Signs And Symptoms Of Lupus

A symptom is an indication of disease, illness, injury, or that something is not right in the body. Symptoms are felt or noticed by a person, but may not easily be noticed by anyone else. For example, chills, weakness, achiness, shortness of breath, and a cough may be symptoms of pneumonia. A sign is also an indication that something is not right in the body. But signs are defined as things that can be seen by a doctor, nurse, or other health care professional. Fever, rapid breathing rate, and abnormal breathing sounds heard through a stethoscope may be signs of pneumonia.

Having one symptom or sign may not give enough information to suggest a cause. For example, a rash in a child could be a symptom of a number of things including poison ivy, an infectious disease like measles, an infection limited to the skin, or a food allergy. But if the rash is seen along with other signs and symptoms like a high fever, chills, achiness, and a sore throat, then a doctor can get a better picture of the illness. In many cases, a patient's signs and symptoms do not give enough clues by themselves for the doctor to figure out the cause of an illness. Then medical tests, such as x-rays, blood tests, or a biopsy may be needed.

Cancer is a group of diseases that may cause almost any sign or symptom. The signs and symptoms will depend on where the cancer is, the size of the cancer, and how much it affects the nearby organs or structures. If a cancer spreads (metastasizes), then symptoms may appear in different parts of the body. As a cancer grows, it begins to push on nearby organs, blood vessels, and nerves. This pressure creates some of the signs and symptoms of cancer. If the cancer is in a critical area, such as certain parts of the brain, even the smallest tumor can cause early symptoms.

But sometimes cancers start in places where it does not cause any symptoms until the cancer has grown quite large. Pancreas cancers, for example, do not usually grow large enough to be felt from the outside of the body. Some pancreatic cancers do not cause symptoms until they begin to grow around nearby nerves (this causes a backache). Others grow around the bile duct, which blocks the flow of bile and leads to a yellowing of the skin known as jaundice. By the time a pancreatic cancer causes these signs or symptoms, it has usually reached an advanced stage.

A cancer may also cause symptoms such as fever, fatigue, or weight loss. This may be because cancer cells use up much of the body's energy supply or release substances that change the body's metabolism. Or the cancer may cause the immune system to react in ways that produce these symptoms. Sometimes, cancer cells release substances into the bloodstream that cause symptoms not usually thought to result from cancers. For example, some cancers of the pancreas can release substances which cause blood clots to develop in veins of the legs. Some lung cancers make hormone-like substances that affect blood calcium levels, affecting nerves and muscles and causing weakness and dizziness.

Treatment is most successful when cancer is found as early as possible. Finding cancer early usually means it can be treated while it is still small and is less likely to have spread to other parts of the body. This often means a better chance for a cure, especially if initial treatment is to be surgery. A good example of the importance of finding cancer early is melanoma skin cancer. Skin cancer can be easy to remove if it has not grown deep into the skin, and the 5-year survival rate (percentage of people living at least 5 years after diagnosis) at this stage is nearly 100%. But once melanoma has spread to other parts of the body the survival rate drops dramatically.

Sometimes people ignore symptoms either because they do not know that the symptoms could mean something is wrong or because they are frightened by what they might mean and don't want to seek medical help. General symptoms, such as fatigue, are more likely to have a cause other than cancer and can seem unimportant, especially if they have an obvious cause or only last a short time. In a similar way, a person may reason that a more specific symptom like a breast mass is probably a cyst that will go away by itself. But neither of these symptoms should be discounted or overlooked, especially if they have been present for a long time or are getting worse.

Most likely, any symptoms you may have will not be caused by cancer, but it's important to have them checked out by your doctor, just in case. If cancer is not the cause, your doctor can help figure out what is and treat it, if needed. In some cases it is possible to detect some cancers before symptoms occur. The American Cancer Society and other health groups encourage the early detection of certain cancers before symptoms occur by recommending a cancer-related check-up and specific tests for people who do not have any symptoms. Keep in mind, however, that these recommended tests do not decrease the importance of reporting any symptoms to your doctor.

It is important to know what some of the general (non-specific) signs and symptoms of cancer are, but remember that having any of these does not mean that you have cancer. There are many other conditions that can cause these signs and symptoms, too. Most people with cancer will lose weight at some time with their disease. An unexplained (unintentional) weight loss of 10 pounds or more may be the first sign of cancer, particularly cancers of the pancreas, stomach, esophagus, or lung.

Fever is very common with cancer, but is more often seen in advanced disease. Almost all patients with cancer will have fever at some time, especially if the cancer or its treatment affects the immune system and makes it harder for the body to fight infection. Less often, fever may be an early sign of cancer, such as with leukemia or lymphoma. Fatigue may be an important symptom as cancer progresses. It may happen early, though, in cancers such as with leukemia, or if the cancer is causing an ongoing loss of blood, as in some colon or stomach cancers. Pain may be an early symptom with some cancers such as bone cancers or testicular cancer. But most often pain is a symptom of advanced disease. Along with cancers of the skin, some internal cancers can cause skin signs that can be seen. These changes include the skin looking darker (hyper pigmentation), yellow (jaundice), or red (erythema); itching; or excessive hair growth.Along with the above general symptoms, you should watch for the following common symptoms, which could be an indication of cancer. Again, there may be other causes for each of these, but it is important to bring them to your doctor's attention as soon as possible so that they can be investigated.

Long-term constipation, diarrhea, or a change in the size of the stool may be a sign of colon cancer. Pain with urination, blood in the urine, or a change in bladder function (such as more frequent or less frequent urination) could be related to bladder or prostate cancer. Any changes in bladder or bowel function should be reported to your doctor. Skin cancers may bleed and look like sores that do not heal. A long-lasting sore in the mouth could be an oral cancer and should be dealt with right away, especially in patients who smoke, chew tobacco, or frequently drink alcohol. Sores on the penis or vagina may either be signs of infection or an early cancer, and should not be overlooked.

Unusual bleeding can happen in either early or advanced cancer. Blood in the sputum (phlegm) may be a sign of lung cancer. Blood in the stool (or a dark or black stool) could be a sign of colon or rectal cancer. Cancer of the cervix or the endometrium (lining of the uterus) can cause vaginal bleeding. Blood in the urine may be a sign of bladder or kidney cancer. A bloody discharge from the nipple may be a sign of breast cancer. Many cancers can be felt through the skin, mostly in the breast, testicle, lymph nodes (glands), and the soft tissues of the body. A lump or thickening may be an early or late sign of cancer. Any lump or thickening should be reported to your doctor, especially if you've just discovered it or noticed it has grown in size.

While they commonly have other causes, indigestion or swallowing problems may be a sign of cancer of the esophagus, stomach, or pharynx (throat). Any wart, mole, or freckle that changes in color, size, or shape, or loses its definite borders should be reported to your doctor without delay. The skin lesion may be a melanoma which, if diagnosed early, can be treated successfully. A cough that does not go away may be a sign of lung cancer. Hoarseness can be a sign of cancer of the larynx (voice box) or thyroid. While the signs and symptoms listed above are the more common ones seen with cancer, there are many others that are less common and are not listed here. If you notice any major changes in the way your body functions or the way you feel, especially if it lasts for a long time or gets worse, let your doctor know. If it has nothing to do with cancer, your doctor can investigate it and treat it, if needed. If it is cancer, you'll give yourself the best chance to have it treated early, when treatment is most likely to be effective.

Frequently Asked Questions

  1. QUESTION:
    I have a lot of the signs and symptoms of lupus how do I get tested I also have no primary doctor?
    I have horrible rashes rashes on my hands and feet that just progressively get worse they almost look like little blisters in clumps and they make the skin raw. I get fatigued for standing it seems like or any other activity. My hands and feet turn blue when i am tired or cold.Ihave had chronic urinary tract and kidney infection since i started menstrating 9 years ago. This time frame is similar to when all other symptoms started. also any herbal naturopathic or homeopathic remidies for these symptoms would be helpful. (must be safe to use while breastfeeding)

    • ANSWER:
      Go see a naturopathic doctor, if you can. They can order all the blood tests that may be relavant. Lupus is very difficult to diagnose since everyone presents differently, so don't be to quick to self-diagnose, you could be adding to your stress by doing so. For the time being, try ginger tea (grate fresh ginger, or powder into a cup of boiling water). It helps with poor circulation.
      Raynauds and diabetes also presents with circulatory problems to the hands and feet.

  2. QUESTION:
    what are the signs and symptoms to lupus?
    Everyone is telling me i need to be tested for lupus,,because of all my problems at the age 32....barretts, had a nisan done , hysterectomy, gall bladder removed. endometrosis. fingers are twisting and i hurt all over and very tired ....my throid panels are all fine ....i just want someone to care ...been to many doctors and seems like they just do not care anymore...

    • ANSWER:
      Lupus may be hard to diagnose. It’s often mistaken for other diseases. For this reason, lupus has been called the “great imitator.” The signs of lupus differ from person to person. Some people have just a few signs; others have more.

      Common signs of lupus are:

      Red rash or color change on the face, often in the shape of a butterfly across the nose and cheeks

      Painful or swollen joints

      Unexplained fever

      Chest pain with deep breathing

      Swollen glands

      Extreme fatigue (feeling tired all the time)

      Unusual hair loss (mainly on the scalp)

      Pale or purple fingers or toes from cold or stress

      Sensitivity to the sun

      Low blood count

      Depression, trouble thinking, and/or memory problems

      Other signs are mouth sores, unexplained seizures (convulsions), “seeing things” (hallucinations), repeated miscarriages, and unexplained kidney problems.

  3. QUESTION:
    What are the signs and symptoms of lupus?

    • ANSWER:
      I have both Lupus and APS. I don't have all of these symptoms but most of them.

      Each person with lupus has slightly different symptoms that can range from mild to severe and may come and go over time. However, some of the most common symptoms of lupus include painful or swollen joints (arthritis), unexplained fever, and extreme fatigue. A characteristic red skin rash-the so-called butterfly or malar rash-may appear across the nose and cheeks. Rashes may also occur on the face and ears, upper arms, shoulders, chest, and hands. Because many people with lupus are sensitive to sunlight (called photosensitivity), skin rashes often first develop or worsen after sun exposure.

      Common Symptoms of Lupus

      -Painful or swollen joints and muscle pain
      -Unexplained fever
      -Red rashes, most commonly on the face
      -Chest pain upon deep breathing
      -Unusual loss of hair
      -Pale or purple fingers or toes from cold or stress (Raynaud's phenomenon)
      -Sensitivity to the sun
      -Swelling (edema) in legs or around eyes
      -Mouth ulcers
      -Swollen glands
      -Extreme fatigue

      Symptoms can range from mild to severe and may come and go over time.

      Other symptoms of lupus include chest pain, hair loss, anemia (a decrease in red blood cells), mouth ulcers, and pale or purple fingers and toes from cold and stress. Some people also experience headaches, dizziness, depression, confusion, or seizures. New symptoms may continue to appear years after the initial diagnosis, and different symptoms can occur at different times. In some people with lupus, only one system of the body, such as the skin or joints, is affected. Other people experience symptoms in many parts of their body. Just how seriously a body system is affected varies from person to person. The following systems in the body also can be affected by lupus.

      -Kidneys: Inflammation of the kidneys (nephritis) can impair their ability to get rid of waste products and other toxins from the body effectively. There is usually no pain associated with kidney involvement, although some patients may notice swelling in their ankles. Most often, the only indication of kidney disease is an abnormal urine or blood test. Because the kidneys are so important to overall health, lupus affecting the kidneys generally requires intensive drug treatment to prevent permanent damage.
      -Lungs: Some people with lupus develop pleuritis, an inflammation of the lining of the chest cavity that causes chest pain, particularly with breathing. Patients with lupus also may get pneumonia.
      -Central nervous system: In some patients, lupus affects the brain or central nervous system. This can cause headaches, dizziness, memory disturbances, vision problems, seizures, stroke, or changes in behavior.
      -Blood vessels: Blood vessels may become inflamed (vasculitis), affecting the way blood circulates through the body. The inflammation may be mild and may not require treatment or may be severe and require immediate attention.
      -Blood: People with lupus may develop anemia, leukopenia (a decreased number of white blood cells), or thrombocytopenia (a decrease in the number of platelets in the blood, which assist in clotting). Some people with lupus may have an increased risk for blood clots.
      -Heart: In some people with lupus, inflammation can occur in the heart itself (myocarditis and endocarditis) or the membrane that surrounds it (pericarditis), causing chest pains or other symptoms. Lupus can also increase the risk of atherosclerosis (hardening of the arteries).

  4. QUESTION:
    What are the signs/ symptoms that you might have lupus and how do they test you for it? My lower back?
    has not been healing up and its been 1 year I am fixing to be refereed to a specialist and I am beginning to think it may be lupus. Lupus runs in my family in the women side. I have lost 2 relatives to lupus and I have several relatives suffering from it. What are the symptoms of lupus? Can it affect the lower back? How do they test you for it? Can a MRI detect if you have lupus or not? What about a blood test can it detect it?

    • ANSWER:

  5. QUESTION:
    Chances of having Lupus?
    You have a family history with Lupus and have almost all the signs and symptoms of Lupus. What percent chance do you have of having Lupus?

    • ANSWER:
      There are no accurate percentages. Go see a rheumatologist and get off yahoo.

  6. QUESTION:
    is throwing up and nausea a symptom of lupus?
    I have recently developed many symptoms of lupus & am waiting on results from the doctor (unfortunately the results take over a week) I have all of the tell tale signs of lupus but I find myself throwing up sometimes multiple times a day and often times nauseous. Is this a sign of lupus as well?

    • ANSWER:

  7. QUESTION:
    Is red feet a symptom of Lupus?
    Please Help me! my feet turn red when i stand up or do physical activity. i've read before that this is a possible sign of Lupus. i also have fatique, and unexplained fever. please give me an answer and dont just say go to the doctor. and to kate, you know who you are, dont tell me to go to that dumbass website all home remedies. go to hell kate dont leave an answer!

    • ANSWER:
      I've never heard of red feet being a symptom of Lupus. Usually it's white and purple that are a sign of Raynaulds Syndrome which is associated with Lupus. This is caused by sensitivity to cold and about 60% of people with Lupus have this secondary syndrome.

      The fatigue and unexplained fever are much more indicative of Lupus. Have you had bloodwork taken? If so what are the results. Lupus is a very difficult disease to diagnose and without more information it is impossible to tell if you could have it.

  8. QUESTION:
    Am I pregnant? What does these symptoms mean?
    Okay, so I had sex the third week on June and the condom broke! Since then I have had regular periods every month but I have been feeling rather odd. I have been urinating alot (getting up in the middle of the night), very exhausted (napping in the day), bad acne (breaking out like crazy) and I feel very full in the abdomen, almost like gas and heartburn. I am also very emotional, crying for no reason and I am hot, very hot and irritable. I am so uncomfortable and I am not sure what's going on. Keep in mind that I have Lupus, but none of these are signs nor symptoms of the affliction. Could this be something else? Any help is greatly appreciated!:)

    • ANSWER:
      it could be psychosomatic symptoms because you fear getting pregnant so your subconscious is producing pregnancy symptoms - does that make sense?

      i know someone that had that happen to her once - she had unprotected sex and was so scared of becoming pregnant from it that her subconscious "tricked" her body into producing pregnancy symptoms. but, after a couple months she finally took a test - it was negative and the symptoms went away almost immediately.

      however, some people do continue to have their period throughout pregnancy, or just in the beginning while the implantation is occurring. i suggest taking a home pee test so you'll know one way or another.

  9. QUESTION:
    I may have a friend with lupus, but refuses to seek help. What should I do?
    Hi.

    I have a friend who has had a facial rash for about a year already, if not more. The signs and symptoms seem like they are lupus. He has inflammation of the joints, and the facial rash. Also lately he has been acting more depress like and recently has had feeling of light headedness.

    We've constantly have told him to seek help before it gets worse. We told him to get it diagnosed at least. He has no health insurance, but we are willing to chip in for the costs. But the problem is he refuses to seek help at his own will. We have constantly pleaded for him to get help. He just shys away about it and changes the subject. He NEVER wants to talk about it. And even if we do, he just gets up and leaves.

    What is the best advice that we can do to help him? Put a gun behind his back and take him to the hospital?? I really don't know...

    • ANSWER:
      Sorry but the best thing you can do is leave him alone. You can't force him to get help and it sounds like you and your friends have done all you can to get him to the Dr. He is probably afraid of finding out for sure, he can't handle it yet so the best thing is wait until he asks for help. Be there for him. He will go when he is ready but don't push him, let him make his own decision and just be his friend for now.

  10. QUESTION:
    Help, I'm having signs of Lupus should I go to the ER?
    I've been having weird symptoms for 6 months and I think I may have Lupus....

    I have been getting;

    a butterfly rash on my face that feels warm

    red rashes and swelling in my knees, hands and other joints, sometime with purplish spots

    swollen lymph nodes,

    lightheadedness

    feeling faint

    shortness of breath,

    chest pain,

    fatigue,

    difficulty urinating/straining to go

    nausea/vomiting

    myoclonic-like muscle jerking in my arms and back,

    tingling, numbness and sensations of hot and cold in my hands, face, arms, legs and torso.

    I recently had a 48 hour holter monitor test that came back abnormal. My doctor didn't tell me until yesterday on a phone message, but I can't reach her for for 7 days. She said it was probably no that urgent, but now I've been feeling really strange and awful.

    Now I have pain on the left side of my chest, when I press on my chest it hurts and I can't tell if it's just a swollen lymph node or something worse and have been feeling deathly ill off and on the past few days. Should I go to the ER?

    • ANSWER:

  11. QUESTION:
    Could I have Lupus?
    have many symptoms of Systemic Lupus, and AutoImmune diseases run in the female side of my family...for instance; my Mother had Fibromyalgia, my Grand Mother has Arthritis, and my Great Grandmother had Lupus (she died), and that is as far back as I can trace...I will not go into my symptoms right now, but I will say I have just about every symptom and sign, beginning almost 2 years ago (I am now 15). I orginially though I had arthritis and a gastrointestinal disease, so I have been seeing a gastrointestinal doctor who has put me through many tests, and nothing shows except some inflamation, and swollen glands/lymph nodes...she is referring me to a rheumatologist (I know I should have seen one in the first place).

    How common would it be for me to have Lupus if AutoImmune diseases run in the family, and my Great Grandmother had Lupus, and I have 75%+ symptoms and signs?

    My Sedimentation Rate (Sed-Rate) has been continuosly increasing, and I do not have food allergies.
    I have my thyroid checked out on a regular basis, because everyone in my family, and relatives has Hypo/Hyper-Thyroidism and even Hoshimoto's except me and my Dad...I do not have thyroid problems that are known, thank you for your advice :)

    • ANSWER:
      It's very possible for you to have this, especially with your symptoms . Genetics play a big role in what diseases we get. With your Sed Rate increasing you have quite a battle going on with inflammation. It's possible that you have Fibromyalgia as well.

      I've written an article on Fibromyalgia, which can help you learn more about how to take care of yourself. The methods in it are equal to what you would do with lupus.

  12. QUESTION:
    Should I get tested for Lupus?
    I am a 16 year old girl, and for the past 3 or so years, I have suffered from severe fatigue, achy joints, headaches, abdominal pain, and my eyes are very sensitive to bright sunlight and florescent lights.I have been to an ear/nose/throat doctor, a gastroenterologist , and had many blood panels done for various things, as well as an MRI that found some kind of white spots on my brain that the doctor said look a bit like MS, but because of insurance reasons we never went to a neurologist. i have an old friend with lupus, and so i looked into the signs and symptoms, and i am wondering if I have enough of the symptoms to maybe have it? If anyone can provide any input, it would be greatly appreciated.

    • ANSWER:
      You should definitely speak to a doctor about your symptoms.
      The annoying this is that these symptoms you have, I have and many others have, is that they could be caused by a range of things. Such as, Fibromyalgia, MS, Lyme Disease, arthritis, Ankylosing spondylitis, Polymyalgia rheumatica, Inflammatory myositis, multiple sclerosis, depression, irritable bowel syndrome, migraine, CFS, and myofascial pain syndrome, myasthenia gravis

      You need blood tests and then see a rhematologist.
      ...

  13. QUESTION:
    does this sound like lupus? should i go see a doctor?
    Ok plz help! I'm 17 and I'm a severe hypochondriac, I was looking up the symptoms to lupus and before then I never had any pain but my thighs ache but I can make it go away when I focus on something else, I don't have any joint pains, fatigue, rashes or anything like that, but the pain in my thighs is very mild. My mom said I'm making it up in my head because before I was soo true I had glaucoma,enlarged heart,anuersym, brain tumor, cancer, and I've been through every test to show I didn't have any of those and then as soon as I found out it was in my head I felt fine. Could this be the beginning signs of lupus? Please help!

    • ANSWER:

  14. QUESTION:
    Could this be a sign of lupus?
    My wife been having joints and muscle pain in the hands and arms, also some numbness everyday right after she gave birth to our month and a half old son.. she had her blood checked a couple times before the pregnancy and it was ok but yesterday she went back to get it checked again..shes scared about lupus..her friend has it and had the same symptoms..what do you think?

    • ANSWER:
      Lupus is very difficult to diagnose. Joint pain alone is not conclusive; more symptoms should be present for a diagnosis that is this difficult. The butterfly rash on the face, for example, would be more conclusive than joint pain alone. Learn all you can and stay up-to-date on the lastest findings. I would read about it at http://www.symptomsoflupus.info. I hope this helps.

      Wishing you the best.

  15. QUESTION:
    Lupus questions please help?
    Can someone tell me what the lupus symptoms that are related to the heart are like? For example, I am currently being tested and haven't gotten my labwork back yet, but when I run on the treadmill I feel like my heart is going to explode and I can't breathe. I also have many of the other lupus symptoms my doctor is aware of and is concerned with.

    My main question is, can someone explain what the heart part of lupus may feel like? Also, do you have to have the "butterfly rash" to have lupus? Could very dry scaly skin on my feet that won't heal be a sign of lupus?

    • ANSWER:
      Lupus is an auto immune disease the most important dermatologic manifestations or symptom of lupus is skin rashes. The most characteristic rash is seen across the malar region of the face, the so-called “butterfly rash” that is accentuated by sun exposure. Lupus has two types systemic and discoid. Discoid only effects skin while systemic may involve systemic illnesses like renal diseases and etc.
      As you ask so I would kike to inform you that butterfly rash is the major symptom of lupus while other skin sign are also not negligible.

  16. QUESTION:
    Is my mom's personality change and weight gain a symptom of her lupus or a sign of something more?
    My mother has recently been released from the hospital after a bad lupus flair. However, she has recently exhibited changes in her personality. She has lost interest in things she used to love such as running, she hardly ever leaves the house, she has gained weight, and she appears unhappy. It's common for people to have decreased energy levels during a lupus flair, but can her lupus symptoms account for this much change in her personality? I'm concerned that she doesn't just have lupus, but also clinical depression. She has gone through a pretty tough year where she lost her job and filed for divorce. If it is just her lupus, then will these things go away when her flair ends? If it's more than lupus, than what can I do ensure she gets the help that she needs?

    • ANSWER:
      ITS NOT LUPUS

  17. QUESTION:
    If you have LUPUS or know about the disease please read?
    Im a 17 year old African American female, I DO NOT have anemia, I dont have a butterfly rash, I dont have fatigue, but I have this weird feeling in my knees and. Its NOT a pain its like a ache and its off and on. I could probally ignore it if I wasan't so focused on every time I feel a ache. No one in my family has lupus. Could mild knee aches be the beginning signs of lupus? I dont have any other symptoms.

    • ANSWER:
      I have lupus, was diagnosed 5 yrs ago. the symptoms may vary. Sounds more like you may have R.A. Your best bet is to get your blood checked. Your dr can tell by your ANA levels.

  18. QUESTION:
    could i possibly have lupus ?
    lately i have been experiencing some strange symptoms from getting a red rash in sunlight to have chest tightness and trouble breathing also having some irregular heart beats and trouble sleeping. I also am tired and fatigued all the time could these be possible signs of lupus ?

    • ANSWER:
      It's possible, but unlikely. Lupus is less common than people think. There are other reasons for your symptoms and the first that comes to mind isn't Lupus. I'd recommend you document your symptoms for the next week, take photos of any rashes or anything that looks 'odd' and then make an appointment to see your doctor. They will most likely run some blood tests. There are no blood tests that diagnose Lupus, but there are tests that doctors will run to help rule out things. There are tests that can help point doctors towards a diagnosis, but nothing is clear cut.

      Your GP is the first place to start.

      ....

  19. QUESTION:
    Is it lupus or do these lab results say something else?
    My ANA was positive homogeneous pattern 1/320 titer. CK was 311 IU/L. But my sed rate was 7 and SS-A IgG and SS-B IgG Autoantibodies were negative. WBC was 5.6 and lymphocytes were slightly elevated and granulocytes were slightly decreased. All other cbc results were normal.

    No lyme disease antibodies. Evoked potentials and MRI's showed no signs of MS.

    My symptoms are very much like lupus.
    My symptoms went from pain, to muscle atropy, to weakness in legs and inablity to control bladder and bowels, to seizures. I am waiting on a final lyme test from my spinal tap (done at the time of a myelogram to see if there was a cyst in the spinal column). I had no target rash after all 28 tick bites that I received 3 years ago. The lyme test was the more accurate western blot (my friend is a researcher specializing in lyme disease). I don't know how lyme could have caused horrible muscle wasting despite constant use.
    I have also had damage to the duodenum that may or may not be related and had to have a horribly inflamed gallbladder removed. The reason I am strongly considering lupus is because it could explain why my body turned on my other organs.

    • ANSWER:

  20. QUESTION:
    Possible Lupus?
    Is lupus a slow progression or does it rapidly develop? I think I may have lupus. After researching, I've come to realize that I have several of the symptoms, some I've had for years and others developed recently.I'm 25 Symptoms are: Knee pains; started in my early teens,had x-rays but they showed nothing.In the past few years they've started giving out and tingling like they're going to sleep. Next: migraines; started in my later teens, Dr. said they were stress related. I'm tired alot, I get the recommended 7-8 hrs of sleep most nights but I'm still tired. Then there is depression/anxiety:Started having mild anxiety attacks and mild depression in my late teens, again Dr. said it was stress. I also have been getting knots on my legs when I stand for more than 10-20 mins. The knots don't hurt. This spring I was out in the sun and developed a rash on my exposed skin.First it felt like razor burn, then it became itchy.Never happened before. None on my face however.Normal signs of lupus?
    About the skin rash, it was definitely not a sunburn, I've had plenty of those. It was small red bumps. My mother has the same reaction to the sun/tanning bed but her's is everytime she's in the sun. Her doctor told her it was just an unexplained reaction to sun rays. Any other suggestions on what the rash could be?

    • ANSWER:
      Well, those are all the symptoms that I had for APS a sister of Lupus that was dismissed by doctors for years! Migraines were TIAs. Geez, I knew my vision cutting out in one eye wasn't right.

      I suggest you see a rheumatologist and get tested for both Lupus and APS.

      I am now on Coumadin, Aspirin and Plaquenil and guess what most of my problems including the so called "depression" is gone. Listen to what your body is telling you.

      ETA following your comments: Polymorpic Light Eruptions? Sounds like it is time to see a dermatologist. But tanning beds are high in UV that set off Lupus rashes. Start taking pictures of them for your doctor. And stay out of the tanning bed.

  21. QUESTION:
    Anyone with Lupus or Multiple Schlerosis?
    I am having a lot of medical problems lately. I have been rushed to the E.R. twice last week for seizure like attacks. I have had EKG's, EEG's and today I had a MRI. I have been doing some own studies and found I have many signs of lupus. Now do not get me wrong I know I one can go crazy going online searching for this and that but I cannot help to wonder.
    My symptoms are :
    Random scaly rashes
    bouts of Dizzyness
    Hot flashes/Night sweats
    Painless mouth sores
    pains in my joints
    Fatigue
    Migraines
    Anemia
    I am going to a reumotologist and endrocronologist in the next couple of weeks. I was just wondering from ones personal perspective what they think. Thank you for your input.

    • ANSWER:
      I am glad to hear that you are going to see a rheumatologist as well as an endocrinologist--these people will help you tremendously. They will evaluate and give you all the tests which they feel will be needed for a proper diagnoses.
      I have had lupus since childhood and really the only way to see if you have it is through a doctor and certain types of blood work.
      These specialist will be there for you and help you. I would--how ever not get yourself worked up over this--you will only make your issues worse if you dwell on this situation.
      You should be eating a well balanced diet--drinking lots of water--getting lots of rest.
      Good luck.

  22. QUESTION:
    How serious is Lupus during pregnancy?
    My daughter had preclampsia with her first pregnancy. She is approximately 9 wks. along and is showing signs of the condition already. Last week her doctor told her that current symptoms she is having all point to the possibility of Lupus. He ran some test, and said depending on the test results may decide to hospitalize her for a few days for further testing and begin a treatment plan. I am terribly worried for my daughter and her unborn baby. Just wondered if anyone out their has experienced somewhat the same, and looking for some feedback. Thank you in advance.

    • ANSWER:
      Don't worry. Lupus rarely affects the baby of a woman who has it, but it isn't nice at all for the mother. Often women contract Lupus whilst pregnant or after they've had a baby, as Lupus is often triggered by this. I once knew a woman who had her Lupus at its very worse after she had her first baby. I've known 2 women with it, and the second one was so exhausted she spent most of a year in a wheelchair. But Lupus is rarely fatal nowadays, and it's not disfiguring. They usually use steroids to treat it. (I'm not talking about illegal drugs, I'm talking about medical drugs that have nothing to do with muscle building). Lupus can range in severity. Your daughter's baby will be fine.

      I'm not going to guarantee you that everything, including the baby, will be ship-shape and fine and dandy, but it is VERY likely. I know the woman above gave you some bad news about premature or ill babies, but the truth is, the two women I know have had 2 or more babies, all completely normal and healthy. Seriously. Not trying to make you feel better. Have a little faith, dear:) Good luck xxx

  23. QUESTION:
    My mom is sick?
    my mom is sick she couldn't go to work today and shes the kind that never misses work because shes a dog groomer.
    Symptoms
    Shes really cold
    i felt her forehead and now i have 2nd degree burns
    shes sneezing and coughing
    she has body aches
    runny nose
    and i was looking online and some of these symptoms are the first signs of lupus and im really scared because her mom has lupus so please help me out

    • ANSWER:
      It could be a cold, but it truly sounds more like the flu, ie the body aches and fever symptoms and the rapid, intense onset. The common cold does not usually include these symptoms, especially the fever part. The best things I know for flu are these: Oscillococcinum, a homeopathic remedy for flu sold in pharmacies and is WONDERFUL!; homemade chicken soup with lots of garlic, parsley, chives and dill, and hot, light liquids, in fact any liquids are good and necessary; all the fresh fruits, vegetables and their juices that she can or will eat are prime nutrition for her right now; hot/warm teas; lots and lots of rest.

      Homeopathic Aconite is excellent for emergent illnesses (ones that come on very quickly), but only give this within the first 48 hrs. of an illness and just until the symptoms change. Echinaecea, goldenseal, astragalus, schizandra, osha, maitake, usnea tinctures (and many, many others) would all be helpful, tho' as this sounds like a heat condition, echinaecea and astragalus would not necessarily be my first choices without knowing your mother and her symptoms better, as they aggravate heat conditions (can make them worse). I have found homeopathic remedies to be extremely helpful in shortening the length and intensity of flus.

      Gelsemium can also be an extremely beneficial remedy for illnesses with a summer onset. Put her to bed. Bring her lots of juices and soups and drinks to keep her strength up and to keep her hydrated, and encourage her not to get up and do anything until she truly has turned the corner and feels completely better. Overdoing it too soon tends to make viruses and their sequelae much worse. They can even recur if one does not listen to one's body, rather than one's mind and does too much, too soon.

      Do NOT give her aspirin w/ fever as this can cause Reye's Syndrome, a potentially fatal complication. I would recommend NOT trying to squelch her fever in any way, as it is a beneficial and necessary immune response. (She's roasting those little virus guys, which is just what you want her body to do.)

      Good luck! PS What a lovely kid you are to care so much about your mom! You don't say your age, but pls. remember it is not your responsibility to make medical decisions for an adult, it is your mom's and your dad's (if he's in the picture) responsibility. The only time this would fall to you is if she is incapacitated in some way and then you would call 911 immediately. It sounds like you are taking a lot of responsibility at a very young age. Is there an adult relative you could call to help you?

  24. QUESTION:
    Is this a sign of lupus or something else? I wanna know more to talk to my doctor tomorrow?
    I have been having chest pains a while back and a doctor thought it might be lupus. I went to another doctor, he didnt knwo what it was, then i was taken to the e.r. when i got sweaty, couldnt breathe, bad chest pain, etc. I had tests done on me, my 3rd ekg, and lab and xray, and they didtn see anything wrong. However i forgot to mention one doctor thought it was lupus.

    about 3 days after my chest pain i started exp pain all over my body, everywhere. barely walking causes me lots of pain. but i didnt tell my doctor this, i only focused on the chest pain.

    im going to the doctor tomorrow, the same one that thought it might be lupus. Is the all over pain/fatigue a symptoms of that? or something else?

    • ANSWER:
      I was thinkin i may have Lupus, so i did a small amt of research. Yes, chest pain when breathing deeply is a symptom. Also painful swollen joints, fever, extreme fatigue, and unusual hair loss. I was diagnosed with fibromyalgia..and that is another possibility. Fibromyalgia's major symptom is widespread pain and fatigue. But at least ur goin to the doc tom. So just tell him what u told us! take care sir

  25. QUESTION:
    Does this sound like Lupus? Test results inside.?
    I got my test results back today. I will be seeing my Dr. next week. All signs point to lupus or MCTD. I have felt lousy for ten years. Bad fatigue that is unrelieved by rest and aches/pains, as well as just feeling crummy in general. I also have Raynaud's that affects my toes as well as a sleep study that has documented sleep disturbances.

    The ANA titer was 1:40, so not bad I believe.
    The pattern was speckled.
    It says ANA: POS

    MY SED rate and my C Reactive Protein were high, as always, so that shows inflammation. There were some other markers that were high as well: Basophils and Eosinophils. I looked tem up and it looks like they have to do with immune issues/inflammation.

    Can anyone help me interpret? I can't see this as anything but Lupus or MCTD. I don't have the hallmark symptoms of Scleroderma or Sjorgens. My Rhematoid Factor was normal.

    With these results and a decade worth of symptoms.....

    *Also BUN/Creatinine ratio was 23, so slightly elevated...know this has to do with kidney function :(

    • ANSWER:
      Your ANA would be considered negative by most doctors. My rheumatologist said anything below 1:80 is considered negative.

      Lupus is a very complex disease, although you can have an autoimmune disease without an ANA is it quite unlikely with a negative/very low ANA.

      Are you being seen by a rheumatologist? Have you had the anti-CCP test done? Or an ENA panel?

      The ESR and CRP are markers of inflammation, but this doesn't automatically mean the inflammation is in your joints or organs. These tests can also be elevated for other reasons and they've very non-specific.

      There are many things that could be wrong, not just Lupus or MCTD. You need to see a rheumatologist, they're the ones who'll be able to make the diagnosis.

      .....

  26. QUESTION:
    A question about Lupus?
    I've been dealing with severe joint pain in my legs for the last several months,so I decided to see a doctor.
    Evidently the problems I've been having are classis Lupus symptoms. She took just about half my blood for a bunch of tests, and gave me some pain medication and steroids to take while I'm waiting.
    I started taking the meds and I'm feeling a lot better already, so I'm guessing that's a sign it's either Lupus or some other auto-immune disease. I've done a lot of reading already, and the more I read, the more it seems like this really is what I've got.
    So, what should I expect? This may sound silly, but my major concern is taking steriods for extended periods. My mother, my uncle and cousin all have Crohn's disease & took steroids for long periods, and they've never been able to lose the weight. I'm just curious about what to expect as far as steroids and weight gain goes. Any insight in general?
    I've already been to tons of websites, I'm looking more for personal info

    • ANSWER:
      Hi Im Chris, I have had lupus a long time, and have been on steroids off and on for a good 12 years. at this point, I wont take them, at this point not so much for weight but other side effects. I was on them once for I think 2 years straight. I did gain about 100 pounds. I hated it. But they did take me off, for me they just didnt work, and they eventually changed my medications, to Imuran and then methotrexate. Once off the medications I lost all the weight within 8 months, it melted of like water. Today I wont take them, because they make me an insulan dependant diabetic, give me migranes and a host of other things. Like you Autoimmunes tend to run high in my family. My mother has somthing called polymalgia rhuematica, a cousin has Crorhn's, and another autoimune thyroid disease.. Those I know little about. But lupus I sure can help you with.
      If your just now noticing signs of it which it sounds like, with the joint pain, you may also begin to notice that you may start having some skin issues, like photosensitivity (you cant go in the sun, or be in ultraviolet lighting, most stores use that, and being in it a long time is like sunlight), you may get a butterfly rash which bridges across your nose and your cheecks. you may get different types of rashes anywhere else on your body, sun exposed or not, you may get low grade fevers, muscle pain, fatigue, sometimes you may experience mild to moderate cognitive problems, like what is called brain fog, ability to think clearly, sometimes, get your words into sentances the way you would like, you may find your self stumbling when you walk a bit, etc. Those were a lot of my early problems. Also, I noticed my hands, feet and ankles would swell and go down, usually when hot outside, then I would be ok, after putting them up, drinking a lot of water or the next day. you may have some months where you may show that your a bit anemic, or your blood counts show some kind of non-specific infection, which they will give you antibiotics for. Some Lupus paitents have major organ involvment, some do not.. it stays contained mainly to the symptoms and issues I mentioned above. In my case I am considered to have mainly Liver involvment and central nervous system involvment (my brain at times can be very bad, to where I need chemo to get swelling down), others have heart, lung, kidney (lupus nerphritis) involvment. Lupus dosnt discriminate, it can go after any body organ, or part. for the most part ( I co own a lupus support group) I have noticed most seem to dodge major organ involvment, but a lot become anemic, have minor to severe (Im the most severe that I know of with central nervous system issues), some occasionally may get like kidney stone which clear up, or tend towards brhoncitis, and minor things that can be taken care of.

      From all my years of doing research moderating and owning online message boards/support groups, its the ones that keep the most poitive attitudes that tend to keep the most normal lives, no matter how ill they are. They tend to look on the bright side, and not see the what if's. They are well informed, have better support, either from family, friends, support groups in their community or online, or all. They listen to their bodies and know when to rest. They dont worry about every little ache and pain, they comply with doctors orders, they know how to continue laughing (that my dear is a must). We still live our lives though we have some glitches. Lupus isnt a life sentance, we just have to modify a bit.

      Also, since I wont do the prednison train, I must add there are all kinds of classes of medications to help those with Lupus. Once confirmed the first thing they will put you on is Plaquinil, it is an antimalarial, and for somereason, it helps to slow down a lupus paitents overactive immune systems a bit, and protect our skin, reason unkown. there are other classes of medicaton, mainly immunosuppresent and immunosupressent/chemotherapy agents. but your a long way from that my friend. You said youve been doing some research, but I will leave you with several links. Ill also leave you with the support group link, we have many vetren diagnosed like me, we constantly do reserach, we have newly diagnosed, and some waiting to be diagnosed.
      My best
      Chris
      Oh here are the 11 lupus critera you need 4 to have lupus.
      Diagnostic criteria for lupus
      The following criteria are used to distinguish lupus (systemic lupus erythematosus, or SLE) from other autoimmune and rheumatic diseases.

      A person with 4 of these 11 conditions can be diagnosed with lupus; 3 symptoms suggest that lupus is probably present, and 2 raise the possibility of lupus. Symptoms may be present all at once or appear in succession over a period of time. 1

      Butterfly (malar) rash on cheeks
      Rash on face, arms, neck, torso (discoid rash)
      Skin rashes that result from exposure to sunlight or ultraviolet light (photosensitivity)
      Mouth or nasal ulcers, usually painless
      Joint swelling, stiffness, pain involving two or more joints (arthritis)
      Inflammation of the membranes surrounding the lungs (pleuritis) or heart (pericarditis). This inflammation is called serositis.
      Abnormalities in urine, such as increased protein or clumps of red blood cells or kidney cells, called cell casts, in the urine
      Nervous system problems, such as seizures or psychosis, without known cause
      Problems with the blood, such as reduced numbers of red blood cells (anemia), platelets, or white blood cells
      Positive antinuclear antibody (ANA) test
      Signs of increased autoimmunity (antibodies against normal tissue), as shown by laboratory tests
      References

  27. QUESTION:
    Question about certain blood levels.?
    Ok here goes. My daughter has had blood work done 4 times over the past 8 months. There seems to be a gradual decrease in the RBC, Hemoglobin, hematocrit. They are all within the "lab range" but they seem to be decreasing over time. Due to her symptoms, bruising easy, headaches, lack of energy, being tired all the time and palor, her doctor has performed numerous tests to include LUPUS, Rheumatoid EBV and CMV. She also has cysts in her bones, so an ALP was also performed. That was a gradual decrease as well until this last test. Her LD level was done once and that was normal 122. Here are the tests over time. What is your opinion??

    Sept 09 Nov 09 Mar 10 May 10 NORM (my lab)
    WBC 7.7 4.6 7.6 5.2 4.50-13.0
    neut, abs 4480 2480 3720 1140 (L) 1800-8000
    neut % 59 53 50 22 (L) 40-70
    lym, abs 2620 1740 3150 3590 1200-5200
    lym % 34 38 41 69 (H) 20-60
    RBC 4.19 4.15 4.09 4.01 3.8-5.1
    HBG 13.1 13.4 13.0 12.6 11.5-15.3
    HCT 38.2 38.2 37.4 36.7 34.0-46.0
    PLT 263 211 233 137 (L) 140-400
    ALP 95 79 71 247 (H) 41-244
    AST 18 16 16 227 (H) 12-32
    ALT 8 8 11 285(H) 6-19

    All her other blood work is normal. Including Bilirubin. I'm Not sure what to think. The normal values that I posted are from my lab, but if you do a search for lab values, the RBC for a female should be 4.2-5.1, the ALP should be 41-150, and the platelets should be 150-400.
    Does anyone have any input? I spoke with my aunt who is an oncological nurse, and she suggested a bone marrow biopsy, and so did someone else. I know about one particular bone marrow disorder, Aplastic anemia, my dad passed away due to that, and unfortunately, my daughter has all the physical signs and symptoms of that.

    Any input would be greatly appreciated.
    Her vitamin D, 25-OH, total was 23 (norm 20-100). Vit D25-OH, D3 was 23, and Vit D,25-OH, D2 <4
    Her EBV and CMV were both negative in March. They are going to redo that. Her calcium level is 9.9. That is why I keep thinking more along the lines of bone disease or bone marrow. She does have bone cysts. They haven't told me what kind, they are either osteoid osteoma or intraosseous ganglion.
    Also, I mentioned to the doctor about the familial B12 deficiency and when they checked it 2 years ago it was normal.

    • ANSWER:
      Okay, vitamin D is deficient. Rule of thumb with most tests is have it on the high side of "normal". There are exceptions to the rule but what is normal on a reference range may not be normal for you. Most labs have 30 to 74 ng/mL as a normal reference ranges for D - 25OH. Vitamin D is essential to activate the immune system so the higher the better.

      There are many reasons for vitamin D deficiency. Firstly, lack of sunlight (most vitamin D in the diet is a poor source), secondly low calcium levels. Vitamin D cannot absorb unless there is sufficient calcium in the blood and calcium cannot absorb if there is not enough Vitamin D. An "ionzed" calcium test is the most accurate at picking up this deficiency. Also, problems can be associated with the parathyroid gland which regulates calcium in the blood. A PTH test needs to be measured against calcium to see if there are problems.

      PTH test:
      http://www.labtestsonline.org/understanding/analytes/pth/test.html

      Looking at the liver enzyme levels...they are very high. 10 - 20 x the normal level of ALT can indicate infectious mononucleosis also known as glandular fever/epstein barr virus. Other reasons for high ALT include hepatocellular (liver cell) diseases such as cancer, fatty liver, cell death due to bacteria/viruses/hepatitis or toxins, cirrhosis, obstructive jaundice.

      High AST - liver disease, skeletal muscle diseases, trauma, pancreatitis, renal infarct, eclampsia (milk fever), cancer, cerebral damage, seizures, alcohol, heart tissue disease, infections in the bloodstream, intramuscular injections, antibiotics/drugs.

      High ALP can be from vitamin D deficiency/ricketts, gallstones, severe anaemia, damage to bones, Paget's disease, healing fractures, hyperparathyroidism, pulmonary infarction, heart failure, liver disease/lack of oxygen getting to the liver, pancreatitis, Cushing's disease, steroids drugs, primidone, phenobarbital (anti-seizure drugs). An elevated ALP is normal in growing children and in pregnant women.

      High lymphocytes can be anything from a virus to allergic reactions.

      White blood count - too low - possibly bone marrow diseases or an enlarged spleen, infections (more commonly viral infections, but also bacterial or parasitic infections). tuberculosis, malaria, epstein barr virus, vitamin deficiencies (megaloblastic anaemia due to vitamin B12 and/or folate deficiency), diseases of the bone marrow such as leukemias, myelodysplastic syndrome, aplastic anemia, myelofibrosis.

      Haemoglobin and Haematocrit - too Low: possibilities include anemia due to nutritional deficiencies, failure to produce blood in the bone marrow, blood loss, destruction of blood cells internally.

      Low platelet count can be from many reasons from thrombocytopenia, entrapment of platelets in an enlarged spleen, bone marrow failure diseases to infection and vitamin B12 deficiency. As with vitamin B12 deficiency, this is commonly misdiagnosed. The most accurate test for vitamin B12 deficiency is the urinary methylmalonic acid test. A healthy vitamin B12 serum should be over 800pg/L. Please note, a third of patients with vitamin B12 deficiency have normal sized platelets. Rare type of anaemia is autoimmune pernicious anaemia (unable to absorb vitamin B12 in the digestive system). Blood tests - anti bodies against the instrinsic factor and parietal cells.

      http://en.wikipedia.org/wiki/Thrombocytopenia

      It is possible your daughter has inherited Aplastic anaemia. I would check for B12 deficiency, folate deficiency and for epstein barr virus (mono) as well.

      http://www.naturalhealthtechniques.com/basicsofhealth/lab_result_meaning1.htm

  28. QUESTION:
    How do I know if I have a uterine infection after giving birth and if Keflex is the right atbc to treat it?
    Hi! I just gave birth to my first child 10 days ago and had really bad complications after the delivery. I was in labor for 27 hours, pushed for an hour, and got the usual Pitocin and epidural. My OB had manually pulled out my placenta immediately after the delivery of my baby and I had not asked him to! I was hemorrhaging for the 1st 2 days. I even passed out 2 hours after I gave birth, as soon as I transferred to the maternity ward! The same night, I was about to pass out a 2nd time and my blood pressure dipped at its lowest. They had to call an emergency code and all of the doctors and nurses rushed into my room. The reason for my postpartum hemorrhage was because I had retained fragments of the placenta in my uterus and a dr. had to manually push the clot out! On top of that, I had a distended bladder and couldn't urinate on my own, so they had to Foley cath me for 3 days. I didn't have an episiotomy or any tears, but had a few abrasions inside my vagina. I also had a hematoma on the left labia. I lost so much blood, 55%, I became anemic and was supplemented with a stronger iron than what I was taking during pregnancy. I was on IV fluids for 3 days and stayed in the hospital for 4 days. Ever since I got home, my lochia had been getting less and less but the hematoma on my left labia became so painfully excruciating it had even turned hard even with the sitz baths I've been taking. It was so painful every time I went to the bathroom, to urinate or pass a bowel. Even on pain meds, the vaginal pain was so severe, I had to go to the emergency. I was examined and they told me in time, it will heal and go away on its own and the hematoma is too small to cut open and drain.

    Then today I noticed I started bleeding more and even passing big clots, whereas previous days, my bleeding was brown and very small, like dime sized amounts with no clots at all. In addition, I've been having extreme severe abdominal pains since this morning. I saw my OB today and he examined my uterus by pressing down on my belly and I grimaced so much because the pain was so bad. He told me it's not supposed to be that painful at this point, 10 days after giving birth. He concluded that I had a uterine infection and put me on Keflex 4 times a day for 10 days. I'm not sure if he diagnosed me correctly since he only pressed down on my tummy and didn't run any tests to confirm that it's an infection. Also, how would he know what kind of antibiotic to prescribe to me if he doesn't even know what kind of uterine infection is invading me? I know there are different kinds of uterine infections based on the different types of bacteria! I'm a new grad LVN (practical nurse) and even though I haven't worked since I got pregnant during school, I know that I should be skeptical of something about his diagnosis! I don't have a fever or any other signs and symptoms of an infection other than the extreme abdominal pain and painful urination/ bowel movements. The emergency department took a urine sample from me and a bladder infection or UTI came out negative so I know I don't have that! Someone out there please help me! I just want to make sure my OB and medical team during my labor and delivery have the best interest in taking good care of me instead of killing me! I just want to be alive and healthy to raise my daughter and for my uterus to not be affected so I can have more children after this! Thank you so much in advance!

    FYI: I also have Lupus, but a mild form of it since none of my organs are affected....only Raynaud's Disease and eczema which is about it!

    • ANSWER:
      Keflex is a broad spectrum antibiotic and will cover you regardless of what specific bacteria you have. He's probably giving you the antibiotics as a prophylaxis, just in case. I would venture to say that you'll improve over the next couple of days.

  29. QUESTION:
    Husband had an ECHO done, doctor said normal but the paper seems to say otherwise, please help!?
    My husband is a 35 year old man and had almost a complete work up done up on him.
    Chest x ray was normal, EKG, and the ECHO is normal except for the small pericardial effusion noted on the results(the paper). My husband has been reading all the negatives of pericardial effusion trying to rationalise this saying on the paper "small pericardial effusion" as being normal because his doctor said everything was ok but didn't look into it until he got home and seen that on the paper. Being very concerned, he went to a cardiologist today to have the paper(results) evaluated further because he didn't feel it sounded right even though the doctor said he was fine. The cardiologist recommended a follow up in a year but my husband insisted on it sooner since he was worried so the cardologist agreed to retest in 3 months. So now my husband thinks he has this pericardial effusion which can result from autoimmune disorders such as lupus or R/A, then infections such AIDS, or cancer, etc. So being the sort of hypochondriac that he is, he thinks he may have one of those things causing the Pericardial effusion.
    His blood pressure is good, 110/64, and he does not have any signs or symptoms of pericardial effusion. He wore a holter monitor for 24 hours which did not show any abnormalities. He initially made the appointment to get all of these tests done because he was experiencing fast heart rate in the middle of the night, which he thinks could be anxiety but wanted rule out any posssible heart problems. Any comments are welcome. Worried wife.

    • ANSWER:
      Small amounts of pericardial effusion is actually not too much to be worried about. While those things that you mentioned are capable of causing pericardial effusion, there are many other causes of pericardial effusion including radiation, vascular collagen diseases, or even having been hit with something, etc. The main problem with pericardial effusion is that if it becomes too significant, it can cause pericardial tamponade, but that's if he has like 2 liters of fluid surrounding his heart. Otherwise, if all other findings and lab results are normal, it's not too much to be worried about. Just follow up once in a while to make sure cardiac function is normal.

  30. QUESTION:
    How do i know if i have lupus?
    i've gone over some of my symptoms and i'm thinking i might... how do i check? what kind of doctor/tests do i do and what are some obvious signs?

    • ANSWER:

  31. QUESTION:
    Young women with lupus pls help?
    Could this be a symptom ? I am 23 and have had 3 kids . My youngest is 9 months old. I have had nothing but problems since his birth . I keep having this overian pains and now it has gotton so severe i cannot even walk some days . I have been to the doctor and the hospital and they have done cat scans and ultra sounds blood test and more and cannot find anything and say that all my female organs are in great condition . It hurts to have intercorse on the inside and feels like somone is taking sand paper to me on the outside . What could be wrong iam so sick of getting told they cannot find anything . Please help could this be one sign of lupus ?

    • ANSWER:
      no i think u have a ovarian cysts
      go to the doctor i had the same symptoms

  32. QUESTION:
    My wife wants to apply for the Navy Medical Corps? But she had lupus... She is in remission?
    She has no signs of the disease. No symptoms. She also takes no medication? She is pregnant and it hasn't surfaced and her Lupus antibody count is negligible according to blood test results. Can she get a waiver join the medical corps as a Medical Specialist.
    It says in the guidelines systemic diseases but she never had systemic lupus it never got that far. She had discoy lupus which only effects skin and she took steroids for 2 years. But she never was diagnosed with systemic lupus . So she technichally never had a systemic disease. Its like a no cancerous tumor I guess. Is it waiverable just to enter with her own medical degree. No need to pay for school.

    • ANSWER:

  33. QUESTION:
    Peculiar symptoms..? What's wrong with me?
    If you are not in the medical field or studying medicine or have not experienced these symptoms as well, then please don't give your input. If you know someone that has had these symptoms, that is acceptable, I am willing to hear anyones opinion except from those that have no idea what they are talking about or have something nasty to say.
    I have a long list of symptoms; I am not a hypochondriac; I don't have insurance so I can't see a doctor about it right now.
    I have nearly all the symptoms of Lupus and Cushings Disease, but my previous doctor last year dismissed my concerns and diagnosed me with Poly cystic Ovarian Disease, Fibromyalgia, and Hepatitis B. My PCOS diagnoses was just him saying he's sure I have that because of some symptoms. I had blood work and my ovaries came back just fine, yet I was still diagnosed with PCOS anyway.
    Ok, symptoms: Daily fatigue, awful back and shoulder pain, upper body obesity, a rounded face, increased fat around the neck, and relatively slender arms and legs,bruises easily, and heals poorly., never developed breasts, no period for over a year (I'm 25), thinning hair on scalp, but hirotism (excessive body hair), stomach discomfort, urine smells very strong of ammonia without signs that it's a UTI. Dark circles under my eyes, excessive thirst, bright red cheeks, diagnosed with osteoperosis I'm 25!!! skin problems including frequent acne around my chin (I never had acne as a teen), Depression & Anxiety, Keratosis Pilaris on my upper arms (the excess production of keratin, creates a goose-bump appearance), boils and bumps on butt, now a rash on my butt! I know I sound disgusting, but please don't make me feel worse than I already do about myself. Please help me out if you are familiar with these problems... I'm sure I have other problems that I'm not contributing to the list, so if you want to ask if I have other symptoms, please ask and I will answer asap.
    Thank you both for your responses, however - I have already been tested numerous times for thyroid problems and they function very well. As for diabeties, my fasting glycemia level is 79-80, so I'm nowhere near diabeties, I'm closer to hypoglycemia, but not that either. As for meningitus, I was also tested for that a while ago and that was negative. I have Hep B. so that could explain a liver problem, since Hep B eats at your liver when in flare. I was told to keep an eye on a stomach rash or soreness around the liver, which I don't have. So I'm not concerned about a liver problem right now. Anyone else have any ideas?
    My BMI is high, it's 27. I am just below obesity, which really sucks. I used to be very thin and active - age 20/21 I was 80lbs lighter and much more active. Over 5 years I have gained 80lbs and pain has overwhelmed me to the point where I am not as active. I play with my son and I am a postal worker - so I get mild/moderate exercise, but at the end of the day, I'm wiped out and in pain. For osteo - I consume a lot of Vit D and normally take supplements. Lupus, I was unaware of the plastics! I am constantly drinking from plastic bottles and cans without washing. I only run my fruits & veggies under a cold tap for maybe 30 seconds before consuming... so I guess that's bad. Steroids, I can't recall ever taking any - but it's possible.

    • ANSWER:

      Hi,

      Firstly - from my own experiences I feel I need to ask, what is your BMI? By staying focused on eliminating grains and starches and fruit-sugar/deserts I was able to more easily finally drop to 25 and my goal is now 22. My viewpoint has become that our bodies will repair the best when one would eat much healthier and would then fast maybe one or two days a week - in order to burn old muscle and organ cells so one’s DNA would replace them with brand new muscle and organ cells. Sooo I am learning how to eliminate my gut fat and will then fast occasionally so that I can move from my daily calories being from daily foods and also body fat >>==> to my calories being from daily foods and my own body’s muscle and body’s organ 'meat,' and then 'I_think' my bad fatty cholesterol loaded liver will finally begin to be 'consumed' by my own body processes and will be replaced by a healthy one in a natural way without surgery. [(-:]

      "Most Cushing's syndrome cases are caused by steroid medications." FROM: <> http://en.wikipedia.org/wiki/Cushing's_syndrome <> Have you had any steroid meds in the last few? My view is that our bodies will make its own hormones or insulin the best that it can be done, and when one uses synthetics or inject horsey pea it cripples our own body’s willingness/ability to make its own hormones as it was designed/built to do.

      My previous investigations into Lupus showed me that it was from an overload of plastic/vinyl consumption during my friend's life. Coke-cans and any other plastic lined cans for vegetables soups etc or plastic water bottles and especially indoor vinyl painting. Probably the greatest source of plastic consumption is from pharmaceuticals and supplements that use plastics to contain them. Definitely eliminate these from your consumption with little efforts. Also, FYI pizzas and bread/muffins/cakes that use aluminum based rising powder are the greatest source of toxic aluminum consumption within our culture. Eliminate these and Alzheimer’s will become much much less of a future possibility.

      I now rinse all my canned vegetables three times and then re-cook 31+ to 90+ mins and throw out the water. What elements are lost is the carb-acids that are in super-excess, while the most important nutrition that your body needs are in the solids that have not been digested yet, but the boiling helped to also make this digestion much much easier for me. I have also eliminated all nightshades i.e. tomatoes.

      I would recommend everyone to first thoroughly boil their vegetables and this is why. Eating boiled vegetables, like spinach, is the only way I have found I can eat 200 calories a day of leafy greens without loose stools - because boiling reduces the hundreds of percent of acid carbs, like oxalic acid, that oftentimes cause loose stools. Boiling spinach also reduces the pesticides from 80 to 95%+ as per canning studies done in the 70's, by boiling the pesticides off with the steam - after extracting it from the broken cells in the raw plant. Boiling for thirty minutes also kills any salmonella bacteria or e-coli and even anthracs spores that may have somehow been introduced into the raw or commercially canned produce. Again, thirty minutes will kill e-coli AND anthracs spores, which is common sense to me, since my immune system is already weakened and could not handle more than a few spores from a raw salad before I would likely be killed off before I reach my goal of better health. [(-:]

      Boiling also breaks vegetables down a first step so it is then easier to digest in the gut, which would then minimize GI-digestion cancer problems from continually ‘overworking’ your GI-digestion system. Boiling also IMPROVES the micro-nutritional density, i.e. RDA%_nutrition per calorie, by about 10% as per the USDA’s data for boiled spinach versus raw spinach.

      For Osteoporosis - are you taking supplements or eating/drinking any dairy products? I am very ‘strongly’ allergic to the Vitamin A&D Palmitate Preformed Retinol enrichments that are added to non-organic milk. I also learned that one carrot a day has 100% of what is needed but my daily greens have a-lot more than this. Also, consider that the anecdotal shpeal about how these prevent Osteoporosis is the opposite of what really works and then consider eliminating these as well. Eat much more super-boiled spinach, broccoli - after rinsing and boiling out the antifreeze if bought it frozen, asparagus, Pok-Choy, and/or Nappa cabbage. Eliminate all grains/pasta and other starches and fruits/deserts. See my food list from the link below.

      See: >>==> VITAMIN A AND BIRTH DEFECTS from:
      <> http://www.scienceblog.com/community/older/archives/M/1/fda0309.htm <>
      OR:
      <> http://www.windsorpeak.com/vbulletin/showpost.php?p=1427639&postcount=7 <>
      ORIGINALLY FROM:
      <> http://www.fda.gov/bbs/topics/ANSWERS/ANS00689.html <>

      I had almost poisoned my liver to death with nutritional supplements before I realized what I was doing, and I then learned that the entire industry has been an un-researched snake oil scam since Geritol in the 1920’s, and now likely additional snake oils like B12 since the fifties. Synthetics are ALL toxic to the liver, and someone like myself with a sickly liver could definitely tell you the results from a flare up when one would ‘try’ to consume a new snake oil that is really a toxin.

      Check out my own story from the links to understand what I have learned over the years and what I have proposed will likely make more sense and you will likely come to the same conclusions I am choosing.

      <> http://answers.yahoo.com/question/index?qid=20091025223942AAni6lC <>
      <> http://answers.yahoo.com/question/index?qid=20091113104039AAbnGet <>

      Although I think the problem is 'most-likely' long and or short term allergic reactions to 'something' COMBINED WITH a weakened lymph liver kidney and immune systems - IF the following symptoms would ever occur - I think the worst it might possibly be is deadly bacterial meningitis.

      For further details see <> http://www.cdc.gov/meningitis/about/faq.html <>

      Even so these are my thoughts of what ‘might’ be happening in almost any rash or itch situation >>=> I have not been educated to be an M.D. - just a lifelong learner.

      My own view from my own experiences is that rashes and/or itches break out in the weaker parts of one's skin, usually because of allergic reactions; OR perhaps due to fungus problems that may also occur simultaneously, and both of these more easily occur when one has too many carbs and fats in one's daily calorie allotments, and therefore one has inadequate micro-nutrition absorption in the gut which has contributed to a compromised immune system – due to a lack of adequate micro-nutrition to adequately rebuild one’s body on a continual basis.

      What I have learned is that my past naïveté to the consequences had allowed my occasional stresses to sometimes cause me to do things or to eat things or to inhale things that have more toxins in them and that have then weakened my immune system, like drinking and eating caffeine chocolate or high carb foods and sweets.

      It sounds like the malady may be a result of an allergic reaction to something that is toxic to the liver/kidneys. IF it is due to a toxin overload of the lymph system, you might then notice that when one gets hot - then a rash or itching will sometimes occur since the toxins are sweating out of one’s system ONTO an area of the skin that may be weaker and more easily irritated and inflamed.

      ALSO whenever one’s immune system has become weakened the other problem can easily become a bacteria-fungus i.e. ringworm and/or yeast infection thrush, but it is hard to tell what the root causes may be without seeing and learning the details about what one has been eating breathing and applying to the skin. SEE <> https://health.google.com/health/ref/Ringworm <> Monistat 7 will likely kill any fungus in a few days and better micro-nutrition will keep it killed and will also strengthen one’s liver lymph and kidney systems to be able to better handle both an allergic reaction AND/OR bacteria-fungus outbreaks with less suffering in the future.

      IF you think it may be an allergic reaction - although it may be a difficult process - try to identify the triggers from cosmetics meds nuts milk grains other-foods chlorine-water-in-showers smoke perfume moldy-smells laundry-cleaners etcetera by discontinuing them until the symptoms stop and then beginning them again to see how the body reacts. If one is like me one may start to see allergies to many things because the root problem for me was a severely weakened liver from too many nutritional supplements that were toxic and I never knew it until it was almost too late.

      After several months of pruritus Urticaria with blisters and skin fevers primarily at the back of my knees and thighs sometimes when I got warmer, that had begun during the colder months of November inside a gas heated low humidity home, I have identified enough of my own triggers to allow my legs to heal with only a super-minimal amount of coconut cream cut with de-chlorinated water rubbed over my skin and a minimal number of full body showers.

      After several applications my lymph glands have become severely allergic to petrolatum products that are similar to Vaseline Petroleum Jelly, and common sense has now taught me that any petroleum products should always become toxic to anyone’s kidney and liver with repeated applications. I had flare-ups immediately after I had applied organic olive oil so I eventually changed to minimal amounts of coconut oil after I had used a minimal amount of a p

  34. QUESTION:
    could my symptoms be ms or something else?
    recently i have been experiencing joint pain acommpanied by slight numbness and burning sensations in my hands and feet sometimes even on my lips and face.. i told my doctor and they ran some blood they ruled out lime ra and lupus.. i did have some hormonal levels off which they believe could cause the joint pain.. i recently had a baby and sometimes this happens.. my concern is could this be signs of ms has anyone had these symptoms? and it was ms or something else.. please adviseh

    • ANSWER:
      ...Those symptoms sound like a peripheral neuropathy which can be caused by many illnesses. They are not specific symptoms of MS. If you are worried about that, have your doctor send you to a neurologist first. I'm glad your tests for arthritic conditions ( RA, and SLE ) came out okay. They shoud check you for Diabetes also.

  35. QUESTION:
    How can something like this discoid lupus be in the intugmentary(skin) and not be in the system ? is the skin?
    not a part of our whole and including , blood vessels, veins lymph ( the skin is a living organ too) Dr's please ansewer this for me signed worried. Plaqnil is the Tx of choice I ve been given , but other symptoms that affect my eyes and liver also manifest.

    • ANSWER:
      Lupus is a disorder of the immune system. It affects different patients in different ways. It can also change over time in the very same patient.

      When UVA and UVB light hit the skin, they alter the DNA in the cells at the surface. Lupus patients make an antibody to this altered DNA. Normal people just wrinkle or get skin cancer over time. We get rashes. When the "allergic" reaction starts it can cause rashes all over the place.

      When antibodies label something as an invader, the immune system kicks in. If the antibodies label the wrong thing, the immune system will try to destroy whatever is labeled. The other immune cells notice the "label" and surround the target, releasing chemicals to digest it and causing the formation of huge molecules called immune complexes. The chemicals cause inflammation which causes rashes, inflammation and pain.

      The immune complexes or garbage are supposed to be processed in the spleen. Our immune "garbage" carriers are also confused and a tad bit lazy. They dump the complexes wherever they want. When the immune complexes get dumped somewhere else in the body-joints, kidneys, heart, lungs, skin, etc. They cause more pain, inflammation and damage.

      Plaquenil interrupts the process of cells surrounding the targets by changing the Ph on the surface. Plaquenil is a drug that lupus patients stay on for life if they have no bad side effects. It's not like taking an ibuprofen and a headache going away. Plaquenil must be maintained in order to do its work.

      You do not say what your eye and liver problems are. Liver problems can be caused by many things-lupus, medications, other disease. Lupus can affect the eyes, and so can plaquenil. Very rarely, patients get what is called chloroquine retinopathy. If you get your eyes checked every six months and have a "field of vision" test you will be fine. The chances are very small that plaquenil will cause damage. If it does, the damage is very, very slow. The six month eye exam will pick it up. If you stop the drug, you stop the damage.

  36. QUESTION:
    Severity of Hypothyroidism and medications needed.?
    I have a Dr.s appt next week and I plan on asking about hypothyroidism, but I'm not sure she'll do anything because my last thyroid test came back normal. However everyone on my moms side of the family, (maternal and paternal) and one man has hashimotos hypothyroidism and all have had a normal t3 and t4 count. My mom was checked multiple times and they sent her home because her test were normal, meanwhile she had a goiter wrapped completely around her neck and had to have her thyroid removed. My only sibling also has hypothyroidism. I show all the sign and symptoms other than the blood test. I just had my doctor test me for polycystic ovaries, and I'm concerned if I come back suggesting something else she won't take me seriously. So basically I'm here asking if I should ignore it. If my blood test are coming back normal does it mean I'm not severe enough to worry about it. I want to conceive a child sometime this year and I want the baby to be healthy, but I don't want to take any meds unless I have too. Does anyone have experience with any of this. I also have a really Low body (97.1) temp and always have. This is another symptom but I was wondering If i could raise it up maybe it would help. Any Advice. I'm 24 5' 5" 180lbs. I am a vegetarian and walk 3 miles 4 days a week as well as living off 1200-1400 calories a day. This has been going on for a year and I've only lost 20lbs. So any suggestions on successful weight loss would be great also. Also My mother and Aunt have Lupus if that makes any kind of difference.
    I was 140 lbs when I got pregnant in 2005. I hardly gained any weight until the last 2 months when all of a sudden I gained 50lbs. After my daughter was born I didn't lose any weight ,not even her birth weight. I walked 8 hours a day and continued to gain until I reached 205 lbs. I have very slowly been losing it since then. However I can't seem to get lower than this 180.

    • ANSWER:
      If you have symptoms you should definitely push for more from your doctor. If you need to, find a new doctor. The best way to test you is actually an ultrasound of your thyroid gland, not a blood test. My sister had hypothyroidism and they had to remove it. she then had to "experiment" with various dosages and types of meds, which took a while and sapped her energy, but she's doing well now.

      best of luck. sometimes you have to push the doctors.

  37. QUESTION:
    questions about lupus / ANA please anwser if you can?
    I JUST GOT MY OTHER RESULTS FROM MY ANA

    my first ANA in oct. was 1:160 also liver functions came up abnormal like sgot/ast 134 sgot/alt 219

    and they reran the test less than a month later and came back 1:80 rhemy said it was neg ( the paper said low positive/borderline ) (also ran sed rate crp and came neg)

    i been having a lot of symptoms ranging from full body joint and muscle pain (entire body )
    insomnia fatiuge sleep paralysis
    forget fullness/daze
    itchy all over no rash
    dry eyes/mouth
    urinating a lot
    restless legs
    mouth /nose bumps/sores
    anxiety depression irritability
    possible butterly rash very light (could be somthing else )
    and more symptoms

    they've been going on for about 4 months could this be early signs ?

    could this still be lupus or maybe another autoimmune problem even though rhemy doesn't think i have it ? can ANA fluctuate like that ?

    • ANSWER:

  38. QUESTION:
    Are these test results saying lupus?
    I have spent nearly 2 years trying to find out what is wrong with me. What started as painful intercourse advanced to AUB (endometriosis was removed). After treating my endometriosis I found that my pain was isolated to my bladder (I no longer received bladder urges though no incontinence issues). No signs of IC. Then I lost control of the bladder, then bowels, then legs. My symptoms varied from pain feeling like my legs were lit on fire to my bone marrow splitting apart to numbness in the legs. I also had issues with hands and feet turning blue, chest pain, inexplicable fevers, increased bruising, and an inability to fight off infections. My muscles in the legs have atropied despite my work being very exercise intensive (with restraining animals in excess of 200lbs).

    MRI's of the spine were clean excluding one area of decreased nerve signal (a neurosurgeon thought it might be a cyst but the myelogram was clean). No signs of MS plaques and evoked potentials were normal. Lymes disease testing was negative.

    So on to the positives. My ANA was positive homogeneous pattern 1/320 titer. CK was 311 IU/L. But my sed rate was 7 and SS-A IgG and SS-B IgG Autoantibodies were negative. WBC was 5.6 and lymphocytes were slightly elevated and granulocytes were slightly decreased. All other cbc results were normal.

    I know that my blood results do not scream lupus but at this point I am wondering if I should be consulting a rheumatologist. My neurologist doesn't want to make a call of lupus, she would like me to consult with my PCP (he is 2 hours from my home so I would prefer to see a local specialist to make the call if it is indicative of lupus). My CSF has been sent to the Mayo Clinic for testing and I should hear back in 2 weeks or so. In the interim I am curious if I am right in considering these test results suspicious of lupus considering my symptoms.

    Any input would be appreciated
    Another think that has started recently is seizures (nothing beyond petit mahl yet thank goodness). I also had a horribly inflamed gallbladder that was adhered to my stomach and duodenum and intrahepatic which had to be removed a few months ago (I'm unsure of any correlation between that and my current problems).

    Oh and in response to my first answer...there is no cure for lupus only ways to manage the autoimmune response. But I am already using aloe juice when I miss my Carafate for Nsaid induced ulcers and duodenitis. No help from that juice for anything other than the stomach pain.

    • ANSWER:

  39. QUESTION:
    lupus??? help, please!! ?
    so, about two years ago i was diagnosed with rheumatoid arthritis.. when they did all the blood tests, they were also positive for lupus, but the doctors never did anything because i didn't have any 'outward physical signs' of it.. well, yesterday i noticed a small rash on my face (across my cheeks) and i sent a picture of it to my mom (who works for a doctor) and she showed it to him and he said it definitely looked like a 'butterfly rash' (a symptom of lupus').. so, now, i'm wondering, how likely is it that it is lupus? i'm really really worried..should i be? or am i worrying over nothing?

    • ANSWER:
      You have reason to be concerned. This is a common symptom or sign of lupus. It means your body is beginning to produce symptoms of active disease. You need to follow up with your primary doctor and get the ball rolling. You don't need to suffer unnecessarily with some of these symptoms that will occur, the sooner you treat them the more control you'll have maintaining your illness.

      * They may consider further testing at this time. Auto-immune diseases can be tricky to diagnose. Because of the, "butterfly rash," they may rule out the rheumatoid arthritis. Lupus alone may be the culprit for your aching and swollen joints. I wish you luck...I suffer from an auto-immune disease myself. You'll have good days and bad, I'll say a prayer for more good ones!

  40. QUESTION:
    so MANY symptoms perfect bloodwork!...could antibiotics CAUSE blood tests TO BE NORMAL when there is a prob?
    i take doxicycline for acne, i have many symptoms that are pointing to lupus, lyme disease, cancer etc......... my blood work tests are normal i took myself off the antibiotics to get blood wrk re tested w/ hopes of changes the dr will recognize as a lead---but he didn't tell me to stop them so he could see for himself... so does this not make any sense? should the blood work show signs of disease anyway? or only if its late stage? so confused!!!!
    symptoms vary greatly and im getting no def answers after switching dr's time and again seeing specialists and researching ,myself(which is relentless)
    i have symptoms of:
    Renaud's syndrome, alopecea, circulatory problems(painfull swollen vessels causing hives!broken blood vessels), skin problems(acne, wounds wont heal, blood vessels leaving marks, hives), hard lymph nodes in groin as well as swollen tender lymph nodes EVERYWHERE!, weird lump inside throat(went to ENT saw rawness w/ scope but no answers) itchyness(especially scalp), DRY SKIN, swollen painfull knees and ankles(tested neg forRA), blood and mucus in stools, heavy periods w/ blood clots, swollen vulva and cervix(cervix has purple growing hard dots(dr says cysts and they're normal-but they multiplied and grew ALL OF A SUDDEN!)
    tested neg for RA, CELIAC, HIV, CLAMYDEA, GONORRHEA, STREP, O AND P(STOOLS), ALL BASIC CBC AND BLOOD WORK NORMAL! COULD BE BC OF ANTIBIOTICS? AND IF SO, SHOULD MY DR HAVE KNOWN THAT? CAUSE I WILL CHANGE DR'S AGAIN!

    • ANSWER:
      Doxycycline could throw off your Lyme tests. But even if you weren't on doxy, Lyme tests are highly unreliable. They often say you don't have it when you actually do. Many of the symptoms you describe could be due to Lyme and/or coinfections (other nasty stuff carried by ticks.) I don't recommend going to a new doctor until you've done some research on Lyme and coinfections. Once you have a clearer idea of the implications of some of this stuff, you'll be better able to locate the right doctor for you.

      Good sources of info about Lyme disease:
      http://www.lymedisease.org
      http://www.ilads.org
      http://www.canlyme.com
      http://www.lymenet.org
      http://www.lymeinfo.net
      http://www.lymediseaseassociation.org
      http://www.lymedoctor.com
      http://www.touchedbylyme.org
      http://www.facebook.com/lymedisease.org

  41. QUESTION:
    Can I have Lupus?(people who know)?
    I went to the doctor, and did urine test and blood test, and he told me i had blood in the urine. Then he did more studies, and he said i might have Lupus. I have none of symptoms ie, rash,lost of hair,pain,ankle swelling. He told me i had something high, i'm not sure what is was, but it was 1.6. So now he is going to do kidney biopsy to see what is happening. You think i have lupus? Oh yeah, he said I have no protein in my urine, so that is a good sign he said. If i do lupus, can t be cured if it's low?

    • ANSWER:
      Hi Im Chris, I have had Lupus for 20+ years, own a Lupus support group and do research on lupus. having blood in your urine can mean your passing protien from your kidneys, or have a severe Urinary tract infection.

      The test he is talking about where the titer was 1.6 is called the ANA or Anti Nuclear Antibody test. and while 95% of people who have Lupus have a positive ANA healthy people can alos have a positive ANA, for any number of reasons. It can run in familes, high estrogen levels, just having had a baby, infection, and more.

      Also even if you have a positive ANA and say a kidney infection, that alone does not qualify you for having Lupus. You must meet 4 of 11 diagnostic critera. Which I will post.
      I suspect he may want to do a kidney biopsy to rule out
      Lupus nerphritis. A type of lupus that attacks the kidneys, and is mainly contained to the kidneys, but usually will also involve your skin, joints, possibly hair loss, and other issues as well. I think he may be jumping the gun a bit, but from my expreiences I have delt with Lupus paitents diagnosed and undiagnosed for 10 years, your lucky you have one that is concearned enough to take extra steps to look into this further. Some who clearly meet all the critera can wait 5 years to get diagnosed, and even when diagnosed still have problems getting proper treatment. all because their dr's are just egomaniacs, or dont realy know what they are doing. so be grateful this dr is trying to rule it out.

      About Lupus being cured. There is no cure. Lupus is an autoimmune disease. In an autoimmune disease our own bodies belive they are under attack from an outside forigen invader. so our own cells start to attack our own cells and organs. The only thing dr's can to is try to hold symptoms at bay, and hopefully put us into remmissons from what are called flare ups during very active times of the disease.
      many of the drugs used are prednisone (which is a streroid, but not a performance enhancing one), antimalarial drugs, and immunosuppresents (many which started as chemotherapy drugs, that did little to kill cancer, but work well in suppressing Lupus and other autoimmune over active immunesystems). Some people have very mild cases of Lupus. Others moderate, still others very serious to life threatening. Personally mine is severaly moderate to serious, and have had to be treated with the strongest of the immunosuppresents. But I have had a few remmissons in the 20 or so years. I also know several that are still able to work. Below is the diagnostic critera. and I will include the link to the group I own with a couple others.
      Good luck

      Diagnostic criteria for lupus
      The following criteria are used to distinguish lupus (systemic lupus erythematosus, or SLE) from other autoimmune and rheumatic diseases.

      A person with 4 of these 11 conditions can be diagnosed with lupus; 3 symptoms suggest that lupus is probably present, and 2 raise the possibility of lupus. Symptoms may be present all at once or appear in succession over a period of time. 1

      Butterfly (malar) rash on cheeks
      Rash on face, arms, neck, torso (discoid rash)
      Skin rashes that result from exposure to sunlight or ultraviolet light (photosensitivity)
      Mouth or nasal ulcers, usually painless
      Joint swelling, stiffness, pain involving two or more joints (arthritis)
      Inflammation of the membranes surrounding the lungs (pleuritis) or heart (pericarditis). This inflammation is called serositis.
      Abnormalities in urine, such as increased protein or clumps of red blood cells or kidney cells, called cell casts, in the urine
      Nervous system problems, such as seizures or psychosis, without known cause
      Problems with the blood, such as reduced numbers of red blood cells (anemia), platelets, or white blood cells
      Positive antinuclear antibody (ANA) test
      Signs of increased autoimmunity (antibodies against normal tissue), as shown by laboratory tests
      References

  42. QUESTION:
    A question about epilepsy?
    A few months ago, after 2 consecutive seizures, I was diagnosed with epilepsy (I had some tests done, such as blood tests, EEG, etc.). All tests came back clean, but based on what happened to me, they diagnosed me with epilepsy anyway.

    Recently, however, I've begun to notice some new symptoms, such as joint pain, a butterfly rash, severe fatigue, and more. Looking at my new symptoms (combined with the fact that I had seizures, which is sometimes seen in lupus) I was wondering if maybe I have lupus.. If I had 2 seizures, but didn't have the other signs of lupus at the time, would they have already tested for lupus, or not?

    • ANSWER:
      Did they put you on an AED (Anti-epileptic Drug)? If so, those are noted side effects. I would recommend you discuss that with a doctor. However, you might also see a rheumatologist to double check for a neurological form of SLE (Systemic Lupus Erythmatosis... not sure if it's spelled right, but I know it's close).

  43. QUESTION:
    Off most meds for Lupus?
    I was officially diagnosed in 2001 with Lupus by a rheumatologst based on a high ANA titer, joint pain, rash, hair loss and other symptoms. Now my primary care doctor is doubting my lupus diagnosis because my blood work isn't showing signs of inflammation even though I am dealing with chostochondritis, joint pain, hair loss, photosensitivity, malar rash, extreme fatigue, depression, brain fog, myofascial pain and other symptoms. Because of my blood work, her and my rheumatologist have taken me off of plaquenil and methotrexate, are tapering my prednisone to 0 and just have me on a multitude of depression meds and celebrex and have sent me to a chiropractor. As the prednisone comes down the pain gets worse but they say since my bloodwork shows no signs of inflammation that it isn't due to the lupus and that the prednisone is not doing anything, it is just something else. I've been on plaquenil since 2001 and generally my lupus has been stable except for the past 2 years. They also added MTX about 18mths ago which helped with my joint pain immensly but because I am still having other symptoms they feel the meds are not working and it is safer for me to be off of all meds. I think this is a huge mistake but have any of you been through this. I made an apt with a Lupus specialist in NYC to get a second opinion because I can't take the pain and fatigue. Am I overeacting to this change? Has anyone been taken off all meds even though symptoms are present and are getting worse?

    • ANSWER:
      Well methotrexate is a chemotherapy drug with deadly side effects! I would advise strongly to never take this medication....please read the side effects.

      http://www.nlm.nih.gov/medlineplus/druginfo/meds/a682019.html

      Long term use of Plaquenil can be deadly. Even celebrex side effects include death. I know a lady with lupus who went to a naturopath and is now pain free and off all medication. My mother has 3 prolapsed discs and finds flaxseed oil works for pain in 20 minutes. Also, glucosamine with chondrotin is great for rebuilding cartilage between the joints but takes a few days to a few weeks to work. Was the test for inflammation a C-Reactive Protein test? There is also the anti-DNA antibody test and the anti-Sm antibody test to diagnose lupus.

      I would suggest checking your Vitamin D levels - should be 70ng/ml or 175 nmol/L, vitamin B12 levels - serum should be over 800pg/ml and thyroid tests including TSH, free T3, free T4 and thyroid antibodies. Auto immune diseases seem to have one or more of these problems a good percentage of the time...and all three can also cause all of your symptoms except for the malar rash...pretty conclusive to lead to a diagnosis of lupus with this rash. I can only say if you can relieve your pain naturally then go for it. Drugs will shorten your life span. My mother took celebrex and tramadol but now only takes flaxseed oil, glucosamine and chontroitin and plenty of vitamin D..she also went to a pain work shop and was doing heated pool therapy for over a year. I just found a video of a woman with lupus who is now pain free and med free (after 30 years) from taking antioxidant opc-3. This is definately worth trying!

      Inflammation:
      http://www.ultrawellness.com/blog/ultrawellness-key-3

      Lupus cure - opc-3:

  44. QUESTION:
    Lupus, Narcolepsy, MS? What should I look for?
    30 y/o 5'2" 115. mixed raced female.

    So 3 years ago around this time I developed bloodshot eyes (no other eye symptoms, no pain either) it lasted for weeks. shortly after that I started to lose movement to my right fingers, then my hand, then within a week my right leg and right arm. I had absolutely no feeling, and never any pain. My arm was like Jello. I was hospitalized for a week. The docs poked with needles and I didn't feel a thing. I received an MRI the docs found nothing. I was told that they found elevated levels of something (don't remember) that may indicate Lupus. They also said it could be very early signs of MS.

    Here I am with Bloodshot eyes again expecting the worst. Here are also some other things I can't make sense of.

    * I've been having sleep paralysis (ongoing since 16 yo) I thought it was ghosts, so I didn't get a referral to a sleep specialist till now.
    * I am always tired, since I was born. I love sleep more than I will every love anyone or money. I can sleep straight through an entire weekend or party.
    * I have a very weak stomach. Almost everything gives me loose stools.
    *I'm constantly confused, disoriented, lightheaded.
    *At times I seem to lose my balance, especially when I'm not looking at the ground, as if I have to focus on my feet and tell it where to go.

    Can you all help me piece this puzzle together? What tests should I take?
    THanks for your answers. I have to add that although I am concerned and curious I have not freaked out about the situation. When I was hospitalized and had lifeless limbs, surprisingly, I didn't worry at all. Even now, I'm not going crazy over it (most people would) I'm just pissed because I will look like crap this 4th of July. I am more concerned about my loved ones finding out. I haven't told anyone and when I was hospitalized I told my family I went on a vacation.

    • ANSWER:
      Fewer Friends

  45. QUESTION:
    Please HELP, doc doesn't know what's wrong with me?
    My doctor has done many blood tests but she hasn't found anything wrong with me, so naturally, she now thinks I have psychological problems.
    I KNOW for a fact this has nothing to do with my mental state. I am not depressed.

    Here are my symptoms:

    Extreme fatigue/weakness/exhaustion
    Mild fever (when my pain gets worse I begin to heat up)
    Weight loss
    Muscle aches (all over my body, along with joint pain)
    Mouth sores (canker sores) (recently started getting sores in my mouth and tongue, 3 so far)
    Shortness of breath (I thought my asthma had come back, but since this is a lupus sign, then that would make sense. when my pain gets really bad I feel like I can't breathe and begin gasping for air)
    Chest pain (along with shortness of breath makes me feel like I'm about to throw up. chest/heart feels pressure.)
    Easy bruising (I've noticed, and it takes a very long time for my bruises to heal)
    Anxiety
    Memory loss and loss of concentration
    Sensitive to light (and I'm also sensitive to heat)

    I'll try to explain my symptoms in more depth...
    my muscles ache but it's not an intense muscle pain, more like a constant dull pain in my back, my legs/knees, my shoulders, my neck.
    I get slight headaches now which is almost daily, but they aren't intense headaches, again more like a dull pain.
    usually during the night I wake up because I first feel very nauseous, and then my chest feels tight and I begin feeling short of breath, so I start gasping for air.
    throughout the day I feel very exhausted, taking up to 2 naps a day, and it has impacted my personal life by not being able to do certain activities. If I do those physical activities, I feel extremely drained and my muscle aches become more pronounced, then I just go take a long nap, and when I wake up I never feel refreshed, sometimes I even feel worse.
    there are really two things that really scare me, one being the extreme exhaustion all day long, and the other being those terrible nights where I wake up feeling sick all over my body, nauseous, tight chest, and it makes me toss and turn, I cannot sleep when I'm in that kind of pain, I have thrown up from it and it gets very bad to where I even start to cry. I also start heating up. it almost feels like I have a case of the flu for a few hours (that's the feeling of sickness that comes over me). so this is why I know it's not psychological, it's extremely painful and it wakes me up out of a dead sleep.

    Does anyone have any ideas?
    She tested me for Lupus, currently I am waiting for that test back.

    I took one before, it was slightly elevated..but now I'm waiting for the definitive test.
    Actually yes she has said Fibromyalgia might be a possibility, she even gave me a number to call. Thank you for your input.

    • ANSWER:
      Your symptoms are many and can apply to many diseases/illnesses.

      What type of blood tests did the doctor have ordered? It could be the thyroid gland.

      Knowing what blood tests she/he ordered is really necessary to answer this question more completely.

      Sounds like you are not happy with your doctor. You can change doctors or get a second opinion (be sure to bring all the blood work results with you).

      Have you had any tick bites, mosquito bites, etc.?

      Wait for the results of the Lupus test. I recommend you also see an endocrinologist (specializes in the hormones of the body - and I don't mean just testosterone, estrogen). The thyroid gland and pituitary gland are important glands that secrete hormones, just like the pancreas secretes insulin.

      So you see, not knowing what kinds of blood tests were done is hard to say what could be wrong. Be advised that we are not doctors and even if there were some answering, they couldn't give a diagnosis just by your symptoms.

      BTW you are not crazy or imaging any of this. This is very real and needs definite medical attention. It is not psychological - so be at ease :)

  46. QUESTION:
    Is it possible that I have Lupus?
    I have many symptoms that come and go: muscle pain, joint pain, constant stomach aches, extreme fatigue, unusual hair loss, anemia, depression, headaches, dizzy spells, confusion, bad memory, random vision problems, mood swings, random skin irritation, and pale fingers. I have been having on and off symptoms since I was about 16. I've seen many doctors, but haven't listed all of these symptoms all at once so they never suggested it. Could it be Lupus? Or possibly another disease? I'm really nervous as I have heard Lupus is life-threatening. I had to be signed out of school as a senior because of these random symptoms that no one could figure out. They would come and go so I'd just go to the doctor with joint pains, go again with depression, and go again with being tired and what not. Would a normal urine test show if I have Lupus? Or do they have to specifically test for Lupus, as they did not? I'm going to the doctor, but I wanna know if its possible if I have it or not. Thanks
    Also I have irritability, anxiety, nausea, loss of appetite, abdominal pain, difficulty concentrating, theres not many foods I can eat as I feel sick after, I get drunk really easily, diarrhea very often, breathlessness, my legs and feet will randomly fall asleep even if I'm not cutting off circulation, weakness, extreme weight loss due to lack of appetite (lost 40 pounds since May and I'm 18), constant flem/lump in throat feeling, I'll sometimes feel like I'm on a drug or drunk or have a hangover when I don't drink or do drugs, I throw up at least once a week, I'll get really lightheaded and dizzy, I'm really thirsty a lot, heartburn, I'll feel really antisocial sometimes even though I'm not shy at all, my skin gets dry really easily, I'm told I'm pale, common hot flashes, I feel full after only a few bites of food, constantly sore.. I've felt like something serious is wrong with me for a long time. The doctors must not be looking hard enough. There HAS to be something wrong.
    Also, I have very irregular periods. I've only had two this year so far. Seriously, if someone has any idea what it could be.. please tell me. I can't stand this huge list of symptoms and constant problems anymore.

    • ANSWER:
      I'm no doctor but I do have lupus, and although you have some symptoms that are common with lupus, it almost seems like it could be something else. There is no "one" test that confirms lupus, but a few tests combined with your symptoms generally gives a doctor a diagnosis. That's the bad thing about lupus - everyone's symptoms are different, and sometimes one symptom can cause other problems outside of lupus.

      Write down all of your symptoms, noting which are most frequent etc., and take it to your doctor. Some docs don't put 2 + 2 together until they see everything at once.

      A lupus specialist is usually a Rheumatologist, so your doc may send you to one if he suspects it is something auto-immune related. That's something else, too... there are many diseases closely related to lupus, so even if you get negative lupus test results, don't give up! It's a tough group of diseases to diagnose. Sometimes it takes years to get a proper diagnosis, but more & more docs are understanding it these days.

      By the way... lupus doesn't have to be fatal, as long as the patient takes good care of themselves, has their regular blood work to keep an eye on things, and has a GOOD doctor! :)

      Best of luck!

  47. QUESTION:
    What could all these strange symptoms be?
    Throughout the last 6-7 years of my life (I am currently 21) I've had numerous medical problems, all of which had "no explanation." My symptoms have included:
    Age 14-present: Severe hypertension (Average BP is approx 150/95), Severe tachycardia (resting HR approx 110-120), Severe chest pain, Elevation in white blood count with no signs of infection, Fevers with no infection, Massive hair loss, Cankers
    Age 17-present: Photosensitive (burning badly and easily), "Burning skin sensation", Extreme fatigue, Rashes on both hands
    Age 18: Unexplained paralysis of left side (no signs of stroke)
    Age 20-present: Butterfly rashes, Inability to keep food down, Partial seizures, Blackouts, Kidney Infections

    I also have a diagnosis of Schizoaffective Bipolar if that helps at all.

    My doctor has done an ANA blood test, but results results were negative. It's to my understanding that Lupus can be very hard to diagnose, but if it isn't Lupus, can all these problems possibly be something else? I am sick and tired of being sick and tired and I just want answers!

    • ANSWER:
      Food allergies

  48. QUESTION:
    Symptoms for 7 months, no diagnosis. Excessive hair loss, muscle pain, swollen nodes.?
    Hello!

    I`m a 19 year old female who`s been experiencing a series of symptoms for the past 7 months that doctors have been unable to diagnose.

    Firstly, my hair has been falling out and as you can imagine, this has been very emotionally stressful. Since about 7 months ago, I`ve lost more then 75% of hair from all over my head. The hair loss is not patchy, but has been thinning all over. I used to have long, extremely thick and beautiful hair, and now its almost gone. The hair loss is not localized to my head as I've even noticed that the hair on my legs and in my pubic area have barely been growing back after shaving. I did see a dermatologist and he said that I must have an underlying autoiumme disease that's causing the hair loss. He suspects lupus or a related disease, but as of yet, blood tests have shown no irregularities.

    Since around the same time my hair has been falling out, Ive noticed that the lymph nodes in my neck have been swollen. Sometimes they are red and sensitive (especially after drinking alcohol or smoking) but usually they're painless. I've also been experiencing a lot of joint/muscle pain and stiffness. Some days it gets really bad and I can barely move, even typing/writing is difficult because the muscles in my hands are so stiff. I feel like every muscle and joint in my body is inflamed. I'm only 19 and I'm having as hard of a time moving around as my 55 year old mother with MS.

    Lastly, (and I'm not sure if this is related at all) my skin has been really dry and especially itchy. I'm not sure if I've noticed any rashes, but I have noticed some redness (light red spots) randomly on my skin.

    My family doctor did a thorough blood analysis and everything came back normal. There is no sign of vitamin deficiency, my thyriod was normal, no diabetes, my blood cell count was normal, kidney/liver function was normal, and I'm clean for STD's/STI's. I really don't know where to go from here and im terrified that if I don't find out whats wrong, I'm going to go bald.

    Does anyone know what these symptoms indicate? Any advice as to what I should get tested for/where I should go from here would be great.

    Thank you in advance for the help!

    • ANSWER:
      my endocrinolgist , said i had sluggish thyroid normal levels, my VIT D was dangerously low my vit b 12 was low i have hypo thyroid symptoms normal thyroid I HAVE goitors never knew it until i choked and had ENT do a nasal scope, so follow my advice my endocrinologist put me on synthyroid , 37.5 mcg works for me VIT D and VIt B 12 also AVOID wheat products you could be celiac syndrome try eatting oatmeal rice potatoes NO wheat pasta buy rice and corn pasta drink V* 8 splash change your diet

  49. QUESTION:
    polymorphous light eruption?
    Does anyone have this. If so what are your symptoms? I was just diagnosed with this yesterday. Its a reaction to sunlight uva and I have been in the sun for 30 years with no problem, I'm 41 and first gettining it now! They say it could be a sign of discoid lupus erythematosus. Please anyone let me know if you have some info or what your symptoms are. I read up on the internet but I would like to hear from someone with this condition.

    • ANSWER:
      Have you done a simple websearch on this? I found a lot of interesting links. Best wishes...

  50. QUESTION:
    Good detoxification therapies?
    I grew up on a farm and was exposed to many toxins -- fertilizers, insecticides, pesticides. I attribute my grandfather's lupus disease to life-long exposure to these poisons. Medical research supports this -- toxicity is one trigger for lupus.

    I've had immune system problems all my life. I took gamma globulin and long-acting penicillin shots for more than 20 years as my immune system was so weak I couldn't fight off any virus or bacterial infection. Now I'm plagued with several food and environmental allergies. I have interstitial cystitis. My skin is a mess -- always breaking out all over my body. My allergy doctor said it was a sign of toxicity. Now I've got some symptoms of lupus and am getting nervous.

    I've been away from the farm for severals years, but I know I'm still paying the price. Is there any way to remove these poisons from the body or are they trapped forever in my tissues and I'm destined to be sick all my life?
    I am planning on making an appointment with a doctor regarding my lupus concerns. I've gone the traditional medicine route....just wanted to see what the alternative medicine community can offer me.

    • ANSWER:
      http://www.drnatura.com

      I aways recommend this to everyone, because I've been on it for three months. It's a safe, all-natural, gentle colon cleanse that is a very good first step to full-body detoxification. It's given me wonderful results so far... it's done wonders for my skin, too.

      Anyway, you might check out their testimonials... there are hundreds of them, and they're all on file and verifiable. A lot of people have said that after doing the cleanse, a lot of other health problems eased up or went away completely.

      Your colon can be an awfully toxic place... lots of terrible things can get stored there for a long time, and slowly leak out into your body. And, if you can stomach it... check out the pictures page. That's what sealed the deal for me.

      But, if you're looking for something really easy and inexpensive to follow, just drink lots of pure water with a tablespoon or two of organic lemon juice... the lemon juice helps pull the "bad stuff" out of your body, and water is a natural purifier. There are also a lot of good detoxification teas on the market, for relatively cheap. If you're fortunate enough to have a health food store nearby (sometimes you can even find them at bigger grocery stores), you shouldn't have any trouble running across one.