration, some infections (scarlet fever, chlamydia), collagen & connective tissue disorders, drug reactions, aspirin sensitivity.
      This site provides extensive information about eosinophilia:
      http://www.postgradmed.com/issues/1999/03_99/brigden.htm

      Eosinopenia
      Causes: Usually caused by increased circulating steroids, Cushing’s syndrome, drugs (ACTH, epinephrine, thyroxine, prostaglandins), acute bacterial infections with a shift to left. Eosinophilic myelocytes found only in leukemia or leukemoid pictures.

      Basophils

      Concentrated in connective tissue and pericapillary areas. Release heparin, bradykinin, serotonin and histamine. Mediate allergic reactions. Help keep inflammatory substances at site.

      Causes of basophilia: Myelocytic leukemia, inflammation, allergy, sinusitis, polycythemia vera, chronic hemolytic anemia, after splenectomy, after ionizing radiation, hypothyroidism, foreign protein ingestion, infections (TB, smallpox, chickenpox, influenza)

      Causes of basopenia: stress reactions, hyperthyroidism, prolonged steroid therapy, chemo, radiation, acute rheumatic fever, acute phase of infection in children.

      Monocytes

      Mature form is macrophage. Function in blood like macrophages do in tissue.

      Macrophages
      Macrophages are not measured because they are found in tissue, especially GI tract, lungs, skin, spleen. First cells to pick up foreign organisms that enter by routes other than blood. Essential for immune system to work. They process foreign material and present it to other cells. They also produce interleukin 1 (IL-1).

      Causes of monocytosis: Bacterial infections, Tuberculosis, Subacute bacterial endocarditis, Monocytic leukemia, Myeloproliferative diseases, lymphoma, Recovery of neutropenia, Lipid storage diseases, Parasitic and rickettsial diseases, Collagen diseases, Surgical trauma, Ulcerative colitis, enteritis, sprue, Tetrachlorethane poisoning

      Causes of monocytopenia: Prednisone treatment, Hairy cell leukemia, Overwhelming infection causing neutropenia, HIV

      Lymphocytes

      This site provides in-depth information about B and T cells:
      http://www.ultranet.com/~jkimball/BiologyPages/B/B_and_Tcells.html

      T-lymphocytes are major fighters against viral, fungal, protozoa, and some bacteria; and provide surveillance against cancer. CD4 cells produce IL-2 and other interleukins.
      B lymphocytes respond to processed organisms. They are transformed to plasma cells. Functions include identifying antibodies (immunoglobins) in blood, fighting bacteria and other organisms.
      *Good B-cell function requires good T-cell function.

      Causes of lymphocytosis: Lymphatic leukemia, infectious lymphocytosis, infectious mononucleosis, CMV, measles, mumps, chicken pox, toxoplasmosis, viral URI, infectious hepatitis, TB, pertussis, Crohn’s disease, ulcerative colitis, hypoadrenalism, Addison’s disease, thyrotoxicosis, serum sickness, drug hypersensitivity

      Causes of lymphopenia: Chemotherapy, radiation, ACTH- producing tumors, steroid administration, aplastic anemia, obstruction of GI lymphatic drainage, Hodgkin’s disease, other malignancies, inherited or acquired immune disorders, advanced TB, severe debilitating illness of any kind, CHF, SLE, renal failure

      CD4

      Decreased: Immune dysfunction, AIDS, acute minor viral infections
      Increased : Therapeutic drug effect, diurnal variation – peak in evening 2 times morning level.

      Plasma cells
      Mature B-lymphocytes that produce antibodies.
      Increased: Plasma cell leukemia, Hodgkin’s disease, multiple myeloma , cirrhosis, chronic lymphatic leukemia, rheumatoid arthritis, cancer (liver, breast, prostate), SLE, serum reaction, some bacterial, viral or parasitic infections

      Interfering factors: Stress, exercise, menstruation cause lymphocytosis. African Americans have a relative (not absolute) increase in lymphocytes.

      Natural Killer Cells
      Unique lymphocytes with cytotoxic ability. Involved in all types of defense. They work in conjunction with T lymphocytes

      Special measures of lymphocytes
      CD - cluster differentiation - based on markers on cell membrane

      CD3 (total T-lymphocytes > 1500)
      CD4 (helper/inducer 500-2200 cells/ul)
      CD8 (suppressor/cytotoxic [CD3+] cells)
      CD4 : CD8 normally in 2:1 ratio
      CD19 (B cells)
      CD25 (activated T cells [CD3+] )
      CD45 (panleukocytes)
      CD16 (natural killer cells)
      T-cells panel - combination of various groups, such as CD45, CD3, CD8, CD25, CD56, CD19
      T-helper/T-suppressor ratio > 1.0

      Nursing considerations:

      Lymphocyte measures vary across labs.
      vary diurnally.
      Draw in am
      Don’t let sit overnight.
      Lymphopenia

      v Opportunistic infections frequently occur during lymphopenia.
      v Prednisone can decrease T lymphocytes
      v Major finding in AIDS is decreased CD4 ; < 200 = AIDS
      v If T lymphocytes < 2000 look for signs of malnutrition
      v Decreased T lymphocytes occur in transplant patients
      receiving immunosuppressant drugs

      Management of patients with low WBCs

      v No fresh fruits or vegetables, cooked food only
      v All food must be served from new or single-serving package
      v No IM injections
      v No rectal temps, suppositories, enemas
      v No aspirin or NSAIDs
      v Monitor temperature

      Antibodies
      IgA = lungs, skin, GI infections
      IgG = Generalized bacterial infection

      Complement
      Increased in acute response to inflammation or infection
      Absent in hypercatabolism (autoimmune), hereditary deficiency and overexpenditure of complexes
      Used to monitor or evaluate SLE

      Leukemia
      Classified by course and duration - Acute or chronic
      Classified by cell type - Myeloid (granulocyte), Moncytic, Lymphocytic

      Culture and Sensitivity

      Antibiotic sensitivity testing detects type and amount of antibiotic required to inhibit bacterial growth. Frequently use disc method where antibiotic impregnated discs placed on agar innoculated with bacteria. Degree of inhibitions of bacterial growth indicates effectiveness of antibiotic.

      Sensitive and susceptible imply that antibiotic will inhibit or kill organism

      Intermediate, partially resistant, moderately susceptible indicates organism not completely inhibited by therapeutic doses

      Indeterminant – may be susceptible to high doses

      Resistant – organism not inhibited

      Types of cultures

      Aerobic
      Anaerobic
      Fungal
      Acid fast

      Get cultures before antibiotics started. Can use special procedures if antibiotics already started.
      Gram stain is used to identify if specimen is good and as initial basis for therapy.

      Parasites are seen visually.

      Immunological Studies

      Tests for disorders of immune function

      Erythrocyte Sedimentation Rate (ESR, sed rate)

      Nonspecific test for inflammation
      Inflammatory and necrotic processes alter plasma proteins which cause agglutination of RBCs and they settle faster
      Used to monitor treatment for temporal arteritis, rheumatoid arthritis, polymyalgia rheumatica

      Increased ESR: All collagen diseases, infections, inflammatory diseases, all cancers, acute heavy metal poisoning, cell or tissue destruction, toxemia, nephritis, nephrosis, subacute bacterial endocarditis, anemia, rheumatoid arthritis, gout, arthritis
      Extreme elevations found in malignant lymphocarcinoma of colon or breast, myeloma, and rheumatoid arthritis

      Interfering factors: Refrigerated blood, pregnancy after 12 weeks until 4 weeks postpartum, young children, menstruation, anemia, hyperglycemia, hyperalbuminemia, decreased fibrinogen in newborns, polycythemia or high Hgb, drugs: steroids, aspirin, heparin, oral contraceptives

      C-Reactive Protein (CRP)

      Normal < 0.8 mg/dl
      Nonspecific
      Used to evaluate inflammatory disease management and severity of diseases which cause tissue necrosis

      Positive CRP: rheumatic fever, rheumatoid arthritis, myocardial infarction, malignancy, acute bacterial & viral infections, postoperatively

      Antinuclear Antibodies
      Normal is negative by immunofluorescence; titers done if positive (<1:160 normal)
      Used in differential diagnosis of rheumatoid diseases: SLE, lupoid hepatitis, scleroderma, rheumatoid arthritis, Sjogrens disease, dermatomyositis, polyarteritis
      Subtypes of ANA
      Anti-dsDNA antibody
      Antibodies to extractable nuclear antigens
      Anti-RNP (antiribonucleoprotein)
      Anti-Smith
      Anti-Sjogrens syndrome

      Rheumatoid Factor
      Normal < 80 IU/ml
      Increased in rheumatoid arthritis, SLE, endocarditis, tuberculosis, syphilis, sarcoidosis, cancer, viral infections, Sjogren’s syndrome, skin & renal allografts, diseases affecting lung, liver, or kidney

      Cold Agglutins Test
      Normal < 1:16 titer at 4o C
      A titer is finding the substance after a series of dilutions. In the case of a 1:16 titer the substance is present after a dilution of 16 times.
      IgM autoantibodies cause RBCs to agglutinate at 0-10o C
      Used to diagnose atypical viral pneumonia, certain hemolytic anemias

      Chronic elevation - severe Raynaud’s phenomenon, B-cell CLL
      Transient increases: atypical viral pneumonias, infectious mononucleosis, congenital syphilis, hepatic cirrhosis, trypanosimiasis

      There are a lot of other immune function tests. An important point to remember is that most are very nonspecific and will be positive after any inflammatory response.

  15. QUESTION:
    Fibromyalgia: I don't have it, but 1 of my doctors says I do. How to change the diagnosis?
    However, I DO have a very nasty autoimmune disease, similar, but just this side of worse than systemic lupus. This 1 doctor keeps insisting I try this & that, medication & diet changes, & other hooplah, which do absolutely NOTHING to help my joint pain & oftentimes make it worse. As there are many folks out there who believe they have fibro & can't get a diagnosis, I'm curious to know if there are those like me, who were diagnosed with fibro & know that they do NOT have it. What can a patient do to tell a doctor they are incorrect with their diagnosis without rubbing them them the wrong way? Fibro seems to be a "catch all" diagnosis (at least in the bigger cities of the Northeast) & while I have pain in joints & muscles, I do not have "triggers/trigger points" & found that the antidepressants & Lyrica that were specifically given to me for fibro made me absolutely sick & unsteady; physically & mentally. I am now off of both medications & am feeling much better, but this doctor is insistent & keeps treating me as if all the pain I have is from fibro & not the autoimmune disease working it's "magic" on the affected areas, namely; all the large joints of my body & muscle pain in my mid-lower back & occasionally in my legs. Has anyone else been given a fibromyalgia diagnosis they felt was inappropriate? If so, what did you do to help your doctor change their view?

    • ANSWER:
      why would you kee going to this doctor...if you can't get proper treatment since he is only treating it as FMS? 99% of the time there is nothing you can do. Doctors think they are know it alls and then whine about their malpractice insurance rates... have experienced malpractice more than proper care...with everything from a foot injury to FMS..with MANY issues in between...i was repeatedy told 'you're fine, stay active' when my knee was actually injured, I had post concussive, syndrome, mono, and osteoarthritis...bymore than 1 doctor for ech condition....i went to an eye doctor a half dozen times who never noticed my optic nerve was damaged........the same one insisted my grandmother had cataract surgery even though her quality of life wasn't affected, but her heart was too week...she refused the surgery....but that doc cme HIGHLY recommended by many in the area....

      sadly it is true that MOST docs use FMS as a catch all even though it isn't---and then whine about their malpractice rates......they don't get sued enough....

      the FMS meds don't work for a lot of people--its highly possible the people they tested it on only had the 'catch all' version not real FMS.....

      i know 2 people misdiagnosed by a top researcher--although they weren't in one of his studies..it shows that people can get into a study with a false diagnosis

      i am waiting until June when I get different insurance to go to a doc that admits he doesn't know much about FMS, but is willing to try.....I had gotten great care from him a few years ago, better than the know it alls

  16. QUESTION:
    How can I convince the doctors there's something wrong with my physically?
    I have been emotionally distraught everytime I get my period since going off birth control in December, and the doctors refuse to believe I'm really sick. I mean, I get it that the body changes month to month, year to year, and day to day, but I seriously am of the belief that there is something totally wrong with me, and it's terminal.

    All my blood works have come back normal since becoming ill in January, but I still believe I have something terminal and they won't believe me even with my family's history.

    My mother has Lyme's Disease, had 3 different Cancers, my mother's sister has Lupus, my Grandmother has Diabetes and my father has hypertension.

    I was recently diagnosed with hypertension, but I still believe I'm being treated unfairly and for the wrong thing.

    I'm dying and no one cares!

    I have what was originally thought to be MRSA but it was downgraded to a a sweat gland disorder, and since then, I still feel they're missing something completely since all the meds they have put me on only make me worse than when I started.

    I suppose it is just paranoia, but I really am of the belief that a person knows their body better than any medical so called expert.

    My son is miserable every time I'm miserable and it hurts me to think I may have to give him up and just be sent to a nut ward.
    Lynx, they won't put me back on the birth control. They say that since I'm not sexually active it's not needed even though they were at first convinced it'd help my sweat disorder.

    I feel incredibly different every time my cycle ends, but I am just too convinced it's something completely different and they just won't tell me.

    I do have a counseling appointment in September, but I am really not willing to go since my mood changes so drastically and frequently.

    • ANSWER:

  17. QUESTION:
    How do you personally cope with depression, and are you open about having it?
    I haven't been diagnosed with having depression, and most people who know me wouldn't believe that I have it because I come across as being very positive and happy but I believe that I am experiencing something more than just teenage angst or whatever. I feel like I have these weights just pulling me down emotionally, and dancing and running and sunlight and eating well and all the other mood-elevators of the past just don't bring me back up anymore. I've recently gone into remission for Hodgkin's Lymphoma, and I should be feeling better, not worse, but this past year was really brutal. I was in a support group for teens who had cancer or blood diseases, and two passed away. Prior to cancer, one of my best friends died of Lupus and I lost a lot of family members back to back. It's been a total of 10 people in three years. I feel like my youth is gone. I'm just 17 - just shy of 18 - and I feel like I'm so much older. I don't identify with normal kids anymore at all. I got into my dream college and I've got so much going for me, and I just don't care about any of it right now.

    I'll stay in my PJs half the day now when I can, I let my room become a gross disaster, I'm apathetic about my well being and I just force myself to eat and take my meds, but I don't really want to do either. I don't know what I should do to treat this. How do *you* treat your depression?

    • ANSWER:
      I'm sorry you're having a hard time. I think you're probably right about feeling that you're depressed. Especially after everything you've gone through yourself and losing all those people in your life. That is quite traumatic.

      I too struggle with depression, due to abuse and possible genetic makeup. I take medication for anxiety as needed but at the moment am not on anything for depression. I find its really important to get as much sleep as I need or I start spiralling.

      There are some days when I turn off the phone, stay in my pjs and sleep as long as possible. This happened about 2x a week the past 2 months, during summer holidays. I'm back at work now which is good. I need a routine and place to go most days to help me keep myself in some sort of balance. I have a sewing hobby that I take with me to a friend's place when I'm not working and surround myself with supportive people. Sometimes I'll color or cut my hair to help myself feel new/er. :) Spending time with my children and grandchildren helps as well. My grandchildren help me see things more as new beginnings.

      My new goal in life is to simply love others and help others to feel better about themselves or help make their situations a little easier - nothing big and splashing just in passing or in a casual way. When I'm depressed and think about this goal, it spurrs me on to step outside of myself and directs my attention away from my issues to others. Like taking a break from myself.

      Some days I have to force myself to leave my home, to even look outside, but once I'm out there, I start to feel lighter. Some days I simply have to ride with the depression and tell myself, this too shall pass and the sun will shine and I will be happier again. I have to accept that the good times too will pass and the cycle will begin again, but there will be good in there as well. In public, like you, I put my best face forward, and most people don't know unless I tell them that I struggle with depression. Sometimes I'm not able to put my best face forward and at that time, its best to take care of me at home.

      Depression is a reality. I have a good friend that I talk with and know that I'm loved. That is really important to me. I wish I could be more open in a general way with people around me every day but that's just not my personality. I don't want someone on the other side of my workplace getting the low down from someone I confided in. I admire people who can be more open than I am. I don't mind sharing here because of anonymity.

  18. QUESTION:
    Postpartum rheumatoid factor w/ weak positive ANA? Need a Dr House!?
    I'm trying to condense this as much as possible, hoping for professional thoughts / opinions while I await a rheumatologist referral (5 weeks away, ugh).

    31 years old, delivered my first baby in January. Severe diarrhea last 4 mos of pregnancy, which my OB didn't take seriously & never treated. The day I went into labor, the hospital staff was astonished by how dehydrated I was, and my potassium level was at 2, requiring several IV infusions before my cesarean and afterward. OB still insisted "no big deal" despite the nurses thinking it was.

    Worried about this for 2 months before seeing my FNP for a physical to make sure I wasn't going to up & die unexpectedly (the hospital experience turned me into a hypochondriac, lol). To my horror, my bloodwork came back with a weakly positive ANA (titer 1:80) and a rheumatoid factor of 12, and my FNP flatly told me I may have an autoimmune disease & got me a referral to a rheumatologist (August is the soonest they can see me).

    I've been stressing over this for 3 months now, went to a GP yesterday for a 2nd opinion, he is going to repeat the labs to see if any change, but didn't make me feel any better. He said he is unsure whether pregnancy / breastfeeding could have any effect on ANA levels / rheumatoid factor, and told me I don't *look* like I have lupus or scleroderma.. : /

    I have no symptoms at this time of anything, except for feeling tired (but wouldn't that come with having a 6 month old lively baby?) And my hands seem to fall asleep a lot (but said baby sleeps in my arms a lot, which is usually when that happens).

    Can anyone see a possible connection in any of this (unexplained diarrhea, hypokalemia, ANA, etc)? I can provide further detail on bloodwork if needed. I am sorry this is so long, but I am finding myself obsessing with this matter because I want to be healthy for my sweet little boy!

    • ANSWER:
      Thank you again for the question and the additional history.

      As per my previous response, the weakly positive ANA and the negative rheumatoid factor mean nothing in and of themselves. From the clinical information that you’ve provided, I seriously doubt that you have an autoimmune disease. I’m disappointed in your GP. Repeating these lab tests is a clinical exercise in futility. These test results will likely remain unchanged, and again, will add NOTHING to the discussion. Your original FNP erred royally in ordering these tests. Yes, I agree with you that rearing an infant and enduring countless sleepless nights (I’m not a parent) can easily account for your fatigue. Yes, it may be that simple.

      Regarding your severe bout of diarrhea in the days before you gave birth, unfortunately that was the cause of your dehydration and hypokalemia. It’s possible that you had a bout viral gastroenteritis before labor. It’s also possible that you were infected with a hospital acquired bacterium that caused the diarrhea (such as C. diff). Nevertheless, whatever caused the diarrhea, I believe that it was in no way related to your lab test findings. In my medical opinion, you may have had these test results if they had been checked a year before your pregnancy. Again, no clinical correlation. I can emphatically assure you that breast feeding is in no way related to your test results. I doubt that pregnancy can cause a an elevated ANA; and even if it did, that does NOT mean that you have, or are about to develop, an autoimmune disorder.

      Bottom line: I believe that you are fine. Since your GP also appears clueless, for the sake of providing you professional reassurance, you may just have to wait to see the rheumatologist next month to hear what your GP should have been in a position to tell you - “You’re fine, m’aam.”

  19. QUESTION:
    My list of symptoms, anyone want to have a guess?
    I have a few symptoms, on their own they don't seem to be much of anything but all together I am a bit worried, every time I go to the doc they look at one condition and offer advice but I'm wondering if I should make a list and bring it in - and how can I do that without appearing like a total hypochondriac, lol

    I've had several tears to my back muscles over the years, and have constant low level back pain with bursts of sharp stabs and stiffness, the doc says it's muscular not my spine or discs - I can accept this, and I take codeine to keep it at bay. However, since about January, I have had pain in the back of my left knee - the doc refered me to an osteopathy clinic where a technician told me it was just soft tissue, suggesting the capsule at the top of the ligament, and I was supposed to put on cold packs for two weeks and go back, tried that and it didn't help, so he's started massaging it - and by massaging I mean digging his fingers in to see if he can make it less sensitive. It hurts. It doesn't sound like a great idea.

    I also got a huge swollen node under my arm (coincided with a careless sunburn), I went back in two weeks to have it checked again and they sent me for a blood test, the results of which were within acceptable range.

    Now, my problems are, I have bad lower back muscles, I have this dodgy knee and I have a huge lump in my neck, and a smaller one on the back of my head, but with my white count being ok, it's not going to be breast cancer (what they were ruling out) but also not likely to be an infection. My new thing this past week is a sharp pain around the top right of my left shoulder blade, feels like a muscle or a tendon, not in the bone and not in the joint, more in the soft tissue. It feels like my back muscles do, that sharp itchy pain when it's torn and healing. I have a click in my neck too, something grinding.

    So why would this lymph gland be up? could it be connected to something in the back of my knee? and if so, what?

    I am female, 40, in good health, I am 5ft4 and about 110pounds, I have never been ill with a named disease except childhoods (measles, chicken pox, mumps) and asthma when I reached 32, I am on nothing but occasional asthma meds and my codeine.

    I wonder if I am treating my body too harshly and carrying loads of shopping that are really too heavy now I am getting older (not old yet though), but since I am taking the back pills, I am perhaps not realising it's hurting me until later? maybe I have weakened muscles prone to injury - but why if that's the case? I don't really know, anyone care to take a stab? have I got two unrelated issues (nodes and muscles) or does it sound like something all together? it's not cancer of lupus, the bloods rule one out, the symptoms the other. My knee thought it was slightly injured in May 2009, does not have a Bakers cyst, had the U/S to rule that out before getting sent to the osteo.
    Sorry, that should read "cancer OR lupus", I appear to have badspellingcheckitis too.
    No shutup, that's not the answer, being rude rarely is. My medical file after 40 years is about 2mm thick, I'm not a hypochondriac, Amanda said the same as my husband, go tell them there's something wrong and make them do something, but I do play it down, D says I will die saying "I'll be alright."

    This is the first time I have asked listing all my problems to see if anyone can see anything that might be connected. Since I suggested it might be wear and tear, I don't see that I am being unrealistic in my analysis, but I have had minor things and they usually do get better, these just don't seem to, my back has been "injured" for about 5 years now. The codeine of course is on prescription, I don't buy it illegally, it was assessed to be the most suitable by my doctor.

    • ANSWER:
      bad idea to go into the doctor with only one thing to tell them,if several things are wrong with you.
      like saying:hey i'm sick but not that sick,so i do not need that much attention or medication.
      the knee and node both needs antibiotics.infections is what you are dealing with here.probably need to seek hospital help.try another doctor for sure.never say you are in good health if all of this is wrong with you;specifically because the old saying of:the squeaky wheel gets the grease,would make those in charge enough to do something about it,wright you off before takeing you seriously.
      mostly what this sounds like to me is infection.
      probably several different spots,but infection big time.

  20. QUESTION:
    How does Hypothyroidism, low white, red cell count, low Hgb, Low Hct and High Bun, High Creatinine?
    How do all the lab results related to what possible diseases, beside anemia? The individual also is diagnosis with Short Bowel Syndrome and on going MAC (Lung) infection and is being treated presently. The patient has been told that she doesn't meet all the criteria for Lupus, but has met majority of them. This is a very difficult case and the individual has been passed through many frustrated physicians, who are unable to assist the patient. If they (Physicians) are frustrated you can imagine how this is effecting the patient, not only financially but psychologically, So if anyone out there has any suggestions or thoughts it would be greatly appreciated to hear from you.

    • ANSWER:
      I'm sorry I can't be of much help, but get a second opinion, or a third opinion or a fourth.

      What symptoms is the person displaying? Most doctors believe that people with symptoms are most important than blood tests.

      Undifferentiated Connective Tissue Disease is what some rheumatologist would call someone who don't quite meet the criteria for Lupus.

      Good luck.

      ....


How To Know If I Have Lupus

Candida Albicans is a type of fungi that proliferates in the external areas of the female reproductive tract. It is commonly known as yeast, and is not new among women. A woman experiences a yeast infection at least once in her life, and one occurrence is enough to drive her insane.

Yeast-infection is treatable, but is best done early on. Fungi tend to spread pretty quickly, and a simple yeast infection in the vagina could have serious complications if ignored. So how do you know if you have it? Here are some signs and symptoms to watch out for.

Extreme itching or burning sensation around the vagina and vulva. With a yeast-infection, the vagina and neighboring parts become inflamed and irritated, and extremely itchy that a woman can get the urge to scratch. Doing so will unfortunately make the area swell more, and may cause the mucosa to break.

Pain during urination and sexual intercourse. The pain is caused by the inflammation and irritation of the vaginal mucosa and other external genital parts. A good way to check if pain during urination is a urinary tract infection or a yeast infection is to see where the pain starts and stops. The pain of a urinary tract infection will increase towards the end of urination. A yeast infection makes peeing painful all throughout.

Foul cheese-like odor from the vagina. This is characteristic of a yeast-infection. The odor is not fishy, but smells of fermented substance, such as beer, bread or cheese. If the odor from the vagina is fishy, it could be a bacterial infection. Sometimes, the defenses of the vagina are diminished with the flourishing of unfavourable fungi, so a bacterial infection can coincide with a yeast infection. This is a more complicated case and a doctor should be alerted immediately.

White or light-yellow discharge from the vagina. The consistency of the vaginal discharge can range from slightly creamy to thick like cottage-cheese. This is what causes the unpleasant cheese-like odor. This discharge is a reaction of the mucosal cells against the proliferation of fungi in the vagina.

Of course, these are indicative but not definitive of yeast infections, as these symptoms could also be of other conditions. When it doubt, get yourself treated by your gynecologist.

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Frequently Asked Questions

  1. QUESTION:
    How long does your lupus flares typically last?
    I know there is no definate answer I just want to compare mine to others. I have been dealing with lupus for 7 years but was just recently diagnosed about 2 and 1/2 months ago. I am going through another flare and would like to hear how long other people suffer through it and possibly if any one has any relief. Some encouragement would be great right now. Also, is there anything I can do for pain? Medication or anything?

    • ANSWER:
      I don't have Lupus, but I'm seeing a rheumatologist and I have some sort of autoimmune condition. So I'll answer the best I can.. I hope you'll get answers from people who've been diagnosed with Lupus though.

      My flares can last a day or they can last for months and anywhere in between. It varies from person to person. I've found Prednisone amazing! If you're really unwell, speak to your doctor about a short course of Prednisone.

      There are many support groups online for people with Lupus. You'll find more support from people who can answer all your questions.

      http://www.dailystrength.org/c/Lupus/support-group
      http://www.thelupussite.com/forum/
      http://www.butyoudontlooksick.com/boards/viewforum.php?f=9&sid=ac6385440f7cd38a71dc587ed99d57eb
      http://www.healthboards.com/boards/forumdisplay.php?f=81

      I hope you have a good rheumatologist!

      ....

  2. QUESTION:
    How can a person know how long they have had Lupus before they were diagnosed?
    I have just been told that I have Lupus SLE and was wondering if anyone knew how to tell how long you have had it, before it was detected? I can't remember ever having any of the symptoms before, but I have read a lot of articles that stated that some people were misdiagnosed for 5 to 7 years before they found out that they had Lupus. Thanks for any help you can give me!

    • ANSWER:
      I don't think there's any way to be certain how long you've had the disease before being diagnosed. Lupus is very hard to diagnose because the early symptoms are so mild that they are dismissed as just "normal" illnesses. Some of the warning signs are persistent colds, headaches, joint pain, rash, swollen lymph glands, extreme tiredness, and depression that don't respond to medication or treatment. Most times these things are blamed on stress. My daughter suffers from Systemic Lupus. It took several years for her to be diagnosed. By then the disease had progressed and symptoms became more apparent. I am sorry to hear of your diagnosis. If I can be of any help to you, please feel free to email me. I know what you're going through and I can probably answer a lot of questions you might have. If ever you need a friendly ear, I'm available.

  3. QUESTION:
    How do I deal with lupus with out taking drugs?
    I have had lupus for three years, but I just started get treatment from a lupus specialist at Magee womens hospital. I take a small dose blood pressure medication. But my doctor wants me to take plaqunil and prednesone. But those drugs have so many side affects and I hear so many bad things about how they help one thing but then something else breaks down, Then you are on this cycle of adding on medicine after medicine. I want to live, but I don't want to lose my eyesight, have liver problems, or other complication caused by these medicines. I know their has to be a way of life change, or natural medicine that will help and have less or no side affects. I lived three years without medicine or help. But I do notice that I had more flares lately. I need to make a decision, I recieved my plaqunil in the mail a week ago, i need to decide if I am going to take or find something else that help to present to my doctor at my next appointment. I want to live but not taking alot of medicine

    • ANSWER:
      I've had lupus for sixteen years and the best thing I've found is Ambrotose. It's a glyco nutrient that promotes cell to cell communication while it builds your immune system. It's all natural and has no side effects. One of the things with lupus is it does take your hair out, but since I started taking Ambrotose my hair is thicker than ever; I actually had to cut it. I've been taking Ambrotose for almost seven years and I haven't had a flare up since, I can go out in the sun with no problems and for the first time in years my skin is clear. If you would like to check it out you can go to www.glycostory.com/teamval and for the more scientific aspect www.glycoscience.org, there you can look up the disease specific review. I hope you'll give it try it will help. Another thing you can do is eat more eggs, sardines, onions, garlic, alfalfa and yucca. If you would like to know more about the diet aspect you can e-mail me and I'll be more than happy to answer your questions.

  4. QUESTION:
    How would I know if i have Lupus?
    I keep meaning to go the doctor and get a blood test but recently I've been busy. All of my father's sisters have Lupus and I've heard that the men carry the disease and pass it down to there daughters. Are there any symptoms of Lupus that maybe i can look out for before I go the doctors?

    • ANSWER:
      I have had lupus for several years and there are a variety of symptoms including pain, fatigue, sores, etc.. These symptoms are shared with many other autoimmune diseases, however. I would recommend talking to your doctor, especially since you have a family history of lupus, because it is something that should be monitored closely.

      If you would like more information on lupus, please take a look at the Lupus Foundation of America's website: http://www.lupus.org

      I also have a blog about dealing with chronic illness: http://www.chronicsunshine.com

      Wish you the best!

  5. QUESTION:
    How would I know if I have Lupus? What test should I ask my doctor about?
    My sister is a nurse and she thinks that I have Lupus. Somedays I have to make myself get out of bed. It is a struggle to perform normal household chores. I have had the "butterfly" rash on my face but it wasn't that bad. I have episodes where I feel like I can do anything. When I have a flare-up I get nodules behind my ear and one in my neck. I also get a rash on my chest that itches. There is also pain in my joints when I have an episode and could sleep for days. I do not suffer from depression. I was told that it can be hard to determine if you have Lupus. If I do have it will it affect me having children in the future and could it be the cause of a previous miscarriage? Just to be clear I have been tested for EVERYTHING but Lupus.

    • ANSWER:
      I am no doctor, but sounds like you have many lupus symtoms.....take it from someone that was diagnosed in 1996. Some days are better than others, but if properly diagnosed they will be testing your blood for overproduction of white blood cells......my doctor (he was so aweseome because I went to 6 that misdiagnosed me!!) said that was really the only true test to tell if you have the disease or not. If you get diagnosed with lupus you will have to take care of yourself more and learn that you can't do everything you used to do! (You need more rest for sure, you will learn to take naps, etc.) Good luck with your search for a good doctor.

  6. QUESTION:
    can Lupus Anticoagulant be detected before a miscarriage occurs?
    My sister just had a miscarriage due to this Lupus Anitcoagulant Sydrome and she is very health and all was well with the baby and we just dont understand how this happened. i cant find ansawer for my question any that i have looked and i was wondering if any could give me a link on where to look or please if u have the answer please let me know! Thank you in advance!

    • ANSWER:
      Some lupus patients have clotting disorders. They can be detected by a blood test. Unless a doctor knows the patient has lupus and suspects a clotting disorder, they will not test for it. The clotting disorders include antiphospholipid antibodies, lupus anticoagulant and anticardiolipin.

      Women with these disorders can have children. The pregnancies are considered high risk and need to be monitored by an obstetrician who handles high risk pregnancies in conjunction with her rheumatologist.

  7. QUESTION:
    What are the chances of a person undergoing chemotherapy for lupus getting a girl pregnant?
    I'm aware that the lupus chemodrug Cyclophosphamide is known for killing your sperm count and ruining sperm motility, at least temporarily.

    How good are your chances of concieving a child? If they're pretty low... anyone have an idea how long it takes to recover your counts?

    I spoke with my doctor about this, but he says that since Lupus is a disease that affects far more women than men, it's hard for him to say with any assurance.

    • ANSWER:
      there are other therapies which will help more with this problem and the only reason you are being recommended that route is because of profit
      look into what edgar cayce said on lupus
      spiritual healing and reiki can help too
      not to mention
      bob beck protocol
      raymond rife machine may help too
      google search them all

  8. QUESTION:
    Why does sunlight make lupus symptoms worse?
    I know you shouldn't be out in the sun much if you have lupus and that it makes it worse. I'm just wondering why/how it makes it worse but I don't feel like looking it up myself.

    Please don't pretend I'm smart when it comes to medical terms; dumb it down for me if you can.
    :)

    • ANSWER:
      When the ultraviolet A or ultraviolet B light hits the skin, it can cause changes in the DNA in the skin cells. Your immune system gets stimulated to react. But with lupus your immune system will attack anything, including you, if it is stimulate. The light can also activate the dendritic immune cells in the skin.

      Cover up and use sun block. Even lupus kidney disease can flare because of exposure to UVA and UVB light.

      If you are going to live successfully with lupus, you have to be very active in managing your disease. This means seeing the doctor as suggested, taking your meds, following your treatment plan AND learning as much as you can about lupus.

  9. QUESTION:
    How severe is this lupus?
    My mom has lupus and is now taking CellCept. She has kidney problems. She is okay now but I want to know if her's is severe. She goes to the doctor to check her protein level every month and it seems okay. She take like three pills of CellCept a night and day. She did have a history with steroids but not anymore. I just want to know how severe her lupus is. Thanks a lot.

    • ANSWER:

  10. QUESTION:
    I have a big science project on lupus, anyone know any good sites or books to use?
    I need any really good sites or books i can use to find out information on lupus, the symptoms how it is passed down from generation to generation stuff like that, thanks in advance if you can help me!
    and the project is due on march 30th but i want to turn it in earlier so i can get some extra credit

    • ANSWER:
      I recommend you extend your research to Colostrum. Since many Lupus Patients have gained significant progress from taking Colostrum Supplements. Colostrum is a pre-milk from mammal mostly Cows.

      It contains PRP (Proline Rich Polypeptide) that can regulate Immune System activities, that's very important for autoimmune disorders patients including, Lupus patients.

      Here is a link that perhaps can help you find out more:

      http://natural-colostrum.blogspot.com/2009/03/colostrum-therapy-for-lupus-patients.html

  11. QUESTION:
    To women who have Lupus and have had children?
    I would like to know if you have had the baby early or not ? I am 28 weeks pregnant have Lupus have a very high clotting factor at 640+ and am on aspirin until 32 weeks and clexaine injections up until 37 weeks. I have read as much information as possible and it says 50% of women with Lupus go into labour early . So I was just wondering how many women actually have gone to full term and if not full term then how far along have you been and has the child had neonatal Lupus this is one of my concerns.

    • ANSWER:
      Hi! I can't answer your question specifically because I dont have any children, but I might be able to shed some light on a few things. A friend of mine who I met at a Lupus meeting has had three children since she was diagnosed. One was delivered slightly early but all three are extremely healthy. I think it all depends on if your Lupus flares up during your pregnancy. Some studies say that pregnancy makes it worse, while others say pregnancy actually calms it down and the flare up comes after birth. For me personally, I felt great when I was pregnant , better than when I wasnt, but in my third month, i started bleeding. Same thing happened to a friend of mine who has severe Lupus, she has had several miscarraiges as well. I think it is a great sign that you are so far along. Yes, there are concerns about the baby having some type of complication but it is a very, very small percentage. As far as the clotting factors go, pregnancy in itself can make the clotting factors go up, even in people that dont have Lupus and it is very common in those that do. It sounds like your doctors have you on a good treatment plan. If you haven't already done so, check out the Lupus Foundation of Americas website, they usually have some good information on there. Also, most states have Lupus meetings in each county once a month. It has been the best thing I ever did for myself. I met a lot of other women who have dealt with the disease alot longer than I have and they were able to answer so many of my questions. Maybe you can find someone there to talk too that has already had children. Good Luck! Feel free to email me if you have any more Lupus issues you want to talk or vent about ;)

  12. QUESTION:
    Can Lupus be control without drugs,if so how ?
    A friend has lupus , but not in the really bad stage . She refuses to take medicine because of the bad side effects . So how do you control it with out medicine. Everybody I know takes medicine with lupus. Her hands swell some and she is always tired and aches a lot...Anyone have any advice...

    • ANSWER:
      I have had lupus for 14 years and I don't take any medication at all, by choice so I understand your friends decision. Basically a good diet and some exercise both help lupus tremendously (both have been clinically trialled at the lupus unit here at St. Thomas' Hospital). As does obvious things such as not smoking and trying to limit stress.

      Please take a look at our new lupus information documentary http://www.youtube.com/user/stthomaslupustrust. Particularly sections 2 and 5 which address how I control my lupus. As long as your friend is being regularly monitored by a rheumatologist (at least once a year) and the rheumatologist is happy I wouldn't worry about her too much.

      Hope that helps.

  13. QUESTION:
    how long is life expectancy with lupus?
    I was just diagnosed with lupus,but have had symptoms for the last 10 years.It seems that I am going downhill a little more everyday.I was just wondering if anyone knew the life expectancy with lupus.I dont want to ask my doctor because I dont want him thinking I am depressed and adding another med to my long list.I was just wondering how long I may have.

    • ANSWER:
      I have Lupus. I was officially diagnosed with it three years ago. It really depends on the severity of the disease because everyone's case is different. But dying because of Lupus, when you know you have it, is extremely rare. Now that you know you have it, it can be treated. Mortality rates are extremely low these days. In the last decade, treatment for Lupus has made a lot of progress. You don't have to worry about dying at all because of Lupus. If it really bothers you, the fear of dying, just be sure to have a regular check up with your doctor to make sure that you're okay.

      Other then that, I'm sorry to hear that you have Lupus. It's an awful disease, believe me, I know. But you're not alone. There's a whole bunch of us Lupus patients who have had people tell us it's all in our heads, and a whole bunch of us who have struggled trying to get diagnosed. But it does get better. As soon as you get over the initial shock, you realize that. I was twelve when I was diagnosed and I literally cried myself to sleep for months because I was so scared that I wouldn't wake up the next morning. Now that I've adjusted to it, I can go through everyday with confidence, knowing that I'm going to be here just as long as everyone else. If your symptoms worsen greatly, tell your doctor right away to avoid any complications. That's all I can really say.

      But the life expectancy for people with Lupus is definitely very close, if not the same, to healthy people. We just have to deal with character building symptoms that other people don't.

      Also, I know this is a little off base, but for me, I found that eating the raw food diet has helped me more than anything. Try eating only fruits, vegetables, seeds and nuts (if you're not allergic). You might feel worse for the first couple of days, but that's just the detox. It's your body adjusting and getting rid of the toxins that it's used to. Afterwards, you get a large amount of energy and the headaches/inflammation seriously start to clear up. I really, really, really suggest you try the diet if you want to feel better. It's tough, but push through it. It's totally worth it. And it will increase your longevity, even though you don't have to worry about that. :)

      Live life to the full, because you've got a full life to live.

  14. QUESTION:
    Any Body Have Or Heard Of Lupus Diseases?
    I have an uncle that suffers this diseases and I was wondering if anybody had gotten cured of known somebody that HAD suffered from this diseases or if anybody knows how to control it. Thank You

    • ANSWER:
      I have had lupus for 14 years. You cannot currently cure lupus no matter what you may read on the internet.

      There is lots of information about lupus on the web but you should be extremely wary of some of the information as people can write any old rubbish they want. If you go to our site we have a lupus nurseonline who can answer any of your questions. There are also stories from other lupus patients and articles from doctors so the information there is 100% correct. www.lupus.org.uk

      There are lots of things your uncle can do to help control lupus. I personally don't take medication and control mine by diet, exercise and positive thinking - all recommended by the specialists here:
      http://www.lupus.org.uk/information/information_informationforpatients_diet.htm

      Hope that helps.

  15. QUESTION:
    Anyone out there have lupus or MCTD?
    I want to know if anybody out there reading has lupus or mixed connective tissue disease? I have MCTD, an overlap of lupus and rheumatoid arthritis, and I was taking baby aspirin, prednisone, and plaquenil. I stopped taking the medicine all together about 4 months ago because I hated it. At first I felt sick but now I feel fine. I'm wondering if stopping my medication will affect me in the long run. And how?

    • ANSWER:
      My mom has lupus and she takes tons of medication otherwise she would be in the hospital. She has to take a med for lupus and meds for the side effects of that and so on. I think total she has to take approx 30 pills a day. Sucks! I do think that the mind can overcome lots of things but be careful and good luck.

  16. QUESTION:
    Living w/ lupus...how do I increase my energy level?
    I am 35-year with systemic lupus. While I take a multivitamin, exercise, etc., I still battle fatigue often. I know fatigue is the #1 symptom of lupus, but I wanted to find out if anyone had any tips, tricks, etc., that I might not be thinking of. Any recommendations would be greatly appreciated. Thanks!

    • ANSWER:
      hi, i am 29 and have lupus SLE for 8 years now. i find that cutting all salt out of food and exercising actually gives me more energy. although it is hard to exercise because of the effects of prednisone have destroyed ny bones. but don't cut your sleep too much because sleep is important with this disease. diet is the number one thing for controlling this disease. then exercise. that is really the only advice i have. i know the fatigue hits at any time and it can be frustrating, but hang in there sweetie. good luck

  17. QUESTION:
    are there any mus with lupus in here?how does it afect your daily life?
    i might have lupus(still waiting for blood results) and it is really scaring me that it will affect my life too much.if its just being tired like now i can deal with it, but if it develops into more problems then i don't know what to do as most of my family lives away

    • ANSWER:
      I think you should definitely wait for your diagnosis before getting too worried, I know that's easy to say, but lupus mimics other illnesses so you need to know if you definitely have lupus. Also the biggest hurdle is often getting a diagnosis then you know what you're up against.

      I have lupus and have had it for about 14 years and it generally doesn't affect my daily life much as I now know how to manage it, I work full time. It is treatable and there's lots you can do to help yourself. The majority of patients these days go on to lead pretty normal lives unlike years ago and this is due to improved treatments and research into the illness.

      If you get a diagnosis of lupus learn all you can about it BUT be very careful where you get your information as there's some absolute nonsense on the internet written by people who are not qualified to write anything! Go to websites that have doctors overseeing the information then you will know it's correct. Above all if you remain positive that's the key to managing any chronic illness, and doctors will tell you this. Definitely avoid people who aren't positive and moan all the time as they will bring you down with them and that's not helpful at all.

      Please use our free nurseonline service if you have any questions (http://lupus.org.uk/onlinenurse.htm), there is a lot of information on our site including stories from other patients and a leaflet for newly diagnosed patients with some advice. We will also be launching a new lupus information documentary in the next couple of weeks where real lupus patients talk about how they cope with their lupus, that will be very useful to you as it covers a lot of areas. Keep an eye on the homepage and news section of www.lupus.org.uk

      Hope that helps a bit, good luck

  18. QUESTION:
    if you have lupus, and you have treatment, how long will you live ?
    my dad has lupus and hes had it seince he was like, 26? and i want to know how long he will have to live..

    • ANSWER:
      That is a difficult question to answer because there is more than one type of lupus and that affects the answer.

      If you want reassurance, please read the information from the Lupus Foundation of America:
      http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutintroduction.aspx?articleid=80

      While lupus is more common in women than in men, it is not unusual. You can read more about it specifically here - please look at both links at the very bottom of the page:
      http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutindividualized.aspx?articleid=109&zoneid=18

      It is quite possible that you father will have a fairly normal life span and that you need not worry. The prognosis with proper treatment for patients who do not have organ-type lupus is very good. Some patients do have relapses and remissions so there is nothing written in stone.

      But about how long he will live, who can really say? How defensive a driver is he? What is the risk factor of his job? There are so many variables. All we can really do is enjoy the time we have together and not really worry about the sun coming up tomorrow. Appreciate your dad, spend time with him, get to really know him. If he is here in 40 or 50 years, you'll be even closer. If he isn't, you will still have him in your heart and you head.

      Tell him you love him; let him know that you are glad he's your dad. And don't be afraid to ask him about his condition. He'll tell you not to worry but it's okay to tell him that you do. And you can tell him why.

  19. QUESTION:
    Is there a cure for Lupus?
    If not, then is there a way to make it go into remission and stay that way? I know people with Diabeties who live normal live because they take really good care of themselves. As a friend how would I be able to help someone who had this disease? She has the kind that involves the organs.

    • ANSWER:
      I have a friend who also has Lupus. It would be better for you to go to this link below to read and maybe find out more specific things you are looking for.

  20. QUESTION:
    Lupus anticuagalant and pregnant?
    HI im one month pregnant and ive had two miscarriages in the past two years, my first at 11 weeks and my second at 6weeks. My Dr. did some tests on me and said i came out borderline positive for Lupus anticoagulant, I am a little worried because i do not know what to expect and im hoping i relax a little if i could here some stories about other pregnancies with this condition. What did your doctor prescribed you? how did you feel in your pregnancy? and How is your baby! Thank you so much for your time and inconvenience.

    • ANSWER:
      I don't know really anything about it. I just quickly did google search on it. But as I understand it means your body is more likely to clot, yet you don't have a specific clotting disorder. Is that right?

      Well, I have a clotting disorder. I and have two successful pregnancies resulting in two little girls. I was on injected Lovenox for both pregnancies.

  21. QUESTION:
    can a person go blind from Lupus?if so how can you tell?
    My friend has Lupus and she said she is going blind from it,what I like to know is how can she or her doctor tell it is from Lupus?

    • ANSWER:
      I have Lupus. SLE or Lupus can affect any organ of the body. It is possible. One can also get damage to organs from the drugs we take to help us daily in the battle with lupus. Here is some info:

      HCQ and retinopathy

      Hydroxychloroquine, or HCQ (brand name Plaquenil) is a treatment used for many of the autoimmune diseases, including systemic lupus erythematosus (SLE), Sjogren's syndrome (SS), and rheumatoid arthritis (RA). Hydroxychloroquine was formulated from chloroquine in an attempt to retain the therapeutic qualities but minimize the main side effect of retinopathy. Retinopathy is disease of the retina, which is the thin film in the back of the eye

      Chloroquine retinopathy is a well-recognized retinopathy, particularly in the bull's eye stage. Early cases of chloroquine retinopathy did not respond readily to discontinuation of therapy and sometimes led to legal blindness in the past. More recent dosage guidelines are associated with much less risk. But most in the U.S. consider HCQ to be less retinotoxic than chloroquine

      Lupus
      A Multifaceted Disease
      Updated: 01/18/2006
      Lupus is an autoimmune disease that can affect many organ systems. In people who have lupus, antibodies are created by the body’s immune system and directed against the body’s own cells. Lupus affects the connective tissue, or the tissue that provides strength to joints, tendons, ligaments, and blood vessels. The severity of the disease ranges from minor to life-threatening complications that must be aggressively treated.

      Lupus is a chronic condition. People with lupus tend to experience symptomatic periods, followed by periods of few symptoms or no symptoms at all. Total remissions are rare. Lupus flare-ups can be triggered by a number of factors, including exposure to ultraviolet (UV) light and toxins and a reduced antioxidant status.

      The most common form of lupus is systemic lupus erythematosus (SLE). Other forms of lupus include cutaneous lupus, which affects the skin (and accounts for about 10 percent of all cases of lupus) and drug-induced lupus, which is caused by an inappropriate reaction to a drug or medication. Drug-induced lupus usually recedes when the drug is withdrawn. Because SLE is the most common form of lupus, and the most severe, this chapter will concentrate on SLE, and any reference to lupus in this chapter refers to SLE.

      Any organ system that incorporates connective tissue can be affected by lupus, including the skin, kidneys, eyes, lungs, and the cardiovascular, vascular, musculoskeletal, nervous, blood, and gastrointestinal systems.

      Like other autoimmune disorders, lupus is characterized by an abnormally activated immune response. Under normal conditions, the immune system is responsible for protecting the body from external invaders such as viruses and bacteria.

      I wish your friend the best. She will need a good friend if she is going through this. Best of Luck.

  22. QUESTION:
    OK, so i have lupus, i had a miscarrige before ( it was when i didnt know i had lupus)?
    but the thing is that now that am 13 weeks i have to see my doctor every week ( high risk prengancy) so tomorrow i have to go and they gonna put me on LOVENOX, am sooo scared .. they take blood every week so now am gonna be injecting myself everyday .. i just wanna know if someone here is on LOVENOX? how do u feel? does it hurt? am just feeling really frustrated...

    • ANSWER:
      thank God i dont have this, but just wanted to let you know youll be in my prayers (seriously) and i hope all goes well.
      ask The Lord to lighten your path throught your pregnancy, labor and delivery!
      wishing you the best.

  23. QUESTION:
    Does anyone here have Lupus SLE?
    im 21, and was just diagnosed with lupus a few months ago. im struggling to find a way to continue school and just life in general. I get tired alot and my legs hurt randomly..sometimes so much I cant even walk right. Anyone else has experience with lupus and can offer me some advice? Does this get better...how many times has it been active and how do u know if ur in remission? i think im in remission, but im so scared that ill go back to school and then itll be active again and ill have to quit again.

    how do u guys deal with this back and forth thing? how do u ever get anything done?

    • ANSWER:
      I have both Lupus and APS. It is hard to deal with the ok one day...not the next. I am not in 100% remission very often. That doesn't mean you won't be. I had to go to college part time for awhile. I just kept getting sick.

      Here are some tips that I have learned along the way:
      -Find a good Doctor who knows about Lupus. You may need to change doctors.
      -Learn as much as you can about Lupus. The more you know about YOUR illness, the better you'll understand what signs to look for and what to tell doctors/nurses if ever needed. Try to find websites that site their information and are medically sound. Doctors are more willing to accept information that has its sources cited, even better if they are medical journals. Highlight important sections that you want to point out to your care team.
      -Be prepared for your doctor's appointments. Write your questions down and get answers to all of those questions.
      -You may need to be aggressive to get the treatment that is best for an Lupus patient. If you find yourself in the situation, doctors are more willing to accept information that has its sources cited, even better if they are medical journals. Practice what you want to say ahead of time just like you would a speech.
      -Remember, the doctors are working FOR YOU. If they are not willing to work with you, then fire them and find another doctor who will.
      -Journal your symptoms and INR readings along with Coumadin/Warfarin doses. Also take pictures of any rashes and discolorations that you may have. They may not be there when you see your doctor next.
      -Find a good therapist. Lupus is a chronic, life-threatening illness and it always helps to have someone impartial to speak to.
      -Learn the symptoms of a clot, heart attack, TIA, stroke, and bleeding. Knowing these could save your life! These are all possibilites with Lupus.
      -Inform family and friends on the symptoms of the above and tell them what signs to look for. This could also one day save your life!
      -Wear a Medic Alert bracelet that states you have Lupus. This WILL be important in case of an Emergency. Keep your information up to date on the Medic Alert website.

      The Do Nots:
      -Do not smoke. Quit if you do smoke.
      -Do not take birth control pills. They will increase your risk for a blood clot.

      -Continue to drink plenty water, exercise and watch your weight.
      -Make sure to take your Medication at the same time everyday. Consistency is important later on if the memory issues and brain fog are part of your symptoms.
      -Buy a Nurses Drug Book, it will help you learn about different interactions with your medications.
      -Join a support group. There are people out there who are going through the same thing that you are. It will help to share experiences with people who understand.
      -On long trips (flying or driving) get up and move around every couple of hours.
      -Strengthen your spiritual life. Whatever that may mean to you.

      Know that you are not alone. Your symptoms are real.

  24. QUESTION:
    How can my wife and I live in a clean safe house that we can modify as required by her illness?
    Also in other catagories
    We have no savings, and our credit rating is getting worse each month, because I am not paid enough even if I work OT, and everything is so expensive.

    We don’t live to excess, we need special food that she is not allergic to, we need to run air filters, we need to make co-pays for her appointments with specialist.

    I don’t dare change jobs because of the insurance.

    Can we just get rid of the rich people so the rest of us can get what we need.
    She has not been officially diagnosed. We know she is sick and getting sicker, but other than Celiac, we don't know if she has Lupus, RA or something worse. We believe it is lupus, but there is no help until it is official, even if they are just not ruling out the more devastating options.

    • ANSWER:
      It sounds like you are doing as much as you can. You can also maybe speak with your benefits person at work at maximize how you use your health plan. sometimes they have accounts where you set aside money to pay for medical expenses before taxes. You can also try to write or call the pharmaceutical company that makes the medicine your wife is on and ask if they have a program to assist you with the cost. You might also ask her doctor if he has any free samples of that medication or is there any other medicine that is less expensive.

  25. QUESTION:
    Lupus and having Children?
    I just found out that I have Lupus. Its not at a bad stage right now and I know throughout life I will have good days and bad days. My delima now is, should I think about having kids in the future? I would love to have kids, but what if I have Lupus really bad when I get older? It wouldn't be fair to my kids if I wasnt able to take care of them all the time. I would feel like I was neglecting them. If you knew you had Lupus, how would if effect your decision on having children?

    • ANSWER:
      A very important factor in your decison to have children is if you have APS or Antiphospholipid Syndrome. This is a secondary disease found in about 50% of Lupus patients. This disease causes blood clots to form and is believed to cause many of the miscarriages that are associated with Lupus. If you do have APS then you may be wise to seek alternative methods to having children, ie adoption, surrogacy..etc. Without APS a person with Lupus can have a fairly normal pregnancy. Of course it will be considered 'high risk' and you'll have to be closely monitored. Additionally, almost no babies born to Lupus patients are full term. It is also important to plan your pregnancy around your flares. An unplanned pregnancy during a Lupus flare could be terrible as many of the medications used to quell a flare are very damaging to the baby.

      You should be tested for APS immediately, regardless of if you have children or not because left untreated you are at an extremely high risk for DVT, PE, Stroke and Heart Attack. Then I would discuss your desire to have children with a high risk OBGYN who has delivered babies to women with Lupus. This will give you the most realistic outlook on your options.

      I wish you the best of Luck!

  26. QUESTION:
    Who has/knows a lot about Lupus?
    Im 17 years old,female and I had positive AnA and now have to be tested for lupus. Im very very scared. If I have it the docs are predicting a minor case of it,but im still very nervous? Do all lupus patients go on chemo? How do they treat a minor case? Will I lose all my hair and have scaring skin? Im sorry if I sound stupid im just scared.
    I know positive ana doesn't mean lupus,but I have symptoms of it.

    • ANSWER:
      A positive ANA does not necessarily mean lupus. You need further testing to determine that.

      Most people who have lupus (90%) are female. One out of five women have a positive ANA test, but obviously 20% of the female population is not debilitated with the symptoms of lupus. Many women with a positive ANA have another disorder or will never get sick with anything.

      Also, while some with lupus may require chemotherapy, others do not. Chemotherapy is, to quote the Johns Hopkins page on lupus, "the gold standard for the worst lupus." I think medications by mouth are much more common. And the chemo is not the long, drawn out kind of chemo you get with cancer. It's a little bit different and has a pretty good remission rate.

      Lupus used to be a life-shortening illness to the point where only 50% of people survived for 5 years after diagnosis. Today, about 90% of lupus patients are still alive 5 years after diagnosis. Lupus is not curable, but it is highly treatable. I wish you the best and I hope you feel better soon.

  27. QUESTION:
    does anyone have any information on lupus?
    i need to know what are the symptoms how does the Dr. test for it and what medication if any are you taking for it and anything else you would like to devulge be good:)

    • ANSWER:
      Lupus is short for Systemic Lupus Erythematosus (SLE). It's an autoimmune disorder, which means that the body's immune system is attack it's own cells. No one really knows what causes, but there are many theories, though none have been proven. SLE most commonly affects woman, and is found in African Americans more than Caucasians. Symptoms include fever, fatigue, joint pain and swelling, butterfly rash (a red rash across the nose and cheeks), Raynauds phenomenon (fingers and toes are extremely sensitive to the cold), mouth sores, and chest pain. Not every person with SLE will get all of these symptoms. SLE is diagnosed by a blood test called an ANA (I forgot what it stands for). On an interesting note, people with lupus often have a false positive for a syphilis test as well. Lupus is pretty much diagnosed based on criteria. I think there's 11 and you have to have 4 or 5 of them to be diagnosed. If you have lupus, you should see a rheumatologist. They will be very good at managing it. If it's left untreated, it can cause complications. This is because your body is attacking healthy tissue. It will attack the lungs, kidneys, heart, brain and blood. They will usually treat it with NSAIDs (advil), antimalarial drugs (I have no clue why) and corticosteroids (to reduce inflammation). If the lupus is severe, they will use immunosuppressants (drugs that suppress the immune system). These are the same drugs they give transplant patients to prevent rejection. They suppress the immune system, so the patient is at really high risk for infection.

  28. QUESTION:
    How would you feel if none of your relatives even offer to donate one of their kidneys to you?
    I have a kidney failure and the waiting list for a kidney where I live can take between 7-10 years longer for me since I am Type O positve. For now I've been getting dialysis treatment 4 times a week and am getting worse since now I also have Lupus. One of my sisters had hers tested but when UCLA called her to let her know that she's a match, she never called them back. My Dad and sister would tell people how sorry they feel for me and that they want to donate their kidney but it's all talk. When they needed things from me, I was always helping, now that I need help, they are all gone. How would you feel about this situation? I have 3 kids and my husband is not a match so he can't donate. I've decided to stay out of my familys life for now because it hurts to know that no one seems to care.
    My sister has no kids and she can no longer have one per MD because of her age. No husband either. But everytime she needs someone, it is who is there for her.

    • ANSWER:
      I would be CRUSHED to know that a family member of mine was a match and did nothing to help me! I was always taught that your family are the only people you can count on! I am
      O-something, but I drink twice a week, so I doubt you would want MY kidney!!! But I would GLADLEY give it to you !!!
      When it comes right down to it, blood is all that matters! You turn your back on blood, no matter what the circumstances, shame should come to you, TENFOLD!!!
      I am SO SORRY you have to go through all of this!!!
      Worst comes to worse, if they will take it, you can have one of mine!!!
      Good luck to you and Godspeed!!!
      (Seriously, I would do it!!!)

  29. QUESTION:
    How would i know if i have a ovarian cyst? Have not had a cycle for?
    7 months and I am wondering if having lupus anticogulant would be the cause of some it, I have had four children. Lost the fourth one last year due to finding out i have a blood problem.

    • ANSWER:
      Symptoms of ovarian cysts can include:

      * Pelvic pain - constant, dull aching
      * Pain with intercourse or pelvic pain during movement
      * Pain during bowel movements
      * Pelvic pain shortly after beginning or ending a menstrual period
      * Abnormal uterine bleeding (change from normal menstrual pattern)
      * Longer than usual menstrual cycle
      * Shorter than usual menstrual cycle
      * Absent menstruation
      * Irregular menstruation
      * Abdominal bloating or swelling

      Often no symptoms are noted and ovarian cysts are found only be routine examinations. Usually birth control pills may be prescribed to help establish normal cycles and decrease the development of functional ovarian cysts.

      Simple ovarian cysts that are larger than 5-10 centimetres and complex ovarian cysts that persist should and will usually be surgically removed via laparoscopy (minimal invasive surgery).

      I would recommend that if you think you have an ovarian cyst that you consult with your doctor/gyno about this and ask them to answer any questions or concerns you may have.

      I have suffered from many bilateral ovarian cysts over the past 10 years and have surgery 2 times to have them removed (it wasn't anything too serious).

      I hope this helps to answer your question. Good luck :)

  30. QUESTION:
    Lupus questions?
    If you are diagnosed with lupus, since it is incurable, does it mean that you are going to die? I know they can treat the symptoms, but how long can you live with it for? Is it contagious in any way? My girlfriend was just diagnosed with it...can I get it from kissing her or putting creams on her rashes or anything like that?

    These questions, probably sound pretty ignorant, but I guess that's why I'm asking! Any additional information anyone might have would be appreciated! thanks

    • ANSWER:
      Lupus is a non contagious autoimmune disorder. One thing you might want to look into... Most modern medicine techniques only treat symptoms not causes. There is a lot of belief out there that most auto immune disorders and other non pathogen diseases are the result of being exposed to chemicals in our modern food supply or even because of the foods we choose to eat. Changing the diet can cause drastic improvements in these diseases. Check out www.mercola.com and also the book "the metabolic typing diet" by William Wolcott.

  31. QUESTION:
    Lupus and grave's Disease ?
    I was recently diagnosed with Lupus and Graves Disease. What I dont understand is how can I have Grave's disease if I had a partial thyroid removal almost 10 years ago. Is this normal? I have been really feeling sick off and on for the last 3 months with the usual symptons of Lupus. Im really scared and don't know what to expect. I just started treatment but I was told it will take 3-6 months to take effect. Does anyone have any suggestions. I feel so helpless and tired all the time.

    • ANSWER:
      Graves disease is an auto-immune disorder against your thyroid. You still have part of your thyroid.
      Lupus is also an auto-immune disorder and unfortunately, those having one are more susceptible to developing another.

      While I don't know much about Grave's disease, I know some about Hashimotos-which is the hypo version (yes-auto-immune too.) Even with "total" removal of the thyroid (amongst Hashis), antibodies can still be present.

      You will need medications to get yourself regulated and it will take time. You need a good support base. I am aware of good thyroid forums and Lupus forums. Find these places and speak to those who truly can understand your conditions, who may be able to help you out.

      For Lupus, this looks like a nice forum: http://www.thelupussite.com/forum/

      For thyroid in general: http://thyroidhost.proboards30.com/index.cgi

      Perhaps you can find one dedicated to Graves.

      It's bad enough to have one A.I. condition, much less two. I wish you the best.

  32. QUESTION:
    Would Like To Meet Others With (SLE) Lupus....?
    I'm 19yrs old girl for the past year I have been sick with both pneumonia and food posiong , among this I'm still sick and feel bad finally I found out that I have (SLE) Systemic Lupus Erythematosus or Lupus for short ... I kno there is no cure but medication, but my main concern is that I want to know how my lifestyl will be from now on and how if possiable will I be able to live a normal life...So I'm asking any one with (SLE) around my age or older and I would really like to talk to some women who have had it for a long time as well to plz contact me , I just need to understand this disease more thank for your time...

    Feel Free To Add Me At: bluebabby91@yahoo.com
    thank you once again.

    • ANSWER:
      Hi sweetie, well Im a bit, well old enough to be your mom older then you, however I own a lupus support group, and we have two teen girls whos mothers are in the group, one is 18, the other 15, both post occasionally, and I talk to them on the phone, and I belive they talk to each other and email each other. ok about your Lupus. I don't know how severe it is, but it can go from mild to very severe. Mine is moderate to severe. Id say usually moderate. Ive had it since my teens. Im now almost 40, have a 21 year old, and a 13 year old. right now Im coming out of what is called a flare, and going back to my normal activities. Since I dont have any major organ issues except for my liver, which I do have some control over, I can lead a pretty long normal life.

      I also do not know how you handle the sun, some can, some can't but if you can't, you really do need to avoid it, because if you can't it can bring on a flare. If you have a milder form, you can still go to college and work. I was able to do so until around 30. I may have had periods of being able to return to work, but Im married, and he makes decent money, so we saw no real reason for me to.

      Though most people find they have to modify their lives in some ways I know for a fact you can still have one. Its,all about learning about what your bodies limits are, knowing when it needs rest, when it needs activity, but when to stop, feeding it a decent diet, doing thing you like, going to scheduled dr's appoitments, taking perscribed medications, and knowing when your getting run down (low grade fevers, swollen glands, overly tired, he small stuff). I have been forunate I found a great rhuemotologist 10 years ago who I can call anytime, and she always calls me within 2 hours. She allows me to explain in full whats up, and allows feedback in what medication that may be most useful.

      honey, this is not the end of your life. The older teen I know, while being rather ill, still gets boys like crazy, goes out, etc, just finished HS. The younger one is looking foward to getting her drivers licence, so you can still have your dreams, and a love life. Life dosent end with this diagnosis, you just have to be clever enough to stay one step ahead of it, but you will be ok.
      good luck
      chris

  33. QUESTION:
    Could I have Lupus?
    have many symptoms of Systemic Lupus, and AutoImmune diseases run in the female side of my family...for instance; my Mother had Fibromyalgia, my Grand Mother has Arthritis, and my Great Grandmother had Lupus (she died), and that is as far back as I can trace...I will not go into my symptoms right now, but I will say I have just about every symptom and sign, beginning almost 2 years ago (I am now 15). I orginially though I had arthritis and a gastrointestinal disease, so I have been seeing a gastrointestinal doctor who has put me through many tests, and nothing shows except some inflamation, and swollen glands/lymph nodes...she is referring me to a rheumatologist (I know I should have seen one in the first place).

    How common would it be for me to have Lupus if AutoImmune diseases run in the family, and my Great Grandmother had Lupus, and I have 75%+ symptoms and signs?

    My Sedimentation Rate (Sed-Rate) has been continuosly increasing, and I do not have food allergies.
    I have my thyroid checked out on a regular basis, because everyone in my family, and relatives has Hypo/Hyper-Thyroidism and even Hoshimoto's except me and my Dad...I do not have thyroid problems that are known, thank you for your advice :)

    • ANSWER:
      It's very possible for you to have this, especially with your symptoms . Genetics play a big role in what diseases we get. With your Sed Rate increasing you have quite a battle going on with inflammation. It's possible that you have Fibromyalgia as well.

      I've written an article on Fibromyalgia, which can help you learn more about how to take care of yourself. The methods in it are equal to what you would do with lupus.

  34. QUESTION:
    w/ Lupus: have tonsils removed now??
    I've had problems with my tonsils my whole life. But for some reason, no pediatrician ever removed them. Then the problems stopped for a while and during that time I was diagnosed with Lupus when I was about 14. Now, I'm 21 and starting to have problems with my tonsils again. I desperately want to have them removed, but since Lupus is an immune problem and the tonsils are part of the immune system, I am afraid my Lupus will start to get bad after the tonsilectomy. I am having a hard enough time getting new Doctors I'm seeing to monitor my Lupus for changes. I don't want to make it worse.

    Has anyone with lupus had their tonsils removed as an adult and after their lupus diagnosis? If so, how did it effect you? Please let me know. I want to make the right choice in this matter. And I don't want my lupus condition to get worse. Thanks!

    • ANSWER:
      Your tonsils cease to be a big part of your immune system by the age of 7-8 years of age. That is why they start to atrophy between 7-12 years of age. They are there to help "protect" you when you are younger. By 21 years of age they are merely a nuisance if they are large. Having them removed will not effect your immune system. Just to be sure though, the indications for surgery are, peritonsillar abscess, 4 infections in 6 months or 6 infections in 12 months, Obstructive symptoms such as drooling or sleep apnea. Get referred to an ENT doctor and they will tell you whether you need them out. Good luck

  35. QUESTION:
    Can hepatitis cause lupus or lupus cause hepatitis?
    I was told I have lupus by my dr and then I saw him not long ago and I said how tired I am ALL the TIME! He said that he wanted me to be tested for hepatitis A, B and C. So.. I am, but can one cause the other, or make the other worse? I have a friend that wants me to treat my lupus and possible hepatitis naturally, but I don't know if It would work and I dk what to do. I haven't got the test done yet, but I lost alot of weight and got sent to the dr and he said back then I might have lupus then last year I saw him later in the year again and he said I have it but then I saw him this year and he said since I'm tired all the time to get this test done, I heard if you have hep and lupus that if you try to treat the hep that it can make lupus worse. And my friend wants me to get this stuff treated naturally. :/ I jus don't know what to do and Idk if either way is good. I'm currently not on any medicine for lupus. Ty for your help. Happy Resurection Day and HUGS :) )
    Ohh.. I guess cuz my Dr. thought it was mild. O_O I have no idea. Ty for ur help though=)

    • ANSWER:
      Hepatitis is inflammation of the liver. It is caused by a virus. It is contagious. Lupus is an autoimmune disease. The two are not related. When you have lupus, you do have a harder time fighting infection.

      Absolutely do not let your friend treat either disease. You are gambling with your life. Some things that are "natural" actually make lupus worse. I have to wonder why you are not on medication for lupus. With lupus, you can develop permanent organ damage and you won't have symptoms until you are in serious trouble.

      It is not natural for your immune system to turn against your body. That's what happens in lupus. If you are going to look at the larger picture, you should eliminate all toxins from your food, water, clothing, personal hygiene products, carpeting, paint, soaps, atmosphere, etc. You can reduce the body burden but you can't eliminate it. Also, exercise and stress reduction are essential to managing lupus.

      It is your body and your life. Don't be swayed by pressure from people who rarely have solid scientific evidence. Ask your friend for articles that report on double blind placebo studies with good sized popluations and that are published in peer reviewed journals. You won't get any. You will get anecdotes about somebody who got better. But were they like you? Same age? Gender? Medical history? Combination of conditions? Same lifestyle? Same genetics?

      Remember that hemlock and arsenic are natural, and they can kill you.

  36. QUESTION:
    Diagnosis of lupus?
    Please do not give me information that you got from google. I know what lupus is. I know what the symptoms are. I am going to the doctor soon. I'd prefer that you answer only if you have lupus or you are a health care professional.

    How is lupus accurately diagnosed? Should I see a rheumatologist to ensure an accurate diagnosis? Does it sound like I may have lupus?

    I'm a white 17 yo female. I've been having moderate to severe knee pain and sporadic episodes of breathing problems, pleuritic chest pain, and random joint pain esp. in the hands, wrist and hips for many years.

    7 years ago I was diagnosed with lupus with a blood test (not sure what type). Saw a different doc who gave me another blood test (think it was a CBC) and she told me I did not have lupus. Around the same time I was diagnosed with recreational asthma.
    I was diagnosed with osgood-schlatters about a year ago. I think this definitely played a role in my knee pain, but I think something else is causing it too. Children usually only have pain from osgoods for a couple of months and I've had pain for well over 7 years. Also, osgood's pain very, VERY rarely continues after the growth plates of the bone are close, but I recently had X-rays done on my knees after a car accident and they showed that my growth plates are already closed, yet I'm still experiencing frequent bouts of pain.

    • ANSWER:
      Well diagnosing lupus can be tough. Most of the time the diagnosis is based on physical and historical findings (your symptoms, lab values, etc.)
      A CBC can determine whether anemia, a low white count, or a low platelet count, which are common with lupus, are present. There are 11 diagnostic criteria which are used to determine whether somebody is likely to have lupus. If you have at least 4 of the 11, there is a strong chance that you have lupus:
      1)A face rash that is butterfly shaped and covers the bridge of the nose and spreads across the cheeks
      2)A scaly rash that looks like raised, scaly patches
      3)A sun-related rash that appears after exposure to sunlight
      4)Mouth sores, which are usually painless
      5)Joint pain and swelling that occurs in two or more joints
      6)Swelling of the linings around the lungs or the heart
      7)Kidney disease
      8)A neurological disorder, such as seizures or psychosis
      9)Low blood counts, such as low red blood count, low platelet count, or a low white cell count
      10)Positive anti-nuclear antibody tests, which indicate that you may have an autoimmune disease
      11)Other positive blood tests that may indicate an autoimmune disease

      There are a number of blood tests that can be done to determine wheter you have lupus, but none of them are 100% sensitive. The most sensitive is called the Anti-Nuclear Antibody test (ANA). A positive result generally suggets lupus, especially if your symptoms are highly suggestive of lupus.
      There are some other common antibody tests that can be used:
      Anti-dsDNA
      Anti-Sm
      Anti-ribosomal P
      Anti-RNP

      Other blood tests that may be useful are tests that look for general inflammation in the body, like your Sedimentation Rate and/or CRP, both of which may be elevated.
      Your C3 and C4 levels may be checked, too. They're usually decreased in patients with lupus.
      Based on your symptoms and lab results your doctors may also want to do some imaging tests.

  37. QUESTION:
    How can I treat lupus symptoms without any dangerous medicines?
    I got lupus over the summer so now I have to go to school with lupus. I've been waking up in the morning felling pain in my heels when i put pressure on them. I also fell nauseous when I eat more than I want to. I also cannot stretch my arm out all the way without my elbow hurting, I can only stretch it about half way. I got tapered off of prednisone about two weeks ago so I am no longer taking prednisone and now I take 200 mg of plaquenil daily and that medicine isn't supposed to take effect until about a month (doctor said plaquenil takes a very long time to take effect) My doctor also said it may be a different kind of lupus because i only have four symptoms which are joint pain muscle pain appetite loss and fevers. I forgot to mention i was a 12 year old male since lupus is more common in females. My family including my extended family and ancestors also have no evidence of lupus. I also try to exercise in PE at school every day but become short of breath a lot faster than when i didnt have lupus (doctor also said it mightve been because i was inactive with absolutely NO exercise for a month. And also if you know about something that could open my appetite please tell me about it. I have had absolutely NO medical problems in my entire lifetime other than a couple of colds flus and this lupus. So if you know of any herbs or herbal teas that could help me please tell me thank you very much and i forgot to mention i got a cat 6 month before the symptoms started showing up

    • ANSWER:
      Hi, My name is Jenn Summers Im a Bio-nutritional Practitioner Your health problem is not unique to us. We address the cause of your health problem. It's all about Cell Health. Go to www. sharcare.usana.com
      when the cells in the body get all the bionutritionals they require the human body can maximize its ability to defend, prevent or stop ddebilitating disease and chronic pain. The sscienceof Bionutritional Medicine is sixteen years old and presently is not taught at any of the medical schools in the USA
      There are many MD's in the USA starting to use Bionurititional in there praactice. Presently we habve over 120 protocals.There are no side effects with this all anturaal patented products. The Bionutritional are pharmacutical grade and are in the Physicians Desk Guide, PDR. Scripts can be written by your Doctor so that your health insurance providercan reimburse you.
      Call me at 440.688.4051 and ask for Jenn . Iat that time I will give you more details and set up a Free Health Assesment to get you started on this new and exciting 21 st Century Health Sceince..Improvemment should start in a week or so with the Lupus protocal.

  38. QUESTION:
    Anyone know how to get a gastric Bypass operation through medicaid?
    I recently had 2 go on disability due to the diagnosos of SLE Systemic Lupus, I desperately need a gastric bypass after gaing tons of weight since the diagnosis & Steroid treaments. Prednisone blew me up to 300+ pounds. This surgery would really save my life & make it easier 2 live with the pain of SLE & all of the numerouse joint afflictions effected. No one should have to live life in so much pain everyday, and no one should have to be trapped by there body due to a drug side effect. If anayone knows something on how a poor 23yr old woman can get a new lease on life through this surgery Gastric bypass please help! I am on disability, I barely have 2 pennies 2 rub together, how can I get this life saving surgery???? Please help me I want to live!!!

    • ANSWER:
      "Yes, Medicaid can cover it, however, the patient has to be willing to maintain a certain lifestyle for 6 months to 1 year to be approved. These changes might include: not drinking any soda pop, no alcohol, etc."

      "Usually you have some medical problems when obese so i am sure if u work with the doctor they will help you get it covered by medicaid. also check on side effects because you may decide this is not for you."

  39. QUESTION:
    How can I lower my risk of skin cancer or other skin related conditions?
    After years of preventing sunburns and taking good care of my skin because I'm well-informed about the damage the sun does to it, I still got a severe sunburn from a terrible mistake of overexposure to the sun damaging rays. Now I'm really worried because my risks of getting skin cancer or other skin diseases is pretty high since I have a grandfather with skin cancer, an aunt with psoriasis, and another aunt with lupus.

    The sunburn I got was real bad, at first it was red and occassionally I experienced some chills. After a few days blisters appeared and then all the skin peeled off. The damaged skin was on my thighs, my belly, my chest and a little bit of the forearms.

    Please let me know how I can, if its possible, to lower my risk of skin cancer or other skin diseases in addition to the basic one of staying out of the sun and don't forgetting sunblock.

    Thanks a lot!

    • ANSWER:
      I was looking for relevant questions to answer and I saw yours. Usually I don't bother with questions that already have several answers but you have been unlucky so far, with one sensible answer and two bad ones.

      You know already about sunblock. About the rest: your skin has enzymes that have already repaired the damaged DNA. True, some mutations may have occurred but that does not mean that cancer will happen. Maybe, as you and your cells age, mutations will accumulate and lack of cell control of cell division will happen in one or two cells, leading to cancer. What to do?

      1) Use sunblock to decrease the danger of further damage to DNA
      2) Use antioxidants, to trap free radicals before they do damage
      3) Avoid chemicals that produce free radicals, such as benzoyl peroxide, very common in anti-acne products
      4) See a dermatologist if you see any strange looking moles on your skin.

      Apart from that, don't be scared, because being scared is not very useful and it is just another way of wasting your time.

      Good luck and best wishes

      Hannah

  40. QUESTION:
    Lupus Help!!!???? Ways to Diagnose?
    My mother is diagnosed with Lupus and around the age of 15 I started showing signs of it.

    I was diagnosed with anaemia, severe depression, and arthritis all at the age of 14. Along with other female issues. I also have asthma.

    The doctor I had did some small amount of testing for Lupus but basically lost interest and told me that it was in my head. He swore up and down it didn't run in families and I was fine.

    More recently I've started to become incredibly ill. My body aches so bad it's hard to move, I'm so depressed that I can barely live with myself, which is also accompanied by panic attacks. About 9 months ago at 21 I was diagnosed with high blood pressure which has been gotten under control. I'm having surgery for endomitriosis next month. Along with the fact that my hair seems to be falling out.

    I'm wondering if maybe I should start looking into being checked out for Lupus again? I don't know much about the testing of it or how to go about it in the UK?

    • ANSWER:
      go back to your doctor and ask to be refer to the nearest lupus clinic.
      for some test.there are a lot of test that will show if you have lupus.i was diagnosed with all kind of things before i was diagnosed with lupus[sle] best of luck

  41. QUESTION:
    please answer(lupus)?
    Today the doctor said I have mild lupus I looked at the symtoms of lupus I have non.the ana is a 294 I think,all I know is when I stand up from sitting there is a sharp pain in my leg then it goes away,I looked up lupus and i can't understand how I have a mild case with none of the symptoms except for this blood work,should I get a second opinon.I'm really confuse and she gave me plaqunil.I would think if you have lupus you just have it how can you have a mild case and no symptoms,thats like being mildy pregnant I would think.I don't have any pain,or tired or rash,my mom says I just need to thank that I don't have any bad pain or other symtoms.

    • ANSWER:
      I am concerned by that diagnosis because it doesn't sound like the data is there to support it. I'm not a doctor, but I have studied some aspects of medicine and am helping to monitor a real SLE patient.

      Here's part of why I think that may be a hasty diagnosis:
      "The 11 criteria used for diagnosing systemic lupus erythematosus are:

      malar (over the cheeks of the face) "butterfly" rash

      discoid skin rash: patchy redness that can cause scarring

      photosensitivity: skin rash in reaction to sunlight exposure

      mucus membrane ulcers: ulcers of the lining of the mouth, nose or throat

      arthritis: two or more swollen, tender joints of the extremities

      pleuritis/pericarditis: inflammation of the lining tissue around the heart or lungs, usually associated with chest pain with breathing

      kidney abnormalities: abnormal amounts of urine protein or clumps of cellular elements called casts

      brain irritation: manifested by seizures (convulsions) and/or psychosis

      blood count abnormalities: low counts of white or red blood cells, or platelets

      immunologic disorder: abnormal immune tests include anti-DNA or anti-Sm (Smith) antibodies, falsely positive blood test for syphilis, anticardiolipin antibodies, lupus anticoagulant, or positive LE prep test

      antinuclear antibody: positive ANA antibody testing "
      http://www.medicinenet.com/systemic_lupus/page3.htm

      Besides the fact that having an incorrect diagnosis can pose problems (esp. if prednisone becomes a medicine of choice to use), it means the actual problem remains undiagnosed and untreated.

      You said "the doctor" said you had lupus--is he actually operating within what he's really familiar with? Having had to haul my parents around to many a specialist I know that when I took my mother who probably had just a cold to her regularly scheduled cardiology appt. and my mother asked the cardiologist if she had a cold, the doctor replied, "I wouldn't know. I do cardiovascular. Period. Don't deliver babies. Don't do skin. Know nothing about that stuff."

      Hopefully she FORGOT about that stuff, but you get the point. The field of medicine has exploded--so much we know, so much we guess at--and no matter how bright or intuitive A doctor is he can't accurately diagnosis EVERYTHING.

      What if it turns out you have something cardiovascular? Inaccurate SLE diagnosis will not help, could hurt. I'd ask to be referred out for a second opinion.

      Good luck. I hope it turns out to be a short-term non-significant problem.

  42. QUESTION:
    my dad tested positive for lupus what should i do?
    Recently my father, 52, has had trouble sleeping so he decided to have a physical and blood test. There were no results for his insomnia but the doctor said that he tested positive for LUPUS. The doctor decided to do blood work 1 more time before sending him to a specialist and once again he tested positive for lupus.

    My dad is a really healthy guy, he really is, its just lately hes had trouble sleeping and has been fatigue

    How serious is lupus? How worried should i be? i understand that it destroys healthy tissue and if it destroys tissues you need to survive it can kill you. My dad said that everything else tested fine, his heart, his kidneys, everything else was fine. What can i do to make sure he doesn't have a shortened life span? does lupus ALWAYS effect the life span? or only on severe cases?

    *please don't answer with a LINK to a website. i want authentic answers, if any of you have experiences or know someone that was diagnosed with LUPUS at age 50+ please share*

    • ANSWER:

  43. QUESTION:
    Fibromyalgia or Lupus?
    Okay, I keep reading everywhere that Fibromyalgia does not react to Prednisone. I also know that you can have an autoimmune disease on TOP of Fibromyalgia. I have all of the symptoms of FM and all of Lupus... It's possible for me to have both, correct?
    But I also take Prednisone and feel 50X's better on it! But my Rheumotologist is convinced it's just Fibro because of what my 2 year old tests say about Lupus. I am looking for an Internist, but I don't know what to expect and if they will do the tests needed....

    I think basically, i am trying to ask: Will prednisone help me if I JUST have Fibromyalgia? and How can I find out if i have Lupus AND/OR Fibro?
    I know I should consult my Dr, but when you are flat out broke and living with your parents, it's a little difficult to be able to go to Dr appointments. They expect to be paid on the spot. Besides, I've been to at least 12 that I can count, and they all have no freakin clue what it is. I keep getting test after tests and they have no answers.
    Also, I would not be happy if it was Lupus, but I would be happy if we could just figure out SOMETHING

    • ANSWER:
      real fms will not respond to prednisone

      many autoimmune conditions will respond some a little-some 50% --some almost completely

      who gave you the prednisone? the rheumy? he obviously has no clue if he's saying fms

      tests can be false negative--this is a big issue with lymes

      i'm assuming you have gotten a lupus rash?

      you may not have fms at all if you are responding to the pred...you really need to find out what you have that is responding...

      AND then reassess to see if you really have fms

      fms is highly over diagnosed by these clueless docs that call it a general label for pain..

      you cannot be properly diagnosed with fms until any other conditions are addressed--this doesn't seem to have been done

      it is possible to have both--but i am leaning more towards something like lupus as possibly the only condition

  44. QUESTION:
    Rheumatoid Arthiritis, + lupus antibodies?
    I was diagnosed with RA a year and a half ago (I was 20, I am now almost 22) At first my family doc did not know what was causing my pain, so I was sent for multiple tests, RA came back positive, and so did a lupus test, I was then sent to see a rheumy, She had told me about the +lupus antibodies but how only the single test came back positive and I was just to be on the look out for it. Well now my rheumy has moved and I am waiting for my referral to a knew one to go through. However, my flairs are 10x as worse as they were before my rheumy moved and I am always sick (small fever, headache, stuffy nose, queezy, dizzy, and even more fatigue than normal). I am worried that these are signs of the Lupus developing more and I have no one to look! I will be asking my family doc to put a rush on the referral, but how can I try to feel some what better while I wait. Im having numb feet and hands every morning and some mornings I can not even open my hands or get out of my bed, I am a single mother of a 3 year old, I need to be able to get up if needed! Any suggestions on what to do in the meantime!!

    • ANSWER:
      1. Take a hot bath or shower in the morning to help relieve stiffness.
      2. Take NSAID's like ibuprofen (Advil) or naproxen (Alleve) to relieve inflammation and pain. If you have had an ulcer, then you might want to be cautious with these.
      3. Take frequent breaks. Sit down or put your feet up. If you push, you will make everything worse.
      4. Take a good multi-vitamin.
      5. Take 1,000 mg fish oil a day. It helps reduce inflammation.
      6. Avoid processed food when possible.
      7. Even though you feel tired, take a least one short walk every day. You will find that moderate exercise reduces fatigue, pain and inflammation.
      8. Feel free to take a hot bath or shower more than once a day. If it makes you feel better, do it.
      9. Re-evaluate your priorities.
      10. Say no to all unnecessary requests. Love your neighbor as yourself implies that you love yourself that much FIRST!

  45. QUESTION:
    Chemotherapy and Lupus.?
    I don't know what kind of Chemo I will be starting. I think it starts with an "H" but I have no idea. Please help me- possibly from experienced lupus sufferers. I have very severe lupus:
    I have been hospitalized once and nearly hospitalized many other times, and I have only been diagnosed with systemic lupus three months ago.
    I am fourteen and a female and have already tried numerous medications, but none of them have worked. The doctor says that one of my only chances that may work is chemotherapy. I want to know all of the side affects. Like:
    *Will I be more nauseous?
    *Will I loose all of my hair?
    *How bad is it... does it involve more needles?
    *How long will I live now, if none of this works?
    Please also give me some personal advice. Do not be afraid to spill the cold hard truth. If the chances are that I will die in 4 years, tell me. I am no longer afraid of death. I accept it. I just want some help of knowing how rough the road is going to be, if I die. But I hope I don't. Thank you.

    • ANSWER:
      http://www.hopkins-arthritis.org/arthritis-info/lupus/

      Check out this link. It is from Johns Hopkins and gives you a lot of information about your disease. If you scroll down to almost the bottom there is a section on chemotherapy treatment for lupus.

      Best wishes and I hope you will feel better after this.

  46. QUESTION:
    Is it reliable to test for lupus with only a rash?
    I have a butterfly rash on my face which came on suddenly last week. I am 23 years old. It's not particularly erythematous (red), mainly slightly raised and bumpy. I initially thought it might be an allergic reaction, so I changed my face wipes and moisturiser, and have stopped wearing make up for the time being. Unfortunately, this doesn't seem to have made any difference. It is not itchy or painful, is not oozing or bleeding.

    Having looked into it further, it seems that it could be rosacea; however, the fact that I am below the age of onset for rosacea, and the fact that the rash came on suddenly, makes me suspicious of lupus.

    I don't have any other symptoms of lupus, but apparently the rash can precede lupus by weeks or months.

    I will be seeing my GP soon. I would like to ask him to test for lupus, but I don't know if the tests would be accurate while I don't have any of the 'acute' symptoms (e.g. fever, malaise, etc). Does anyone know how accurate the tests for lupus are before its acute onset?

    Thanks!

    • ANSWER:
      Acute means it comes quickly. If you have lupus there will be a HBC, a blood test, and be able to tell u in a few days.

  47. QUESTION:
    Information/Advice on Lupus?
    I am 18, and I was just diagnosed with SLE Lupus. I'm going to see a Rhuemotologist in about a month but I was wondering if anyone could give me some info. I have been researching it but it's kind of confusing and I was wondering if anyone had any experience with living with Lupus or someone you know has it.

    My family doctor sent me to an internal medicine doctor because I had been experiencing severe chest and joint pains and couldn't figure out why I was always tired and feeling these pains. And after the second doctor did nuclear tests and ct-scans and tons of blood work and other tests, combined with my other symptoms he diagnosed me with lupus.

    I just am not sure what this means for me, like how much my life is going to change and what I should do.

    Thank You for Any Help! :)

    • ANSWER:
      Hi Amy,

      Me too, was diagnosed when I was 18 years old with joint pains and blood clot. Now I'm 41.

      Life is going to change no matter we like it or not, therefore we just go through life with perseverance and remember to stay happy...it's vital in order to stay healthy. No matter what, keep in mind to stay emotionally positive, this is what I've found to be very important and beneficial to our health especially in fighting "lupus" which can be trigger by stress or emotions. Secondly, is "exercise", this is essential for the physical well being after we've taken care of the emotional aspect.

      Certainly, when the mind and body is in the right conditions, then we will be able to put off some drugs with long term and irreversible side effects.

      There sure will be ups and downs in life even though with people without any illness.
      Live life to the fullest and just go through the ups and downs without being affected negatively by it.

      We, lupus patients still can do a lot things and lead a normal life, just be patience and be knowledgeable on the disease, it helps.

      That's my experiences I wish to share with you, may you recover soon and be well and happy. :)

  48. QUESTION:
    been very ill- could i have lupus?
    for the last year ive been really sick. ive had numerous test done and been put on a hole mess load of medications. but nothing seems to help and im just getting worse. im in constant pain and cant hardly eat. my entire stomach hurts and my food doesnt digest and i have no bowel movements. it hurts to empty my bladder and my lower back feels like its breaking. mostly i get pains under my ribs and on my sides. but i also get shooting pains every where at different times.

    well ive been doing a lot of research on my own because my doctors cant seem to find out whats wrong with me. and i came across lupus. all i know about it now is its an auto- immune disease and it can affect your organs and make you lose function of them. so i wondering if i could have it. i dont have a history of any gastric problems in my family except acid reflex but ive been tested for that.

    what are the symptoms of lupus? how do you test for lupus? how do you treat lupus?

    i just what to know as much as possible about lupus or any other illness that can cause my symptoms. if any one could give me some information i would really appreciate it!

    thank you

    -sam

    • ANSWER:

  49. QUESTION:
    Can some people with lupus call me please,I have so many ?'s.?
    Someone said they do not think I can wash my blood,cape aloe ferox it cost 0 it's like a detox.look up the site it says it can help with lupus(wash my blood).Anyway if you have lupus can you call me I have so many ?'s.1-347-698-7580 my name is Kim.What natural product will help what vitamins will help,I think if I take a lot of vit C,and iron it might help I don't know I'm hoping for a miracle,I have asthma,I catch cold so easy,I just can't deal with more sicknesses.I pray for me not to have lupus.I don't know how to work this site so i can e-mail people,My e-mail is grenadas_finest_andrew@ yahoo.com maybe someone can talk to me that way if they don't feel comfy calling.Thanks God Bless

    • ANSWER:
      Have you tried to go on WebMD or any other site & look up the info? There are online support groups, groups at some hospitals & so many places now that you can get reliable fast info. I have friends with lupus & they started at the above places. I will let them know you're on here. You might also try Mayo clinic website or other reputable places to find advice. I will pray for you. Hope this helps some.

  50. QUESTION:
    Anyone know much about lupus?
    My grandma has lupus. She hardly had any problems with it other than her hands would get cold and purple and sometimes she would get a little swelling in her feet.

    Her husband of 55 yrs died Oct. 30th of this year. Since then her lupus has went crazy. It's destroying her liver. She holds fluid around her lungs. Her heart is enlarged due to the fact it has to work harder because of her lungs.

    The Doctors just tell my mom to enjoy her time with her. They don't say how long she has and the aren't hardly treating her other than a few meds and oxygen at night.

    She is also having stomach pain and that doctor is going to decide soon if they even want to bother checking to see if her stomach is messed up too.

    How long does she have? I mean an estimate? Is this how lupus usually goes? nothing for years then everything all at once?
    mary boo she has only ever really had symptoms 8 and 9 and possibly 5. Hers is attacking her organs now.

    • ANSWER:
      Stress makes lupus flare. Losing her husband is a HUGE stress.

      Fluid in the lungs and heart as well as inflammation of the lungs are very common.

      The issue with the hands is Raynaud's Phenomenon. Many of us have it. Swelling in her feet could mean several things and should be brought to the attention of her doctor.

      She needs to be under the care of a rheumatologist. If she does not have one, your family might want to look into one.

      No one can tell how long she will live. When I was 51 years old in 2003, I had early stage kidney failure, fluid in the heart, fluid in the lungs, inflammation in the lungs, bone marrow failure that caused severe anemia and constant fevers. The docs told my kids I would most likely not live. I work full time again and am writing to you from a hotel room where I am on vacation. I practice yoga, can do an hour on an elliptical trainer and manage an hour long zumba cardio class. The docs don't always know. Lupus affects each person differently.

      The reason it is so severe now is the stress. She may feel that without her husband her life is over. A good grief counselor might also be useful.

      Good luck and I will keep her in my prayers.


How To Tell If I Have Lupus

TMJ is a common health problem that affects areas such as head, neck, shoulders, jaw and the back. It is accompanied by pain and discomfort in the jaw. TMJ is basically caused by an inflammation in the jaw, which eventually causes a TMJ symptom you might or might not notice.

Some patients do not feel any symptoms of their TMJ condition at all. However, if a TMJ symptom is found, it is important to find treatment right away, since TMJ does not only affect the jaw. If you'd like to know whether you have a TMJ symptom or not, go through some of the common TMJ symptoms.

TMJ Symptoms

One of the first things you may notice when you have TMJ is feeling a particular soreness in your facial muscles or jaws upon waking up in the morning. You may find that you have a hard time opening and closing your mouth, or biting properly. These conditions make it especially difficult for you to chew or eat certain types of food. TMJ can also impair speech to a certain degree, as the jaw tends to lock or experience too much tension.
You may notice that, along with the impairment of physical function are sounds you may notice in your jaw like clicking and popping. Grinding sounds can also occur as you start to grind your teeth to find a good bite. Grinding can occur at night when you are sleeping, so if your roommate or partner tells you about this the next day, then may have a TMJ symptom.

The Visible Symptoms

Visible symptoms of TMJ would include the jaw protruding from the patients face. If you need to physically pull your jaw backwards towards your ears just to have a comfortable bite, then you may have a TMJ symptom. When you have TMJ, your body reflexes by using your chewing muscles to tow your jaw forward.

If the case becomes worsened your head may start to lean forward as your anterior neck muscles gradually stretch. This can give you overall bad posture.

The more obvious sign and symptom of TMJ is if the areas around your mouth become red and swollen. Another obvious TMJ symptom is having an unbalanced lip position and a prominent facial fold under the chin.

Symptoms Of Other Conditions

The problem with TMJ is that it can cause other conditions. Symptoms can be experienced in linked conditions such as headaches and ringing in the ears, since the head and ears are one of the closest body parts to the affected jaw. You may feel constantly dizzy or develop sleeping disorders because of the discomfort.

TMJ symptom can cause you to experience back pains and even difficulty swallowing/breathing. You may also develop cervical problems including pain and discomfort in the cervix, since a TMJ symptom can gradually become a symptom found in the head and neck.

Frequently Asked Questions

  1. QUESTION:
    can a person go blind from Lupus?if so how can you tell?
    My friend has Lupus and she said she is going blind from it,what I like to know is how can she or her doctor tell it is from Lupus?

    • ANSWER:
      I have Lupus. SLE or Lupus can affect any organ of the body. It is possible. One can also get damage to organs from the drugs we take to help us daily in the battle with lupus. Here is some info:

      HCQ and retinopathy

      Hydroxychloroquine, or HCQ (brand name Plaquenil) is a treatment used for many of the autoimmune diseases, including systemic lupus erythematosus (SLE), Sjogren's syndrome (SS), and rheumatoid arthritis (RA). Hydroxychloroquine was formulated from chloroquine in an attempt to retain the therapeutic qualities but minimize the main side effect of retinopathy. Retinopathy is disease of the retina, which is the thin film in the back of the eye

      Chloroquine retinopathy is a well-recognized retinopathy, particularly in the bull's eye stage. Early cases of chloroquine retinopathy did not respond readily to discontinuation of therapy and sometimes led to legal blindness in the past. More recent dosage guidelines are associated with much less risk. But most in the U.S. consider HCQ to be less retinotoxic than chloroquine

      Lupus
      A Multifaceted Disease
      Updated: 01/18/2006
      Lupus is an autoimmune disease that can affect many organ systems. In people who have lupus, antibodies are created by the body’s immune system and directed against the body’s own cells. Lupus affects the connective tissue, or the tissue that provides strength to joints, tendons, ligaments, and blood vessels. The severity of the disease ranges from minor to life-threatening complications that must be aggressively treated.

      Lupus is a chronic condition. People with lupus tend to experience symptomatic periods, followed by periods of few symptoms or no symptoms at all. Total remissions are rare. Lupus flare-ups can be triggered by a number of factors, including exposure to ultraviolet (UV) light and toxins and a reduced antioxidant status.

      The most common form of lupus is systemic lupus erythematosus (SLE). Other forms of lupus include cutaneous lupus, which affects the skin (and accounts for about 10 percent of all cases of lupus) and drug-induced lupus, which is caused by an inappropriate reaction to a drug or medication. Drug-induced lupus usually recedes when the drug is withdrawn. Because SLE is the most common form of lupus, and the most severe, this chapter will concentrate on SLE, and any reference to lupus in this chapter refers to SLE.

      Any organ system that incorporates connective tissue can be affected by lupus, including the skin, kidneys, eyes, lungs, and the cardiovascular, vascular, musculoskeletal, nervous, blood, and gastrointestinal systems.

      Like other autoimmune disorders, lupus is characterized by an abnormally activated immune response. Under normal conditions, the immune system is responsible for protecting the body from external invaders such as viruses and bacteria.

      I wish your friend the best. She will need a good friend if she is going through this. Best of Luck.

  2. QUESTION:
    How can a person know how long they have had Lupus before they were diagnosed?
    I have just been told that I have Lupus SLE and was wondering if anyone knew how to tell how long you have had it, before it was detected? I can't remember ever having any of the symptoms before, but I have read a lot of articles that stated that some people were misdiagnosed for 5 to 7 years before they found out that they had Lupus. Thanks for any help you can give me!

    • ANSWER:
      I don't think there's any way to be certain how long you've had the disease before being diagnosed. Lupus is very hard to diagnose because the early symptoms are so mild that they are dismissed as just "normal" illnesses. Some of the warning signs are persistent colds, headaches, joint pain, rash, swollen lymph glands, extreme tiredness, and depression that don't respond to medication or treatment. Most times these things are blamed on stress. My daughter suffers from Systemic Lupus. It took several years for her to be diagnosed. By then the disease had progressed and symptoms became more apparent. I am sorry to hear of your diagnosis. If I can be of any help to you, please feel free to email me. I know what you're going through and I can probably answer a lot of questions you might have. If ever you need a friendly ear, I'm available.

  3. QUESTION:
    Anybody with Lupus (SLE) can tell me how the pain feels like?
    I am very worried that i might have Lupus, although my ANA test was negative but i have a higher than normal SED rate and everyday my body temperature is above normal. I feel pains in random parts throughout my body. The pain will randomly come in one spot, where it would hurt for less than one minute, then it disappears and some other time of the day i get another pain in somewhere else where it lasts for less than a minute also. Is it possible to go through a lupus flare that lasts less than a minute?

    Can you describe the duration of pain in lupus? If your leg joints are affected, does it continually hurt for days?

    • ANSWER:
      An elevated sed rate can come from multiple different sources. This is a very non specific test and is a marker of inflammation that can come from a great number of things including infection. A fever is also a non specific finding that can be related to lupus but can also be related to many other things. Your ANA was normal, so that speaks less for lupus. The sensitivity of the ANA test is very high at 99%. This means that if you take 100 people with lupus, 99 of them will have positive ANA results. So it is quite unlikely to have a false negative.
      Saying "random" pains is very non specific as well. Are the pains in different joints or just random parts of the body? As far as the joint pain goes, while all joints can be involved the most common are small joints such as those in your hands and wrists Lupus flares do not last minutes like that they go on for days or longer. Other symptoms you might see with lupus is fatigue, rashes, skin ulcers, problems with the blood, lung, and kidney issues. With your ANA result it is unlikely this is lupus. A lot of things can cause these problems you are describing. Where are you from? Have you been tested for Lyme's disease? Rheumatoid arthritis? Age is a factor as well

  4. QUESTION:
    Patients with lupus?
    I am doing a research project for my senior year in high school and its on LUPUS, and how people live w/ it and their struggles, day by day, so if you'd like to share some info about it, that'd be SO GREAT =) thankyou.
    -what you go through each day?
    -constant reminders that you have lupus?
    -what were some symptoms?
    -can you tell you have lupus, or do you look perfectly normal?
    I just basiccly need, whatever you have =) thankyou so much.

    • ANSWER:
      Hi ALex

      THis is probably more than you need, but here is the most common answers on Lupus.

      Definition
      Lupus is a chronic, inflammatory, autoimmune disease that affects the blood and connective tissue.

      Types
      There are two main types of lupus. Discoid lupus erythematosus (DLE) affects the exposed areas of the skin and sometimes the joints. Systemic lupus erythematosus (SLE) is more serious and potentially fatal condition that affects the body`s organs in addition to the blood and connective tissues.

      Symptoms
      Lupus symptoms vary according to the severity of the illness and the affected organs. SLE can strike abruptly, accompanied by fever and mimicking an acute infection. But it can also occur slowly over months, even years, exhibiting only sporadic episodes of fever and fatigue. Most people with SLE complain of pain in various joints that mimics arthritis, or in children it simulates growing pains. In adults, there is often a history of growing pains. Over time, muscular contraction may deform the joints.

      Many patients also manifest rashes on their face, neck, upper chest, and/or elbows. In DLE, the rash starts as red, circular thickened areas that leave scars, most often affecting the face and scalp, and can also cause permanent hair loss. In SLE, there is a characteristic "butterfly-shaped" rash that occurs on the cheeks and over the bridge of the nose. Rashes in SLE patients do not scar and do not cause permanent hair loss.

      Ulcers on mucous membranes such as the mouth and nose are also common. Swelling of the hands and fingers can occur, as well, as can sensitivity to light, kidney disorders, pleurisy (inflammation of lining of the lungs), pericarditis (inflammation of the membrane surrounding the heart), iron deficiency, anemia, and high blood pressure. Swelling of lymph nodes is also common, especially in children.

      SLE is considered as mild if the symptoms are mainly fever, joint pain, rash, headaches, pleurisy, and pericarditis. It is considered severe if it is associated with life-threatening diseases. Severe SLE requires immediate corticosteroid therapy, which can only be administered under a doctor`s care. Since SLE is often chronic, with periods of improvement and relapse over many years, years of remission can occur in between periods of symptoms. This does not necessarily mean that the disease is gone. To be sure, you may need blood tests for antinuclear antibodies (ANA) and sometimes skin biopsies.

      Note: According to the American Rheumatoid Association, four of the following eight symptoms must be present for a diagnosis of lupus: ANA antibodies in the blood, low white blood cell or platelet count or hemolytic anemia, joint pain in a number of joints (arthritis), butterfly rash on cheeks, abnormal cells in the urine, light sensitivity, mouth sores, and seizure or psychosis.

      Cause
      Food allergies (there is a 100 percent correlation between lupus and food allergies), rheumatoid arthritis, other connective tissue diseases, parasites, candidiasis, bowel problems, and digestive enzyme deficiencies can create symptoms that mimic or exacerbate SLE. Migraines, epilepsy, and psychoses must also be ruled out before a proper course of treatment can be decided upon.

      Both forms of lupus primarily strike young women (90% of cases) and young children.

      The drugs hydralazine, procainamide, and beta blockers can cause false-positive readings of SLE, and can also produce a lupus-like condition that disappears when the drugs are no longer taken. Birth control pills and environmental stresses can also exacerbate lupus symptoms.

      --------------------------------------------------------------------------------

      Natural Cures

      Diet: Eat an organic, whole foods diet. Also avoid overeating and limit your intake of dairy, beef products, and polyunsaturated oils. Also screen for food allergies and avoid all foods to which you are allergic or sensitive. Increase your intake of vegetables, especially green, yellow, and orange, and consume non-farm-raised fish several times a week.

      Herbs: Supplementation with Swedish bitters with each meal can increase hydrochloric acid production. Also drink an infusion of nettle twice a day. Other useful herbs include echinacea, goldenseal, licorice, pau d`arco, and red clover

      Juice Therapy: Drink the juice of carrot, celery, flaxseed oil, black currant oil, and garlic.

      Nutritional Supplementation: Hydrochloric acid (HCL) deficiency is common in people with lupus, therefore HCL supplements with each meal is advised. Other useful nutrients include vitamin A with beta carotene, vitamin C and bioflavonoids, vitamin B complex, vitamin B5, vitamin B6, vitamin B12, calcium, magnesium, selenium, zinc, essential fatty acids, proteolytic enzymes taken away from meals, digestive enzymes taken with meals, and the amino acids L-cysteine, L-methionine, and L-cystine.

      Topical Treatment: PABA cream applied topically can help ease symptoms.

      Alternative Professional Care
      If your symptoms persist despite the above measures, seek the help of a qualified health professional. The following professional care therapies have all been shown to be useful for treating Lupus: Acupuncture, Biofeedback Training, Bodywork, Cell Therapy, Chelation Therapy, Detoxification Therapy, Environmental Medicine, Enzyme Therapy, Guided Imagery, Homeopathy, Juice Therapy, Light Therapy, Magnetic Field Therapy, Natural Hormone Replacement Therapy, Naturopathic Medicine, Oxygen Therapy, Qigong, Rolfing, and Traditional Chinese Medicine

      Best of health to you

  5. QUESTION:
    Getting medical marijuana in CA for lupus & RA?
    Hello,
    I have lupus & rheumatoid arthritis and I'm at the end of my rope. Right now I'm on a medicine "cocktail" of morphine, vicodin & oxycodone which I'm sure is killing my liver. I recently talked to someone else with lupus & they told me that medical marijuana helps her get through her day. Do you think my rheumatologist would prescribe this for me? And if so, how do you go about getting it? Can you just get it from a pharmacy like a normal presciption?
    Hello,
    I have lupus & RA and my doctor is considering prescribing me medical marijuana. Right now I'm on a medicine "cocktail" of morphine, vicodin & oxycodone which I'm sure is killing my liver. I recently talked to someone else with lupus & they told me that medical marijuana helps her get through her day. How do you go about getting it? Can you just get it from a pharmacy like a normal presciption?

    • ANSWER:
      I am a former california resident who hasn't lived there since the legalization. From talking to friends of mine who use it for Ulcerative colitis, my understanding of the process is this:

      I believe that either, you can have the prescription written by your normal M.D. (in this case your rheumatologist), or, you can have a letter written by that M.D. documenting your condition to the M.D. at the marijuana dispensery. At the dispensery they have a physician who will write you the prescription. I do not think you need to bring a copy of your chart. The letter will at least suffice for the first few prescription/doses. They will discuss with you for further doses/prescriptions if you need to make it more official.

      A letter on letterhead stating "I have seen (name) for # years for treatment of chronic lupus and rheumatoid arthritis. I am a board certified rheumatologist, yada yada yada.
      Dr. X" was all that my friend required.

      I personally would get the letter, and then let the physician at the dispensery make the prescription for the marijuana so that if you decide to get your chart forwarded to another physician in another state, etc. or you switch insurance companies and get employed in another state, the prescription is not in there. That way, also, you don't have to be in the uncomfortable situation of having to ask your dr. to write you that scrip (if you think it is uncomfortable.)

      Good luck

  6. QUESTION:
    Can hepatitis cause lupus or lupus cause hepatitis?
    I was told I have lupus by my dr and then I saw him not long ago and I said how tired I am ALL the TIME! He said that he wanted me to be tested for hepatitis A, B and C. So.. I am, but can one cause the other, or make the other worse? I have a friend that wants me to treat my lupus and possible hepatitis naturally, but I don't know if It would work and I dk what to do. I haven't got the test done yet, but I lost alot of weight and got sent to the dr and he said back then I might have lupus then last year I saw him later in the year again and he said I have it but then I saw him this year and he said since I'm tired all the time to get this test done, I heard if you have hep and lupus that if you try to treat the hep that it can make lupus worse. And my friend wants me to get this stuff treated naturally. :/ I jus don't know what to do and Idk if either way is good. I'm currently not on any medicine for lupus. Ty for your help. Happy Resurection Day and HUGS :) )
    Ohh.. I guess cuz my Dr. thought it was mild. O_O I have no idea. Ty for ur help though=)

    • ANSWER:
      Hepatitis is inflammation of the liver. It is caused by a virus. It is contagious. Lupus is an autoimmune disease. The two are not related. When you have lupus, you do have a harder time fighting infection.

      Absolutely do not let your friend treat either disease. You are gambling with your life. Some things that are "natural" actually make lupus worse. I have to wonder why you are not on medication for lupus. With lupus, you can develop permanent organ damage and you won't have symptoms until you are in serious trouble.

      It is not natural for your immune system to turn against your body. That's what happens in lupus. If you are going to look at the larger picture, you should eliminate all toxins from your food, water, clothing, personal hygiene products, carpeting, paint, soaps, atmosphere, etc. You can reduce the body burden but you can't eliminate it. Also, exercise and stress reduction are essential to managing lupus.

      It is your body and your life. Don't be swayed by pressure from people who rarely have solid scientific evidence. Ask your friend for articles that report on double blind placebo studies with good sized popluations and that are published in peer reviewed journals. You won't get any. You will get anecdotes about somebody who got better. But were they like you? Same age? Gender? Medical history? Combination of conditions? Same lifestyle? Same genetics?

      Remember that hemlock and arsenic are natural, and they can kill you.

  7. QUESTION:
    long time friend told me she has lupus?
    I dont know what to say.... she moved away after high school 4+ years ago and we spoke a little here and there on facebook but she updated some pics and she lost a lot of weight and her skin looks different so i asked and she said she had lupus i didnt know what to say but sorry and changed the subject because i dont know how she feels about it like she might think i have pity on her . my friend said lupus will only kill her and that makes me so MAD ....i actually started crying because i dont want her to die.. i want to tell her that i will be there for her and if she ever needs someone to talk to i'll be there but im scared she might get mad or sad because when i told her sorry she said she was fine but i dont know ..she moved back to my area because her family live here i want to hang out with her you know? what would u do she was once my best friend..but that was long ago

    • ANSWER:
      Lupus is not usually fatal. Your friend needs to learn about lupus. The Lupus Book by Daniel Wallace MD is the definitive source of lupus information for patients and their loved ones.

      Lupus is controlled by taking drugs that weaken your immune system. Regular monitoring by a rheumatologist, taking meds as prescribed, and working toward an overall healthy lifestyle are essential when you have lupus. It is not a death sentence, but it is a life sentence.

      People who are newly diagnosed isolate themselves. You would be of great service to your friend if you go out for lunch or another activity on a regular basis. She is still the same person. She just happens to have the disease. Don't make lupus the center of your relationship with her. Just be together. She needs you.

      Most cases of lupus are mild to moderate. Lupus is a remitting/flaring disease. While there is no cure, there are periods when the disease is quiet. Over time she will learn self management skills so she has more periods of remission.

      I will be 59 next week. I have a severe case of lupus that nearly killed me in 2003 because it involved my heart, lungs, bone marrow, kidneys and brain. I have been in remission for several years now. I blog about living with chronic illness. I invite you and your friend to subscribe. The link is below.

  8. QUESTION:
    PLEASE HELP REALLY IMPORTANT!!!!?
    my friend emily is 13 i was at her house and we were in her moms bathroom putting on make-up and i saw her step on the scale she said uhhh!!! im fat im a 114 pounds!! ( keep in mind she 13 and 5'7 ) im like thats nothing ur tiny!!! she said no im not! im huge!!! im almost 15 and im 5'8 and i weigh 108 so were kinda close but she always talks about herself in a negative way like.... im fat stuff like that and that scale thing happened a month or two ago and i was at her house last week there she was on the scale... :o guess how much she dropped! now shes 104! im really worried! i told my mom and she even thinks she looks too thin now counting she was really thin already... so i talked to her about it yesterday and i told her she looks way too think like a skeleton and she needs so stop dropping weight or she will be anorexic... well she said im fine!!! i look good but im still fat!i need to loose a couple more pounds!!! i said NO u dont!!! im like this isnt funny u look gross!!! well shes in denial... her mom has lupus so she really think emilys still 115 or something... she doesnt really pay attention about how she looks... so she told me yesterday i think u need to stop obsessing about my weight because im perfectly fine and if i was underweight or getting too thin my mom ( with lupus ) would tell me!!! and before that i took her to the computer looked up thin teens and she said this girl looks normal: http://www.google.com/imgres?imgurl=http://fashionlawyerblog.com/wp-content/uploads/2008/08/skinny_model.jpg&imgrefurl=http://fashionlawyerblog.com/%3Fp%3D610&usg=__qUVz6S7hO-tL_4JFYg9aqi2Lnlg=&h=456&w=342&sz=57&hl=en&start=0&zoom=1&tbnid=UXLuFlXv1Ls_MM:&tbnh=134&tbnw=109&prev=/images%3Fq%3Dskinney%2Bgirls%26um%3D1%26hl%3Den%26client%3Dsafari%26rls%3Den%26biw%3D1082%26bih%3D884%26tbs%3Disch:1&um=1&itbs=1&iact=hc&vpx=244&vpy=85&dur=4592&hovh=259&hovw=194&tx=127&ty=220&ei=MAQNTYD9JorGsAPxnM2PCg&oei=MAQNTYD9JorGsAPxnM2PCg&esq=1&page=1&ndsp=36&ved=1t:429,r:1,s:0 but she said this is normal!!! im like shes anorexic!!! shes like no shes not! u know thats what i look like!! im like no emily u dont... then she said thatS how i wanna look!!! im like ewww if u looked like that u would die! OMG it was on going!!! i just really dont know what to do!!! please help me!!!! if ur wondering what she looks like this is her build.... just shes a woman and just picture her 13 with that build ok!! http://www.google.com/imgres imgurl=http://msnbcmedia2.msn.com/j/MSNBC/Components/Photo/_new/090423-skinnymodel-vlrg-830a.widec.jpg&imgrefurl=http://www.sodahead.com/living/skinny-more-cushion-for-the-pushin-or-average/question-909983/&usg=__DGt1QsboSnkItMgksLkRyvSx4OM=&h=441&w=298&sz=18&hl=en&start=0&zoom=1&tbnid=xWGe0so0uCoorM:&tbnh=148&tbnw=105&prev=/images%3Fq%3Dskinny%2Bteens%2Bin%2Bswimsuits%26um%3D1%26hl%3Den%26client%3Dsafari%26rls%3Den%26biw%3D1082%26bih%3D884%26tbs%3Disch:10%2C286&um=1&itbs=1&iact=hc&vpx=859&vpy=218&dur=768&hovh=273&hovw=184&tx=150&ty=137&ei=IwYNTc_CG5SusAOfn4XGCg&oei=7QUNTezpPJC8sQO8obiQCg&esq=6&page=1&ndsp=25&ved=1t:429,r:18,s:0&biw=1082&bih=884 NEED TO SEE THIS!!! KINDA OF HER BUILD... SHE DOES HAVE THAT MUCH MUSCLE AND REALLY THIN.... ( i was talking about my friend btw ) well ik that emily does not starve herself because she eats a ton!!! and memy friend emily is 13 i was at her house and we were in her moms bathroom putting on make-up and i saw her step on the scale she said uhhh!!! im fat im a 114 pounds!! ( keep in mind she 13 and 5'7 ) im like thats nothing ur tiny!!! she said no im not! im huge!!! im almost 15 and im 5'8 and i weigh 108 so were kinda close but she always talks about herself in a negative way like.... im fat stuff like that and that scale thing happened a month or two ago and i was at her house last week there she was on the scale... :o guess how much she dropped! now shes 104! im really worried! i told my mom and she even thinks she looks too thin now counting she was really thin already... so i talked to her about it yesterday and i told her she looks way too think like a skeleton and she needs so stop dropping weight or she will be anorexic... well she said im fine!!! i look good but im still fat!i need to loose a couple more pounds!!! i said NO u dont!!! im like this isnt funny u look gross!!! well shes in denial... her mom has lupus so she really th and my mom think she may be making herself throw up cuz yesterday we ate dinner then she when up stairs so i followed her but she didnt notice she went to her mom bathroom and locked the door so i tried to look under the door at where her feet were and then were by the sink for like 3 or 4 minutes with the water running really high i could barley hear wat she was doing but then i saw her feet was over to the toilet and go pee then after that she came out and asked me where i was... i didnt tell her but anyways PLEASE HELP HER AND ME!!!! AN

    • ANSWER:
      talk to your guidance counselor at school and see if she can help.

  9. QUESTION:
    How much trust should we place on doctors?
    I have a pain primarely on right lung. Every now and thenI feel it on my left lung. Sometimes it is very sharp, sometimes it is dull. It hurts mostly when it gets cold, when I breathe in/out, etc. After oh so many blood tests, x-rays, etc., out of nowhere I am told I could have Lupus, then I am told it looks more like Sjogrens syndrome. I am placed on meds that made me feel sicker than I was. And could have horrible effects. I took my self off the meds, started taking herbal meds and beta glucans 1, 3 to help my immune system. No relief on my lungs, tests still continue. Am I alone, or does anyone ever question their doctors? And if you do, do you think Eastern Medicine is a better way to go?

    • ANSWER:
      I'm going through the same thing with my son, over a year and still no clue as to what's happening. Western doctors seem more interested in prescribing something for the symptoms, not treating the body as a whole. Eastern medicine is our next step and it's worth considering. I've been to an Eastern doctor and it was well worth the experience. Eastern medicine treats the whole body not just the symptoms. Good Luck.

  10. QUESTION:
    Rheumatoid Arthiritis, + lupus antibodies?
    I was diagnosed with RA a year and a half ago (I was 20, I am now almost 22) At first my family doc did not know what was causing my pain, so I was sent for multiple tests, RA came back positive, and so did a lupus test, I was then sent to see a rheumy, She had told me about the +lupus antibodies but how only the single test came back positive and I was just to be on the look out for it. Well now my rheumy has moved and I am waiting for my referral to a knew one to go through. However, my flairs are 10x as worse as they were before my rheumy moved and I am always sick (small fever, headache, stuffy nose, queezy, dizzy, and even more fatigue than normal). I am worried that these are signs of the Lupus developing more and I have no one to look! I will be asking my family doc to put a rush on the referral, but how can I try to feel some what better while I wait. Im having numb feet and hands every morning and some mornings I can not even open my hands or get out of my bed, I am a single mother of a 3 year old, I need to be able to get up if needed! Any suggestions on what to do in the meantime!!

    • ANSWER:
      1. Take a hot bath or shower in the morning to help relieve stiffness.
      2. Take NSAID's like ibuprofen (Advil) or naproxen (Alleve) to relieve inflammation and pain. If you have had an ulcer, then you might want to be cautious with these.
      3. Take frequent breaks. Sit down or put your feet up. If you push, you will make everything worse.
      4. Take a good multi-vitamin.
      5. Take 1,000 mg fish oil a day. It helps reduce inflammation.
      6. Avoid processed food when possible.
      7. Even though you feel tired, take a least one short walk every day. You will find that moderate exercise reduces fatigue, pain and inflammation.
      8. Feel free to take a hot bath or shower more than once a day. If it makes you feel better, do it.
      9. Re-evaluate your priorities.
      10. Say no to all unnecessary requests. Love your neighbor as yourself implies that you love yourself that much FIRST!

  11. QUESTION:
    Anyone with personal experience or info related to lupus?
    My mother was just recently diagnosed with systemic lupus erythmatous (SLE) after years of going through a variety of symptoms and being told she had every other ailment possible. Because she's been sick for about 4 years, the doctors have told her that she will have a harder time with getting the disorder into check. She's only 40 years old, and is just had a really hard time these last couple years. She's a hospice nurse and told me today that lupus is a hospice diagnosis which would make it terminal? Is this true? I'm a brand new nurse and have been trying to find information about it. I was just wondering if there is anyone out there who has it? If so how do you manage it? Have you been told that it is terminal? Obviously I'm really concerned about my mother, and knowing a little but not everything really makes it worse. I would appreciate any advice. Thanks in advance.

    • ANSWER:
      Lupus is not terminal !!! Where did you get such information ? Please educate yourself ASAP ! I have Lupus - SLE and was diagnosed about 10 years ago after being told I had a whole myriad of things and /or that it was in my head. There is no cure but there are many treatments. And any good specialist, usually a rheumatologist, will treat the symptoms. There will be plenty of specialists to be seen according to what the lupus is up to. I see a nephrologist, urologist, hematologist, ophthalmologist, dermatologist, rheumatologist etc......People to not keel over and die from Lupus. About 30-40 years ago the outlook was about 10 years without ever going into remission, but today people live as long as healthy people as long as they take care of themselves. Stay in tune to their body's, do as their doctors say, know their limits and do not sit around and feel sorry for themselves. After working and volunteering as an EMT I had to step back but I did not sit around and wait to die. Your mom and you should consider joining a support group. Webmd has one which was very helpful early on for me. Also log onto the lupus foundation site. I should mention I am 43 and was diagnosed at 33 - but it was there for many years prior.

  12. QUESTION:
    Is Cytoxan a common drug used for Lupus?
    Ok I know cytoxan is used for Lupus, I am just curious to see how common because I would have thought this was for really bad SLE. My rheumatologist wants me to do cytoxan infusions but I really don't want to, I have pulmonary nodules and abnormal PFT and I am being checked for Interstitial Lung Disease. My Lupus isn't even that bad in comparison to a lot of other people that I know. I have problems with my central nervous system, mild alopecia, multi joint arthritis but I never had to be hospitalized. It's just strange to me that my doctor wants this extreme therapy for me and of course no one wants to do Chemotherapy. Anyone who has done cytoxan for Lupus if you can tell me how it went and how you are doing now it would be greatly appreciated!

    • ANSWER:

  13. QUESTION:
    My 17 year old daughter has a high ANA of 1:60. We have no history of Lupus on either side of family!?
    My daughter had become extremely lethargic,feverish, very thirsty, puffy eyes a year ago and it petrified us we took her to the doc. It turns out she got Mono from her very first boyfriend! It also showed a high ANA. Now, for the pasweek and a half she has been suffering with what seems like allergies/infection also lethargic, runny & stuffy nose, aches, and pains. So she has her blood tested again a week ago and now learned her ANA was 1:60! She has been on Buspar for anxiety for months now because she had GAD. Should I be worried? I also suffer from anxiety, so this is freaking me out now. I will not show my daughter how I feel because I will make it worse for her. Can any please tell me if it is Lupus, Is Lupus fatal? I have to say also that there is a history on both sides of family of problems with the thyroid as well. I would so deeply appreciate someone's advice to my situation!

    • ANSWER:
      An ANA titer of 1:60 is no where near high. Where on earth did you get that idea?

      The virus that causes mono can trigger lupus-or not. Take her to a rheumatologist.

      10 million Americans have a positive ANA
      1.5 million Ameicans have lupus
      5% of those with lupus have a negative ANA
      Stop obsessing about the ANA

      She could be still recovering from mono. She could have lupus. Take her to a rheumatologist.

      There is no blood test for lupus. A diagnosis of lupus is based on:
      1. Medical history
      2. Symptoms
      3. A variety of lab tests
      4, After ruling everything elsoe out

      The symptoms you describe could be the flu, anemia, depression, or another autoimmune disease. Take her to a rheumatologist.

      I am 57 and have lupus with major organ involvement. Have had it since age 13. Life is fatal. Lupus used to be fatal. Now it is usually not fatal.

      Go to www.lupusflorida.org and click on the About Lupus link in the upper right of the home page. Read the articles and the links.

      Take your daughter to a rheumatologist.

  14. QUESTION:
    need some help understanding MS? How often are the flare ups and how does it get diagnosed?
    I had an MRI done early February due to neck and arm pain. That was of the brain and showed no lesions. Since that MRI ..I had a major flare of pain all over and all kinds of symptoms that go along with MS. My vision got blurry and nlood pressure raised. I was a real mess. I was told by the neurologist that since that MRI was negative there is no chance I have MS. I had those symptoms for a few weeks and now I am better. It's really weird how it all went away. Except for the vision part...I still have blurry and distorted vision. Flourescent light drives me nuts!

    I am quite concerned as to whether the neurologist could be wrong. I was also told it could possibly be lupus but all the blood work came back negative.

    I'm wondering if some of you might be able to help me and guide me in a direction. I am seeing a rheumatologist tomorrow but not sure that's the right doctor to see. What other tests need to be done and who orders them?

    • ANSWER:
      EXCELLENT QUESTION!!

      There are basically 2 "OBJECTIVE" tests commonly used to diagnose MS: the MRI, and the Spinal Tap.

      There are, however, many other neurological tests used to document the SYMPTOMS of MS. So, it is important to document your various symptoms, because that can help your doctor(s) determine if what you have is MS or any number of other SIMILAR autoimmund diseases.

      As "disabilitylady" I speak from experience and expertise as someone who has been successfully managing the myriad symptoms of MS for over 45 years.

      An excellent resource about MS and other autoimmune diseasess is the "virtual village" link at: http://www.butyoudontlooksick.com

      Check out the Message Boards link; I'm the Moderator for the MS Forum, where you'll find lots of info about MS, including a link to what the basic MS diagnostic tools are. Also, check out the other disease-specific info in other Forums.

      Now, some basic info about MS:

      1) MS is an autoimmune disease where one's own immune system attacks the mylin sheath of the nerves, causing resulting "symptoms" in the part of the body "serviced" by those nerves.

      2) There are 4 basic types of MS. The first 2 are what most people have, and is called Relapsing/Remitting (R/R) MS - in either the benign or more aggressive state. In this type of MS, the person will have what are called "exacerbations" - read attacks - and then be "ok" for extended periods of time. In most cases, an MRI and/or a spinal tap will show the lesions on the brain or spinal column; then, the doctors can aggressively treat the symptoms with medications like steriods and what we call the "ABC drugs" (Avonex, Beteserone, and Copaxine). The ABC drugs are shots of what is basically interferon.

      If caught early enough, these medical interventions have shown EXCELLENT progress in stopping the rate of progress of this disease.

      Interestingly enough, many people can experience one or two exacerbations and then go for decades with none!!!

      3) The last two types are more difficult: primary progressive (PP) and secondary progressive. In secondary progressive (SP), you have people like me who started out with R/R, and then "progressed" into SP.

      In the case of PP or SP, the exacerbations are frequent, and become actual symptoms that do not go into remission like they did in R/R. Symptoms are like your friend's problems with sight and hearing.

      The ABC drugs and some others are being used to treat the PP type of MS; there are no current effective treatments to "stop the progression" of SP; we can only "manage the symptoms".

      For more information about the specific symptoms of MS, you can use any Internet search engine and plug in the words MS symptoms. You'll find TONS of information.

      For information from someone who has the disease, please check out my website: http://www.disabilitykey.com. I have 2 blogs there, each containing tons of information. AND, I'm an expert on applying for, and attaining disability insurances!! It is my passion and mission to assist others with disabilities.

      So, bottomline, sstart journaling your symtoms to share with your drs. Check out the references I've provided to you. Ask me further questions by clicking onto my Yahoo name!!

      Best of luck!!

  15. QUESTION:
    Lupus?? Need help, please!!!?
    Okay so i took my cat to the vet and she thinks that she might have Discoid lupus. She didn't tell us but she told my grandmother. And i know its a life long treatment for her, and im fine with that. i love her to death and will do anything for her. but a few questions i have is

    1) Can my other cat get it??

    2)Will she still have the same life span?

    3) Should she go on a special food?

    4) And i was wondering if you know anyone with a cat that has had it too, and how it goes.

    A reminder she is half siamese and she is only ten months old. Thanks for your answers! And i know there is not much on the internet that's why im asking on here=[

    • ANSWER:
      Bizarrely our Lupus Consultant here had a cat that developed lupus! She had a problem with her paw which was diagnosed as lupus and she was put on a course of steroids. He said they made her a bit crazy but she was fine afterwards and as far as I know she didn't go on any special diet or anything. She eventually died sadly of cancer but was by then quite an old lady so she had a long life.

      It's more common for animals to have lupus than you might think and some breeds have more of a prevalence than others. See our article here: http://www.lupus.org.uk/information/information_informationforpatients_animals.htm

  16. QUESTION:
    what to do about bullying?
    my teen son age 15 is bullying me,his mom.i live in fear of him every day.he was such a sweet little boy and when he started high school a year afo he changed.he is moody,mean,and a big bully,but only to me.i have a disease called lupus and he tells me everyday that he can not wit for me to die a slow miserable death.he tells me how much he loves his friends moms and what an awful mom i am.needless to say my heart is broke.what happened to my son?he came home yesterday and said that his friend told him that he should file a restraining order against me for psychological abuse,{he claims that i trap him in the house and never let him do anything}.this is untrue.everytime he asks to do anything 9 times out of 10 he is allowed.he says that i am a bad mother because i never got him into sports.i tried.i asked him whenever baseball and football rolled around if he would like to play.no he would say,i am not into that.some people arent so i never pushed it.he is extremely smart and always was an a student in school.now,his grades are slipping bad and i do not even know him.he is not running the streets,i know where he is at all times.i tell him to do his homework after school every day and i know where he is on the weekends.i just dont understand this behaviour.he hits,yells,cusses and degrades me everyday.it is so bad that i breath a sigh of relief when he leaves for school and watch the clock with dread for him to return home.i am ashamed of this.he is my son and i love him more than life itself.what can i do? what is wrong with him?

    • ANSWER:
      Either kick the shit out of him so that he learns his place, or call the police and show any physical marks that he has left.

  17. QUESTION:
    My Boyfriend Is Dying?
    My boyfriend has lupus and was told that he only had about two more years to live by his doctors.I am with him just over two months now and I have known since before we even started dating.I have cried over it and it got brought back up again and I have been so stressed out over it I like start shaking and crying and it makes me so upset.We have plans to move in with each other(which means I finish my senior year of high school at his school).I'm going to be 18 soon so its possible we do this.He is younger but his mother doesn't care but we are allowed to when he turns 17 which is right after my birthday.Also, I have college plans and so does he but he wants to hold them off for a year after he graduates.If anyone is knowledgeable can you
    1.Tell me about that diagnosis?He said he is getting worse and they told him thats how much time he has to live. He was diagnosed at age 9 and is now 16 almost 17.
    2.What do you think I should do?
    3.Do you think we should move in?
    4.What would you do?

    • ANSWER:
      I take my hat off to ya girl you are just a blessing to him and you just dont know it. I am only going to answer questions number 2 and 4. Ok we know he is going to dye way before his time. Make his time that he has left the best time in his life. I know it hurts you but think about what goes thru his mind every day. Only lord knows how he gets up everyday and face the day. I would stick with him until his last breath, what you are doing right now honey is an honor. This was a hard question to answer, but I know you are going to make the right choice.

      Good luck and god bless

  18. QUESTION:
    How would I know if I have Lupus? What test should I ask my doctor about?
    My sister is a nurse and she thinks that I have Lupus. Somedays I have to make myself get out of bed. It is a struggle to perform normal household chores. I have had the "butterfly" rash on my face but it wasn't that bad. I have episodes where I feel like I can do anything. When I have a flare-up I get nodules behind my ear and one in my neck. I also get a rash on my chest that itches. There is also pain in my joints when I have an episode and could sleep for days. I do not suffer from depression. I was told that it can be hard to determine if you have Lupus. If I do have it will it affect me having children in the future and could it be the cause of a previous miscarriage? Just to be clear I have been tested for EVERYTHING but Lupus.

    • ANSWER:
      I am no doctor, but sounds like you have many lupus symtoms.....take it from someone that was diagnosed in 1996. Some days are better than others, but if properly diagnosed they will be testing your blood for overproduction of white blood cells......my doctor (he was so aweseome because I went to 6 that misdiagnosed me!!) said that was really the only true test to tell if you have the disease or not. If you get diagnosed with lupus you will have to take care of yourself more and learn that you can't do everything you used to do! (You need more rest for sure, you will learn to take naps, etc.) Good luck with your search for a good doctor.

  19. QUESTION:
    DOCTORS PLEASE HELP! I have EBV and my dr. said I will most likely develope Lupus> What should I be expecting?
    I am a 14 year old girl and I have Epstein-Barr Virus and I was told that I will probably develope lupus. Many symptoms I have had are --- a red rash that is on my cheeks and nose and it is always on my face just its not always bright red but I can see the outline if i look really close. Here are some other symptoms I have had since July if I remeber correctly. For starters I have the hardest time remebering things, depression, really hard time consintrating, 2 periods of where it hurts when I take deep breaths or move my head, I can't sit criss-cross anymore because it hurts my knee's, I have several swollen lymphnodes that come and go except the one behind my ear that never changes, I have musle weekness i think because I can't even hold a book out to someone for more than 2 seconds before my hands and arms start shaking. Also, my hands and feet are always cold but my legs are always really warm and lets just say you can feel the heat off my legs through my pants. Also sometimes I have just plain out muscle aches that move from my leg to my arm and so on. I think my parents think I am faking it because I never have a fever. I don't want to tell my doctor either cause he might think im faking. Really need some advise or something I feel so helpless and down. Does this sound like I have just convinced my self that its lupus or is it just in my head. Please answer with something useful and you will get some free easy points. I would wait until im 18 to go and talk to my doctor but it is so frustrating not being able to consintrate in school and its so hard to read because I forget things so easily. Also, track is going to be starting soon and I don't know how I am going to handle this with sports and school work plus being so tired. Please realize that all my symptoms don't come at once and they aren't an everyday thing its on and off. Thanks for the help :)

    • ANSWER:
      As lupus does not really have any consistent or real treatment in conventional medicine, I hope you will not get it. If you think the cause was that Epstein-Barr Virus, why not to fight against it?
      --Have always fresh air in your house
      --Be on a kidney diet, avoiding too much salt and proteins
      --eat a lot of raw garlic with food
      --Often use vit C to strengthen your natural immunity
      --Eat a lot of fruit, avoid sugars, artificial sugars like aspartame splenda are worse, and avoid high fructose corn syrup.
      --Avoid all kinds of flu shots or other shots which can affect your immune system, as lupus is an immuno allergic disease.

  20. QUESTION:
    How serious is Lupus during pregnancy?
    My daughter had preclampsia with her first pregnancy. She is approximately 9 wks. along and is showing signs of the condition already. Last week her doctor told her that current symptoms she is having all point to the possibility of Lupus. He ran some test, and said depending on the test results may decide to hospitalize her for a few days for further testing and begin a treatment plan. I am terribly worried for my daughter and her unborn baby. Just wondered if anyone out their has experienced somewhat the same, and looking for some feedback. Thank you in advance.

    • ANSWER:
      Don't worry. Lupus rarely affects the baby of a woman who has it, but it isn't nice at all for the mother. Often women contract Lupus whilst pregnant or after they've had a baby, as Lupus is often triggered by this. I once knew a woman who had her Lupus at its very worse after she had her first baby. I've known 2 women with it, and the second one was so exhausted she spent most of a year in a wheelchair. But Lupus is rarely fatal nowadays, and it's not disfiguring. They usually use steroids to treat it. (I'm not talking about illegal drugs, I'm talking about medical drugs that have nothing to do with muscle building). Lupus can range in severity. Your daughter's baby will be fine.

      I'm not going to guarantee you that everything, including the baby, will be ship-shape and fine and dandy, but it is VERY likely. I know the woman above gave you some bad news about premature or ill babies, but the truth is, the two women I know have had 2 or more babies, all completely normal and healthy. Seriously. Not trying to make you feel better. Have a little faith, dear:) Good luck xxx

  21. QUESTION:
    How can I get over a girl?
    Hi there to all.
    I am trying to get over my ex gf. Well the story is kind of long. We have dated for almost 10 months, I know I doesn't seem alot but those were 10 of the best months of our lifes. She had told me she was a virgin, we got so serious that I was her first. We were so happy with each other that we made plans on marrying each other and starting a family. Well one day we thought she was pregnant and we were both happy. VERY HAPPY! Anyways everychance we spent we had a blast. Well it turns out that for her career she got offered a job out of state and or out of the country. She said she was going to take either or. She really doesn't know when she is leaving or if she might leave. So she broke up with me because she said she was focused in finishing school and didn't have time to be fully commited to our relationship. She asked me if I'd leave with her if she did happen to leave, I told her yes, then she said she doeant want me to leave my family because of her, I told her that I am not planning to stay with my fam all my life, she doesn't understand that. So I told her if we can still remain as a couple until she leaves, she said no cause she doesn't want to be heartbroken when she leaves and doesn't want to hurt me, I told her that I will feel the same if she leaves me now then when she does finally leave. She said if we can just be friends until she gets all her s**t together, I told her I cant be her friend because of what I feel about her. She took it the wrong way. Anyways so I try not to text or call her because I get really sad, I really love this girl. But she text me that she misses me alot and loves me. I told her not to tell me that cause it hurts me hearing that and not being able to be with her. She told me the day that we broke up to not give up on our relationship and all of a sudden she doesn't let me fight for her. I told her" remember that day u told me u had lupus, I didn't leave u, I actually took care of u" all she did was started crying. All my family knows her and my friends do to so its even more hard to get over her cause they always ask about her. Her grandpa got sick recently and she said she might not leave but she doesn't want to get back together. She said she wouldn't feel right. So I have pretty much have given up on our relationship but she still tells me she loves me and misses me. What can I do to get over her? I know its a lot to read but I need help. I am getting sick and not living right. Its not worth being like this. I have tried everything.
    Hey Sa♥ N♥y thanks for the reply, but all my friends and family know her. And the all ask about her. I do already play sports and yes that helped out alot, but after i finish i felt the same. But i will try to keep on going out. thank you

    • ANSWER:
      She's playing way too much and giving you mixed signal. Since she can't give you what you wanted from her. Do what makes you feel that makes you happy. If you want to get over her like you said here. I suggest spending time with your family and friends. Kick back with your good time friends. Go out parties and meet new people and make more friends. Also, join clubs or play some sports. You can write a journal how you feel about her. When you moved on you can look back and laugh at it. What really helps is talking to your family and friends whats going on with you and her and maybe they can help you.

  22. QUESTION:
    Diagnosis of lupus?
    Please do not give me information that you got from google. I know what lupus is. I know what the symptoms are. I am going to the doctor soon. I'd prefer that you answer only if you have lupus or you are a health care professional.

    How is lupus accurately diagnosed? Should I see a rheumatologist to ensure an accurate diagnosis? Does it sound like I may have lupus?

    I'm a white 17 yo female. I've been having moderate to severe knee pain and sporadic episodes of breathing problems, pleuritic chest pain, and random joint pain esp. in the hands, wrist and hips for many years.

    7 years ago I was diagnosed with lupus with a blood test (not sure what type). Saw a different doc who gave me another blood test (think it was a CBC) and she told me I did not have lupus. Around the same time I was diagnosed with recreational asthma.
    I was diagnosed with osgood-schlatters about a year ago. I think this definitely played a role in my knee pain, but I think something else is causing it too. Children usually only have pain from osgoods for a couple of months and I've had pain for well over 7 years. Also, osgood's pain very, VERY rarely continues after the growth plates of the bone are close, but I recently had X-rays done on my knees after a car accident and they showed that my growth plates are already closed, yet I'm still experiencing frequent bouts of pain.

    • ANSWER:
      Well diagnosing lupus can be tough. Most of the time the diagnosis is based on physical and historical findings (your symptoms, lab values, etc.)
      A CBC can determine whether anemia, a low white count, or a low platelet count, which are common with lupus, are present. There are 11 diagnostic criteria which are used to determine whether somebody is likely to have lupus. If you have at least 4 of the 11, there is a strong chance that you have lupus:
      1)A face rash that is butterfly shaped and covers the bridge of the nose and spreads across the cheeks
      2)A scaly rash that looks like raised, scaly patches
      3)A sun-related rash that appears after exposure to sunlight
      4)Mouth sores, which are usually painless
      5)Joint pain and swelling that occurs in two or more joints
      6)Swelling of the linings around the lungs or the heart
      7)Kidney disease
      8)A neurological disorder, such as seizures or psychosis
      9)Low blood counts, such as low red blood count, low platelet count, or a low white cell count
      10)Positive anti-nuclear antibody tests, which indicate that you may have an autoimmune disease
      11)Other positive blood tests that may indicate an autoimmune disease

      There are a number of blood tests that can be done to determine wheter you have lupus, but none of them are 100% sensitive. The most sensitive is called the Anti-Nuclear Antibody test (ANA). A positive result generally suggets lupus, especially if your symptoms are highly suggestive of lupus.
      There are some other common antibody tests that can be used:
      Anti-dsDNA
      Anti-Sm
      Anti-ribosomal P
      Anti-RNP

      Other blood tests that may be useful are tests that look for general inflammation in the body, like your Sedimentation Rate and/or CRP, both of which may be elevated.
      Your C3 and C4 levels may be checked, too. They're usually decreased in patients with lupus.
      Based on your symptoms and lab results your doctors may also want to do some imaging tests.

  23. QUESTION:
    need website where I can upload blood test results for LUPUS so that somebody can confirm it if it's positive?
    Hi, someone in my family was diagnosed with lupus today. I need your help to tell me if there is a site where I can upload blood test results for LUPUS so that doctors around the world can see it and tell me what they think is it lupus or not. It is not that I don't trust my doctor, but I have read that this is very difficult to diagnose and that in some cases it is better to see as many doctors as possible. But this is very costly for average class family.

    So please if you know anything about LUPUS, or if you know how to read blood results for lupus, I can e-mail you the results. Thank you in advance.

    • ANSWER:
      I am not aware of a website like this. Lupus is not diagnosed based on blood tests alone though. Lupus is diagnosed by the presence of 4 or more criteria that have been determined by the American College of Rheumatology. I will leave a link to this just for your information. The diagnosis is based on symptoms, physical findings and blood tests. All doctors are to follow these criteria when diagnosing lupus. If you want a second opinion, then have her see another Rheumatologist.

      http://www.lupusresearchinstitute.org/lupus/lupus_diagnosis

  24. QUESTION:
    I was diagnosed today with tendinitis in my hands. Does anyone know what the surgery entails?
    I was told for a year that I had lupus only to be told today I had tendinitis. I have had two painful shots in the past for this and one more today. I was told I may have to have surgery and I would like to know if anyone else has had the painful steroid shot and if you would recommend the surgery or continue with the shots. Also, how long is the recuperation?

    • ANSWER:
      Tendinitis is inflammation of the tendon usually where it attaches to the bone. The treatment is anti-inflammatory pills and injections to calm the inflammation. As for surgery, none that I am aware of. Best of Luck

  25. QUESTION:
    Lupus Help!!!???? Ways to Diagnose?
    My mother is diagnosed with Lupus and around the age of 15 I started showing signs of it.

    I was diagnosed with anaemia, severe depression, and arthritis all at the age of 14. Along with other female issues. I also have asthma.

    The doctor I had did some small amount of testing for Lupus but basically lost interest and told me that it was in my head. He swore up and down it didn't run in families and I was fine.

    More recently I've started to become incredibly ill. My body aches so bad it's hard to move, I'm so depressed that I can barely live with myself, which is also accompanied by panic attacks. About 9 months ago at 21 I was diagnosed with high blood pressure which has been gotten under control. I'm having surgery for endomitriosis next month. Along with the fact that my hair seems to be falling out.

    I'm wondering if maybe I should start looking into being checked out for Lupus again? I don't know much about the testing of it or how to go about it in the UK?

    • ANSWER:
      go back to your doctor and ask to be refer to the nearest lupus clinic.
      for some test.there are a lot of test that will show if you have lupus.i was diagnosed with all kind of things before i was diagnosed with lupus[sle] best of luck

  26. QUESTION:
    ANY TEENAGE GIRLS WHO SUFFER FROM LUPUS? Can you share your symptoms and diagnosis stories with me?
    I am a 14 year old girl who has Epstein-Barr Virus and my doctor told me I will most likely develop Lupus or I think its called SLE. I have looked some things but haven't found stuff that's not all in medical terms. I just want to learn more about this and teens and their personal stories. It would help me to understand on what to expect, how to deal with it, what to avoid, and what will or can happen to me. Also, if you have a blog or something will you please leave me the link address or something. Thank you so much. :)

    • ANSWER:
      Hi i am so sorry you are feeling unwell. Have you actually been diagnosed with lupus? Just you could be worrying unnecessarily and this will not help you to recover from epstein barr.

      Most people recover from this virus without developing lupus or SLE or maybe you mean M.E.

      I wish you all the best please email me if you want to talk some more.

  27. QUESTION:
    whats the difference ?
    hello everyone

    can anyone tell me the difference between lupus and hughes syndrome

    are the two connected ?

    do people with hughes syndrome go on to have lupus ?

    if i had a blood test for lupus would that show if i had hughes syndrome or would a complete different test be necessary ?

    does anyone suffer from hughes syndrome ?

    can you tell me your symptoms ?
    can you tell me what its like and how it effects your life on a daily basis ?

    • ANSWER:
      Lupus is an auto immune illness where the immune system has become overactive. The Hughes Syndrome (also known as antiphospholipid Syndrome) is where the blood is too sticky. It can cause dvt's and also miscarriages (often multiple and late into the pregnancy). Both of those things are often the first sign of APS. The 2 illnesses are very treatable, in the case of APS it can be as simple as a daily aspirin. Blood tests can diagnose both conditions, we routinely screen here for APS in lupus patients (it's a different blood test).

      One in 5 lupus patients can have APS as well (I have both). But you can have lupus alone or APS alone. Interestingly the Hughes Syndrome was discovered by Professor Graham Hughes and his team here. Professor Hughes was the head of the Lupus Unit until his retirement from NHS work and is still the chairman of the St Thomas' Lupus Trust (www.lupus.org.uk).

      Please visit our website: www.lupus.org.uk and also www.hughes-syndrome.org for lots more information on both conditions. The Hughes Syndrome can put you in touch with other people with the condition who will help you with your last question.

      We also have a free online nurse service http://www.lupus.org.uk/onlinenurse.htm. The nurse will answer questions on both conditions if you can't find the answers on the 2 websites.

      Hope that helps.

  28. QUESTION:
    Is my boyfriend abusing me?
    I have been dating a guy for fifteen months. We moved in together in January and agreed to split the cost for common expenses (rent, utilities, and internet service). In February, my boyfriend announced that he could not pay his half of the expenses because he had used the money to pay old debts that had nothing to do with me. I ended up paying the entire amount to keep a roof over our heads, but this left me almost broke. He had agreed to cover the rest of the expenses for the month in exchange for this, but he paid almost nothing all month, and I ended up spending the rest of my money and borrowing more to make ends meet.

    In March he announced that he had spent his money again to pay other debts, so he could not cover his half of the Internet bill. I agreed to pay that. What he failed to tell me is that he had not been paying his half of the bill for the last two months . Yesterday, our service was canceled. The bill was way more than I had expected to pay, and frankly, I could not afford it. I told him so, and he flew into a rage, cursing me out, calling me names, and throwing his jacket around the room in a tantrum. At some points I felt threatened by his behavior because it was all directed at me, as if I am to blame for his failure to pay his half of the bill. Finally, I agreed to pay it even though it would put me further behind financially, but then he refused to let me pay it because I dared to confront him (again) about his repeated failure to pay his half of the expenses and his expectation that I cover them instead. He went out and borrowed money to pay the bill, then insulted me a few more times for "making him get even further into debt." He has not been speaking to me at all for the last 24 hours.

    On top of all this, I am suffering from some serious health problems that need medical treatment. I cannot afford to pay for my medical treatment when he fails to pay his half of the expenses. I have told him this, but he always responds by sneering at my health condition, belittling me for being unable to work, and otherwise hurting my feelings. A few days ago, I collapsed in the kitchen when my heart went into an irregular beat called atrial fibrillation. I was unconscious for a few minutes. When I woke up, I realized that it was my heart because it has happened before. I told my boyfriend to call an ambulance and he balked at my request. "There is nothing wrong with you!" he retorted. "I checked your pulse and you're fine!" I told him that my heart was not beating right, that I could feel my chest burning inside, and that I needed help or I could die. He continued to refuse to call one while I lay on the floor. A friend happened to come over at that moment, and my boyfriend called an ambulance only because my friend told him to do it because I looked so pale. Sure enough, it was my heart. I had to go to the hospital for treatment, but my boyfriend refused to come with me to the hospital. I ended up hitching a ride home when I was released because I had no money for a cab and my boyfriend claimed that he had no money to pay for one, either.

    My boyfriend seemed so nice before I moved in with him, but now he is acting like a totally different person. He wants all of my money and then some, he makes fun of me for not being able to work, and he hurls insults and contempt at me when I tell him that I have lupus and cannot work because of how sick I get when it flares up. I feel afraid around him now, like he is going to start hitting me if I do not fork over all of my money and act like nothing is wrong with that. I have to buy medical insurance with what little money I get from disability, yet he only sneers at me when I tell him that. "I would take care of you!" he says. "You just don't trust me. You're paranoid!" But how could I trust him to help me when he is acting this way?

    I am so confused. I cannot sleep and this stress is making me even sicker. He knows that I will get sick if I do not rest enough, yet he blares the stereo at full volume whenever I am in bed. Is this domestic abuse? Or am I wrong not to hand him all of my money "until he is caught up" and then trust him to take care of things? What should I do?
    Thank you all for your advice. I am going to start making plans to get out of here. I absolutely will not stay in this situation now that I know for sure that this is domestic abuse. Thank you again!

    • ANSWER:

  29. QUESTION:
    suicide....?
    Okay im 16 years old, i had hearts surgery and was diagnosed with mctd/lupus etc. a year later my dad left, he said some harsh things to me like he wished i would die/and was never born...ive been in a lot of trouble in school bc i just feel like crying this feb i watched a man blow his brains out. he was less than 2 feet from me. My mom was diagnosed th brest cancer this year and lied to me about my aint had to tell me, they also told her she has mctd/lupus/etc. like me. well i heard her on the phone she has something growing on her brain/skull my mom is the only person i have. we argu so much bc when im scared i scream and yell. i love her so much. i have been thinking about suicide for the past few years...it just seems to me like there is no reason to live. im always in and out of hopitals.. my dad and brother both hate me. and my mom could die...im so scared i dont know what to do any more i need help but im scared ill get locked up if i tell my psych. how i feel...so please help
    to let you all know i am wiccan, so please do not push religious beliefs on me. i find comfort in my religion, its just that i cant handle life any more. its hard, and i know that "God" test you and i have passed enough test, i want to be a normal teenage girl who is worried about her looks and stuff like that but i cant be. i am constantly thinking about death, and depressing thoughts..i am always day dreaming but not like normal people, i think about death, murder and suicide more than anyone i know. when i tell my mom i am depressed she tells me to get over it. and it makes me mad but she is bi-polar and has alot of stuff wrong with her and she has had an extremly hard life and she got thro. why cant i why do i feel the way i do. it scares me my cuz told her theropist that she was thinking about suicide and she got locked up and i dont wanna be in a mental institue, i couldnt survive in there...email me if you want to talk (pink69ranger@yahoo.com) or myspace.com/pinkpowerranger666

    • ANSWER:
      If you're serious you need to talk with yoru psychiatrist immediately. Lupus causes depression and all this could be related to your disease. The important thing is to talk with someone.

      You sound like you're worried about your mom, after all you mention her in your post...Think how'd she feel if you killed yourself...she'd think it was her fault and think of all the pain you'd cause her. People who kill themselves rarely think about those that they'd leave behind.

  30. QUESTION:
    I'm not sure...?
    When i was younger my mother used to tell me that i had Lupus. I didn't know what it was but as i got older i started to look up a few things on the subject. I'm not all that sure that i have it. My mother is the type of woman that would say anything to anyone if it amuses her, and i think this amuses her. Now for my question. How do i go about getting tested for it? Or finding some kind of record that might say that i do have Lupus? help anyone?!?

    • ANSWER:
      I have lupus. There are many different types of this disease: first, is SLE, systemic lupus which involves the inner organs like the kidneys, liver, lungs and usually is diagnosed in the early years. If you have this, you would know because by now you'd be having to have serious medical treatments and even chemotherapy. Lost your hair? Ever have to go for prednisone injections? Do you take plaquenil?

      Second, is CNS and that is the central nervous system that is part of the brain. Again, you'd know if you have this one. It would mean you have severe brain seizures, or not even the severe kind, but tics or twitches or unexplainable bodily moves. Again, strong meds would be needed.

      Third, is what I have, DSL discoid lupus and that basically means that I am 'allergic to the sunlight, fluorescent lights, halogen lights, filtered sun, etc.' You'd again know if you had this. You would have the malar rash (butterfly rash) on your face, a redness that almost makes you look healthy, but in reality is a rash that goes across the nose and cheeks, down the neck. Scarring and cancerous moles, spots that must be removed.

      In other words, like me, you become a hermit, because you'd be broken out in lesion like sores that start small and grow huge and red. I get mine on both of my upper shoulders, around the back under the hairline (I refuse to cut what little hair I have left even if it falls out in clumps), aound my waitline, and I also get them just under my ears, perfectly
      placed so that even long hair won't hide them well.

      Oh, and the first 'sign' would be that you would only have 1/2 of your eyebrows! For the oddest reason that has remained unexplainable, that is one of the biggest clues. And your
      fingernails: are they purple along the nail bed; or is the 'moon'
      high up the nail and clear? Do you see squiggly lines of red running from the nailbed up?

      If you've got any of these signs then, yes you have lupus. I seriously *doubt* it, esp. when you say your mom would
      exaggerate (I'm sorry you have a mother like that), then that is what she is doing.

      Now, it may *run* in your family, either your mom's side or on your dad's side. Ask your g'mothers, if they are still around. Ask older aunts or cousins about the family medical history. Not a single one would be surprised, and all would be happy to tell you, I'd bet. You haven't said your age, but at 18, yes,
      you have the right to know your medical history. I would think
      that at ANY age you could, but different states/different laws.

      Now, all you need do is make an appt. with your usual doctor, and ask for a 'private appt'. That way you can ask without your mom being there. She doesn't even have to know about it. And, by now, you would also be or you *should* be seeing a gynecologist for women's health; they'd be happy to help.

      Long, but answered for you, and I hope you find you are *not*
      carrying this disease; it is not fun I can tell you that much for positively sure :)

  31. QUESTION:
    Is there anyone taking CellCept? If so, how long did you take it and what symptoms did you have?
    SERIOUS REPLIES ONLY. THANKS!

    Hi, I was diagnosed with lupus almost 2 years ago after over 11 years of dealing with various symptoms and flares and kidney disease. Right now I am only taking 1/2 a 250 mg chloroquine tablet once a day but I still have pain and fatigue and my sed rate is going up slowly, which it does during seasonal changes. My doctor wants me to start chemo or steroids, which scares the crap out of me. I saw online that there is something called CellCept that may work to reduce lupus symptoms that may have more tolerable symptoms than chemo, but I don't want to jump into anything. Can someone who has lupus who has or is using CellCept tell me if it works, how long it works, if you experienced any really bad side effects and if so did you recover? And did the lupus come back? Thank you for your help.

    • ANSWER:
      My wife has been taking cellcept for her Lupus for the last two and a half years with little side effects. She was a little sick to her stomach at first but now it really doesn't affect her. It has done wonders for her Lupus flare ups though. She hasn't had kidney involvement since being on the drug and she is only taking 5 mg of prednisone right now. She also has antiocardiolipid syndrome and takes coumadin to thin her blood. If you have any more questions or would like some more detailed info please feel free to email me

  32. QUESTION:
    help surviving with lupus?
    Hi
    im a 17 year old girl who's been complaining from my bones last 2 years. I recently did some bone scans and blood tests and i was told i might have a minor case of lupus.Im sitting my hsc this year and im not coping at all as i get pain in every joint of my body and my back seems to be hurting all the time.I cant write as my fingers are always cramped.Anyone have some advice? or suggestions on how i can cope with this disease and hopefully do well in my hsc

    thanks sorry but i really need help i want to do well in my hsc

    also ive got subcromial bursuitis and leg length disecrepency which have probably made it worse.My symptoms include: headaches, my nails turning blue for no reason, my hands shake, always got chest pains, my neck and back hurt really bad, eye sight problems, im unable to sit for more than 15 minutes my whole body aches me sitting or standing.I get sudden things where i cant move because something is oing on in my foot like a nerve or something and also i was unable to move my neck the other dy until the paramedics came over made me breathe some happy gas and off they went as if that ought to do the job.My neck was absolutely stiff and i was unable to move it at all.

    • ANSWER:
      Please set up appointments with a rheumatologist and a pain specialist. Since Lupus is an auto immune disease, it needs to be treated. Unfortunately, there is no cure. That does not mean that there are not medications out there that can help you. Believe me. I have Lupus. I have suffered many years with pain. At first, I was diagnosed with spinal stenosis. The pain just kept getting worse and worse. Before the diagnosis, I was treated like a drug addict every time I went to the doctors complaining of pain. I would feel so humiliated that I would let the pain get to such intolerable levels before I would return to my family doctor. My neurosurgeon finally stepped in with a phone call to that doctor. The result, family doctor no longer wanted to treat me. It took an additional call from my specialist. I hated the pain medicines. They left me feeling sick to my stomach and played with my mind. NOT FOR ME. The whole time, both doctors kept trying to convince me to see a pain specialist. I refused. I kept thinking if I kept trying hard enough, I could control my pain through mind control. DIDN'T HAPPEN. After increasing pain, trouble walking, muscle spasms, lost of hand control, etc. I was put through more tests. MRIs, blood work ( I've given enough blood now to build a whole new me ) and finally a total body bone scan. Diagnosis: degenerative arthritis along with spinal stenosis. Finally, after a continual decline of my health, blood work was done testing for auto-immune diseases. Result: on a scale of 1 to 10, with ten being Lupus, I was found to be an 8. After a MRI of my brain testing for MS ( runs in my family on my mother's side ) I finally had the diagnosis and another specialist, a rheumatologist . They decided it was Lupus. I just couldn't make myself believe that I could handle the pain anymore. I relented and went to see a pain specialist. Wish I had not been so hard headed to start with. After the first visit, he found a medication that I could actually take without getting sick to my stomach. It took about three months to get the dosage right to help with the pain enough to reach a tolerable level. Yes, I still have pain, but I can deal with it. And, if I find I can't handle it, I know we can increase the dosage. But, that will be my decision along with a doctor who actually listens to me and understands my pain.And the best part... I only have to take one every 12 hours. I also take prednisone to reduce swelling and it helps with the stiffness, Vitamin B12 shot once a month ( I give my own shot, so no doctor bill ) 50,000 units of Vitamin D ( I am allergic to the sun ) . There is also another med. that can slow the progress of Lupus down called Plaquinel. Unfortunately, I was unable to take it due to an allergic reaction. I have many allergies which is also a symptom of Lupus. Please, please, ask your family doctor to recommend a rheumatologist and a pain specialist. It will make such a difference in your life. I also take Cymbalta, an anti-depressant. I needed the help. I cried all the time. Not just from pain but also frustration. Now, as for the hsc... you are going to do great. Anyone with the determination you have to keep going is going to do well in whatever you decide ! Please let me know how all comes out for you. My prayers are with you. God is with you. Hang in there.

  33. QUESTION:
    How do i begin the process of becoming a US Citizen?
    I have a friend who suffers from lupus and she is a US Resident. She was told that if she becomes a Citizens she can get better benefits and better help for medication. I want to help her by getting information on how she can become a US Citizen she is currently a Permanent Resident.

    • ANSWER:
      This is the form to apply for US citizenship:
      http://www.uscis.gov/N-400

      Instructions:
      http://www.uscis.gov/files/form/N-400ins.pdf

      The form itself:
      http://www.uscis.gov/files/form/N-400.pdf

      But before you read any of that, I recommend you read the Guide to Naturalization:
      http://www.uscis.gov/files/article/M-476.pdf
      The guide will tell you if you meet the requirements to apply for citizenship.

  34. QUESTION:
    How would you feel if none of your relatives even offer to donate one of their kidneys to you?
    I have a kidney failure and the waiting list for a kidney where I live can take between 7-10 years longer for me since I am Type O positve. For now I've been getting dialysis treatment 4 times a week and am getting worse since now I also have Lupus. One of my sisters had hers tested but when UCLA called her to let her know that she's a match, she never called them back. My Dad and sister would tell people how sorry they feel for me and that they want to donate their kidney but it's all talk. When they needed things from me, I was always helping, now that I need help, they are all gone. How would you feel about this situation? I have 3 kids and my husband is not a match so he can't donate. I've decided to stay out of my familys life for now because it hurts to know that no one seems to care.
    My sister has no kids and she can no longer have one per MD because of her age. No husband either. But everytime she needs someone, it is who is there for her.

    • ANSWER:
      I would be CRUSHED to know that a family member of mine was a match and did nothing to help me! I was always taught that your family are the only people you can count on! I am
      O-something, but I drink twice a week, so I doubt you would want MY kidney!!! But I would GLADLEY give it to you !!!
      When it comes right down to it, blood is all that matters! You turn your back on blood, no matter what the circumstances, shame should come to you, TENFOLD!!!
      I am SO SORRY you have to go through all of this!!!
      Worst comes to worse, if they will take it, you can have one of mine!!!
      Good luck to you and Godspeed!!!
      (Seriously, I would do it!!!)

  35. QUESTION:
    Why do so many people resist the idea that food causes illness?
    If you tell someone to try a natural, organic diet free of preservatives and chemicals, they resist it, but will pop a pill of even more toxic stuff? I was in seriously poor shape two years ago with a multitude of problems, including lupus, rheumatoid arthritis, hidradenitis and thyroid problems. When I stopped eating processed food, and eliminated wheat, soy and eggs from my diet, the symptoms cleared up. I wonder why many people don't realize the toxins that are in commercial meats, milk and processed food? All you have to do is read the label to see how bad it is!
    I enjoy a lovely diet of fresh, organic veggies, rice pastas, fruits, fish, seafood, rice, quinoa, millet, flax, nuts, seeds, berries, etc. I dont feel deprived at all. Its the toxic artificially enhanced stuff that I am refering to. My diet is much more enjoyable and :"comforting" to me now, and my 12 year old is thriving on it!

    • ANSWER:
      AMEN!! If you can't pronounce it, you probably shouldn't be eating it.

      As to why people resist it, it's a heck of a lot easier to pop a frozen dinner in the microwave than to cook from scratch....I used to feel that way, until we started eating cleanly....WOW. Food actually has TASTE! What a concept!

      Excellent post! Wish I could give you 10 points for it!

  36. QUESTION:
    How can I treat lupus symptoms without any dangerous medicines?
    I got lupus over the summer so now I have to go to school with lupus. I've been waking up in the morning felling pain in my heels when i put pressure on them. I also fell nauseous when I eat more than I want to. I also cannot stretch my arm out all the way without my elbow hurting, I can only stretch it about half way. I got tapered off of prednisone about two weeks ago so I am no longer taking prednisone and now I take 200 mg of plaquenil daily and that medicine isn't supposed to take effect until about a month (doctor said plaquenil takes a very long time to take effect) My doctor also said it may be a different kind of lupus because i only have four symptoms which are joint pain muscle pain appetite loss and fevers. I forgot to mention i was a 12 year old male since lupus is more common in females. My family including my extended family and ancestors also have no evidence of lupus. I also try to exercise in PE at school every day but become short of breath a lot faster than when i didnt have lupus (doctor also said it mightve been because i was inactive with absolutely NO exercise for a month. And also if you know about something that could open my appetite please tell me about it. I have had absolutely NO medical problems in my entire lifetime other than a couple of colds flus and this lupus. So if you know of any herbs or herbal teas that could help me please tell me thank you very much and i forgot to mention i got a cat 6 month before the symptoms started showing up

    • ANSWER:
      Hi, My name is Jenn Summers Im a Bio-nutritional Practitioner Your health problem is not unique to us. We address the cause of your health problem. It's all about Cell Health. Go to www. sharcare.usana.com
      when the cells in the body get all the bionutritionals they require the human body can maximize its ability to defend, prevent or stop ddebilitating disease and chronic pain. The sscienceof Bionutritional Medicine is sixteen years old and presently is not taught at any of the medical schools in the USA
      There are many MD's in the USA starting to use Bionurititional in there praactice. Presently we habve over 120 protocals.There are no side effects with this all anturaal patented products. The Bionutritional are pharmacutical grade and are in the Physicians Desk Guide, PDR. Scripts can be written by your Doctor so that your health insurance providercan reimburse you.
      Call me at 440.688.4051 and ask for Jenn . Iat that time I will give you more details and set up a Free Health Assesment to get you started on this new and exciting 21 st Century Health Sceince..Improvemment should start in a week or so with the Lupus protocal.

  37. QUESTION:
    I know diagnosing someone with Lupus isn't easy, but could I have it, or was it just an infection?
    Back in November, during the school day, I was sitting in class and my knees had a not-so-comfortable sensation. They were hot to the touch and they felt like they were burning. Naturally, I started rubbing them, and it soothed them temporarily. In this class, I couldn't get up for an hour and a half, and when the class was over, I stood up and I had the worst pain ever in my knees. It was difficult to walk for the rest of the day. At the end of the school day, I noticed that my fingers and the palms of my hands were swollen. When I got home and showed my mom, we decided to go up to the ER at Children's Hospital.

    After arrival, 30 minutes later, I started to develop a red, elevated, blotchy rash on my forearms. Soon after that, all of my joints began to swell. When I got up to walk to the bathroom, it was like having balloons for feet. I told the nurses and they soon came in to do a couple tests. After taking 4 tubes of blood (after spilling my blood all over the floor) and a cup of urine from me, they quickly, and oddly, came back and said they found nothing wrong. They gave me a prescription for benadryl and ibuprofen and sent me home after being there for 5 hours.

    When I got home, I did my regular routine of washing my face at night, and I noticed that I had another blotchy, red rash across the bridge of my nose and my cheeks. I thought it was odd, and so did my family, but I just took my benadryl and went to sleep.

    I woke up the next morning at 5 am, and it was as if all of my joints were locked and swollen -- I couldn't move at all, unless I wanted to experience a simulation of someone bashing my joints with a baseball bat. I had never experienced pain like this at all. After almost falling down the stairs (dumb on my part) and crying for an hour, my mom drove me to the same emergency room. The nurse gave me some ibuprofen (800mg) and came back a few minutes later. The pain didn't subside a bit. The doctor finally came in, asked me about everything prior to then, and told my mom and I told to hold on. He called the rheumatology department and he told us to go down there immediately.

    We drove downtown and got in to the emergency appointment. Two doctors came in and looked at me and tried to get me to do some things. I couldn't lift my arms up over my head, I couldn't make the 'OK' symbol, and it took me longer than usual to walk up and down the hall. They prescribed me prednisone to take for a couple weeks, took 5 tubes of blood to do some tests, and I went home. I couldn't go to school for a few days.

    The following appointment, they updated me on the tests they did. I came up positive for the ANA test (1/160) and I tested positive for the mono test, but they said they weren't too sure on that one. They had said that it could most likely be Lupus, but they needed more time ("We're not going to rule Lupus in, but we're not going to rule it out, either" is what they said). 10 minutes later, I was attempting physical therapy, which they didn't tell me about prior to the appointment, and while I was in the middle of my PT, two social workers came in and asked me too many questions about my personal life. After that, I was scheduled for yet another appointment and I went home, still swollen, blotchy, and in pain.

    The following appointment, they did a follow-up. I was wearing a pearl necklace that day, and when I took it off, it felt like it weighed 20 pounds around my neck and my chest was sore. I was improving, but not back to my 100% self. They started to ask me questions about how school was going and if I was keeping my grades up. Then they recommended me to see a therapist, which was odd. After the appointment, I did my physical therapy. They gave me heat-molded inserts to put in my shoes and some exercises to do at home, then they sent me on my way.

    Two weeks after the appointment, after getting back to normal, they took more blood and urine from me and ran the same tests. Two weeks after, they called and said that it was just a minor infection that just came and went. They didn't tell me about my blood tests, but they told me that they found protein in my urine. But they said that was normal. Odd, but I'm not a doctor. They told me that if I ever have any other problems, I can call directly to their office. I then received papers in the mail from the state saying I had polyarthritis.

    Months after, I still experience joint pain and swelling, not so much on the rashes. It's not as extreme as what happened to begin with, but it's still bothersome. Sometimes I wake up in the middle of the night nauseated, and sometimes when I walk, I feel dizzy. I get painful headaches at least 4 times a week and at least twice a week, I have a tingling feeling on top my head, same as when your foot falls asleep. They keep telling me to take ibuprofen.

    What should I do? Sorry for being so lengthy!

    • ANSWER:
      I would get a second opinion. Arthritis means swolled joint. Polyarthritis means many swollen joints. A positive ANA could be lupus, or possible rheumatoid arthritis which is sometimes called juvenile (young person) idiopathic (they don't know the cause) arthritis (swollen joints).

      It is absolutely NOT normal to have protein in your urine. If you have that, it means there is inflammation in the kidneys. 40% of people with lupus develop nephritis (kidney inflammation).

      See another doctor.

  38. QUESTION:
    i think my cat has this, and i was wondering about it and if anyone else has a cat with it?!?
    Okay so i took my cat to the vet and she thinks that she might have Discoid lupus. She didn't tell us but she told my grandmother. And i know its a life long treatment for her, and im fine with that. i love her to death and will do anything for her. but a few questions i have is

    1) Can my other cat get it??

    2)Will she still have the same life span?

    3) Should she go on a special food?

    4) And i was wondering if you know anyone with a cat that has had it too, and how it goes.

    A reminder she is half siamese and she is only ten months old. Thanks for your answers!

    • ANSWER:
      There is not much info on feline lupus on the net. Your questions may be best answered by the Vet. I found the website below that may answer some of your questions.
      Good luck!

  39. QUESTION:
    Chemotherapy and Lupus.?
    I don't know what kind of Chemo I will be starting. I think it starts with an "H" but I have no idea. Please help me- possibly from experienced lupus sufferers. I have very severe lupus:
    I have been hospitalized once and nearly hospitalized many other times, and I have only been diagnosed with systemic lupus three months ago.
    I am fourteen and a female and have already tried numerous medications, but none of them have worked. The doctor says that one of my only chances that may work is chemotherapy. I want to know all of the side affects. Like:
    *Will I be more nauseous?
    *Will I loose all of my hair?
    *How bad is it... does it involve more needles?
    *How long will I live now, if none of this works?
    Please also give me some personal advice. Do not be afraid to spill the cold hard truth. If the chances are that I will die in 4 years, tell me. I am no longer afraid of death. I accept it. I just want some help of knowing how rough the road is going to be, if I die. But I hope I don't. Thank you.

    • ANSWER:
      http://www.hopkins-arthritis.org/arthritis-info/lupus/

      Check out this link. It is from Johns Hopkins and gives you a lot of information about your disease. If you scroll down to almost the bottom there is a section on chemotherapy treatment for lupus.

      Best wishes and I hope you will feel better after this.

  40. QUESTION:
    Anyone know much about lupus?
    My grandma has lupus. She hardly had any problems with it other than her hands would get cold and purple and sometimes she would get a little swelling in her feet.

    Her husband of 55 yrs died Oct. 30th of this year. Since then her lupus has went crazy. It's destroying her liver. She holds fluid around her lungs. Her heart is enlarged due to the fact it has to work harder because of her lungs.

    The Doctors just tell my mom to enjoy her time with her. They don't say how long she has and the aren't hardly treating her other than a few meds and oxygen at night.

    She is also having stomach pain and that doctor is going to decide soon if they even want to bother checking to see if her stomach is messed up too.

    How long does she have? I mean an estimate? Is this how lupus usually goes? nothing for years then everything all at once?
    mary boo she has only ever really had symptoms 8 and 9 and possibly 5. Hers is attacking her organs now.

    • ANSWER:
      Stress makes lupus flare. Losing her husband is a HUGE stress.

      Fluid in the lungs and heart as well as inflammation of the lungs are very common.

      The issue with the hands is Raynaud's Phenomenon. Many of us have it. Swelling in her feet could mean several things and should be brought to the attention of her doctor.

      She needs to be under the care of a rheumatologist. If she does not have one, your family might want to look into one.

      No one can tell how long she will live. When I was 51 years old in 2003, I had early stage kidney failure, fluid in the heart, fluid in the lungs, inflammation in the lungs, bone marrow failure that caused severe anemia and constant fevers. The docs told my kids I would most likely not live. I work full time again and am writing to you from a hotel room where I am on vacation. I practice yoga, can do an hour on an elliptical trainer and manage an hour long zumba cardio class. The docs don't always know. Lupus affects each person differently.

      The reason it is so severe now is the stress. She may feel that without her husband her life is over. A good grief counselor might also be useful.

      Good luck and I will keep her in my prayers.

  41. QUESTION:
    I have Lupus; my friends are angry that I won't hang out with them?
    I was recently diagnosed with Lupus, which is a serious autoimmune disorder. I have been really sick and exhausted for about a year, but it seems like no one will listen to me. I always tell my friends I can't go out because I am sick, and they respond with "you're always sick" as if I'm complaining about a cold. I really don't understand how to get people to understand how serious this illness is.........I am so pissed at how selfish and dismissive they've been. What can I do? Should I just forget everyone?

    • ANSWER:
      They can't really understand and the fact that we "don't look sick" makes it worse. My own daughter in law, who is a nurse, emailed to tell me I am (1) always busy-well if I don't support myself no one else is going to do it (2) always tired-duh and (3) always under the weather-duh again. It was at that point that I realized other people just can't "get it" even if they want to.

      See them when you can and when you have the energy. Avoid lengthy explanations and especially avoid making lupus the topic of your conversations. You are NOT your illnesss, although at times it feels like that.

      Go to the site below. Christine has lupus and has used the "spoon theory" to explain to people what life with lupus is like. You might give it a try.

      Best wishes.

  42. QUESTION:
    I think I have Lupus, how do I get my doctor to test me?
    Well, I've been having various symptoms for 3+ years (joint pain, getting worse, better, than worse again on and off), ulcers in my throatish area, raynauds phenomenon (where my feet and hands get blue/white all the tiem) rashes (scaly and red), itchiness, im always tired, my muscles hurt, frequent hedaches,

    I talked to a dr. i know through a mutual friend and he put my symptoms together and was thinking lupus, only i dont know what to do...my dr. knows i havent been feeling well lately, so how should i tell him and have him test me, i really feel like this is the answer i have been waiting for 3+ yaers for.

    im 16 and female, btw, if that matters:)

    • ANSWER:
      just ask.

      tell your doctor that you had another doctor look at your symptoms (if thats correct, from your story) and that he was thinking lupus and that you would like to know for sure whether or not its lupus.

  43. QUESTION:
    lupus sufferers only please?
    Hi, I'm a newly diagnosed lupus patient and I think I'm having my "first" flare. Everything seems like its going just how tthe doc said it would when I did flare. He mentioned I may get sores on my skin since thats one of the many things what prompted me to see the doc in the first place. I can't get to the doc until the end of the week but can anyone tell me if these sores in the pic down there are from lupus or not?

    http://smg.photobucket.com/albums/v218/aegirly8504/?action=view&current=SANY0087.jpg (this one is how they look after a few days)

    http://smg.photobucket.com/albums/v218/aegirly8504/?action=view&current=SANY0085.jpg (this one is how they start)

    any feedback would be greatly appreciated....

    • ANSWER:
      Hi

      I showed one of the lupus doctors the photos and he said it could well be. Unfortunately it's a bit difficult to tell from a photo. It certainly looks quite like the blisters we see with discoid lupus patients.

      I think the only way to be sure is for a doctor to actually see the blisters themselves.

      Sorry couldn't be more definite with the answer.

  44. QUESTION:
    My son loves me but I hate him. How should I tell him?
    My son, Tebbins, is currently 27 and although he is my son and I have raised him ever since he was an infant, I sort of hate him. He is a loser. Doesn't have a girlfriend at all. Has no non-internet friends and eats pistachio nuts all day long (which I clean up). He never goes out except for on the weekends when he volunteers at a hospital for children who have lupus, which he also has (and won't shut up about it). He's constantly telling me about all this medication he's on, all these appointments he goes to, symptoms of the disease, etc. but I don't have the patience to hear him wine about his little problems when I work the night shift 5 days a week as a custodian at the local Walmart (it's a miserable job, but in this economy, I had to take any job I could find). My husband, on the other hand, LOVES Tebbins with all his heart. He practically encourages Tebbins to act like a bafoon, and is constantly undermining my authority. If I say Tebbins can't go to his appointment because he needs to fold laundry, my husband always gives in and lets him go. (Guess who then has to fold the laundry) My husband works at a local driving school as a driving instructor and serves part time in the National guard. I like my other children, I really do. I always get them ice cream and forget to get ice cream for Tebbins. He just plain sucks and I don't know if I have the courage to tell him how I feel. However, as his mother, I feel that I should be honest with him. I really want to kick him out. What should I do?

    Thanks,
    Susan

    • ANSWER:
      wow, lady i can't believe what you're saying. how can you hate your own son?!?!?!? i thought that was impossible? and you "like" your other children!?? not love?!? what is that? i think you need to seek help. that is definitely not normal!

  45. QUESTION:
    how can i tell that i am almost full indian?
    My grandma's grandpa isl 100% blackfoot/blackfeet indian(on my mom's mother side) and my grandpa look almost like a full blood indian we don't know what tribe he is though he's either Cheyenne or Cherokee. my mom has got really dark skin and black hair dark eye's high cheek bone's and my grandpa's got the same but he's darker a little and has blue/green eyes. me my self have the same as my mother but i don't have to skin that dark anymore i have a tint but i am sick with anemia and lupus and lupus is also another native american trait i would love to find out for sure. i would be so happy cause i love all the indian cultures i studied half of them. if i have to do the blood test and where do i go to get it done at?

    • ANSWER:
      You are native american if you are enrolled in a tribe and are part of the culture, and a participant in the community. If you are not, even if you are "full-blooded", you are not considered native american.
      That's not what you wanted to hear, but that's the truth.

      That's why it annoys me when people come up to me and say "I'm Indian, too! my great - grandma was cherokee", as if that should mean something to me.

  46. QUESTION:
    How to tell the difference between butterfly rash and general red cheeks?
    Recently I have this unexplained rash on my neck and the lower part of my face, it did not itch or have any pain, it was just these red blotches, very slightly raised. I went to the doctors a couple of times and they had no idea. It is still there but less obvious now.
    But recently after having other problems, I came across a website about lupus, and looking at the rash it looks like what I have, plus quite a lot of the symptoms... Over the last few months I have not felt very well at all.

    I do have a redness across my nose and cheeks like the butterfly rash, but how can I know if this is all just in my head and actually I just have rosy cheeks, or if this actually is this rash.
    Plus I do get swelling and pain in my joints, but I am only 16.

    • ANSWER:

  47. QUESTION:
    How do I tell my family to quit trying to bum my pain meds!?
    I am disabled with lupus. I've had both knees replaced. And I also have a severely herniated disk in my back. I'm almost always hurting at some place on my body.

    My doctor writes me Lortab 10's. She writes me two per day. I am sure I could get more, but I am very careful of becoming addicted and building a tolerance to pain meds. So, some days I only take one....someday's none.

    My problem is that once word got out that I have them....everyone & their brother is always asking me for one....or six!

    The worst thing is....that it's usually my own family! They're not drug addicts or anything....but for some reason they've started thinking of them as being about like asking for a tylenol.

    I want to scream "Hell No!".....but when ur brother comes to ya...saying his tooth hurts & he can't afford to go to the dentist...it's hard to say no. In his case....he didn't go to the dentist for months...cause he knew he could hit me up for pain meds.

    And that is just my brother! I have, at least, three people asking me for my pain meds all the time! And I know if I simply say "NO" they're gonna get pissed at me. :(

    • ANSWER:
      Tell them that you've went back for so many refills that your doc cut you off. Tell everyone this story who asks you and say "Thanks for getting me cut off- I gave away too many and now I can't get more." Maybe they'll stop asking. AND, genius, stop bragging about the pain killers that you get- what do you think is going to happen? They know you have them because you're the one blabbing. JUST SAY NO when they ask!!!

  48. QUESTION:
    Can a corticosteroid drug cause your blood pressure to rise drastically?
    I'm being treated for lupus with prednisone. Before I started taking this medicine, I had no blood pressure issues. Over the past two weeks, my blood pressure has been spiking. Last night it was 205/125 and that is a first for me. I am now told it could be worse and keep an eye on it. Well, I am just now wondering if it is the prednisone since it is a corticosteroid. I'm not sure how it works. Does anyone know?

    • ANSWER:
      Steroids like prednisone if given long term can cause increased blood pressure chiefly due to fluid retention which is associated with sodium retention.
      Similarly sudden withdrawal of a steroid can cause a dangerous fall in blood pressure due to suppression of the adrenal gland. That is why withdrawal of steroids is done slowly.
      In your case the steroids have an effect in raising the blood pressure, but there may be additional causes too.
      You should inform your physician and get yourself investigated, but do not stop or reduce the steroids on your own.
      I am a medical doctor.

  49. QUESTION:
    update lupus please read and help me.God Bless?
    well I went to my family dr and he read the ANA results I told him how upset i was ,by the dr that said I had lupus,well in aug my ana was 436 in nov it was 274,not to mention you cannot look at that and say I have lupus,and when I stand from a sitting position my leg hurts for 1sec then Im fine,first I was told it was brusitis.anyway I will be meeting a new rhetologist in Jan,in the mean time does anyone belive I can wash my blood by detox,take lots of vit c,iron.There is a detox called cape aloe ferox I want to take that to wash my blood,my fam doc said I should not take the plaqenil,if I had lupus it would be mild so she should not have given me plaquenil,I really learned dr are just like me,I allways looked up to them like they were miracle workers but they experiment on you till ur all better thats all.anyway why would my ana go up then down like that what does that mean.

    • ANSWER:
      1. The ANA is ONE of the criteria used to diagnose lupus and the ANA can fluctuate.
      2. Lupus varies from patient to patient. No one med works for us all. Doctors have to experiment.
      3. Bursitis is inflammation of the sac in the joint. Lupus is an inflammatory disease that can cause that.
      4. You cannot "wash" your blood. Lupus is a combination of genetic predisposition and something that triggers the lupus. Be careful what "natural" things you take as some of them can make the lupus worse. Lupus is an autoimmune disease.

  50. QUESTION:
    Butterfly rash and itch? Lupus?
    Hi. I have been recently diagnosed with lupus, and I have a butterfly rash that itches. I was wondering if this is normal since I have read that they are not supposed to itch. Also, how do you take care of your rash with lotions and facewash? My doc. told me to wear sunscreen. Many thanks.

    • ANSWER:
      I would go my doctor's advice.


How To Get Diagnosed With Lupus

What is a herniated disc?

You've probably heard people say they have a "slipped" or "ruptured" disc in the back. Sometimes they complain that their back "went out". What they're most likely describing is a herniated disc. This condition is a common source of back and leg pain.

Discs are soft cushions found between the vertebrae that make up the spinal column (your backbone). In the middle of the spinal column is the spinal canal, a hollow space that contains the spinal cord. The nerves that supply the arms, leg, and torso come from the spinal cord. The nerves from the neck supply the arms and hands, and the nerves from the low back supply the butt and legs. The discs between the vertebrae allow the back to move freely and act like shock absorbers.

The disc is made up of two main sections. The outer part (the annulus) is made up of tough cartilage that is comprised of series of rings. The center of the disc is a jelly-like substance called the nucleus pulposus. A disc herniates or ruptures when part of the jelly center pushes through the outer wall of the disc into the spinal canal, and puts pressure on the nerves. A disc bulge is when the jelly substance pushes the outer wall but doesn't completely go through the wall.

What do you feel?

Low back pain will affect four out of five people during their lifetime. The most common symptom of a herniated disc is "sciatica". Sciatica is best described as a sharp, often shooting pain that begins in the buttocks and goes down the back of one leg. This is most often caused by pressure on the sciatic nerve that exits the spinal cord. Other symptoms include:

a Weakness in one leg or both legs
a Numbness and tingling in one leg (pins & needles)
a A burning pain centered in the low back
a Loss of bladder or bowel control (seek medical attention immediately)
a Back pain with gradually increasing leg pain.

(If you have weakness in both legs. Seek immediate attention.)

How do you know you have a herniated disc?

Your medical history is key to a proper diagnosis. A physical examination can usually determine which nerve roots are affected (and how seriously). A simple x-ray may show evidence of disc or degenerative spine changes. An MRI (magnetic resonance imaging) is usually the best option (most expensive) to determine which disc has herniated.

Why do discs herniate?

Discs are primarily composed of water. As we become older (after the age of 30), the water content decreases, so the discs begin to shrink and lose their shape. When the disc becomes smaller the space between the vertebrae decreases and become narrower. Also, as the disc loses water content the disc itself becomes less flexible.

While aging, excess weight, improper lifting and the decrease in water in the discs all contribute to the breaking down of discs, the primary cause of a herniation or bluge is uneven compression and torsion that's placed on the discs.

This uneven pressure is caused by imbalances in muscles that pull the spine out of it's normal position and then your body is forced to function in what I call a physical dysfunction. Every human being develops these dysfunctions over time and eventually they cause enough damage to create pain.

The best treatment options

When it comes to treating a herniated disc, there are traditional treatments such as ice/heat, ultrasound, electrical stimulation, cortisone injections, anti-inflammatory medications and even surgery. While these may deliver some relief, it will usually be temporary if at all.

But the major problem with these traditional treatments is that they can't fix or heal a herniated disc as they do not address the actual cause of the problem. For example, even if you were to have a surgery and get some pain relief, the fact is the dysfunctions that caused the disc to herniated in the first place are still there and if not addressed, they will continue to place uneven pressure and strain on the discs and sooner or later you will likely have another problem with that disc, or others.

Without identifying and addressing the underlying cause of the problem, which is the physical dysfunctions caused by imbalances in muscles, you will likely continue to suffer with this condition and the continuous flare ups for years.

Unfortunately, most doctors, chiropractors and physical therapists don't spend time or focus on identifying the physical dysfunctions that are responsible for the condition so most people end up jumping from one useless traditional treatment to the next and suffer for months or years unnecessarily.

If you have been diagnosed with a herniated disc, or are wondering if your back pain may be caused by a herniated disc, either way you must identify and address the physical dysfunctions that are causing your pain.

Frequently Asked Questions

  1. QUESTION:
    I was diagnosed with lupus. My case worker wont allow me to be on?
    I dont get anything, no check, no food stamps, no nothing. I asked about the medical card due to my illness and she said I couldnt have it because my boyfriend makes to much money 200 dollars more than what is allowed. Even though we live together and have two kids (I dont work to stay home with them). Is it fair for them to count his income against me we are NOT married. I just dont understand how this is fair, Im not asking for a free ride just help with the lupus. What do I do?

    • ANSWER:
      I know it is unfair, however each state has different laws. I don't know what state you live in, but I know some states count household size, some decide by household income, or if your married. I live in CA, and decide by marrige. I knew a couple that divorced after 40 years so they can get help. So I assume you dont live here. NJ for example goes by household income. So it depends on state. It is not always fair, but it is the way it is. Some states even count the fact if you own a car or a house.

      I also have Lupus, and when I was first Diagnosed and lost my Job was turned down because I was married, and my husband made a few hundrad too much. Even though we could barley feed our kids.

      I do belive you can appeal, but I do not know what good that would do. probablly not much. There are some charities, like Catholic charities (you dont have to be catholic) that can help with food, maybe even utilities for a few months, but thats not a long term solution. another, is if your boyfriend works a lot of overtime, is to have him cut back, but that still does not gaurentee long term state aide. so Im sorry, there really is no long term solution to your problem. I know many know how to manioulate the system, I not one of them. I do understand your need though. Many states have a program called WIC or somthing like it, for mothers with children under 5. you just need to contact a social worker and ask about WIC or a wic like program, under that system, regardless of income they provide staples like milk, bread, I think formula eggs, cheese, even diapers, for people with children under 5. it may just take a few phone calls to the right people in your state.
      I wish I had better news and more info for your state.

      Good luck
      Chris

  2. QUESTION:
    How long can a dog with lupus survive?
    My 10-year-old lab mix has been tentatively diagnosed with lupus (or similar auto-immune disorder). He is on prednisone, which really helps his mobility but he also has terrible scabby patches of skin.

    Has anyone been able to keep an older dog with lupus going for a while? We are hoping for at least one more summer with him, but we will have to reconsider if the prednisone stops working and he gets lame again.

    • ANSWER:
      My akita is auto immune but doesn't have lupus. She was diagnosed 4 years ago and is now 7. I did however discuss with my vet a type of steroid that a dog could be on long term that doesn't have the same side effects as prednisone. The dog would need to be weened off the pred first. The downfall to the steroid was that it wasn't an immediate releif like the pred and it would need to build up in the system (i'm sorry i cant remeber the name of it). My thoughts would be to bring it up with your vet and see if it's a possibilty after your dog is stable on the pred. I also do not vaccinate. Not even rabies. It would over stimulate her immune system and kill her. Look into yucca root as well. It works as a natural steroid without the side effects, it's not as potent but could be used for comfort in the end. Best of luck.

  3. QUESTION:
    How do you describe Lupus to someone?
    I was diagnosed with Lupus last summer. I was engaged a the time, and would have hoped my fiancee (now husband), would have researched it a little, but I really don't think he understands what I deal with on a daily basis. How can I get him to understand that there are days when I can barely drag myself out of bed?

    • ANSWER:
      Sorry to hear you have Lupus , so does my daughter. She got it when she was a teen and she's 31 now. I describe it by saying the body is turning on it's self. That's what is happening. It's a chronic inflammatory disease. Your immune system loses the ability to tell the difference between foreign substances (antigens) and it's own tissues and cells. Do you have DISCOID or Systemic? Contact your local Lupus Foundation for free information. Also Internet http://www.lupus.org I wish you all the luck and keep your chin up and be a fighter. My prayers are with you. You can contact me if you like.

  4. QUESTION:
    i have just been diagnosed with lupus. 17 yrs old?
    hello friends. im a 17 year old girl who has just been diagnosed with lupus....and ill be honest.. im really worried about it. however. life is beautifully short. so im determined to learn as much as i can about it and get stuck in to fixing it. Im still not entirely sure what lupus involves, its effects, and how its dealt with........im open to anything. and every bit of help would b absolutely wonderful!.......what exactly is it? what does it mean? what can i do to help myself?.....thank you .

    • ANSWER:
      Hi Sally,
      My wife was diagnosed with Lupus at age 15 and is now 30. It can be difficult and scary when you're so young and told that you have something that is going to plague you for the rest of your life.

      First the info on Lupus. As mentioned above, Lupus is an auto immune disease which means that the body's own immune system is attacking both good and bad cells. This causes inflammation and pain and also damage to organs. Lupus can attack the joints, kidney, heart, liver, brain, GI tract, etc...it is called Systemic for this reason. Lupus affects everyone differently, this is why it can be very difficult to diagnose and treat. Some people only have joint pain and fatigue while others, like my wife, have severe organ involved Lupus.

      Lupus is treated with a variety of medications and lifestyle changes. First prednisone may be given to reduce swelling and joint pain. There are some very serious side effects to prednisone so your doctor will want to have you on the smallest dose possible for the shortest amount of time. You will have to taper off this medication and it is very important to follow your doctors instructions perfectly with this drug. Another medication that is now being used is Cellcept. This medication is an anti rejection medication that was initially used for people who had an organ transplant. It is an immuno suppressant and will help to calm your immune system so that it doesn't attack itself. This medication can make you more prone to illness and you should avoid people who are sick when taking it.

      If your Lupus progresses, drugs like methotrexate and Cytoxan can be used to help stop damage to organs like the kidneys. These medications are powerful and also have side effects. Cytoxan can cause sterility so you only want to use this as a last resort. Lastly another medication that is showing pretty good success so far is Rituxan. It is also an IV chemotherapy agent but has much fewer side effects.

      Other medications will be given if warranted and if other systems are affected, such as warfarin (a blood thinner), blood pressure medication, heart medication, antibiotics, etc.

      Lifestyle changes include staying out of the sun (the sun's rays damage your DNA and cause the immune system to react...this is very bad for a Lupus patient). You shouldn't lay out nor go out of the house without sunblock. My wife likes to use sunblock lotions that double as facial moisturizers such as Oil of Oley. Also it is important to watch what you eat. Maintaining a healthy diet and staying away from fast foods is very important.

      OK, enough of the can'ts...here are the cans'

      We have a beautiful life, in spite of my wife's Lupus. Even after being diagnosed at age 15 she played basketball and was on two State Championship teams. She graduated from college and went to dental school. She is now a practicing dentist. We have two beautiful adopted children and live life to the fullest each and every day. Sure there are times when she is too tired to get out of bed, or too sick to do anything. Those are the times that we stay in and watch a movie. Other times she is full of energy and we soak up every minute of the day.

      It is important to not let Lupus run your life. You are in charge of it. Take control of this disease and there is nothing you cannot do, even if you have to take a different path than others may. You need to get to know your doctors like they're your best friends because they will be. Feel comfortable talking to them about anything and everything because they are going to be the ones who can best tell how to treat you.

      Joining a support group will help too. People there can give you real world advice and lend you the ear and shoulder you may need occasionally.

      If you ever have any questions or need someone to talk with, my wife and I are always available to you...any time. We have been through pretty much everything that has to do with Lupus together (I've been with her since her first diagnosis at age 15). Our email address is tandd2@sbcglobal.net.

      One last thing...you need to make sure your doctor tested you for Antiphospholipid Syndrome (I know it's a mouthful..it's known as APS). APS is a secondary disease that often piggybacks with Lupus and many doctors fail to test for it. It is a simple blood test but it is specific so the doctor needs to know to request it. Make sure you ask. APS is much more life threatening than Lupus. It causes blood clots and is very serious. Most of the deaths from Lupus are attributed to APS. Treatment for APS is a blood thinner like warfarin/coumadin (my wife has APS too). This is so very important...don't just assume that your doctor tested you for it. My wife went undiagnosed with APS for 4 years even though she had a blood clot in her leg at age 16. She was lucky that she didn't die as a result...

      I wish you all the best :) !!!!!

  5. QUESTION:
    How long should i allow rhumatologist to make me wait to see 13yr old diagnosed w lupus?
    My 13 yr old was diagnosed through a blood test that she has lupus. She originally had all the symptoms-hence the blood test to confirm -so her doctor refered her to a rhumatologist at a large hospital 60 miles away. The hospital told me that they would contact me when they looked over her charts ( I was told this numerous times over a 2 week period). I continued to call and they told me she was not a priority. My 13 yr old is very ill. She sleeps all the time and has no energy. She has a hard time with daily tasks at this point. How much time should i allow before i get irritated?

    • ANSWER:
      I am sorry to tell you, but sleeping all of the time and no energy are symptoms of Lupus. A rhumatologist is not going to fix that. There is no cure. A rhumatologist is the main doctor for Lupus, but there is nothing he can do for those symptoms. She is most likely in a flare up. But yes, it is important to get her to a doctor, because these symptoms can be part of a larger problem. For myself, when I started to get really sleepy/lathargic it was because there was major involvement in my kidneys, which frequently happens with Lupus patients. If the blood work her first doctor did not alert him to any major organ involvement, and his instruction was to see a Rhumatologist, then I would wait the two weeks. It can take a long time to see a rhumatologist, or any specialtist for that matter, and especially with Lupus, who has no immediate remedy, two weeks will be OK. Just let your daughter rest and take it easy, that is the best medication for her now. If your doctor recommended you to this rhumatologist, it is probebly with good reason. A doctor who really understands Lupus is hard to come by.

  6. QUESTION:
    Anyone diagnosed with lupus, ms, RA, osteoarthritis, Bursitis?
    My mom was diagnosed with all of them including another type of arthritis associated with her psoriasis. Shes in the middle of a severe flare up from her RA and her whole right side is swollen and very painful. she cannot even drive, I (her daughter) just took her to the ER the other night b/c it did get so bad. The doctors pretty much keep telling her theres nothing that really can be done between her arthritis's and her 2 auto-immune diseases. I was just wondering if anyone who has been diagnosed with any of them/ or all of them how they handled it and what they did to help control it. Ive been on the internet for hours trying to search for some stuff and did find some things that help with RA. thank you for anyone who has taken the time to read and answer this.

    • ANSWER:
      She should probably be tested for celiac disease as well. It's an autoimmune disease caused by eating gluten. People with multiple autoimmune diseases usually have celiac disease. But the good news is, that celiac disease is caused by eating gluten, so the cure (yes cure, which is rare in the world of autoimmune diseases) is eating a gluten free diet. If she has this along with the other ones, some of her symptoms could be caused by the celiac and so treating it will help her symptoms to go away. Do a google search for each of those conditions + celiac disease and you will find a multitude of people who have both. One theory is that having celiac disease causes you to have other autoimmune diseases. Others feel that there's no causal link, but they just sort of occur together because if you're prone to one autoimmune disease, you're likely to have another. Definitely look into it, she might really get some relief from her symptoms.

      http://www.celiac.com/articles/85/1/Arthritis-and-Celiac-Disease/Page1.html
      http://www.examiner.com/x-12164-GlutenFree-Food-Examiner~y2009m7d13-New-study-about-Celiac-disease-in-Scientific-American
      http://bastyrnaturalhealthclinic.com/content/view/703/&page=
      http://www.celiac.com/articles/124/1/Multiple-Sclerosis-and-Celiac-Disease/Page1.html

  7. QUESTION:
    What is Lupus, and how treatable is it?
    I was just diagnosed with Lupus, I have a history of Ovarian cancer and have had a full hysterectomy in 04. About six months after my hysterectomy I was diagnosed with LUpus. The problem is I don't know what it is. I get stiff and puffy and my joints are hard to move, but my doctor doesn't go into great detail of what this disease does. All they have done is put me on predsnisone, and draw my blood every once in a while. I have had recent symptoms that are new life blurry vision, headache anf REAL stiff joints.......help me, I don't know where to go

    • ANSWER:
      Lupus is Latin for 'wolf'. It may refer in English to several diseases :
      Lupus erythematosus, the autoimmune disease (also known as systemic lupus erythematosus, or SLE)
      Lupus nephritis, an inflammation caused by SLE
      Lupus pernio, a feature of sarcoidosis
      Lupus vulgaris, a feature of cutaneous tuberculosis.
      Kindly check with your physician, what is afflicting you. And then,
      please visit this webpage, where you will find links, to the particular ailment that troubles you :
      http://en.wikipedia.org/wiki/Lupus
      I pray that your recovery be a speedy one.

  8. QUESTION:
    Am I going to die from Lupus?
    I am 16 years old, and at 14 I was diagnosed with Lupus. My main symptoms are chronic fevers, chest pains when I breathe, extreme fatigue, hair loss (in clumps), and sensitivity to light and weather. My family doesn't have money for medication and I've been going untreated this whole time. I feel like I'm getting worse every day and can't even remember how it feels to be healthy. Whats the likelihood that I am going to die. All answers are greatly appreciated. Thank you.

    • ANSWER:
      Sweetheart, my mom was dianosed with lupus in her twenties, which is still very young. She was told she was going to die quick. That was 30 years ago. She's still alive, and going all the time. Has it been hard? Yes. Find what makes you feel good and do that. For she and I it's hot baths. They take our joint pain down enough to sleep. Get lots of rest. Be peaceful and praying helps. Sometimes just talking it out can really make a difference. Tell your doctor you can't afford the medicine and maybe they can give you samples or get the drug company to help out. They do that in a lot of cases. God bless you!!

  9. QUESTION:
    Help I have a severe case of lupus I can't work How do i put the pieces of my life back together. please help
    i have been though chemo, still on a form of chemo pill form daily also taking steroids there is no way around getting off the steroids. I have tried working and make it about two to four weeks then end up in the hospital for a month. I have no financial help I'm 44 years old. I should also mention that when I was diagnosed with lupus with cns and intercranial hypertension. I lose my eye sight with no warning. I'm crying everyday because I'm so worried about my future. I didn't think that I would still be here. Was told that my lupus (other health issures) that I would no live to see 40 years old. Well that is not the case. 44 know and seem lost. I just worry all the time that I will never be financial secure. I can barely afford to feed myself let alone anything extra. I'm college educated. Can anyone offer any advice or any idea that someone may have to help. I have alot of family but they feel that I'm and adult (on my own)
    don't know where to turn or what to do. thank you

    • ANSWER:
      Not only is lupus debilitating, but then you have people in Yahoo answers trying to sell you stuff or get you into pyramid schemes.

      1. Apply for Social Security disability. It takes time and you will probably be rejected at least twice. They have changed the criteria for lupus recently. That might help. I suggest getting a SSD attorney to give you a free consult before you even begin. Some of them will do that. Keep calling until you find one who will.

      2. Find out if there is an indigent health care program where you live. I know it sounds horrible. I, too, am college educated and had a wonderful career and ended up just about like you for quite while. Just do it.

      3. Apply for food stamps.

      4. See if there is housing assistance.

      5. Look into the SHARE grocery program

      6. Apply for meds with pprax or needymeds. If you make less than 200% of the poverty level you will most likely get assistance paying for your meds

      7. When you see your doctors, make sure they write down the struggles you are having. Social Security will request copies of ALL your medical records. Make sure what's in them is in your favor.

      8. You have lupus, it doesn't have you. Try to remember that.

      9. About the one who said go off the chemo, I am assuming that's cellcept or imuran. Don't do it. That person has no clue.

      10. You sound like you are a proactive person in a tough spot. Feel free to email me.

      Best wishes.

  10. QUESTION:
    my friend was diagnosed with Systemic lupus erythematosus?
    female. shes 18 right now.

    i dont get it. is it treatable? if so, how long can she expect to live? i dont understand exactly...

    • ANSWER:

  11. QUESTION:
    Can you die from Lupus disease?
    apparently, someone close to me, who is 14, has been diagnosed with Lupus disease. We're going to go to a few other doctors to get some more opinions. Not for sure yet.

    But on average how long does this disease let you live? 5? 10? 15? 20 years?

    • ANSWER:
      Here is a very comprehensive website that outlines the symptoms, treatments (there are no cures, but there are treatments that greatly minimize the symptoms), and areas for concern.

      http://lupus.webmd.com/default.htm

      No one can really tell you how long someone with Lupus will live. It all depends on the severity of symptoms, response to treatment, and other factors (other health conditions, etc). There are three different types of Lupus, each with their own symptoms and concerns, so your friend's prognosis could vary wildly based on the type.

      I'm so sorry for your friend - but if it encourages you, I have a friend with Lupus who was diagnosed in her early teens as well. She has coped with it extremely well, and she's now 27 and living a full and happy life. It can be managed, and it is not a death sentence.

      Best of luck to you and to your friend.

  12. QUESTION:
    Can lupus appear after childbirth?
    I am 21 and had my third child 4 months ago. About a week and a half after she was born i began developing what i though were allergies- stucfy/runny nose all day and night and headaches. About a week after that I began getting these bumps on my eye lash lines. I thoufht they were styles- they would last a week causing watery eyes, red eyes, itching, pain and slme times inability to epen eyes because the light hurt too bad. This remained along with the "allergies". When one stye left another one came... though the severity of began to decrease. This was immediately followed by bad knee joint pain and hair loss.. i cant wear my hair down anymore because hair ends up in food, all over my clothes, all over my things ect... and to top it all off ive been getting headaches daily. Not severe but constant and i never got head aches before. I am also getting bruises up and down my legs and arms- either from slight toughing or i dont know the origin. Could thos be lupus? I dont have insurance right now nor a lot of money tp go see a specialist with. How is lupus diagnosed?

    • ANSWER:
      You need to go to the doctor! You have symptoms that could be dozens of things, many of them easily treated. Don't wait and let things get so bad you can't be helped. BTW, after childbirth your body goes into a hormone craze and loss of hair is not unusual.

  13. QUESTION:
    Ive had lupus symptoms for 4 months..?
    Im 21 and had my third child 4 months ago. About a week and a half after she was born i began developing what i though were allergies-stucfy/runny nose all day and night and headaches. About a week after that I began getting these bumps on my eye lash lines. I thoufht they were styles-they would last a week causing watery eyes, red eyes, itching, pain and slme times inability to epen eyes because the light hurt too bad. This remained along with the "allergies". When one stye left another one came... though the severity of began to decrease. Teh the extreme fatigue began to set.in.. I can sleep 10 hours a night and still fall asleep just sitting at the table writing and i nap twice a day (very understanding husband just watches the kids and helps with housework). This was immediately followed by bad knee joint pain and hair loss.. i cant wear my hair down anymore because hair ends up in food, all over my clothes, all over my things ect... and to top it all off ive been getting headaches daily. Not severe but constant and i never got head aches before. I am also getting bruises up and down my legs and arms-either from slight toughing or i dont know the origin. Could thos be lupus? I dont have insurance right now nor a lot of money tp go see a specialist with. How is lupus diagnosed?

    • ANSWER:
      The eye thing is not a normal symptom for lupus. But is sounds like you have a chronic eye infection going on .Lupus does not cause nasal congestion. But people who do have lupus have a harder time fighting off these kinds of infections.

      There are many things that could be causing your symptoms. You would need to start with a thorough check up and blood work. If your regular doctor thinks it is lupus, your next step is a rheumatologist. (You can find one at www.rheumatology.org.) It can take several months to get an appointment.

      Lupus is diagnosed by
      1. Thorough medical history
      2. Symptoms
      3. Variety of medical tests
      4. After ruling other things out that can cause the same symptoms

      It is not a fast process.

      Quest Diagnostics has a patient assistance program that might help pay for lab tests. Learn more here http://www.questdiagnostics.com/patient/FinancialAssistance/index.html

      You may be able to get help paying for doctors if you go through your local free clinic (not the health department). Call 211 for information in your area.

      You can get help paying for medication at www.pparx.org.

      You need to get medical attention and you need to do it soon. You won't be much good to your three babies if you die. Try the resources I listed here.

  14. QUESTION:
    Is lupus with Transverse Myelitis deadly? please help im scared?
    for my friend, she's 19 and was diagnosed with lupus with Transverse Myelitis when she was 12. she's on meds and receiving treatments for it, but said she read after being diagnosed the average life span is only 10 to 11 years. is this true? how deadly is it? Cuz that would mean she's only got a few more years to live. please help :(

    • ANSWER:
      This is a very tricky illness to have. I hope your friend is receiving the proper care from the proper specialists.
      I have had the illness since about the same age, they had informed me that I would not live past 35 and if I was luckey to pass that age I would be in a wheel chair.
      I was devastated, I planned my funeral, bought a cemetery plot, made sure all my affairs were in order, then I was diagnosed with cancer, on my 30th birthday, the first of many to come.
      I have had many flares in my time, many difficulties, but I have been fortunate to be able to over come the illness, it has many obstacles which can pop up at any given time.
      I would help your friend as much as possible, alot of help and support from all of those around her. If she sits around and waits to die them mentally and physically she will.
      I do not know how far along your friend is nor do I know what type of meds she is on or anything else but if she has the will to live and deal with each flare one step at a time this might help her.
      If you need anything just let me know. I will keep you and your friend in my prayers.

  15. QUESTION:
    can someone tell me about lupus?
    so today my dad informed me that my younger cousin was diagnosed with lupus
    apparently 3 of the 4 different kinds

    and i want to know more about it, like is there a high chance she could die? how would one be medicated for it? etc

    and also, does it run in families? like is there a higher chance that someone else in the family might get it then a normal person

    • ANSWER:
      To add to the previous answer: People with lupus who die are the ones who don't follow their doctors advice and don't take their prescribed medications, so they suffer from kidney damage and other organ problems. People are so afraid from the medications they end of dying from organ failure. Just make sure he takes the darn medications. The side effects can be dealt with through diet and exercise.

  16. QUESTION:
    Does anyone here have Lupus SLE?
    im 21, and was just diagnosed with lupus a few months ago. im struggling to find a way to continue school and just life in general. I get tired alot and my legs hurt randomly..sometimes so much I cant even walk right. Anyone else has experience with lupus and can offer me some advice? Does this get better...how many times has it been active and how do u know if ur in remission? i think im in remission, but im so scared that ill go back to school and then itll be active again and ill have to quit again.

    how do u guys deal with this back and forth thing? how do u ever get anything done?

    • ANSWER:
      I have both Lupus and APS. It is hard to deal with the ok one day...not the next. I am not in 100% remission very often. That doesn't mean you won't be. I had to go to college part time for awhile. I just kept getting sick.

      Here are some tips that I have learned along the way:
      -Find a good Doctor who knows about Lupus. You may need to change doctors.
      -Learn as much as you can about Lupus. The more you know about YOUR illness, the better you'll understand what signs to look for and what to tell doctors/nurses if ever needed. Try to find websites that site their information and are medically sound. Doctors are more willing to accept information that has its sources cited, even better if they are medical journals. Highlight important sections that you want to point out to your care team.
      -Be prepared for your doctor's appointments. Write your questions down and get answers to all of those questions.
      -You may need to be aggressive to get the treatment that is best for an Lupus patient. If you find yourself in the situation, doctors are more willing to accept information that has its sources cited, even better if they are medical journals. Practice what you want to say ahead of time just like you would a speech.
      -Remember, the doctors are working FOR YOU. If they are not willing to work with you, then fire them and find another doctor who will.
      -Journal your symptoms and INR readings along with Coumadin/Warfarin doses. Also take pictures of any rashes and discolorations that you may have. They may not be there when you see your doctor next.
      -Find a good therapist. Lupus is a chronic, life-threatening illness and it always helps to have someone impartial to speak to.
      -Learn the symptoms of a clot, heart attack, TIA, stroke, and bleeding. Knowing these could save your life! These are all possibilites with Lupus.
      -Inform family and friends on the symptoms of the above and tell them what signs to look for. This could also one day save your life!
      -Wear a Medic Alert bracelet that states you have Lupus. This WILL be important in case of an Emergency. Keep your information up to date on the Medic Alert website.

      The Do Nots:
      -Do not smoke. Quit if you do smoke.
      -Do not take birth control pills. They will increase your risk for a blood clot.

      -Continue to drink plenty water, exercise and watch your weight.
      -Make sure to take your Medication at the same time everyday. Consistency is important later on if the memory issues and brain fog are part of your symptoms.
      -Buy a Nurses Drug Book, it will help you learn about different interactions with your medications.
      -Join a support group. There are people out there who are going through the same thing that you are. It will help to share experiences with people who understand.
      -On long trips (flying or driving) get up and move around every couple of hours.
      -Strengthen your spiritual life. Whatever that may mean to you.

      Know that you are not alone. Your symptoms are real.

  17. QUESTION:
    Lupus Help!!!???? Ways to Diagnose?
    My mother is diagnosed with Lupus and around the age of 15 I started showing signs of it.

    I was diagnosed with anaemia, severe depression, and arthritis all at the age of 14. Along with other female issues. I also have asthma.

    The doctor I had did some small amount of testing for Lupus but basically lost interest and told me that it was in my head. He swore up and down it didn't run in families and I was fine.

    More recently I've started to become incredibly ill. My body aches so bad it's hard to move, I'm so depressed that I can barely live with myself, which is also accompanied by panic attacks. About 9 months ago at 21 I was diagnosed with high blood pressure which has been gotten under control. I'm having surgery for endomitriosis next month. Along with the fact that my hair seems to be falling out.

    I'm wondering if maybe I should start looking into being checked out for Lupus again? I don't know much about the testing of it or how to go about it in the UK?

    • ANSWER:
      go back to your doctor and ask to be refer to the nearest lupus clinic.
      for some test.there are a lot of test that will show if you have lupus.i was diagnosed with all kind of things before i was diagnosed with lupus[sle] best of luck

  18. QUESTION:
    I'm on oxycodone.. I have Lupus and Fibromyalgia.. I'm still in horrid pain...?
    I was diagnosed with Lupus(SLE) this year and Fibromyalgia a few years ago, but believe it all started after a bout of very serious(hospitalized because of spleen and liver) mono when I was 17yrs old. I have been on percocet 10/325 every 4-6 hour max 4 day for the last 4 YEARS.. recently it got switched to 20 mg of oxycontin twice a day with oxycontin IR 5mg also twice a day... problem is it's still not working and I'm sitting here typing with tears running down my cheeks... I put a call into my doctor..no call back yet... It's full body agony.. I can't take this anymore...I don't know how to tell my doc I need more meds or different, or something... I have tried yoga, nerve blocks, operations, therapy, etc... in the past few years... nothing works, I have three children who need me and all I want to do is curl up in a ball and die... I don't know what to do anymore... Can anyone advise?
    I just got a call from the nurse, not the nice one, even though the dr. said to call if it didn't work so he could adjust the dose, she says he said he's not changing anything and to call my rhematologist( who doesn't want to be responsible for pain management) if that's not ok with me...
    Plus I did go to a pain clinic for 3 yrs, after many different treatments, nerve blocks, operations etc..., they tried to get new equipment for their office by saying I needed to have a certain operation( that I found out I didn't need from 2 dr.s) so I stopped going there.. Primary doc( the one I tried calling) tried to get me into 3 separate pain clinics.. all have said they can't do anything for my condition except meds, too advanced in disease too help, so they won't take me. That's why I get meds from primary now... and now no help is coming, who knows if she even talked to him..probably not

    • ANSWER:
      My prayers are with you

  19. QUESTION:
    I'm on oxycontin.. I have Lupus and Fibromyalgia.. I'm still in horrid pain...?
    I was diagnosed with Lupus(SLE) this year and Fibromyalgia a few years ago, but believe it all started after a bout of very serious(hospitalized because of spleen and liver) mono when I was 17yrs old. I have been on percocet 10/325 every 4-6 hour max 4 day for the last 4 YEARS.. recently it got switched to 20 mg of oxycontin twice a day with oxycontin IR 5mg also twice a day... problem is it's still not working and I'm sitting here typing with tears running down my cheeks... I put a call into my doctor..no call back yet... It's full body agony.. I can't take this anymore...I don't know how to tell my doc I need more meds or different, or something... I have tried yoga, nerve blocks, operations, therapy, etc... in the past few years... nothing works, I have three children who need me and all I want to do is curl up in a ball and die... I don't know what to do anymore... Can anyone advise?
    I was on prednisone for 11 yrs.. as a result I have osteopenia( swiss cheese for bones)
    I just got a call from the nurse, not the nice one, even though the dr. said to call if it didn't work so he could adjust the dose, she says he said he's not changing anything and to call my rhematologist( who doesn't want to be responsible for pain management) if that's not ok with me...
    Plus I did go to a pain clinic for 3 yrs, after many different treatments, nerve blocks, operations etc..., they tried to get new equipment for their office by saying I needed to have a certain operation( that I found out I didn't need from 2 dr.s) so I stopped going there.. Primary doc( the one I tried calling) tried to get me into 3 separate pain clinics.. all have said they can't do anything for my condition except meds, too advanced in disease too help, so they won't take me. That's why I get meds from primary now... and now no help is coming, who knows if she even talked to him..probably not

    • ANSWER:
      Here's some all-natural supplements that are very helpful when managing both lupus and fibromyalgia.

      GLA Complex: nature's steroid; insulates the fibrous sheath of the nerve bundles - very important for lupus

      Vita-C: strengthens the integrity of connective tissue; antioxidant; anti-inflammatory

      NutriFeron: strengthens the immune system

      OsteoMatrix: muscle relaxant

      Zinc Complex: protects skin & organs; promotes healing

      Hope this is useful and feel free to contact me with questions.

  20. QUESTION:
    Lupus questions?
    If you are diagnosed with lupus, since it is incurable, does it mean that you are going to die? I know they can treat the symptoms, but how long can you live with it for? Is it contagious in any way? My girlfriend was just diagnosed with it...can I get it from kissing her or putting creams on her rashes or anything like that?

    These questions, probably sound pretty ignorant, but I guess that's why I'm asking! Any additional information anyone might have would be appreciated! thanks

    • ANSWER:
      Lupus is a non contagious autoimmune disorder. One thing you might want to look into... Most modern medicine techniques only treat symptoms not causes. There is a lot of belief out there that most auto immune disorders and other non pathogen diseases are the result of being exposed to chemicals in our modern food supply or even because of the foods we choose to eat. Changing the diet can cause drastic improvements in these diseases. Check out www.mercola.com and also the book "the metabolic typing diet" by William Wolcott.

  21. QUESTION:
    Diagnosis of lupus?
    Please do not give me information that you got from google. I know what lupus is. I know what the symptoms are. I am going to the doctor soon. I'd prefer that you answer only if you have lupus or you are a health care professional.

    How is lupus accurately diagnosed? Should I see a rheumatologist to ensure an accurate diagnosis? Does it sound like I may have lupus?

    I'm a white 17 yo female. I've been having moderate to severe knee pain and sporadic episodes of breathing problems, pleuritic chest pain, and random joint pain esp. in the hands, wrist and hips for many years.

    7 years ago I was diagnosed with lupus with a blood test (not sure what type). Saw a different doc who gave me another blood test (think it was a CBC) and she told me I did not have lupus. Around the same time I was diagnosed with recreational asthma.
    I was diagnosed with osgood-schlatters about a year ago. I think this definitely played a role in my knee pain, but I think something else is causing it too. Children usually only have pain from osgoods for a couple of months and I've had pain for well over 7 years. Also, osgood's pain very, VERY rarely continues after the growth plates of the bone are close, but I recently had X-rays done on my knees after a car accident and they showed that my growth plates are already closed, yet I'm still experiencing frequent bouts of pain.

    • ANSWER:
      Well diagnosing lupus can be tough. Most of the time the diagnosis is based on physical and historical findings (your symptoms, lab values, etc.)
      A CBC can determine whether anemia, a low white count, or a low platelet count, which are common with lupus, are present. There are 11 diagnostic criteria which are used to determine whether somebody is likely to have lupus. If you have at least 4 of the 11, there is a strong chance that you have lupus:
      1)A face rash that is butterfly shaped and covers the bridge of the nose and spreads across the cheeks
      2)A scaly rash that looks like raised, scaly patches
      3)A sun-related rash that appears after exposure to sunlight
      4)Mouth sores, which are usually painless
      5)Joint pain and swelling that occurs in two or more joints
      6)Swelling of the linings around the lungs or the heart
      7)Kidney disease
      8)A neurological disorder, such as seizures or psychosis
      9)Low blood counts, such as low red blood count, low platelet count, or a low white cell count
      10)Positive anti-nuclear antibody tests, which indicate that you may have an autoimmune disease
      11)Other positive blood tests that may indicate an autoimmune disease

      There are a number of blood tests that can be done to determine wheter you have lupus, but none of them are 100% sensitive. The most sensitive is called the Anti-Nuclear Antibody test (ANA). A positive result generally suggets lupus, especially if your symptoms are highly suggestive of lupus.
      There are some other common antibody tests that can be used:
      Anti-dsDNA
      Anti-Sm
      Anti-ribosomal P
      Anti-RNP

      Other blood tests that may be useful are tests that look for general inflammation in the body, like your Sedimentation Rate and/or CRP, both of which may be elevated.
      Your C3 and C4 levels may be checked, too. They're usually decreased in patients with lupus.
      Based on your symptoms and lab results your doctors may also want to do some imaging tests.

  22. QUESTION:
    w/ Lupus: have tonsils removed now??
    I've had problems with my tonsils my whole life. But for some reason, no pediatrician ever removed them. Then the problems stopped for a while and during that time I was diagnosed with Lupus when I was about 14. Now, I'm 21 and starting to have problems with my tonsils again. I desperately want to have them removed, but since Lupus is an immune problem and the tonsils are part of the immune system, I am afraid my Lupus will start to get bad after the tonsilectomy. I am having a hard enough time getting new Doctors I'm seeing to monitor my Lupus for changes. I don't want to make it worse.

    Has anyone with lupus had their tonsils removed as an adult and after their lupus diagnosis? If so, how did it effect you? Please let me know. I want to make the right choice in this matter. And I don't want my lupus condition to get worse. Thanks!

    • ANSWER:
      Your tonsils cease to be a big part of your immune system by the age of 7-8 years of age. That is why they start to atrophy between 7-12 years of age. They are there to help "protect" you when you are younger. By 21 years of age they are merely a nuisance if they are large. Having them removed will not effect your immune system. Just to be sure though, the indications for surgery are, peritonsillar abscess, 4 infections in 6 months or 6 infections in 12 months, Obstructive symptoms such as drooling or sleep apnea. Get referred to an ENT doctor and they will tell you whether you need them out. Good luck

  23. QUESTION:
    Your Lupus Experience?
    Just diagnosed with lupus (dsDNA antibody was positive) but I have to wait a few weeks before the rheumatologist can see me and my primary care doc isn't exactly full of information. So I'm curious about your personal experience with lupus. I know everyone is different, but what has it been like for you?

    1. How long do your flare-ups last and how long do you usually go between flare-ups?
    2. What are your symptoms during flare-ups and how severe are they for you?
    3. Do you have any symptoms at all between flare-ups?
    4. Does your doctor have you on a special diet and/or exercise routine?
    5. Has your lupus affected any of your organs or other systems? Please tell me about that.
    6. Are you on meds? What has that been like for you?
    7. How do you cope and go about your life (work, family, etc.) during flare-ups?
    8. Does your lupus prevent you from doing anything?
    9. How do you deal with the poor memory/concentration and "lupus fog?" Does that improve when flare-ups are over or will they always be there?
    10. What is yor immune system like...do you get other colds, flu, etc. very easily?

    Any additional information you have about your experience would be really helpful. I know about all the informative websites, but they don't tell me anything about a person's personal experience with it.

    Thank you!

    • ANSWER:
      Hello,

      I actually created a Yahoo! account just to answer your question. :)

      1.) My flare-up lasted about 2 months, but I have only had one. It was before and a little after I was diagnosed, which was about a year ago.

      2.) Severe pain in wrists and fingers (my lupus triggers arthritis), fatigue, head aches, nausea, and dizziness.

      3.) I did at first, but my medications are sorted out now, so I have no symptoms at the moment.

      4.) No, although exercise is recommended for lupus. It sounds crazy, but I feel so much better after a work out.

      5.) Yes; I have nephritis, arthritis, anemia, and Raynaud's syndrome. Lupus affects everyone different, though.

      6.) It was hell at first! I was on a very high dosage of steroids, but now it is a lot lower. I take Prednisone, Cellcept, Omeprazole, Hydroxychlor, a multivitamin, and a Calcium supplement. The side affects were bad at first, but that was only because they had me on a high dose to stabalise me.

      7.) I have an IEP for school if needed. Family is supportive. :)

      8.) It affected my fine motor skills before I was on medication. Now, it doesn't affect me much.

      9.) (haven't experienced that)

      10.) Stay away from sick people. My immune system has been ok for the most part, but when you do get sick, it's 10 X worse than normal.

      Additional info:

      A good mental attitude is key. Surround yourselves with loved ones, and don't let yourself feel down! Get involved with the Lupus Foundation. Good luck!

  24. QUESTION:
    I have discoid lupus, I've picked up running recently and now my joints ache...? How to prevent arthritis?
    For those of you who know, lupus affects one's joints. I'm not sure to what extent, but I do know that painful joints in a person with lupus is not a good sign. I haven't had a flare up since I was 6, and I'm 20 now. My immune system has been great, nothing bad or any signs of my lupus being active for 14 years. However, I've recently picked up yoga and running. Running is an addiction for me, I run everyday, about 2 miles a day. However, at night, my ankles have been aching to the point that it is impossible to sleep.

    Due to that, I reduced my running to every other day, about a mile and a half. I don't want to give up running, as my father suggests I do (he fears of me getting arthritis) but I don't want to sacrifice my health either. Is it possible that my sore ankles are a sign of arthritis? I know I'm young, but arthritis often develops in those with lupus. Or, is this pain common for runners? how can I prevent this pain? can I continue to run? How can I prevent getting arthritis as a person diagnosed with lupus? Thank you for your time!

    • ANSWER:
      First off, you are confusing two different kinds of Lupus.

      There are four in total:

      Discoid (affecting the skin)
      Systemic (affecting the entire body, especially the joints)
      Drug Induced (caused by medications - subsides after medication is stopped)
      NeoNatal (newborn with Lupus like symptoms...also usually subsides as the child ages)

      That being said, your joint pain may be normal aches and pains from exercise. However, it is possible that you actually have SLE (systemic Lupus). If this is the case then you need to speak with your doctor about exercise. Something that is low impact is best for someone with SLE.

      Good Luck to you.

  25. QUESTION:
    Symptoms of lupus.?
    I was diagnosed with lupus seven years ago, and so far I have only had arthritis and fatigue. I know that it can also affect the organs but how will I know this? Do I have to have a blood test or will I start to get sick, or what? And does it always end up like that, or can you have a normal life and have lupus. And what is a normal life expectancy?
    I am not on any medications for it, and there is no family history of Lupus.
    Also, can anyone describe the rash that can occur? Is the skin just red and inflamed or is the skin itchy or does it have dry flaky skin? I have a rash near my arm pit and I am curious if it is related to my lupus...

    • ANSWER:
      Wow...I'm sorry for the answers above...some of them are slightly misguided about Lupus...especially the first one. My wife and I have been dealing with Lupus for over 15 years. She has SLE with organ involvement, meaning that her immune system has attacked her organs (kidney and heart so far). There are only two different kinds of Lupus (excluding neo-natal which really isn't Lupus at all), Discoid and Systemic. Discoid only affects the skin and never attacks organs or anything else. It is NOT signified by the 'butterfly' rash that SLE patients can get (my wife has never had a butterfly rash).

      And to dispel another myth...by the person in the first statement who has RA...there are similiarities of RA and Lupus as they both are IMMUNE diseases and share a common symptom, achy joints, but that's where the similarities stop. Collegen has nothing to do with Lupus (I cannot speak for RA as I am not an expert in that disease).

      Study after study has shown that prophalxis antibiotics (given when there is no infection, just as a preventative measure) are NOT indicated in the treatment of Lupus and may actually be detrimental as bacteria become immune to the drug and then there is one less drug in the arsenal to treat any infection that may be brought on by Lupus. So don't rush out to your doctor and demand antibiotics.

      Sorry about that, I had to dispel any confusion that the first answers may have created. Now on to the krux of your question...YES...you can expect a 'normal' life expectancy if Lupus hasn't attacked your organs. Many, many patients with Lupus never have their organs become involved and if they do usually the first ones it attacks are the kidneys. Even though my wife has serious organ involvement she still leads a fairly 'normal' life (other than taking many different kinds of medications). She is a dentist and a mom (both of our kids are adopted) and enjoys life to the fullest. There are times she's tired and needs to take a rest and other times when she's just fine. Stress is a major contributor to Lupus flare ups and worrying about your Lupus may actually make it worse, so don't fret too much.

      You need to see your doctor regularly. You should be seeing a rheumatologist as they are the front runners in treatment of Lupus. They will continue to monitor your blood for specific things such as GFR, Compliment levels and the like and may also take urine tests to check for creatine clearance. These would be initial indicators that your kidneys are in distress.

      Have you ever taken medications? When you were first diagnosed what were your symptoms and how did the doctors treat them? I'll give you a run down on some of the medications you can take for Lupus presently. Hopefully you'll never need them but they can work wonders if your Lupus begins to escalate. Prednisone (steriod used for inflammation...very nasty long term side effects but one of the best for treating flare ups in the joints), Cellcept (inititally used in organ transplants but found to work well in keeping the immune system in check)...it's cousin Myfortic...just time released Cellcept. Cytoxan (a chemothreapy medication used when kidney function is really out of whack, also this medication has serious side effects such as infertility), Rituxan (another chemotherapy medication initially used to treat RA but found to work well with Lupus, much fewer side effects than Cytoxan), Plaquinil (malarial drug that was widely used before Cellcept, that also helped keep the immune system in check, not used by doctors who are current in treating Lupus). Then of course all the other medications used to treat complications of Lupus, blood pressure meds, anti-depressants, etc...

      Sorry to take up so much space but if you ever have any additonal questions about Lupus and it's treatment please do not hesitate to email me. If I don't have the answer I'll find it for you.

  26. QUESTION:
    help! lupus and no one believes me.?
    i have just been diagnosed with lupus.my husband,mother and sister do not believe me.my mom says i am a lying piece of shit and she can not stand me.my sister says the only illness i have is mental. my husband says that i am making it all up for attention and that i forced the doctors to give me 21 prescriptions a day and that i like to take all the toxic meds with nasty side effects.most days i am so sick i just cant get out of bed.my husband says i am just being lazy and dont want to do housework.i have somehow managed to keep up with 2 kids,6 pets and a large house despite how sick i am.my husband is cruel and lazy. i am in tremendous joint pain all day.the pain of hearing my mom and sis call me a liar and the pain of my own mom calling me a piece of shit are enough,then add in my own husband.i can not work because of this disease and so i have no friends,no family and no one at all to talk to.i have never felt so all alone and terrified in my life.my husband comes home from his 8 hour a day job,eats the dinner i cooked and sleeps away the evening on the couch while i continue with dishes,kids,pets laundry and all the other chores i allready have been doing since 4 am.i am exhausted and lonely and terrified and sick of all the meds, and hospitals and doctors.i am just sick of liveing. i ask myself,what for?

    • ANSWER:
      Your mother and sister don't have to understand. Don't even try to explain it to them. It's none of their business. You are wasting precious energy on them.

      Your husband needs a kick in the butt. You are not a slave or a servant, whether or not you have lupus. Your family needs counseling. Sorry, but they do.

      Go here www.lupusflorida.org and click on the "about lupus" tab. Print out the handouts. Give them to your family.

      Go to www.butyoudontlooksick.com and click on the "spoon theory." Print that out for your family.

      They may not respond, but you have done your part. Loving people does not mean being a door mat or a slave.

      Don't do for others what they are perfectly able to do for themselves. 6 pets? Can't the kids take responsibility for part of the care of the pets? It teaches them.

      Stress makes lupus worse. The longer you suffer in silence, the longer you are wiping everyone's bottom the longer it will take to get your lupus under control.

      Email me. You can do that by clicking on my profile.

      Been there. Done that. Got the T shirt.

  27. QUESTION:
    Is weight loss with lupus possible?
    I am a thirty year old mother of one. I was diagnosed with lupus when I was 14. I have gained nearly 100 pounds since! I have tried so many times to lose weight but I always get stopped with a lupus flare. It seems that whenever I change my diet even when I change to healthy foods and enough calories I get sick. I especially have a hard time with exercise. I feel great while doing it but try hard not to do too much. Its really difficult to be overweight and not push myself during workouts. Every program I have ever gone on no matter how gentle causes a flare. A bad bad flare! I am now finally on meds that are suppose to help control the disease and stop the flares. Im worried though I hate going great for two weeks losing ten pounds and getting sick and gaining back 15. I know if I lose weight my symptoms will improve but how do I survive the process? I watch biggest loser and think one of those workouts would land me in the ER!!! I feel three times my age and never have any energy. Can someone offer some kind of advice?

    • ANSWER:
      Yes, it is possible. I have lupus and have lost weight when I needed to. My favorite program is Weight Watchers, but you can make changes that help without the program. They do hvae an online program that is excellent at heolping you make the right food choices.

      1. Don't restrict your calories too much. Your body will automatically slow down your metabolism if you do that.
      2. Eat at least 5 fruits or vegetables each day (not juice). More is better. Your body spends more calories digesting these foods.
      3. Avoid animal fat whenever possible. Stick to white meat chicken or turkey, fish, and beans. Use low fat or nonfat dairy products.
      4. Eat slowly. Pay attention to the taste and texture of each bite of food that goes in your mouth.
      5. Don't eat while doing other things like watching TV, etc. Eat mindfully.
      6. If you are hungry, check in with yourself to find out if you are really tired, lonely, or angry.
      7. Keep a food journal in which you write everything that goes into your mouth
      8. Drink 6-8 glasses of water a day.
      9. Avoid processed foods, fast food, and junk food
      10.Learn to read food labels. You want low fat, medium carbs, high fiber.
      11. Practice portion control. Portion sizes are listed on the packages.
      12. Don't compare yourself to normal people who do not have lupus
      13. Realize that some medications like prednisone and lyrica can cause weight gain no matter what you do. Talk to your doctor about this.
      14. Try to get 30 minutes of cardio activity in at least 6 days a week. You do not have to do it all at once. You can do two 15 minutes intervals, three 10 minute intervals, or you can even just get up and march in place for 5 minutes six times during the day.
      15. Do some strength training every day. When you build muscle, your body burns more calories all the time. Keep a set of 3 or 5 pound weights near your chair or somewhere that you will see them. Several times throughout the day, pick them up and do a little weight training. Again, you do not have to do it all at once.
      16. Do stretching and flexibility exercises. These are really important for lubricating your joints. Yoga, Tai Chi and Chi Qong are all good. You can find DVDs in the library or online. I like the ones at www.gaiam.com
      17. Keep a journal in which you write your thoughts, record inspirational quotes that you come across, and anything else that suits you.
      18. Make concrete action plans each week. Record them in your journal. Choose just one thing each week. Don't try to do something every day. You will set yourself up for failure. You want to build success. Be specific.
      What are you going to do?
      When are you going to do it?
      How often are you going to do it?
      How much will you do?
      How confident are you that you can do this?

      Here is an example:
      What? March in place
      When? After breakfast, lunch and dinner
      How often? 4 days this week.
      How much? 5 minutes each time for a 15 minute total.
      Confidence? 9 on a scale of 1-10

      Another example:
      What? Eat 5 fruits or vegetables a day
      When? 1 fruit for morning snack, 1 fruit for afternoon snack, 2 veggies with dinner, 1 fruit for dessert
      How often? 5 days this week
      How much? 5 servings each day
      Confidence? 8 on a scale of 1 to 10

      If your confidence level is low, then modify your action plan until your confidence level is 7 or better.

  28. QUESTION:
    I have Lupus; my friends are angry that I won't hang out with them?
    I was recently diagnosed with Lupus, which is a serious autoimmune disorder. I have been really sick and exhausted for about a year, but it seems like no one will listen to me. I always tell my friends I can't go out because I am sick, and they respond with "you're always sick" as if I'm complaining about a cold. I really don't understand how to get people to understand how serious this illness is.........I am so pissed at how selfish and dismissive they've been. What can I do? Should I just forget everyone?

    • ANSWER:
      They can't really understand and the fact that we "don't look sick" makes it worse. My own daughter in law, who is a nurse, emailed to tell me I am (1) always busy-well if I don't support myself no one else is going to do it (2) always tired-duh and (3) always under the weather-duh again. It was at that point that I realized other people just can't "get it" even if they want to.

      See them when you can and when you have the energy. Avoid lengthy explanations and especially avoid making lupus the topic of your conversations. You are NOT your illnesss, although at times it feels like that.

      Go to the site below. Christine has lupus and has used the "spoon theory" to explain to people what life with lupus is like. You might give it a try.

      Best wishes.

  29. QUESTION:
    i was just diagnosed with systemic lupus erythmetosis,how do i get help?
    i was just diagnosed with s l e [lupus] yesterday.i am very sick from it.i am scared.i came home from the doctors and tried to talk to my husband to tell him about the diagnosis.he literally would not stand still long enough.i found myself talking to his back whilst chasing him down as he proceeded with lawn chores.he does not seem to understand just how serious it is.neither do my kids,who are 15 and 13.they act like lazy spoiled brats.my son is awful.he berades me,calls me names and is just plain cruel.my daughter is extremely lazy.my husband doesnt care.i am having a really tough time in keeping up with my housework and such.i have asked my husband to help so many times that i just do not bother any more.my extended family does not care much either.for example-my mother in law was suppossed to take me to my doctors appointment yesterday because i am feelin too ill to drive.she never showed so i drove myself.my mother was planning a cruise for the past year and i agreed to petsit 7 cockatiel birds for her.this was a year ago before i got sick.she still forced them on me to take care of for 14 days whilst she went on a cruise,even though i have been living in the hospital for three months,even though she knows how sick i am.my sister calls me to ask me to babysit her 4 kids all the time.she even tried to get me to watch them yesterday after i returned from 5 hours at the hospital having all kinds of tests and the awful diagnosis of lupus! all i wanted to do was go home and go to bed! how do i get people to understand how sick i am,or how serious this is?
    wow jb HARSH i was not looking for attention,and trust me i did not create my lazy kids.they created themselves.they do NOT own phones or tvs.pretty much all they have is food and a roof over their heads as we are not at all wealthy.i DO assign them chores,they refuse to do them.am i to physically drag them to the chore?geesh, i was just asking for some ideas to get my family to understand this disease and my limitations.i am not an attention junkie.i hate this. i am not one to lean on others and this is hard for me. very very harsh...
    you people are awful humans.just awful.my hope in humanity is gone.

    • ANSWER:
      J B is going around giving bad advice, shes made like 15 in the last hour...

      im sorry about your kids, i would suggest talking to your husband when you are getting ready for bed; he'll probably have stopped moving by then? tell him everything you told us and im sure hell be there to help you. if you have to, tell him you have 6 months to live; i mean fuck you have to get a break!

      your husband can talk to the kids; i don't know where the fuck your son gets off calling you names and being cruel... i wouldn't know how to approach that; im only a kid myself, but let me tell you what if i had a kid who would do such things i would end up beating him... maybe you can send him to a psychiatrist, but you said your not wealthy (i've lived that). the only other thing would be to tell him you are a goddamn human being and need to be treated as such.

      as far as your extended family goes, tell them "no"... that is probably the simplest part of your problem here. anytime they ask you for a favor say "im dying, no". if they have a heart they will do favors for you, if not then your family is fucked up.

      like i said im really sorry you're in this position, all i can say is i would never have let my life fall apart like that... maybe you need to get out of the house for a while.

      however old you are, you're still young and you can start a new life; with or without your family. they can change, but if they arent willing to then theres not much you can do; like you said what are u supposed to do? physically drag them?

  30. QUESTION:
    Should i either get keratin treatment or clip on hair extensions?
    So i just turned 19, i recently got diagnosed with Lupus and my hair is falling off a lot and it's really dry and thin. i'm using this natural shampoo that supposedly helps your hair stop falling off but i see only a little bit of improvement. i used to have nice long thick hair, i miss it but there is always a solution. yea before i was against hair extensions, but you know how life takes you and makes you more aware of things. Any suggestions? please no immaturity :/

    • ANSWER:
      I have Discoid Lupus, it's caused from the sun. . . if your hair is FALLING out, what your hair needs NOW is a lot of TLCs. Meaning shampoo. Don't comb or brush your hair when it's wet. Towel dry. Blow dry less than 5 mins. or air drying is best since your hair is falling, THEN brush or finger comb your hair.

      When you wash your hair with one of those nutrient-rich shampoos, most of the nutrients and active ingredients in the product don’t actually end up in your hair, they wind up down the drain… along with all the money you spent on the shampoo.
      It is HOW you use to style your hair or what styling tools that damage the hair, and what chemicals you're adding to the hair, not the shampoo.

      Best advice from Hollywood's well known hairstylist in the 80's once said: "Keep foods in your mouth and hair products on your hair."

      If you've straightened your hair in the past, it may grow slowly or none at all.
      Google: "Foods for Healthy Hair" - the website had moved, type it in.

      Wigs or hair extensions will only make the hair appear healthier, but they're both not good for the hair.
      Keratin is a chemical containing formaldehyde causing cancer, and that's the last thing YOUR hair needs.

  31. QUESTION:
    What diagnostic tests/physical symptoms diagnosed or made you think you may have lupus?
    I am constantly developing mouth sores that look like thrush, get a rash on my cheeks when outside, and feel totally sick when I'm in the sun. Some times I itch like crazy, everywhere on my body. And I just can't seem to get enough sleep. I have Hashimoto's thyroiditis which is controlled with Armour thyroid. Do these symptoms sound like lupus? And how is it diagnosed?

    • ANSWER:
      It could be lupus. The sun combined with your other symptoms is the biggest tip off.

      To diagnose lupus one needs to give a full medical history, clealry describe symptoms, have other disorders ruled out, and get a battery of lab tests. There is no single lab test that is definitive for lupus.

      Hashimoto's is also autoimmune. Autoimmunes often come in syndromes or overlap with one another.

      Get a referral to a rheumatologist who is knowledgeable about lupus.

      Learn more at www.lupus.org

      I was diagnosed after being hauled off in an ambulance. I ignored the symptoms for far too long.

  32. QUESTION:
    Best recovery method and medication for Lyme Disease?
    I just wanted to get some feedback for others who have dealt with Lyme Disease. What medication worked for you? How long since you "recovered", and what are your lingering symptoms? I was on doxycylin, seemed to help but now the symptoms are back. I've had Lyme Disease for about 2 years, I was originally diagnosed with Lupus until 2 months ago, when my blood work came back positive for Lyme. I want to hear there is hope, becuase the pain and fatigue is overwhelming.

    • ANSWER:
      Most surely, ehat you have had, and the symptoms, have nothing to do with Lymes disease, which is nowadays, very curable (erytthema migrans and all) together with articular pain, soreness of mucosal areas, etc
      More likely, during the last two years, your symptoms were provoked or caused by systemic lupus erithematosus (the generalized form of antibodies against the nucleus of innocent cells in your body)
      Fatigue, rash, skin probles, in sun exposed areas, are common in the early and middle stages of lupus in young to middle age females.
      Measure your anti borrelia burgdorferii antibodies, and if within normal limits,. your efforts should be directed towardsthe medicalcontro of the lupus....

  33. QUESTION:
    Need information on kidney and liver transplant in Texas from criteria, cost to assistance programs.?
    My dad is in his 50's, on dialysis, needing a kidney/liver transplant. He was diagnosed with Lupus about 10 years ago and was placed on a kidney transplant list about 2 years ago. Last year he got "The Call" actually got about 30 minutes away from going into surgery and ONE Dr. asked him if anyone had checked his liver. The answer was no, no one had. Needless to say, everything was stopped. A workup on the liver also showed problems. He was told that he could be placed back on the list if and when the liver test were within normal range. 6 months later...tests are good but they feel he would benefit from both liver and kidney transplant which in Lubbock Tx. they don't do. My dad is stable and has learned how to live with dialysis in his life but that being said....He is a strong willed man. He (We) would like to know more on kidney /liver transplant both successful and failed. From hospitals, programs, assistance programs, cost both pre and post surgery. Thanks in advance, Tara

    • ANSWER:
      I am posting links that will help answer any
      questions he may have:
      The first one is a patients guide to liver
      transplant...it is posted by a Ca. transplant center
      but has major information:
      http://www.surgery.usc.edu/divisions/hep/patientguide/index.html

      http://www.transplantliving.org/

      http://www.unos.org/

      http://www.transplants.org/

      This is a link for cancer patients that need
      financial help, but it is also good to look at
      these for someone who needs a transplant
      http://www.cancer.gov/cancertopics/factsheet/support/financial-assistance

  34. QUESTION:
    Confused and Afraid about Lupus?
    My older sister was recently diagnosed with having Lupus probably about 5 weeks ago. Well this past weekend she went into seizure and may have possibly had a stroke. Her kidneys also dont seem to be working and she is disoriented. Me and my family are basically doing a waiting game right now because the doctors cant treat her if they cant pinpoint exactly what has happened. My question is does anybody out there know anything about this disease, how to treat it and will she get better? She's only 32 and was a healthy young woman before any of this happened. Thanks.

    • ANSWER:
      http://cure4lupus.org/

      here is a bunch of info on the subject. I am researching it because my mother was diagnosed and I am trying tio determine the possibility of me having it as well. It's a good site.

  35. QUESTION:
    Lupus pain, I'm afraid my doctor will think I'm an addict?
    I was diagnosed recently with Lupus.
    My problem now is that I am very chemical sensitive. I'm able to take Hydrocodene with no problem.
    My doctor started me on a low dose. It was not working. I went back and he increased it slighly. But it's not working...maybe a bit better, but not much. Now I'm afraid he may think I'm a addict.
    How do I explain it to him? I have never been in this situation.
    I thought soon as I got something it would be a magic pill and the pain would go away.
    I'm nervous?

    • ANSWER:
      Just be honest with him. Lupas is painful. Doctors will always try to start you off with the least amount of medication as possible and then work up to a higher dose. If you fell like your doctor is judging you then find another doctor that you are more comfortable with. I hope this info helps you. And good luck.

  36. QUESTION:
    How can I bring myself to let my 7 yr. old live with her Dad? I am sick, but we are so close!?
    Two yrs ago, I was diagnosed with lupus. I have been extremely fatigued and very ill, at times. I have had both knees replaced and also had sepsis, in the past year. I think I could get more healthy, if I could focus on myself more.

    I can never seem to get caught up with all of lifes demands. I stay so stressed out, and just plain worn out. I know what I need.....I need some time out.

    However, my 7 yr. old daughter is going through a stage where she is very attached to Mommy. I know in my heart I need to let her spend time with her Dad. But, I am having the hardest time bringing myself to do that.

    Please help. Tell me what you think.

    Would I be a terrible mother, to let my daughters Dad take care of her, for a while?

    • ANSWER:
      You are ONLY human, and facing more tests and trials than most people do in a lifetime, all at once. You are tired, to the point of exhaustion even, and you need to be able to rest and recuperate some. Unless dad is abusive(which he is not), then you need to let him keep her at least part-time. You ARE NOT, neither will you be, a bad Mother if you let Dad help you with his daughter. I know it's a tough thing to do, but hopefully, it's temporary, and you can get better. Then you can resume your keeping and caring for her . Good Luck!!

  37. QUESTION:
    Obamacare, will it fail?
    Obamacare will let people with pre-existing conditions get coverage, WTF?

    What about people who paid all their healthy life for coverage? Why not just wait till you get sick, then get coverage? Do Libs even understand basic economics?

    Insurance companies deny pre-existing conditions,1. it's not fair to lifelong payers, 2. how in the fudge will you make a profit? Insurance is not a charity.

    Before you give me a sob story, my Fiance paid for insurance long before she was diagnosed with Lupus...

    • ANSWER:
      Too big to fail.....remember the Titanic?

      This is the biggest pie in the sky bull-sh and even the libs know it. I guess it's alright though as long as they get to ride the gravy train until it derails. To hell with the grand kids. They can fend for themselves.

  38. QUESTION:
    Are these symptoms of my Sjogren's?
    I am female and 19.

    I have Sjogren's Syndrome. I usually flare in spring and summer(not sure if that is a coincidence or not). When I flare I get Raynaud's phenomenon in my toes and fingers.

    I got meningitis 3 years ago in February. During my time at the hospital I developed raised quarter sized circular pink spots all over my upper body. I had very high fever and excruciating headaches. I was not diagnosed with Sjogren's or any autoimmune at that time. Even though my grandmother has rheumatoid arthritis+lupus and my mother has fibromyalgia.

    After that I continued to have fatigue, mostly at mid-day, around 1,2,3 o'clock. Dry mouth, dry eyes, dry skin, brain fog. I also had a weird appetite issue that made it very difficult to eat, which may have exacerbated my condition.

    I started to get headaches at 7 and 3 o'clock everyday(before and after school, I had a lot of stress in my home at the time). So I would take Excedrin Migraine every morning and at night.

    I began to get nose bleeds every morning at around 9 o'clock.

    I got a fever ranging from 99.1 - 102 every time I got upset or stressed.

    I eventually got fed up with feeling like crap and had a little bit of a breakdown. Unfortunately, despite my visible symptoms, that was what it took for my parents to take me to the doctor.

    I had a positive RH factor (I think that's how you say that). So we went to a Rheumatologist and he diagnosed me with Sjogren's. I was on a low does of plaquenil.

    Now I don't have insurance and therefore no Plaquenil, but I am not living at home anymore, so my stress levels have gone down significantly. However I have been having some weird symptoms lately and I am wondering if they may be related to my Sjogren's.

    My lips and nose will randomly become tingly and red/blotchy. When this happens it is sometimes accompanied with tingling/numbness in my hands and forearms. I also experience twitching in my lips, nose, and eyebrows.

    I also have the red, raised butterfly rash across my nose and cheeks that is sometimes associated with lupus, but I was not diagnosed with lupus when I was diagnosed with Sjogren's because my doctor said I didn't have enough symptoms of it at the time.

    • ANSWER:
      Autoimmune connective tissue diseases are confusing and often there is a huge overlap. My doctor said these conditions never follow the textbook.

      I'm by no means an expert, but I've been dealing with very similar things to you and I'm seeing lots of different doctors. So take my advice with a grain of salt and always ask your doctor.

      Sjogren's, Rheumatoid Arthritis, Lupus and Mixed Connective Tissue Disease are all very similar in many ways. But they do have some characteristics that are specific to the condition, like the dry eyes and mouth in Sjogren's, butterfly rash in Lupus. But in many cases they can be difficult to accurately diagnose. It's also possible and quite common to have more than one.

      Your new symptoms are probably related. The butterfly rash and the rash you had when you had meningitis may very well be enough to have your diagnosis changed to Lupus.

      But if you have no insurance, then it's going to be very difficult for you to get into see a doctor who will help and make an accurate diagnosis. If you can, I'd recommend going to your GP and asking him/her to do a urine and liver functioning test. This will help the doctors know if there's any organ involvement. This will probably cost you out of pocket (I'm not from the USA, so I don't know how that works), but it's definitely going to be worth it.

      Good luck. I really hope you can get the medical treatment you need soon.

      ......

  39. QUESTION:
    my Dr thinks i might have systemic lupus?
    hi my dr thinks i might have systemic lupus, i'm broke out all over with a rash ,and i have a half sister that was diagnosed with skin lupus about 4 months ago i'm trying to research systemic lupus and alot of the facial pics found under systemic lupus (butterfly rash) looks identical to mine and i have about 80% of the symptoms my dr took blood today to do the blood test to check for it . and after researching it i'm scared and worried about getting back my test results can someone please fill me in on how to properly care for systemic lupus and what my future living with systemic lupus might hold??
    thanks

    • ANSWER:
      Hi, I'm a lupus patient as well, but as with all diseases, it is best that this was caught in the earlier stages. Now you can deal with it before it spreads to more organs. I know this is very scary for you - it was for me as well.

      The best advice I can give you is to get educated as best as you can and to get as much support as you can.

      Read up on lupus. There are very basic and informative books published. The Lupus Book is a great one to start off with. Stay out of the sun, don't eat alfalfa and force yourself to rest (even if you are having a good day - because the next day, you'll be tired).

      Find people who know about lupus. Ask around your community for a support group of lupus, arthritic, or fibromyalgia group. Always keep up a good dialog with your doctor and never change your meds with out letting your doc know.

      I was born with lupus and have been living with it all my life. I'm coming up to my mid-40s. It hasn't always been pleasant and I have had my ups and downs. But it's my life and I make the best of it.

      All of us with a chronic illness have much in common and have good days and bad ones. With lupus, there are many of us who are FORTUNATE to go into remission. You may become one of them. No one knows. If you do, great! If you don't, so be it. We all learn to deal with what is before us and we do it with each other. You are not alone. Especially since you have a sister. Ask her for help. Your situation is even more special than most.

      Good luck and take care. If you need anything, please let us know.

  40. QUESTION:
    I know diagnosing someone with Lupus isn't easy, but could I have it, or was it just an infection?
    Back in November, during the school day, I was sitting in class and my knees had a not-so-comfortable sensation. They were hot to the touch and they felt like they were burning. Naturally, I started rubbing them, and it soothed them temporarily. In this class, I couldn't get up for an hour and a half, and when the class was over, I stood up and I had the worst pain ever in my knees. It was difficult to walk for the rest of the day. At the end of the school day, I noticed that my fingers and the palms of my hands were swollen. When I got home and showed my mom, we decided to go up to the ER at Children's Hospital.

    After arrival, 30 minutes later, I started to develop a red, elevated, blotchy rash on my forearms. Soon after that, all of my joints began to swell. When I got up to walk to the bathroom, it was like having balloons for feet. I told the nurses and they soon came in to do a couple tests. After taking 4 tubes of blood (after spilling my blood all over the floor) and a cup of urine from me, they quickly, and oddly, came back and said they found nothing wrong. They gave me a prescription for benadryl and ibuprofen and sent me home after being there for 5 hours.

    When I got home, I did my regular routine of washing my face at night, and I noticed that I had another blotchy, red rash across the bridge of my nose and my cheeks. I thought it was odd, and so did my family, but I just took my benadryl and went to sleep.

    I woke up the next morning at 5 am, and it was as if all of my joints were locked and swollen -- I couldn't move at all, unless I wanted to experience a simulation of someone bashing my joints with a baseball bat. I had never experienced pain like this at all. After almost falling down the stairs (dumb on my part) and crying for an hour, my mom drove me to the same emergency room. The nurse gave me some ibuprofen (800mg) and came back a few minutes later. The pain didn't subside a bit. The doctor finally came in, asked me about everything prior to then, and told my mom and I told to hold on. He called the rheumatology department and he told us to go down there immediately.

    We drove downtown and got in to the emergency appointment. Two doctors came in and looked at me and tried to get me to do some things. I couldn't lift my arms up over my head, I couldn't make the 'OK' symbol, and it took me longer than usual to walk up and down the hall. They prescribed me prednisone to take for a couple weeks, took 5 tubes of blood to do some tests, and I went home. I couldn't go to school for a few days.

    The following appointment, they updated me on the tests they did. I came up positive for the ANA test (1/160) and I tested positive for the mono test, but they said they weren't too sure on that one. They had said that it could most likely be Lupus, but they needed more time ("We're not going to rule Lupus in, but we're not going to rule it out, either" is what they said). 10 minutes later, I was attempting physical therapy, which they didn't tell me about prior to the appointment, and while I was in the middle of my PT, two social workers came in and asked me too many questions about my personal life. After that, I was scheduled for yet another appointment and I went home, still swollen, blotchy, and in pain.

    The following appointment, they did a follow-up. I was wearing a pearl necklace that day, and when I took it off, it felt like it weighed 20 pounds around my neck and my chest was sore. I was improving, but not back to my 100% self. They started to ask me questions about how school was going and if I was keeping my grades up. Then they recommended me to see a therapist, which was odd. After the appointment, I did my physical therapy. They gave me heat-molded inserts to put in my shoes and some exercises to do at home, then they sent me on my way.

    Two weeks after the appointment, after getting back to normal, they took more blood and urine from me and ran the same tests. Two weeks after, they called and said that it was just a minor infection that just came and went. They didn't tell me about my blood tests, but they told me that they found protein in my urine. But they said that was normal. Odd, but I'm not a doctor. They told me that if I ever have any other problems, I can call directly to their office. I then received papers in the mail from the state saying I had polyarthritis.

    Months after, I still experience joint pain and swelling, not so much on the rashes. It's not as extreme as what happened to begin with, but it's still bothersome. Sometimes I wake up in the middle of the night nauseated, and sometimes when I walk, I feel dizzy. I get painful headaches at least 4 times a week and at least twice a week, I have a tingling feeling on top my head, same as when your foot falls asleep. They keep telling me to take ibuprofen.

    What should I do? Sorry for being so lengthy!

    • ANSWER:
      I would get a second opinion. Arthritis means swolled joint. Polyarthritis means many swollen joints. A positive ANA could be lupus, or possible rheumatoid arthritis which is sometimes called juvenile (young person) idiopathic (they don't know the cause) arthritis (swollen joints).

      It is absolutely NOT normal to have protein in your urine. If you have that, it means there is inflammation in the kidneys. 40% of people with lupus develop nephritis (kidney inflammation).

      See another doctor.

  41. QUESTION:
    People, I need your help!?
    My aunt was recently diagnosed with lupus. For those of you that don't know, lupus is a chronic and very dibiltating disease. It is also the same disease that killed both my grand and great-grandmothers. My mother watched it happen to the two of them, and saw the struggle of their burial costs, funeral, etc., and she's afraid that it will reoccur with my aunt. Just recently, my aunt was hospitalized for high blood pressure (lupus related no-doubt) and she was on the verge of a stroke. They've been trying to get some life insurance on her, but its almost impossible with her being as sick as she is...So i need your help, is there any insurance that you know of, or maybe a way too look for insurance for people that are already sick??

    A little more about lupus:
    It's a chronic disease that causes the immune system to become overly active. the meds for it practically eliminate the person's own immunities, and replaces them with artificial ones (steroids, antibiotics, etc.)--needless to say, an artificial immune system is not equivalent to your own--so it causes the people that have it to get very sick quite often. But with a little bed rest and more antibiotics, they can recover reasonably quick. The problem comes when regular, hard-working americans have to miss work because of sickness, and have a house to run. That's what happened in the case of my aunt. Because she was sick, she couldn't go to work, and she felt too weak (because she caught pneumonia) to do much. She has a 17 year old daughter, and she's worried (of course) about keeping a roof over her head and so on. Thus, the high blood pressure...(You see how it all goes around...)
    She's not like on her death bed or anything, it's just that she's going to keep getting sick...THAT's what's making it so hard for her to get insurance...geez, she isn't like going to die tomorrow or something...eh

    • ANSWER:
      We have Top quality Health and fitness products that will meet your specific need for recovery and affordability! Please contact us and we will send you this information

  42. QUESTION:
    How do I go about this situation? Can they really fire me?
    This is the problem, I just found out I was diagnosed with Lupus. Through the past year I have had to see a neurologist every ten weeks, along with my regular care doctor occasionally. Up until the past week they hadn't had a diagnosis until an MRI and a positive a.n.a. blood test. I would always let my manager know TEN weeks in ADVANCE of my appointment to first; ensure I had that time available, and second they had PLENTY of time to work around it. I would never need the whole day off, just an hour or so to go see my doctors. I am an excellent employee, [I work at a bank, (I have been the only teller to remain in balance this whole year and meet regular sales goals)], yet they give me attitude about my appointment coming up on tuesday morning. Though remind you, they have known for almost three months now. They work around an employees school schedule, but they wont work around my appointment schedule; am I missing something here? I haven't told my employer what disease they have diagnosed, I don't need sympathy or to have any less of a work load on me. I do my job very very well. Now I have a "meeting" to discuss my erratic illness, [the fact I have appointments to work around], and I continue to work over time every week for them, and normally I shove off any pain I do experience at work. However, the pain has gotten so extreme that I have had to go to the hospital twice this month so far. I am just wondering can they really fire me tomorrow at this meeting for my lupus? I have also given them letters from my doctor[s] and notes from the hospital excusing me from work, they say (with an attitude) every time I hand them notes that I don't have to prove myself. I do it to protect myself. I have filled my paper work out for the FMLA, but can they really let me go? I have always been dependable, but this flare up has just been horrendous. I am kind of scared because I do need this job, but if they do fire me, is there any advice or any solution and a way around it?

    I apologize for the length of my question, I just need to make sure I cover every detail of the situation to make sure I get the honest answers. Thanks for your time and listening! :]

    • ANSWER:
      You need to apply for Interminttent Family Leave until they give it to you. This way you can not be disciplined for taking the occasional day off. Dont worry about your meeting. They may just need to discuss whats going on, They are most likely going to figure out a plan and lay everything out on the table. They CAN NOT fire you for that, its illegal. I doubt they will try it. Sounds like you are a lot better than the place you work for. Some people can be heartless. Good luck, I wish you lots of health.

  43. QUESTION:
    I'm a 15 year old boy and losing hair?
    Okay guys, I'm freaked out and can't stand this anymore. I just turned 15 on August 25th and I've been losing hair since around 13. Back when I was 13, I had a bit of dandruff but eventually took care of it and now my head's clean. However, hair has still been falling off since. In the old days I used to put tons of gel on my hair and sometimes spray it as well. I have stopped doing this for over a year now but nothing changes. Could be that my scalp has been damaged by all the chemicals? but how long does it take for it to heal? My diet always included meats, beans, cereals, fruits, sometimes fish but not many vegetables. Only eat veggies once in a while. These past few months I've been consuming fish more than ever but it still doesn't help...much. I wash my hair with shampoo around 4-5 times a week, but use conditioner daily. Also I lack a bit of exercise since I only do it around 2-3 times a week. Btw, I've also been drinking tons of water. I mean I've done EVERYTHING I could think of to make up for what I made my scalp go through for many years but It still falls off like crazy. I know people usually shed around 100 strands daily but I know for sure I'm losing way more. My room ie, after 4 days is already flooded with hair everywhere :( Both of my parents are 40 and my mom just recently started losing her hair (before she has tons of hair) and my dad's been shedding hair too but I'm guessing that's normal for a 40 year old. Btw, he doesn't have any bald spots or anything. The thing is my mom has been diagnosed with lupus but she doesn't really get the symptoms often, it's almost as if she didn't have it. Maybe this is my problem? I may have inherited her lupus? But I thought guys couldn't get lupus? IDK anymore?

    Don't really have bald spots but i do have areas where there isn't a lot of hair. I'm a bit stressed but I'd say half of my stress is thanks to my hair loss..

    I'm visiting the doctor next week but I'd still like to ask what you guys think. Will i just grow out of this like i hope i am? I'm betting my all on puberty :) or ..? :(

    When I was around 10 i had a headful of hair I always showed off when I had the chance. Looking at my situation now is pretty sad :/

    Also what home remedies would you recommend me?

    Thanks

    • ANSWER:
      Hi Gerald,

      Although hair loss occurs most often in adults, teenagers as young as 15 or 16 have also been found to experience hair loss and thinning. The balding process and rate vary with each individual; hair loss does not discriminate against age. While it is not unheard of for teenagers to be diagnosed with Androgenetic Alopecia (also known as “male pattern baldness”), hair loss in teenagers is more commonly found to be temporary and thus reversible.

      There are several factors that might be causing your hair loss. A teenager’s activities, diet, stress, medications, natural hormones, improper hair care, certain diseases and even genetic predisposition can all contribute, in varying degrees, to hair loss.

      One of the simplest ways to slow down oncoming hair loss is a balanced diet. There are a variety of vitamins and minerals that should be included in your daily diet in order to help reduce the loss of hair. Make sure your diet is rich in Vitamin C, Vitamin E, Vitamin B, silica, calcium, and iron to reduce or prevent hair loss. These minerals and vitamins can be obtained through a balanced diet. Some foods you should add to your diet to increase hair health include: fruits, vegetables, dairy, lean healthy meats, fish, legumes, unsaturated fats, and water. However, when your diet is lacking in proper nutrition, or when you make drastic changes to your current diet, hair loss can result. Try to avoid high amounts of fatty foods and high amounts of Vitamin A in your diet as these have been shown to cause hair loss.

      Because hair loss is not too common amongst teenagers, it is important for you to visit a qualified physician who can correctly diagnose the problem and offer the appropriate treatment or solution. You can find much more information about what could be causing your hair loss and the available treatment options during a consultation with a Bosley professional free of charge. Good luck and try not to stress too much over your hair loss (Stress is a factor in temporary hair loss!).

  44. QUESTION:
    Anyone with personal experience or info related to lupus?
    My mother was just recently diagnosed with systemic lupus erythmatous (SLE) after years of going through a variety of symptoms and being told she had every other ailment possible. Because she's been sick for about 4 years, the doctors have told her that she will have a harder time with getting the disorder into check. She's only 40 years old, and is just had a really hard time these last couple years. She's a hospice nurse and told me today that lupus is a hospice diagnosis which would make it terminal? Is this true? I'm a brand new nurse and have been trying to find information about it. I was just wondering if there is anyone out there who has it? If so how do you manage it? Have you been told that it is terminal? Obviously I'm really concerned about my mother, and knowing a little but not everything really makes it worse. I would appreciate any advice. Thanks in advance.

    • ANSWER:
      Lupus is not terminal !!! Where did you get such information ? Please educate yourself ASAP ! I have Lupus - SLE and was diagnosed about 10 years ago after being told I had a whole myriad of things and /or that it was in my head. There is no cure but there are many treatments. And any good specialist, usually a rheumatologist, will treat the symptoms. There will be plenty of specialists to be seen according to what the lupus is up to. I see a nephrologist, urologist, hematologist, ophthalmologist, dermatologist, rheumatologist etc......People to not keel over and die from Lupus. About 30-40 years ago the outlook was about 10 years without ever going into remission, but today people live as long as healthy people as long as they take care of themselves. Stay in tune to their body's, do as their doctors say, know their limits and do not sit around and feel sorry for themselves. After working and volunteering as an EMT I had to step back but I did not sit around and wait to die. Your mom and you should consider joining a support group. Webmd has one which was very helpful early on for me. Also log onto the lupus foundation site. I should mention I am 43 and was diagnosed at 33 - but it was there for many years prior.

  45. QUESTION:
    is she stupid or what?
    i have a brother that got together w/this girl on 2006 who at the time was 14 and he was 18 she was pregnant n even though i didnt like her at all i accepted her cus of the baby and tried to get along w/her.by the way i was 15. now im 19 n im married with the most wonderfull man i have my own baby n im pregnant. sadly this girl was diagnosed w/lupus about a year ago so i tried to help out w/baby n giving her rides to the hospitol i couldnt help but to sorry for her. my brother works in constrruction, 12hs shifts every day. i notest that they were always fighting about everything is like if she blame my brother for her sicness it really pissed me off how she treated my brother who always tried to give her everything she wanted she only wore expensive clothing and baught all this very expensive kitchen supplys but never cooked since they live so close to moms house they always ate there and whenever she had dirty dishes she would just throw them out.. i never said anything cus i didnt want to get involved but once i asked her how come they were always fightting for no reason? and i told her that it looked like if they didnt love each other bcus they were ALWAYS arguing. well then she asked dont u fight w ur husband? honestly my husband n i have the most beautiful relationship and whenever we dont agree on something we TALK about it and we are very happy next thing i know shes telling everyone that im very stupid bcus i agree on everything my MAN says n that im afraid of him and i do everything he sais. she even told my mom that my husband hits me when he comes home and i dont have dinner ready. she told all her family that i was just slave to my husband and a "baby poppin' machine" because i had my 1st baby when i was 17 n now im 8mo pregnent. she cant have babis until they control her lupus i dont want to confront her about all the thins shes being saying about me or the way she treats my brother bcus shes sick and if anything happens i dont want to be blamed for it, i also dont want to have any kind of problems w/my brother since we have a great relationship. she has also been making my mom feel bad and not allowing her to see the baby shes always making up excuses not to let her see him it just make me so mad that i kant do anything about it i dont know if im right what do think. i just need to know that somebody agrees w/me. by the way my husband is a saint and hes always taking care of me and my baby and even my mom it really makes me mad that now my family is thinking that he hits me. hes the most wonderfull man and i love him very much.
    by the way i stayed in school and got my diploma early!!!

    • ANSWER:
      Yes I do think that is stupid. Possibly confront her or ask her why she said these things. Tell your parent's and family members that your husband doesn't beat you and invite them to your house or to meet him. Maybe tell your brother that you would like for his girlfriend to maybe say sorry or get the girlfriend to say sorry. I hope this advice helps and make sure not to feel bad and just deny what the girlfriend says.

  46. QUESTION:
    how do I tell him to leave me alone without being mean?
    ok, my dad is a owner of where I work and there is this older mexican guy who works there with his wife. He speaks english a lil and a lot of people there don't. He started selling this diet pill thing I guess and he won't leave me alone about it. I am a lil overweight, but in the last 3 years I got married had a baby and just got diagnosed with lupus and am on steriods so that is making me put on weight. He isn't THAT good with english but he does understand a lot. What do I say for him to leave me alone? I don't know if he would understand if I said I had lupus.

    • ANSWER:
      Sometimes it is hard to say no.

      Just tell him that you have a medical condition that does not allow diet pills under any circumstances. No discussion, no debate.

      lupus or wolf translates into 'Lobo' in Spanish.

      Best wishes,
      Gina.

  47. QUESTION:
    Why can't he catch a break?
    My father. He's the toughest man I know. Grew up with nine siblings, went to Vietnam and was shot 4 times and got a piece of shrapnel through his mouth, battled cancer when I was 4, multiple back, knee, and oral surgeries, diagnosed with Lupus when I was 17, currently going through a divorce, has a hernia that is strangling his lower intestine and leaking air, and may have prostrate cancer now.

    I worry about him a lot and with his Lupus I don't know how all the current stuff will play out. Anyone have some up lifting words of advice?

    • ANSWER:
      Bad things happen to good ppl it seems. Just spend as much time as you can with him, and you will be happy you did in the end.

  48. QUESTION:
    Pleurisy or heart attack? (not emergency - but important)?
    Hello -
    I have Lupus and have had bouts of pleurisy, which if you don't know, is when the the lining of the lungs and chest wall get swollen and inflamed and it really hurts to breathe in.

    I have had it for a long time and it comes and goes and when I was diagnosed with Lupus a few years ago [which I'm being treated for with immunosuppressants] I was told that pleurisy is a fairly common symptom.

    Anyways for my question:
    I'm in my mid 30's and realized that I also am getting old enough to be at a higher risk for a heart attack. getting old is no fun :)

    they symptoms for a heart attack seem to be very similar to what I normally feel with the pleurisy when it acts up. my chest hurts really really bad, esp when I take a breath. if anyone with pleurisy sees this question, that'd be great to have your input.

    I'm wondering how you tell the difference between just the annoying but not life threatening pleurisy vs a real heart attack? I have 1 more point and I'll post it in the details
    i was just asking this question because a few minutes ago i had the normal pleurisy pain that lasted for a few minutes but is now gone.

    while i appreciate the help, please don't just copy/paste webmd's heart attack signs. i've gone through them but this is a confusing topic for me, and i think only someone that has this issue or is a dr. could help.

    also, i know that if it gets severe or abnormal i would call 911. but since i get pleurisy symptoms at least a few times a week, its obviously not feasible to go to the hospital every time.

    i guess i'm just hoping someone could help me find what obvious signs that i would notice if a true heart attack were to happen. thank you to anyone that reads this and i truly appreciate anyone's help

    • ANSWER:
      Hi! Hopefully I can be of some assistance with your symptoms. My wife was diagnosed with SLE at age 15 and is currently 30. She spent time in the hospital last year (2 months) for 'pleurisy'. She was having her typical chest pains that she gets some times and figured it would subside. When we finally went to the emergency room her triponin level (the level used to show if you've had damage to the heart muscle) was 200 times normal. She had a heart attack and didn't even know it. She went into cardiac arrest seven times while in ICU and eventually had to have a pacemaker/defibulator put in. I tell you this story not to frighten you but to let you know that doctors can be quick to dismiss your chest pain as pleurisy but it can be something far more severe. If you're having chest pain always see a doctor immediately. Insist on a EKG and blood work to rule out the possibility of a heart attack. I wish you the best of luck in the future!!

  49. QUESTION:
    How do you cope knowing someone you love is dying?
    i just found horrible news today. A girl i know named tatjana, someone i've fallen for, was diagnosed with lupus with Transverse Myelitis when she was 11. she told me she's had several times where she's had to be hospitalied in the icu and almost died, and that the average lifespan after being diagnosed is around 10 to 11 years putting her at 22 and she is now 19 nearly 20.

    she is getting treatment for it, but the only thing its for is to slow the progression since there is no cure.

    This was so heartbreaking to hear. i still cannot stop crying. how can you really prepare for something as horrible as this?

    • ANSWER:
      Im so sorry about your news, the reason im responding here is because I actually have been told by doctors in the past that my life would be cut short! I have lupus amongst other conditions...
      I have lived past the 5 years i was given and im still here...and im sure many others out there...lupus is really very unpredictable.

      What I can tell you is that LOVE is very if not the MOST powerful drug there is in the world. Having that person to love and support you and not give up can make a huge difference.

      I think if you can find a way to see past this challenging time and treasure the love you both share, you will find not only you will help her heal but heal yourself...you probably dont realise but you are stronger than you think.

      Life has its ups and downs and there are always valuable lessons we learn along the way...i know even thou i dont wish to have lupus, i also know I would've been as strong as I am today and wouldnt've valued the little things people take for granted everyday.

      Many blessings, love and hope to you in this challenging time...

  50. QUESTION:
    I'm having an early life crisis and need some advice.?
    Warning: Kinda long

    I'm 19 years old, and my life is going nowhere, I've never had a job, I dropped out of high school, I got my GED. I'm not intellectually stupid I scored 3000+ on the NCGED and had a GPA of 3.5 before I dropped out. But there is a reason for all of this. My grandma was diagnosed with lupus, brittle bone syndrome, has failing kidneys, so I dropped out to take care of her, and since then her insurance(medicade) has required that she have 24/7 care so that burden fell on me. My family refuses to help me with her so I'm really missing out on my life. I have a girlfriend but she is getting tired of me never being able to leave and how my mom always calls me to do this and that while she is here (my mom does sort of abuse my good nature and ask me for the stupidest things and it gets irritating) I have an opportunity to get a job but that could lead to mom being put into a nursing home because I wouldnt be able to provide the 24/7 support. I've been dating this girl for almost three years now and she has stood by me but tonight she just said enough was enough that she couldnt take any more of me babying my mom and watching me waste my life away taking care of her. My question is should I take care of my mom, or just try to move on with my life and hope for the best. IMHO I'm tired of the same routine day after day I need something different, and a job that actually pays (because I basically do the job of a CNA 24/7) I'm constantly sleep deprived and am starting to slip into a rut of depression which I was diagnosed with several years ago (never really told my girlfriend about it because after some therapy I was ok and thought it was irrelevant) but I feel that coming back. And I'm stuck between the stress of taking care of my mother and trying to keep my girlfriend. She means the world to me they both do. I'm just torn, I can't stand the thought of losing either of them, my girlfriend has been the best thing to ever happen to me she's been my rock and kept me sane through the years and is really like an angel to me. But my mom saved my life, (here's the kicker, my mom is my grandma I just refer to her as mom cause she raised me) my real mother was a drug addict and abusive I had to see stuff like her prostituting herself to crackheads to get some drugs way too much and my grandma saved me from that. They have both done so much for me and I want to please them both but it just doesn't seem like I can. This just hurts so much I can't take the stress from both of them. I don't want to abandon my mom because she's not really ready for a nursing home yet, but I don't want to lose my love either. It's a real ball buster.. Help? Please..

    • ANSWER:
      GO BACK TO SCHOOL. GO TO COLLEGE . AND YOUR LIFE WILL BE BACK ON TRACK GET A JOB YOUR REALLY SMART MAYBE YOUR JUST A LITTLE LAZY BUT THAT IS ALL YOU HAVE TO DO.

      SRRY FOR THE CAPS MY KEYBOARD SUCKS.