Do You Have Lupus Quiz

What kind of a person are you? At the time of test, will you prove yourself a good person or fail? All of us think that we are good persons. But when it comes to crunch, not many pass the test. They change suddenly at that moment and become a different person.

Do you have saintly qualities? Are you compassionate? Are you a selfless person? Do you help others even if they do not ask you? Do you never do anything that can hurt anyone? Can you forgive your worst enemies? What kind of a person are you? How much do you know about your real self and your real attitude? What are your basic values, which will never be compromised by you? These are important questions to be raised by all of us. If at the end of our enquiry, we find that we are no saints, there is no harm. Because that realization will make us do good deeds.

How to find out if you have saintly qualities? Reflect about your actions of the day for five minutes every night. Go back to your meetings, your work and your conversations. Find out if you did something that was without any selfish motive. Find out if you did anything that might be called wrong. Find out if you hurt anyone with your words/ find out if you praised any co-worker? Look at all the good deeds and bad deeds. Keep on increasing your good deeds and reducing your bad deeds. You are not alone. All of us do bad deeds. The important factor is realization. Once you realize about your deeds, you will automatically do more good and reduce bad, because you are basically a good person. Try some tests and quizzes on the Internet and find out more about your real personality and if you have saintly qualities. Do it for few days, and you will feel good about yourself. That is a big achievement, bigger than any amount of money.


Do You Die From Lupus

Are you grieving the loss of a loved one? Or concerned where you end up after it's all over?

Most questions I receive on this topic come from those who are concerned about a loved one who has passed away. Sometimes they have been bad. Perhaps goo 00004000 d. Is the church correct? Or is it made-up? And how can we know?

As shared on my web site, philg.net.au I accidentally found my own family in the afterlife, and stumbled on a way of verifying communciation is real. Coming from a religious background, where it was assumed there is a Heaven, it was quite confusing to suddenly be 'talking' to my Mum in the Afterlife - that doesn't fit my understanding of 'Heaven'. And why, when only about half the world believes in a Christian heaven, do most other religions believe in life after death of some kind, without necessarily calling it 'Heaven'. Is it possible there's a whole bunch of 'heavens' 'up there', sort of like a segmented hard-drive on a computer?

I asked my Mum to explain this from her perspective - remembering she was quite involved in the Church. She explained that the church partly has it right, and partly wrong. When we die, we become part of the 'energy' that's all around us. A little like the 'Force' referred to in StarWars. It's all around us. Indeed. No major intelligence needed on that point. Where you're standing or sitting right now - there's a blaze of energy all around you that you can't see. Gravity is pulling you down. Wireless internet, radio waves, TV signals, GPS fixes from satellites, magnetic 'rings' - they're all around you, in you, through you, all the time. Everywhere. Whatstupid people we are to imagine there ISN'T unseen energy, and how could we think in this great cosmos we understand everything there is about life and death?

You can't destroy energy. A dead tree branch laying on the groundholds an enormous amount of energy. Just light it and hold your hand over it!! Yet you can't SEE the energy. The energy that's in our bodies - our souls - is and always remains invisible. When we die, the energy leaves our bodies, and becomes part of the energy around us.

Heaven, or whatever you want to call it, is the collective body of energy around us, containing among other things, souls. Different cultures call it different names. But it's all the same. Christians call the energy "God". Others call it different names. But it's a way of personalizing the energy force that quite correctly allows us to have preminitions and warnings, can 'guide' us through life (gut feel), and, for those mourning the loss of a loved one, can touch us on the shoulder, or whisper in our minds, the words we need to hear.

Do we all go to heaven then? If you follow my belief, then we all go to the 'energy' around us. Regardless of the name we call it, whether we've been good or bad, or believe in God or otherwise. We all go to the energy. If we have lived our life well, I believe we arrive at this place peacefully. If not, I believe we are challenged for the wrongs we have done, and are required to make amends.

Loved ones who pass away are with you. They're in the energy, 'heaven' or any other name you want to call it, which is all around you. If you embrace this concept, and trust my words, then I'd like to invite you to the next concept - you can 'talk' with the ones you miss, anytime you need to. Check out my web site for information on how to do this, watch my youtube video to help you, or look at the books and guides list on the web site.

Take care. -Phil G.


Do Most People Die From Lupus

Are you searching for your child that you lost communication with? Are you looking for a long lost relative?
Do you ever wonder what happened to people you went to high school with? Good friends you lost contact with?
Are you thinking of reconnecting with your childhood sweetheart, maybe your ex-boyfriend/girlfriend ?

Whatever your reasons  for searching for people from your past, then there are so many different methods available online to assist you. Most popular these days is to join the biggest social networking sites like Facebook and MySpace. There is also a professional network called LinkedIn to make contact with ex-colleagues. For most of these sites, you have to register first and create a profile before you can start to search for people.
If you want the quickest way to look for people, then use a people search engine that is designed to just simply search for people within the US and Canada. All you require is the person's name, then it will do the search right away. If a match is made to the person's name, it will list the person's age plus the City and State. Other detailed information such as a phone number and street address are also provided.

If you do not find a match with the person's name, then the tool can also do a search using a Social Security Number (SSN) or Using any phone number. You can search for private, unlisted, pager or cell number. There are so many options for you to trace the person with this search engine that you are bound to find them eventually.

This free people search engine has certainly made it easy to reconnect with people from your past. There has been so many reunion success stories which are truly inspirational.

+ A father that reconnected with her daughter after 26years of being apart.
+ A couple that seperated when they were just 19, got reunited after 20years. After a few months, they got married.
+ An adopted child, reconnected with her birth mother after years of searching for her.

The next success story could be about you! You might be reuniting with someone sooner than you think.

Frequently Asked Questions

  1. QUESTION:
    Do people ever die from Lupus?
    Do people with lupus have a long life or most of them at least? Can you live with lupus for years and be ok, like the next 20 years? Thanks in advance

    • ANSWER:
      hi - I have both Lupus and APS. I was diagnosed in 2002 but probably had this since the early 80's...so that makes that over 20 years. So it is very possible to live a full and normal life.

      At present, there is no cure for lupus. However, lupus can be effectively treated with drugs, and most people with the disease can lead active, healthy lives. Lupus is characterized by periods of illness, called flares, and periods of wellness, or remission. Understanding how to prevent flares and how to treat them when they do occur helps people with lupus maintain better health. Intense research is underway, and scientists funded by the NIH are continuing to make great strides in understanding the disease, which may ultimately lead to a cure.

      Despite the symptoms of lupus and the potential side-effects of treatment, people with lupus can maintain a high quality of life overall. One key to managing lupus is to understand the disease and its impact. Learning to recognize the warning signs of a flare can help the patient take steps to ward it off or reduce its intensity. Many people with lupus experience increased fatigue, pain, a rash, fever, abdominal discomfort, headache, or dizziness just before a flare. Developing strategies to prevent flares can also be helpful, such as learning to recognize your warning signals and maintaining good communication with your doctor.

      It is also important for people with lupus to receive regular health care, instead of seeking help only when symptoms worsen. Results from a medical exam and laboratory work on a regular basis allows the doctor to note any changes and to identify and treat flares early. The treatment plan, which is tailored to the individual's specific needs and circumstances, can be adjusted accordingly. If new symptoms are identified early, treatments may be more effective. Other concerns also can be addressed at regular checkups. The doctor can provide guidance about such issues as the use of sunscreens, stress reduction, and the importance of structured exercise and rest, as well as birth control and family planning. Because people with lupus can be more susceptible to infections, the doctor may recommend yearly influenza vaccinations or pneumococcal vaccinations for some patients.

      I wish you the best of luck!

  2. QUESTION:
    Boyfriend has evil kitten! Plz Help?
    I need some advice on how to resolve a pet issue with my boyfriend.

    My boyfriend lives out of town from where I work. So I do not spend all of my time at his place. Probably 1/2 of our time, until he got a pet.

    Recently he got a cute unwanted kitten from his friends litter. Both him and his roommate take care of her. Shes good 90% of the time, but sometimes for no apparent reason will come up and bite me in the face when I am sleeping, or use my arms and legs like a scratching post. I never know when shes going to attack. Shes a manx breed so she has no tail for me to see, and the bites and scratches are always a surprise.

    I have an incurable disease called "Lupus" its the worst type systemic. In my short life its flared twice, and normally makes me light sensitive, tired, joint pain, but it also screws my blood cells up really bad. Iv had at least two documented blood infections in 3 years.

    I am scared, this kitten is going to scratch me up. Since I am using "plaquenil" to further calm my immune system, I might be taking a huge risk having a pet in my future. On one hand, i need the plaquenil to calm down my immune system to limit the damage i do to my own body... on the other hand because the kitten is exposing me to infection almost daily, deep bloody scratches, I worry that my immune system is going to get wore down, or not respond and BOOM super huge blood infection. Most people who die from Lupus die of infection, or organ failure.

    I am really scared. I don't know what to say to him. Every time the kitten bites me deeply and it bruises and bleeds i get so scared I cry. Not because its super painful or anything. I am just absolutely terrified. I told him my concerns but he just seems to not get the seriousness of this. Am I being unreasonable, getting too worked up? What would you do if you were in my position. Any advice from someone NOT being tossed around by fear and guilt, I would find very helpful.

    He has made a small effort in attempting to train the kitten with a squirt bottle , loud noises, and method of distraction. I try to follow his lead but I am becoming scared of her. Most of the time I just toss something out the door and close it behind her so we are not in the same room for too long.

    Any helpful knowledge or opinions would be great. He wants me to move in with him, however I have been very scared to simply because of this kitten.

    • ANSWER:
      Tell him to get the kitten declawed or use soft paws and let him know you concerns.

  3. QUESTION:
    I need help editing my research paper. I'm really bad at papers.....please help!?
    Well, its on lupus. I have the intro and two body paragraphs, and I still need to do the conclusion. So, I was wondering what I should change on my paper, and what I need to add..? I also have to do a powerpoint based on the paper, that should last a minimum of 5 minutes up to 15.

    The reason why I chose this topic was because my dad has lupus, and I wanted to know more about the topic. He was diagnosed with lupus when he was about fourteen years old. He still receives treatment for it by going in for blood tests and taking medication He has the most common form of lupus, Systemic Lupus Erythematosus (SLE), in which causes the antibodies to react against his own normal tissue. He has arthritis and joint problems, but nothings wrong with his internal organs. To support my dad and other lupus survivors, my family and I all go to the lupus walk in honor of remembering the people who had lupus that died. The things the audience can expect to read in this paper are the different types of lupus, the symptoms, the treatment and cures.
    Lupus is the result of an unbalanced immune system that can be destructive to any organ in the body. It can be categorized into three groups: discoid lupus Erythematosus, systemic lupus Erythematosus, and drug-induced systemic lupus Erythematosus. DLE is always limited to the skin and is identified by a rash that may appear on the face, neck, and scalp. It can evolve into the systemic form, which can affect any organ or system of the body. Systemic lupus Erythematosus is more severe than discoid lupus and can affect almost any organ or organ system of the body. No two people with SLE will have identical symptoms. Drug-induced systemic Lupus Erythematosus occurs after the use of certain prescribed drugs. It is more common in men, because the drugs are given to them more often.
    Lupus is hard to diagnose because it has a wide range of symptoms involving various parts of the body; and symptoms differ from each person. Most people develop painful joints and a rash, but lupus may also cause fatigue, depressions, and kidney problems. The treatment of lupus varies from person to person because each person has different symptoms. Most people with SLE require a regular blood test to check for lupus flares. Medication is the primary medical treatment for lupus. Presently, there are no other methods available to treat lupus because there is nothing else that can have the necessary impact on the immune system. Currently, there is no cure for lupus, but with early diagnosis and proper medical treatment it can significantly help control the disease.

    thanks. it would be much appreciated!!!!

    • ANSWER:

  4. QUESTION:
    Is it ethical to ban compact florescent bulbs?
    Ban of Current Incandescent Light Bulbs

    On December 19, 2007, President Bush signed the Energy Independence and Security Act of 2007 (Public Law No: 110-140). Under the new law, all light bulbs must use 25% to 30% less energy than today’s light bulbs by 2012-2014. Since today’s incandescent light bulbs do not fit the energy efficiency standard, there will be a phase-out of current incandescent light bulbs. The phase-out will start with 100-watt bulbs in January 2012 and end with 40-watt bulbs in January 2014. By 2020, bulbs on the market must meet the 70% efficiency standard.

    Compact fluorescent light bulbs (CFLs) already meet the 70% efficiency standard, which means that most public spaces and homes are switching to CFLs. As you may know, some reports suggest that there may be enough UVB radiation in fluorescent light bulbs to cause photosensitivity in people with lupus.

    Photosensitivity can cause lupus flares that result in severe illness and even death. Will Obama make sure people with medical needs like lupus will be able to get safe light bulbs at an affordable price?

    One of my friends just died from lupus complications and I have lupus also.

    • ANSWER:
      unethical

      adjective
      not conforming to approved standards of social or professional behavior; "unethical business practices" [ant:

      I think saving energy definitely conforms to approved standards and is therefore ethical. We have plenty of notice and plenty of time to adapt.

  5. QUESTION:
    What is Obama's stance on outlawing incandescent light bulbs?
    Ban of Current Incandescent Light Bulbs

    On December 19, 2007, President Bush signed the Energy Independence and Security Act of 2007 (Public Law No: 110-140). Under the new law, all light bulbs must use 25% to 30% less energy than today’s light bulbs by 2012-2014. Since today’s incandescent light bulbs do not fit the energy efficiency standard, there will be a phase-out of current incandescent light bulbs. The phase-out will start with 100-watt bulbs in January 2012 and end with 40-watt bulbs in January 2014. By 2020, bulbs on the market must meet the 70% efficiency standard.

    Compact fluorescent light bulbs (CFLs) already meet the 70% efficiency standard, which means that most public spaces and homes are switching to CFLs. As you may know, some reports suggest that there may be enough UVB radiation in fluorescent light bulbs to cause photosensitivity in people with lupus.

    Photosensitivity can cause lupus flares that result in severe illness and even death. Will Obama make sure people with medical needs like lupus will be able to get safe light bulbs at an affordable price?

    One of my friends just died from lupus complications and I have lupus also.

    • ANSWER:
      There's a patent out for a new lightbulb that meets the requirement without emitting as much UVB. Assuming it passes all the tests, it should be on the market by 2012.

  6. QUESTION:
    Unexplained medical problems?
    I am a 22 year old male. I have always been a little overweight since I was a child. I have a history of asthma and depression, but other than that I have always been relatively healthy. In the last few years I have noticed some changes going on. Some things have been happening that have really concerned me in one way or another. I usually attribute it to anxiety and choose to ignore it. Let me start from the beginning.

    About 3 or 4 years ago I noticed some odd rashes on my skin. Brown in color, oddly shaped, but it was a consistent shape. it sometimes got lighter or darker but now it has almost disappeared. A few weeks ago I noticed some similar patches around my neck and shoulder area. I figured it was odd so I did what most other people do when they have a medical question but are too broke to go see a doctor... Web MD! I know reading that stuff will give you a panic attack just thinking about what you could have but hey, it was something. After checking some symptoms I googled some images of skin rashes hoping to match up what I had with someone else who had been diagnosed with something. I came across something that looked very similar, and it told me it was a lupus rash. I did some research and found out more about it but I figured the skin rash part of it was nothing to worry about and people just lived with it. However some new symptoms have me wondering.

    Last winter was horrible for me. I don't know what I caught but it really knocked me on my butt for about three days. I had a severe fever and fatigue, but after 3 days of rest I felt better. Unfortunately somehow I ended up with an extreme case of Bronchitis which aggravated my asthma symptoms. I started taking my asthma medication again (I had stopped for the last 5 years because I never had anymore symptoms since I was a kid) and on some nights when I felt I couldn't breathe I also took an albuterol nebulizer and my symptoms started to improve. One day I was at my fiance's house and some things started to happen. On top of my allergies to her cats I kept coughing because of this bronchitis I couldn't shake. I started having chest pains which freaked me out so I drove myself to the local Emergency Room. The diagnosis was Allergy induced asthma, and bronchitis with bronchospasms. I was prescribed a steroid (prednisone) to open up my airways and sure enough I got better. However one thing I notice now is that I sometimes feel like I don't get enough air, like I can't breathe in deep enough. It seems to happen more when I eat a lot so I have been avoiding eating as well. This really concerns me.

    I was not feeling well last night and I was searching online as usual for an answer. Out of the possible causes list of my symptoms (of about 50 different causes), up popped that name again. Lupus. Sigh.

    So I did some more searching to lupus related to some of my symptoms. These result alarmed me. I read a few personal accounts where people who had tested positive for lupus were experiencing very similar symptoms to what I have been feeling. One story was of a 10 year old girl who DIED from complications to lupus and MRSA. That scared the crap out of me. My fiance is pregnant and due later this year so I really want to make sure I am around for a long time to take care of her and my child. I just started a new job and another thing that alarmed me was when I had a drug test the report said they found trace amounts of protein in my urine. Hmm. Did some searching and the cause of that was also associated with symptoms of lupus. I am away from home for 4 weeks out of the month as an over the road truck driver and I have little time to be messing around with doctor's appointments. Do I sound crazy or do I have reason to be concerned?

    • ANSWER:
      Please read the book Eat To Live by Joel Fuhrman.

      You can find links to it here: http://shopping.yahoo.com/search;_ylt=Aupn97xop7UTOutTbdvlVKabvZx4?p=joel+fuhrman&toggle=1&cop=mss&ei=UTF-8&fr=yfp-t-701

      Follow the link to Amazon and read over 300 customer reviews for the book. Following Dr. Fuhman's program for life will get rid of most if not all of you health problems. I have read a number of Dr. Fuhrman's books and of all the many health books I have read over the years this is simply the best advice you can find for solving health problems naturally.

      I urge you to please get the book and read it.

      Success stories
      http://drfuhrman.com/success/success.aspx
      http://drfuhrman.com/success/SuccessStory.aspx?id=1

  7. QUESTION:
    Should I get a second opinion? Blood tests normal, body is not.?
    Ive been sick for almost two years, before this I was a healthy young woman.

    It started with being so week I couldnt even walk across a room, and I would get so exhausted that my heart would race and my breathing was heavy and my legs felt like jello.

    Over the last year, I have started to get pain in my hands and feet, it is dull ache but it hurts and drives me crazy, almost like their asleep.

    Also within the last year I started losing weight, fast. In 9 months I have gone from 140 to 115 without trying. And my weight has been 140 for a long time, I never used to fluctuate.

    Now, over the last 3 months I have been bruising quite a bit and I have lost 1/2 the thickness in my hair.

    I have had countless blood tests now, one type of white blood cell was elevated and a type of blood cell (?) that protects my stomach from releasing bacteria into the body was low.

    I am in a wheelchair, and over the course of time, people have asked me whats wrong, and out of the people that say their opinion, almost 1/2 tell me to get checked for leukemia, 1/2 ask me if I have lupus, and the rest ask about MS. Most of these people are nurses/doctors or know people who have these health conditions.

    My doctor is not doing further testing and is looking into Chronic Fatigue Syndrome... which I would have been OK (kinda) with if I was JUST tired/weak. I looked online a bit and found out that about 10% of people with common diseases have normal blood tests and further testing is required.

    I really, really dont want to seem paranoid, but I am a 20 year old female so doctors start to take me seriously at first (sometimes), but once my blood comes up almost normal, they start to think I'm just crazy....

    Please please help me. If you have any ideas on what to do I would appreciate it, I cannot live like this without knowing what I can do to help myself (besides frequent rest, supplements, etc which I'm already doing) My partner is a nurse and has been crying alot because she knows somethings not right... she is afraid I'm going to die... & she sees sick people everyday & understands health...

    Thank you..
    Thank you so much for your answer and your support, yes, I have had my thyroid checked... I have had most tests done that can be seen in my blood
    I get red on my nose and cheeks, and at first the docs thought it was a butterfly rash, but I guess they did a simple blood test for lupus and it came back normal....
    @CeJay, I was tested for celiac and it was negative, however, I have looked into it & i was thinking about going on a gluten-free diet for a few weeks... surprised about your advice to NOT try that... what is the reason for this advice? Thanks! :)

    • ANSWER:
      Hi. Have you had your Thyroid checked ??? I have all of your symptoms, and i have Thyroid disease. It's a simple blood test. It can cause every symptom that you are experiencing. I'm sorry you are feeling so bad. I know how frustrating it is to be sick, and not know why. Take care <<>>

  8. QUESTION:
    how do I not become so jealous of my older sister?
    I'm 19 years old and my sister is 33...idk, I can't help but be very jealous of her. She has lupus so she gets sick very often (my mom and I have it too but we're very healthy), but I'm jealous because she is gorgeous, always looks AMAZING and glowing in pictures, is sweet, outgoing and social and has lots of friends, a husband (who's a bit of a jerk but I don't want to get into that) and 3 kids, my nephew and nieces, who I adore. I have lots of friends and a sweet amazing boyfriend too, but I've always been sorta shy and awkward... I am pretty and loved by my family and friends but nowhere in the level she is. She always gets wall posts on facebook from her friends and our relatives and they talk about how much they love and miss her and adore her, and I feel bad because I don't get that from my friends. I'm thinking maybe it's because they've all spread apart and started only keeping in touch for the past few months they had facebook? Also, could it also be because the horrible experiences she has gone through with lupus built her character and her friends are amazed with that?

    I guess I have this long desire to be popular and have billions of friends tell me that I am amazing and cool and pretty, because growing up I had friends but I was kinda weird and made fun of a lot so it took a damage to my self-esteem, while she on the other hand has no problem making friends. She is this rare gem you want to hold on to and value while I feel like a plain disposable rock that you want to throw out to the sea (my high school friends and my last ex of 2 1/2 years got rid of me without shame...my ex cheated on me, denied it and called me stupid for being paranoid, got a new girlfriend not even a week later). I feel like sometimes if I died, people would just be sad then get over it quickly.

    I talk to my boyfriend about how I feel low next to my sister because he can relate--he's very shy too and has a lot of friends but also has social anxiety (he told me that when he was younger he wouldn't even talk at all...now I see how far he has gone and how he talks much more and I'm proud of him) while his younger sister is this popular cheerleader that always has someone to talk to and hang out with. I don't want to lay too much on him even though he's always there for me and wants me to vent about this stuff. I wanna talk to my parents about this, but my dad will just say that I need to not invest too much of my emotions to my friends and keep the friendships light and simple...my mom says that I need to look at my good qualities and the people that love me, and that Jesus loves me most of all, but she doesn't know that my sister is one the reasons I am insecure. Any way where I can stop feeling so down about my self and stop comparing myself to her? How can I redevelop my self confidence?

    • ANSWER:
      Everyone feels jealous at some time in there life. And your probally sick of hearing that, right? But the way I combat it is i think of how truly lucky I am. most of the time, the people I am jealous of dont realise how lucky they are. So I think, wait that must be me too! If a homeless kid saw me they'd want my life, so I should appreciate what I have, and not ruin that by wanting something i haven got

  9. QUESTION:
    is this story of mine at all good?! :D ?
    Intro.
    I never really had it all you could say. Most kids worried about wearing their brand named clothes, having amazing cars, and having the perfect boyfriend/girlfriend. Personally all i worried about something much bigger. All I want to do is live.
    My life was going great until i hit 14. My parents were constantly fighting, for reason i still don't know. They were at each other throats. So much, I thought eventually the neighbors would call the police. I had to be like a mom to my sister Lilly, 12 (who was also my best friend), even though she was only 2 years younger then me, since my mom would blame us for all the arguing.
    One morning after 2 agonizing years of hell my dad walked out on us. My mother became depressed. She saw a shrink 2 times a week and hardly got out of bed. and that put an enormous amount of pressure on me.. More then was already set on me. The pain of my dad leaving was pretty awful. After he left, a new burden began to show its ugly face.
    Oh i guess i never really introduced myself properly. My name is Kailey. I'm now 16 years old, and im dying.

    Chapter 1

    "Breathe in and out deeply," the nurse Sally said as she held a cold stethoscope to my chest. I did as I was told and answered a text message from Mona at the same time.

    "Come over tonight? My mom's out, and we can cook something strange! bring Lilly along!" -Mona.

    "Yeah sounds great! I have to ask my mom first of course. But you know her. So I will probably be there. What time?" I replied quickly, and put away my phone as the doctor walked in.

    "Hello, Kailey. How are you today?" Dr. Highman asked.
    "Same old. Same old. I havent been having as much axiety attacks lately." I said checking my phone seeing if the was a new text yet.
    "So, the pills are working then huh?"
    "Yup," i hiccuped. "Excuse me, but its not a thrill having to add another pill to my daily million of them." i said sarcastically.
    "I understand, but having Lupus, is a differicult disease to control." He said while writing something down on his clipboard.
    Lupus is the common name for systemic lupus erythematosus, also called SLE. Common symptoms include feeling very tired and having joint pain or swelling (arthritis), a fever, and a skin rash. Over time, some people with lupus have problems with the heart, lungs, kidneys, blood cells, or nervous system. I have it really bad in my nervous system, my joints, and my lungs and heart. Not to mention, my shortness in breath and how im tired often, and get feverish every once and a while. I guess having it since i was 4 has something to do with all the symtoms.
    I nodded my head in agreement.
    "So hows your mother doing? I noticed she isnt here," he looked up at the empty chair next to the examination table, "again," then at me.
    I looked away from his gaze and answered, "Well she doing fine i guess, still doesnt get out much. but im making sue she eats properly and takesher meds. Don;t worry about it doc." I smiled and looked up at him again.
    "Well that good. dont forget, her appointment is..."
    I cut him off, "Next week on tuesday, I know. I know." I rolled my eyes, upset that i was 16 already and now had to drive her everywhere.
    He nodded, "Ok. Well, miss. Kailey, you seem to be just fine, just keep up everything your doing. and here are your medication refills." He scribbled on a peice of paper and handed it to me.
    I looked at it and just slowly nodded.
    "See you next time." He walked out of the room.
    I sat in the room for a while. I felt my pocket vibrate and took out my phone.

    "hmm, around 5? you guys can spend the night too, if you want." -Mona.

    "Yeah ok sounds good. just got out of the doctors right now. heading home." Send.

    I got off the table and walked out of the room. I was heading out the doctores office, but then turned into the restroom. i set my phone on the sink and unzipped my pants and sat down. i didnt even have to go. My eyes felt droopy. I got back up and zipped my pants back up, put my phone in my pocket and turnined on the sink. I washed my hands then rinsed my face. I looked at myself in the mirror for a while. My auburn hair next to my ears were wet from wetting my face. My hazel eyes were bloodshot from my lack of sleep last night. I rinsed my face once more, dried it off and walked out of the restroom.
    I opened the door to my old beat up mustang, and sat down.

    "Oh? how'd it go?" -Mona.

    "Ya know.. The same." Send.

    "Nothing wrong?" -Mona.

    "Nope everythings A-OK. Well for me anyway. haha" Send.

    "Thats good. =] Are you nervous about starting junior year?" -Mona.

    I started the car and pulled out. I drove just down the road then stopped at a gas station for some snacks.
    I walked in the door and swear everyone stopped and looked at me. But I'm probably just paranoid. i walked around and grabbed a bag of hot fries, a 2 liter coke, a bag of chocolates, and some macrowaveable ravioli's. Yum, what a lunch.
    I paid

    • ANSWER:
      It sounds good to me.

  10. QUESTION:
    What to do about a clingy friend/ Am I over-reacting?
    I wrote this out, but after rereading it after i posted it, I realized it made little sense.

    So here is a better written version:

    Due to health concerns, I have had very little energy and even less patience with other people. I am out of school and working on my GED, I have lost use of my legs and went from 120lbs to 98lbs in 2 weeks. I throw up everything. And recently found out I might have cancer or lupus( I have had many misdiagnosis' in the last 4 months), but am in need of even more blood tests, MRI, and soon a biopsy. Just a little back story-sorry for complaining-

    Now to the friend: She has always been a little clingy and has relied on me for the most simple of things. I am usually alright with this ( I am the blunt friend in the group that will tell you what you need to hear), but its became a bit redundant. She recently broke up with a close guy friend of mine.I told her that it is alright is she is in mourning about the situation for up to 2 months, it was a short relationship, but after that you need to move on and start dating again ( we are only 17-not like we are even in marrying age). She has always gone back to this guy-best described as the JOHN TUCKER MUST DIE fellow- dates a lot of girls at the same time, kisses with out commitment, guilt's you for his mistakes, and if he doesn't like you, will spread nasty rumors. He has dated a few of my friends, and even has attempted to pursue me. Because of this, I have spent months trying to warn her about him, but he twists the truth and i turn into the bad guy.

    The Now: Due to all my medical drama, I have no desire to listen to her complain about this guy that I have relentlessly tried to keep away from. But now she will ask for my advice, but expect my approval.

    After 7 months, it gets tiring. She now calls me and my boyfriend 5 times a day begging to talk to me about the boy, not caring about my health, but her love life

    (ps i am not abandoning any of my friends for a bf, he watches me when i'm home alone and helps me out with eating and pills and transportation)

    On top of it all, we found out her mom and she has been talking bad about our family, even guillting and yelling at my grandma for my lack of respect to go to church and other things that id rather not get into.

    What do I do about this? I shut off my phone but I know if I hear one more thing, some not-so-appropriate comments will come out? Advice?

    And am I being rediculous? I know she is my friend and wants my help, but and I over reacting?

    • ANSWER:
      No, you're entitled to privacy and quiet -- especially in light of your illness. Either ignore her calls or tell her you're fed up and simply don't have the time or interest to deal with her insignificant problem. You warned her and she didn't listen, but she expects you to do nothing but listen to her.

      I would ignore her completely until she gets the message.
      Hope you feel/get better.

  11. QUESTION:
    what do u think?? believe it or not?
    Reading this information & sharing it, might mean saving a life or improving the quality of someone's life, maybe yours.

    In October of 2001, my sister started getting very sick, she had stomach spasms, she was having a hard time getting around, and to walk was a major chore. It took everything she had just to get out of bed; she was in so much pain.

    By March 2002, she had undergone biopsies, and was on 24 various prescription medications. The doctors could not figure out what was wrong with her. She was in so
    much pain, and so sick, she knew she was dying. She put her house, bank accounts, life
    insurance, etc., in her oldest daughters name, and made sure her younger children were to be with her oldest daughter. She wanted her last hooray, so she planned a trip to Florida (basically in a wheelchair) for March 22nd. On March 19th I called her to ask her how one of her tests went, and she said they didn't find anything on the test, but they believe she had MS. I thought, oh, my.... then I recalled an article a friend of mine emailed to me...and I asked her.... Do you drink Diet pop?

    She told me yes, as a matter of fact she was getting ready to crack one open that
    moment. I told her not to open it, and stop drinking the diet pop.... and I emailed her the following article.

    She called me within 32 hours after our phone conversation and told me she stopped drinking the diet pop, and she can walk. She went up the stairs, and the muscle spasms went away. She said she didn't feel 100% well, but sure felt a lot better. She told me she was going to her doctor with this article and would call me back when she got home.

    She called me, and her doctor was amazed, he is going to call all of his MS patients to find out if they consumed artificial sweetener!

    In a nutshell she was being poisoned by the aspartame in the diet soda, dying a slow death!

    When she got to FL March 22nd, all she had to take was one pill, and that was a pill for poisoning... she is well on her way to recovery... and she is walking!!! No wheelchair!!!
    This article saved her life!!!

    The life saving article:

    If it says "SUGAR FREE," on the label, DO NOT EVEN THINK ABOUT IT!
    Have spent several days lecturing at the WORLD ENVIRONMENTAL CONFERENCE on "ASPARTAME" marketed as 'NutraSweet,' 'Equal,' and 'Spoonful.' In the keynote
    address by the EPA, it was announced that in the United States in 2001 there is an epidemic of multiple sclerosis and systemic lupus, that it was hard to understand what toxin was causing this to be rampant. I stood up and said that I was there to lecture on exactly that subject.

    I will explain why Aspartame is so dangerous:
    When the temperature of this sweetener exceeds 86 degrees F, the wood alcohol in ASPARTAME converts to Formaldehyde, and then to formic acid, which in turn causes metabolic acidosis. (Formic acid is the poison found in the sting of fire ants.)

    The methane toxicity mimics, among other conditions, multiple sclerosis. People were being diagnosed with having multiple sclerosis in error. The multiple sclerosis is not a
    death sentence, where methanol toxicity is!

    Systemic lupus has become almost as rampant as multiple sclerosis; especially with Diet Coke and Diet Pepsi drinkers. The victim usually does not know that the aspartame is the culprit. He or she continues its use, irritating the lupus to such a degree that it may become life threatening. We have seen patients with systemic lupus become symptomatic once taken off diet sodas. In the case of those diagnosed with Multiple Sclerosis, (when in reality, the disease is methanol toxicity), most of the symptoms disappear. We've seen many cases where vision returned and hearing improved markedly.

    This also applies to cases of tinnitus
    .
    During the lecture I said, "If you are using ASPARTAME (Nutra Sweet, Equal, Spoonful, etc.) And you suffer from fibromyalgia symptoms, spasms, shooting pains, numbness in your legs, cramps, vertigo, dizziness, headaches, tinnitus, joint pain, depression, anxiety attacks, slurred speech, blurred vision, or memory loss.... you probably have ASPARTAME DISEASE!"

    People were jumping up during the lecture saying, I've got some of these symptoms: Is it reversible? Yes!

    Not drinking diet sodas and keeping an eye out for aspartame on food labels. Yes!

    We have a very serious problem. A stranger came up to Dr. Espisto (one of my speakers) and me and said: "Could you tell me why so many people seem to be coming down with MS? During a visit to a hospice, a nurse said that six of her friends, who were heavy Diet Coke addicts, had all been diagnosed with MS. This is beyond coincidence!

    Diet Coke and Diet Pepsi, etc. are NOT A DIET PRODUCT!
    The Congressional Record states that it makes you crave carbohydrates and will make you FAT. The formaldehyde stores in the fat cells, particularly if no significant increase in exercise, etc.

    Aspartame is especially dangerous for diabetics. We found that physicians would believe that they have a patient with retinopathy, when in fact the symptoms are caused by aspartame! The aspartame drives the blood sugar out of control! Thus diabetics may suffer acute memory loss due to the fact that aspartic acid and phenylalanine are neurotoxin without the other amino acids found in protein. Thus it passes the blood brain barrier and deteriorates the neurons of the brain, causing in diabetics (as well as in patients not suffering from diabetes) various kinds of brain damage, seizures, depression, manic seizures, manic depression, panic attacks, rage, and violence. (The Aspartame in thousands of pallets of diet Coke and diet Pepsi, consumed by men and women fighting in the Gulf War may be partially to blame for the well-known Gulf War Syndrome.)

    Dr. Roberts warns that it can cause birth defects: i.e. mental retardation if taken at the time of conception and early pregnancy. Children are especially at risk for neurological disorders and should NOT be given NutraSweet. I can relate different case histories of children having mal seizures and other disturbances, being on NutraSweet. Unfortunately it is not always easy to convince a mother that aspartame is to blame for her child's illness. Only by trial and success will she be able to warn other mothers to take their children's health into their own hands.

    Stevia, a sweet herb, NOT A MANUFACTURED ADDITIVE, which helps in the metabolism of sugar (which would be ideal for diabetics) has now been approved as a dietary supplement by the FDA. For years the FDA has outlawed this sweet food because of their loyalty to MONSANTO.

    Books on this subject are available: EXCITOTOXINS: THE TASTE THAT KILLS written by Dr. Russell Blayblock (Health Press 1-800-643-2665) and
    DEFENSE AGAINST ALZHEIMER'S DISEASE - written by DR H. J. Roberts, also a diabetic specialist.

    These two doctors will be posting a position paper with some case histories on the deadly effects of Aspartame on the Internet.

    According to the Conference of the American College of Physicians "we are talking about a plague of neurological diseases caused by this deadly poison."

    Here is the problem: There were Congressional Hearings when aspartame was included in 100 different products. Since this initial hearing, there have been two subsequent hearings, but to no avail. Nothing has been done. The drug and chemical lobbies have very deep pockets. Now there are over 5,000 products containing this chemical, and the PATENT HAS EXPIRED!!!!!

    I assure you, MONSANTO, the creator of Aspartame knows how deadly it is. They fund among others, the American Diabetes Association, the American Dietetic Association, the
    Conference of the American College of Physicians.

    This has been exposed in the New York Times - to no avail. These Associations cannot criticize any additives or convey their link to MONSANTO because they take money from the food industry and have to endorse their products.

    Senator Howard Hetzenbaum wrote a bill that would have warned all infants, pregnant mothers and children of the dangers of aspartame. The bill would have also instituted independent studies on the problems existing in the population (seizures, changes in brain chemistry, changes neurological and behavioral symptoms). It was killed by the powerful drug and chemical lobbies, letting loose the hounds of disease and death on an unsuspecting public!

    Someone said this, but don’t you think that this is sort of hypocritical?? What do u think, make up your own mind in what you believe or don’t believe, but you should read it and consider it.
    Urban legend. Do your homework and stop believing the crap you get in e-mails.
    Source(s):
    http://www.snopes.com/medical/toxins/asp...
    LOL i got this in an email, lol i didnt not write this, lol come on, lol if i did write this, i would be spending my time on more important things that the internet and silly questions, lol

    • ANSWER:
      Way too much written here - more than two scrolls and you loose people. Anything like this that I get in email - I don't even bother reading the whole thing. Like now. Who is 'someone'? - name your sources and put a link that leads to something, and not an unknown URL.


Do I Have Lupus Or Rheumatoid Arthritis

Rheumatoid arthritis (RA) is the most common inflammatory form of arthritis, affecting more than 2 million Americans. It is a chronic, systemic, progressive autoimmune process for which there is no cure, currently. However, there are medications available that can put this disease into remission.

Prior to treating rheumatoid arthritis, it is important than any patient suspected of having the disease undergo a thorough and complete examination. This will include an in-depth history, careful physical examination, laboratory testing, and imaging procedures such as x-ray, diagnostic ultrasound, or magnetic resonance imaging (MRI).

While rheumatoid arthritis can affect many internal organ systems such as the eyes, lungs, and heart, its symptoms can be magnified by other conditions.

That is why it is so important that thorough laboratory testing be done. Many of the symptoms of rheumatoid arthritis such as generalized aches and pains in the joints and muscles, fatigue, listlessness, and low grade fever can be due to other conditions.

Anemia, which is frequent in patients with active RA, is a common cause of fatigue.

For instance, it is not uncommon for patients to have an overlap of their rheumatoid arthritis with systemic lupus erythematosus. This condition is referred to as “rupus.”

Also, inflammatory muscle diseases such as polymyositis can often present with joint inflammation along with weakness.

Another organ system dysfunction that is often neglected or overlooked is thyroid disease.

There is an increased incidence of autoimmune thyroid disease in patients with rheumatoid arthritis. When thyroid inflammation occurs, the end result can be hypothyroidism- an underactive thyroid gland. The thyroid gland is responsible for many metabolic functions in the body. When it fails to work properly, symptoms such as cold intolerance, fatigue, lethargy, weight gain, muscle and joint aches and pains can often occur.

Hypothyroidism is significantly more common in female patients with rheumatoid arthritis (RA) than in women in general due to the increased association of these two conditions.

A recent study has demonstrated that this coexistence further aggravates the known increased risk for cardiovascular disease occurring in rheumatoid arthritis patients. (Ann Rheum Dis 2008;67:229-232)

Dutch researchers at the VU University Medical Center, Amsterdam studied 358 RA patients, 236 of whom were women. All were taking part in an ongoing cardiovascular study.

Clinical hypothyroidism was seen in none of the men and 16 of the studied women (6.8%) compared to 2.7% in the general Dutch population. Six of the women had subclinical- meaning unapparent on physical examination- hypothyroidism as did 4 of the men.

The women with clinical hypothyroidism also had significantly more cardiovascular disease than did RA patients with normal thyroid function (37.5% versus 13.0%).

After adjustment for other factors, the odds ratio- the increased risk- was 4.6. In other words, women with RA and hypothyroidism were 4.6 times more likely to have significant cardiovascular disease than women with RA who didn’t have hypothyroidism.

The authors concluded that "clinical hypothyroidism accelerates the already enhanced cardiovascular risk in rheumatoid arthritis and that physicians should consider screening for thyroid disorders in rheumatoid arthritis patients."

Author’s note: In our clinic, we routinely screen arthritis patients for coexistent thyroid disease. We have found that all too often, unsuspected hypo- or hyperthyroidism is present and once this condition is treated, many of the other symptoms improve as well.

Frequently Asked Questions

  1. QUESTION:
    Systemic Lupus Erythematosus or Rheumatoid Arthritis?
    My symptoms are: Extremely painful to walk, rashes, blood in urine, Anemia (had to get iron infusions), headaches, extreme fatigue, ect. I seen a doctor who did some x-rays, blood work & a physical exam. She recently called me & told me from my lab results came back & said i have either Systemic Lupus Erythematosus or Rheumatoid Arthritis. She said my blood work showed alot of abnormalities & even infection. She wanted me to start on a steroid right away. She put me on (10 mg pills of Prednisone) for 10 days until my follow up with a Rheumatologist. Okay my question: What is Lupus & Rheumatoid Arthritis?
    Are these 2 illnesses simular? She will be calling me back within 5 days with the other test results. Has anyone personally experienced this? She said my illness is treatable but not cureable. I'm still pretty young & this is a shock to me & i'm having a hard time dealing with not knowing what i'm dealing with i guess my new doctor will be able to answer alot of questions later.
    Thanks for the advice i will go look there.

    • ANSWER:
      Lupus and RA are autoimmune diseases, that is when your immune system attacks your own cells.
      These two diseases overlap in some people, so don't focus so much on an absolute diagnosis.

      I am sorry that you have this problem. It sucks. Try to take the steroids as little as possible because, although it may help you feel better, it has lots of side effects over time.

      Looking back over your symptoms, it sounds like you have something else going on too. Doctors do not know what causes the outbreak or auto-immune diseases. It can be stress, chemical exposure, diet or most commonly, something you can never identify.
      Make sure you get good sleep. Eat a super healthy diet with plenty of vegetables and fruits.

      My Mom had RA. I have friends with lupus and related illnesses. Don't give up hope. There are so many advances in the treatment of these diseases.

      Here are a couple of links on auto-immune disease:
      http://www.lef.org/protocols/immune_connective_joint/lupus_01.htm
      http://www.lef.org/protocols/immune_connective_joint/rheumatoid_arthritis_01.htm

  2. QUESTION:
    Does medical marijuana help with the pain of lupus & rheumatoid arthritis?
    Hello,
    I have lupus & rheumatoid arthritis and I'm at the end of my rope. My doctors can't treat my condition & I have tried everything. Right now I'm on a medicine "cocktail" of morphine, vicodin & oxycodone which I'm sure is killing my liver. I have never done marijuana- not even in my younger days. I recently talked to someone else with lupus & they told me that medical marijuana helps her get through her day. Does anyone have insight or experience with this? I'm not sure what to do at this point..... I'm just in pain....

    • ANSWER:
      I have also been through this myself. On Fentanyl patches, other painkillers, muscle relaxers, sleep meds, etc. I have severe fibromyalgia, CFIDS and arthritic pain. But cannabis is the only thing that helps when the pain meds and muscle relaxers won't. And it also doesn't make me groggy & lose sight of what I should be doing. I just feel normal when I use it. If I'm in a very bad flare up, it may not make me able to do a regular day's worth of stuff, but I can tolerate the pain much, much better. I have no side effects from it as I do from other medications. I'd be more than happy to tell you everything I know about medical cannabis (which is a lot), all about my personal experience and what the research says. Just email me if you'd like more information. I'd love to help. You can message me through my Yahoo Answers profile. Peace to you.

  3. QUESTION:
    Lupus? Rheumatoid Arthritis?
    I was wondering...for the last 3 months or so, I have ahd a low grade fever (99.1-100) almost everyday. I feel "run down", muslce weakness, tired, my joints in my fingers, wrists, knees, ankles and toes hurt and feel swollen. A Dr. had my blood drawn today. he said he did not want to diagnose something like Lups or RA, but wants to do preliminary blood tests...3 tests, he said. I didn't get any paperwork, and have no idea what tests he ordered. Anyone have things signs/symptoms and have Lupus or RA? Thanks a bunch...And, for those more smart-mouthed here, I KNOW that most here are NOT physicians..this is a question for those afflicted with these two things. Thanks.
    LUPUS, not LUPS..lol..sorry
    Dio...I am 46. Can Celiac's be diagnosed at MY age? I have always eaten wheat. I had a friend with Celiacs and her symptoms were very different. Just curious..thanks.
    Dio..I just googled Celiacs..wow...my dad also had Peripheral neuropathy, too. Thanks...I will ask abt this...

    • ANSWER:
      Hi,

      I saw your question and was compelled to reply. As you probably have heard, lupus is difficult to diagnose and does include general symptoms, such as low grad fever, symptoms of arthritis, sore muscles, fatigue etc. It sounds like it could be lupus, but I encourage you to spend more of your energy looking into ways of reducing inflammation (at the root of most disease) vs the label (which the doctor may or may not give you at this time).

      It can take years to diagnose the 'label'. Your best approach is to learn about diet, supplements and other lifestyle habits that will help reduce your inflammation (ie pain and other symptoms).

      In general, and 'alkaline' anti-inflammatory diet is the best 'nutritional' approach. EFA's are important supplements that also help naturally reduce inflammation (and you can get it from foods such as salmon). MSM also helps reduce pain naturally as well.

      Lupus can and has been healed, as have many other illnesses (that doctors say aren't curable). I personally have healed lupus (no, not just long term remission) and others have as well and through various alternative approaches.

      I wish you the best, especially in good health.

      Warmest regards,
      Stacey Becker
      www.healing-lupus.com
      If your interested in more info I have a free newsletter that I put out on lupus diet and other natural healing solutions.

  4. QUESTION:
    To sufferers of immune disorders: How can I treat myself for possible lupus/rheumatoid arthritis? (detailed)?
    Allergic to dust/grass as a child, but allergy-free from age 13 until recently (I'm now in my late 20's).

    Hep C

    Early 20's: diagnosed with Hep C (untraced source). I was suddenly cured after 1 mo. My doctor said my own body got rid of it, which is rare for hep C patients.

    Several months later I noticed when I'd lay on my left side, there's a tingly, tender sensation. There's no pain and I got used to it so I'm just living with it.

    Arthritis?

    8 mos ago: sudden onset of stiffness/jammed feeling on both wrists (overnight). Always had weak/inflamed knees since 4 yrs back, would disappear with regular exercise.

    Got Sick

    Late last year I had flue more than a month. I was diagnosed with bronchitis, was on antibiotics and was cured right away.

    I started lightly working out again and just a month later I WAS SICK AGAIN! I was down for only 3 days though compared to the last time. Coughed 1 month. I was on stronger antibiotics and cured. I also saw an allergy doctor and was diagnosed with sinusitis and now on corticosteroids.

    Results

    My ANA blood test turned out POSITIVE. My doctor ordered a 2nd test for next month. She said it's an indication of possible lupus or rheumatoid arthritis.

    Extra info:

    Never been overweight my whole life.
    Ethnicity: Asian.
    My other "illnesses" recently diagnosed: costochondritis.
    Always had: severe dandruff, on and off but worse now; dandruff-related facial rash, only shows up on the same spots - left cheek near nose, between eyebrows.
    Falling hair is worse now.

    I'm a copywriter for more than 3 yrs. I admit my posture is VERY bad, often sitting or lying on my stomach on the bed (probably caused the costochondritis). Was diagnosed 4 yrs ago with borderline anemia (mother is anemic). Prescribed iron supplements but I stopped cos of side effects which is diarrhea.

    THIS IS MY DILEMMA: I was thinking of eating healthier and exercising again. But wouldn't raising the immune system make things even worse? I just hate the idea of being on immune-suppressing drugs, considering my now sensitive liver. I would be more open to "natural" treatments. How do I go about this?

    • ANSWER:
      When you have autoimmune disease you have to be an active PART of the treatment plan. Your doctor is the other active part.

      You have classic lupus symptoms. If lupus is not properly treated, you can end up with permanent organ damage or worse. It is not natural for your immune system to turn against you.

      You can eat healthier and exercise and that will certainly help. Words are often used incorrectly when it comes to the immune system. Healthy eating and exercise BALANCE the immune system. This is desirable.

      Everyday you are exposed to thousands of toxins...in your food...in your personal hygiene products...in the air...in the water...in your food...coming from your clothes...coming from your furniture and flooring...and much more. You can't eliminate all of them. Therefore, a totally "natural" approach to autoimmunity is impossible.

      Next, factor in stress. Stress is the single biggest factor in making lupus flares worse. What do you to do manage/reduce stress?

      You are Asian which means you have a siginficantly higher chance of developing lupus. You are 20 which increases your chances even more. You are a woman. 9 out of 10 lupus patients are women. Lupus develops most often in women between the ages of 14 and 45.

      There are 23,5 Americans with autoimmune disease and 2 million with lupus. 40% of us develop lupus nephritis. If left untreated, it can kill you.

      The doctors will monitor your liver function frequently. You may only need the weaker immunosuppressive medications. If you do go on the heavier ones, it is not ususally for an extended period of time, but just long enough to bring the flare under control.

      Everything we do is a matter of risk versus benefit. It is more so when you develop a chronic illness and are looking at treatment options. Do your homework, talk to your rheumatologist and then make an informed decision.

      I have systemic lupus with major organ inovlvement (heart, lungs, joints, brain, bone marrow, blood, and kidneys). In 2003, I was not expected to live. I take my meds, have a very healthy diet, exercise daily and practice meditation and yoga. After 4 years on disability, I returned to work 4.5 years ago. I am 59. Without the medication, I would most likely be on dialysis right now.

  5. QUESTION:
    Beginner's Yoga for People w/ Lupus and Rheumatoid Arthritis?
    I'm looking for recommendations on DVD's for beginner's Hatha Yoga. I want something that is relatively slow so I can learn basic poses and work on strength and flexibility.

    I'm a 33 year old female with Rheumatoid Arthritis and Systemic Lupus. I do walk and lift light weights, but I feel I’m lacking in strength and flexibility. I did yoga a few years ago, but right now I'm not able to keep up with vigorous classes. I’ve pretty much forgotten everything I learned.

    I looking for something I can use daily or at least few times a week. I would like to be able to have the basic poses I can work on and use anytime I need. I have limited energy, and I want to continue to be able to walk so at the moment I don't really want anything too vigorous. I would like to learn the basic poses again and continue to build on that.

    I would also be interested in any links or online programs people find helpful.

    • ANSWER:
      Im sorry i do not know of any DvDs you can watch and workout to. If you have cable and tivo there is a show on at 6am on the Oxygen network called Inhale. Its a hatha yoga class/workout show, about 45 min long. Each day its the same group but the routine is diffrent. They hold each pose for a little bit.

      They do not go into detail on structer, the insteructor will call out a pose and they will move into it, he will tell quick what to not do, and point out someone who is doing it right.

      because you have done yoga in the past this maybe good for you to try, its free (if you get the channel) and you can always watch it once and see if its something for you.

      As for something to purchase, again im sorry. You can always google it. This sounds strange but you can always look for 'yoga for kids' or something of the sort. I believe something like that would teach in detail how to move into each pose and be really slow and light on the joints.

      Another appoligy, i do not know of your conditions (symptoms of) so i can not give full advice. But after reading what i have sugested im sure you can see if its right for you.

  6. QUESTION:
    Rheumatoid Arthritis/Lupus? Whats wrong?
    Hello. I am a 28 year old female and have a few questions and appreciate any response. I have been having numbness in my legs particulary from the back of my knee/leg down thru my toes where it is tingly, numb, and throbbing pain that will last all day off and on. Somtimes, I can be walking and my legs go numb to where i cant move and have to stand still till i can walk again or drag myself to something to lean on. They did a EMG and it came back normal, so then they did bloodwork and said that my Sed Rate was 47 and Rhunmatoid Factor was 10 and i have a appt schedlued for Rhuemotologist. They did a MRi of my back and it shows there is loss of signal in the L4 and L5, T11-T12 and T12-L1, also buldging discs, disc protrusion and multi-level degenerative disc disease. I get sick a lot and was in hospital in april with symptoms of meningitus, but wasnt (I had meningutius 2007 so i know the symptoms) they never knew the cause, i get sick a lot, always feel tired. I have nausea and frequent migraines. Doc asked if anyone in the family has had Lupus. Does these symptoms/diagnoses mean there is something wrong, and if so what? Does it sound like it could be Lopus? Your help is greatly appeciated.

    • ANSWER:
      Some of your symptoms do sound like they could be lupus or another rheumatological problem. Hopefully, the specialisit can tell you something. Lupus is a disorder that has many different types. Some are nuisances. Others are a big problems. The way I understand it, while there might be some hereditary tendancy towards lupus, it isn't one of those things that you will necessarily have a family history for.

      There is a possibility that you could have a neurological problem that they haven't discovered yet. Normal EMGs can come back on some people who have neurological problems. In addition, neurological problems are some of the most difficult problems to diagnose.

      Unfortunately, you are in the age group where lupus is more likely to occur. On the other hand, your varied symptoms might suggest that you have more than one condition causing your problems. This could make it difficult diagnose.

      Your rheumatologist will have more answers for you than anyone here. See what he has to say. Ask him questions. Listen to his answers.

  7. QUESTION:
    I have lupus (SLE), rheumatoid arthritis, and fibromyalgia, what can I do?
    I am 16, my family has no money to take me to any more doctors, so I can't get treatment or medication anymore, the doctor I've seen for it since I was 10 is no longer covered in our insurance plan, no general practice doctors or pediatricians will even see me, and I can tell that I'm in one of the worst flares I've had in years... is there anything at all I can do?

    • ANSWER:
      how do you know you have fms in addition to SLE and arthritis..

      fms is highly overdiagnosed by many docs who use it as a general label for pain

      many docs say the pain of sle is fms

      it is possible yo have all 3--but you really need to be your own doc and not just listen to the so called professionals

      there are pediatric rheumatologists..have you called your insurance company to get a list.

      i have taken to just writing a letter and expalining my situation and asking the docs if they can help me....when i call they say yes, of course, i wait months for an appt..they just talk fast and run out without doing their jobs

  8. QUESTION:
    Do I have Lupus or Rheumatoid Arthritis?
    I was diagnosed with Rheumatoid Arthritis 12 years ago (I am now 53), and have since developed additional symptoms. I have debilitating fatigue, unexplained fevers, a "butterfly"rash on my face, severe anemia, frequent nausea and vomiting, pain, numbness, tingling and swelling in my hands, fingers and one of my knees, headaches and "hazy" urinalyses. I have also had 2 hospitalizations (once for 3 weeks) this year for kidney failure secondary to dehydration. My rheumatoid factor has been positive since the time I was diagnosed, but I cannot locate any blood work where an ANA test was performed. My doctor is suspicious that I may actually have Lupus, because of some of these more recent symptoms, and the fact that I have yet to develop any deformity in my joints. I have been on methotrexate and Enbrel for many years. Can you give me an opinion? I do not have health insurance, so I am saving up to pay for the additional blood work I need. In the meantime, I am trying to get some feedback on these symptoms. I also suffer from fibromyalgia, migraines, and have had 5 surgeries on my cervical and lumbar spine. Thank you.

    • ANSWER:
      sounds as if you were misdiagnosed iwth FMS and really have Lupus.....that was just mild before..

      most docs are incompetant when it comes to fms and use it as general label for pain..so most people really have something else...

      your spinal issues alone with mimic fms...lupus mimics fms...

      it is possible to have fms and those, but being that you weren't properly diagnosed with other conditions--once you can get competant care you need to reassess if you really have fms

      you can have RA and Lupus too

  9. QUESTION:
    Fort Lauderdale Support Group coming in August /Lupus, MS, Rheumatoid arthritis, etcc?
    Hi everyone, I just wanted to send out a message that my organization will be doing its very first Support group meeting for anyone that has Lupus, MS, Rheumatoid Arthritis, or other autoimmune diseases...We are holding it in Fort Lauderdale on August 14th. It will be a great place to make friends and to share all of your experiences and feelings that come along with being ill. I have advertised in several papers, but thought I might find some people on yahoo answers that might want to come out. It is for the person affected or their friends or family. If interested I can email you all the information. Please just send me your email address.

    Thanks ;)
    Marisa
    www.LupusSurvivalGuide.com

    • ANSWER:
      Hi Lady! Did I ever suggest to you that you contact Oprah? Make sure you have a video camera and document the event...all events. Keep a running diary. Get sound bites. Send press releases out to every TV, Radio and Print outlet within a 100 mile radius. Make posters and put them on every bulletin board you can. Don't forget, I already volunteered my studio to you! Best of luck as always.

  10. QUESTION:
    I have Rheumatoid Arthritis and Lupus & need to find ways to make exercising possible with my conditions?
    I'm 25 & am still trying to get rid of the baby belly fat left after having our latest baby. Having RA & Lupus makes it very difficult for me to even walk on some days because of my pain and inflammation throughout my body. My neck has a deformity that makes it very painful to do situps and crunches, my back has a lot of problems too, I used to LOVE to exercise before, so it isn't because I don't want to, I'm physically not able to do much. But I really want to find an exercise plan that will help me lose 20lbs in a way that is not too streneous on my body with it's current limitations. Does anyone know of low imact exercises, or better yet any programs for someone with my condition that teaches exercising with disability?

    • ANSWER:
      If you can get to a YMCA with a heated pool, water aerobics or a water arthritis class is an excellent choice.

      The Piedmont Chapter of the Lupus Foundation of America has an excellent exercise video "The Right Moves" which you can probably handle even on your worst days.

      Gaiam has a chair yoga program. You can find that at www.gaiam.com. They also have fantastic Tai Chi and Chi Qong videos that you might be able to handle.

      Look for a Tai Chi or Chi Qong class. The Arthritis Foundation usually keeps a list.

  11. QUESTION:
    Whats the difference between lupus and rheumatoid arthritis?
    I have a one or the other but doctors are still trying to figure what I have or something different. Anyone out there with either one. I am on Short Term but want to be back at work but 2 months now I still can't do much. Swallon and very painful joints. Very bad in the morning. Low grade fever. Carpel Tunnel. Cough, enlarged spleen, feet feel like someone is beating them with a hammer. Shoulders pop, elbows pop and both are swallon and tender. Hand are tender to the touch. I have low white blood count, red blood count, and platlettes are low. Ced rate is around 65. Anyone else out there?

    • ANSWER:

  12. QUESTION:
    Rheumatoid Arthritis and Lupus...is there anyone like me?
    I'm 29...with Rhuematoid Arthritis and Lupus. I was a healthy athletic person until the age of 25. I just woke up one morning with a lot of pain in my neck and back and flu like symptoms. I assumed the neck and back pain was from a horse accident in 1996(landed on my head)...I did the Hunter Jumper stuff age 6 to 23. I had been seeing chiropractors since then and assumed that was what was wrong with me. I saw a doctor after my problem had gotten worse over the course of a year. I had horrible doctors who put me threw financial and mental hell. I was finally diagnosed in Oct 06 and found a wonderful doctor.

    I got sick a month after being married. we've been married for 3yrs. He takes very good care of me. I don't have any family or friends where I live. I've been to sick to make any since moving here 2 yrs ago. I'm going insane. Lots of different meds didn't work. I just started Orencia Infusions. I feel like my home is a prison and I'm in solitary confinment.

    • ANSWER:
      sorry to hear all these....
      here are some things i'd suggest
      1. get GREAT mattress, not cheap stuff, that way it will save your back and your neck

      2. ask your hubby to massage you every day or every other day =) (ps. it's great that he takes good care of you =) )

      3. go to nearby park with your hubby every day and just walk around that will move around your joints and might make things easier

      b/c you know how after you exercise your msucles get all sore but if you just lay there it wont go away however, by moving around it makes soreness go aawy faster =)

      ps. do not walk on cement, and get great walking shoes, with a lot of cushion, nike usually has great items and theirs aren't that expensive =)

      4. take calcium every day, b/c as we get older, we (as women) need calcium to strength our bones

      5. not sure if you are famililiar with those chiense balls, http://www.natashascafe.com/html/balls.html
      they come in package of two, play with them in each hand for ten mins, that will ease up your hand joints

      6. take yoga, i heard they are great for your body period
      =)

      ps. your diet is also very important, such as eat more fruits and veggies and more lean meat
      stay away from the things wthat will be bad for your such as fast food or sugary stuff
      =)

      i hope this helps

  13. QUESTION:
    i dont have insurance and might have lupus, where can i get medical help?
    i recently had blood work done and i might have lupus, rheumatoid arthritis, or another immune disease...i am in a lot of pain and i get really tired, i am sure that the doctor is going to do tests and give me prescriptions in the near future and i simply can't afford it. does anyone know where i can apply for medical help or prescription help> ? unfortunetly i live in michigan and with the state debt, they are not taking medical assistance applications.

    • ANSWER:
      Is there a Target there? Walmart?

      They now have the prescriptions.
      I am a diabetic and I used to spend a few hundred a month on my medications, but now that's changed. MANY prescriptions only cost 4 dollars now. That can certainly help you out.

  14. QUESTION:
    Can you diagnose me?? (Lupus vs arthritis?)?
    I'm 16 years old,Female.

    On the day May 30, 2009 I had extreme pain in my left shoulder. I did nothing physical that day.
    It was just all of a sudden. That night, any small movement i would make with my shoulder would
    hurt so bad, I would scream. My shoulder was not red but it was a bit swollen. The next day the pain
    wasn't as excruciating as the night before. The pain in my shoulder lasted 3 days, it gradually went
    away.

    A week or so after that I woke up with stiff a very stiff body, I was stiff until an hour or two.
    My hands were in pain, my knuckles were swollen,red, and tender to the touch.
    Weeks after that, my feet were in pain, particularly in my heel and the knuckles of my toes.
    ( the pain in my heels ever since that day has never stopped hurting. In fact, its been harder to
    take walks. I can no longer jump. If i try to walk in a straight line I don't have any balance.)

    All of these pains slowly are taking over me. Its difficult to do my daily activities.
    Like walking,tying my hair,getting up, etc. Just your day-to-day doings.

    that's the Just of it.

    Oh and this issue has been going on for 7 to 8 months now.
    And when i went to the ER the doctor diagnosed me as arthritis but she said shes not too sure.
    she came to that conclusion due to something in my blood (i dint know the details)

    Now, I've researched for quite some time now and I've come to the conclusion that
    I have Poly-articular juvenile rheumatoid arthritis.

    Though rheumatoid arthritis seems incredibly similar to lupus...

    Is it lupus or arthritis?...
    Or what do you think I have?...

    P.S. My face gets rashes,irritated,dry patches but as soon as I cleanse my face, it goes back
    to normal.

    • ANSWER:
      definitely LUPUS.its clinical manifestations resemble Rheumatoid Arthritis and sometimes people are misdiagnosed in the early course of the disease.

  15. QUESTION:
    What's wrong with me?! Cancer, lupus, or arthritis?
    I have soooooo many questions, so here goes:

    I'm a 19 year old female. Since last November, I've had a constant dull pain in the left side of my upper back. I got an x-ray of my entire lumbar region, and it showed nothing unusual. I also get extreme headaches, intense heartburn, mucus in my stool, and extreme fatigue. I've gained about 30 lbs in a year. I got an endoscopy and colonoscopy to see where the mucus in my stool/ heartburn was coming from, but the doctor said my GI tract was beautiful. I've had 1,000 pregnancy tests, so I know I'm not pregnant.

    I'm prescribed Flexeril and Tramadol (neither of which helps at all), I take daily vitamins (which is why I'm stumped by the low vitamin d levels), and I smoke marijuana (would it cause the weird blood test results?) everyday. I was also on Accutane for about 5 months between Oct 2009 and Feb 2010.

    I just got some of my blood test results back and I have Elevated Sed Rate, Elevated C-reactive Protein (CRP), and Low Vitamin D.

    My primary care doctor suspects that I might have rheumatoid arthritis, and, she hasn't confided in me yet, but I think she also suspects lupus.

    My main concern is cancer. Basically everyone in my family has had cancer or died from cancer. From the details I've given, do any of you think I could have cancer? Have you known anyone with the same symptoms who had cancer? If not, what do you think it could be?

    Any help would be appreciated.
    I know my dr. is suspecting lupus because she told my mom it's a possibility (my dr and mom are best friends). My dad died of cancer, my mom had cancer, all of my grandmas and grandpas died of cancer, 3 of my 5 aunts died from cancer and one of them had it and survived, 3 out of 3 uncles have died from it, and 1 out of my 5 half-brothers has had it.
    I'm not on birth control pills and I'm a little overweight, but not a whole lot. I live in Florida, and I've been at the beach for almost all summer, so I know I haven't had a lack of sun.
    Also, I didn't pay for the pregnancy tests. Doctors gave them to me when I had the endo/colonoscopy, before I had x-rays, the entire time I was on Accutane, and not to mention the 6 or so times I've had my blood tested in the past 3 months. I'm not stupid, I know about safe sex.

    • ANSWER:
      Seems like you got a lot going on. Most drs would order an ultrasound with the pain you're having. It would be cheaper to invest in some condoms than pay for 1000 pregnancy tests.. I had extremely low vitamin levels because I never got in the sun. Your body needs about 20 minutes of full on sunlight to get the vit d you're lacking. High CRP is caused by infection, inflammation or being overweight...or PID. It is also elevated if you're taking birth control pills. By Sed rate, I'm assuming you mean ESR, erythrocyte sedimentation rate? Just another test for inflammation.
      She hasn't confided in you yet her thoughts on Lupus? Then how did you come by this knowledge? Do you know what Lupus is? If you had it or your dr suspected it, tests would've been run by now to verify, because lupus will kill you if left untreated. You were on accutane for quite a while...longer than most. I was on it and it can cause some wicked side effects, including bone pain.

      Has everyone in your family had the same cancer? Have they all had it while younger? And when you say basically everyone, who does that mean??

      You're the second person to ask a question today, that a parent was best friends with the dr...doesn't matter either way. You are of age and your condition can not be discussed without you present or without your knowledge first and you have to give explicit consent on who gets to know what. If you're at the beach almost every day, then to be sure, you use a sunblock, which would also prevent absorption of the rays and would not make the vit d3. Most people are actually deficient in vit d.

      In rheumatoid arthritis, the small joints of the hands, wrists, feet, and knees are typically inflamed in a symmetrical distribution (affecting both sides of the body).

      Have they included these tests for antibodies when they took your blood?
      Abnormal antibodies can be found in the blood of people with rheumatoid arthritis. An antibody called "rheumatoid factor" can be found in 80% of patients. Citrulline antibody (also referred to as anticitrulline antibody, anticyclic citrullinated peptide antibody, and anti-CCP) is present in people with rheumatoid arthritis.

      X-rays can show bony erosions typical of rheumatoid arthritis in the joints. Joint X-rays can also be helpful in monitoring the progression of disease and joint damage over time. Bone scanning, a radioactive procedure, can also be used to demonstrate the inflamed joints. MRI scanning can also be used to demonstrate joint damage.

      Lupus...
      ■Fatigue
      ■Fever
      ■Weight loss or gain
      ■Joint pain, stiffness and swelling
      ■Butterfly-shaped rash (malar rash) on the face that covers the cheeks and bridge of the nose
      ■Skin lesions that appear or worsen with sun exposure
      ■Mouth sores
      ■Hair loss (alopecia)
      ■Fingers and toes that turn white or blue when exposed to cold or during stressful periods (Raynaud's phenomenon)
      ■Shortness of breath
      ■Chest pain
      ■Dry eyes
      ■Easy bruising
      ■Anxiety
      ■Depression
      ■Memory loss

      I have Reynaud's, it sucks..

  16. QUESTION:
    Sudden onset arthritis, difficulty swallowing?
    Wondering if someone can help me, I'm very worried. Over the past 2-3 weeks I have been getting progressively worsening arthritis type symptoms. Started in the PIP joints of my fingers (joints are slightly enlarged, stiff, and painful). I noticed they became enlarged about 6 months ago. Now it hurts to even type, carry something heavy or awkwardly with my hands, use controller for PS3 etc. My thumb IP, wrists, elbows, neck, and feet also have been hurting. My neck has higher tone in the muscles and I can feel the muscle knots in the back of my neck. Never had any of this before. Also, yesterday my right mid portion on the right side of my back started to hurt especially if I take a deep breath or squeeze my shoulder blades together. I also have difficulty swallowing which began over 2 years ago. I've been feeling ill for some time now which is also getting worse. I do not feel healthy. I've been to family doctors (my family doctor, a internal med doctor, and a rheumatologist). All tests so far have been normal. I'm negative for lupus, rheumatoid arthritis, liver function ok i think, normal CBC, hand x-rays ok, thyroid ultrasound ok, barrium swallow test ok. I saw the rheumatologist on thursday and have not heard back. He ordered many blood tests and a urine sample. I really hope something shows up or I don't know what I'm going to do. This is much more severe than any doctor I have seen realizes. Each time I go to see one, they imply the symptoms are not that severe when they are!! It's very irritating. Anway, I'm very worried please help me. Thanks

    • ANSWER:
      ? reactive arthritis (previously known as Reiter's syndrome) Get HLA check. see an immunologist. May have connective tissue disorder, have ANA levels checked , CRP. ESR. Might consider and osteopathic physician as they conc more on skeletal/muscle system. Maybe have gout? Have you been checked for MS or MG?

  17. QUESTION:
    Cause of knee,ankle and feet swelling with pain and stiffness?
    I have had blood tests taken and DO NOT have sugar,no kidney or heart problems and no rheumatoid arthritis,lupus or lyme disease.So what else is there that can be causing these symptoms?Left foot and ankle swells more than the right one.Swelling goes down at night after sleeping,but pain and stiffness when
    i get up.My knees are painful,too.

    • ANSWER:
      There is not one test for most of these conditions. Your doctor needs to go by your symptoms and blood tests. You need to find a doctor who will take you seriously. Take photos of all your swollen joints.

      Ignore the idiot who keeps posting about avoiding sugar.

      ...

  18. QUESTION:
    Is your chronic illness really just a food allergy?
    3 years ago, I was completely crippled and bedbound. I had to wear braces on my hands. I was diagnosed with lupus, rheumatoid arthritis, hidradenitis (boils) and many other things. I realized that I felt worse after eating certain foods. I had allergy testing done, and found out I was allergic to wheat, eggs, soy, commercial dairy, peanuts, tomato and avacado. Once I eliminated these allergens from my diet, I healed completely and all of my health issues resolved. I have cheated on my diet 5 times in 2 years, and all 5 times I ended up with horrible flare ups. As long as I stick to it, I am perfectly fine. I am convinced that undiagnosed allergies are the root of most illnesses. I do not take any supplements or medications. I wanted to pass this on to others who are suffering needlessly. I recommend keeping a food diary for a couple of weeks to see if your symptoms get worse after eating certain foods (free online diary at nutridiary.com) or get allergy testing done.
    I hope this helps someone. I would have loved to have known this before I wasted 12 years in bed, in pain.
    I realize this is not for cases for genetic illness, but many of the newer type diagnosis may benefit from this
    I had standard skin prick testing done, then followed up with blood testing. Visit an allergist or consult your physician

    • ANSWER:
      Glad this helped you, but please don't make the mistake of thinking it's the answer for everyone with a chronic illness. Many of them are genetic and have nothing to do with food allergies.

  19. QUESTION:
    I have lupus and need advice from people who have it or know about it.?
    I was recently diagnosed with lupus and Rheumatoid Arthritis and have had a headache everyday for a month, no matter what I take it's there. They are crippling and get worse at night when my fever goes up, I need help my Rheumatologist is useless he won't help me and tells me it's normal. Is anyone else doing through this??

    • ANSWER:

  20. QUESTION:
    Is it hard to diagnose Lupus in a teen with no positive labs?
    My very active, healthy, 15 year old daughter has been sick since November 2009. She started complaining of headaches, joint pain, chest pain, painful periods,tiredness and dizziness around the beginning of that month. Her symptoms would come and go. By mid month she was coming home from school, getting a snack & doing her homework as normal, but by 5:00pm she was asleep on the couch 3 out of 5 days during the school week. She would wake up long enough to eat, get a shower, text a little and then be in bed asleep by 10:00pm. Over Thanksgiving break from school, I noticed she was sleeping most of the days. She went back to school that following Monday. She kept telling me she was fine, "just tired from sports, school, etc. The next morning, Tuesday, she was noticeably sick with a fever. She also had a swollen gland under her right arm. So I took her to the doctor. Lauren had been sick back in September 2009 with H1N1 AND Strep-throat AT THE SAME TIME and her Pediatrician new this. She seemed to think that Lauren had a viral infection and ordered blood tests for Cat Scratch fever, Epstein Barr and ran a CMP. (Also strep & Flu swabs) In the meantime she prescribed her Omnicef. Both came back negative and the CMP was normal. It was several days later that we got the test results, because of the weekend. Lauren was still sick. She was running a fever, swollen glands, achy joints, fatigue, loss of appetite, dizziness, extra cold hands and feet,chest pains, headaches and sleeping constantly. (Even after having an antibiotic.) Her doctor ordered a chest X-ray, EKG, urine sample, CBC. Everything was normal. By December 16, 2009 we were getting frustrated after numerous tests and no answer but still a sick kid that was too sick and hurt too much to go to school. Our Doctor decided to send us to a Pediatric Rheumatologist. Knowing this, I decided to contact Lauren's biological father's parents to get a family history.(Lauren was adopted by my husband after her father gave up his parental rights and we do not have any contact with his family) I found out from them that eight women on Lauren's grandmother's side of the family have/had (SLE) Lupus. My daughter's grandmother, great-grandmother, great-great-grandmother, three great-aunts and two cousins ALL were diagnosed with Lupus. I immediately contacted her doctor. She was not going to be there the rest of the week. Knowing that Christmas was the next week and it would be a short week for everyone, I made an appointment with another doctor in the group to see if he would go ahead and order the blood work commonly used to help diagnose Lupus. His first response to me was, "But she doesn't have the butterfly rash." I was quick to point out that not all Lupus patients has the malar rash. He agreed and proceeded with the testing. He ordered the following: ANA level, Anti-DSdna, Sed-rate. ALL came back negative and normal. Meantime we were made an appointment with a Rheumatologist Specializing in Pediatrics. We had to wait 2 months. During that time Lauren's symptoms were the same but she would have good days and bad days. We still saw the doctor when "odd" things would come up. Her knee would swell up for no reason, her throat would hurt but no strep, on and off gland swelling and lots of coughs and colds. She had lost 12 lbs by this point. We began a homebound school program for her after Christmas break and made sure she was still active and saw her friends. Her doctor kept saying it was Chronic Fatigue Syndrome, but I didn't agree with that. Finally our day with the Rheumatologist came! We were SO ready for answers or at least a plan. We traveled 2 1/2 hours away to a very well known pediatric hospital. After asking Lauren and I about her symptoms and performing a physical exam of her joints, he said he thought he could "help" her. He told us that we could rule out Rheumatoid Arthritis and Lupus. (I was so relieved) He prescribed her 10mg of Elavil every night before bed to "promote healthy sleep" and instructed Lauren to start walking 10 minutes a day for a week and then do a little more each week until she was back to her normal physical routine. He told me that he thought she had received "a double whammy" from having H1N1 & Strep in September of the previous year and her body had just "shut itself down" from the stress of being so active in school, sports, etc. (Lauren is a straight A student, plays soccer and really strives to be the best she can be) He called it a "short-term Fibromyalgia" and said it wold go away eventually. I was pretty satisfied with his plan and agreed that we would definitely try. At this point, after her being sick for almost 4 months, I was willing to try anything. So this past Monday she started taking the Elavil at night, before bedtime. Thursday morning she woke up with a prominent, red rash underneath her eyes that spreads from one cheek, across the bridge of her nose and over to the other cheek. I thought immediately that she was havi

    • ANSWER:
      Having read what you've written I'm very worried. From what you are describing and the family history of lupus I would STRONGLY recommend getting a second opinion. The problem with lupus, apart from the fact it mimics other illnesses, is that the blood tests can come back negative in patients that actually have lupus and this happens in about 10% of the cases. It takes a lupus specialist to be able to diagnose lupus when that happens and often some rheumatologists aren't always specialised enough in lupus.

      You are correct when you say that lupus patients don't all have the butterfly rash, infact it's very rare, much more so than people think. I have lupus and I have had one rash in 14 years and that was when it first started and was on my legs.

      She is showing classic signs of lupus (and nearly ALL of the symptoms!) and if I were you I'd be VERY persistent about getting to see a lupus specialist to rule it out as if lupus is left alone and not treated it can be very problematic. I really can't urge you strongly enough to keep pursuing this, she really is manifesting too many symptoms to be ignored. As lupus is often triggered by hormonal activity the age your daughter is now would be a prime age for this to happen.

      Please visit our website where there is more information on lupus (and it's correct medical information as opposed to some of the info on the web), we also have a nurse online if you want to ask any questions: http://www.lupus.org.uk/onlinenurse.htm, dependant upon where you live she might be able to recommend a top lupus specialist as she knows lots worldwide. Also very shortly (hopefully within days) there will be a brand new lupus documentary on the website which will be free to view with actual patients talking about having lupus. It may be worth your while watching it as I do think you'll recognise some of your daughters symptoms being described.

      Good Luck.

  21. QUESTION:
    blood/ANA results 1:160 speckled...Lupus?
    Hello,

    I received a pleasant call today from my doctors office saying that they got my recent blood work back and there was an ANA and then they said something about rheumatoid arthritis(RA). They said they were calling a rheumatologist to set up an appointment for me.

    In the meantime I looked up ANA and RA. When the doc's office called again, I asked for clarification of the test results. Apparently, RA was tested for and was not present. My numbers were 1:160. The pattern is speckled.

    I have an appointment set up for a few weeks and will find out more then. In the mean time, can you help decipher these blood results.

    The symptoms that led to the blood tests involved my legs and feet feeling dead/numb in the morning when I awake. I swing them out of bed and they don't fall out from underneath me but they hurt a little bit and don't feel like they have joined me yet. It doesn't take very long for them to wake up and be normal. The doc scheduled an EMG/nerve conduction. That is an insane test and I hope I never have another one, but I digress. The EMG was fine leaving the blood work to come back as the next evaluator.

    Other symptoms are harder to gauge because I take 5mg of Oxycodone for IBS. Three times a day I take it usually. It does a great job of taking away the general aches and pains of being a not-very-active 34 year old man along with helping with my abdomen. I mention this because alot of the symptoms of lupus or arthritis may being masked by the Oxycodone. I know that I have joint pains and muscular aches. I just chalked them up to getting older and my weight rising to 245lbs. That is an all-time high weight and I thought my joints and muscles were just struggling to keep up.

    Anyway, I don't have many of the symptoms that seem to be indicative of a Lupus diagnosis. Such as:

    fever
    anemia(that I know of; surely my blood work over the last year would show that, right?)
    pleurisy
    rash
    light-sensitivity
    hair loss
    abnormal blood clotting(that I know of)
    Raynaud's(that I know of)
    mouth or nose ulcers

    So basically,

    My legs and feet hurt when I wake up or after a long drive or after lying down for awhile like when you are watching a great movie and don't get off of the couch for awhile).

    My hands seem to be a tad bit weak. Sometimes I really have to stretch my fingers and shake them around to wake them up also.

    My blood numbers were 1:160 with a speckled pattern. Something about ANA(antinuclear antibody).

    Any ideas? Thoughts? Honesty is appreciated. Best answer will be awarded. Thanks in advance for your help!

    • ANSWER:

  22. QUESTION:
    Help me with these blood/ANA results please? It is lupus?
    Hello,

    I received a pleasant call today from my doctors office saying that they got my recent blood work back and there was an ANA and then they said something about rheumatoid arthritis(RA). They said they were calling a rheumatologist to set up an appointment for me.

    In the meantime I looked up ANA and RA. When the doc's office called again, I asked for clarification of the test results. Apparently, RA was tested for and was not present. My numbers were 1:160. The pattern is speckled.

    I have an appointment set up for a few weeks and will find out more then. In the mean time, can you help decipher these blood results.

    The symptoms that led to the blood tests involved my legs and feet feeling dead/numb in the morning when I awake. I swing them out of bed and they don't fall out from underneath me but they hurt a little bit and don't feel like they have joined me yet. It doesn't take very long for them to wake up and be normal. The doc scheduled an EMG/nerve conduction. That is an insane test and I hope I never have another one, but I digress. The EMG was fine leaving the blood work to come back as the next evaluator.

    Other symptoms are harder to gauge because I take 5mg of Oxycodone for IBS. Three times a day I take it usually. It does a great job of taking away the general aches and pains of being a not-very-active 34 year old man along with helping with my abdomen. I mention this because alot of the symptoms of lupus or arthritis may being masked by the Oxycodone. I know that I have joint pains and muscular aches. I just chalked them up to getting older and my weight rising to 245lbs. That is an all-time high weight and I thought my joints and muscles were just struggling to keep up.

    Anyway, I don't have many of the symptoms that seem to be indicative of a Lupus diagnosis. Such as:

    fever
    anemia(that I know of; surely my blood work over the last year would show that, right?)
    pleurisy
    rash
    light-sensitivity
    hair loss
    abnormal blood clotting(that I know of)
    Raynaud's(that I know of)
    mouth or nose ulcers

    So basically,

    My legs and feet hurt when I wake up or after a long drive or after lying down for awhile like when you are watching a great movie and don't get off of the couch for awhile).

    My hands seem to be a tad bit weak. Sometimes I really have to stretch my fingers and shake them around to wake them up also.

    My blood numbers were 1:160 with a speckled pattern. Something about ANA(antinuclear antibody).

    Any ideas? Thoughts? Honesty is appreciated. Best answer will be awarded. Thanks in advance for your help!

    • ANSWER:

  23. QUESTION:
    Possible cause of hip pain w/ normal Ex-Ray & MRI?
    I'm a 30year old healthy female. I've had ongoing hip pain in my left hip area for 6 months (no injury). It began shortly after a lumbar puncture (traumatic tap) so my first thought was that a nerve was hit and is causing the pain. My doctor, neurologist, and rheumatologist all say that is highly unlikely. It started very mild but has progressed over time. Some days the pain continues to be mild but other days it hurts so bad that I just want to cry. On the worst days, I limp around like I'm crippled and the limping has even caused bursitis on the outer part of my right (other) thigh. The pain is in the iliac crest area and hurts when I put my left foot down (walking), bump it against something, or roll over on it. I also "occasionally" have mild pain in my upper buttocks/ lower back. I've seen my doctor, a chiropractor, massage therapist, and a rheumatologist. My ex-ray was said to be normal so my rheumatologist ordered a MRI which, also, was said to be normal. He said the next step would be to see a neurologist again to see if it is some type of nerve damage. Like I said, that was my first thought, however, it doesn't really feel like a nerve pain. I guess I don’t really know what nerve pain is supposed to feel like, the only thing I can compare that to is tooth/ nerve pain. If it doesn't improve, I do plan on seeing a neuro after the holidays but I'm just curious to know if there is something else (other than nerve damage) that may be causing it??? Something that doesn't show up on a blood test, ex-ray, or MRI.

    Additional Info/ question...Is there a condition that can cause optic neuritis and hip pain? I was diagnosed w/ ON in June; MS was ruled out by MRI and spinal tap. My rheumatologist ordered 30+ blood test and ruled out lupus, rheumatoid arthritis and similar conditions. The only thing that came back positive were some tests that show I'm at high risk for blood clots. I tested positive for h-pylori back in June and I don't think the antibiotics ever got rid of that. I have had almost every blood test, the lab knows me well. None of my symptoms seem to fit together. I have lymph nodes in my neck that have been enlarged for a little over a year. I had a non-cancerous mass removed from my breast a few months ago. I'm probably leaving a lot out but that's all I can think of right now. I'm hoping a doctor reads this who is able to advise. Thanks in advance.

    • ANSWER:
      If the mri came back neg- that is should don't be from a compressed disc- I had a epidural years ago- 1st attempt was in the wrong place and caused immediate excruciating pain- and 2nd attempt - worked fine--the only other thing I can think is nerve tests- nerve conduction- where they put the little needles in the skin- I don't know how difficult the nerves are to visualize- but the nerve tests should pin point and know if they are conducting properly-D

  24. QUESTION:
    How to bring on a flare of arthritis?
    I know this seems like a stupid question but hear me out.

    I'm 21 years old and for the last 9 months on and off I've had hot, swollen, sore, stiff knees and fingers. They make grinding noises. When I was at my worst I could not straight my fingers and knees or make a fist with my fingers. I've also had dry eyes, dry mouth, rashes, fatigue, flu like feeling, raynaud's and nose ulcers.

    I'd been seeing my GP for months but my blood tests haven't showed anything (except a weak positive ANA). One morning (about 2 months ago) I woke up and I was very unwell with my symptoms, the doctor called it a 'flare up'. She put me on prednisone which was a miricle. I went on a month course and felt like a new person.

    I've been off it for 2 weeks now. My joints are no where near as bad and the swelling is mild at times and otherwise non-existent. But it seems to be creeping back. My GP said it's definintely some sort of autoimmune inflammatory arthritis, possibly rheumatoid arthritis or Lupus

    I had my first rheumatologist appointment last Thursday and she wasn't a very nice lady. She got angry with me for going on prednisone and masking my symptoms and told me she couldn't do much until she has seen the swelling. She's ordered heaps of blood tests and I see her again in 4 weeks.

    I need her to see my joints swollen like they were before. I'm taking ibuprofen until I see her next but I'm worried that'll mask the swelling too.

    Any advice?

    Thanks

    • ANSWER:
      The rheumatologist had no business yelling at you. You were following your doctors orders. Lupus is a tricky disease to diagnose because there are no definitive tests for it. History, symptoms, tests AND process of elimination are all part of the diagnosis. Ibuprofen works differently than prednisone. You might want to stop it a day before you go in to the doctor. Prednisone has a longer lasting effect because it reduces inflammation and suppresses the immune system as well.

  25. QUESTION:
    why does my chest hurt and feel like im breathing in icy hot or eucalyptus?
    ive had this "rare" sensation for at least 18 years off and on and is becoming more frequent as i get older. i am now 38 yrs. old and have seen several doctors and rheumatologists re: this. two of my sisters have autoimmune disorders, systemic lupus/rheumatoid arthritis, and my doctors are suspecting that it may be related or in the same family although my blood work has always come back negative. i know that this is not an anxiety attack by any means, yet some kind of inflammation problem. one e.r. doctor noted that it may be costochondroitis. i have never gotten a definitive answer and am extremely exhausted over trying to diagnose this "mysterious" re-occuring episode. i do have asthma but its more onset from allergies. my asthma has been more frequent lately as i have bronchitis at this moment in time but i feel that i have this underlying sensation in my chest with all other symptoms aside. the best way to describe this feeling is that my chest wall feels tight and whenever i take a breath in it feels like the air that i'm in taking is extremely cold almost as if i have icy hot inside of my lungs. its a very bizarre feeling and is uncomfortable as when i get up and try to go about my day i find myself winded and fatigued. the only relief i seem to get is if i put capsacin heating patches on my chest and take advil. is there anyone else out there that has remotely experienced anything like this? i am so frustrated and am at my whit's end with this.

    • ANSWER:
      If 18 years of attempted diagnosis and treatment haven't been able to identify and relieve the cause, I'm not sure Yahoo Answers will be able to do any better.

      It may be something as benign as a nerve pattern that causes pain triggers during normal respiration. If it's part of your basic physiological architecture, it's not something that's bound to improve over time. In fact, it's likely to become more pronounced as part of the normal "aches and pains" of aging. It may simply be a phenomenon whose only manifestation is your discomfort rather than threatening your broader health.

      It can also be the result of a sympathetic compensatory reaction. For example, many athletes with otherwise perfectly healthy spines develop severe back problems later in life due to changes made over the years in their strides as they may have favored injured knees or ankles. It's something that's entirely mechanical, perfectly real, and yet wholly unrelated to the original source. While your situation may be more neurological and muscular than skeletal, the effects can be just as real nonetheless.

      Regrettably, like many nerve and muscle-related conditions, it may be something for which your best (and indeed only) remedy is to treat the symptoms as effectively as you can when they occur. You should be careful, however, to ensure that the remedies you pursue don't create further, additional problems like the gastrointestinal havoc many over-the-counter pain medications like Advil and Aleve can cause, or liver toxicity the active ingredient in Tylenol can have if used in certain quantities for prolonged periods.

      Best of luck. I hope this helps.

  26. QUESTION:
    What could be causing my continued joint (multiple joints) plus fatigue?
    I'm a 32 year old female, good physical shape (15 lbs above goal weight). Around 1 year ago I started having sporadic joint pain in multiple sites. Sometimes the pain is bilateral, sometimes it is in only one side. The pain ranges from my fingers and hands, shoulders, hips, knees, feet and toes. I've been tested (multiple times) for gout, lupus, rheumatoid arthritis and various other connective tissue diseases- all of which were either negative or inconclusive. I have confirmed high levels of inflamation via a sed rate test (which is consistently above 30) and a CRP that stays around 2.0. Some days I will feel almost perfect and other days I can't even leave the bed. What can this be? What do I need to do to help my rheumatoligist find an answer to help me lead the active life that I desire to lead?

    • ANSWER:
      It sounds like you're in a really frustrating position.

      If you're seeing a good rheumatologist he should take your symptoms before he looks at blood tests. Have you been tested for anti-CCP? Rheumatoid Factor? Around 30% of people with Rheumatoid Arthritis are sero-negative. This means that they don't test positive for Rheumatoid Factor, but they may have other positive blood tests (like your Sed Rate and CRP) or have no positive blood tests.

      Have you had your ANA tested? This is a very basic, cheap test that they can do to see if there's some sort of autoimmune disease.

      Are you being treated for anything? The medication used for Lupus, RA etc are pretty much all the same. So at the end of the day it doesn't matter exactly what they call it, as long as they're treating it.

      Have you heard of Undifferentiated Connective Tissue Disease? It's what they call it if you have symptoms from multiple connective tissue diseases. The diagnostic criteria states you have to have 2 positive ANA tests and the symptoms, but I've read that other tests like CRP and Sed Rate can be used instead of ANA.

      Good luck, I hope your doctor finds something.

      ....

  27. QUESTION:
    What should I do next about this mystery diagnosis?
    I'm completely stumped, and so are my doctors.
    I've been having a lot of seemingly unrelated symptoms for 3 months now: weakness in limbs, chest discomfort, shortness of breath, occasional low-grade fevers, body aches, joint pains, faintness and visual disturbances. I have been to my family doctor numerous times, the ER twice, a neurologist, an optometrist, and a cardiologist. No one can find anyting definitively wrong. They have done blood work for diabetes, anemia, mono, lupus, rheumatoid arthritis, and Lyme's disease. I have had 3 EKG's and am scheduled for a stress echo next month.
    The only helpful thing I have heard was from the cardiologist, who said that whatever I have is affecting multiple systems in my body (neurological, cardiovascular, etc). Anyone else had similar experiences? What kind of doctor should I seek or what tests should I request?
    Thanks for any help.
    They've ruled out MS and I guess ALS. And thanks for the prayers.

    • ANSWER:
      There are VERY few things that can cause all of those/ affect multiple systems in the body. Lyme- the most common vector-borne disease in the U.S.- is ONE, & should be re-visited as a possiblity, as it needs prompt treatment to keep from progressing. The most common Lyme test (ELISA) is notoriously unreliable, as it relys on the body's immune response to the infection, which is often subdued.

      I would suggest a trial run of abx (i.e: doxycycline for 3 or 4 weeks)
      then a break for 3 or 4 days, at which point blood is drawn for a Lyme re-test.
      If you h-a-v-e Lyme, then your symptoms will flare substantially the day after you start the abx. Also, Lyme anti-bodies- if present- will be much more prevalent after the abx treatment, as it will have lysed (killed) many of the borrelia bacteria. The pieces that result are what trigger the antibodies that the Lyme titre & western blots "look for". ;)

  28. QUESTION:
    How do I find a reputable doctor of TCM/any of this sound familiar?
    Western medicine has completely failed me. I deal with chronic pain, fatigue, muscle cramps, brain fog, etc., that is pretty constant but with a clear cyclical component.

    It is, according to all available tests, physicals, and evaluations of other kinds, NOT fibromyalgia, chronic fatigue syndrome, stress, depression, MS, lupus, rheumatoid arthritis, celiac disease, or any other of myriad disorders Western doctors are halfway familiar with.

    I'm not a hypochondriac or an attention seeker, and this issue is really affecting my quality of life.

    MY best guess is myofascial pain, but I'm not sure. I definitely have the ropey knots of trigger points, but pressing them brings relief in a "good pain" kind of way, not discomfort. The knots can never be worked out with massage, though. I don't have any tender points in the traditional sense.

    For awhile I really wanted a diagnosis, something to validate what I was going through and open up treatment options. Now I really just want it to stop.

    So what kind of title should I look for beside the name of a practitioner? I want someone highly trained in several forms of alternative medicine, not just an acupuncturist or herbalist.
    Interesting, Dave. I suppose it's the lack of a centralized accrediting system I was wondering about - is there, in fact, no such agency at all, or is there one agency more widely respected than others? It's hard to imagine that there is no body widely recognized as the authority, even though there clearly are charlatans out there. If there is one widely respected body, I'd like to know which agency that is.

    I'm not sure how one would use the placebo effect knowing what it is. Once you know something is a placebo, haven't you effectively guaranteed its ineffectiveness? As an analogy, you can't undo a disbelief in Santa Clause.
    Interesting, Dave. I suppose it's the lack of a centralized accrediting system I was wondering about - is there, in fact, no such agency at all, or is there one agency more widely respected than others? It's hard to imagine that there is no body widely recognized as the authority, even though there clearly are charlatans out there. If there is one widely respected body, I'd like to know which agency that is.

    I'm not sure how one would use the placebo effect knowing what it is. Once you know something is a placebo, haven't you effectively guaranteed its ineffectiveness? As an analogy, you can't undo a disbelief in Santa Clause.
    Edit: Just wanted to let you know I didn't give the thumbs down. I appreciate any thoughtful answers and never thumbs down real responses.
    Sorry, Gary Y., didn't mean to offend. I thought it would be clear from the context that "in this instance" was implied, though it was not written. And yes, in this instance, Western medicine HAS completely failed me. Doctors have been all too happy to order bloodwork and then shake their heads and shrug when it comes back negative. I had a neurologist tell me that I couldn't POSSIBLY have MS because I had a negative brain MRI - so I asked about spinal lesions, and asked why the MS Society said five percent of MS patients showed no brain lesions. His response? He said, "The MS Society lies," and went on to say checking for spinal lesions would be a possibility if I'd had vertigo. My response? "Vertigo is on the list of my symptoms I just handed you!"

    Far too many people seem to go into medicine with no curiosity, and that's not the field you should go into if you're not curious.

    I'm not picking on doctors - far too many people in EVERY field are incompetent, my own included.

    • ANSWER:
      You may want to consider a Naturopathic Doctor?

      NDs have all of the same basic training as a general practitioner MD. In addition to the basic, laboratory and clinical sciences, NDs are trained in acupuncture/TCM, botanical medicine, nutrition & nutraceuticals, as well as physical medicine (modalities, minor adjustments, some massage, etc.).

      Philosophically, NDs differ from the average MD in that we'd suggest that the body/mind/spirit must be treated as an inseparable whole. EG: Sometimes chronic pain that cannot be attributed to a physical pathology has roots in an emotional/spiritual issue.

      NDs ARE regulated in Canada and in many US states. And regardless of whether a specific state is regulated, NDs are governed by our professional association. Our boards do indeed hold us accountable for the medicine we practice (just like the College of Physicians and Surgeons.) We're required to carry malpractice insurance, etc.

      In order to register/license as an ND, one MUST have graduated from an accredited school and MUST have successfully completed 2 series of extensive written and practical board examinations.

      ***NDs are qualified, primary care physicians.***
      We practice science-based medicine (contrary to some people's misinformation.) And while placebo effect should never be discounted, there's a lot more in our tool boxes than placebo. I'm a science geek from way back. And I'm always happy to share the science, if there's something specific at issue. :)

      Qualified NDs will be registered with their respective associations in Canada and the US... and you can find a qualified ND through these associations. Here are the links:
      http://www.cand.ca/
      http://www.naturopathic.org/

      The association sites also have some great information on Naturopathic Medicine, if you'd like to learn more.

      And there are also links to the accredited colleges/universities which have their course catalogues available for interested parties, should they wish to learn more about our training and qualifications.

      Whatever route you choose, I wish you the very best for your health. Clearly you've met some challenges along the way and I applaud your tenacity in advocating for your own health!! Hope you find a health care provider who gets you some answers and results! Good luck.

  29. QUESTION:
    depression...?
    i have been dealing with depression for about 7 yrs now. and every yr.. month.. day.. hour.. minute i feel it getting worse. i have thoughts of dying and jus think this world would be better without me. i am 21 yrs old and have systemic lupus, rheumatoid arthritis & fibromyalgia. everyday the pain is getting worse. and the pain killers barely do anything anymore. i have no one to talk to which makes it even worse. i dont go out much bcuz the pain is so unbearable most days i can barely even walk. well anyways i guess what my question is what should i do? i need help but dont have money for a psychatirst or medicine. does anyone know how i can get the help i need ??3

    • ANSWER:
      One of the major symptoms of Lupus is depression. It is important to get to the doctor and fast. They should take blood tests and get you on some medication to help such as prednisone, which will help with the inflammation that is causing your pain. They will also check on the status of your organs to see if other medications may be warranted. Additionally they should prescribe an anti-depressant such as zoloft.

      Your depression isn't something that you can control on your own. It is a symptom of your illness. If you don't have the money to seek medical attention, seek out free or low cost clinics run by the county or state. They will provide the help you need until you're able to get back on your feet. You may also qualify for Disability if you are as bad as you sound which will also help with the money issue.

      After getting treatment you need to join a support group. In person would be best but if you can't then online would be another option. Talk with people who are experiencing the same things that you are going through. Sharing your pain and listening to the pain of others is very theraputic . Lastly, when you are having your good days, get out of the house, volunteer at your local Lupus Foundation Chapter. Nothing helps depression more than helping others.

      Lupus is a difficult disease but you have to make a choice every day that you are going to take control of your life and not let Lupus control you.

      My wife was diagnosed with Lupus at at 15 and is now 30. She has severe organ involved Lupus which has attacked her kidneys and last year attacked her heart. She had 8 heart attacks and has a defibulator/pacemaker in her chest.

      On the other side of it she is a practicing dentist, we have two beautiful adopted children and we live life to the fullest each and every day. Sure there are times when she can't get out of bed. It's those times that me and the kids help out or bring her breakfast in bed. Other days we are able to do things that every family does. But life is what you make it. Everyone has something in their life that is painful or difficult. I'm reminded of a quote from a movie "it's not how hard you get hit that matters, it's how hard you get hit and still move forward that shows your true character."

      Cherish every day!

      If you ever need anyone to talk with please don't hesitate to email me.

  30. QUESTION:
    Can anyone diagnose me?
    My name is Terisa and I am in desperate need of help! I am 19 years old and have been very ill for almost a year now. I have seen several doctors (including specialists), had hundreds of tests, and even more medications and treatments to no avail. I am getting pretty desperate because the nature of my illness is one that restricts me to home, limits me to few activities, and most importantly, keeps me in constant pain. I am hoping that somewhere out there is my House. I am looking for a doctor looking for a challenge or someone that has struggled with illness that may have answers! I am willing to take any suggestions so if anyone has any idea of what I could have, please feel free to put in your two cents! And please don't hold back because of how serious a diagnoses you have. I've been told I have all sorts of terrible diseases so I'm not shy about that. The following are my symptoms.

    *Wide spread, chronic, severe pain that is worst in the knees, hips, and back. The pain is made worse by movement, sitting, standing, exercise, walking, bending over, crouching down, and on bad days, laying down. The pain is helped by narcotic pain killers and heat but never goes away completely. A normal day my pain is between a 5 and 7 on the pain scale. With drugs, a 3 to 6 (The pain started March 2nd, 2009. At the time I was diagnosed with a bulging disc but I have since been undiagnosed. However the pain mimics that of a bulging disc if that helps.)

    *Chronic, debilitating fatigue. This is more recent than the pain.

    *Insomnia (I have always slept well before this.)

    *Hair loss

    *Cold Intolerance

    *Clotting disorder (This one is bizarre. I have never had a problem until recently when I started bleeding into a bruise (blood started to pool under the skin at bruise site) and had a nose bleed for 2 hours. Tests show that I have a problem with my clotting time and my Factor 7 is high.)

    *Severe abdominal pain (Severe abdominal spasms that bring me to my knees. I have been diagnosed with IBS but I include this as a symptom just in case.)

    *Joint stiffness and weakness.

    *Numbness, tingling, and weakness in left leg and lower back (this is why they thought I had a bulging disc.)

    *Occasional twitching and shaking

    *Extreme changes in appetite (sometimes I can't eat and sometimes I can't stop.)

    *Nausea

    *Headaches

    *Stomach Ulcer (this might be stress related or some bizarre manifestation or what I have, I don;t know yet.)

    *Changes in menstrual cycle even though I am on birth control and have been for 2 years.

    *Irritability, anxiety, and depression.

    Now here is the really bizarre part. I have been tested for and do not have: Hypothyroidism, Leukemia, Lupus, Rheumatoid Arthritis, A factor 7 disease, pregnancy, or anemia. This is where I stump everyone. I test negative for everything! So this is where I need help. If anyone has an idea of 1) What else I could possible have or 2) how it is possible that I could have the above mentioned things and test negative.

    Well thanks for your time and help. I really appreciate anything anyone can offer me!

    Thanks again.

    • ANSWER:
      I'll just throw some ideas out there

      -Severe abdominal pain, diahrea and hair loss can be from adrenal insufficiency.

      -Irritability, extreme increases in hunger and insomia and body wide pain can be from increase in cortisol levels like in cushings syndrome which doesn't really match but I thought I would mention it.

      -depression and insomia is understandable if you are in pain and can't get a deep night sleep. I'm in chronic pain a sleep study showed I woke up 9 times every hour without knowing it. Hypothyroid also causes insominia but you were checked for that.

      -Discomfort in the stomach when bending over can be from a hiatal hernia.

      Pain in the joints and body, numbness and tingling can be from Oedema (swelling) which may not be obvious. Some girls get Idiopathic Cyclic Edema.

      Low vitamin C can cause fatigue, extreme joint pain and bleeding. Low vitamin D can cause body pain and fatigue.

      Cold intolerance can be from not eating enough calories, cold agglutnin disease, infection, etc. I would also look up Hughes Syndrome which is closely related to Lupus (although it doesn't fit with your nose bleeds). You can also have low iron body stores without being anemic.

      I would look up Reiters Snydrome if you have joint pain and were sexually active. I would get off the birth control to see if the joint pain is a drug reaction.

      I gave you one link for a rare blood cancer that causes bleeding

      I hope I don't send you on a wild goose chase since I have no medical background. It's best to remember back when the first symptoms started and what was it. Don't get side tracked with new symptoms that are a result of medication. I hope you find a answer without having to dig too much.

      -

  31. QUESTION:
    Pleural Effusion help
    In march i was told I have pleural effusion. They ran all kinds of tests and several thorosentesis and it kept coming back. Tests were negative for lupus,rheumatoid arthritis,TB etc. I ended up in the hospital last week where they did VATS surgery for a biopsy and also had a chest tube draining fluid for 3 days. The Surgeon scraped my chest wall so that the lung and chest would act as adhesive and stick together to prevent fluid from coming back. I also had A PET scan. The results of the biopsy were negative and so was the PET scan. I have had a fever for 2 days now and I ended up at the DR's. They sent me for a STAT Chest Xray and blood work. The DR called me tonight saying their is fluid there, but he is unsure if it was left over or new, and that he is concerned it could be infected. Now I need to go for a CT scan once my insurance OK'S it. This is so frustrating for us and I know it has to be for the DR too to not know what is causing this pleural effusion. Anyone have ideas? What may be next? What this could be???

    • ANSWER:
      the 2 most common causes of reaccurent pleural effusion are infection and cancer.

      oh and to the person above me...blood clots (embolism) also show on ct scan. you can also detect with d-dimer blood test

  32. QUESTION:
    Autoimmune Disorder: Anyone know anything about it?
    I've had a blood test that showed that I have autoimmune disorder.
    Is it possible to go through my life without any symptoms such as Lupus or rheumatoid arthritis or do I have something wrong in my body that I'm just not aware of?

    • ANSWER:
      I think what you're referring to is an ANA test. This test is a non specific test that shows the presence of an auto immune disease. It can be positive without an auto immune disease in about 5% of the population. Usually there would be a reason for them to run this test, ie. you were having some symptoms such as joint pain, fatigue, etc.

      You would not be diagnosed with an auto immune disease if you remain asymptomatic. In order to be diagnosed you have to show symptoms. If you never do then you can say that you're one of the 5% of people who test positive for an ANA without actually having an auto immune disease.

  33. QUESTION:
    Achy joints (Serious answers preferably from medical professional please)...?
    Okay, so I'm a medical professional too, but this is not my area of specialty and I'm curious for more information from someone who has personal experience, or from someone who is also a medical professional who knows more about this. Please give sources if you have them.
    Here's the deal:
    I went to the doctor the other day because here lately (for about the last 2-3 mos) I have been EXTREMELY fatigued and just very weak. I also started getting lesions on my scalp and began losing patches of my hair around the hair line. My acne was getting a little worse, irritable off and on, and just overall a feeling that something is wrong. Then, my right thumb started getting really sore around the bottom joint (the joint closest to my palm). I thought maybe I did something to it, so I treated it, but it's not getting better. In fact, it's getting worse. It feels like I need to pop it, but if I pull it or move it a certain way, it hurts really bad. Then, my left middle finger started doing the same thing. It's in the middle joint though. I also sleep on the heating pad every night because my back seriously hurts. Well, what sent me to the doctor out of real concern, is about two weeks ago, I woke up from a nap and came to sit on the couch. I was just sitting there and all of a sudden I started feeling REALLY bad. I got real sick to my stomach, started shaking all over, my limbs felt really heavy, and the thought of moving anything was unbearable. When I finally started feeling a little stronger, I got up to go the bathroom to get a wet rag. When I stood up and began walking, I passed out. I was out for about 2 minutes and woke up very weak. I think maybe my blood sugar dropped, but I am not sure, as I've never been diagnosed hypoglycemic, but the symptoms matched that exactly. I ate some sugary foods, then stabalized myself with some peanut butter and crackers. About an hour later I felt better, but just worn out.
    So, I saw the doctor this last week and she said she felt it was my blood sugar that made me pass out as well, but was not real sure about everything else. She said she's going to test me for rheumatoid arthritis and lupus. She's also going to check my cortisol levels, which I'm assuming is because she thinks my adrenal glands may not be functioning very well.
    I am under a massive amount of stress (no joke), sometimes only get about 3-5 hours of sleep a night, and am required to be active all day. My past medical problems/surgeries are:
    tachycardia
    hypotension
    8 kidney stone removals with stint placement
    gallbladder removed
    appendix removed
    c-section
    anxiety
    ovarian cysts
    endometriosis

    I have no other medical issues that I know of. The medications I'm on are:
    Lexapro
    BCP
    Phentermine (I'm 5'9" tall and weigh 168 lbs currently)

    Is there anyone who knows more about rheumatoid arthritis, lupus, and adrenal disease? Or do you know of anything else that could be going on? I just have a feeling something is wrong inside, but I don't know for sure. I'm having blood work done this week. Just a bit concerned, so any advice, or answers, you may have would be greatly appreciated. Thank you so much!

    • ANSWER:
      I'm sure the reason your doctor is checking your cortisol level is to rule out/diagnose Cushing Syndrome; which fits a lot of your symptoms. Since you already have ovarian cysts, you probably have Polycystic Ovary Disease; your symptoms match there too. Are you around menopausal age? Menopause has a lot of those symptoms too. It is good that you are getting checked for arthritis and lupus too. Another question, how long have you been on the Lexapro? It has a lot of yucky side effects that could be causing some of your symptoms. I've kind of thrown a lot out there but just trying to give you some ideas. I've listed the links to sites about the info I stated above. I hope all this helps. Best of luck!

      Praying you are able to get a diagnosis soon and relief from your symptoms.

  34. QUESTION:
    Is there any suggestions to help with chronic pain?
    Hi, I am 38 years old. i have been suffering from chronic pain for about the last 10 years. It started with a dull ache in my low back and right hip. it has slowly progressed over the last few years to effect my entire body. i have seen many specialists and other doctors. i currently see a pain management specialist who gives me epidurals and meds to make the pain tolerable. i have had many tests including ct scans, MRIs, lab work, etc. I do have a bulging disc in lumbar spine (l5-s1). one doctor even told me that i had fibromyalgia and medicated me with lyrica, flexaril and antidepressants. this was ineffective in the pain control. later the doctor told me i didn't have fibromyalgia but she didn't know what i had. things that i have been tested for that have been ruled out, Rheumatoid arthritis, lupus and various other autoimmune disorders, fibromyalgia, and thyroid issues. the only other health issues that i currently have are hypertension and hypokalemia (caused by diuretic use to treat hypertension). to describe the pain is hard. it is constant most of the time although the intensity does change. most significant areas of pain are low back, hips, knees, the entire right leg, both shoulders and neck. i have decreased flexibility and mobility. the pain does interfere with my daily activities. most of the time it is just a nagging ache but other times i can't hardly function. methods i have tried to aleviate the pain include chiropratic adjustments, physical therapy, massage, exercise (yoga, tiachi, pilates), traction, epidurals, cortisone injections, heat, ice, accupuncture and many, many meds including antidepressants, anticonvulsants, muscle relaxers, anti-inflamatory, analgesics (narcotic and non narcotic). i have sleep issues r/t the pain. i have had a sleep study. i have purchased a new mattress with no significant change in pain or sleep quality. is there anything that i haven't thought of? is there something my doctor is missing? what have other chronic pain sufferers done to cope? it is draining me physically and mentally. my husband is very supportive but it wears on him to. it is not fair for him or my children to have to stop doing things they like to do because my pain interferes with the activities. i am desperate for answers or ideas. i will try anything. thank you for reading.

    • ANSWER:
      Visit the website for the American Chronic Pain Association. They have a 96-page pdf file on Consumer's Guide to Chronic Pain Treatment 2011. You may find some information in it that would help you and your doctors.

  35. QUESTION:
    27 year old female with below waist pains?
    just to start, I did make an appointment to see a dr, just wanted to ask here as well. I am 27 years old and for the last year or so I have been having uncomfortable pains throughout my legs but really localized to my right knee. If I sit even for a few minutes the pain will radiate to the rest of my leg. I may get relief if I extend my leg bc its worse if my leg is bent. It hurts to get up from a sitting position, and going up and down stairs. I do get some pulsating aches in my hands and sometimes feet. I have done some research and it could range from gout, lymes, rheumatoid arthritis, lupus???? my apt with the dr isnt for another 3 weeks. I know i let it go for so long, but now it really bothers me. I am only 27 years old! There is no family history that I know of with these complaints.

    • ANSWER:
      you might have a shin splint, or wore down the tissue on your knee so it is bone to bone.

  36. QUESTION:
    i know i already posted this question but no one answered, i have retinitis and im freaking out?
    understand what it is but it all started when i went to the eye doctor (5-7) for new glasses when he checked my eyes he said i have an inflammation of white blood cells in my eyes and sent me to a specialist in retinas my appointment (5-8) the specialist says hes surprised i don't have pain and that i need to go to another specialist for a second (or third, whatever you want to call it) opinion and to see if i have to have treatment
    he said the treatment is steroid eye drops and that he doesn't want to do that because of side effects like glaucoma

    then he said that to form what i have in my eyes i may have , rheumatoid arthritis , Lupus , or an autoimmune daisies :(

    i asked if i could go blind from it he said its possible without treatment

    he also said he doesn't know how long iv had it

    so could someone help like explain what could happen or will happen or something and im 14 if that helps

    now im desperate any info or stories PLEASE

    • ANSWER:
      see a board certified opthamalogist and or immunologist. steriod eye drops are used for a short period of time, not long enough to cause glaucoma, you might want to post this under optical health section. you should have answers by now, today is the 10th of May. Hope you feel better.

  37. QUESTION:
    I know i already posted this question, i have retinitis and im freaking out?PLEASE HELPPP?
    I understand what it is but it all started when i went to the eye doctor (5-7) for new glasses when he checked my eyes he said i have an inflammation of white blood cells in my eyes and sent me to a specialist in retinas my appointment (5-8) the specialist says hes surprised i don't have pain and that i need to go to another specialist for a second (or third, whatever you want to call it) opinion and to see if i have to have treatment
    he said the treatment is steroid eye drops and that he doesn't want to do that because of side effects like glaucoma

    then he said that to form what i have in my eyes i may have , rheumatoid arthritis , Lupus , or an autoimmune daisies :(

    i asked if i could go blind from it he said its possible without treatment

    he also said he doesn't know how long iv had it

    so could someone help like explain what could happen or will happen or something and im 14 if that helps

    now im desperate any info or stories PLEASE

    • ANSWER:
      Go see an ophthalmologist who is a retinal specialist. See if you can get a referral to a very good one to diagnose and if necessary treat this problem.

  38. QUESTION:
    pains in legs HELP?
    just to start, I did make an appointment to see a dr, just wanted to ask here as well. I am 27 years old and for the last year or so I have been having uncomfortable pains throughout my legs but really localized to my right knee. If I sit even for a few minutes the pain will radiate to the rest of my leg. I may get relief if I extend my leg bc its worse if my leg is bent. It hurts to get up from a sitting position, and going up and down stairs. I do get some pulsating aches in my hands and sometimes feet. I have done some research and it could range from gout, lymes, rheumatoid arthritis, lupus???? my apt with the dr isnt for another 3 weeks. I know i let it go for so long, but now it really bothers me. I am only 27 years old! There is no family history that I know of with these complaints

    • ANSWER:
      It could be fibromyalgia,too. good luck

  39. QUESTION:
    Joint pain, tendonatis, when weather change to cold, anyone experience it?
    I've been suffering for a year with joint pain in a majority my joints, tendinitis, wrists, hands, feet, I have no fever, cough, or any other flu symptoms, just a lot of pain. I had blood work done, for Lupus, Rheumatoid arthritis, and another arthritis, but all came back negative - thank God! However, no explanation of why I'm in such pain. It started with my both knees about a year ago, but with all the pain and taking ibuprofen...I want to know what I have

    • ANSWER:
      If you have tried the glucosamine and chondroitin route with no success, try this old world therapy.

      Once a day, take a 1/4 teaspoon tumeric dissolved, or stirred into in a warm cup of apple juice. This is the only bearable way. Chug it down as fast as you can without trying to taste it. You will burg terrible tumeric burps for about 2 or 4 days, but it really, I MEAN REALLY WORKS.

      My brother is a Dr. and I told him about this. My Mother in law is an old time nurse, with so many of these ideas. They work wonders. And Tumeric is cheap, found in the spice isle of your local supermarket. You use it in canning, and hot dogs!

  40. QUESTION:
    What can you do with this veterinary major?
    I'm interested in first completing my pre-vet then going to graduate school to specialize in marine/aquatic animals. USF has a program like that and its something I really love. I'm just not sure what kind of work you can do with that schooling or what kind of pay you get. I need something that pays well because I take care of my mother who has lupus/rheumatoid arthritis and it will get expensive as she gets older. Thanks for the help! Any suggestions as to what sort if veterinary work would best fit my situation is greatly appreciated!

    • ANSWER:
      I assume since you say you're planning to go to USF that you're not planning to go to vet school. The only vet school in Florida is at UF. If this is the case, then why are you taking the pre-vet classes? Pre-vet is not a major and it doesn't grant you a bachelor's degree. It is simply the list of classes you are required to take to go to vet school. Any other graduate program is going to require a 4 year bachelor's degree.
      If you are looking into marine biology graduate programs then realize that you will not be a veterinarian. This is a research career. You won't be caring for the animals or playing with them but studying them in some way. This is a very very low paid career with very poor job opportunities.
      If you're wanting to be a trainer or directly interact with them in some way then a graduate degree is not required. I'm not really sure of the exact qualifications to get these jobs but they also don't pay way and there is a lot of competition.

  41. QUESTION:
    What if I have Lupus?
    I have posted a few questions lately. I'm just really scared. I'm a real mess. I feel sick, have chronic pain and just ache all over. Ihave been having trouble going to the bathroom now and I just feel so swollen everywhere. I feel like the goodyear blimp! But yet in a lot of pain! I want this to stop! I'm afraid the Doctor's have really screwed up and made things worse for me. A year ago I started having problems with pain, fatigue and headaches but all they wanted to do was prescribe migraine medicine. Now I'm so much worse and went through several course of treatments with nothing working. I am worried that I may have lupus and/or rheumatoid arthritis. Both run in my family. My cervical spine is falling a part and believed to be a cause for my neck and arm pain. I have all the signs of degenerative disc disease. Here's the rest...my hair falls out every day...barely growing any more..I have a rash (it comes and goes) on my cheeks. It kinda looks like wind burn.Uh oh

    • ANSWER:
      I'm sure your aware that your symptoms share more than a passing resemblence to lupus. The rash on the face, often caled butterfly rash is a symptom of lupus; as is the hair loss. Of course other auto-immune disorders can cause such symptoms. Lyme disease shares many similiar symptoms with lupus.

      But since you have a family history of lupus, it seems the logical assumption.

      I think you already know that this is quite likely.

  42. QUESTION:
    Relief for neck/shoulder pain?
    Awhile ago I had a virus with neck/shoulder pain and 3 months later it still hasn't gone away. I went to the doctor and got testing, and everything he tested for came up negative (rheumatoid arthritis, lupus, etc). Anyways it went away for a few weeks with a round of antibiotics and now its back. I notice that my neck pain is worse when I'm sitting down doing nothing. Does anybody have any good remedies to get rid of this pain, and or have any idea what this might be?

    • ANSWER:

  43. QUESTION:
    Are these symptoms of my Sjogren's?
    I am female and 19.

    I have Sjogren's Syndrome. I usually flare in spring and summer(not sure if that is a coincidence or not). When I flare I get Raynaud's phenomenon in my toes and fingers.

    I got meningitis 3 years ago in February. During my time at the hospital I developed raised quarter sized circular pink spots all over my upper body. I had very high fever and excruciating headaches. I was not diagnosed with Sjogren's or any autoimmune at that time. Even though my grandmother has rheumatoid arthritis+lupus and my mother has fibromyalgia.

    After that I continued to have fatigue, mostly at mid-day, around 1,2,3 o'clock. Dry mouth, dry eyes, dry skin, brain fog. I also had a weird appetite issue that made it very difficult to eat, which may have exacerbated my condition.

    I started to get headaches at 7 and 3 o'clock everyday(before and after school, I had a lot of stress in my home at the time). So I would take Excedrin Migraine every morning and at night.

    I began to get nose bleeds every morning at around 9 o'clock.

    I got a fever ranging from 99.1 - 102 every time I got upset or stressed.

    I eventually got fed up with feeling like crap and had a little bit of a breakdown. Unfortunately, despite my visible symptoms, that was what it took for my parents to take me to the doctor.

    I had a positive RH factor (I think that's how you say that). So we went to a Rheumatologist and he diagnosed me with Sjogren's. I was on a low does of plaquenil.

    Now I don't have insurance and therefore no Plaquenil, but I am not living at home anymore, so my stress levels have gone down significantly. However I have been having some weird symptoms lately and I am wondering if they may be related to my Sjogren's.

    My lips and nose will randomly become tingly and red/blotchy. When this happens it is sometimes accompanied with tingling/numbness in my hands and forearms. I also experience twitching in my lips, nose, and eyebrows.

    I also have the red, raised butterfly rash across my nose and cheeks that is sometimes associated with lupus, but I was not diagnosed with lupus when I was diagnosed with Sjogren's because my doctor said I didn't have enough symptoms of it at the time.

    • ANSWER:
      Autoimmune connective tissue diseases are confusing and often there is a huge overlap. My doctor said these conditions never follow the textbook.

      I'm by no means an expert, but I've been dealing with very similar things to you and I'm seeing lots of different doctors. So take my advice with a grain of salt and always ask your doctor.

      Sjogren's, Rheumatoid Arthritis, Lupus and Mixed Connective Tissue Disease are all very similar in many ways. But they do have some characteristics that are specific to the condition, like the dry eyes and mouth in Sjogren's, butterfly rash in Lupus. But in many cases they can be difficult to accurately diagnose. It's also possible and quite common to have more than one.

      Your new symptoms are probably related. The butterfly rash and the rash you had when you had meningitis may very well be enough to have your diagnosis changed to Lupus.

      But if you have no insurance, then it's going to be very difficult for you to get into see a doctor who will help and make an accurate diagnosis. If you can, I'd recommend going to your GP and asking him/her to do a urine and liver functioning test. This will help the doctors know if there's any organ involvement. This will probably cost you out of pocket (I'm not from the USA, so I don't know how that works), but it's definitely going to be worth it.

      Good luck. I really hope you can get the medical treatment you need soon.

      ......

  44. QUESTION:
    elevated ANA, moderate billirubin levels, above normal iron levels, and pain...help!?
    i am a 23 year old mother of 2. couple months ago, i went to get a haircut from my stylist who has been doing it since i was born and she said i might want to make a doctors appointment to have my thyroid checked because i was losing a considerable amount of hair. i didnt think to much of it buti went to my doctors 3 week ago because my knees and ankles have been hurting me REALLY bad and told my doctor i wanted to have a blood test for my thyroid and she said she'd check everything. about a week later, she called me saying i have to make an appointment with a rheumatologist because my ANA levels were elevated and then she asked if anyone in my family has ever had rheumatoid arthritis, lupus or fibromyalgia...great grandpa on my moms side and great grandma and great aunt on my dads side have had at least one of those. im going to school to become a MA and a couple days ago we were doing urinalysis and i checked my own urine and found my billirubin was elevated. yesterday, i donated blood and the phlebotomist said that my iron is 15.5, which is higher than normal for a women. WHAT DOES ALL THIS MEAN?!?!
    omg i totally forgot that my doctor had perscribed inflammation pills...which btw ARENT WORKING AT ALL!! uughh

    • ANSWER:
      don't even consider fibromyalgia right now--there is no inflammtion with fibro and your tests indicate it is somethething otehr tahn fibro
      anti inflammatories take a few weeks to start working

  45. QUESTION:
    My mother has been experiencing chronic pelvic pain for over two years....?
    She's been to numerous doctors, checked for numerous medical conditions (kidneys, gall bladder, Rheumatoid Arthritis, Lupus, Fibromyalgia, Diabetes, Gynecological exams, etc.) and has tested negative in all cases. She has been diagnosed with osteoarthritis and has two crushed discs in her spine. It has been the consensus of her doctors that the spinal problems are not causing the pelvic pain. She also has been diagnosed with a fibroid on her uterus that causing her to menstruate every two weeks. However, she has been told by two separate doctors that the fibroid is too small to be causing the level of pain she is experiencing. One doctor suggested surgery to repair the discs in her spine might relieve the pelvic pain as well as the pain she has in her arms and legs but he could not say for certain. The cortisone injections she received in spine at the base of the neck did help to relieve to arm/leg pain (for three weeks) but the injection to the spine in the lower back provided no relief for the pelvic pain. This gives her little hope that surgery to the lower spine would help.
    I did a little research of my own online out of curiosity. I discovered that chronic pelvic pain without an apparent medical cause can be the result of past sexual abuse. Sometimes chronic pelvic pain is psychosomatic. In 50% of women with chronic pelvic pain a history of childhood sexual abuse can be identified. These women are often referred to many different specialists and, in the process, they may be subjected to expensive tests and exploratory surgery only to be told that 'nothing is wrong' because no underlying pathology (medical cause) was discovered or identified.
    I strongly believe my mother may be one of these women. When my mother was younger she was sexually abused by her father. I'm not certain exactly how old she was or how long the abuse lasted but I know that it did. My father told me about it immediately after they separated and after about a case of beer. Later my aunt accidentally confirmed it.
    The problem is my mom doesn't know I know. But I think she should seek psychological counseling as the abuse it likely related to the chronic pelvic pain. Perhaps if she came to terms with her psychological and emotional pain she would experience relief from the physical pain. I don't know how to approach with the information. I don't want to upset her further but I hate see her suffer with no answers. Does anyone have any advice on how to approach her? I don't want to push her away. She is a very private person. Very emotionally distant.

    • ANSWER:
      She can get a free test for fibromyalgia at:
      http://www.fibromyalgia-information-relief.com/fibromyalgia-test.html

  46. QUESTION:
    Confused about Fibromyalgia & Lupus?
    Ok, here's the whole story. I had Acute Lymphocytic Leukemia when I was 4 until I was 7. I recovered, had two kids yada yada. Ive been suffering from pain in my joints, both my arms going numb all the time, slight hair loss, sharp shooting pains in my head, ringing ears, rash on my face, swollen hands and feet, TMJ, "blood inflammation, light sensitivity and severe migraines more than 3-4 times a week regardless of the circumstance. I went to TWO different docs so far. A Rheumatologist and a regular MD. One said he thinks its Fibromyalgia (and I know what that is because i did a TON of research) and the other says i have "inflammation in my blood" and some other symptoms "not like" that of Fibromyalgia. He said Lupus and/or Rheumatoid Arthritis could be to blame but Im so confused as to how they are going to diagnose me properly without just sending me out with a "general pain disorder" Im 22 years old, this isn't normal. I lead a pretty healthy lifestyle and Im not overweight so "general pain" just doesn't make sense to me. I know you're not docotrs but Im just looking for some advice maybe from people who have one of the two and what they think my outcome will be. I know its kind of difficult to answer but any help would be greatly appretiated. Thanks so much!

    • ANSWER:
      Well, autoimmune diseases can overlap and the symptoms for many are the same. It is tough to diagnose and it is VERY possible you have both. I was diagnosed with Lupus and Sjogrens Syndrome 4 years ago and recently within the last year the doctors "think" it is just Sjogren' s Syndrome. It is hard because Sjogren's mimics Lupus, rheumatoid arthritis, MS, chronic fatigue syndrome, etc.

      I know it is very frustrating when your doctors don't even know for sure. Have you tried a university hospital? I have found that they are on top of everything and seem to be the best of the best because they are teaching future doctors, surgeons, and specialists.

  47. QUESTION:
    Help Mystery Hand Pain Stiffness & Feet Swelling?
    Since early March, 2011, I have had hand, wrist stiffness and pain. My hands were quite swollen as were my feet and ankles. I have been on Prednisone for about 3-4 weeks, which helped the pain and stiffness in my hands; had no real effect on feet swelling. My hands are not so swollen, at the moment. Now that I am off the Prednisone, the stiffness and pain in my hands is back.

    The following tests were negative: Rheumatoid Arthritis, Osteo arthritis, Lupus, sed rate okay, no urinary, liver problems, no carpal tunnel syndrome, others I cannot recall. Apparently, I did have the Parvo virus some time in my life, but because the lab did the wrong test, can't yet tell whether or not I have it now. Rheumatologist is now testing, at my urging, for Lyme, West Nile, current Parvo.

    Any ideas, thoughts suggestions?
    Thanks.
    Since I am off the Prednisone, my abililty to make a fist is also compromised. I could not make a fist at the beginning of my symptoms.

    • ANSWER:

  48. QUESTION:
    Is this rheumatoid arthritis? What's wrong with my hands?
    I have had symptoms in my hands/fingers/wrists for the past six months that have seemed exactly like rheumatoid arthritis symptoms. Reading pages about the symptoms of RA, it's like a checklist of everything I've got - morning stiffness and stiffness after inactivity, joint inflammation on both sides of the body, increased fatigue and insomnia, decreased range of motion/weakness, etc. My knees have recently become sporadically stiff as well, and I've noted stiffness in the joints of my toes in the mornings, which can sometimes make walking more difficult when I first get out of bed. My joints affected by stiffness also lock/snap occasionally, particularly if they've been in one position for a while and are moving to another (standing from sitting, holding a pencil to extending fingers, so on).

    The physicians who have been treating me - a chiropractor and physical therapist - began to suspect I had something systemic (like arthritis) going on when their treatments failed to get rid of these above, prevalent symptoms. Recently I had a series of blood tests done - uric acid, ANA, RA, CRP, and SED rate - to see if it was the suspected RA, but they all came back normal. My tests for lupus also came back negative. (I have not had an anti-CCP antibody test.)

    I was wondering what other tests or examinations could diagnose RA. While I'm not pining for this condition (who is?), it sounds so much like what's happening to me; the pain and stiffness is killer and I want to know what's wrong so that I can treat it. This not knowing and living with daily, constant pain and stiffness is awful. Do you think I should see a rheumatologist, or have an idea of what this could be if it's not RA? Any input is appreciated. Thanks.

    • ANSWER:
      It's still possible it's RA. Blood tests aren't always indicative of what's really going on. It could also be another form of arthritis.

      Do you have any skin rashes? Does anyone in your family have Psorasis? Have you had a recent infection? Have you had x-rays?

      There are more tests that can be done. Anti-CCP would be a good one, but it can be negative in people with RA too. Sed Rate and CRP are an indication of inflammation in the blood, it doesn't always mean that the inflammation is in the joints if it's elevated and if it's not elevated, it doesn't mean that you don't have inflammation in your joints.

      X-rays would be good to do, because they can pick up joint damage, but in early RA it may pick up nothing.

      Some other options would be to aspirate any swollen joints and they do tests on the joint fluid. This can tell them if it's inflammatory, infectious or normal. A bone scan can pick up small changes in the joint and pick up inflammation. It's much more sensitive that x-rays, but it has about 25 time the amount of radiation from an x-ray. MRIs can also be helpful, but my rheumatologist didn't recommend this. If you've got a good rheumatologist they may make the diagnosis based on visual symptoms. But this doesn't happen often.

      Another possibility (especially if you're a male, but it occurs in woman too) is a seronegative arthritis like Psoratic Arthritis, Ankylosing Spondilitis and Reactive Arthritis. The HLA-B27 gene helps with the diagnosis of this. You may also want to talk to your doctor about Lyme Disease. Another possibility is Palendromic Rheumatism.

      So, yes you should see a rheumatologist. They can order far more tests than your GP can and they have a wider knowledge. Not all doctors are made equal and if you don't get on with the first one, find a new one. Go to your appointment with a list of symptoms and history and medications you're on.

      Good luck.

      ....

  49. QUESTION:
    Do I have gout? I'm a woman in mid 30's & not sure. Please someone help?
    For the last 7 or 8 years I have been getting periods where I have intense pain in my feet & ankles. It then moves to my knees, hands, wrists, elbows & hips. It only happens about every 2 years & will last for about 2-3 months. All that time doctors have been telling me it's in my head & I'm depressed. I recently had a dr check me for lupus (neg), rheumatoid arthritis (neg), diabetes (neg) & others (all neg). Then they checked my uric acid & it was 37. I thought normal was 0-20. The dr now says maybe gout. My dad has gout & also my sister. She was diagnosed with gout when she was in her early 30's (I'm 35). I thought gout only lasted for around a week & only affected your big toe. I'm so tired of the pain all the time. It's like walking on broken glass. I am waiting to see a specialist in this area. Does this sound familiar to anyone? Any ideas on what it could be & what I can do to stop the pain (without huge amounts of painkillers!)? I live in remote oz with not many ulternatives.

    • ANSWER:
      I have read that 100% cherry juice (unsweetened) helps dissolve gout crystals. Or else eating 20 or so cherries a day. Be warned though the cherry juice is unsweetened and is extremely tart. You should feel relief in 2 weeks with 8 ounces of juice or 20 cherries a day. Do a Yahoo!! Search of "gout and cherries". I hope this helps you!!

  50. QUESTION:
    Should I get a second opinion, Rheumatoid Arthritis?
    I know this is long, but I really need some help. I really appreciate it!

    I'm 20 years old, and have been diagnosed with Rheumatoid Arthritis. My left shin, left wrist, and left TMJ joint in my jaw had been hurting for a couple of months. I thought that they were easily explainable: Jaw-I have a very bad overbite, Shin-isn't even a joint, but I walk a lot over my college campus and could be shin splints, and wrist-I use the computer a lot, and started heavily playing video games after not playing in a very long time (only a week after that my wrist started hurting) I was gripping the controller pretty hard.

    Well, I went into my doctor, and my Mom convinced me to get a full blood panel done. I came back with a RF factor of 52. So I was referred to my Aunt's Rheumatologist. He said that RA usually attacks all joints at once, and it is odd that it only is attacking three (only those specific ones, not moving around). He ran some more tests to make sure that my RF factor wasn't caused by diseases like Lupus and such, and also the other tests to confirm if you have RA (I think ACPAs). My blood tests came back clean.

    Despite the clean blood tests, he knows my 50yr old Aunt has RA, so he says I probably have it. He said that RA takes time to show up, and wants to stop mine immediately from spreading. So, he put me on Methotrexate. A couple of days after going on the medicine, my jaw and shin started feeling better (which may mean it is working, but if this medicine takes time to build up in your system that may just be a coincidence too). This medicine has some very serious side effects. And, it's starting to get intolerable for me, I feel nauseous all the time.

    Since starting it, I haven't felt any pain (and I'm on what he called a low dose, 50 units on an insulin syringe- I can't swallow pills, so I take it by injection). I thought RA attacked all joints, those joints were painful and stiff in the mornings, and such? I haven't had any of that. My Mom was recently found to have a high RF factor too, but she doesn't have any symptoms. This was both of our first time asking to be tested for a RF factor, so I don't know if we have always had a high one, or if it is new.

    So my question is: Is it possible it was just a coincidence that I had those three joints hurt and a high RF factor? Or does it sound like I might really have Rheumatoid Arthritis? Should I get a second opinion?
    I should mention, I have been on Methotrexate for about two months now, and haven't felt any joint pain or stiffness since those first two days of going on it.

    • ANSWER:
      I would get a second opinion on it because you are young for it. It typically begins between 25-55 years of age. Women are affected three times more often than men are though.


Do I Have Lupus Or Fibromyalgia

This article will discuss some natural techniques for sinus headache relief. The cause of sinus headaches may stem from sinus congestion or inflammation which is called sinusitis. This may come from a respiratory infection such as a cold or flu. It can also be the result of allergies like hay fever. When the sinuses are in proper working order mucus can drain and air can freely circulate. But when the nasal passages are inflamed, there is blockage and the mucus is unable to drain. This now leads to infection. So it may be a cold that starts it, but anything that stops the sinuses draining will lead to sinusitis.

When looking for sinus headache relief it is important to treat the underlying cause of the inflammation. The medical approach may be the use of antibiotics or corticosteroids. But there are a whole range of easy lifestyle factors that you can implement. An easy thing to implement is the use of a humidifier or washing out the nasal passages with a salt water solution. There also exists some great herbal formulas to help with cold and flu, improving your immune system and fighting your infections.
One key to sinus headache relief is finding out what allergy triggers your sinusitis. It may be the mites in the bed or your pillow. Just ignoring the stuffy nose or sneeze is what results in sinus allergies.

A great natural way to help your sinusitis is Vitamin C which is available in every health food that has antioxidants. Foods such as broccoli, strawberries, cauliflower and gooseberry are all excellent source of vitamin C. The citrus fruits like pineapple and oranges are also good sources. You could make some homemade lemonade with lemons or have a large bowl of tomato soup to boost you intake.

Other sinus headache relief cures are increasing the amount of warm soups you have while trying to avoid very cold items. This will help control your sinuses. Regularly sipping warm water throughout the day helps also. One great home remedy is steam. This can be done with an electric steam machine or just over a bowl of hot water. The addition of some eucalyptus oil to the water can also really help.

Another easy remedy for sinus headache relief is using the nutritional supplement Echinacea that is available in capsule form and is good for sinus allergies. Also ginger tea and sleep are good at sinus headache relief. The application of a warm water compress to the sore sinus or headache areas can help to ease the pain.

In the last few years the use of nasal irrigation has grown in popularity. This technique can be done with what is called a neti pot, which is like a tea pot. This yogic method is very effective at cleaning out the sinus cavities. Most commonly salt water or a saline solution is used. A lot of people have found this to be the most helpful sinus headache relief.

Frequently Asked Questions

  1. QUESTION:
    Why so much diagnoses of lupus, fibromyalgia, arthritis, RA,& other similar conditions in developed countries?
    Do not so developed countries have these as often too? I know they have other such as AIDS, malaria, and on and on...
    Is it something to do with our environment or what we eat?
    Which developed countries have these the most and which have these the least?

    • ANSWER:
      This is my opinion, I think that yes there may be environmental reason, but I also believe that in the USA there is a lot of research done on these illnesses. It may be that there are indeed all of these in other less developed country's but not diagnosed or reported. Medical care in sparse in most of those places. Here, at least medical care is pretty much assessable. Plus with all of the severe problems I think the focus is on that.

  2. QUESTION:
    By-Pass, Lap Band and Lupus/Fibromyalgia Patients.....?
    I am 40 yrs old. Female, About 328 lbs (stable weight for several years). I have Lupus and Fibromylagia which cause me a great deal of pain.

    The Fibro and Lupus are becoming a great disability and I know my weight isn't helping the issues at all. I am on about a dozen different meds a day just to function. I've tried to diet and I don't lose anything, not even water weight. I've been thinking for a few years about having the by-pass or lap band surgery but I'm really scared on so many levels.

    Please share your experience and weather you would do it again or not. I'd even love to hear from family members of weight loss surgery patients, especially if they had/have Lupus and/or Fibro.

    • ANSWER:
      I have lupus and fibromyalgia also. Losing weight can only help... not only SLE and FMS but your overall well-being. I also take a lot of medication and it's not fun.
      Good luck to you!

  3. QUESTION:
    I need some Medical Advice! Could I have Lupus, fibromyalgia, or something else?
    Ok i am so tired of being sick. To start off I am 14 year old female and I was diagnosed with Herpes simplex six.I have alot of symptoms so here it goes.I have notice these symptoms occur before or during my menstral cycle and then sometimes they come and go suprisingly. Sometimes I get aches in my wrists, ankles, fingers, hands,knees and legs. My lymph nodes are swollen a lot and sometimes they hurt. Every once in a while I have chest and upper back pain that it hurts to move. Also I am shaky and I don't know why. I am tired a lot and when I come home from school sometimes I go to sleep and don't wake up until 10 or 11 O'clock and I never get my homework done.For some reason my hands and fingers go numb and sometimes my arm tingles. Sometimes my fingertips go numb and stay that way for a little while. Sometimes I get a light pink rash I guess over my cheeks and nose that to the touch it feels like my skin is pealing. The one thing that I never have is a fever which I don't understand. I go to a specialist and he said I will most likely develop lupus so are these symptoms of lupus? Then I also have herpes simplex six so could i be having symptoms due to that? Also today I found out my mom has fibromyalgia and it is heredity so could I have that? I just need some answers I am afraid to ask my doctor cause I am so shy but I will tell him so please don't tell me to ask my doctor or something like that. Thanks :)

    • ANSWER:
      It sounds like you need a good Rheumatologist. Not all are good as each other. You need to go to a teaching hospital (where they train doctors) and get an appointment with the Dean of the Rheumatology department. I have Rheumatoid Arthritis it is in the same family as Lupus, Fibromyalgia, Gout and many others. They are diseases of the autoimmune system. That means that our immune system is working against us. These diseases run in families. They can ruin your life if they are not treated correctly. The teaching hospitals are up on all the latest treatments. I had a doctor who was a real nice guy but a rotten doctor. I suffered for a long time, until he retired and I had to get a different doctor. We should be able to see their report cards from medical school. Trust me , I learned the hard way.

  4. QUESTION:
    Does anyone know what kind specialist you would see for Lupus or Fibromyalgia?
    I am 19 and have been dealing with very hard and odd symtoms for about three years now. I have extreme fatigue, constant entire body pain, headaches that occasionally progress to migraines, sores that do not heal and are there for no apparent reason (I counted the sores on one of my legs yesterday, not including my foot which also has many sores, and counted 38)the sores are also on my arms and back and inside my nose, also large and very horrible looking bruises all over my legs for absolutly no reason I am not clumsy I do not bump into things nor do I drop this on myself or do anything to cause a bruise, they are all over my legs there is hardly one spot on my legs that is not covered in brown purple or yellow bruises. Also if I do happen to have an itch if I scratch it it breaks the skin instantly and I bleed profusly and have another sore that does not heal. I also am dealing with anxiety, restlessness. I cannot sleep at night either because i am in too much pain to fall asleep.

    • ANSWER:
      Try a Neurologist first.He will help with the with the true diagnosis.He may prescribe you some pain medication for the pain.Fibromyalgia is a very very painful and debilitating disease.He may recommend you start with a pain specialist,who will also perform tests such as a MRI or CT scan and some blood work.Either one will probably refer you to a Rheumatologist,where you may get more tests.It seems like a lot of work and doctors,but it is best to find out every thing so you can be properly treated.Fibromyalgia does not get better it becomes more debilitating as you get older.Please you owe it to yourself to get the"royal" treatment and find out all you can about the problems you are having.Also after you have a diagnosis,and you are unable to be employed or have problems with employment b/c of your illness,file for disability or SSI.Again I say Fibromyalgia itself is debilitating,add Lupus to it and you probably are truly suffering.

      JRL-LPN

  5. QUESTION:
    Confused about Fibromyalgia & Lupus?
    Ok, here's the whole story. I had Acute Lymphocytic Leukemia when I was 4 until I was 7. I recovered, had two kids yada yada. Ive been suffering from pain in my joints, both my arms going numb all the time, slight hair loss, sharp shooting pains in my head, ringing ears, rash on my face, swollen hands and feet, TMJ, "blood inflammation, light sensitivity and severe migraines more than 3-4 times a week regardless of the circumstance. I went to TWO different docs so far. A Rheumatologist and a regular MD. One said he thinks its Fibromyalgia (and I know what that is because i did a TON of research) and the other says i have "inflammation in my blood" and some other symptoms "not like" that of Fibromyalgia. He said Lupus and/or Rheumatoid Arthritis could be to blame but Im so confused as to how they are going to diagnose me properly without just sending me out with a "general pain disorder" Im 22 years old, this isn't normal. I lead a pretty healthy lifestyle and Im not overweight so "general pain" just doesn't make sense to me. I know you're not docotrs but Im just looking for some advice maybe from people who have one of the two and what they think my outcome will be. I know its kind of difficult to answer but any help would be greatly appretiated. Thanks so much!

    • ANSWER:
      Well, autoimmune diseases can overlap and the symptoms for many are the same. It is tough to diagnose and it is VERY possible you have both. I was diagnosed with Lupus and Sjogrens Syndrome 4 years ago and recently within the last year the doctors "think" it is just Sjogren' s Syndrome. It is hard because Sjogren's mimics Lupus, rheumatoid arthritis, MS, chronic fatigue syndrome, etc.

      I know it is very frustrating when your doctors don't even know for sure. Have you tried a university hospital? I have found that they are on top of everything and seem to be the best of the best because they are teaching future doctors, surgeons, and specialists.

  6. QUESTION:
    How do I fix my sleep pattern?
    I have Lupus/Fibromyalgia so I am always fatigue. I fall asleep early evening and wake up around 1am...stay awake til 5 or 6am and sleep til noon. Absolutley horrible! Should I take sleep meds?

    • ANSWER:
      don't let yourself fall asleep in the early evening.

      whenever my sleep schedule needs to get back on track i alaways "pull an all nighter" or something close- so that when the next day comes around i'm tired and can go to bed at the right time. Try scheduling something in the early evening- you'll be tired- but go out somewhere- even if its for a drive in the car or sitting in the park or inviting someone over for company- and then after they leave/you're done THEN you can go to bed- and you'll be nice and tired by then.
      Also if it's possible take a nap during the day so you don't go to bed so early?

  7. QUESTION:
    I'm on oxycodone.. I have Lupus and Fibromyalgia.. I'm still in horrid pain...?
    I was diagnosed with Lupus(SLE) this year and Fibromyalgia a few years ago, but believe it all started after a bout of very serious(hospitalized because of spleen and liver) mono when I was 17yrs old. I have been on percocet 10/325 every 4-6 hour max 4 day for the last 4 YEARS.. recently it got switched to 20 mg of oxycontin twice a day with oxycontin IR 5mg also twice a day... problem is it's still not working and I'm sitting here typing with tears running down my cheeks... I put a call into my doctor..no call back yet... It's full body agony.. I can't take this anymore...I don't know how to tell my doc I need more meds or different, or something... I have tried yoga, nerve blocks, operations, therapy, etc... in the past few years... nothing works, I have three children who need me and all I want to do is curl up in a ball and die... I don't know what to do anymore... Can anyone advise?
    I just got a call from the nurse, not the nice one, even though the dr. said to call if it didn't work so he could adjust the dose, she says he said he's not changing anything and to call my rhematologist( who doesn't want to be responsible for pain management) if that's not ok with me...
    Plus I did go to a pain clinic for 3 yrs, after many different treatments, nerve blocks, operations etc..., they tried to get new equipment for their office by saying I needed to have a certain operation( that I found out I didn't need from 2 dr.s) so I stopped going there.. Primary doc( the one I tried calling) tried to get me into 3 separate pain clinics.. all have said they can't do anything for my condition except meds, too advanced in disease too help, so they won't take me. That's why I get meds from primary now... and now no help is coming, who knows if she even talked to him..probably not

    • ANSWER:
      My prayers are with you

  8. QUESTION:
    I'm on oxycontin.. I have Lupus and Fibromyalgia.. I'm still in horrid pain...?
    I was diagnosed with Lupus(SLE) this year and Fibromyalgia a few years ago, but believe it all started after a bout of very serious(hospitalized because of spleen and liver) mono when I was 17yrs old. I have been on percocet 10/325 every 4-6 hour max 4 day for the last 4 YEARS.. recently it got switched to 20 mg of oxycontin twice a day with oxycontin IR 5mg also twice a day... problem is it's still not working and I'm sitting here typing with tears running down my cheeks... I put a call into my doctor..no call back yet... It's full body agony.. I can't take this anymore...I don't know how to tell my doc I need more meds or different, or something... I have tried yoga, nerve blocks, operations, therapy, etc... in the past few years... nothing works, I have three children who need me and all I want to do is curl up in a ball and die... I don't know what to do anymore... Can anyone advise?
    I was on prednisone for 11 yrs.. as a result I have osteopenia( swiss cheese for bones)
    I just got a call from the nurse, not the nice one, even though the dr. said to call if it didn't work so he could adjust the dose, she says he said he's not changing anything and to call my rhematologist( who doesn't want to be responsible for pain management) if that's not ok with me...
    Plus I did go to a pain clinic for 3 yrs, after many different treatments, nerve blocks, operations etc..., they tried to get new equipment for their office by saying I needed to have a certain operation( that I found out I didn't need from 2 dr.s) so I stopped going there.. Primary doc( the one I tried calling) tried to get me into 3 separate pain clinics.. all have said they can't do anything for my condition except meds, too advanced in disease too help, so they won't take me. That's why I get meds from primary now... and now no help is coming, who knows if she even talked to him..probably not

    • ANSWER:
      Here's some all-natural supplements that are very helpful when managing both lupus and fibromyalgia.

      GLA Complex: nature's steroid; insulates the fibrous sheath of the nerve bundles - very important for lupus

      Vita-C: strengthens the integrity of connective tissue; antioxidant; anti-inflammatory

      NutriFeron: strengthens the immune system

      OsteoMatrix: muscle relaxant

      Zinc Complex: protects skin & organs; promotes healing

      Hope this is useful and feel free to contact me with questions.

  9. QUESTION:
    i have lupus and fibromyalgia and im diabetic,what im concerned about is this skin rash that?
    on my legs above my ankles and below my calfs and on my arms above my wrists and below my elbows.i do not use any body soaps with smells and i do not use any clothing soaps or softners with any smells or dies and i dont understand what the prob is,i stay out of the sun and i dont eat bad foods im at my witts on what this is, and as far as my house being unclean thats not a case i do not use harsh cleaing chemicals but i have noticed when i am asleep those places ive mentioned on my body sweat and then itch,so this is off,any way i need some feedback and my house does any have any fleas or bugs im very up on that

    • ANSWER:
      You might want to look into using glutathione for help with your fibromyalgia. WebMD, PubMed and Health-Net.org all suggest the use of it.

      MaxGXL has been clinically proven to raise glutathione levels. My wife's best friend who has fibromyalgia has been using it for the past two weeks and has been pain free.

      Check it out at http://www.maximumglutathione.com

      Best Regards,
      Rex White
      rexwhiteppl@gmail.com
      503-463-7336

  10. QUESTION:
    symptoms for months with no diagnosis. any ideas at all?
    for the past nine months i have had:
    - severe bouts of join pain, and possible deterioration of my joints.
    - fatigue
    - red rashes on my face an neck area
    - kidney infections and proteinuria.

    i have been tested for and do not have:
    - RA
    - lupus
    - fibromyalgia
    - lymes disease

    i'm constantly going to doctors and they can't figure out what is going on.
    any suggestions at all on testing ideas or possible diagnosis would be greatly appreciated!!

    • ANSWER:
      When you have them check you thyroid also have them check you parathyroid. You would be surprised!!

      nfd♥

  11. QUESTION:
    How do I find organizations near me to volunteer for or start one myself?
    I'm a 15 year old girl and I have lupus, fibromyalgia, chronic fatigue, connective tissue disorder, and thyroid disease. I really want to find some kind of organization for teens with any one of those diseases to get involved with. I have found a select few but they are all really far away from me. I'm in California and the organizations I found are all on the East Coast. How can I find organizations that are for teens with autoimmune diseases near me? If there aren't any is it possible for me to start one? How would I do so? Thanks!

    • ANSWER:
      At 15 you are too young to start an organization (you can't sign contracts until you are 18, so you would need an adult on board, and there's a ton of paperwork and legal documentation and accounting required.) Besides you would benefit greatly from volunteering at such an organization first to learn about how such organizations work, are run and get funding before you take that jump.

      The American Autoimmune Related Diseases Association has a page full of links for related organizations. It's a pretty big list and a good place to start. Keep in mind that if an organization is headquartered someplace, they often have local chapters so be sure to look for local resources when you research these groups

      http://www.aarda.org/links.php

  12. QUESTION:
    could this be pregnancy or just hormones out of wack?
    I had my last period the 23rd of oct, and had ovulation pain exactly 2 weeks later. I am 10 days late I took a test 3 days ago and it was BFN. I dono what to do my nipples have been sore for about a week. I am on a lot of medication because I have Lupus, Fibromyalgia and only one kidney. I need to know asap what is going on because if I am pregnant I need to change meds asap. I did notice that after I ovulated my sex drive went threw the roof and iv had a lot of discharge that just stopped a few days ago...It was bad I thought I was peeing my pants..I had to wear a pantyliner. I also have been peeing alot more but not really ingesting that much more fluids then normal. has anyone else went threw this or something like it??
    My husband is going to deploy in a May, so I kinda want pregnancy to be out of the question till closer to that date so he wont miss the birth...

    • ANSWER:
      See your regular doctor right away for a blood test. This is really important, because you may need to change your meds RIGHT NOW. Call first thing in the morning, if the offices are closed now where you are. Given your medical background, they should be willing to work you in.

      Good luck!

  13. QUESTION:
    For a real life situation (street fight) which martial art better equips you to win....tsun jo wing chun or...?
    For a real life situation (street fight) which martial art better equips you to win....tsun jo wing chun kung fu or...Jeet Kune Do?

    I like Jeet Kune Do due to the fact that bruce lee is my biggest hero. However i also happen to be VERY interested in tsun jo wing chun kung fu due to the fact that it is one of the only martial arts ive seen that is a street-practical martial art.

    Im 16, 5'11, 208 lbs and im looking for a martial art that will help me to 1) be able to defend myself against 1, 2, or even 3 attackers in a REAL life situation due to the times we're living in.... 2) get in shape..... 3) hone into my chi or whatever word you guys use (ive trained for a couple months in taekwondo but budget ran low and now that im able to rejoin taekwondo just didnt satisfy the desires i have....i am interested in being able to fend off an attacker with a weapon, empty hand self defence, grappling/wrestling, striking, kicking, being able to use objects around me to help me...

    now please dont get me wrong im not gonna go looking for fights i just wanna be able to protect myself if a fight comes to me.....My mom has lupus fibromyalgia rhumatoid arthritis spinal meleopathy and chronic fatigue so she is pretty infirm and the 24 min drive to your school would be quite hard for her until i get a permit

    So i guess what im asking is.... based on my goals above.... which martial art will better equip me with what im asking for?

    Also here are the two sites of the schools im interested in...which one looks better? http://www.newkungfu.com/GMAS_TsunJo.html
    http://www.nwkali.com/classes.htm

    • ANSWER:
      hello,

      this is an interesting question. unfortunately, there isn't really an answer to this. the main reason is that jkd is not really a system, so much as it is a concept that you could (should) apply to any system.

      tsun jo wing chun is the brainchild of john beale. his main academy is in a place called "greenlake" in seattle. he was at one point a student of james demille (spelling?). both know wing chun, so as to your question, we shall examine which wing chun "flavor" is better for street applications.

      neither instructor teaches the three forms/katas as part of the curriculum, though both know them if you want to learn for academic or fulfillment reasons.

      the main differences are of stance and forward pressure (during chi sao) and punching style.

      tsun jo takes a more forward/aggressive stance. the punching rolls off of the centerline directly, as if your hands are touching opposite sides of a glass sheet. as your punches fly out and return, they maintain that centerline orientation. this causes the punches to be INCREDIBLY fast and continuous.

      jeet kune do styled wing chun punches tend to AIM AT the centerline, but reorient themselves to the outside like a boxing position. that is, instead of punching along ones own centerline, one punches AT the opponents centerline. this increases power, but limits speed.

      the difference in chi sao is also significant. due to differences in hand positioning during punching, entry into chi sao is different for both. this is a matter of timing, and has little to do with the overall effectiveness. the application of pressure is were the major difference lies.

      under ordinary circumstances, chi sao is a sensitivity exercise in which one is attempting to "be sensitive" to the opponents intent and match opposing force with appropriate counter force. jeet kune do wing chun and "normal" wing chun tend to do this by standing with weight loaded back and rely on the pressure generated with the arms.

      tsun jo wing chun loads the bodyweight forward and uses significantly more pressure in the arms during chi sao.

      why?

      imagine this exercise:

      your opponent holds a hand up in front of you palm toward you. you in turn hold up your own hand and turn palm toward the opponent.

      your goal is to keep your hand in very light contact with the opposing hand as your opponent moves theirs.

      so, when your opponent moves their hand about rapidly and randomly, it would be very difficult for you to keep that contact.

      now, imagine this exercise:

      same as before, except that this time you load your weight forward and keep somewhat tight pressure between your hand and the opposing hand.

      this time, when your opponent moves their hand about, they find it difficult to break contact. they sort of "take your hand along for the ride". it is easier to maintain contact, and to counter pressure.

      sure, it sounds a little counter intuitive when you are reading about it, but in practice, it is an exceedingly efficient method of practicing chi sao, and therefore, of fighting at close range.

      one of the HUGE advantages of tsun jo wing chun is that sparring is far more productive than ordinary wing chun. adapting to weapon use and other real world applications is a bit easier than with ordinary wing chun or even jkd style wing chun.

      so, to your original question: which equips you to win? well, jkd does, mostly because it is a collection of methods to which jkd is applied. but if we look solely at the "wing chun" aspect (trapping or crashing range) then tsun jo is the better tool.

      greenlake martial arts (john beale's school) is a good one. he is a capable grappler (offers classes) and he knows stick/knife work (he has known/trained with kelly worden in tacoma for years). he has a good solid curriculum and good students. he is also a funny guy. he tells funny stories, but they always have to do with the lesson at hand. good stuff.

      don't know chris clarke, but, if you live in seattle, and you decide jkd is right for you, then there are a couple choices closer by.

      one is james demille. his school is on aurora (can't remember the address, but sifu beale would happily give it to you).

      another is mkg is at about 105th & 5th in greenwood (can't remember the address). andy wilson is a good instructor and will take care of you. the curriculum includes muaythai, jiujitsu, kali, boxing, trapping (not the full wing chun).

      so, hopefully this helps you. tsun jo wing chun is legit, it is a refinement on existing wing chun and is compatible with older wing chun methods. it is a somewhat aggressive style. you COMMIT to an action, with blinding speed and END things. the students however, are not particularly aggressive, so you should like them. mkg is jkd from rick faye. there is a lot of weapon orientation, but the principles of course apply to unarmed practice as well.

      both methods, tsun jo and jkd should get you where you want to be!

      good luck

      thanks

  14. QUESTION:
    How do I stop two adults from creating a baby?
    I really don't know where to go so, I thought I would give it whirl here..My sibling is 43 yrs old however; “Patty” is a transsexual; born a male trying to change to a female that is turning back to a male. (past history-reports of sexually abusing two children during his/her teenage life) She/He is bipolar, very dangerous bad temper and has the mind set of a 15 year old. “Patty” stopped taking all of her/his medication all at once on the same day...seriously dangerous for all parties involved. “Patty” is always starting fights at work and in personal life. She/he seeks vengeance's in dark dangerous ways.

    “Patty” has a job however; that's on shaky ground due to all the problems and fights she/he had created. She/He continues to create problems at work and personal life. Patty relies on our parents for money due to "Lucy" spending it all on alcohol etc. Bums rides to and from the appointed destination. She also dumps all her stress and worry she has caused onto our parents.

    “Patty" does NOT care that our father has had several strokes & T.I.A’s. He has been warned by a cardiologist that if he has one more stroke it could kill him this time. Our Mother is sick with cardiological problems. She has had open heart surgery and zapped with the heart paddles to start her heart two different occasions recently. She also suffers with mental illnesses.

    I’m also not well. I’ve had 19 operations in my abdominal region with many diseases including precancerous tumours, Lupus, Fibromyalgia.....blah blah blah I count my blessings everyday when I have a day where I can get out of bed. I’ve had to be put on life support after my last three operations. I’m not on life support now. My husband is healthy minus the hair loss due too all this stress...lol

    The sexual partner “Lucy" is 29 yrs old. She was born a female and remains to be female however; she has the maturity level of a 10 yr old. She works and spends every pay cheque on junk, alcohol and cigarettes. She does NOT pay her part of the rent, food or bills. She goes out partying every night and sleeps around with pretty much anybody. She stopped taking her Bipolar medication and other medication all at once on the same day. She’s 5 weeks pregnant with my sister/brother’s baby. Neither of them are under the care of a doctor and “Lucy” does NOT take vitamin supplements or folic acid. She is not taking prenatal classes or anything for that matter and does NOT eat anything healthy.

    She goes through phases like getting a cat and when she’s bored with it she ignores it, does NOT feed or take care of it. She also has had a kikachu once again, she got bored of it, ignored it and did not take care of it. She wanted to get a ferret however; thankfully that didn’t pan out in her favor. Now, it’s the baby phase. She’s made arrangements to have her mother to take care of the baby when she loses interest in the baby. The mother is mentally ill, has had her autistic son taken away because she beat the crap out of the child to him shut-up.

    I can tell you more however; I really don’t think it’s necessary because you all can see how badly it’s turning out for everyone especially the 5 week old fetus.

    Plus, their apartment is infested with fleas and smell to the heavens like cat urine.
    We are all born and raised Canadian and still live in Canada.

    Can anybody help me because if I can’t do anything then a child will be born into this world....I much rather not say :0( You get the point...right?
    I send big HUGS out to everybody that has offered suggestions.....Thank you very much!

    • ANSWER:
      At the very least, call Children's Aid to talk to them. If nothing else, they can point you in the right direction.

  15. QUESTION:
    Pleas help me?!?! Docs are too lazy to look into it.?
    Since I was a child I started to have widespread musculoskeletal pain. It started in my knees and in my wrists. Now I am 27 and the have consistent but intermittent pain all over my body. This includes sharp pains in my knee caps-especially when I drive, fiery feeling in my wrists-especially when I use my hands, and in the last year soreness in my spinal area from my neck all the way down to my butt. The soreness often goes up my arms and down my legs. The soreness is more intense in my butt/lower back though and the worst of my pain is in my knees/wrists. Like I said, the pains are not knew and they are progressing. I do have IBS, but no tender/trigger points and I am not depressed. I tried physical therapy but it only intensified the pain. I tried occupational therapy and no improvement. I also do not suffer migraines as most fibro patients do. My docs ruled out any type of arthritis, lupus, fibromyalgia, carpal tunnel, and tendinitis. I've never had any MRI/CT scans done, and the docs think I'm making this up. Even though I keep trying to tell them the pain has been around for several years, they ignore it and say that it is all in my head and that I need counseling. This is so frustrating and agonizing, because they are supposed to be helping but are completely ignoring my condition. I never ask for pain medication because it never works anyway, so I'm not sure what reasons would influence me to make up the pain for over 10 years. One last thing, lately I notice that sometimes I will be in a store or standing somewhere and briefly blank out, not knowing where I am. But I will quickly regain my composure and everything will be fine. My sister-in-law is an RN and says I seriously need to see a neurologist and she doesn't understand why they aren't doing any tests. She's known me since I was 14 and knows I am not making the pain up, so it is frustrating her also. What could be wrong with me and what should I do? No only will help ??? I'm at a dead end. They keep sending my in circles doing the same treatments that never even helped before, but they continue to ignore it. I even took lyrica and prozac against my better judgment and it didn't help after month, but they are annoyed that I am looking for more answers beyond a pill or qick fix. Please help me or send me in a direction where I can find help. I have a 1 year-old to take care of and this pain is ruining my life. I asked the doc to renew my disabled placard and he refused, but it ended up resulting in me falling down a steep flight of stairs due to the intense pain. He could care less and told me to deal with it. Is this how docs usually tread chronic pain sufferers?
    I should also mention that I do have problems concentrating/comprehending/confusing things, but am also told often that I am quite articulate. Sometimes I have dyslexia type symptoms.
    Umm . . . I'm sorry lady. What are you talking about? I'm using my health to escape my situation as a single mother and from taking care of my son alone??? WTF are you talking about? I never said I'm alone and I never said I'm a single mother. See everyone, this is how unfair and inaccurate diagnosis' are made. She is the perfect example. She made a rash judgment about me being a damsel in distress single mom and I never said that even in the least bit. I appreciate your advice lady, but please don't judge me without having the facts. I'm not avoiding my son in any way, I absolutely love being about him and the rest of my family who are always there for me. They are just as frustrated as I am!

    • ANSWER:
      I agree with your friend the RN. Discovery Health Channel and Mystery Diagnosis. Your doc may have missed that class. Go to a medical center such as a teaching hospital. It's not all in your head. If you have ever watched mystery diagnosis, that's the classic diagnosis for "I don't know and you are bothering me.

  16. QUESTION:
    here are two different martial art schools im interested in... based on my goals which ones better for me?
    BOTH SCHOOLS HAVE GREAT TEACHERS THAT DESCENDED FROM BRUCE LEE
    1) http://www.newkungfu.com/GMAS_TsunJo.html
    2) http://www.nwkali.com/classes.htm

    For a real life situation (street fight) which martial art better equips you to win....tsun jo wing chun kung fu or...Jeet Kune Do?

    I like Jeet Kune Do due to the fact that bruce lee is my biggest hero. However i also happen to be VERY interested in tsun jo wing chun kung fu due to the fact that it is one of the only martial arts ive seen that is a street-practical martial art.

    Im 16, 5'11, 208 lbs and im looking for a martial art that will help me to 1) be able to defend myself against 1, 2, or even 3 attackers in a REAL life situation due to the times we're living in.... 2) get in shape..... 3) hone into my chi or whatever word you guys use (ive trained for a couple months in taekwondo but budget ran low and now that im able to rejoin taekwondo just didnt satisfy the desires i have....i am interested in being able to fend off an attacker with a weapon, empty hand self defence, grappling/wrestling, striking, kicking, being able to use objects around me to help me...

    now please dont get me wrong im not gonna go looking for fights i just wanna be able to protect myself if a fight comes to me.....My mom has lupus fibromyalgia rhumatoid arthritis spinal meleopathy and chronic fatigue so she is pretty infirm and the 24 min drive to your school would be quite hard for her until i get a permit

    So i guess what im asking is.... based on my goals above.... which martial art will better equip me with what im asking for?

    • ANSWER:
      hello,

      ryan, since this was already answered for you, won't bore you with details. just wanted to point out something for one of the respondents.

      true, neither trained with bruce lee.

      john beale trained with james demille. james demille trained with bruce lee.

      andy wilson trained with rick faye. rick faye trained with dan inosanto (arguably a different approach from bruce lee).

      just thought it might be of interest.

      thanks

  17. QUESTION:
    My mother has been experiencing chronic pelvic pain for over two years....?
    She's been to numerous doctors, checked for numerous medical conditions (kidneys, gall bladder, Rheumatoid Arthritis, Lupus, Fibromyalgia, Diabetes, Gynecological exams, etc.) and has tested negative in all cases. She has been diagnosed with osteoarthritis and has two crushed discs in her spine. It has been the consensus of her doctors that the spinal problems are not causing the pelvic pain. She also has been diagnosed with a fibroid on her uterus that causing her to menstruate every two weeks. However, she has been told by two separate doctors that the fibroid is too small to be causing the level of pain she is experiencing. One doctor suggested surgery to repair the discs in her spine might relieve the pelvic pain as well as the pain she has in her arms and legs but he could not say for certain. The cortisone injections she received in spine at the base of the neck did help to relieve to arm/leg pain (for three weeks) but the injection to the spine in the lower back provided no relief for the pelvic pain. This gives her little hope that surgery to the lower spine would help.
    I did a little research of my own online out of curiosity. I discovered that chronic pelvic pain without an apparent medical cause can be the result of past sexual abuse. Sometimes chronic pelvic pain is psychosomatic. In 50% of women with chronic pelvic pain a history of childhood sexual abuse can be identified. These women are often referred to many different specialists and, in the process, they may be subjected to expensive tests and exploratory surgery only to be told that 'nothing is wrong' because no underlying pathology (medical cause) was discovered or identified.
    I strongly believe my mother may be one of these women. When my mother was younger she was sexually abused by her father. I'm not certain exactly how old she was or how long the abuse lasted but I know that it did. My father told me about it immediately after they separated and after about a case of beer. Later my aunt accidentally confirmed it.
    The problem is my mom doesn't know I know. But I think she should seek psychological counseling as the abuse it likely related to the chronic pelvic pain. Perhaps if she came to terms with her psychological and emotional pain she would experience relief from the physical pain. I don't know how to approach with the information. I don't want to upset her further but I hate see her suffer with no answers. Does anyone have any advice on how to approach her? I don't want to push her away. She is a very private person. Very emotionally distant.

    • ANSWER:
      She can get a free test for fibromyalgia at:
      http://www.fibromyalgia-information-relief.com/fibromyalgia-test.html

  18. QUESTION:
    Fibromyalgia or Lupus?
    Okay, I keep reading everywhere that Fibromyalgia does not react to Prednisone. I also know that you can have an autoimmune disease on TOP of Fibromyalgia. I have all of the symptoms of FM and all of Lupus... It's possible for me to have both, correct?
    But I also take Prednisone and feel 50X's better on it! But my Rheumotologist is convinced it's just Fibro because of what my 2 year old tests say about Lupus. I am looking for an Internist, but I don't know what to expect and if they will do the tests needed....

    I think basically, i am trying to ask: Will prednisone help me if I JUST have Fibromyalgia? and How can I find out if i have Lupus AND/OR Fibro?
    I know I should consult my Dr, but when you are flat out broke and living with your parents, it's a little difficult to be able to go to Dr appointments. They expect to be paid on the spot. Besides, I've been to at least 12 that I can count, and they all have no freakin clue what it is. I keep getting test after tests and they have no answers.
    Also, I would not be happy if it was Lupus, but I would be happy if we could just figure out SOMETHING

    • ANSWER:
      real fms will not respond to prednisone

      many autoimmune conditions will respond some a little-some 50% --some almost completely

      who gave you the prednisone? the rheumy? he obviously has no clue if he's saying fms

      tests can be false negative--this is a big issue with lymes

      i'm assuming you have gotten a lupus rash?

      you may not have fms at all if you are responding to the pred...you really need to find out what you have that is responding...

      AND then reassess to see if you really have fms

      fms is highly over diagnosed by these clueless docs that call it a general label for pain..

      you cannot be properly diagnosed with fms until any other conditions are addressed--this doesn't seem to have been done

      it is possible to have both--but i am leaning more towards something like lupus as possibly the only condition

  19. QUESTION:
    Note to all patients with fibromyalgia or lupus...............?
    To all of you out there with fibro or lupus, do not get the seasonal flu vaccine or the H1N1 vaccine. Both fibromyalgia and lupus are auto-immune diseases cause the release of too many antibodies that attack your muscles causing a wide-spread pain condition. Getting the vaccines will cause your body to release more antibodies than your system can handle and make your condition extremely severe for a week or more. Trust me, I learned my lesson the hard way and am currently suffering from it. I was told not to get them by an E.R. Dr. I know that has lupus and was given the vaccines because of work, but out of fear for my children I got them anyway. Please don't do it!

    • ANSWER:
      REAL FIBRO IS NOT BELEIVED TO BEAUTOIMMUNE--check your research--

      it is a disroder of the nueor system

      autoimmune means the body atatks itself

      in FMS--teh body is not attacking itslef---there is immune dysfunction menaing it over or under reacts to foreign organisms

      i have had teh seasonal flue shot (with fms) and never had a problem..

      on the other hand--if i do get the flu--it can make my condition permanangtly worse-as whenever i get a serious injury or illness my condityion tends to permanantktly deteriorate

      Most docs are not competant to deal with fms--especially and ER DOC

      you PLEASE DON"T DO It--don't give out false info

  20. QUESTION:
    Medications for Lupus Erythematosus and Fibromyalgia?
    I have a neice who has Fibromyalgia and Lupus and has been living with it for quite sometime. The medications she takes is Medrol, Imuran, Plaquenil, Boniva and Tylenol #4 (For Pain). She fights with depression and often states that she is in pain ALL THE TIME. While, I do not doubt what she says because she has the physical symptoms. Twisted fingers (such as in Rheumatoid Arthritis), constant swelling, etc. However, here lately, her specialist has prescribed her "muscle relaxers" such as Soma, Neurontin and even Xanax, all of which, she states she has taken 1 or 2 times. When I ask her why doesn't she take them, she states that she doesn't like to feel "down"! She states that when taking them she feels drowsy and she feels like she is in another world. And, the next day upon awakening, she doesn't feel like herself. My question to the yahoo community is, does anyone know of any other medication or any other way to treat this horrible, horrible disease. More recently, she has been talking about not taking her medication at all, NONE OF IT! She states that she is tired of taking all medication and she can't remember her life without pain! She takes the tylenol #4 3x's per day (physician ordered) and that does seem to help her somewhat. However, she is seeking a physician in the Michigan area she says that will really, really treat her and not just want to throw more pills @ her. As stated, does anyone in the yahoo community have anymore answers? Maybe there are herbal remedies? Maybe there is another medication that can be suggested? My more urgent concern is that she seems to be sinking deeper and deeper into depression. And from a few of my friends here in the area, I am told that some people with chronic illnesses tend to fight with depression? It never hurts to ask and would greatly appreciate any answers!!!

    • ANSWER:
      I am so sorry about this double diagnosis your niece has. I can only imagine her pain, since I only have one of these and that's bad enough.

      t seems that everyone I know with Lupus take Prednisone and something for pain. I think the Medrol is her prednisone, but I can check that out. While I can't speak from my experience about Lupus, I can speak from experience about Fibromyalgia.

      I have been diagnosed with it since 1993, rediagnosed by various specialists and then new doctors when I moved. The most effective meds are a combination of Lyrica for pain and Cymbalta for depression and pain. Lyrica is recommended for the widespread muscle pain in Fibro. It is not a pain pill, per se, and it has to be in your system for about a week before it starts to work, but then it does. It totally eliminated my pain for years. The Cymbalta as an antidepressant also works on the pain in Fibromyalgia, again not a pain med, an upper or downer, but after 2 weeks in the body, it really works. The combination is a good 1-2 punch for Fibromyalgia, pain, depression and a host of other Fibro symptoms.

      Originally I was prescribed pain medication, soma and xanax to deal with the symptoms. Doctors who don't know what else to do just try to treat the symptoms. Xanax is for anxiety and it's also used as a sleep aid, soma is a smooth muscle relaxer and neurontin works on the nerves to relieve pain. It's the only one of the three that isn't addictive, and it could help her similarly to Lyrica if she took it for a while. There are no generics for either Cymbalta or Lyrica, so while I am pleased with the results, my insurance company is not. Out of pocket, they would be 0/mo.

      I hope your niece finds her answer in a new doctor soon. She should ask to be reevaluated, as many people are improperly diagnosed with Fibro. At least a second opinion would be good.

  21. QUESTION:
    Where does FibroMyalgia stop & Lupus Start? Is this condition 'manageable'? Will I be able to return to work?
    After spending heaps of time, effort and money on specialists, I have been diagnosed with Fibro Myalgia, Raynauds Phenomenon together with a "side serving of SLE".
    I find this diagnosis .. vague to say the least.
    I am taking Plaquinil, and pain killers.
    I have been unable to work for 3 months due to hot flushes, varying degrees of pain, chronic tiredness, crazy skin rashes etc ect.
    I have not had a period for 5 years (which is not such a bad thing! )
    yet, all the blood tests and ultrasounds reveal that I am not menopausal.
    Some mornings I can barely walk - my feet feel like they have been burnt, and they ache (like an elephant has stepped on them)
    When I move my shoulders they sound like rice bubbles - Snap, Crackle & Pop! They hurt like all fury as well.
    If my shoulders are not hurting then it's my lower back, if it's not my lower back, then it's under my rib cage .... yarda yarda yarda!
    I have the memory span of a goldfish - which the teenage kids think is wonderful (they get away with lots)
    I regularly sleep 16 hours out of 24.
    I do not have a butterfly shaped rash on my face, it is on my neck. If I spend any time in the sun - regardless of hat, shirt or sunscreen - I come up in itchy, burning welts.
    Since I was 12 years old ... After showering, swimming, perspiring, or sudden temperature change - I break out in an itchy hive type rash (great look for a teenage girl) for which I take antihistamines.

    • ANSWER:
      I have been involved with a wonderful company called 4Life Research. 4Life delivers a new category of immune Support Products that can boost our immune intelligence, helping to take health to a new level. "Transfer Factors" are not vitamins,minerals, herbs, or fruits. they are molecules made by the immune system for the immune system to the cells. They give the immune system the ability to recognize any health problem in our body. TF's speed up the immune system's response to fight against the viral and bacterial infections and diseases that threaten our health.I have met others with the same diagnosis and these products have enabled them to live "normal" lives.I have seen first hand the positive effect in the body as my little girl was constantly ill due to deficiencies in her immune system that started with seasonal allergies. 4 surgeries, severe infections, strong meds w/traumatic side effects and isolation from others, finally started our quest for better health.Needless to say, its been almost 3years without medications, symptoms or even visits to the Pedi.(other than routine visits) She has been "cleared" of ANY medical issues! She's a very healthy 9 year old. I strongly recommend you visit: www.lindaluna.my4life.com It is well worth the time and effort to explore a natural option without side effects. Please feel free to contact me with any questions. :-)

  22. QUESTION:
    What are the differences between Lupus, MS, and Fibromyalgia?
    I've been seeing the doctor lately to try to get a diagnosis finally for problems I've been having for over five years...everything from muscle tensing and spasming to shooting pain and sensitive skin.

    I had a blood test today that will determine if it might be Lupus, and I have an MRI coming up soon that will determine if it might be MS. The doctor says that fibromyalgia is a 'rule-it-out' diagnosis, that if nothing else fits, it's fibro.

    What are the differences between these three disorders in symptoms, effects on daily life (I already know that whatever I have it effects me a LOT, making it difficult for me to do anything on some days but take some Vicodin and lay in bed), and treatment plans...also, what are the long-term prognosises for these disorders? Do any of them have a cure, or a management plan that relieves all symptoms?

    I am happy that I am finally getting all the testing done to get a diagnosis finally so we can begin treating the problems, but I am concerned...I have heard a lot about fibro (my sister-in-law has fibro, and my father had fibro), and a little about MS...neither seems good at all, and I don't think either have a cure or total management of symptoms? I don't know anything about Lupus, however.

    • ANSWER:
      Hi - the three conditions are quite different in their underlying disease processes, but do produce some overlapping symptoms.

      Multiple Sclerosis (MS) is an auto-immune disease of the central nervous system (CNS). In Multiple Sclerosis, inflammation of nervous tissue causes the loss of myelin, a fatty material which acts as a sort of protective insulation for the nerve fibers in the brain and spinal cord. There are 5 basic types of MS and some of the more common symptoms include: fatigue, heat sensitivity, pain, spasticity (muscle cramps and spasms), cognitive problems, depression, balance and coordination problems and bowel & bladder symptoms. Symptoms will vary depending on the course of the illness, and according to the type of MS the individual has.

      Like MS, Lupus is also considered to be an autoimmune disease. For reasons that are not yet clear, in autoimmune diseases the immune system loses its ability to tell the difference between foreign substances (antigens) and its own cells and tissues. The immune system then makes antibodies directed against the "self." These antibodies, called "auto-antibodies," react with the "self" antigens to form immune complexes. The immune complexes build up in the tissues and can cause inflammation, injury to tissues, and pain. In contrast to some other autoimmune diseases, lupus can affect many parts of the body, including the joints, skin, kidneys, heart, lungs, blood vessels, and brain. Although people with the disease may have many different symptoms, some of the most common ones include extreme fatigue, painful or swollen joints (arthritis), unexplained fever, skin rashes, and kidney problems. For some people, lupus is a mild disease affecting only a few organs. For others, it may cause serious and even life-threatening problems.

      Fibromyalgia Syndrome (FMS; FM) is a common and chronic disorder characterized by widespread muscle pain, fatigue, and multiple tender points. Current thinking is that FMS probably begins with a genetic predisposition, and is triggered by exposure to a number of possible stressors - including physical injury or emotional trauma, childbirth, medical operations, viruses, bacteria such as mycoplasma, chronic allergies or chemical toxins. Pain is the most common Fibromyalgia symptom and is necessary for an official diagnosis. According to the American College of Rheumatology diagnostic guidelines, Fibromyalgia is characterized by widespread pain of three months duration or more and pain in 11 of 18 “tender points”. A tender point is a pressure point that, when pressed, feels sore. There are 18 defined tender, or pressure, points on various parts of the body, from the elbows down to the knees.

      As your doctor has explained, there are lab tests for MS and Lupus, but not for FMS. But a tender point exam with a doctor who is knowledgeable about FMS, along with your medical history of fatigue and pain, could quickly determine if FMS is what you are experiencing.

      Treatments for the 3 conditions are very different. The gold-standard treatments for MS are the 3 interferon meds, Copaxone and now a new med called Tysabri. Lupus has had fewer treatment innovations it seems - and Prednisone (a steroid), Plaquenil (an anti-malarial med), and some chemotherapy meds are the ones most commonly prescribed. FMS now has a couple of FDA approved meds - Cymbalta (Duloxetine), and antidepressant which helps with pain and fatigue, and Lyrica (Pregabalin), an anticonvulsant which helps with both symptoms too.

      Good luck in the diagnostic process - this can be so frustrating!

  23. QUESTION:
    Need guidance on getting cannabis card?
    I have Lupus, RA, & Fibromyalgia. My rheumatologist thinks that cannabis will help me in numerous ways, but because of politics he doesn't feel comfortable writing me a prescription personally. He said I won't have any issues getting a prescription from "elsewhere", but I do not know how to proceed or how any of this works.
    Currently living in LA County- Santa Clarita area.

    • ANSWER:
      If he is unwilling to write your script he could have at lest told you where you might get a sympathetic doctor to write it for you.

      I found a few links that might be able to tell you how you go about getting card or what is needed to purchase and use Marijuana legally.

  24. QUESTION:
    Headaches that get significantly worse when lying down?
    I have lupus and fibromyalgia and have developed extremely horrific headaches that can be on one side of my head, on both sides of my head, all over my head, or on the back of my head. But with any of these headaches, they get incredibly worse if I lie down. Has anyone experienced this? If they have, how do you deal with them?

    • ANSWER:
      DEAR MISS

      MY MOTHER HAS FIBROMYALGIA TOO AND THE

      DOCTOR ALSO FOUND OUT SHE HAS MIGRAINE

      HEADACHES TOO IT IS IN OUR FAMILY HISTORY I HAVE

      THEM TOO JUST TRY PUTTING YOUR FEET ON THE

      FLOOR AND THE WORLD IS SPINNING AROUND YOU

      AND HAVE SOME THING LIKE MORNING SICKNESS I

      THROW UP GET DIZZY CAN NOT WALK CAN ONLY EAT

      SOUP AND CRACKERS SO DEAR YES MY MOTHER

      AND I KNOW WHAT YOU ARE GOING THROUGH OK

      TAKE CARE

  25. QUESTION:
    Does mdicare/medicaid cover breast reduction surgery?
    I live in the State of Montana and I was wondering if anyone knew if medicare/medicaid cover Brest reduction surgery. I suffer from Lupus and Fibromyalgia and my breat size is just killing my back anymore. I have a size F. I wouldn't want anything dramatic, maybe just a size C or D. Does anyone know?
    I already have medicare and medicaid. :) I get Social Security.

    • ANSWER:
      They do.

  26. QUESTION:
    Do you have a Chronic illnesses?
    I am writing an article for a new website for people with chronic illnesses (fibromyalgia, Lupus, RA, CFIDS - Chronic Fatigue, MS, etc.) any debilitating illness that has changed your life. I am looking for input from people who have overcome the obstacle of chronic illness or chronic pain and also from people whose lives have been completely turned upside down by their illness. I would love to hear about struggles with disability claims, friends, family, spouses, coworkers, etc. Any input is helpful. This article is meant to bring about more understanding to those who don't look sick. You can also email me your comments at jp_th2006@yahoo.com

    • ANSWER:
      Hi Jennifer P,
      I think I can help you find all sorts of info and talk to people that are going through cronic pain and disability fights and lots of other things Rather than put a long message in here about all of this email me at poohinmissouri@yahoo.com, I have had severe RA for 7 years now and it has put me in a wheel chair and I deal with the severe pain of it every day along with the severe fatigue and I will be glad to chat with you all about it, and I own a totally free chat room that deals with diseases like fibro,ra,ms,lupus etc and you could come and talk to others with the problems they face everyday and the different pains they have everyday, and how they deal with the pain, the chat is totally free and it will put you in touch with real people with different diseases, and we also have a totally free message board with all types of different health infomation so just email me for the link and we will be glad to help, we look forward to hearing from you

  27. QUESTION:
    Do I have fibromyalgia, arthritis or Lupus?
    My mom has all of these and her mother (my grandma) and uncle have lupus. My aunt and my cousin (from my dads side) Have fibromyalgia. They have been telling me I need to be checked for these things because I am always having pains somewhere in my body. I have pain in my stomach and chest, I hurt in random areas of my body. The pain comes sudden and it has pulsing peeks, sometimes it only last minutes sometimes it last days. When I use my hands, mainly my thumbs they began to hurt so bad I can't do anything with them until the pain stops. I have a lot of pain in my hip, back and legs, everywhere really but mostly in these areas. The pain in my back is so bad at times I can not stand up straight, when my hips hurt its hard for me to walk and nothing I do seems to help besides time. What do you think is wrong with me? Please help...

    • ANSWER:
      try these links
      http://www.healthatoz.com/healthatoz/Atoz/clients/haz/general/custom/default.jsp

      http://symptoms.webmd.com/default.htm

  28. QUESTION:
    May this be a Vascular disease?
    Blood vessels...what type of illness cause them.. or What can be wrong with vessels that can lead to an illness. I am confused and don't know where to even start my search. I have undiagnosed headaches for 3 months. I feel dizzy and weak. Grew so sick and tired of it, I can't work since I am constantly lightheaded. I can best describe them as vascular headaches, since I feel regional pain (which travels from front to back of my brain always in same areas, like it is following the same thin veins, vessels inside my head. It spreads down to neck, shoulders, upper spine). Sometimes my upper back is so sore, so that rib cage hurts. I had brain CT - its normal. Blood pressure is "normal" but I think it's low and my pulse is weak, I am ALWAYS cold (my entire life, but all Dr always told me that 100/70 is a good BP). I am 41, was very active, healthy weight, my blood tests did NOT show infections, diabetes, kidney, liver. I have poor appetite now, but take a vitamin, to avoid vit. deficiency. I am thinking Fibromyalgia? Lupus? Please help. I want to figure out WHY is my head and upper back hurting??? Does anyone know of any form of vessel disease that can cause these symptoms??

    • ANSWER:
      Get a free fibromyalgia test
      http://www.fibromyalgia-information-relief.com/fibromyalgia-test.html

  29. QUESTION:
    Bilateral upper arm pain without injury?
    I have a raft of chronic pain/rheumatic conditions incl fibromyalgia, lupus and myofascial pain syndrome, but this particular problem is new and isn't fitting the pattern for any of those conditions which I've had for a long time, and know plenty about, so trying to figure out other possible causes. I apparently do have a single trigger point in my upper R arm, but while the pain of that was localised and caused bone pain too, again, what I'm suffering now is different in that it's both upper arms, and feels almost as if I'd pulled or torn the muscles really badly and continuously yet I've not lifted anything heavy (at least not with both arms), and anti-inflammatories/narcotics (nor anything else!) aren't alleviating the pain. No redness or swelling - just an interminable dull ache that is worse with movement and at its absolute worst on waking in the morning but which eases off after an hour or so to a lesser ache which lasts all day. Any ideas?

    • ANSWER:
      Are you diagnosed with Lupus? If so then your pain can easily be chalked up to another symptom of Lupus. Unfortunately, since Lupus is a systemic disease it can affect all areas of the body. Sometimes the pain can present in different ways than before. Most people experience joint pain with Lupus but still others experience a deep muscle pain, sometimes radaiting from the chest area like angina. It could be that you're experiencing this pain but it's radiating outwards toward your arms and your nerve receptors in your chest aren't as sensitive as the ones in your arms. Therefore you're not feeling any pain in the chest but rather in the arms. My wife has experienced similar pains throughout her body due to her Lupus. It seems that the pain changes types/locations every few years or so. She still has her normal aches but gets new ones every so often.

      If the anti inflammatories aren't working it may be time to take a trip into the doctors office to get a work up. They'll probably take a chest xray to rule out any heart problems. See if there isn't some type of underlying issue. Maybe a different mix of antiinflammatories or analgesics would work better.

      Good luck to you.

  30. QUESTION:
    My teeth are very weak?
    I have lupus S.L.E and fibromyalgia. I have been told by a dentis that although lupus does not attack your teeth directly but in directly it can in the sence that you have less saliva that helps keep your mouth clean. I look after my teeth and always have but my teeth are so weak yesterday I was just biting my nail (bad habit) and my tooth broke. I am seeing the dentis today. But what want to know can the lupus or fibromyalgia make somebody's teeth this weak or why is else would my teeth be this week.

    • ANSWER:
      You are fortunate to hav a dentist who understands this connection. He is right. I've seen this a few times (3 or 4) with SLE. I am not aware of any conncetion between fibromyalgia and tooth decay.

      At least he will try to work with you instead of making you feel bad. Ask about Biotene products (available OTC) for dry mouth.

  31. QUESTION:
    hands changing colour?
    I have lupus SLE (in remission) I also have fibromyalgia. the palm of my hands keep changing colour sometimes they are from purple,white,pink,crimson or bright red.I,m not saying they keep flashing like neon signs but now and then when I look at them they could be one of these colours. could this be a symptom of lupus or , fibromyalgia or could this be another disease that is realated to lupus or fibromyalgia or something compleatly different all together do you have this or know somebody that may have this. it don't matter if its summer or winter so its not from the cold.

    • ANSWER:
      I have Lupus and APS. Sounds like you are going through some Raynauds and Livedo stuff. Are you taking Plaqeunil? So chances are you are no longer in remission. :o (

      Start taking pictures of it so you can show you doctor what is happening in case it is not there when you see them next.

      What Is Raynaud's Phenomenon?

      Raynaud's phenomenon is a disorder that affects the blood vessels in the fingers, toes, ears, and nose. This disorder is characterized by episodic attacks, called vasospastic attacks, that cause the blood vessels in the digits (fingers and toes) to constrict (narrow). Raynaud's phenomenon can occur on its own, or it can be secondary to another condition such as scleroderma or lupus.

      Although estimates vary, recent surveys show that Raynaud's phenomenon may affect 5 to 10 percent of the general population in the United States. Women are more likely than men to have the disorder. Raynaud's phenomenon appears to be more common in people who live in colder climates. However, people with the disorder who live in milder climates may have more attacks during periods of colder weather.

      What Happens During an Attack?

      For most people, an attack is usually triggered by exposure to cold or emotional stress. In general, attacks affect the fingers or toes but may affect the nose, lips, or ear lobes.

      Reduced Blood Supply to the Extremities

      When a person is exposed to cold, the body's normal response is to slow the loss of heat and preserve its core temperature. To maintain this temperature, the blood vessels that control blood flow to the skin surface move blood from arteries near the surface to veins deeper in the body. For people who have Raynaud's phenomenon, this normal body response is intensified by the sudden spasmodic contractions of the small blood vessels (arterioles) that supply blood to the fingers and toes. The arteries of the fingers and toes may also collapse. As a result, the blood supply to the extremities is greatly decreased, causing a reaction that includes skin discoloration and other changes.

      Changes in Skin Color and Sensation

      Once the attack begins, a person may experience three phases of skin color changes (white, blue, and red) in the fingers or toes. The order of the changes of color is not the same for all people, and not everyone has all three colors. Pallor (whiteness) may occur in response to spasm of the arterioles and the resulting collapse of the digital arteries. Cyanosis (blueness) may appear because the fingers or toes are not getting enough oxygen-rich blood. The fingers or toes may also feel cold and numb. Finally, as the arterioles dilate (relax) and blood returns to the digits, rubor (redness) may occur. As the attack ends, throbbing and tingling may occur in the fingers and toes. An attack can last from less than a minute to several hours.

  32. QUESTION:
    I have lupus (SLE), rheumatoid arthritis, and fibromyalgia, what can I do?
    I am 16, my family has no money to take me to any more doctors, so I can't get treatment or medication anymore, the doctor I've seen for it since I was 10 is no longer covered in our insurance plan, no general practice doctors or pediatricians will even see me, and I can tell that I'm in one of the worst flares I've had in years... is there anything at all I can do?

    • ANSWER:
      how do you know you have fms in addition to SLE and arthritis..

      fms is highly overdiagnosed by many docs who use it as a general label for pain

      many docs say the pain of sle is fms

      it is possible yo have all 3--but you really need to be your own doc and not just listen to the so called professionals

      there are pediatric rheumatologists..have you called your insurance company to get a list.

      i have taken to just writing a letter and expalining my situation and asking the docs if they can help me....when i call they say yes, of course, i wait months for an appt..they just talk fast and run out without doing their jobs

  33. QUESTION:
    Does anyone know any good family doctors in Vancouver, Burnaby, or New Westminster accepting new patients?
    I'm looking for a thorough and patient doctor that would be able to help me. I was diagnosed with lupus and fibromyalgia and my symptoms were the usual pain, headaches, and fatigue. Lately though I've been having weird symptoms and I have gone to see the doctors I had urine analysis tests and they have found blood in my urine more than once already 3 times and I wasn't on my period those times and the all the doctors just said okay maybe it's just spotting or maybe you're close to your period and passed it off as not that big of a deal another symptom I have which might seem kind of gross - sorry is when I go to the bathroom to eliminate I bleed. I went to get checked out and the doctor just said it might just be an anal fissure or hemorrhoids and that she'd just give me a cream to use and to use vaseline and there's nothing else I could do about it but she didn't take the time to actually examine me or look into it any further. Another symptom that I have is frequent urination which I know happens with fibromyalgia but it's gotten so bad that it literally disrupts my sleep and I have to wake up at 3 or 4 in the morning just to go to the bathroom - I don't even drink that much fluid and she just told me to not drink anything after supper. I usually like going to her because she's great with my physical examinations and is thorough but the last time I just felt very rushed. I'd like to find someone who is more thorough and will take the time to examine all my symptoms and put it all together. The reason I'm concerned so much is because I already have an autoimmune disorder. Does anyone know of anyone in Vancouver, Burnaby or New West?

    • ANSWER:
      Top three doctors with high ratings/good reviews in Vancouver:
      http://www.ratemds.com/doctor-ratings/40354/Dr-John-Rideout-Vancouver-BC.html
      http://www.ratemds.com/doctor-ratings/40116/Dr-Grant-Ayling-Vancouver-BC.html
      http://www.ratemds.com/doctor-ratings/40251/Dr-Stanley-Lubin-Vancouver-BC.html

      Top three doctors with high ratings/good reviews in Burnaby:
      http://www.ratemds.com/doctor-ratings/44751/Dr-Shelley-Ross-Burnaby-BC.html
      http://www.ratemds.com/doctor-ratings/40155/Dr-Belinda-Coetsee-Burnaby-BC.html
      http://www.ratemds.com/doctor-ratings/40004/Dr-David-Dyment-Burnaby-BC.html

      Top three doctors with high ratings/good reviews in New Westminister:
      http://www.ratemds.com/doctor-ratings/40009/Dr-Julia-Reynolds-New-Westminster-BC.html
      http://www.ratemds.com/doctor-ratings/40103/Dr-Walter-Rebeyka-New-Westminster-BC.html
      http://www.ratemds.com/doctor-ratings/44875/Dr-Richard-Yenson-New-Westminster-BC.html

      If you want, you can just go to RateMDs.com
      Patients write their own personal experiences and reviews in the comment section. :)

      I hope this helps!!

  34. QUESTION:
    My mother is in so much pain but its not arthritis...?
    my mother started getting pain like 3 years ago, docs keep telling her its arthritis but shes youngish and plus it wasnt gradual like the way arthritis is...i feel like it might be fibromyalgia but i hear that it doesn't make your joints swell, i dont know what i might be but shes in so much pain all the time i just feel it my gut that it is not arthritis, they have checked her for gout and other stuff, i think it might be either lupus or fibromyalgia..but does anybody have some ideas of what else it could be aside from arthrites...just to see, cause i really dont believe she has that...my bfs mom has arthities and he says its not it and when i read about it just doesnt add up but these docs are so sure, but i feel that its not that..anybody have something similar or a loved one? or just any pain disorders? it just started 3 years ago it comes strong then dulls down then comes back, shes in good shape shes not heavy, she doesnt smoke and eats good.
    my mother takes anti inflammatory medicine but shes still in a lot if pain. she cant take motrin cause she has an ulcer.
    but thanks Intake and your right docs are crap now.
    she has done blood test and the joints crystal test but it still seems like thats not what it is, they have been done and different docs are throwing different things around...i just want to know if hypothetically if it wasn't arthritis what else could it be, if that were taken out of the equation. thanks guys for all your help, all the best.

    • ANSWER:
      try taking anti inflamitory medication for swollen joints.. if that doesnt help.. then its probably chronic pain syndrome from a accident that ur mother had along time ago.. and finally her body is telling her.. get some help or its gonna get worse..

      mobic - motrin is a anti inflamitory medication that i know of.. its over the counter and legit.. try that..

      arthritis is a disease and doesnt matter how old or young u are, if u have it u have it.. if the doctors ur mom is going to isnt helping her, find someone else that is ACTUALLY whiling to take the time and care to treat your mother.. doctors these days dont care, and will just give u a prescription of anything u want for u to get out of there face and take ur money..

      Find a different doctor and ask his opinion, ! ur mother should live in pain.. nobody should!

  35. QUESTION:
    elevated ANA, moderate billirubin levels, above normal iron levels, and pain...help!?
    i am a 23 year old mother of 2. couple months ago, i went to get a haircut from my stylist who has been doing it since i was born and she said i might want to make a doctors appointment to have my thyroid checked because i was losing a considerable amount of hair. i didnt think to much of it buti went to my doctors 3 week ago because my knees and ankles have been hurting me REALLY bad and told my doctor i wanted to have a blood test for my thyroid and she said she'd check everything. about a week later, she called me saying i have to make an appointment with a rheumatologist because my ANA levels were elevated and then she asked if anyone in my family has ever had rheumatoid arthritis, lupus or fibromyalgia...great grandpa on my moms side and great grandma and great aunt on my dads side have had at least one of those. im going to school to become a MA and a couple days ago we were doing urinalysis and i checked my own urine and found my billirubin was elevated. yesterday, i donated blood and the phlebotomist said that my iron is 15.5, which is higher than normal for a women. WHAT DOES ALL THIS MEAN?!?!
    omg i totally forgot that my doctor had perscribed inflammation pills...which btw ARENT WORKING AT ALL!! uughh

    • ANSWER:
      don't even consider fibromyalgia right now--there is no inflammtion with fibro and your tests indicate it is somethething otehr tahn fibro
      anti inflammatories take a few weeks to start working

  36. QUESTION:
    Michigan Automated Prescription Program?
    I recently lost my youngest child (daughter) through suicide. She was just a beautiful, kind-heartted but depressed young lady. She not only left her family but she also left 3 young children ages 9, 10 & 11.

    Approximately 1-month ago, she received a Physician termination letter from her primary (who is a Certified Nurse Practitioner) stating that she was being released (in 30-days). It also stated that she would continue to be treated for things that were deemed only "medically necessary". Once I received the call (from her) in Texas, I immediately came to Michigan because she was so distraught. She began thinking that she was about to be arrested and go off to prison. My husband and I just could not calm her down. At any rate, after taking the letter to several of my physician and pharmacist friends here in the Michigan area, we were told that basically she could in fact go to another doctor and still obtain her prescriptions. We were also told that this system is not a mandate and everyone doesn't use it. They also informed us that for the physicians, pharmacists and other health professionals that use it, because of HIPPA Laws not just anyone can go in and look up a patients information.

    At any rate, my daughter had Lupus Erythematosus, Fibromyalgia and had more recently been treated for a Cancerous Tumor in her lower Intestines. She way on a myriad of medications including the narcotic Tylenol #4. Because she was so depressed, a lot of the medications she would not take because she didn't like feeling "loopy or down". She had a Rheumatologist and most recently had been trying out a new physician because she was going to leave the Certified Nurse Practitioner and transfer over to the new physician. Now, to sum it all up, I know that physicians have a right to dismiss patients because of whatever suspicions and/or reasons. I am just so furious because my daughter had been telling her primary that her pain was so severe and it was just not word of mouth. Her blood pressure was always high, swelling all over her body, hand and feet disfiguration, severe, severe depression and other medical symptoms. She had also been given something called Neurontin to which I am told is a muscle relaxer. I cannot tell you how many trips we have made to the Michigan area to assist my daughter in her time of need. Additionally, she was not the type of person who felt-sorry for herself. She had been working her entire life and was 6 classes from obtaining her Masters Degree. She was also raising her children on her own (widowed) and had only began not working in 2004 and thats only because she had become so ill that her dad and I encouraged her to apply for the Michigan State Disability Program.

    I know that any answers I receive will not bring my child back, but I also have a right to my opinions and one of them is that I think that this MAPS Sytem is flawed. Does the patient not have a right to explain their side of the story, whatever it is, addiction or otherwise? If there is a suspected problem what responsibility does the Health Practitioner have moral or otherwise? Do you just turn the person in to the Gestapo (not trying to offend anyone-please forgive if I did) (MAPS System)? If a patient is turned in then what, what happens after that, what is the patients rights?

    Obviously, my daughter had began obtaining too many (narcotic) prescriptions in a month and I do agree that it was too many. But, how many narcotics is one allowed in a month? In Texas, my neighbor receives 120 Vicodin from one physician and 90 Tylenol #3 from another. I realize that this is not Texas but, I am just saying. Furthermore, since all pharmacy computers are not linked and because she did received them, I am pretty sure if was very easy for her to do so if it had not been for this MAPS System. Yahoo Memebers, please note that I am not condoning the act or otherwise. I have been blessed to live my 61 years in a fairly healthy state. I have not had to walk in her shoes. One thing I do know for sure is that, she was not a drug abuser, drug addict or drug seller. And yes, maybe I am being a little defensive, but I have lost my child, FOREVER!

    The MAPS System as we were told, is only for the use of health care providers. A "patient" is not allowed to receive or request their own information from this system. I would like to know once your name comes up in this system, is the patient red or blacked-flagged of sorts? Michigan, like a lot of states has problems with drug abuse, drug addicts, dope dealers, etc. You will always have someone who abuses and finds a way around the system. In my opinion, the system is a double edged sword. Good for seeking out drug abusers and flawed because it will turn in everyone who may or may not be an abuser. The physicians are somewhat turning into police. Are their Michigan Laws against "Doctor-Shopping"?.

    I would like to thank anyone who can assist me

    ADDITIONAL DETAILS:
    If I didn't state, I

    • ANSWER:
      The doctors will do everything & anything to cover their backs.

      In MI at a medical malpractice lawsuit trial only MI doctors can testify against other MI doctors. You won't find many, if any, MI doctors that will testify against their own kind.

  37. QUESTION:
    Could you explain what the results of my blood work means?
    My wbc is 4.9, RBC is 5.26,HGB 16.4, HCT 49.7 My PLT count is 118 with the %MONO 11.3. My MPV is 10.1 and my glucose is 122. I have had three heart attacks and have a stent. I have lupus and fibromyalgia as well as sleep apnea. I have had two episodes of very low blood pressure which required hospitalization. I do not know what to look for in the results or what they mean.

    • ANSWER:
      Not to be a smart #$#, but that's what your doctor is for.

      These values are pretty OK for most people. For you, only your doctor
      can say.

  38. QUESTION:
    Please help asap: Which kind of doctor should I see?
    Symptoms: Many:
    Need to see ob/gyn, I know for yeast-like symptoms but also have other symptoms.
    Pain in stomache (off and on)
    Nauseau and vomiting
    Feeling crummy
    Itchy body
    Breaking out in bumps (like heat rash and infefected hair follicles but haven't been in heat and a bump that has been on my arm for about a year that has not left)
    took online tests for fibromyalgia and lupus score near 70% range number for having both, but I do not know if I meet all the criteria to have both. Could just be the multiple diagnoses I already have separately. Been misdiagnosed by doctoral team (internists) for a problem, a neurologist gave me pills that if combined together could have killed me (insert said).
    Diagnosed with arthritis and other conditions and ailments or illnesses.
    Stomache symptoms started about the time of the event I mention in a previously asked question.
    Have been taking NSAIDS for pain off and on, having to switch around. Vomiting started shortly after BC powder
    today. I suspect possible ulcer from pain medicines or something else (question about husband will explain).
    Can yeast infection cause all this, and if so, how do I find a doctor who will believe that? Some doctors I know do not believe in that leaky gut syndrome and think it is made up.
    I don't live in the North Pole. I stay indoors almost all the time. We have fans and air conditioning.
    My eating habits were pretty good: vegetables and fruits with chicken, a vitamin pill almost each day, dairy, mostly good foods, hardly any bad. About 3 plates a day give or take. Now these past few days I hardly eat. I know I have lost some weight. I can see it. I am in my 30s.
    I would like to see a doctor as soon as possible. I just want to know which one would be best for all these range of symptoms, especially with the stomach?
    No one else seems to be sick around me that I have been exposed to.

    • ANSWER:
      A few thoughts

      Epstein-Bar Virus

      Read a book called "The Yeast Connection" and alter your diet accordingly

      go to a good rheumatologist (call your local hospital and ask them who is Cheif of Rheumatology, and then see if that doctor has an avaialble appointment)

      I don't know anything about your Previously Asked Question as I can't see it without looking up your ID & I can't do that while on the answer field...

      Temporarily remove the Vitamin (just to test for reactions)
      Remove anything carbonated, anything fungi (cheese, mushrooms, alcohol), anything with sugar or with sugar substitutes, remove anything with yeast (breads & possibly your vitamins) and anything with gluten (anything made of any kind of flour.. bread, pasta, etc..)

      Eat yogurt 2 times a day... if lactose intolerant, try soy yogurt
      Don't take any NSAID on an empty stomach
      go to bland, easy to digest diet
      until you get rid of yeast, minimize any kind of sugar (including fruit)

      So I went back & looked at your ID to find your previous Question...

      Your Husband SAT ON YOUR STOMACH.... etc....
      First... get out of that relationship.... I know you think you are dependant on him.. you have to care enough about yourself to GET OUT ANYWAY

      Second... you could have any number of problems as a result of his wieght on your belly... not limited to but including ruptures and internal bleeding.... in any number of places, your intestine, your uterus, your stomach, your esophogus..... GO TO THE ER.... get them to both upper and lower Endoscopy... get both an internist and a gynocolgist to take a look at you!!!

      Third.. get counseling.. if you are dependant on him in such a manner that you feel you can't leave when he is abusing you.... then you have to look at WHY you are AREN'T LEAVING HIM

      You don't accept e-mails.... I have read the questions you have asked for the past 3 months.... from what you have posted you are in a very bad, abusive situation

      An abuser (like the the one you have described) always needs a victim.. so the abuser will do all kinds of bad things to you... usually in an escalating manner.. things usually will get worse.. and most abusers appoligize because they need the victim (this is a subconscious drive to permit the appology so that you don't leave & they still have a victim).. and usually, they will torment you in many ways but not kill you (they need you as a victim)... that is also why he needs you totally dependant on him (he needs a victim)

      You asked... at what point do you finally leave with on the clothes on your back.... As it relates to my Ex-husband.....I found myself running naked down the street at @ 4am towards the police department as fast as could. A Neighbor who worked late-shift and had gotten off work @ 3am saw me as my ex-husband was chasing behind me and allowed me inside his house to call the police. Dee (my ex-husband) had burned my clothes, cut the phone line, removed the outside breaker to the house (no electricity). He had tied me into a chair and sliced the chair with a knife... and kept telling me I was next... somehow I got free.. probably bribed him with sex (as was a way I had figured out worked to get me out of the worst situations)... this isn't about what he did that day as that was a variation on the norm for his behavior toward me

      Yes, I know folks who have gone underground and I considered doing the same. I decided that I wanted to be able to keep in contact with my large family so that made it impossible to go underground; however, I did use "safehouses" to keep me away from him while I was in counseling and waiting on the divorce (my baby son & I slept in shelters)... he managed to drag the divorce out for 3 years.

      Even "well intended" abusers who have gotten to the level of abuse that you have talked about... even the ones who try to get better are generally not able to be better when around a person they have abused..... this was true of my father. He was very violent with my mom.... after she finally left him (imagine 18 years of that type of abuse).. and he finally gave up his obsession with her (took about anohter 5 years)... then he was abusive with the next woman.. and even though he had been to millions of phsych counseling sessions.. he finally went because he REALLY WANTED TO CHANGE... and he still was capable of the same level of abuse, he had to learn to change his behaviors... as it related to his outbursts, he got better... as it related to relationships.. it is sad but he finally got to a point (after abusing the next 2 woman to a lesser degree) that he realized he was not in control of himself.. he finally decided to live alone and to not have "partner relationships".. it wasn't until he didn't have a source of a victim that he finally got a better grip on his own behavior overall.

      I know it isn't easy.. and apparently he is very influential (as was my father).. and also apparently you are concerned on a spiritual level about leavign him................

      All I can say to you is this.... YOU MUST LEAVE IF YOU WANT YOUR LIFE TO BE BETTER

      Call the UNITED WAY.. tell them you need to find a safehouse.. Once you get a phone number.... call whatever agency that you were referred to and tell them why you need to find a safehouse. Explain to them that he has control of everything and that you are pennyless without him and that you don't even have access to a car -- I PROMISE YOU that this isn't the 1st time they have heard of this level of control

      Also, when you go to any & every doctor... TELL THEM about the ABUSE... ask them for ideas on help!!!!!!!!!!

      If you always do what you have always done.. then you will always have what you have always had...

  39. QUESTION:
    Diagnosed with Fibromyalgia but treated for Lupus?!!!?
    Is it just me or has anyone else been diagnosed with FM when they suffer from severe fatigue and joint pain and SLE has been ruled out? What is a non-medicated, non-excercised way of getting better? I keep telling my doc I can't exercise cause of severe pain and she keeps telling me you better do it cause that is THE ONLY CURE????!!!! It feels like she thinks I'm so stupid that in a world of modern medicine there would be no temporary painkillers. Even if that is the case, why is she prescribing Meds. used to treat SLE??!!! Is she lying and why would she be?

    • ANSWER:
      I've also been diagnosed with FM. My doctor prescribed pain relief meds and one that helps me sleep. I feel 98% better since then. It is impossible to excercise until the pain is alleviated.... there is no cure for FM. I strongly suggest you change doctors to get the help you need. Apparently the one you have now is not well versed in FM. I sincerely hope you find someone who can help you through this awful pain.

  40. QUESTION:
    fibromyalgia? or could it be lupus?
    I'm 34 female hard working massage therapist. I have been diagnosed several years ago with fibromyalgia. but more recently, I've been experienceing more joint pain. I also have a small scaley rash that won't seem to heal on my right cheek. It is also slight on the left cheek, but have never had any rash across the nose (the butterfly rash everyone talks about). Could I have lupus? I am going to a pain specialist in a few weeks, but really like to do my own research (either that or I'm a total hypochondriac).

    Anyway, main question is, does the rash HAVE to be the "butterfly" all the way across the face?

    Also, does it really make a difference if it is lupus vs fibro? There's no cure for either. Seems like it wouldn't really make a difference either way as I have pain & no cure.

    • ANSWER:
      Many people never get the butterfly rash. The butterfly rash is not scaley. But there are lupus skin problems that might be scaley.

      It is not unusual for people who have one autoimmune disorder to have two or three. Fibro and lupus often travel together.

      You need to see a rheumatologist. The vast majority of general doctors are not trained in making this tricky diagnosis.

      And yes it matters a whole lot! Left untreated, lupus can cause permanent damage to your organs. 40% of us have kidney disease, which has no symptoms until it is life threatening. By then it's too late to save your kidneys. You could have one of the clotting disorders that come with lupus. It is important to have regular medical monitoring and take immunosuppressive drugs so you can live as normal a life as possible.

      In my case, lupus led to bone marrow failure, kidney failure and congestive heart failure. My lupus is now well controlled and yesterday my rheumatologist pronounced me in remission.

      Best wishes.

  41. QUESTION:
    Fibromyalgia symptoms and treatments?
    I havent been diagnosed with fibromylagia yet, and am half afraid to tell my doctor thats what I think I have. Shell probably tell me im nuts, plus I read that theres no real test to say...Yes you have it. But after accidentally stumbling across an ad for Lyrica, and it listed some symptoms of fibromyalgia, I thought to do some research on the subject. Ive been back and fourth to the doctor...goodness like 15 times in the last 2 years! Initially just complaining about extreme fatigue, troubles falling asleep, and not being able to stay asleep once I fell asleep. Then it stemmed into joint pain complaints. I did find out I had lyme disease, so my doctor thought thats what the problem was. Well I took the meds, got re tested and the lyme is cured. This is over a year ago now...but my symptoms are worse. Been back again a few times since then, and she just said theres nothing wrong with me, im just depressed. She tried giving me sleeping pills, which just made me more groggy so I stopped taking them. Then she gave me some off brand stress management med... not quite a depression med, which didnt help. After doing reaserch on fibromyalgia, im SURE thats what I have. Besides the extreme tiredness, and lack of ability to stay asleep, I have horrible muscle and joint aches. I wake up and feel like ive excersised for hours the day before! Im stiff and find it painful to move. What really got me though, is I have pain in all the places ive read online that affect people with fibromyalgia the most. The neck, hips, shoulders, and knees. Thats where most of my pain is. I have frequent headaches, and the other thing that really sold me was the IBS thats linnked with fibromylagia. Ive always had bad cramps and gas like I have to go to the bathroom realllly bad even when I dont have to go, and my bowel movements have always been strange, going alot some days, not going for a day or two at other times. Ive always wondered why until I read about IBS. I know fibromyalgia can mimic lupus and other conditions, but my doctor did test me for lupus and a few others and they were all negative. I also read that fibromyalgia can come about after very traumatic times, and it seems like mine started about 2 1/2 years ago. And ALOT has happened to me in that time. My sister was murdered 3 years ago, my mom died 2 years ago, my brother had a cancer scare shortly after our mom died. So thats another reason I suspect fibromyalgia. So does it really sound like I have fibromyalgia? And what can I do to help it? I cant live with this tiredness anymore! I dont even care about the pain as much as I do about constantly being tired and fatigued!

    • ANSWER:
      its possible you have fms

      but its also possible you have a post lymes syndroome
      lymes can cause permanant symtpoms if not treated early enough

      it could also justbe the lack of sleep

      a better sleep med is trazadone--its an antidepressant, but only taken at night.in a smaller dose

      .much safer than traditional sleeping pills

      most docs dont know what fms is and use it as a general label for pain

      they will say the pain of lymes is fms..that is not true..fms is its own specific neuro condition

  42. QUESTION:
    My doctor wants to test me for ms, lupus, and arthritis, and I am pretty sure I have fibromyalgia.Advice?
    I don't know what to do or think. I am pretty scarred, and utterly exhausted by this constant pain.

    • ANSWER:
      Every diagnosis is possible. Moreover, fibromyalgia has a high incidence (35%) of co-morbidities meaning you can have any of those diseases and fibromyalgia!

      Try a free test for fibromyalgia on
      http://www.fibromyalgia-information-relief.com/fibromyalgia-test.html

  43. QUESTION:
    I have Lupus. My Doctor diagnosed me w/ fibromyalgia ALSO. WHY?
    I have had SLE (lupus) for 1 year now and have been treated with cellcept and prednisone.
    At my last Dr. appt., my doctor diagnosed me with fibromyalgia.
    She did no tests or anything. How does she know?
    I played football for 6 years(many injuries)--I know i have a high pain tolerance.
    ****She said that because my joints were not swollen, I must be amplifying the pain!!***--(amplified pain is the definition of fibromyalgia-you interpret pain as being worse than a normal person)

    I am really angry that my doctor would tell me that I'm just complaining--she's always telling me to tell her all my symptoms.

    IS SHE CORRECT TO GIVE ME THIS NEW DIAGNOSIS ON TOP OF MY PREVIOUS DIAGNOSIS OF LUPUS???????

    • ANSWER:
      Fibromyalgia often occurs in overlap with lupus. They are both autoimmune. Fibro is usually diagnosed by having pain on symmetrical pressure points in the body.

      If you want to know how you doctor knows, ask the doctor. We don't know what your doctor was thinking or how the diagnosis was made.

      If you don't trust your doctor, get one you can trust. Lupus is too serious to be treated by a doctor with whom you do not have an open and honest relationship.

      We dont' know if she was right because we don't know your symptoms and we don't know what information she used to make that diagnosis.

  44. QUESTION:
    invisible illness, how do you deal?
    for those of you who have invisible illnesses, such as fibromyalgia or lupus, how do you deal?
    i have postural orthostatic tachycardia syndrome, (i'm 15) and it seems as if my parents don't understand, and don't think i'm trying deal.
    well that doesn't help
    thanks, good advise 2nd person lol

    it's a little weird though, a lot of the times they're supportive, but then they say "well you can try harder", i would think they would get it the most, my dads a doctor & my moms a nurse

    • ANSWER:
      Basically-I learned to depend on me-I've been sick at least since I was 5 and never got any support from my parents--

      I see it is their problem that they are not able to empathize...some people just can't be reasoned with....

  45. QUESTION:
    Divorce?? Please help.?
    This morning shortly after I woke up, I overheard my mom talking to my grandmother. My grandmother said something along the lines of, "If this divorce does happen.." My parents have been fighting a lot lately, mainly because my mom is very sick with fibromyalgia and lupus, but I had no idea there was a slight thought of divorce. I want to talk to my mom about it, but I am afraid she will get mad at me for eavesdropping, or even feel bad. I need help very badly.
    PLEASE SOMEONE ANSWER!! :[[

    • ANSWER:
      I am sorry that you are having to go through this. It is never and easy thing having been through it with my parents as well. Just come right out and ask your Mom is what I suggest. Just say that you happened to hear it and make it seem like you heard it in passing and not by eavesdropping.

  46. QUESTION:
    Should I stay or shoudll I go?
    Needy, overbearing mother-in- law?
    Let me explain the situation, and I apologize in advance for the length.

    I have been dating my boyfriend for almost 2 years, we have been engaged for a little less than a year (We are taking our engagement slow) When I first started dating him, he told me that he is very close to his mother who has fibromyalgia and lupus and is bedridden. He is 24 (I am 22) and he lives in a trailer home with his mother, 28 year old sister, and her 2 children.

    This family could not be more dysfunctional! His sister is bipolar, and does not medicate herself, so she throws fits constantly and does not take care of her children, always wants to go out and find a new "father" for her children. One of her children, she gave away to her son's grandmother (the son's father) to "get back" at her mother (my boyfriend's mother) My boyfriend is constantly watching her children, all hours of the night. And his mother, is always having him run errands for him, and always yelling at him for things not being done in the house. She always puts him on guilt trips and makes him feel like poopie (sorry, I don't want to curse tonight)

    She is always on medication, and is always asking for things. She is at risk of foreclosure with her home, although more than half of my boyfriend's paychecks go to her. (Where does she spend the money, it's obviously not going to the house) There are so many incidents where my boyfriend and I make plans but are ruined because his mother does not want him to be away from her.

    I don't wan't to sound selfish, I have tried to be patient and hope that things will get better, but I feel that his sister should help take care of his mother. She does not have a job, does not have to pay any rent, is on welfare and gets child-support. She literally sleeps all day while her children tear up the house. I have been placed in serious debt, because I bought my boyfriend a cell-phone, and he couldn't pay because he had to help his mother financially. I have been to her doctor's appointments, and they suspect that she plays off her illnesses, that she should not be in such pain with all the medicine she is on. She sleeps all day, and the time that she is awake, my boyfriend is running around; buying Mc Donalds, picking up medicine, etc. He does not have a car, so I take him to work across town, and I work nearly an hour away, and when I pick him up from work I want to spend time, but we cant. My time with him is spent running him on her errands, and doing whatever she needs.

    I'm losing patience, with him and his whole family. I just wish that he could set up some boundaries, so that we can build our future.

    My question is...am I doing the right thing by staying with him? I love him, but I despise his sister, and am beginning to feel the same for his mother.

    • ANSWER:
      this is a man who will always be for his family, and after awhile your really going to become resentful of this. u can't really expect much of a future with him, unless u can move somewhere else away from the mother.

  47. QUESTION:
    A 27 year old female with EXCESSIVE tiredness. Why?
    I have been to the doctor, had multiple blood tests run. I've been tested for lymphoma (complete removal of a swollen lymph node-it was benign). I used to be much more vibrant. I have a 2 year old but that's not the reason I'm JUST SOOOO tired. I take vitamins, I haven't started working out yet, but I will.

    I just went to the doctor yesterday and he thinks I'm depressed and anxious. He started me on Cymbalta, I took it for the first time today. I always have this feeling of being "unwell", not sick, but just mild aches and pains, almost unexplainable aches and pains. I've thought about Chronic Fatigue Syndrome, Fibromyalgia, and Lupus. Or is this just from depression? Or something more serious? I've had multiple imaging tests for random things, all came back normal. What do they doctors do when you are so very tired? What can I do? I hate being so young and being so tired.
    And I've had my thyroid tested recently, I take meds for that and I take vitamin B-12 also. Any other ideas?

    • ANSWER:
      If it's fibromyalgia or chronic fatigue syndrome, the tests usually come back normal, and that can be so frustrating! I know this from having had FMS since 1982 (I was 30 when it started) and CFIDS since 1987. See my site at http://www.fms-help.com for a symptom checklist and for tips and ways to cope. Do you sleep okay at night? Sleep and depression are related. Your fatigue could also be hormonal. Also, having a 2 year old is exhausting work! There's a list of things I use to stay functional and keep up my energy and stamina at http://www.fms-help.com/what.htm - some may not apply to you, but you may find some good ideas too. I wish you all the best!

  48. QUESTION:
    15 Years Old Sedrate?
    I'm not sure if I spelt it right, but I have blood screening or w/e for Sedrate levels, and they are continualy increasing, they are not yet in the 100's but they are above normal.

    I have had upper abdominal pain after eating for a year, but more noticeably I have recently been having SEVERE SEVERE pain in my hands, shoulders, neck, hips, thighs, legs, and knees, sometimes feet...What could this mean since Sedrate indicated inflammatory diseases...

    Auto-immune disorders run in the family, Lupus, Arthritis, and fibromyalgia...

    My doctor is referring me to a rheumotologist, but what do you think this could be since I am so young...also my lymph nodes are enlarged.

    I eat healty, don't drink or smoke, and I am at good weight.
    I'm also not sick, haven't been fighting any communicable or infections that are known (been tested for infections)

    • ANSWER:
      I was going to suggest the diseases you listed plus possibly Lyme Disease and MS. Go to the rheumotologist and get a full blood work up. I would have them repeat the blood work two or three times too and seek a 2nd and 3rd opinion. These disorders you listed and the ones I listed have similar symptoms and the tests are not clearcut. I had a friend who was diagnosed and treated for Lupus and Lyme Disease for years before they figured out it was MS. I know you are young. My friend was only 18 at the time. Good luck to you.

  49. QUESTION:
    How much is too much?
    Large companies are supposed to make "reasonable accomadations" so their employees (or new hires) can do their jobs. This woman I work with who is a total hypochrondriac, supposedly has had lupus since I have worked here (3 years) now all of a sudden she doesn't have lupus, she has fibromyalgia. She says the only way she can come back to work is if they make her work area a constant 80 degrees, because she can't be cold. Well, we have cubicles so that complicates matters. They (supervisors) are talking about building up the walls of her cubicle, making her like a little cocoon. Meanwhile the ambient room temp has gone from 68 to about 75, I can only imagine in preparation for her return. So we all get to suffer. So how far is too far to make reasonable accomodations for an employee?
    She constantly talks about her "ailments" so suing the company is not an issue, and yes the supervisors have talked about what they are contemplating doing to accomodate her. No, I do not know what her "disease of the day" is. We have no dress code, so she could wear a heated ski suit for all we care. My point was how much is too much to inconvenience 10 people to make 1 person comfortable.

    • ANSWER:
      depending on the size of the company and their resources, this may not be considered a reasonable accommodation.

      they cannot cuase other employers significant distress....75 degrees is reasonable....but 80 is pushing the limit and shoudl be considered too uncomfortable for other employees..they can expect you to tolerate being a little warm at 75--

      if she had been diagnosed with Lupus she would have had objective medical tests to confirm it....

      I'm not sure if teh employer can ask her to get another medical opinion at the employers expense..

      i have real fibro..and do have issues with temperature control..but i have never heard from anyone with fibro needing a room to be 80 degrees.....

      its not just large companies--i believe its 15 or more employees and some states have stricter regs..

      if it trulyis hypochondria--having a warm room shoudln't be a reasonable accommodation...

      why can't she just wear warmer clothes?

  50. QUESTION:
    Do you feel like the Physicians work for you or the other way around?
    My neice has Lupus Erythematosus and Fibromyalgia. She is always in severe and I do mean severe pain. She had been seen by a certified nurse practitioner and then began seeing a new physician and always had a Rheumatologist. Because she felt as if she wasn't getting along with the CNP, she sought out a new physician. She visited the new physician 4 times, got her medications and had just sent a letter to the CNP to inform her that she no longer wanted to be a patient. The CNP however beat her to the punch. She received a termination letter from the CNP basically letting her go in 30 days because of communication breakdown and narcotics abuse. Now, from what my neice told me, she informed the new primary of her previously seeing a CNP and that she was not satisfied. However, you know how it is when you visit a physician. You all might mesh and you might not. At any rate, she had refills on prescriptions from all three physicians and she got them filled, not all at the same time. But, she was so hurt because she stated that morally, her CNP had an obligation to speak with her if she felt that something was wrong, and I agree. She had been seeing this CNP for over 6 years and truth be told, was only seeing her because of a friend of the family. She is known in the streets to give you whatever you want. However, my neice wasn't seeing her for that. I felt that the CNP threw her away as if she was a piece of trash. A similar situation happened with a friend of the family and through the Michigan Automated Prescription System, the state of Michigan notified her primary to pull a report from this system. The system showed that she was seeing another physician and getting her prescription with him. Because of her being red-flagged of sorts, she too was also terminated from her primary thus causing her to be so despondent that she blew off her head with a .357 magnum. Because of the doctors termination letter, she tought that she would never ever be able to find another doctor. Okay, now my neice has the new primary, whom she just loves and has her Rheumatologist as well. But yesterday, she asked me. Abuela (Although I am her aunt), do you think that I will get in trouble? My answer to her was a resounding NO! You have a right to go and see any doctor that you want. I did of course reiterate that out of fairness to the new physician, you should let them know if you still have prescriptions and/or any medications that still need to be filled. I feel bad for her because her conscience is soooo heavy. If it where not for patients, physicians would not be in business. Why do they act as if they are doing us a favor and why do they often treat everyone as potential drug addicts? My neice's fingers are so turned and twisted, you would think that she has Rheumatoid Arthritis and I know that Lupus and RA are in the same family. She is scared to go back to her Rheumatologist because of this new Mapping system. However, I told her that she has every right to talk with her doctor, whether it's doctor 1, 2 or 3. And if her Rheumatologist no longer wants to treat her then dammit, find someone else. My father always said, one monkey don't stop no show! What do you all think yahoo community? Did I give her the correct information. I love her and would never intentionally steer her or anyone wrong.

    • ANSWER:
      (whew!)

      Oh.. what a poor girl.. How old is she?
      Some physician and nurses are always like that!! But hack that, no need to worry, you can always have another Physician and you can always go and see any Physician you want any time!
      Yes, Patients have the right to change their doctors if they don't want any more.
      Um, Good to hear that that girl has a new primary now.
      Hope everything would be okay with that Rheumatologist and her new primary.


Do I Have Lupus Or Ra

If you have been suffering for sometime with low platelet blood count you have most likely been diagnosed with ITP disease or at lest suspect ITP. If you have done any research, and you probably have already, you are informed enough to know that ITP is an autoimmune disease. This means that your body's defense system is attacking your platelets and destroying them or causing them to be destroyed.

What are the standard treatments for ITP?
1. Steroids
2. Chemotherapy
3. Spleen removal

You must admit, some pretty lousy choices. And what are the purpose of these traditional treatments? To destroy your immune system! Maybe I should be less dramatic and say suppress you immune system, but the truth is some of the drugs actually destroy your defense system. This ends, at best, with you being left defenseless against just about any bug or infection that comes along.

Why not just suppress or control the part of the immune system that is attacking your platelets and causing your low platelet blood count instead of the whole thing? Is that even possible? Contrary to most medical opinions, the answer is YES! Doesn't this sound like the most sensible approach?
So how can this be achieved?

There are two types of herbs and nutrients that have an effect on your antibodies.
1. Immune Stimulators
2. Immune Modulators

What is the difference?

There are herbs that stimulate the immune system. For example Echinacea. This herb is usually recommended for the flu and for colds. Echinacea is an immune stimulator. It stimulates the whole immune system. This would not be advisable for your low platelet blood count because the stimulation would promote platelet destruction.

An herb or supplement that is an immune modulator would regulate your overactive immune system. This type of herb or supplement would decrease the bad part of the immune defenses while increasing the part protecting you from sickness.

In other words, an immune modulator would decrease antibodies destroying your blood platelets while continuing a balance of the rest of the immune system. This is the herbs, or I should say, types of herbs and supplements needed to improve your low platelet blood count and end ITP.

You just have to learn which herbs and supplements to use and how to use them. You don't want to just take any herbs or supplements without understanding what they are for or how they can affect you. You need to be precise in your choices and not use a shotgun approach.

I would like to encourage you to take the time to look into this more. You will never be sorry that you did. Your low platelet blood count can be completely done away with but YOU WILL NEED TO TAKE ACTION... no one will do it for you. Research and study is the key and believe me, it is worth it!

You now possess possibly the most valuable information about your low platelet blood count and another choice you have to dealing with it successfully. I wish the best and good health to you.


Can You Work With Lupus

Is a Work At Home Job a Viable Alternative to a "Real Office Job"?

Unfortunately most of the "work at home jobs" you will find advertised on the internet fall way short on coming up with what they promise in terms of providing a real & sustainable income.

However whilst this may be true, there are in fact some jobs that you can do from home that you can earn a decent income from.

So How Do You Find a Job That You Can Do From Home?

How to Find Work at Home JobFinding the work from home job that you earn a decent income from and that is right for you is not going to be as easy a task as you might think judging from the amount of high paying work at home jobs advertised on the internet.

However, notwithstanding the above, it is definitely possible to seek at the right job for you.

The first thing to do is assess your competencies by making a list of your qualifications, skills & qualities you have to offer.

You should also know what sort of job you're looking for and remember to keep your expectations realistic - but do not sell yourself short.

Then, review the various types of work at home jobs that are available and then research the lists of companies that are known to be "telecommuting friendly" - many of the telecommuting friendly companies & employers will have online jobs available.

In addition to the online jobs above there are also internet based work & assignments that you can find online that you can earn a decent income from.

Once again review these work at home website offers carefully as scams abound.

PS - To start earning some money from home, as quickly as possible, read these (free) 3 Legitimate Work at Home Job Opportunities That You Can Use to Generate a Sustainable Income here

Frequently Asked Questions

  1. QUESTION:
    Do pH diets work in curing Lupus Decoid?
    I'd like to hear from people who have tried the ph diet to cure Lupus Decoid and from the medical profession.
    What success or failures have you had, did it work?
    Can you recommend a diet or reading material?

    Will I lose my hair with Lupus Decoid?
    Sorry, yes I mean Discoid Lupus

    • ANSWER:
      It didn't help me, but you may be different.

      I've had discoid for years, along with SLE, and the only thing that has ever helped has been prednisone and anti-malarial drugs.
      Diet has never made any difference, but my rash is mainly on my cheeks and nose and barely noticable at times. I haven't been out in the full sun in years and that's probably made the biggest difference. I still go out, but I'm always covered and I wear a hat. I also know when I'm about to "flare" so I take things easy for awhile, and can usually get over it fairly quickly.

      Lupus isn't curable, but there are things you can do to make it more bearable. You won't necessarily lose your hair, unless that area of your head is heavily affected, but prednisolone should help with the rash and irritation.

      Because the symptoms of lupus vary not only in type but also severity, the treatment may also need to vary. It may take time to find the right combination of treatments for each individual. Treatments may include:

      rest
      exercise
      physical therapy for muscle weakness
      avoiding sun exposure
      using medications such as:
      anti-inflammatory drugs such as aspirin for symptomatic relief
      corticosteroid drugs such as prednisolone for inflammation
      antimalarial drugs such as chloroquine phosphate or hydroxychloroquine for rashes, arthritis and malaise .

      I hope you find something that helps... but I haven't heard of anyone seeing improvement on the ph diet.

  2. QUESTION:
    Is Benlysta avaliable in Australia? Does Benlysta work well with the treatment of Lupus?
    i've only just found out about Benlysta for the treatment of Systemic Lupus Erythemotosis. does anyone know if its avaliable in australia? and how well does it work? what does it feel like if it does work? if you can share any information or experiences with the new drug that would be really great...

    thank u

    • ANSWER:
      Benlysta is give once a month by IV Infusion. It affects B cell apoptosis. Treatment in USD is about ,00-,000 per year.

      Benlysta does not work for everyone. People who I know who have been in clinical trials found it extremely helpful.

      The advantage is that you may be able to get off some of the other more toxic medications.

      This website is maintained by the pharmaceutical company that makes Benlysta http://www.usinlupus.com/ You can join the community and get updates.

      This is the Benlysta site http://www.benlysta.com/?src=1&rotation=2056&banner=1854040&kw=5641400 you will find contact information there.

  3. QUESTION:
    How long does a lupus butterfly rash last?
    I'm currently being tested for lupus (blood work) and I've already been diagnosed with fibromyalgia. I'm wondering how long the butterfly rash last because I have had similar rashes, but they appeared to me to look more like too much sun (not scaly) than a rash and they would disappear a day or two later. It just appeared to be a sunburn on my cheeks and nose, even if I wasn't out in the sun too long. Does this sound like a malar rash? I can't seem to find too many pictures on here. Thank you!

    • ANSWER:
      If you are one of the people who gets the butterfly rash, and not all of us do, it will come and go. It's very individual, so no one can answer that question.

      If you want to see the wide variety of lupus rashes, type "google images" into your search bar then type "lupus rash" and you will get tons of pictures.

      The malar rash typically does not occur in the fold that runs from the nostrils down to the corner of the mouth.

      Many patients have lupus and fibro in overlap. (Just went to a conference on that today.)

      Good luck with your hunt for a diagnosis.

  4. QUESTION:
    Help I have a severe case of lupus I can't work How do i put the pieces of my life back together. please help
    i have been though chemo, still on a form of chemo pill form daily also taking steroids there is no way around getting off the steroids. I have tried working and make it about two to four weeks then end up in the hospital for a month. I have no financial help I'm 44 years old. I should also mention that when I was diagnosed with lupus with cns and intercranial hypertension. I lose my eye sight with no warning. I'm crying everyday because I'm so worried about my future. I didn't think that I would still be here. Was told that my lupus (other health issures) that I would no live to see 40 years old. Well that is not the case. 44 know and seem lost. I just worry all the time that I will never be financial secure. I can barely afford to feed myself let alone anything extra. I'm college educated. Can anyone offer any advice or any idea that someone may have to help. I have alot of family but they feel that I'm and adult (on my own)
    don't know where to turn or what to do. thank you

    • ANSWER:
      Not only is lupus debilitating, but then you have people in Yahoo answers trying to sell you stuff or get you into pyramid schemes.

      1. Apply for Social Security disability. It takes time and you will probably be rejected at least twice. They have changed the criteria for lupus recently. That might help. I suggest getting a SSD attorney to give you a free consult before you even begin. Some of them will do that. Keep calling until you find one who will.

      2. Find out if there is an indigent health care program where you live. I know it sounds horrible. I, too, am college educated and had a wonderful career and ended up just about like you for quite while. Just do it.

      3. Apply for food stamps.

      4. See if there is housing assistance.

      5. Look into the SHARE grocery program

      6. Apply for meds with pprax or needymeds. If you make less than 200% of the poverty level you will most likely get assistance paying for your meds

      7. When you see your doctors, make sure they write down the struggles you are having. Social Security will request copies of ALL your medical records. Make sure what's in them is in your favor.

      8. You have lupus, it doesn't have you. Try to remember that.

      9. About the one who said go off the chemo, I am assuming that's cellcept or imuran. Don't do it. That person has no clue.

      10. You sound like you are a proactive person in a tough spot. Feel free to email me.

      Best wishes.

  5. QUESTION:
    Is there anyone taking CellCept? If so, how long did you take it and what symptoms did you have?
    SERIOUS REPLIES ONLY. THANKS!

    Hi, I was diagnosed with lupus almost 2 years ago after over 11 years of dealing with various symptoms and flares and kidney disease. Right now I am only taking 1/2 a 250 mg chloroquine tablet once a day but I still have pain and fatigue and my sed rate is going up slowly, which it does during seasonal changes. My doctor wants me to start chemo or steroids, which scares the crap out of me. I saw online that there is something called CellCept that may work to reduce lupus symptoms that may have more tolerable symptoms than chemo, but I don't want to jump into anything. Can someone who has lupus who has or is using CellCept tell me if it works, how long it works, if you experienced any really bad side effects and if so did you recover? And did the lupus come back? Thank you for your help.

    • ANSWER:
      My wife has been taking cellcept for her Lupus for the last two and a half years with little side effects. She was a little sick to her stomach at first but now it really doesn't affect her. It has done wonders for her Lupus flare ups though. She hasn't had kidney involvement since being on the drug and she is only taking 5 mg of prednisone right now. She also has antiocardiolipid syndrome and takes coumadin to thin her blood. If you have any more questions or would like some more detailed info please feel free to email me

  6. QUESTION:
    Anything to help sciactic pain while I am at work as a dental hygenist?
    Sitting is becoming unbearable. I work fulltime, the pain burning and numbness going down my back to my legs is terrible. I have ice on my back and butt all day. I'm not one to take alot of medication . I am also having other symptoms the right side of my face feels like it is burning and numb following the trigeminal nerve. Sometimes it feels as if some thing is crawling on my face.. Myface also looks red on the cheeks and bridge of my nose. I have had strange rashs on my legs and arms not on pressure point areas(calf and upper arm). I have had blood work to look at lupus and MRI for MS with nothing conclusive I need help and doctors can only treat one symptom at a time! It has all started at the same time. It is mostly on my right side. Any information would be helpful or a doctor that listens in Orlando. Thank you,

    • ANSWER:

  7. QUESTION:
    I made up my own job....partimers, kids in school?? you can do this and it doesn't cost a thing to start.....
    I have decided to be a grandma/grandpa sitter. I have three kids who do there own thing and am unable to do real work because of Lupus....but I can help my elderly friends with dishes and meal prep. I don't do anything for them I don't do for my own family and I pick my own hours. There are some down sides to this so please read on.
    I used to babysit when my kids where younger. This is not much different from that. I started this when a friend of mine was DX with ALS, he ended up in a wheel chair and needed someone to drive his lift bus. Since his family members work I was asked if I would mind. I drove a van at the time and figured why not. I am now sitting with an elderly man who is 82 and lonely. I make sure he takes his morning meds, eats breakfast, I am there when he showers in case he falls, we love to watch Millionare, ect. I get paid pretty well. HIs daughters..(like lots of families live some distance away). I met my friend thru his nephew. The family was looking for someone to come in and check on him 3 or 4 times a week. So it didn't cost anything to start up and I only have one friend at a time. As for liability I do have a contract, signed by all parties involved.
    Yes I hit the submit button too soon...LOL sorry. The bad side is sometimes my heart hurts because I can't take him home with me.
    It is easier to answer exact questions so ask away....In the mean time I start at 9am give or take 10 or 15 minutes and visit till around 2:30. I cook.....I DO NOT CLEAN..talk, remininsce (sp) and watch birds, go on rides to feed the critters...ect.

    I find this very rewarding.
    I live in a suburb outside of Chicago

    • ANSWER:
      where am I supposed to continue at!!

  8. QUESTION:
    I need help in keeping my Medicaid Insurance?
    I am a Lupus patient with very limited income. I've recently been told
    by my caase worker I have to pay 4.00 a month to keep my Medicaid.
    This is impossible for me. I just have enough for basics. I don't have a car and take paratransit service. I'm 63 years old and cannot work due to Lupus. I am not eligable for Medicare for a year.Due to Lupus I have numerous medical problems. My caseworker is no help. What can I do?
    Who can I contact? I live in the US, in the state of Illinois. Please someone answer, God bless you.
    p.s. I've had Medicaid for 5 years and the case worker just started requesting this money.

    • ANSWER:
      There is probably an appeal process for your state. If you feel this is incorrect, appeal it. The appeal process should be included in the notifications you receive in the mail from your county job and family services/welfare office. I am in Ohio and have had medicaid before. Sometimes they require a spend-down to offset the cost of your medication and treatment. Maybe they did not add your living expenses in correctly, that is a possibility. Ask the caseworker why this is now being mandated for you and why it is so much. This seems like a normal medicaid spend-down to me though. There also may be charities and organizations that can help you with this cost. If your case worker will not assist you or offer any answers, go to their superior.

  9. QUESTION:
    Life Advice. I just don't know what to do...?
    I feel like its a long story to tell, but I will try to keep it as short and to the point as possible. I am supposed to be moving to Germany this Sunday to be with my fiance. We have been in a long distance relationship for 3 1/2 years and have both been looking forward for this day to come for a very very long time (i was waiting to finish school). However, since December, I have been having chronic health problems, like lightheadedness and headaches which doctors have not been able to diagnose. I have had all the major testing done (MRI, CT of sinuses, EKG, Echochardiogram, been to an ENT, Neurologist, Eyes checked... now just waiting on some blood work checking for lupus and lyme)... I don't feel well and happy the way I want to to make such a move... although I want to see my fiance again so so so so so so much. But I'm not well yet.

    Of course I am going to get health insurance in germany, but the biggest problem is that I am not fluent in German and therefore there will be always a language barrier. I am afraid it may get worst and then there is nothing I can do.

    Should I keep my flight on Sunday, or should I postpone it indefinitely until I can find some answers. My fiance is supportive and of course really wants me to come, but he said only I can make this decision of what is the best thing for me and my health.

    Any suggestions or experiences similar to mine that you can share or support me with?

    I really appreciate it.

    Thank you Yahoo Community!
    ps. my fiance is fluent in german so he could of course translate for me, but i'm worried that won't be enough

    • ANSWER:

  10. QUESTION:
    I need to verify my previous work history to a new job?
    A job that I applied for cannot verify my previous work history because the previous employers no longer have those records available. The work history dates back from 1996 to 2001. My question is how can I get a copy of anything that proves that I did work at that job and the time I was employed there? This is very important to me because I don't have continuous recent work history due to my lupus. So my only experience that I have that meets their criteria is the job I had in 1996 to 2001. Please, I really need someone to help me out with this.Thank you

    • ANSWER:
      if they no longer have your files there is nothing they can do............
      if you just need verification of employment you can use W-2s from those years. if you no longer have your tax returns you can contact the IRS and try to get copies from them. http://www.irs.gov

  11. QUESTION:
    I work with little handicapped kids and I was just diagnosed with Lupus. Should I quit?
    I work with little handicapped kids and I was just diagnosed with Lupus. Should I quit? I am having real weird pains and they require you to do SO MUCH GOD dang lifting and carrying and even changing diapers on a 6 year old going on 7 who kick and hit and scratch and bite and punch! Some kids weigh more than me because I am a very small female. I am somewhat stressed out and dred, ABSOLUTELY DRED going to work, knowing what I have to do. I am fine with the kids, but that lifting and changing is ridiculous, especially with a kids who is going to fight you the entire way through. I am afraid to leave with the state of the economy but I am also very afraid for my health. Should I leave, because I know it can make my LUPUS worse.

    • ANSWER:
      Those of us with lupus struggle a lot with these kinds of work issues. All of my employers (I have 4 part time jobs) know that I have lupus. However, I did lose two jobs because of the disease. In one case, another employee told the boss, "She is going to get sick a lot. You won't be able to count on her." Then suddenly there was no more funding for my position.

      Only you know if you can have an honest conversation with your supervisor. The Americans with Disabilities Act does call on employers to make "reasonable" accomodations for people with diseases or disabilities. There is a lot of gray area in this.

      You are correct, the physical and emotional stress is likely to make your lupus worse. What I would do is hunt for a more suitable job. When you find one, give notice at this one. Being unemployed is also stressful.

  12. QUESTION:
    Can lupus be diagnosed as leukemia at the beginning?
    I am no medical expert, but with today's technology, can a person with lupus be initially diagonsed with leukemia?

    In addition, for both illness, do you treat them with chemotherapy and/or radiation? Which one makes you lose hair? Can you only lose some but not all? And with each session of chemo or radiation, how soon can you recover enough to go back to work?

    • ANSWER:
      The Dr of a person with undiagnosed SLE type lupus would include leukemia into the possibilites of a potential diagnosis before doing various tests and finally diagnosing lupus.
      Lupus is made by a diagnosis of exclusion rather than any one test that determines you have lupus. A person with lupus can have a variety of seemingly unconnected symtoms that when there are enough symptoms present and lab values present will allow the Dr to make a diagnosis of lupus. Usually you must have 4 or more of the 11 potential symptoms and blood work results indicating potential lupus to make a definitive diagnosis of lupus.
      http://www.lupus.org/education/articles/diagnosis.html

      If you had numerous unexplained symptoms then leukemia would be one disease that would have to be investigated and tossed out before a diagnosis of lupus could be made. I hope that I adequately explained what I am trying to convey to you.

      http://www.lupusontario.org/symptoms.htm

      You don't use chemotherapy or radiation to treat lupus although a couple of the drugs used to treat lupus are sometimes used to treat various cancers. Lupus treatments don't usually affect your hair. It would depend on your particular treatment regimen whether hair loss would occur when treating leukemia. How soon you got back to work would again depend on what type of leukemia and what type treatments. There is no one size fits all rule. Hope this helps.

  13. QUESTION:
    Off most meds for Lupus?
    I was officially diagnosed in 2001 with Lupus by a rheumatologst based on a high ANA titer, joint pain, rash, hair loss and other symptoms. Now my primary care doctor is doubting my lupus diagnosis because my blood work isn't showing signs of inflammation even though I am dealing with chostochondritis, joint pain, hair loss, photosensitivity, malar rash, extreme fatigue, depression, brain fog, myofascial pain and other symptoms. Because of my blood work, her and my rheumatologist have taken me off of plaquenil and methotrexate, are tapering my prednisone to 0 and just have me on a multitude of depression meds and celebrex and have sent me to a chiropractor. As the prednisone comes down the pain gets worse but they say since my bloodwork shows no signs of inflammation that it isn't due to the lupus and that the prednisone is not doing anything, it is just something else. I've been on plaquenil since 2001 and generally my lupus has been stable except for the past 2 years. They also added MTX about 18mths ago which helped with my joint pain immensly but because I am still having other symptoms they feel the meds are not working and it is safer for me to be off of all meds. I think this is a huge mistake but have any of you been through this. I made an apt with a Lupus specialist in NYC to get a second opinion because I can't take the pain and fatigue. Am I overeacting to this change? Has anyone been taken off all meds even though symptoms are present and are getting worse?

    • ANSWER:
      Well methotrexate is a chemotherapy drug with deadly side effects! I would advise strongly to never take this medication....please read the side effects.

      http://www.nlm.nih.gov/medlineplus/druginfo/meds/a682019.html

      Long term use of Plaquenil can be deadly. Even celebrex side effects include death. I know a lady with lupus who went to a naturopath and is now pain free and off all medication. My mother has 3 prolapsed discs and finds flaxseed oil works for pain in 20 minutes. Also, glucosamine with chondrotin is great for rebuilding cartilage between the joints but takes a few days to a few weeks to work. Was the test for inflammation a C-Reactive Protein test? There is also the anti-DNA antibody test and the anti-Sm antibody test to diagnose lupus.

      I would suggest checking your Vitamin D levels - should be 70ng/ml or 175 nmol/L, vitamin B12 levels - serum should be over 800pg/ml and thyroid tests including TSH, free T3, free T4 and thyroid antibodies. Auto immune diseases seem to have one or more of these problems a good percentage of the time...and all three can also cause all of your symptoms except for the malar rash...pretty conclusive to lead to a diagnosis of lupus with this rash. I can only say if you can relieve your pain naturally then go for it. Drugs will shorten your life span. My mother took celebrex and tramadol but now only takes flaxseed oil, glucosamine and chontroitin and plenty of vitamin D..she also went to a pain work shop and was doing heated pool therapy for over a year. I just found a video of a woman with lupus who is now pain free and med free (after 30 years) from taking antioxidant opc-3. This is definately worth trying!

      Inflammation:
      http://www.ultrawellness.com/blog/ultrawellness-key-3

      Lupus cure - opc-3:

  14. QUESTION:
    Is there any deals you can make with Credit card (Bank of america) companies for disabilites?
    I fell into a relapse with Lupus. I am unable to work right now.

    I am already on Bank of Americas Finanical hardship program. I pay 250/mo for 5 years. This will pay my balance.

    I am scared to death to lose this good deal. Is there something I can do ?

    Thank you

    • ANSWER:
      Most credit card companies either have a built-in protection plan or one that you can pay a few cents per 0 on your balance per month. Many protections cover times of disability.

      You might need to be enrolled in the plan for a few months before they agree to activate it.

      But, perhaps just calling them with your situation, they may be able to do something.

  15. QUESTION:
    Can radiation for breast cancer be given to someone with Lupus and Fibro Myalgia?
    Once again, this is sad, but supposedley my mom also has Lupus, and Fibro Myalgia(sp). Would this allow her to still go through radiation and work all the time and drink all the time. five years ago she supposedley needed a kidney transplant or she would die. Now, with still her own kidneys, she is an alcoholic, she drinks to dull the pain she says. Also, I was reading a website on BC, and it said that chemo is usually done before radiation. My boyfriends mom did radiation first, then the chemo, and all of her tumors are pretty much gone, thankfully. Again, only serious answers please, and thank you.

    • ANSWER:
      CHFpatients.com - The Beat Goes On heart forum Archives
      ...and can say your problems with fibromyalgia and lupus are familiar ... are side effects from the chemo and radiation during breast cancer...

      www.chfpatients.com/archives/archive1-2001b.htm

  16. QUESTION:
    Just found out i have Lupus. What can I expect?
    My doctor called me today with my blood work results. He said I have Lupus. I've been to the doc a few times since July which is VERY rare for me, but I've felt terrible. Joint pain, fatigue, malaise, just feeling like I have the flu on and off for a while now. I have to see a rheumatologist, what else can I expect? What medications do you take for it? Do you have side effects from the meds? Any personal experience info would be great. Thanks

    • ANSWER:
      Hi.... I'm so sorry to hear that you have lupus. I'm 23 and I was diagnosed 4 years ago. Lupus is a really tricky disease which is why it is so difficult to diagnose. Everybody is different & everybody has different triggers for flares. You can only learn from experience what will trigger your flares. I would recommend keeping a health journal to keep track of it (I have an extra one I got from the lupus walk if you want it). In terms of medications: I think the only medication actually meant to treat lupus is "plaquenil" which your rheumatologist might have already started you on. (P.S.- they haven't come out with a new lupus med in 50 years!) Your rheumatologist will now give you meds to treat your symptoms (like joint pain & inflamation). A lot of the meds they prescribe are meant for rheumatoid arthritis... for example: remicade, prednisone, imuran, methotrexate, enbrel, arava, orencia, etc. It will be really frustrating at first because your rheumatologist will try many different medications & dosages to find the right "cocktail" of meds. Some things that help me are walking around/exercising in a warm pool. The YMCA is a good place to go for that. They actually have a class that the Arthritis Foundation formulated called "Twinges in the Hinges" to help move your joints around. Please just hang in there & remember to always put yourself first & take care of your body. Make sure you keep your stress under control, stay out of the sun, get plenty of sleep, and exercise as much as your body will allow. If you have any questions or just need to vent, I would love to help in any way I can. My email is jmminassian@yahoo.com

  17. QUESTION:
    SERIOUS QUESTION - Does anyone know anything about Guillain-Barr Syndrome? Please read details.........?
    My father has suddenly become very ill in the past 6 weeks & 2 different people mentioned that it could be Guillain-Barr Syndrome - a rare condition.

    A friend sent me information on this condition - http://medicalcenter.osu.edu/patien...

    All of his pain is muscle & neurological based on what he has told me.

    The pain started in right shoulder then progressed to the left shoulder, 2 weeks later his legs started giving out, then his arms with severe inflammation all over his body. He is on high doses of prednisone and morphine - the pain moves around his entire body. Lots of blood work (including Lyme Disease & Lupus) are negative. He was treated for Lyme Disease before the test results were back because he goes camping.

    At age 68, he went from being very active to practically not being able to walk, w/ severe weakness in both arms in less than 6 weeks. He is seeing a Rheumatologist Friday.

    Thanks for any info you can provide.
    I have listed this question her in P&S because a lot of my contacts answer here. It is also listed in Medical.

    Thank you in advance for any information you can provide.
    My dad has not had a spinal tap yet - I am going to contact his doctor on his behalf and request this test.

    Thanks so much to everyone for any information!

    Hugs
    Susie
    ALSO - Please add a STAR so your contacts that I may not have will see the question also.

    Thank you Y/A Family!

    • ANSWER:
      So sorry to hear this. I know nothing about it, but did star it so it will pass along. :)

  18. QUESTION:
    Getting Hired with Lupus?
    I was training to become a police officer but came down with systemic lupus. I gave those dreams up and worked Security for several years. My heath while good enough to fool most people is not perfect.

    (Minor Light Sensitivity)
    (Circulation issues - patrols were okay for me actually)
    (ALWAYS COLD - low body temp)
    (Migraines 3-4 days of the week)
    (Fatigue - Soreness in joints)

    I push through the day most of the time. Physically sick after my 12 hour shifts but no one knew until I had a flare. In 3 years working for him I took 2 days off sick. Then had to have an operation and was off for several months after a particularly bad day when I had passed out twice from the pain. I think in all honesty the company put pressure on my boss to get rid of me. My previous boss had a terrible attitude towards the situation. Almost inhumane I can prove no wrong doing on his part, he was sneaky but I am sure many of you know the drill. It got toxic. I decided to leave before he could blame me for anything.

    I'm searching for work now. Coming up against the same issue. Do I tell them and not get hired... Or do I keep it a secret and hope I don't crash? I am very good at hiding it.

    WHAT JOBS DO YOU GUYS DO? I will say this right now Security is a COMPLETELY BAD IDEA! Unless your working a control room or something corporate where you monitoring a building its a huge amount of physical activity.

    Any Ideas I feel absolutely lost and trapped. Id like to figure out a new direction even if it requires more schooling to end up with a job I CAN DO even with Lupus.

    Any ideas or life experiences are helpful. Especially if anyone know someone who found jobs with MS or other physically debilitating diseases. Any help at all works even if you just can throw out ideas for part time work that maybe I haven't considered. The economy in Canada isn't as slow but I have put out about 50 resumes last month and scored some interviews but always lose it when it comes to the medical questions.

    • ANSWER:

  19. QUESTION:
    my dad tested positive for lupus what should i do?
    Recently my father, 52, has had trouble sleeping so he decided to have a physical and blood test. There were no results for his insomnia but the doctor said that he tested positive for LUPUS. The doctor decided to do blood work 1 more time before sending him to a specialist and once again he tested positive for lupus.

    My dad is a really healthy guy, he really is, its just lately hes had trouble sleeping and has been fatigue

    How serious is lupus? How worried should i be? i understand that it destroys healthy tissue and if it destroys tissues you need to survive it can kill you. My dad said that everything else tested fine, his heart, his kidneys, everything else was fine. What can i do to make sure he doesn't have a shortened life span? does lupus ALWAYS effect the life span? or only on severe cases?

    *please don't answer with a LINK to a website. i want authentic answers, if any of you have experiences or know someone that was diagnosed with LUPUS at age 50+ please share*

    • ANSWER:

  20. QUESTION:
    what careers have some of you lupus sufferers pursued?
    i don't want the disease to control me or to limit my career options. but the reality is that i can't handle high-stress work and I can't handle being on my feet all day. so i'm curious to hear what jobs some of you have pursued.. or what jobs some can advise for someone with lupus (so ... careers that aren't high-stress)

    • ANSWER:
      It is really a very individual decision as lupus affects everyone so differently. Charity work is a great one as it makes you think about other people's problems, and mostly you don't have to be on your feet all day. I run a lupus charity so that totally motivates me even when I'm under a lot of stress or tired. When you're mind is occupied I think it helps, I sort of 'forget' my lupus when I'm busy (even though it niggles away in the background), so anything that keeps you busy is good.

      I think as you say as long as you're not in the market to be in an extremely physical job such as landscape gardener or construction work or in a warehouse where there's lots of lifting etc or anything very stressful such as a paramedic or police where you'd probably end up very stressed, I'd say lots of other careers are very suitable.

      If you have any talents perhaps you could even think about setting up your own business as with the internet is far easier to advertise that. So people teach piano/do hair, make cakes/candles/jewellery etc etc etc and they do quite well from the business which you can do at your own pace.

      From the hundreds of patients I've spoken to they cover the entire spectrum of careers from high powered company owners and doctors to i.t. workers, party planners and part time office workers and some celebrities in there too!

      The World's your oyster, don't let lupus hold you back from doing whatever you want to.

      Good Luck!

  21. QUESTION:
    If you have lupus no money to buy your own food and you are not eligible for foodstamps yet and have no tran..?
    sportation and are in your 20's and have to live with your parents who act like buying a carton of eggs is a lot of trouble, or that taking you any place (the only place you ever go is the grocery store which is 1 mile away and the only reason you go have to go in is because they don't want to) is really putting them out when they're not poor and completely able and you can't work???
    What would you do?

    • ANSWER:
      What I would do is look into state subsidized apartments and try to get on the waiting list for one. I understand that you have lupus and it is a very debilitating disease. However, I do feel that you can still lead an independent life. Go to your local aid office and inquire about ssi and other benefits you might qualify for.

      Your parents might be trying to teach you that live does not end with Lupus. I really don't want to believe that they don't care for you.

  22. QUESTION:
    How do I get a grandparent visitation custody lawsuit moved to a diff state?
    My daughters maternal grandmother is suing me for grandparents visitation in the state of KS, My daughter, new wife and Myself live in Oklahoma.

    My daughter has lived here for 3 months and I have her enrolled in A head start program. We make to much for her to get in to this program, but we had her tested and she shows delays in 3 areas. Speech, Emotions and social. tests have shown that she has a 50% delay in these departments. I believe that the reason for these delays are that she lived with her grandmother and mother for 2 and a half years. I had to sue to even be able to see my daughter. I sued for full custody and got 4 days out of every 14, had to pay all insurance, everything that was not covered by insurance, 200$ a month in child support and her mom doesn't drive so I had to drive 500 miles round trip to get her. Then in June of this year she decided that living with her mother was harming her and her daughter. so she moved out. Her mother has systemic lupus, with having to work and taking care of Madison she was getting sick. She called and asked if I would take Madison and Keep her. I told her that If I got her I was going to enroll her in school and I did not want her to have to move again. She said that was fine and that she would come visit.

    In this 3 months Her grandmother has contacted me once and asked to come and get Madison, she was force full and demanding. I told her that she could not come and get her, I said that if she wants to drive her mother down here I would be more than happy to Give her to her mother. she started yelling telling me that I was worthless and that She was just as much a parent as I was. I said that I don't have to give my daughter to anyone besides her mother. I then said that if I had it my way she would not see her at all, but I do not have a right to say who her mother lets her see and if she wants her grandmother to see her then I can not say no.

    So this month I got the letter, I am being sued for Grandparent visitation rights, because she lived with my daughter for 2.5 years she has a right to force a court to make me let her see her. I can not afford a lawyer. She is asking for every other weekend and wants me to meet her half way(even though As a parent I had to drive all the way) Every other birthday, Every other holiday and 6 weeks out of the summer. This is parental visitation, It's better than what I got. The court date was set for tomorrow, but I got there lawyers to change it to the 29th. She didn't even make a new lawsuit she has put a motion in on the one that I made. Madison's mother and I are on the same side on this one. Neither one of us want Madison to see her grandmother. one of the grandmothers other children and her husband do not allow there child to see her either. Since this lawsuit only one of her other kids are even talking to her. We believe that she is suing us cause she is lonely and has to have something to control.

    Now that you have the story here is the question.

    How can I get this lawsuit moved to Oklahoma from Kansas?

    Any help Would be wonderful, we are still paying off the first lawyer and he will not do anything till he is paid off and another retainer is paid. If I can get it moved to Oklahoma we have a lawyer that will help us. If not we gonna take a crash course on law and represent ourselves.

    Thanks again.
    Also, I do not contact the grandmother. She has lawyered up and I refuse to speak with her. There for a witness to the phone convo or recording it.

    • ANSWER:

  23. QUESTION:
    Can someone with Lupus and Antiphospholipid syndrome whose kidneys start failing, go from 37% to49 w/o dialysi
    This is on my sister and she is always taking off work lately and
    finally told me about her kidneys failing, she said she was at 37%, then got it back up to 49%, I want to know if she is telling
    me the truth, she says the doctors say she is ok at 49%, I want
    to know if she is taking dyalysis and doesnt want me to know
    I know about a month ago she said she was going in for a hysterectomy, but did not want anyone from the family coming
    to the hospital, did she have a shunt put in for dyalisis. She has had Lupus for 23 years and always keeps a lot of secrets
    from me. I am a recovering Meth addict and I think she thinks if I find out she is dying that I will relapse, also she has SLE the worst kind of lupus you can have and over the years she has lost 5 babies, she has gottten rheumatoid arthritis,and she breaks out recently with some terrible rashes ! please help me
    undertand whats going on. My sister is only 47 years old ! Help

    • ANSWER:
      Kidney failure is a tricky thing to intrepret... The percentages you are quoting sound like glomerular filtration rates (GFR), which are dependent on serum creatinine, age and sex. The serum creatinine is a tricky thing in itself in that it is very sensitive to many things - the most common being hydration status. That is because most blood tests are a fraction (e.g., what you are looking for/volume).

      If you are are dehydrated, it will make your creatinine rise and your GFR decrease.

      Kidneys are wonderful organs. One's GFR has to be between 10-15% before dialysis is usually considered. Unfortunatley SLE and Antiphospholipid are rough on the kidneys and usually progressive. However, most people die WITH kidney failure, not OF kidney failure

  24. QUESTION:
    Can some people with lupus call me please,I have so many ?'s.?
    Someone said they do not think I can wash my blood,cape aloe ferox it cost 0 it's like a detox.look up the site it says it can help with lupus(wash my blood).Anyway if you have lupus can you call me I have so many ?'s.1-347-698-7580 my name is Kim.What natural product will help what vitamins will help,I think if I take a lot of vit C,and iron it might help I don't know I'm hoping for a miracle,I have asthma,I catch cold so easy,I just can't deal with more sicknesses.I pray for me not to have lupus.I don't know how to work this site so i can e-mail people,My e-mail is grenadas_finest_andrew@ yahoo.com maybe someone can talk to me that way if they don't feel comfy calling.Thanks God Bless

    • ANSWER:
      Have you tried to go on WebMD or any other site & look up the info? There are online support groups, groups at some hospitals & so many places now that you can get reliable fast info. I have friends with lupus & they started at the above places. I will let them know you're on here. You might also try Mayo clinic website or other reputable places to find advice. I will pray for you. Hope this helps some.

  25. QUESTION:
    Note to all patients with fibromyalgia or lupus...............?
    To all of you out there with fibro or lupus, do not get the seasonal flu vaccine or the H1N1 vaccine. Both fibromyalgia and lupus are auto-immune diseases cause the release of too many antibodies that attack your muscles causing a wide-spread pain condition. Getting the vaccines will cause your body to release more antibodies than your system can handle and make your condition extremely severe for a week or more. Trust me, I learned my lesson the hard way and am currently suffering from it. I was told not to get them by an E.R. Dr. I know that has lupus and was given the vaccines because of work, but out of fear for my children I got them anyway. Please don't do it!

    • ANSWER:
      REAL FIBRO IS NOT BELEIVED TO BEAUTOIMMUNE--check your research--

      it is a disroder of the nueor system

      autoimmune means the body atatks itself

      in FMS--teh body is not attacking itslef---there is immune dysfunction menaing it over or under reacts to foreign organisms

      i have had teh seasonal flue shot (with fms) and never had a problem..

      on the other hand--if i do get the flu--it can make my condition permanangtly worse-as whenever i get a serious injury or illness my condityion tends to permanantktly deteriorate

      Most docs are not competant to deal with fms--especially and ER DOC

      you PLEASE DON"T DO It--don't give out false info

  26. QUESTION:
    Your Lupus Experience?
    Just diagnosed with lupus (dsDNA antibody was positive) but I have to wait a few weeks before the rheumatologist can see me and my primary care doc isn't exactly full of information. So I'm curious about your personal experience with lupus. I know everyone is different, but what has it been like for you?

    1. How long do your flare-ups last and how long do you usually go between flare-ups?
    2. What are your symptoms during flare-ups and how severe are they for you?
    3. Do you have any symptoms at all between flare-ups?
    4. Does your doctor have you on a special diet and/or exercise routine?
    5. Has your lupus affected any of your organs or other systems? Please tell me about that.
    6. Are you on meds? What has that been like for you?
    7. How do you cope and go about your life (work, family, etc.) during flare-ups?
    8. Does your lupus prevent you from doing anything?
    9. How do you deal with the poor memory/concentration and "lupus fog?" Does that improve when flare-ups are over or will they always be there?
    10. What is yor immune system like...do you get other colds, flu, etc. very easily?

    Any additional information you have about your experience would be really helpful. I know about all the informative websites, but they don't tell me anything about a person's personal experience with it.

    Thank you!

    • ANSWER:
      Hello,

      I actually created a Yahoo! account just to answer your question. :)

      1.) My flare-up lasted about 2 months, but I have only had one. It was before and a little after I was diagnosed, which was about a year ago.

      2.) Severe pain in wrists and fingers (my lupus triggers arthritis), fatigue, head aches, nausea, and dizziness.

      3.) I did at first, but my medications are sorted out now, so I have no symptoms at the moment.

      4.) No, although exercise is recommended for lupus. It sounds crazy, but I feel so much better after a work out.

      5.) Yes; I have nephritis, arthritis, anemia, and Raynaud's syndrome. Lupus affects everyone different, though.

      6.) It was hell at first! I was on a very high dosage of steroids, but now it is a lot lower. I take Prednisone, Cellcept, Omeprazole, Hydroxychlor, a multivitamin, and a Calcium supplement. The side affects were bad at first, but that was only because they had me on a high dose to stabalise me.

      7.) I have an IEP for school if needed. Family is supportive. :)

      8.) It affected my fine motor skills before I was on medication. Now, it doesn't affect me much.

      9.) (haven't experienced that)

      10.) Stay away from sick people. My immune system has been ok for the most part, but when you do get sick, it's 10 X worse than normal.

      Additional info:

      A good mental attitude is key. Surround yourselves with loved ones, and don't let yourself feel down! Get involved with the Lupus Foundation. Good luck!

  27. QUESTION:
    What causes someone to develop Lupus...?
    and how likely is it that two people, who have worked side by side for a decade, were diagnosed with this disease within a week of each other? Should I be worried working in the same environment? I'm fairly sure it isn't contagious, but can something in the environment you work in daily cause it over a long periods of time?

    • ANSWER:
      Lupus is definitely NOT contagious.

      Researchers believe that some people have a genetic predisposition to develop lupus. It is not exactly hereditary, just that there is a slightly higher chance that you will develop it if you have very close relatives with autoimmune disorders.

      First a person has some genetic make up that means they COULD develop lupus.

      Then there has to be a trigger. The most common triggers are certain viruses, high and prolonged levels of stress or trauma, sunlight, certain drugs (birth control pills and some blood pressure meds). Two people could be in indentical circumstances but only the one who is genetically predisposed would develop lupus.

      There have been investigations into environmental factors. Nothing has been proven as far as I know. If you are exposed to a lot of chemicals, that could be problematic.

      It is likely that your coworkers had lupus for a long time. Most lupus patients go years before they get a correct diagnosis. The difference now is that more doctors are becoming informed about the symptoms of lupus, how to diagnose and treat it.

      Did you know that more than three times as many people have lupus than have multiple sclerosis, sickle cell, and cystic fibrosis COMBINED?

      You can be a good friend to your coworkers by not letting lupus get in the way of your relationship. They will be frightened and isolated enough without you seeming to avoid them. Learn about lupus at the link below. Encourage them to learn about it to.

      Write your senators and representative in Congress asking them to support the Lupus REACH amendments. The funding requested in that bill is equal to 8 minutes of the war in Iraq. There are 1.5 or more Americans with a form of lupus. There is a link on the website where you can write.

  28. QUESTION:
    RE: Lupus - Is there any place one can go for specialty treatment?
    I have heard that some places do extensive blood work, etc. to find out everything that is going on with you.

    I stay so exhausted, and I am afraid it is affecting me neurologically. I always seem to have this "brain fog". I live in a rural area, and there are no good rheumatologists here. I just want a really good, comprehensive exam.

    • ANSWER:
      If you live within driving distance of Tennessee, try Dr. James Holbert. He is the best in the Mid-South. Patients come from all over to see him. My girlfriend has lupus and she is patient of his.
      Hematology and Oncology Specialists
      5220 PARK #150
      Memphis, TN 38119
      Phone: (901) 767-1011

  29. QUESTION:
    Doctor just doesn't seem to care, what can I do?
    I had wrote a question about my symtoms and the possible diseases. My doctor has done a blood test and it came back normal so they wanted to say "oh, you're fine. go home." I've done my research and i KNOW there are many conditions that don't come up in blood work or if it's Lupus it hasn't been affecting my body long enough to show up and there are occasional cases that nothing ever shows up in blood work. I'm so distraught and frustrated. This all came to a head after I had my daughter and I've just been getting quickly and consistently worse since then (she's 11 months old). It's not fair to me or her that I'm living this way. My doctor denies it, but like I've experienced with MANY of my doctors they don't trust nor offer me equal treamtent because of the piercings and tattoo I have. Its obvious, and it's frustrating. If my doctor won't do anything and is in no hurry to treat me, help me, or find out what's wrong. My hope that I will ever get treated is fading so fast now.

    • ANSWER:
      There is a special blood test for Myasthenia Gravis. Pregnancy can trigger this muscle disease. When I was five months pregnant I started talking funny and they (the Drs.) said it was sinus. When they finally diagnosed me I couldn't talk right, I had trouble swallowing, and I was unfunctional. So from 1983 to 1995
      I suffered and in about 18 months after having my baby I was in so much pain I was in the bed for about 3 yrs. Looking back fibromyalgia and arthritis had been triggered too. In 1995 when they finally diagnosed me they sent me to Emory and it was
      so bad that 6 months later they did chest surgery (thymectomy)
      on me. And then I found out that it could pass to my baby so we went ahead and had her checked and thank God she was negative. Have this test done now because when you are sick
      for as long as I was and nobody is actively treating you so many
      other things can go wrong. Good luck and God be with you.

  30. QUESTION:
    How do you get rid of stress?
    And please don't say that's life, life's tough, blah blah blah. My mom has been ill since last winter, we've just got her test results in and she has lupus. She's been working shorter hours and well, I work full time and every cent goes to bills, not my bills though. Most of my money for school for this fall is gone, my savings is gone. I'm stressing about school, work, my mom's health and to top it all off, three months ago my very ill sister was diagnosed with MS and this year alone I've lost 5 close family members, aunts, close cousins, an uncle. My other sister just moved home because she was homeless and has brought her problems along with her. My little brother and his girlfriend is having trouble and because they can't come to some kind of compromise, my brother's gf won't let him see his son, and I miss my nephew so much.

    I need to get rid of this stress. I'm easily frustrated at the littlest things and I get angry and bitchy quickly too. Any advice? Thanks in advance.
    I just want to sleep the days away and not worry, unfortunately thats not possible. Any help would do.

    • ANSWER:
      a few years ago my mom and grannie were sick and lost all my family and sometimes i would just take a walk or get on here an go to different forums and see if i couldnt talk to someone and in the process i got to escape from home but yet i didnt leave the house but i sure felt better and i also would turn on the radio late at night and take a bath with candles not much but sure did help

  31. QUESTION:
    Can a Doctor be held responsible for a misdiagnosis?from carpal tunnel to DDD/rheumatoid arthritisand/or lupus
    I have a concern and maybe some of you can help me. I have been in chronic pain and out of work for months now. It started in January when I went to see my regular Doctor who felt I had carpal tunnel. She referred me to an orthopedic who agreed so then referred me to a Neurologist. This Neurologist said it wasn't carpal tunnel. He ordered some MRI's to rule out MS. Then before even looking or discussing the MRI's with me...he diagnosed me with thoracic outlet syndrome and started doing nerve blocks and trigger point injections. He said this was all work related so I filed workmans comp and got an attorney. WEll...nothing he did helped...actually I am much worse than I was in January. I'm really scared. I pulled my MRI report that shows some problems in my cervical spine. 2 Herniated discs, straightening of the lordosis and spondylosis (degenerative disc disease). THis was never brought to my attention! Now what do I do? Did he screw up and make things worse? what a mess

    • ANSWER:
      I would say that you would have a very hard case to prove that the neuro caused you to be in more pain, especially considering that the MRI report shows the problems you had in your neck before the doc did anything to you. More than likely, the neuro did not cause you to have more pain but also did not do anything to help your pain from getting worse. As long as the treatment the neuro gave you was within the scope of practice and an accepted treatment for your symptoms I don't think the doc committed negligence.

  32. QUESTION:
    blood/ANA results 1:160 speckled...Lupus?
    Hello,

    I received a pleasant call today from my doctors office saying that they got my recent blood work back and there was an ANA and then they said something about rheumatoid arthritis(RA). They said they were calling a rheumatologist to set up an appointment for me.

    In the meantime I looked up ANA and RA. When the doc's office called again, I asked for clarification of the test results. Apparently, RA was tested for and was not present. My numbers were 1:160. The pattern is speckled.

    I have an appointment set up for a few weeks and will find out more then. In the mean time, can you help decipher these blood results.

    The symptoms that led to the blood tests involved my legs and feet feeling dead/numb in the morning when I awake. I swing them out of bed and they don't fall out from underneath me but they hurt a little bit and don't feel like they have joined me yet. It doesn't take very long for them to wake up and be normal. The doc scheduled an EMG/nerve conduction. That is an insane test and I hope I never have another one, but I digress. The EMG was fine leaving the blood work to come back as the next evaluator.

    Other symptoms are harder to gauge because I take 5mg of Oxycodone for IBS. Three times a day I take it usually. It does a great job of taking away the general aches and pains of being a not-very-active 34 year old man along with helping with my abdomen. I mention this because alot of the symptoms of lupus or arthritis may being masked by the Oxycodone. I know that I have joint pains and muscular aches. I just chalked them up to getting older and my weight rising to 245lbs. That is an all-time high weight and I thought my joints and muscles were just struggling to keep up.

    Anyway, I don't have many of the symptoms that seem to be indicative of a Lupus diagnosis. Such as:

    fever
    anemia(that I know of; surely my blood work over the last year would show that, right?)
    pleurisy
    rash
    light-sensitivity
    hair loss
    abnormal blood clotting(that I know of)
    Raynaud's(that I know of)
    mouth or nose ulcers

    So basically,

    My legs and feet hurt when I wake up or after a long drive or after lying down for awhile like when you are watching a great movie and don't get off of the couch for awhile).

    My hands seem to be a tad bit weak. Sometimes I really have to stretch my fingers and shake them around to wake them up also.

    My blood numbers were 1:160 with a speckled pattern. Something about ANA(antinuclear antibody).

    Any ideas? Thoughts? Honesty is appreciated. Best answer will be awarded. Thanks in advance for your help!

    • ANSWER:

  33. QUESTION:
    Help me with these blood/ANA results please? It is lupus?
    Hello,

    I received a pleasant call today from my doctors office saying that they got my recent blood work back and there was an ANA and then they said something about rheumatoid arthritis(RA). They said they were calling a rheumatologist to set up an appointment for me.

    In the meantime I looked up ANA and RA. When the doc's office called again, I asked for clarification of the test results. Apparently, RA was tested for and was not present. My numbers were 1:160. The pattern is speckled.

    I have an appointment set up for a few weeks and will find out more then. In the mean time, can you help decipher these blood results.

    The symptoms that led to the blood tests involved my legs and feet feeling dead/numb in the morning when I awake. I swing them out of bed and they don't fall out from underneath me but they hurt a little bit and don't feel like they have joined me yet. It doesn't take very long for them to wake up and be normal. The doc scheduled an EMG/nerve conduction. That is an insane test and I hope I never have another one, but I digress. The EMG was fine leaving the blood work to come back as the next evaluator.

    Other symptoms are harder to gauge because I take 5mg of Oxycodone for IBS. Three times a day I take it usually. It does a great job of taking away the general aches and pains of being a not-very-active 34 year old man along with helping with my abdomen. I mention this because alot of the symptoms of lupus or arthritis may being masked by the Oxycodone. I know that I have joint pains and muscular aches. I just chalked them up to getting older and my weight rising to 245lbs. That is an all-time high weight and I thought my joints and muscles were just struggling to keep up.

    Anyway, I don't have many of the symptoms that seem to be indicative of a Lupus diagnosis. Such as:

    fever
    anemia(that I know of; surely my blood work over the last year would show that, right?)
    pleurisy
    rash
    light-sensitivity
    hair loss
    abnormal blood clotting(that I know of)
    Raynaud's(that I know of)
    mouth or nose ulcers

    So basically,

    My legs and feet hurt when I wake up or after a long drive or after lying down for awhile like when you are watching a great movie and don't get off of the couch for awhile).

    My hands seem to be a tad bit weak. Sometimes I really have to stretch my fingers and shake them around to wake them up also.

    My blood numbers were 1:160 with a speckled pattern. Something about ANA(antinuclear antibody).

    Any ideas? Thoughts? Honesty is appreciated. Best answer will be awarded. Thanks in advance for your help!

    • ANSWER:

  34. QUESTION:
    Do I have Lupus or Rheumatoid Arthritis?
    I was diagnosed with Rheumatoid Arthritis 12 years ago (I am now 53), and have since developed additional symptoms. I have debilitating fatigue, unexplained fevers, a "butterfly"rash on my face, severe anemia, frequent nausea and vomiting, pain, numbness, tingling and swelling in my hands, fingers and one of my knees, headaches and "hazy" urinalyses. I have also had 2 hospitalizations (once for 3 weeks) this year for kidney failure secondary to dehydration. My rheumatoid factor has been positive since the time I was diagnosed, but I cannot locate any blood work where an ANA test was performed. My doctor is suspicious that I may actually have Lupus, because of some of these more recent symptoms, and the fact that I have yet to develop any deformity in my joints. I have been on methotrexate and Enbrel for many years. Can you give me an opinion? I do not have health insurance, so I am saving up to pay for the additional blood work I need. In the meantime, I am trying to get some feedback on these symptoms. I also suffer from fibromyalgia, migraines, and have had 5 surgeries on my cervical and lumbar spine. Thank you.

    • ANSWER:
      sounds as if you were misdiagnosed iwth FMS and really have Lupus.....that was just mild before..

      most docs are incompetant when it comes to fms and use it as general label for pain..so most people really have something else...

      your spinal issues alone with mimic fms...lupus mimics fms...

      it is possible to have fms and those, but being that you weren't properly diagnosed with other conditions--once you can get competant care you need to reassess if you really have fms

      you can have RA and Lupus too

  35. QUESTION:
    please answer(lupus)?
    Today the doctor said I have mild lupus I looked at the symtoms of lupus I have non.the ana is a 294 I think,all I know is when I stand up from sitting there is a sharp pain in my leg then it goes away,I looked up lupus and i can't understand how I have a mild case with none of the symptoms except for this blood work,should I get a second opinon.I'm really confuse and she gave me plaqunil.I would think if you have lupus you just have it how can you have a mild case and no symptoms,thats like being mildy pregnant I would think.I don't have any pain,or tired or rash,my mom says I just need to thank that I don't have any bad pain or other symtoms.

    • ANSWER:
      I am concerned by that diagnosis because it doesn't sound like the data is there to support it. I'm not a doctor, but I have studied some aspects of medicine and am helping to monitor a real SLE patient.

      Here's part of why I think that may be a hasty diagnosis:
      "The 11 criteria used for diagnosing systemic lupus erythematosus are:

      malar (over the cheeks of the face) "butterfly" rash

      discoid skin rash: patchy redness that can cause scarring

      photosensitivity: skin rash in reaction to sunlight exposure

      mucus membrane ulcers: ulcers of the lining of the mouth, nose or throat

      arthritis: two or more swollen, tender joints of the extremities

      pleuritis/pericarditis: inflammation of the lining tissue around the heart or lungs, usually associated with chest pain with breathing

      kidney abnormalities: abnormal amounts of urine protein or clumps of cellular elements called casts

      brain irritation: manifested by seizures (convulsions) and/or psychosis

      blood count abnormalities: low counts of white or red blood cells, or platelets

      immunologic disorder: abnormal immune tests include anti-DNA or anti-Sm (Smith) antibodies, falsely positive blood test for syphilis, anticardiolipin antibodies, lupus anticoagulant, or positive LE prep test

      antinuclear antibody: positive ANA antibody testing "
      http://www.medicinenet.com/systemic_lupus/page3.htm

      Besides the fact that having an incorrect diagnosis can pose problems (esp. if prednisone becomes a medicine of choice to use), it means the actual problem remains undiagnosed and untreated.

      You said "the doctor" said you had lupus--is he actually operating within what he's really familiar with? Having had to haul my parents around to many a specialist I know that when I took my mother who probably had just a cold to her regularly scheduled cardiology appt. and my mother asked the cardiologist if she had a cold, the doctor replied, "I wouldn't know. I do cardiovascular. Period. Don't deliver babies. Don't do skin. Know nothing about that stuff."

      Hopefully she FORGOT about that stuff, but you get the point. The field of medicine has exploded--so much we know, so much we guess at--and no matter how bright or intuitive A doctor is he can't accurately diagnosis EVERYTHING.

      What if it turns out you have something cardiovascular? Inaccurate SLE diagnosis will not help, could hurt. I'd ask to be referred out for a second opinion.

      Good luck. I hope it turns out to be a short-term non-significant problem.

  36. QUESTION:
    can someone who has lupus give me some advice?
    for the past 5 months...i've had a spreading rash on my body...started on my chest (for about 3 months)...didn't panic about that....but then it spread to my leg, shoulders and arms. I then booked an apt with a well know dermatologist practice in the area. I saw a young trainee and she told me i had ringworm...gave me 2 weeks worth of medication and asked me to get blood work done.
    this didn't work so when i went back the 2 weeks later...another doctor met with me and said i'm sorry but you don't have ringworm...we believe its lupus. she said we need to take a skin sample to do a biopsy and will get back to you within 10 days.
    friday willl be the 10th day...but since i've met with them 5 days ago....its gotten even worse...should i call up today ????
    also what is the treatment ???
    what helps to cover up the rash ??? spray tan ????
    i just need to know as much info as possible about lupus...i've googled of course but i want to hear from someone who has it.
    i have had hair loss....some fatigue (but maybe thats in my head )...and my wrists do ache in winter time......i'm 28 years old !! female
    i know everyone talks about the butterfly rash...i do not have this. - no rash on my face of yet.
    just the other areas i mentioned...starting to see tiny spots coming on my hands and feet.

    • ANSWER:

  37. QUESTION:
    can you take 2 600 mg ibuprofen at a time?
    I have systemic lupus and I just started work recently and I'm in extreme pain and my rheumatologist has only given me 600 mg ibuprofen. Is it safe to take 2 without risking your life or soemthing cause I really can't take it.

    On a side note, if anyone knows any creams or something that would help with achey joints when you put it on, please tell me!
    I asked my rheumatologist about upping the dose and he ignored me completely, so im out of luck as far as that goes.

    • ANSWER:
      the Maximum dose to take at one time is 800 mg. perhaps your doctor would increase your dose to this if You told him You are still in severe pain with the 600 Mg's. or maybe he could change you to a stronger med. sometimes you are allowed to take pain meds alternating between a narcotic and a med i.e. ibuprofen. Talk to your Dr.

  38. QUESTION:
    Anyone with Lupus..or who is a doctor can you please help me?
    Ive been having symptoms for years without anyone ever finding anything wrong with me..apart from Anaemia and low white blood cells..haemoglobin..I have so many symptoms its unreal..I dnt even no if its lupus or whatever is wrong.but i am really just dying to find out what is wrong with me..il say the symptoms..well il try to name them all..lol..I dont think this is normal..im 20 years old female btw..i am always tired but cnt sleep..i have had ongoing chest problems..i was told its probably acid reflux but i dont know..never had tests for it..ive got a swollen parotid gland..which im waitin to be tested and iv had it for a few months now..was givin antibiotics and all for it but they never worked..my dentist refered me to someone bt they hvnt got bak yet for an appointment for me..i also hav problems with my jaw joints..they keep lockin lik tmj..and i had inflamation in my face too which went away on its own..iv had inflamation in my wrist and i get really bad sharp pains in my lower back all the time..which really gets me down..i also cant keep any part of my body in the same position for more than 2 mins or else it goes dead and i have to keep changin positions which also gets me down..My memory is so so crap..i havnt mentioned tht bit to doctors yet..but i have realy bad memory..lik if i hav an argument with someone and i try to tel someone about tht argument i cant remember it...and you could tell me something and id forget it two seconds later..lik once i poured gravy into my drink glass instead of on my dinner..really weird things..iv always had irregular periods..i still dont hav a set time each month for it..and iv had my period for about 9 years..iv also got really bad vision..its always realy blurry..it never used to be this bad..but i cnt even watch a tv with my bf because my eyes get so blurry..iv got bowel problems too.cnt fully empty my bowels..al she gave me was these sachets to take which dont work..and my stomachs always bloated..iv put on like 3 stone in a year..and my stomachs constantly sore.its makin me so depressed..i hate going to doctors now..its lik they jus fling every symptom i give them off ther shoulder once test results come bak..but yet something is clearly wrong..i just know there is..i need advice as to wot to do.im fed up of antibiotics..im pretty much immune to them its all the docs hand me..

    • ANSWER:
      Saza, I have Lupus and did have in my 20''s. I have dealt with it for 20 yrs. It would take all day to go thru all symptoms, Go to medical site web md and pull it up and it will you all you want to know about any disease. Hope this helps Good Luck Rita V

  39. QUESTION:
    Does this sound like Lupus to you?
    I am autoimmune (hashi's) and was recently DX with fibromyalgia and am being referred to a Rheumatologist for further testing. Whatever it is, it's getting worse. I went to an Endo and he definitely thinks my symptoms are too severe to be caused by thyroid or fibromyalgia.

    I have moderate aches and pains all over constantly. But i have "flare-ups" that last up to 6 weeks, during those times i have pain in my hips, thighs, shoulders, arms, wrists, fingers, neck.. extreme stiffness that never goes away and turns into severe pain by nightfall. I have GI problems constantly, every other day i am constipated and diarrhea always follows. I have been living on OTC heartburn meds! I have been suffering from infertility for over 3 years. During flare-ups the pain is so bad i have to call out of work, it literally feels like my legs are going to pop out of the sockets, i can't walk straight. My shoulders hurt so bad i can't lift anything, and most of all i have weakness in hips and shoulders/arms. I shake real bad if i try to lift anything over 10lbs so i ask for help. I call out of work because i can't walk straight. I am only 25 and sometimes im in so much pain.. RA runs in my family but i don't get any redness or swelling of my joints. My lower back has hurt all week and ive been taking muscle relaxer and applying heat to the area, but it seems to have gotten worse overnight. I can't bend over today.
    I could go on and on and on with symptoms.. but I really think in the end i will end up with Lupus. Do you think that is what it sounds like??

    • ANSWER:
      Since you already have one autoimmune disease (Hashimoto's thyroiditis) and some believe fibromyalgia to also be autoimmune, the chances that you will have additional autoimmune conditions is higher than for a healthy person.

      The symptoms you describe could be caused by a host of things. You need to make an appointment with a rheumatologist. No one can give you a reliable answer here.

      www.rheumatology.org is a good place to start looking for one.

  40. QUESTION:
    Crohns, Celiac, Lupus, Hypothyroidism????? Help!?
    I started to have mental fogginess issued back in 2004, and remember having a general feeling of not feeling well. I can’t really remember exactly what it was like back then though. By the time 2006 came along, my issues had progressed pretty rapidly. I...

    - Had mental clarity issues.
    - I would get up to go to the grocery store and get in the car and realized I had forgotten where I was going.
    - I would bruise easily. I had diarrhea.
    My stomach was extremely bloated.
    I could barely carry on a conversation.

    After a few failed attempts at the doctors, I DIAGNOSED MYSELF with Celiac’s disease. Immediately, I went on a gluten free diet. After 6 months of being gluten free, I did notice improvement in some areas. But I never got to feeling 100%. Not even 60%.

    So I continued my research...

    About a year ago, I truly thought I was dying. I had...

    It feels as if all my stomach organs are swollen along with my head
    I feel like I have a fever, and my skin is hot to the touch (but no actual fever)
    Severe mental fogginess
    Underarm sweating
    Diarrhea
    Severe grogginess when waking
    Severe bloating
    Bruisings
    Pressure headaches (get migraines on occasions with blurred vision, I think unrelated)
    Swollen and puffy eyes
    Got sick easily
    Cold hands and feet
    Shiver in cold weather
    Fatigue
    Major skin issues. Pustuals on the hands and feet, rashes, etc. However I was able to get that at bay with very very mild soap.

    I knew at this point, I had to make a change. I cut everything out of my diet and slowly reintroduced things. At the end of this test, the only thing I could eat (at not perfect at that) was fruits, veggies, millet bread, sunflower butter (peanut butter substitute). I stuck to that diet for about 6 months and really better but dropped to 140 pounds. I went from a 1 out of 10 to a 6. But then started noticing that I was lacking nutrients and was getting other symptoms for not being balanced nutritionally. I have added a few things back in with a major herbal supplement system that I have created to help assist.

    Right now my diet is this...

    Food:
    Fruits
    Veggies
    Millet bread
    Sunflower butter

    Supplements:
    Garden of Life meal shake with probiotics and enzymes
    Activated Charcoal (Draw out poisons)
    Aloe Juice (Digestion)
    Basil (Digestion)
    Cayenne (Immune Booster)
    Cilantro (Detox)
    Cinnamon (Anti-Inflammatory)
    Coconut (Anti-Viral, Anti-Bacterial)
    Flax Oil (Anti-Inflammatory)
    Garlic (Anti-Viral, Anti-Bacterial, Anti-Fungal)
    Ginger (Anti-Inflammatory)
    Ginko (Blood Flow)
    Ginsing (Digestion)
    Lime (Anti-Biotic)
    Mushroom (Cancer inhibitor)
    Peppermint (Digestion)
    Rosemary (Blood Flow)
    Tumeric (Anti-Inflammatory, Cancer Fighter)
    Lemon Water

    I have seen certain improvements with my herbal remedy, but nothing too major.
    I thought way back that it was celiac’s. Deleting gluten from my diet helped, but did not fix the problem. My current research makes me feel like it is either Crohn’s or something similar, or Hepatitis C. I have read that the two can be confused. I have recently been tested through a private company for Hep C and it came back Negative. What confuses me is that I do not have stomach pain like most Crohn’s patients do. However, I am pretty sure I have an ulcer. I do have a sharp pain in my stomach that comes and goes at times. And the biggest issue for me is mental clarity and this swelling fever I deal with. I can deal with irregular bowel movements, but the way I feel is unacceptable. I have a copy of blood work I had done a year ago when I was feeling my worst, and I noticed that they didn’t test for Hypothyroidism? Do these symptoms sound like this could possibly be a culprit? Lupus?

    I am probably the healthiest person you know. I don’t drink, I don’t smoke, all of my diet is natural organic from the earth foods, herbs and minerals. I should not fee the way that I do.

    Please help!

    • ANSWER:
      I don't see any protein or saturated fat in your diet which are essential to good health. I would highly suggest eating eggs if you can. Can you eat oysters? I started eating 1 oz. canned oysters every morning for the naturally occurring zinc (170% DV) & found it also had 90% DV of B12 as well as getting an extra 3g a week in EPA/DHA.

      Optimize your vit.D levels most people are deficient & especially ill people. Vit.D is not really a vitamin but a hormone that regulates your immune system. I would highly suggest researching. I personally did 35,000iu a day for 3 months to refill my depleted stores & now do 10,000-20,000iu per day. The constant fibromyalgia pain I had for 10 years went away doing this. I did 35,000iu for 2 months, then knocked it down to 2000iu day & the pain was back after a week, so I did another month of higher levels.

      I highly suggest filtering water to remove fluoride & other things. I'm using a zero water filter but wish I had invested in a Berkey water filter system because the filters are cleanable & don't need to be replaced. What I've spent on filters, I could have bought a berkey system.

      I highly recommend a green drink with 2 tablespoons each of chlorella, spirulina, kelp, turmeric (pinch of pepper & half teaspoon of cinnamon) mixed in 28oz of water with a splash of raw apple cider vinegar & raw honey. I add half a cup of chia seeds to another 28oz blenderball bottle of water & serve these half & half over ice. The chia seed makes the green drink much more enjoyable. I buy chia seeds in bulk from getchia.com & algae from nutsonline.com

      I would suggest testing your thyroid at home with the Barnes Basal Temperature test (instructions online) - consistent low basal temperature is indicative of thyroid dysfunction & is more accurate than blood test (but harder to document) Low thyroid can cause a lot of health issues including brain fog.

      Are you using unrefined salt - preferably mined celtic or himalayan - Unrefined salt contains over 80 minerals. Salt and water work together to do important work in your body, including stimulating your metabolism, helping you detoxify, support your adrenals and making sure your nerves, hormones and immune system function properly.

      The body needs saturated fats to make vitamins & minerals & even omega 3 oils bioavailable so they can be incorporated into the body structure. I do not recommend flax seed oil - ground flax seed is fine (chia seed is better, because it doesn't need to be ground) Unsaturated oils are fragile & oxidize (go rancid) when exposed to air & create free radical damage in the body - oils in whole foods are fine though.

  41. QUESTION:
    does anyone have or know about lupus?
    my girlfriend has lupus which she started off with just the anti-bodies but she now has 'full lupus'. everyday she is in tears through the pain and the doc's dont seem to be doing enough for her. all he is interested in is that she smokes..lol.. but i am really begining to doubt her consultant. she has an appoitment later today and i need some info on cures, treatments ect so i can give a good argument as i have never really said alot in these appointments but i feel the time has come for me to step up and challange the doc.lol. she has had different types of medication all to which have done nothing for her. all i want is for her pain and swelling to be under control and to see her happier and be able to do more for herself.. give her the independance back... she struggles with the more easy things like turning a tap, picking up the kettle all things she needs to do when im at work including caring for our 3 year old... someone please HELP!!!! thank you
    her doc is a specialist in this field i forgot to add that so surely he could make her more at ease with it
    she is only 25 and has had it for 2 years i know there is no cure but if there are any suggestions of good pain relief

    • ANSWER:

  42. QUESTION:
    Balding or can it be Lupus disease ?
    My head is getting balder by each day and losing hair, my mom was told that if young people start to bald so early it can be Lupus disease but I don't know here's a picture to show you how bad the bald spot is.

    September 21, 2009
    http://img25.imageshack.us/i/september21.jpg/

    October 1,2009
    http://img137.imageshack.us/i/getattachmentaspxfilea0.jpg/

    now I have an appointment with my doctor sometime next week, can someone help me here. People keep looking at my bald spot and making remarks about how old I look and throwing insults here and there, also yesterday at work someone thought I was an old person when they saw that bald spot. I have also lost a lot of hair in front of my head which is weird if I was supposed to be a bald spot. Can someone help me here it's making me feel worse about myself seeing as how I'm losing hair rapidly thank you. you're help would be appreciated, also when I either rub my hair or scratch it when it gets itchy I see white flakes falling out of my scalp or get a really red spot after
    My father just started losing his hair not to long ago he is in his mid 50s so its normal for him but I'm 19 and it's embarrassing since everyone insults it and people look at it when they're talking with me its really uncomfortable and uncalled for.

    • ANSWER:
      The hair loss in lupus can be either "non scarring" or "scarring". In the scarring type, there is usually a red, scaly atrophic patch of skin in the area of the baldness, and I don't see that in the pix. The nonscarring type is usually more generalized than yours is. In fact, your clinical appearance is more of a genetic male pattern baldness. Your dermatologist can obviously make a better assessment than I can from a couple of pix, though.

  43. QUESTION:
    blood work for my kidney were normal ?
    blood work for my kidneys was done and thank God the results were great. now the rheumatoid dr will do a urine test can there still be the possibility's of finding protein.? Or if my lab work was great the dr will not find protein? im scared . MY ANA was positive I thing i have no symptoms but a little pain on my middle finger that comes and goes until i vacuum or nudge it with the door handle. What does it mean joint pain for one day or for a long time? Im just going by some of the lupus symptoms. my hair has been falling for years it falls then i can see tiny little hairs growing. im really afraid i just turned 37 and i have a positive ANA of 1/320 its high. i don't have much pain sometime my knee hurts but the next day its gone never swelling i know my lower back hurts but with a heat pad its goes away. i don't know what they mean by joint pain is it something that comes and goes or the pain stays for weeks. anyone with lupus please tell me or a Dr that my be reading this please I need help. i have been doing lots of reading but i don't no if joint pain is for a long time or what? Anyone that can direct me to stories of pt's with lupus thank you

    • ANSWER:
      Your joint pain can come and go. What other tests besides an ANA have your had run? You need a double strand DNA test, an ANTI-SM (Smith) test run as well. These can help pinpoint a diagnosis. In order to be diagnosed with Lupus you must have four of the eleven agreed upon Lupus symptoms. These can occur at any time and do not have to occur together. I would recommend that you get referred to a rheumatologist to be further evaluated.

  44. QUESTION:
    DOCTORS PLEASE HELP! I have EBV and my dr. said I will most likely develope Lupus> What should I be expecting?
    I am a 14 year old girl and I have Epstein-Barr Virus and I was told that I will probably develope lupus. Many symptoms I have had are --- a red rash that is on my cheeks and nose and it is always on my face just its not always bright red but I can see the outline if i look really close. Here are some other symptoms I have had since July if I remeber correctly. For starters I have the hardest time remebering things, depression, really hard time consintrating, 2 periods of where it hurts when I take deep breaths or move my head, I can't sit criss-cross anymore because it hurts my knee's, I have several swollen lymphnodes that come and go except the one behind my ear that never changes, I have musle weekness i think because I can't even hold a book out to someone for more than 2 seconds before my hands and arms start shaking. Also, my hands and feet are always cold but my legs are always really warm and lets just say you can feel the heat off my legs through my pants. Also sometimes I have just plain out muscle aches that move from my leg to my arm and so on. I think my parents think I am faking it because I never have a fever. I don't want to tell my doctor either cause he might think im faking. Really need some advise or something I feel so helpless and down. Does this sound like I have just convinced my self that its lupus or is it just in my head. Please answer with something useful and you will get some free easy points. I would wait until im 18 to go and talk to my doctor but it is so frustrating not being able to consintrate in school and its so hard to read because I forget things so easily. Also, track is going to be starting soon and I don't know how I am going to handle this with sports and school work plus being so tired. Please realize that all my symptoms don't come at once and they aren't an everyday thing its on and off. Thanks for the help :)

    • ANSWER:
      As lupus does not really have any consistent or real treatment in conventional medicine, I hope you will not get it. If you think the cause was that Epstein-Barr Virus, why not to fight against it?
      --Have always fresh air in your house
      --Be on a kidney diet, avoiding too much salt and proteins
      --eat a lot of raw garlic with food
      --Often use vit C to strengthen your natural immunity
      --Eat a lot of fruit, avoid sugars, artificial sugars like aspartame splenda are worse, and avoid high fructose corn syrup.
      --Avoid all kinds of flu shots or other shots which can affect your immune system, as lupus is an immuno allergic disease.

  45. QUESTION:
    Pain medicines or treatments/therapies that work?
    My pain doctor still refuses to change my regime of hydrocodone 5/500 and lyrica 50mg & took me off my muscle relaxer because of my age and weight (im 105 that's not bad for my height). Last night i passed out 3 times from pain .I used all my pain meds up 2 weeks early because i can't function anymore,its gotten to the point where i buy drugs(like percocet , hydrocodone,and weed) so i can go to college and try to live a normal life (im not a druggie i don't want to have to do this but i basically go into shock from pain 2 or more times a week).So are there any pain meds that work (percocet 10mg works for me minimally) narcotic or non narcotic i dont care ,any herbs(kratom helps a bit),or like does yoga or acupuncture or something like that work? I went to a chiropractor and tried meditation they both help a little but once i get past a certain point its useless same thing as my hydrocodone (it works ok for light to moderate pain but does nothing for severe. One of my friends that has lupus said i should get something for breakthrough pain).I cant function and i want to do good in college and be able to do stuff like my friends can and get a job so i can move out of my moms house soon.So do you guys have any ideas? And should i wait to see if my pain dr. will work with me when im 18 (3 months) or just switch doctors & get one that actually seems to care & will help me find a solution so i can be productive?

    • ANSWER:

  46. QUESTION:
    why would my neurologist write academic/work inhibition on his report?
    I'm interested if anyone else with epilepsy has had some of the same problems I describe or has had this term used in reference to themselves.

    I saw my neurologist for a follow-up visit a couple of weeks ago. When he asked how I was doing I said I was much more tired than usual and not feeling as sharp at mental tasks, keeping up in conversations, etc. I have been having trouble finding the right words and engaging in some word substitution. Not anything that would highly noticeable to others but discomforting to me as I used to be pretty quick on the uptake.

    He had me do a few simple word tests and said everything was fine, that it's probably a combination of things like medication, sleep problems, and normal age related changes. I am on medication for simple partial seizures as well as some non-specific autoimmune problem (suggested to be lupus) but I'm only 50. Personally I think seizure drugs can dull your mental faculties and I was hoping he might lower my dose a little to see.

    Later on when I the diagnosis report for the office visit ( you can do this online at this hospital) he had written Academic/Work Inhibition. I took that to mean slow response time or something of the sort since that's what it feels like to me, but when I looked it up it's a term used for a mental disorder, one that's often used for people, often kids, who have a disinclination to complete tasks, or who do poorly in school, and the recommended treatment is talk therapy.

    This does not sound like me at all. I'm worried I'm not working as well as I should be. So I was a little surprised and concerned because took nearly 2 years to get control of the seizure disorder because many of the doctors I saw when this began just wrote me off as having anxiety attacks and this is the doctor that finally did the right tests and solved the puzzle.

    He didn't mention any of this to me at the appointment so I'm hoping it's just a catch-all term for insurance or something. However if he thinks this is some sort of social anxiety disorder I feel like I'm back where I started.

    • ANSWER:

  47. QUESTION:
    I have lupus and I'm experiencing a lot of anger! Is there anyone else with health issues that can relate?
    I am just feeling so angry bout having lupus. I feel like for so many years I have worked so hard to not let it affect the things I want to do in my life and right now it really feels like it is affecting everything negatively! I'm having such a hard time coping with the anger I feel. I'm 24 and I was diagnosed six years ago and right now is the first time I've really felt anger about it. Is there anyone else, even with other health problems, that can relate? How do you cope with all this anger?

    • ANSWER:
      I hear you! I just wrote about my frustration with lupus and can relate to what you are saying. You are so young, and you must get very tired of being tired and sick of being sick...I am so sorry. I am 54, and have dealt with lupus for a long time and know it seems overwhelming at times.

      I am sure most people would say you are entitled to your anger. Frankly, I am hoping that will it pass soon because anger can zap your energy, unless you are one of those people that can channel your anger into something positive. I am one of those people and through trial and error have found two things to help me bounce back mentally.

      When lupus symptoms sideline me a bit, typically I withdraw from people and my routine. Usually I can turn my anger off with a re-dedication to exercise and a focus on others. If this sounds silly, it has seemed to pull me out of a tailspin in a hurry. Just going to the gym to walk and to force myself to be interested in others--not telling my story or focusing on me--gets me out of the FUNK. Just the physical activity of walking seems to really change my brain chemistry, and before long, I start to feel better and I hurt less.

      Finding someone with lupus to talk with may help. Your doctor probably knows someone who has dealt with lupus, but is balanced enough not to BE their disease, if you know what I mean.

      I wish you felt better. I'm sending you a hug and my assurance that this will pass. Hang in there.

  48. QUESTION:
    Why do I hate people?
    I am 100% serious and not trolling. I am trying to figure out why I hate people. I worked as a paramedic for over 15 years. I watched people abuse the welfare system on a daily basis for example by calling the ambulance for a broken fingernail. I once asked a lady who was having contractions about 20 minutes apart why she called the ambulance and not a taxi and she told me that the ambulance was free but a taxi costs money.

    I have raised my 23 year old neice since she was 9 and her mother died from cancer. She decided to start having kids of her own when she was barely 14. Now I raise her 2 kids. I hate her because she is a lazy peice of crap and wont go get a job. She got in a car accident about a year ago and broken her neck. It was a very minor break to the spinal process and no where near the cord. She tells me every day that she cant go to work because she is permanently disabled. She is to lazy to go to the welfare office to apply for assistance and I have kicked her out several times and she threatens to take the kids away from me that I have raised for the past 7 and 8 years. How the hell can I hate a person that was raised as my own child.

    I go to work every day. I have systemic lupus. My kidneys are not in good shape and I am in pain every day of my life. Do you think that I would be eligible for food stamps? Hell freaking no! I guess I should be thankful that I do receive 0 a month from social security which pays for about half of my medication. I work 44 hours a week and have 4 people in my household. I make 7 freaking dollars to much a month to get food stamps. My lazy piece of crap neice doesn't work at all but gets food stamps every month. She buys food for herself and bitches if anyone else eats it. I go to the food pantry to get cereal for her kids.

    I could go on and on with reasons why I hate people but I really just want to know why. I have dreams at night of stabbing someone/anyone in the heart and have no guilt over it at all. I euthanize animals at the shelter as part of my job and it makes me sick. I cant stand it but I could easily euthanize a stupid waste of life person that is taking my tax dollars to call a ******* ambulance for a broken finger nail.

    I already see a psychiatrist and have for years. She knows I hate people. She has no idea why either. She also knows that as much as I sound like a complete psychopath that I wouldn't actually kill someone.

    Does anyone have any clue how I can stop feeling this way. I am sick of being pissed off for now reason. I have to go to work here in a few minutes and I want to punch the first moron in the face that looks at me cross-eyed.

    Any insight would be wonderful
    lol Laura. I wish it was that easy. I have actually kicked her out several times. Unfortunately she doesn't have anywhere to go. Short of having the police come and remove her there isn't much I can do. She literally wont leave. I have packed her stuff up and put it in garbage bag on the lawn. She gets home and puts it all back in. Honestly I think I am going to have to go to court to get legal custody of the kids and then I can have her removed. I really just needed to vent. I am having a very angry day. I did like the song Sam Hall.. lol I may change my name.
    Solomon - - it is not just my neice I hate it is everyone. I work at an animal hospital and I hate every person that walks in the door. Even the doctor I work with knows I hate people and he tends to keep me away from them. I can't help it and it has been this way for as long as I remember. Long before she came to live with me.

    • ANSWER:
      From what you've told us, it's no wonder that you struggle to see any good in people. You're obviously quite jaded by life and so maybe a bit bitter about things (and I can't blame you in the slightest).

      When you've been hurt and taken advantage of by someone you loved and raised, it can be difficult not to assume that strangers are going to hurt you as well.

      Your negativity and thinking the worst of people is probably a defence mechanism - if you don't invest emotion or expect anything positive from people, you can't be let down by them.

      It sounds as though you feel a lot of anger. You may not think of yourself as an angry person if you don't often show it but if you feel a lot of hatred for people, it's quite likely that you're internalising anger.

      It's not uncommon for someone to feel a lot of anger if they have (or have had in the past) difficulty controlling their life or standing up for themselves. For example, your neice taking advantage of you and using her children as blackmail material to get what she wants from you. I think it would be well worth you learning to assert yourself better so that you don't get walked on. Think about it this way, you care for your neices children because she's too bone idle to care for them herself - do you think she'd really take them away? I doubt it because that would mean looking after them herself. She might even take them for a few days but I have no doubt they'd be back on your doorstep before you know it. Even if you don't express this anger outwardly, it isn't good for your health. It isn't good for the children either - they're very preceptive and pick up on these things.

      It's worth bearing in mind here that many people who suffer from anger initially think they don't have problems being assertive - in fact they believe their problem is being too assertive to the point of being confrontational. In fact, the opposite is often true. Quite often people are confrontational or aggressive because they aren't able to calmly assert their feelings or needs in a situation. So they hold back from what they need to say until it's too late and they're hopping mad - then what they need to say comes out as aggressive or confrontational. It may be however that you don't think you're angry at all because you internalise these feelings too much. Either way, I think you may benefit from approaching your hatred as though it is anger and dealing with it in this way.

      Here is a list of some tried and tested approaches:

      1. Make a list of the things that 'trigger' you or that are constant in your life and make you feel down.

      2. Out of that list, make a list of the things that you CAN change. Then put together a plan and timescale to change them - and do it!

      3. Make a list of calming things you can do to bring relief when something 'triggers' your negativity or anger. These can be anything you like such as soaking in a hot bath, reading a book for half an hour, or taking a walk. Make sure there is a good variety and that some of them are things you can do when at work or on the move (could be as simple as visualising a nice memory or deep breathing). Every time something 'triggers' you, calmly remind yourself that you can't control what is happening but you CAN control how you respond to it.

      4. When you start to feel 'triggered', do one of your calming things. This may take some work initially because when you're feeling angry or defensive you may feel inclined to be confrontational. Force yourself to get off the wheel of emotion you're on and calm yourself down before returning to the situation. Visualise that the anger or hate you're feeling is you running on a giant hamster wheel. Sounds funny but if you can visualise it as this, you can also visualise yourself stepping off that wheel and calming down. Slowing down and calming your emotions.

      5. Think of past situations when you have felt angry towards someone when it was inappropriate. (Such as the example you cited with the pregnant lady). Play that back through in your mind calmly whilst taking deep breaths. Remind yourself that she didn't act in the way she did to offend or hurt you personally. Also bear this in mind in future scenarios. Often we get angry when we feel that people are trying to hurt us (fight or flight) and in some people where they have a low self-esteem, they can believe people are acting against them even if they aren't.

      6. Keep telling yourself that there is no use in getting angry about things you have no control over. Find more positive ways to deal with the situation. If someone has caused you stress (such as the pregnant lady), remind yourself that feeling anger or hatred towards her is going to do more harm to you than her. Too much anger is extremely bad for your health and for your brain. You may not be able to control the things that are making you angry but you can control whether or not you choose to allow things to make you angry.

      Finally, a really useful book is 'Overcoming Anger and Irritability'. It uses Cognitive Behavioural Therapy which unlike traditional psychiatry, it focuses on practical behaviour changes rather than just trying to diagnose and analyse you. CBT has been proven to be of huge benefit with many mood and personality disorders and I can definitely say it has immensely helped me in my life.

      You can buy the book on Amazon at http://www.amazon.com/Overcoming-Anger-I…

      Good luck. And finally, remember that you deserve to be happy as much as anybody so take control of your life.

      Take care
      x

  49. QUESTION:
    Question about Positive ANA results?? 1:80 Titre Speckled Pattern?
    I feel like a Hypochondriac. I went undiagnosed with Thyroid Disease (Hypothyroid) for 3 years Between the ages of 18-21. I have always been very aware of my body; and when things are wrong. At 25; I contracted Epstein Barr Virus (Mono) otherwise- I've led a very healthy life. Since turning 30; I've struggled with muscle and joint pain, swelling in face; hands and feet; headaches; extreme fatigue, high blood pressure, hyper-gylcemia, IBS; brain fog and memory problems. I'm tested regularily for my TSH levels; and most recently; for the first time- My tests showed a Positive 1:80 Titre- Speckled Pattern. I was going through what I would call a "flare-up" of extreme symptoms at the time of the test. I am scheduled with a Ruematologist end of March. My other blood work I guess did NOT suggest lupus- despite the new development of a Positive anti-body test. I guess I feel as though "something" is going on- yet my blood work- is within normal relms. Does anyone have any suggestions? These symptoms are almost deblilitating- and while it was suggested I might have Fibromyalgia- I can't believe I feel so terrible inside and out- yet my blood work says I'm normal. I am also at a loss as to why I might suddenly show a Positive ANA test after years of being negative. Many say normal people have positive results for ANA. I would appreciate anyone who might have some insight on autoimmune challenges. Thank you.

    • ANSWER:
      You said you went undiagnosed with thyroid disease from age 18-21, so I assume you "are" being treated for thyroid disease now, and have been for the last 4 years. I will bet that the thyroid med you are on is synthetic t4 (synthroid, levothyroxine, levoxyl, unithroid, etc), and "not" on a natural thyroid med (Naturethroid, Erfa Thyroid, Thyroid-S, etc). And that you have not had adrenals or ferritin properly tested/treated. Why do I say that? Most of your symptoms (muscle/joint pain, face hands feet swelling, headaches, fatigue, high blood pressure, IBS, brain fog, memory problems, etc) are common to those that are taking a t4 drug.

      About the ANA, a big proportion of the population without any disease can also have a positive ANA test. From an internet search, I found this also:
      "A positive ANA titer can be found in a variety of rheumatologic diseases, such as lupus or rheumatoid arthritis. As for the speckled pattern, in addition to lupus, dermatomysitis, mixed connective tissue disorder, scleroderma or Sjogren's syndrome can all be the cause. Ken Pho, MD"

      Thyroid info:
      http://www.stopthethyroidmadness.com/t4-only-meds-dont-work/
      http://www.stopthethyroidmadness.com/natural-thyroid-101/
      http://www.stopthethyroidmadness.com/things-we-have-learned/

      Lab tests and how to interpret them:
      http://www.stopthethyroidmadness.com/recommended-labwork/
      http://www.stopthethyroidmadness.com/lab-values/

      Just in case:
      http://www.stopthethyroidmadness.com/how-to-find-a-good-doc/

      I hope this info helps you.

  50. QUESTION:
    Why doesn't it work?
    The Bible has all these verses about how if you ask for something in the name of Jesus, it will be given to you and how God will give us what we want if we ask and how he wants to help us.

    My significant other is suffering with lupus, the organ-threatening type. He lives each day in constant pain and currently walks with a cane. He is 26 years old and still forced to hold down a job so he can keep his insurance, and is toughing it through school at the same time. He could die at any time if his immune system decides that some vital organ is a threat and attacks it. He also has a five-year-old daughter who relies on him for support (his wife left him when the baby was a week old; he's not her biological parent).

    There are countless people praying for him, in accordance with exactly what the Bible says. So where is his healing? Did God lie? Why doesn't the Bible explain this? It just says ask for it in my name and it will be given. But it's not.
    Forget it. If people are more worried about whether I'm converted or not than ANSWERING MY QUESTION...forget it. Forget the fact that I put aside my beliefs for a bit to try and seek guidance through something else. I came looking for answers to what people keep telling me, not to be told that I'm living in sin. Forget all of it.

    • ANSWER:
      Great question.

      I don't believe those verses apply to us. Most (I think all, but I am not going to say that without having looked all of them up) of the verses where Jesus says "whatever you ask for in my name... etc.," Jesus was only with the twelve apostles. This was a miraculous gift given to the apostles, not a promise for all of God's people.

      God does perform miracles sometimes in cases like this, but He usually just works on the spirits of men, where He is needed the most.

      I hope that God will pour out His healing on your situation, both physically and spiritually. I pray that God will walk through this with him, with you, and with all of those who love him, especially his 5 year old. I know how hard it is not to blame God and be mad at God during times like this, but I assure you, God is also mad at the situation. Disease is the result of sin (not his sin, mind you, but just sin in general), and it is not what God had planned for the world. Yet, God has prepared a better place for those who love Him. Thank goodness this world is not forever.

      My heart goes out to you. God bless.


Can I Have Lupus With A Negative Ana

RA and lupus are autoimmune diseases and in autoimmune diseases the immune system, which is suppose to protect your body from any foreign substances that may harm it, malfunctions and attacks your own body's tissues. If you have RA or lupus you are probably taking medication that reduces the immune systems activity to a greater or lesser degree. But pregnancy has its own impact on the immune system and your system must make some adjustments so that your body won't attack what it perceives to be foreign, the genes that come from the father of your baby. These adjustments make it possible for your baby to grow safely. But there are other effects which can impact your rheumatic conditions such as RA and lupus in different ways.

Something to think about.

It can be hard to determine whether the changes in the way you feel are from the pregnancy or your RA or lupus. Unfortunately when you are pregnant you can become anemic, which can cause you to be tired and have a lack of energy, this also happens when you have RA or lupus. Your pregnancy will also affect certain markers of inflammation, doctors use blood test to measure your inflammation called a erythrocyte sedimentation rate or ESR, which is often high if you have RA or lupus. These markers can also be high when you're pregnant so measuring ESR may not be the best way to gauge how active your RA or lupus is. Also, your pregnancy may make blood clots more likely, but if you have lupus, there is also an increased risk that you will have blood clots because there is a protein called antiphospholipid antibodies in your blood, and these proteins is what increases your risk.

Your pregnancy can also cause musculoskeletal problems because as your baby grows, your ligaments will relax to allow the pelvis to stretch. You will also put on weight, which is a healthy thing but this can cause your posture to change which can result in joint aches and back pain. Another thing is carpal tunnel syndrome (CTS), which causes wrist pain and numbness, is a common complication of your pregnancy, especially during the second and third trimesters but is is also associated with RA and lupus. All these things can make it tricky to figure out whether or not they are problems with the pregnancy or are a part of your rheumatic conditions.

Things to do if you have RA.

RA mainly affects the joints and it will make them stiff, painful, swollen and sometimes, unstable and deformed, but it can also cause fatigue and you may have problems with your heart and your eyes. There is between 1% and 2% of the United States population that have RA, and it is most common among women than men. It will usually appear when you are in your twenties or thirties, the child bearing years, so finding women with RA who are considering pregnancy is not all that surprising.

The first thing you will want to know, if you have RA and are considering having a baby, is whether or not your arthritis is going to flare-up during your pregnancy. The thought of carrying around an extra 20 - 30 pounds of weight on replaced joints or on joints that are sometimes swollen and sore can be a bit discerning. Luckily there are about 70% - 80% of women who have RA that go into remission during their pregnancy, another words their symptoms go away. For the rest of those women with RA who don't go into remission, their symptoms may become milder and easier to manage. It's hard to predict just who will go into remission but despite this uncertainty, some doctors will tell their patients to stop taking their RA medications when they become pregnant because of the high likelihood that they will go into remission and not need treatment. But there are some steps you can take before you get pregnant that can help you during and after the pregnancy.

Work out a plan with your rheumatologist for what medication you will take if you do have a flare during your pregnancy.

You will also have to consider the type of delivery you will have. Most women with RA can safely go through the labor and vaginal delivery, but if your RA affects your pelvis and legs extensively, a vaginal delivery may not be what you want to do. Your doctor may opt for a planned cesarean section.

For some of you with RA, you may find that after you have your baby your arthritis flares up. Because arthritis flares can make it difficult to care for a newborn, you will want to plan very carefully just how you will manage this period. By planning you can ease the adjustment of this postpartum period.

If you are planning on breast feeding you will need to discuss this with your rheumatologist, obstetrician and pediatrician ahead of time. There are some RA medications that are compatible with breast-feeding. Try to decide which one you want to take just in case you have a flare after your baby is born.

If it's possible, try to have someone to help you at home during the transition time. If you are unable to, there are some things you can do to make it easier on yourself, such as; having some extra meals stashed in the freezer so that all you have to do is to pull them out of the freezer when things get difficult.

Planning is the key and it will go a long ways to helping you ease the stress of your worst flare. The good news is that RA doesn't have a negative impact on the baby, it doesn't increase the rate of miscarriages, and it doesn't cause any problems in the baby.

What if you have lupus

If you have systemic lupus erythematosus, it's a bit more complicated. The reason it's more complicated is that lupus can affect many parts of the body, such as the skin, joints, kidneys, blood cells, heart and lungs. The most common symptoms are a rash on the face, pain and swelling in the joints and a fever with kidney disease being the most serious symptom. Lupus is more common in women then men and it will usually show up when you are between the ages of 15 and 45.

Doctors of the past would often counsel women with lupus against getting pregnant based on the assumption that pregnancy would always cause lupus flares, possibly serious flares, and that babies would do so well. These were and are valid concerns, but there is now a better understanding of lupus and how to treat it that has made pregnancy very realistic and a safe option if you decide to get pregnant.

There are several studies that have shown that being pregnant may increase your risk of flares and yet other studies that have found that it doesn't. This confusion in part lies with how the different researchers measure and define a flare. And also, during any nine-month period you may have a flare or flares whether you are pregnant or not, so flares during your pregnancy are not exactly related to your pregnancy. Headaches, fatigue, shortness of breath and joint pain are all symptoms of a lupus flare as well as the possibility being a part of your pregnancy. The most likely risk is that women with lupus have a slightly higher chance of having a flare-up but for many women it can be controlled with medication.

You will most likely flare and not do so well during pregnancy if your lupus was active at the time of conception. This will be the case if your lupus has affected your kidneys because pregnancy will also stress your kidneys. Most doctors will generally not recommend getting pregnant until you have been in remission from kidney disease and active lupus for six months.

The most ideal situation is if when you have decided to become pregnant, that you see your rheumatologist ahead of time so he can run blood tests that will determine just how active your lupus is. The blood test will also establish a baseline that your doctor can refer to later during your pregnancy in case there are any difficulties. If you don't get these test done before you get pregnant then definitely get them done shortly after. You will also want to consult with an obstetrician who has experience with treating women who have lupus or possibly an obstetrician who specializes in high risk pregnancies. It is also a good idea if when you become pregnant, you are taking medication to control you lupus and that you can continue to take them safely during your pregnancy. Although, if you have RA you are able to stop taking your medications during your pregnancy, this may not be the case if you have lupus. You and your rheumatologist will need to plan for what medications you can take if you have a lupus flare during your pregnancy.

If your blood tests show that you have the antibodies called anti-RO (SSA) or anti-La (SSB), you will have a small risk of having a baby born with a rare condition called neonatal lupus. The main symptom of neonatal lupus is a skin rash, and it will usually disappear in six months. There is a very small percentage of babies with neonatal lupus, about 2% to 5%, who will develop heart block, which causes the heart to beat abnormally. If you are known to have the anti-RO or anti-La antibodies, you will probably have an ultrasound at 18 to 24 weeks into the pregnancy to see if there is heart block. The doctor may prescribe a corticosteroid in an attempt to treat the heart block if there is one. Although, research doesn't show a clear benefit of doing this. It may become necessary to deliver the baby early but most babies born with heart block need to have a pacemaker implanted, wither at birth or later in life.

There are other complications that come with lupus and that includes preeclampsia, premature rupture of the membranes, which means the baby will be born prematurely, and low-birth-weight babies. In preeclampsia, or pregnancy-induced hypertension, you will have high blood pressure and retain fluid among other symptoms. Preclampsia is thought to be more common if you have lupus and most often it can be hard to distinguish between preeclampsia and a lupus flare. But if it's not treated appropriately, preeclampsia can damage your kidneys and liver as well as increase the risk for a miscarriage and premature birth or even cause the baby to be very small. If you have preeclampsia your doctor may recommend that you deliver the baby early, either by induced labor or a C-section.

The same advice that applies if you have RA applies to you if you have lupus as far as the period after the birth of your baby. Planning makes all the difference and having help lined up in case you have a lupus flare prevents you from taking care of your baby. As with RA, you will want to have ready-to-eat meals in the freezer and be sure to know what your options are in terms of breast-feeding and medications.

As you can see, there are some very special considerations for you if you have lupus and are considering having a baby, but if you have a clear understanding that your chances are good that our outcome will be nearly as good as someone who doesn't have lupus. Remember that the best approach is to have your health care team, your rheumatologist and obstetrician, working hand in hand and also good communication and close follow-up with this these team members is the key.

Your medications

There are many medicines that are used to treat RA and lupus that are relatively safe during pregnancy, but some of the drugs used for rheumatic conditions increase the risk of birth defects, and it's also important to remember that birth defects occur in about 3% of pregnancies where the mother doesn't take any medications. When you are considering if a medication is safe during pregnancy, you should determine if the risk of birth defects is greater than 3%. Your doctor should be able to help you figure it out.

NSAIDs: Non-steroidal anti-inflammatory drugs treat the pain and inflammation of arthritis. These NSAIDs include the COX-2 inhibitor celecoxib (Clelbrex) and traditional NSAIDs such as aspirin, ibuprofen (Advil, Motrin), naproxen (Aleve, Naprosyn) and the many other, both prescription and over the counter. There are studies in animals that have shown that NSAIDs can cause birth defects, but there hasn't been any findings in humans. It is possible to take these medicines safely during your pregnancy up to the third trimester. Taking NSAIDs during the third trimester, will increase the risk that one of the baby's heart vessels will close prematurely, a good reason to stop taking them at 24 weeks of pregnancy. If you are trying to get pregnant you may want to stop taking the NSAIDs, including COX-2 inhibitors, from the time of ovulation until their next menstrual period because there is a hypothetical risk that these medicines will interfere with the implanting of a fertilized egg.

Corticosteroids: Corticosteroids decreases the inflammation throughout the body and these drugs are often the mainstay of treatment for people with inflammatory conditions such as RA and lupus. Prednisone and prednisolone are the most commonly prescribed drugs that your doctor will give you and you can continue to take these medicines during your pregnancy if you need to. But before you do, remember that if you take the corticosteroids during the first trimester of your pregnancy, your baby could be born with a cleft palate. This risk is still fairly low, with cleft palate happening in roughly 1 in 300 babies exposed to the drugs in the womb compared to 1 in 1,000 when there is no exposure. Babies born to mothers who take corticosteroids during pregnancy are also more likely to be smaller and born prematurely. They also will raise your risk of pregnancy induced hypertension, gestational diabetes, a form of diabetes that happens only during pregnancy, and pregnancy-induced osteopenia or bone thinning. Corticosteroids are often a reasonable choice during pregnancy for the management of both RA and lupus despite the potential side effects.

Hydroxychloroquie: It was thought that hydroxychloroquine or Plaquenil, was not compatible with pregnancy but over the past decade that idea has changed. Right now most rheumatologists in the United States and elsewhere with patients who need hydroxychloroquine to keep their condition stable will keep them on it during their pregnancy. Studies have been done to substantiate the claim that the medicine might cause problems with the development of the fetus's visual and hearing systems, but the studies didn't prove it.

Sulfasalazine: Sulfasalazine or Azulfidine, is considered to be safe to use when you are pregnant.

Azathioprine and cyclosporine: These drugs are immunosuppressive drugs that are used mainly to maintain organ transplants. Doctors will also subscribe them to treat RA and lupus. There is information from world wide transplant registries of literally thousands of babies that were exposed to these medications in the womb. This information shows that there were no increased rates of birth defects, but the babies do seem to be smaller and to be born earlier. There are many doctors will use these medications if they need to control RA or lupus activity in women who are pregnant.

Methotrexate, leflunomide, mycophenolate mofetil, cyclophosphamide: These medications can cause early fetal death and birth defects at a rate higher than what you would expect. You shouldn't take them during your pregnancy and also if you are planning a pregnancy you should stop taking methotrexate or CellCept at least one menstrual cycle before trying to get pregnant. If you're a man taking these medications then you will want to stop taking them three months ahead of time. If you are taking leflunomide you will need to to stop taking it two years before you try to get pregnant, or you could under go a two-week procedure to wash the medicine out of your bloodstream.

Biologics: There isn't enough data to conclude whether or not this newer type of drug is absolutely safe during pregnancy. However, we do know that TNF-alpha blockers, etanercept (Enbrel), infliximab (Remicade), and adalimumab (Humira) may contribute to birth defects according to recent evidence. You will want to stop taking biologic drugs before trying to become pregnant.

In just about all circumstances, if you have RA or lupus, you can be sure it is safe to become pregnant as long as you are sure your RA and lupus are under control and your pregnancy is planned. If you have lupus it is particularly important to keep the communications open with your rheumatologist and that you have an obstetrician that is experienced in dealing with women with lupus or high risk pregnancies. With careful monitoring and the appropriate use of your medicines, it will be possible to successfully manage your pregnancy when you have RA or lupus.

Frequently Asked Questions

  1. QUESTION:
    Can a person be diagnosed with Lupus if they are ANA negative?
    I am trying to find out if it is possible to be diagnosed with Lupus if you have all of the symptoms (except the hair loss) but are ANA negative (or have low titers). My 16-year old daughter has been sick with a "mystery" illness since last October. Every doctor we go to tells us something different. Our family doctor & I both believe she has Lupus.

    • ANSWER:
      You can have lupus AND a negative ANA.

      A positive ANA can be caused by things other than lupus.

      Take her to a rheumatologist.

      A diagnosis of lupus is made when other disorders are ruled out AND the patient meets 4 of the 11 criteria. Symptoms change over time. So do ANA results.

  2. QUESTION:
    Does any have lupus with a negative ANA?
    In 08 I was pregnant and was diagnosed at the time with Drug Induced Lupus from my blood pressure medicine. Minor aches and pains since then but for the past 3 weeks I have had the arthritic joint pain, muscle pain, light red patch across my face and a few other symptoms. My ANA came back normal. I go back for more test next week. Have any of you ever been through this? Also, what can I do to treat symptoms? The NSAIDs he is giving me suck!

    • ANSWER:
      The ANA can fluctuate in people who test positive and there are 2-3 % of people with lupus who have a negative ANA.

      A diagnosis of lupus is based on history, symptoms, a variety of tests and after ruling other things out. Lupus mimics many other diseases. There is no definitive test for lupus.

      Other tests in the diagnositic process include
      ESR or sed rate which is a marker for inflammation in the body.
      Anti-DSdna-anti doublestranded DNA
      Anti-Sm (anti-Smith. If you have this, you have lupus but not all lupus patients have it)
      Complement-low complement means higher level of immune activity
      Regular batter of blood tests
      Metabolic panel
      And if you are having issues with blood clots they will test for anti-Ro and anti-La.
      Also a speckled pattern in a positive ANA points towards lupus.

      To treat symptoms: get more rest than you think you need, manage stress, hot baths and showers help for joint pain, avoid the sun, take NSAIDs, get some exercise every day (reduces pain and stress, lubricates joints).

  3. QUESTION:
    "Lupus-like" symptoms with a negative ANA?
    Over these past five weeks, I have been experiencing migratory joint and muscle pain in my knees, arms, back, hips, stomach muscles, shoulder, neck, wrists and fingers. No inflammation. The joints seem to crack a lot. No fever, fatigue, rash, etc. I've tested negative for everything, including an ANA. The things is, there are only so many things that my symptoms qualify for but, just before these symptoms, I was quite stressed over my job. My doctor thinks it is a viral infection, that typically clears itself up after six to eight weeks. I've discounted so many other disorders (from symptoms and tests) but am still wary of lupus. I know that ANA results can fluctuate and that it's possible for an ANA-positive person to test negative, from time to time, but I am wondering what the odds are of testing negative during (what would be considered) a "flare". My doctor says I should move on from my fear of lupus, as a result of my tests, age, race, and gender. I am a twenty-one year old caucasian male (from Canada) with no family history and, from what statistics I've gathered, there are only about 1,000 or so adult white males, with SLE, in this country and that an estimated eighty percent of them experienced onset over the age of forty. Also, only half of SLE patients claim muscle/joint pain as an initial symptom. Combine this with my test results and you'd think I would be breathing a sigh of relief. No such luck. Am I worrying over nothing?

    • ANSWER:
      Your Dr. is partially right most of the time Lupus affects women, but men do become afflicted with Lupus. Where I'd have to disagree with your Dr. is that it usually takes many ANA test over several years and lots of grief and many negative test before Lupus is diagnosed. It took Dr.s 8yrs before they finally diagnosed my mom with Lupus, and after years of worrying what was wrong with her and why the Dr.'s couldn't figure it out...It was almost a relief for her to know she was not crazy or a hypochondriac!
      FYI
      I suffer from Rheumatoid arthritis since I was 12yrs old and I too have joint pain.... Acupuncture has been the key to me living pain free.

  4. QUESTION:
    Can you still have Lupus if ANA test came back negative?
    I have several symptoms of Lupus but the ANA came back negative. Don't know what else it could be. I don't have an appointment with the specialist until next month.

    • ANSWER:
      Yes, you can. My ANA test is alternately positive or negative. and I have Lupus and fibromyalgia. Go to Mayo Clinic's site. They have information on which of the other blood tests taken in combination point to a firm Lupus (SLE) diagnosis. Pay particular attention to your rheumatoid factor results.

      Remember: there is no definitive blood test for lupus per se; a combination of results from several types of blood tests combine to point to the diagnosis. There are many people with Lupus who have never had a positive ANA!

  5. QUESTION:
    Can Child Protective Services keep my boyfriend from seeing my 4 yr old Daughter?
    CPS was called on my boyfriend after she broke her arm (in a public place) and also because she has been having bruising, canker sore, hair-loss and joint pain. I have taken her to the Dr about all these symptoms and they believe she has an auto immune disease ( they thought lupus but had a negative ANA result from lab, lupus would have shown positive) I am now wondering if they charge him with this can they ban him from ever having contact with my daughter again?

    • ANSWER:
      First off, a negative ANA test doesn't mean that she doesn't have Lupus. Many people with Lupus have a negative ANA. Lupus is diagnosed through blood work and symptoms. Even if all the blood work comes back negative she could still have Lupus based on her symptoms. Don't let doctors push you around so easily. Demand and answer.

      Secondly, are you kidding. He should be in jail if he broke your daughter's arm. You should keep as far away as possible, get a restraining order, change your phone number and never, ever talk to this individual again. He hurt your daughter for god's sake. And yes, they can prevent him from seeing her if he is abusing her. You need to document it and file paperwork with the courts. In the mean time you should never let him see her. Make him take you to court and then show the judge what he did, he'll go directly to jail and the court will order him to stay away. Whatever you do, do not let him see her again.

  6. QUESTION:
    Is having lupus a possibility?
    I am 17 years old and have a lot of lupus symptoms. I have hair loss, unexplained low grade fevers, mild joint swelling, joint and muscle pain, unexplained rashes, livedo reticularis( excessive motteling of skin), raynauds syndrome, along with other symptoms. I went to a doctor but because I wasn't anemic and had a negative ANA that it was not lupus. I know there are other tests and thatan ANA can be positive later. Does this sound lupus like, or is it possible for a negative test to later become positive?

    • ANSWER:
      Lupus is a difficult disease to nail down. A false negative on an ANA is possible but is not likely. Your symptoms should not be ignored. With health care workers overworked you will have to be your own advocate and keep working with your physician to find out what is going on. There are other conditions that could match this profile and we do not have enough information to make more assumptions nor would it be appropriate. Keep pushing for your appointments and get your diagnosis.

  7. QUESTION:
    People diagnosed with Lupus... need help and info!?
    I do not wish to write a paper about all the details and symptoms, so I'll just summarize, then ask my question.

    Over the last 5 years, I have had symptoms of EXTREME fatigue, joint pain, canker sores, mild hair loss, etc. I am also anemic (which no amount of iron or B vitamins changes in the slightest). In this time, I have also had a false positive Syphilis test, and chronic kidney stones (3 in 7 years).

    In August of 08, I developed a cough that STILL has not gone away. I have been to TONS of doctors and been diagnosed with pneumonia, asthma, bronchitis, allergies, etc, and put on more antibiotics than I care to think of... all the antibiotic treatments actually made me feel worse.

    I also developed a sudden, strange rash on my leg after being out in the sun for a couple days... which also has not gone away. And more recently, I have a light butterfly rash on my face.

    Last month, I finally found a doctor that said "Wow... 8 of the 11 symptoms of Lupus... let's get you tested." I was x-rayed to check for Pleurisy (in the lung tissue), and put through about 10 blood tests (also checking for lyme disease, just in case).

    Even after the false positive Syphilis, and the anemia, I tested negative on the ANA test. Kind of. I tested higher than normal, but apparently too low to make a full diagnosis of Lupus.

    What does this mean exactly? Is there such a thing as borderline Lupus? And I know there are a few other diseases that mimic Lupus... but what are they? I know that Fibromyalgia is one of the "mimic" diseases, but would that also account for the blood disorders that I DO have and the rashes?

    I do have another appointment with my doctor in a couple weeks, and I also know that making a Lupus diagnosis can sometimes take a while... but has anyone had the negative ANA issue and still been diagnosed with SLE? And what was your experience... anything I should ask my doctor to look for on the next visit?

    Thanks!
    Oh, they did also check my thyroid... everything normal there.

    And should I mention, also, that my symptoms began during pregnancy and have gotten progressively worse? This has been going for about 5 years... and just now I've screamed loud enough that I am being taken seriously.

    • ANSWER:
      Unfortunately it may take years to DX Lupus. I had all of the symptoms you do and saw a Rheumatologist for about 5 years before my ANA was positive. In the 5 years I also had a pos. Scleroderma and Sjogrens. All along my doctor said that probably I would develop Lupus buy it was a wait and see. Keep a diary of your symptoms and continue to see your doctor. Hope this helps.

  8. QUESTION:
    Is it possible to have a false positive Lupus test?
    In 1998 I have tested positive for Lupus. I have frequent hives which appear on different parts of my body and are pretty large and severe. this issue has progressed and I get the hives more frequently (almost daily). Now they are accompanied by joint pain, to the point where I cannot grab things and I cannot feel my fingers. I had several ANA tests done, some positive, some negative. I have not seen a dr about it for a few years, since they can't seem to find the cause. Anyone else have experience with positive/negative ANA tests and those kind of symptoms? It's getting pretty bad and I have a lot of pain, but no insurance to see a dr.

    • ANSWER:

  9. QUESTION:
    Is my lupus coming back?
    I am seventeen years old, about to start college, and about a year ago I was diagnosed with drug-induced lupus (the drug I was on was minocycline, which I had been on for about 3 years for minor acne). I had a rash on my face, kidney pain, joint pain/arthritis, mouth ulcers, anemia, pleuritis, and pneumonia (apparently an indirect association). Also, about six months before all this, I had three seizures and was diagnosed with epilepsy, but my doctor began thinking that that, too, might have been caused by the lupus. My ANA test was negative, but my doctor said the other symptoms were significant enough to be certain that it's lupus. So, naturally I was taken off the drug, and my symptoms cleared up pretty well.

    However, for the past few weeks, I've been noticing some of the same symptoms, and more. My kidneys have been hurting badly, I have a lot of joint pain, and I've gotten five mouth ulcers in two weeks. Also, I've been having heart palpitations and what feel like skipped heartbeats, though I never had heart trouble before. Fortunately I'm on a medication to control my seizures and that works very well, so I'm not worried about that.

    I would go to a doctor right away, except for one problem. I'm a cutter. (Yes, I know it's a really stupid thing to do. I'm not an idiot. I know that. I starting cutting back when I was having seizures because it all got to be too much to deal with, especially since I was having seizures during school and about 800 people witnessed them, and at the same time I was having another crisis in my personal life, and I just haven't been able to stop). Problem is, now I've got a few scars, some on my upper arm, some on my hip, some on my leg. And if I go to the doctor, I'll be thoroughly examined and I really can't have them finding those cuts, because I'm technically still underage and in my state they would be obligated to tell my parents. And no, that would not be better; it would only worry my parents unnecessarily (with my medical problems and my brother's suicidal depression, they already have plenty to be concerned about) and furthermore they would probably stop me from going away to college next year (I'm going to college outside the US). And that would only make everything worse for me.

    So though I really should, I can't go to the doctor, so I'm asking you.

    Do you think my lupus is coming back? Or am I just reading into my symptoms too much?

    • ANSWER:
      Firstly, a doctor is going to be respectful and non-judgmental about your self harming. They are there to help. I'm sure you're embarrassed (I know, I've been where you are), but doctors are understanding. They will not tell your parents if you're not risking your own life. They may suggest a course of anti-depressants or speaking with a therapist. I'd recommend speaking to someone about this anyway. The emotional baggage that comes with health conditions can be worse than the condition itself.

      It sounds like your Lupus could have come back or never left at all, but no one on here is qualified to tell you either way. Did you see a rheumatologist? I don't know much about drug induced Lupus, but from what I've read it says that in most cases when you stop the medication in most cases the Lupus goes away. So most cases, but not all cases.

      I think you should go back to your doctor. I'm not sure how drug induced lupus works, but I know with SLE they might prescribe Prednisone to knock a flare on it's head. This might be an option for you.

      There's another user on here who has Lupus and is very knowledgeable. She usually answers all the questions on here about Lupus, so I'm sure she'll find your question and answer it. You could also try and contact the local arthritis foundation or Lupus foundation in your area and see if they've got any information for you.

      Good luck.

      ....

  10. QUESTION:
    Positive ANA, Lupus or something else?
    For a few years i have had many symptoms, was diagnosed with Diabetes and Celiac Disease (an autoimmune disorder) and I have symptoms such as bone/joint pain, tiredness, fatigue, back/neck/shoulder pain, headaches in the back of the head, anxiety, depression, a facial rash that seems to worsen with sun exposure, heat and sun sensitivity and I had a few Lupus tests about two years ago that came back negative.

    These symptoms and many others seem to come and go, such as the neck pain it will come and go in intervals of few weeks. Now I had a ANA test done two weeks ago because my rheumatologist was concerned that Lupus is still a possibility. I had to go get my results on Tuesday but from a different doctor, a general practitioner and seemed to not know anything about medicine.

    She told me all my tests were negative and i did not believe it, so I asked her if she was sure so she sowed me the results on the computer screen and I saw several positive or "high" tests. One of them was ANA, it was possitive, so i asked her what that meant and she said 'its nothing, its a nonspecific test, dont worry about it"... is this true? should I not worry about it? and if it is so not important, why did my rheumatologist order it in the first place?

    Can you have only ANA test positive and no other antibody for lupus and still have Lupus?

    • ANSWER:
      Let me actually answer your question. An ANA test is a non specific test that shows the existence of an auto immune disease. It isn't specific for Lupus. That being said, there are other tests for Lupus that can rule Lupus IN but not OUT.

      An Anti-DS-DNA, Anti-RO, Anti-SM are all tests that will help in a Lupus diagnosis. About 30% of people with Lupus will test positive for these tests. If you do test positive then you have Lupus. If you test negative you can still have Lupus.

      With your symptoms it sounds very much like Lupus. I would get copies of all your lab work and research it on the web. Then go to your doctor with specific questions about each positive result. Talk to them about your symptoms and ask what they think it is. Don't take, "I don't know" for an answer. If they say this then tell them to find out.

      Unfortuately, there are a lot of doctors out there who are uneducated about Lupus. Many of them just pass you on to someone else or worse yet, explain your symptoms away. You'll have to be a thorn in their sides until you obtain your diagnosis. Whether or not you have Lupus, you need to be an advocate for your own health care. Good Luck to you!

  11. QUESTION:
    Anybody with Lupus (SLE) can tell me how the pain feels like?
    I am very worried that i might have Lupus, although my ANA test was negative but i have a higher than normal SED rate and everyday my body temperature is above normal. I feel pains in random parts throughout my body. The pain will randomly come in one spot, where it would hurt for less than one minute, then it disappears and some other time of the day i get another pain in somewhere else where it lasts for less than a minute also. Is it possible to go through a lupus flare that lasts less than a minute?

    Can you describe the duration of pain in lupus? If your leg joints are affected, does it continually hurt for days?

    • ANSWER:
      An elevated sed rate can come from multiple different sources. This is a very non specific test and is a marker of inflammation that can come from a great number of things including infection. A fever is also a non specific finding that can be related to lupus but can also be related to many other things. Your ANA was normal, so that speaks less for lupus. The sensitivity of the ANA test is very high at 99%. This means that if you take 100 people with lupus, 99 of them will have positive ANA results. So it is quite unlikely to have a false negative.
      Saying "random" pains is very non specific as well. Are the pains in different joints or just random parts of the body? As far as the joint pain goes, while all joints can be involved the most common are small joints such as those in your hands and wrists Lupus flares do not last minutes like that they go on for days or longer. Other symptoms you might see with lupus is fatigue, rashes, skin ulcers, problems with the blood, lung, and kidney issues. With your ANA result it is unlikely this is lupus. A lot of things can cause these problems you are describing. Where are you from? Have you been tested for Lyme's disease? Rheumatoid arthritis? Age is a factor as well

  12. QUESTION:
    doctors and nurses, please help, no one can diagnose what's wrong with me. i've seen over 12 doctors?
    for the past 8 years, and now rapidly adding new symptoms, i have had these problems. all bloodwork is NORMAL. it is maddening and debilitating.

    24/f

    in order of appearance, i developed these symptoms one after the other over the years.

    at 14, very painful menstrual periods.

    starting when i was 17...
    joint pain while on accutane in hips.
    1cm mass found on adrenal gland, doctor's ignored it.
    became extremely pale, no longer naturally tan.
    joint pain continued in hips.
    went off accutane.
    about a year later, went to doctor complaining of continued joint pain and swallowing problems. cat scan was done for swallowing, no abnormalities, tsh etc. normal. lasted about 6 months then gone.
    about a year later, developed inappropriate sinus node tachycardia.
    about a year later, developed EXTREME fatigue.
    developed bad allergies when I didn't have much trouble before, only minor. suddenly got TERRIBLE allergies with sinus infections and headaches all the time.
    diagnosed with COPD even though i don't smoke and it doesn't run in the family.
    joint pain still continuing, getting worse.
    developed random intermittent rash on stomach.
    joint pain and fatigue getting worse.
    hair started falling out.
    now around 21-22. fatigue worsened by a LOT. major.
    rash continued.
    at 21 develped major dry eye problems. could not see clearly for about 6 months. have never regained clear vision in right eye.
    at 23, developed tingling in hands and feet, numbness in right leg/foot. all intermittent. x rays normal. fatigue worsened. hairloss worsened.
    developed major dry mouth problems. got a cavity in every single one of my teeth except my four front ones in a span of one year.
    at 24, fell to pieces. intermittent numbness continued, tachycardia, everything continued etc. 1/2" mass found on thyroid. TSH etc. TPO antibodies test normal. catacholamines test normal. t3 and t4 normal. everything NORMAL. am totally completely beyond exhausted all the time. can hardly walk the distance of 3 driveway lengths due to fatigue. walk slowly. joint pain because excrutiating. haven't been able to see clearly out of right eye for over a month. was placed on synthroid to shrink the nodule and am waiting on that. sed rate etc normal. kidney function normal. heart rate is always around 120+ due to unexplainable tachycardia. my hair is falling out by the masses. ANA antibodies slightly elevated. lupus negative.

    PLEASE HELP.
    any suggestions are welcome. ideas of illnesses I might suggest testing for, anything!!!!!!!!

    • ANSWER:
      Lyme disease?

  13. QUESTION:
    Does anyone with Lupus suffer from hip pain?
    This question is about my 10 year old son.
    He has had extreme hip pain for almost a year and it has now spread into his lower back. He does have a positive ANA test but all others were negative including those for arthritis.
    I have had him to many specialists and they keep saying it is an auto immune problem but can not pinpoint what it is. They think Lupus may be possible cause of his symptoms and family history of it.
    Does anyone with Lupus suffer pain in the hips and back?

    • ANSWER:
      I'm being diagnosed with dermatomyositis and I have hip pain where I can't even walk across my campus. I'm only 20, and I can barely lift my arms anymore. A positive ANA could be dermatomyositis and it could be because his muscles are getting weak around those areas. Try to see if his arms are weak and hard to hold small things up like a coffee mug. If he gets tired quickly it could be muscle weakness. If you want to check the beginning of the long road starts at a blood test to check your creatinine kinase levels. Definitely look into what I say because there is Juvenile Dermatomyositis. It affects kids exactly that age. Shoot me an email through here I can help out with questions. Good luck

  14. QUESTION:
    periiodontal disease, lupus, b12 deficiency and platelet disorder?
    Health and body?
    I am b12 deficient have a platelet disorder and have a positive ANA for SLE (lupus)...but all other lupus tests come back negative - now am seeing a periodontist for surgery. Mom has lupus & had periodontal surgery 10 years ago. I also have joint aches and don't sleep well at all. I forgot, endometriosis too...does anyone know what any of this can be linked to? LUPUS? My platelet disorder is unknown - my blood won't clot but the bloodwork does not match any known diseases. It's very frustrating...I just wish I had some answers. I have seen specialist after specialist and shown all of them the bloodwork - it's very upsetting for my husband and myself. I would like to get pregnant later this year but know I shouldn't until I know more about what is wrong with me.
    Does anybody have any diagnosis suggestions?

    • ANSWER:
      A positive ANA with a speckled pattern can mean something other than lupus. As far as getting pregnant maybe you should see an OB and tell him/her what's going on, they may have a different take on your symptoms or be able to refer you to someone you haven't seen. I know how frustrating it can be. It took me a year and a half to find out that I have lupus. Good luck to you.

  15. QUESTION:
    could i have a thyroid problem?
    I'm 40 year old female with symptoms of tiredness, cramps extreme exhaustion (no its not the hot weather as I feel cold most of the time).
    2 years ago i was diagnosed with over active thyroid and was put on carbimazole for 12 months - there was no follow up and I have since moved counties and have a new doctor - i dont think the new doctor has my old notes so they wouldnt know to test me. Is it possible that I'm now under active. I have vitiligo since 16 - have also tested positive for an ANA test (lupus test done - negative) - I have low blood sugar problems. Both my mum and sister are under active.

    I walk 3-4 times a week (power walk) up hills etc always have found it difficult but now I'm in severe leg pain as though they cramp up and ache so badly it takes my breath away - just below my calf muscles at the back - why?
    I've had blood test 2 weeks ago and was told anemic so eat more iron rich foods - been doing that now for 2 weeks

    I drink a lot during the day to stay hydrated cos If I miss a drink I get severe headaches and my kidney hurts so I drink at least 4 pints of diluted juice and about 5-6 cups of tea or coffee

    Everytime I go to the docs they tell me - yes your cyst is still there your kidney function (creatinine clearance) is still low - was 66 now 71 should be about 100 I think - yes your legs are swollen but your heart sounds fine your anemic yes - but go home - its as though I am making a fuss. I understand that I should be more assertive and say - Look I know there is something wrong please help me - Sorry to go on - is there anyone who can understand what could be wrong with me - also I cannot shift any weight - it just seems to be going up

    I have since been back to my doctors with all my symptoms (I was assertive) and because I am so breathless when I talk - I was told that all the tests have been done - and - they are concerned about my breathing - the doc thinks I am hyperventilating - she is referring me to a physio - I cannot believe they havent thought about testing my thyroid - I came out of the doctors and broke down crying - I have lost all faith in GP's now and I am seriously considering going private.!!!!!
    well I'[m not sure why someone would just reply with - go private then ........ - is this meant to help me
    thank you both for your helpful replies - I do believe that everyone shouldn't ever feel like they are wasting doctors time as I feel like that everytime I visit mine - maybe its me maybe I research my symptoms and explain what it could be - i know it sounds like I am trying to do the doctors job for them but I'm not I know how important their time is so I stay as little as necessary - i just think I am helping by saying what could be the problem - i'm not though am i

    • ANSWER:
      You have such a multitude of symptoms that it is difficult to identify the possible cause of all of them. The possibilities that initially come to mind are: Diabetes, thyroid function, possibly early menopause/hormone imbalance. It is also highly likely that you are worsening your symptoms by drinking so much coffee and tea. Caffeine will act as a diuretic and contribute to dehydration. You roughly need twice the amount of water to coffee in order to balance your hydration levels. I also suggest that you switch to water rather then juice (even if you dilute you juice).

      You need to take charge of your health and insist on getting the help that you need and perhaps look elsewhere if necessary. We are our own health care managers and we absolutely have the right to fire and find a new doc if we don't feel that they are meeting our needs. Nothing is more important then your health.

  16. QUESTION:
    Can a dentist diagnose lupus?
    Is it possible to do some kind of biopsy on the gingival ulcers I have to see if it's caused by lupus? I've been through lots of tests with my doctor and neurologist. I have 4 of the 11 criteria for lupus including two positive blood tests: (ANA & DSDNA which was a high positive) achy joints and extreme fatigue, but my neurologist is convinced I have MS from the MRI and Lumbar Puncture. My most recent dentist said the red marks on my gums look exactly like lupus and I tested negative for all the other diseases that cause those kind of ulcers. So is there some kind of biopsy they can do?

    • ANSWER:
      No wonder it takes an average of 7 years for a person to get a clean diagnoses of Lupus. If it me, I would get the mouth ulcers looked at my a dermatologist. A dermatologist is a very experienced doctor who knows a lot about diseases and skin ulcers. If you had vasculitis for example, you would go to a dermatologist to get a skin biopsy. I would also let your rhuematologst see your mouth ulcers.

      Have they tested you for antiphospholipid syndrome( also called Hughes's Syndrome) which often overlaps with lupus

      "one of the main alternative diagnoses in patients with Hughes syndrome is multiple sclerosis"

      Also, with your mouth ulcers consider Bechets. Its not common but people still do get it. Google pictures of it, because there is no blood test for it. I doubt they would think of it unless 6 mouths from now you get genital ulcers and even then they wouldn't make the connection because your mouth ulcers would be gone. It's always a good idea to take pictures of your ulcers for later reference.

      If you ever get the red butterfly rash, take a picture for sure :)

  17. QUESTION:
    Is Cod Liver Oil good for Painful Hands & Joints?
    I have really painful hands and joints that stiffen when I don't use them. I also have really dry eyes and my vision is impared. Does any one know if cod liver oil can help with this problem.

    I don't have Arthritis or Rheumatoid arthritis. My ANA has come back negative. Other blood work comes back showing inflamation (as if I didn't know that already). I've tried Anti-inflammatories and I don't want ANOTHER steriod jab, as they make me bloated and gain weight which I find hard to lose.

    I've tried putting them in cold and the hot water, which helps a little but the relief doesn't last long. I've also tries homeopathy remedies.

    I was diagnosed with SLE (Lupus) in 2000, but later the doctors decided that I did not have Lupus and my conditions was probably Fibromyalgia.

    I am in so much pain and I can't do anything because my hands hurt so much. I would really appreciate some imput.

    • ANSWER:
      Not directly, no.
      Cod Liver Oil is primarily beneficial for healthy bones, skin, vision, cardiovascular function and brain health. However, there are some people that get some minor benefits for joint health, mostly because the nutrients that help skin have a small percentage of people that also get benefits for the joints.

      If you're looking for products for joint health, the most popular ones I've found are Microlactin, Hyaluronic Acid, Tart Cherry Extract, Litozin (Danish Rose Hips), Glucosamin, Chondroitin, MSM, and Avovida (a combination of avocado and soy). Most of them are very economical and are very beneficial... our customers order them on a very regular basis. Most people get benefit from one or more of these ingredients within anywhere from a week to a couple months, depending on how long it takes for the supplement to get into their joints.

      The only thing you'd have to worry about on any of these aside from allergic reactions is that the Microlactin is from milk and the Glucosamin is typically from Shellfish (those are the most common allergens).

  18. QUESTION:
    Question about Positive ANA results?? 1:80 Titre Speckled Pattern?
    I feel like a Hypochondriac. I went undiagnosed with Thyroid Disease (Hypothyroid) for 3 years Between the ages of 18-21. I have always been very aware of my body; and when things are wrong. At 25; I contracted Epstein Barr Virus (Mono) otherwise- I've led a very healthy life. Since turning 30; I've struggled with muscle and joint pain, swelling in face; hands and feet; headaches; extreme fatigue, high blood pressure, hyper-gylcemia, IBS; brain fog and memory problems. I'm tested regularily for my TSH levels; and most recently; for the first time- My tests showed a Positive 1:80 Titre- Speckled Pattern. I was going through what I would call a "flare-up" of extreme symptoms at the time of the test. I am scheduled with a Ruematologist end of March. My other blood work I guess did NOT suggest lupus- despite the new development of a Positive anti-body test. I guess I feel as though "something" is going on- yet my blood work- is within normal relms. Does anyone have any suggestions? These symptoms are almost deblilitating- and while it was suggested I might have Fibromyalgia- I can't believe I feel so terrible inside and out- yet my blood work says I'm normal. I am also at a loss as to why I might suddenly show a Positive ANA test after years of being negative. Many say normal people have positive results for ANA. I would appreciate anyone who might have some insight on autoimmune challenges. Thank you.

    • ANSWER:
      You said you went undiagnosed with thyroid disease from age 18-21, so I assume you "are" being treated for thyroid disease now, and have been for the last 4 years. I will bet that the thyroid med you are on is synthetic t4 (synthroid, levothyroxine, levoxyl, unithroid, etc), and "not" on a natural thyroid med (Naturethroid, Erfa Thyroid, Thyroid-S, etc). And that you have not had adrenals or ferritin properly tested/treated. Why do I say that? Most of your symptoms (muscle/joint pain, face hands feet swelling, headaches, fatigue, high blood pressure, IBS, brain fog, memory problems, etc) are common to those that are taking a t4 drug.

      About the ANA, a big proportion of the population without any disease can also have a positive ANA test. From an internet search, I found this also:
      "A positive ANA titer can be found in a variety of rheumatologic diseases, such as lupus or rheumatoid arthritis. As for the speckled pattern, in addition to lupus, dermatomysitis, mixed connective tissue disorder, scleroderma or Sjogren's syndrome can all be the cause. Ken Pho, MD"

      Thyroid info:
      http://www.stopthethyroidmadness.com/t4-only-meds-dont-work/
      http://www.stopthethyroidmadness.com/natural-thyroid-101/
      http://www.stopthethyroidmadness.com/things-we-have-learned/

      Lab tests and how to interpret them:
      http://www.stopthethyroidmadness.com/recommended-labwork/
      http://www.stopthethyroidmadness.com/lab-values/

      Just in case:
      http://www.stopthethyroidmadness.com/how-to-find-a-good-doc/

      I hope this info helps you.

  19. QUESTION:
    Can having iron deficiency cause a positive 1:640 on an ANA blood test?
    I've been so sick and went to the doctor earlier this month. I had a whole bunch of blood tests done, one of them being the anti nuclear antibodies. The test came back positive (1:640 with speckled and homogeno pattern). My doctor then ordered more tests which she said were specific to lupus. She said the tests came back negative and that the iron deficiency anemia is whats causing my ANA to come back positive....this doesn't seem possible to me. I've never felt so sick in my life. Ive had iron deficiency on and off all of my adult life and I've never felt like this before. Anyone know if she's right?
    My doctor is an internal medicine doctor and has referred me to a hematologist instead of a rheumetologist which really makes me angry!

    • ANSWER:
      No, your doctor is wrong. An ANA is a non specific test for an auto immune disease...maybe he thinks you have hemolitic anemia...hopefully not as this would be terrible. However, an ANA would not be associated with an iron deficiency, not in the least.

      Your Lupus panel came back negative but that really doesn't mean too much. Really the Lupus panel is used to rule Lupus IN, not OUT. Only 30% of people with Lupus actually test positive for the Lupus panel. This is why they say that there is no specific test for Lupus. You should see the hemotologist and then ask to also be referred to a rheumatologist. If your primary care doctor balks at this suggestion, let her know that if anything occurs as a result of his lack of attention then you're attorney will be calling her (this always gets the referral, by the way). After you do this you'll have to put in a request with your insurance company to change primary care doctors, but who cares, she sounds like an idiot anyway.

      Get copies of all your lab work. Ask the doctor for them (before you threaten her with a lawsuit). Have them make a copy so you can actually view the results. Approximately 5% of the population test positive for ANA even without an auto immune disease, however this is a small percentage, so odds are you have some type of auto immune disease.

  20. QUESTION:
    can anxiety&depression be my problem?
    wel im just not 100% sure if my problems are anxiety related.
    I had asthma for about 3 years and took an inhaler to help me breath, at the time i was about 30-40 pounds over weight, i started to have breathing problems that was so intense that my inhaler didn't help much, i ended up in the ER 1 or 2 times. back in November 08' I had a stomach problem, couldn't eat any food other than rice and chicken soup. I did a blood test and doc said i have the H. Pylori bug thing going on and tested positive for ANA reflex but it showed no pattern, so i took some antibiotics and H2 blockers for awhile and it din't really do the job, then i went in for a Upper endoscopy and had a biopsy done, came back that i had a irratation on my stomach wall and a little hernia. I was prescribe Prevacid and took it for about 4-5 weeks and my stomach started to feel good. But then i got scared and nervous about the ANA test because it said something about Lupus, so i began to research about Lupus and found out all these crazy things about the symtomps and began to worry myself sick about it. My doc told me that it could be a false positive on the ANA test because i tested positive 3 times on the ANA test but negative on the pattern 3 times. But ever since then i just started to wonder if i really have it or not, sometime i think i might have it but then sometimes i think i dont have it. and it just kinda lead me to these stuffs:
    some nights I cant sleep
    My hands are kinda shaky, u can't see the shake, but u can feel it , and my heart has a harder pound than before,
    i get headaches and neck stiffness, like it's paralized or something
    my face also feels like it's all tense up, like that feeling u get on ur face during the day when u stayed up a whole night without sleeping.
    my focus isn't really there, seems like i space out or day dream alot
    i don't conversate much anymore, even with my kids i ignore what they ask me. Recently I have been saying "I don't know" so much, i dont remember saying those 3 words so much before in my life, it seems like my memory has gone bad or something.
    When i talk to people, i get a instant uncomfortable tense feeling of stiffness on back of my neck,head and face and it makes it hard for me to do the eye contact while talking, also a nervous feeling.
    my headaches are daily, it feels like migraines, tension headaches on both sides of my temple area, but mostly on my left side, it goes from the left side of back neck to the left temple area and sometimes it fels like pressure and sometimes it feels like a tight squeez. I was told by my doctor that i maybe suffering from anxiety and depression and prescribe me anti depressant pill Paroxotine(paxil) but of all the side effects and the stupid stuff u hear about what these drugs do to you, im very scare and nervous to use them. Im just clueless on what to do, i have been taking some natural remedies, but have seen no improvements, i really want to try the anti-depressant meds but im not sure if i should. this has been going on for about 6-7 months now.
    what can this be?

    • ANSWER:
      You very well can have depression and anxiety, but sounds like so much more going on with you. You definitely have digestive challenges, and believe it or not, those digestive challenges have a direct relationship to everything that you are dealing with physically and mentally.

      Diet is such a critical factor in creating and maintaining health. Not just physical health either. You may say "How?" Your body and your brain are dependent on the nutrition you SHOULD be taking in. Problem is that the standard American diet (SAD) is full of processed foods and foods/drinks that are high in sugar and in caffeine. All these food items fall very short of providing adequate nutrition for the body and the brain. Worse, they deplete the body.

      Processed foods are full of artificial ingredients that wreck havoc with our nervous system (the brain is part of the nervous system). Many of these ingredients are neurotoxic...meaning they are toxic or poisonous to the nervous system (again, includes the brain).

      Foods and drinks high in sugar cause lots of problems as well. Sugar is void of any nutrition, but it burns off many critical nutrients like the B vitamins and magnesium. I've read that more than 80% of Americans are deficient in magnesium. Magnesium is a natural tranquilizer...it calms the mind and allows the muscles to relax. [Don't go taking mega doses of magnesium, however, because minerals need to be present in a particular balance and taking a single mineral can throw things off even more than they already are.] B vitamins are critical for a healthy nervous system.

      Having said all that...diet also determines the health of the digestive tract. There is a balance to health, and it starts with digestion. If your diet has had too many junk foods, over time your digestive health goes downhill, the microbial population there gets thrown out of balance, and you begin to experience physical and/or mental symptoms. Because the digestive system is not operating well, your body doesn't get all the nutrients you are eating, and you are not clearing toxins efficiently...which adds to many of the symptoms you describe here. As your health deteriorates, you are prescribed more and more medications. These medications may or may not reduce symptoms, but they definitely add to your body's toxic load and can contribute to the digestive system going even more out of balance. [Antibiotics are especially problematic for the digestive tract.]

      Examine your diet and make changes as needed. Eliminate all junk food. That means eating whole foods...lots of vegetables and fruits, whole grains (not processed cereals), and protein from healthy sources. Best to buy certified organic as much as you can to minimize the chemicals found in conventionally grown foods as well as to be sure you are getting food that has not been irradiated or genetically engineered [another topic that's too lengthy for discussion here.]

      In addition to eating a healthy diet, adding some supplements can help your body restore its balance a bit faster. A good place to start is to take
      * a good multi-vitamin/mineral complex to make sure you are getting a balance of all the important nutrients. Take as directed on package. (You may want to take a little extra magnesium short term, like one capsule a day for 1-2 months.)
      * a B100, taken once a day, to replenish your body's stores of B vitamins
      * a good EFA (essential fatty acid) formula...critical for a healthy nervous system
      * and a very good enzyme formula that contains protease, amylase, cellulase and lipase enzymes. This will ensure you are getting the most out of your food and your supplements. Take as directed on package with your meals. In addition to that, take two capsules 3X a day on an empty stomach. The enzymes taken on an empty stomach will be available for other critical functions in the body, like detoxing, tissue repair and immune support. There is much information available about enzymes and health, but too much to go into detail here. Every single function in your body requires enzymes. Without enzymes there would be no life at all. Take these extra enzymes for at least three full months and then assess how you are feeling.

      Working with a clinical nutritionist can be a very good move toward better health. Talk with your doctor to see if he knows of one he can refer you to.

  21. QUESTION:
    Why do I have such extreme pain in my lower legs and ankles?
    I am a 34 year old woman who, until now, seemed to be in good health.

    It started two weeks ago. My lower legs and ankles were aching terribly. It's not a pain that I'm familiar with. More of a burning and constant pain. I found that aleve was the only thing that would make it subside. The pain worsened day by day and, eventually, I went to the walk-in clinic. They drew blood and ran a number of tests. And, they found that my sed rate and cpr was elevated (which told them that I have inflammation somewhere in the body... I bet I can guess where). They were looking, specifically, for lupus. But, they were quick to rule that out when my ANA came back negative. Later, they ran an ASO titre looking for rheumatic fever. It was elevated by 10 points but, they said that, they don't consider it to be significant until it is at least 100 points out of range. They also tested for rheumatoid arthritis which was also negative. Yesterday morning, as I tried to take a shower for work, the pain became so unbearable that I could not stand or walk. So, I went to the ER. They did an ultrasound on my legs to look for blood clots. Luckily, there weren't any. And, they prescribed me with Naproxen (a stronger version of Aleve) and Loratab. The loratab does NOT work but the Naproxen works beautifully. Unfortunately, I was instructed not to take the Naproxen more than 2x a day unless I want a giant hole in my stomach... and it seems to wear off after a few hours.

    At this point, I am desperate to find out what is causing this inflammation and pain in my legs/ankles. There is no edima present only some swelling right around the ankle bone. Please, if you have any ideas... I would like to hear it.

    Thank you.

    Heather

    • ANSWER:
      Heather,

      You know it's very hard to "diagnose" a condition over the internet. Having said that, here goes...

      My first guess would be Gout.
      Read this for a description of what gout is, the symptoms, and how common of an affliction it is:

      http://www.medicinenet.com/gout/article.htm

      Second guess would be Synovitis (inflammation of the lining of the joint - very similar to Gout but the uric acid tests for Gout would come back negative).

      Very small chance of vascular disease (the dye test is more conclusive than an ultrasound - especially with Peripheral Vascular Disease).

      Did you know there is a web site where you can enter your symptoms and the likely diagnoses will be displayed? Check out this site:

      http://www.medicinenet.com/script/main/art.asp?articlekey=63916

      As a final note, if you are taking Naproxen and Lortab, you should ask for Nexium to help protect your stomach.

      I hope this helps. I wish you the best of luck and good health.

  22. QUESTION:
    Lupus??? MS??? What is going on with me?
    I have had a lot of tests run lately and have had two come back that the doc is concerned about. I have a low white blood cell count and have a low positive ANA of 1:40 speckled. I have absolutely no idea what all this means. I did have a smith antibody and double stranded dna test done, both came back negative. Again, no clue what this means!! My doc is sending me to a rheumatologist but I can't get in until March. So I have to continue to live with pain, fatigue and absolute frustration where I feel like no one is listening to me! I have very painful muscle spasms and joint pain. Sometimes my fingers shake and get weak and when they get cold sometimes turn white and painfully numb. Ugh! I've heard MS and Lupus and just hoping someone out there can give me some kind of insight!! I'm sure I've left something out as I have been battling this for several months...if you need more information please don't hesitate to ask!

    • ANSWER:
      There are many conditions which mimic MS and Lupus, which make it difficult for doctors.
      I have all the symptoms you've listed and I've been given the diagnosis of Fibromyalgia, Chronic Fatigue Syndrome and a few other things. I'm also being monitored for Lupus as I'm one off having the criteria to be given a diagnosis. One of the doctors I saw also said he believes I have Mixed Connective Tissue Disorder.
      Some other things that have similar symptoms- rheumatoid or osteo arthritis, depression, hypothyroidism, IBS, Lyme Disease and many more (http://adam.about.com/reports/000076_4.htm)

      Good luck, I hope you get some relief soon!

      ...

  23. QUESTION:
    Tests for inflamed joints?
    So, I have had trouble with swollen knees for over 6 months now. I started physical therapy about two weeks ago and it is helping. However, I have been having trouble with smaller joints recently. Lately, I've been having trouble with my toes, wrists, thumbs, index fingers, ring finger, and pinky finger. I have also had trouble with my elbow. Dull achy pain when used. Pinky finger having trouble fully extending.

    Have had several tests done and nothing useful. Blood results were normal (ANA was a little high as well as calcium). MRI showed inflammation. X-Ray Normal. Negative for lupus, lyme's, RA, pseudo gout, Hepatitis A-E, and a few others I'm forgetting.

    After over 6 months of this, I'm getting tired of it.

    So, I want to know the name of every possible test I can have for this, even if I've already had them. This includes blood tests, disease tests, etc.

    What are all the possible tests I can have done?

    Thank you.
    Please keep in mind that I have been dealing with this for over 6 months. I assure you that I already know that Lyme's Disease tests are not always accurate. The Western Blot is only 80 % accurate. Even still, I could be seronegative.

    I am not asking for information about any of the diseases that it could be. I am asking for tests that I could have. For example: ANA Test for a blood test.

    As a fair warning, I will report your answer if you spam me with websites regarding different conditions, etc. I have been to the several doctors for over 6 months now. I've pretty much heard it all. I am wanting the names of tests that I can ask my doctor for.

    • ANSWER:
      I think an ANA test is an excellent idea...ruling out autoimmune diseases is a really good idea.

      I'm not sure if your RA panel included an ESR or a C-RP, but these are also general tests of inflammation.

  24. QUESTION:
    Could this be an autoimmune issue? (lupus, rheumatoid arthritis etc.)?
    I've had popping and on again off again hip pain, especially in the right side, since my teen years. I've also had migraines since about 11-12 years old. 4 years ago I started getting petechiae on my legs and flat, red pinprick spots on my back and arms. The petechiae went away but the red spots are still there. Docs looked at anemia and liver function tests. The first liver function test came back "off" but a retest later came back normal. I have issues with being tired as well. For about a month now things have deteriorated. I started getting nausea and some dizziness, then just overall tiredness, then pain in my shoulder and now, a month later, I have joint pain in both shoulders, my sternum area, hips, fingers, neck and ankle. I'm so tired during the day that I feel like I HAVE to take a nap. I have 2 young kids so that isn't an option. My hands and feet always feel cold, especially my feet. I can be totally wrapped up in blankets and my feet will still be cold. I get nauseous every time I eat and I'm on Prilosec for ulcers, although they told me I tested negative for H. pilori (sp?). I went to the doctor and I've gained 7lbs in 3 weeks and my fingers and face are swollen. She ordered an ANA test and I'm waiting for the results. What do you think?

    • ANSWER:

  25. QUESTION:
    Is this an autoimmune disease?
    I've got quite a few things going on in my body and my doctor is not really sure what to do next. I've recurring yeast infections in my body (esophagus and vaginal) for quite some time now. I've got horrible dishydrotic eczema or and ID reaction on my hand, and my bones and joints hurt so badly. I've been tested for systemic yeast; it's not there. I've been tested for Lupus; it's not there. I'm on 400 mg of Diflucan every day for 2 weeks, off a week, then on again for another 2. When I decrease or stop the anti-fungal, I get a NASTY yeast infection. When I stop the meds, my eczema comes back. When I stay ON the meds, my eczema dries up. I can't stay on Diflucan forever. My liver's going to blow up or something. Are the aching bones and eczema related, or are they 2 different things? Why can't my body fight off yeast infections? I've gone gluten-free, sugar free, and corn free. I've lost 30 pounds, but still feel like poo. When I eat flax seed or hearty wheat products like a heavy bread, I feel like I'm going to die. My ANA levels were slightly elevated, but not that bad... and like I said, the Lupus screening was negative.. I feel like I'm going to have to live with this for the rest of my life!

    Does anyone know anything about this? My doctor is thinking autoimmune, but he really has no clue. My mom has rheumatoid arthritis. What's that all about?

    I need help...

    • ANSWER:
      see an endocrinologist

  26. QUESTION:
    Is this rheumatoid arthritis? What's wrong with my hands?
    I have had symptoms in my hands/fingers/wrists for the past six months that have seemed exactly like rheumatoid arthritis symptoms. Reading pages about the symptoms of RA, it's like a checklist of everything I've got - morning stiffness and stiffness after inactivity, joint inflammation on both sides of the body, increased fatigue and insomnia, decreased range of motion/weakness, etc. My knees have recently become sporadically stiff as well, and I've noted stiffness in the joints of my toes in the mornings, which can sometimes make walking more difficult when I first get out of bed. My joints affected by stiffness also lock/snap occasionally, particularly if they've been in one position for a while and are moving to another (standing from sitting, holding a pencil to extending fingers, so on).

    The physicians who have been treating me - a chiropractor and physical therapist - began to suspect I had something systemic (like arthritis) going on when their treatments failed to get rid of these above, prevalent symptoms. Recently I had a series of blood tests done - uric acid, ANA, RA, CRP, and SED rate - to see if it was the suspected RA, but they all came back normal. My tests for lupus also came back negative. (I have not had an anti-CCP antibody test.)

    I was wondering what other tests or examinations could diagnose RA. While I'm not pining for this condition (who is?), it sounds so much like what's happening to me; the pain and stiffness is killer and I want to know what's wrong so that I can treat it. This not knowing and living with daily, constant pain and stiffness is awful. Do you think I should see a rheumatologist, or have an idea of what this could be if it's not RA? Any input is appreciated. Thanks.

    • ANSWER:
      It's still possible it's RA. Blood tests aren't always indicative of what's really going on. It could also be another form of arthritis.

      Do you have any skin rashes? Does anyone in your family have Psorasis? Have you had a recent infection? Have you had x-rays?

      There are more tests that can be done. Anti-CCP would be a good one, but it can be negative in people with RA too. Sed Rate and CRP are an indication of inflammation in the blood, it doesn't always mean that the inflammation is in the joints if it's elevated and if it's not elevated, it doesn't mean that you don't have inflammation in your joints.

      X-rays would be good to do, because they can pick up joint damage, but in early RA it may pick up nothing.

      Some other options would be to aspirate any swollen joints and they do tests on the joint fluid. This can tell them if it's inflammatory, infectious or normal. A bone scan can pick up small changes in the joint and pick up inflammation. It's much more sensitive that x-rays, but it has about 25 time the amount of radiation from an x-ray. MRIs can also be helpful, but my rheumatologist didn't recommend this. If you've got a good rheumatologist they may make the diagnosis based on visual symptoms. But this doesn't happen often.

      Another possibility (especially if you're a male, but it occurs in woman too) is a seronegative arthritis like Psoratic Arthritis, Ankylosing Spondilitis and Reactive Arthritis. The HLA-B27 gene helps with the diagnosis of this. You may also want to talk to your doctor about Lyme Disease. Another possibility is Palendromic Rheumatism.

      So, yes you should see a rheumatologist. They can order far more tests than your GP can and they have a wider knowledge. Not all doctors are made equal and if you don't get on with the first one, find a new one. Go to your appointment with a list of symptoms and history and medications you're on.

      Good luck.

      ....

  27. QUESTION:
    Can my Doctor transfer me to another Doctor during a Leave of Absence on Disability?
    I had knee replacement surgery in January and the tibia split. I am at the end of my Short Term Disability and although I can walk up and down stairs, have to use a cane to walk and the swelling in my leg is horrible making the pain horrible AND I can't stand or walk for for more than an hour, my doctor says the leg itself is healed and He is planning on releasing me back to work. I make an appointment with a Rumotologist thinking somehting has to be wrong for me to feel so bad. He did blood work and has diagnosed me with Fibremyalgia, also have a very low vitamine D level and a very high white count. One test (ANA) came back positive for Lupus but the other three were negative. I know that there is no way I can go back to work and perform my job. Can the new dr. continue to keep me out putting me on LTD without having to start over?
    I meant to say I CAN'T climb stairs. I feel like I need to be out long term but have not clue how to get it going

    • ANSWER:
      Where

      It is up to your doctor. But the ortho says his part is done. he is not your generalist or another specialist. It is up to them to file any additional claims.

      Many doctors feel that the disability laws are abused by too many people. They feel that once their function is complete, then they will sign off on the case and not participate in the possible abuses which often occur. Additionally, the doctors area of specialty is not that of your current claim. His view would be dismissed as irrelevant to your new issues.

      Your claim is an additional claim, based upon another problem, or even a permanent claim which does not involve his specialty.

      Soccerref

  28. QUESTION:
    What could all these strange symptoms be?
    Throughout the last 6-7 years of my life (I am currently 21) I've had numerous medical problems, all of which had "no explanation." My symptoms have included:
    Age 14-present: Severe hypertension (Average BP is approx 150/95), Severe tachycardia (resting HR approx 110-120), Severe chest pain, Elevation in white blood count with no signs of infection, Fevers with no infection, Massive hair loss, Cankers
    Age 17-present: Photosensitive (burning badly and easily), "Burning skin sensation", Extreme fatigue, Rashes on both hands
    Age 18: Unexplained paralysis of left side (no signs of stroke)
    Age 20-present: Butterfly rashes, Inability to keep food down, Partial seizures, Blackouts, Kidney Infections

    I also have a diagnosis of Schizoaffective Bipolar if that helps at all.

    My doctor has done an ANA blood test, but results results were negative. It's to my understanding that Lupus can be very hard to diagnose, but if it isn't Lupus, can all these problems possibly be something else? I am sick and tired of being sick and tired and I just want answers!

    • ANSWER:
      Food allergies

  29. QUESTION:
    Very tall with unexplained joint pain? What's wrong?!?
    I've had joint pain in my shoulders, knees, fingers, elbows, wrists, back and hips for around 2 months. I'm and 18 year old girl shotput thrower who has NOT put significant strain on my knees, back, fingers, elbows, and hips. I'm 6'0 and 130 pounds. I've been tested for lupus, rheumatoid arthritis, marfans, hypermobility syndrome, structural damage, lymes disease, and I have gotten an ANA test as well. All tests were negative and my blood work appears normal. What is wrong with me? I can barely lift a carton of milk now when 2 months ago I was one of the top throwers in my county. Can anyone tell me what I have/if you've had a similar experience? Or what joint problems can affect tall people?

    • ANSWER:
      I have been googling your symptoms for ages have you eliminated Fibromyalgia? and please also google Ehlers-Danlos syndrome? (there are lots of variations of this one)
      http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002439/

  30. QUESTION:
    Can arthralgia cause severe itchiness?
    For a few days I've been having severe itchiness, particularly in the palms (goes up to fingers, esp. finger joints) and soles of the feet (goes up to ankle). There can also be severe itchiness on my lower legs. In fact one time there was a spot on my lower leg that I scratched so hard there were so many spots that bled and now have dried blood all over.

    It's a stinging-like itchy sensation nothing I've ever experienced before.

    I was recently diagnosed with arthralgia, I'm in my 20's. Initially doc thought it was lupus since I also have a bald spot (hair is growing fast now)...ANA came out positive, but 1 month later anti-DS DNA came out negative...which led the doc to believe it's not lupus but arthralgia.

    I do spend most of the day typing and the end of the day in bad posture (on the bed) so it makes sense I have arthralgia.

    However, when I search for arthralgia and itching...I don't see a lot of people complaining about the itching when in fact it's excruciating enough for me to wake up in the middle of the night.
    I checked online... I don't think it's any type of fungal/bacterial infection of some sort. The itchy areas on the legs appear to be inflamed "goosebumps" so there are extremely tiny bumps on the skin that can feel so itchy. There can be even just one "inflamed follicle" that can be so itchy. But on the palms and soles of feet... there are no visible signs...just that they are itchy to a point that it's a "stinging" itchiness.

    • ANSWER:

  31. QUESTION:
    Dr's and Nurses Please give advice on what specialist my daughter should see?
    Back in February, my 16 y/o daughter became ill with what we thought was the flu, then began thinking mono. All tests came back negative; both quick tests and regular blood tests. The symptoms persisted for three full weeks, then subsided, would come back for a week, subside and so on.
    We thought we were in the clear but she started up again a few days ago and had to go back to the doctor today. He is puzzled, I am puzzled and I need some idea of what type of specialist she should see. At first he said a Rheumatologist...I told him that I will go wherever he feels we need to go but please consider that if you go to a specialist like that, they will look only for that one thing (he was saying possible JRA)...but now that I think about it, I wonder if he was THINKING more along the lines of lupus and just didn't want to say that in front of her. Her lab work was coming back at first showing something viral, then he did a follow up with ANA & Sed rate, etc. She was not having a flare up at that time and all came back ok.
    Here are a list of her symptoms....
    Fatigue (she is an athlete and can't even play sports right now, some days she can barely get out of bed)
    Headaches
    Sore throat
    Joint pain
    She does have a "butterfly rash"..sort of..it's more of a flushing on her cheeks--not raised at all --but only during flare up
    RBC's in her urine

    She is on Adderall for ADD (which should hype her up but she is STILL fatigued).
    So, need to know two things
    1. What type of specialist should I take her to?
    2. Can ANA & Sed rate change if the dx is lupus and she is having a flare up of symptoms?

    I am at the end of my rope here. If I just knew what I was dealing with, I could deal with it...it's the not knowing.

    Oh...btw....in December, she suffered a pretty bad concussion. Had CT scan of her head which came back fine, no bleed. I have no idea if that could have any bearing on her present condition or if it's just an unlucky coincidence. At that time, she was fine, she fell from about 2-3 feet in the air onto her head, neck and shoulder. She seemed ok at first but the athletic director wanted me to get her checked out. By the time we got to the doctor, she couldn't remember anything and stayed confused for several days.

    Thanks so much for any advice!!

    • ANSWER:
      You may have read this already or it may point you in the right direction, Idk. It basically explains that young athletes that have had a mild concussion and are exposed to further trauma before the brain has time to heal could sustain more serious longterm problems. These are findings from the University of Pittsburgh's Sports Medicine Center. If you contact them they may have some advice for you on where to take your daughter.

      Here is a link to the article

      http://sportsmedicine.about.com/cs/head/a/aa020103a.htm

  32. QUESTION:
    C-reactive protein of 11.1 & Sed Rate of 32?
    I am a 28 year old female, 132lbs. I am being tested to see what is wrong with me by my Rheumatologist. I had a horrible flair up about a week ago that put me in the hospital. All my muscles pretty much locked up and hurt very bad. They started steroids (which always helps) about 11 p.m. and at 6 a.m. the next morning I was walking again. My sed rate was up and C-reactive protein but my ANA's were only 23 and Rh F was 7.0. What is going on? Do I have Lupus or R.A? My doctor will be doing more test every two weeks. My Liver ALT was 607 ans AST was 299. (Hepatitis was negative) After three days of two different steroids you'd never know I was sick! My appetite is back, I'm not nauseated, not hurting, and my hair stopped falling out. My Rheumatologist and Internest were absolutely amazed and stundedat how fast I reacted to the steroid and got better. I have osteopenia so I can't be treated with steroid much more! Whats going on?

    • ANSWER:
      With the increased sed rate, I'd recommend asking your internist about Polymyalgia Rheumatica (PMR). You're quite young to have this but it's not outside the realm of possibility. It responds VERY quickly to steroid therapy.

  33. QUESTION:
    SLE and/or TB?
    I have an ANA titer 1:320 speckled and anti-SSA/RO strong positive and a red slightly raised and sore TB skin Tests (not sure if its positive/border line positive/negative-will be getting a call later though) of about 18mm/1.5cm

    I have all the symptoms and test results but not enough time to call what I have Systemic Lupus Erythematosus although it is suspected but some of the symptoms do overlap with tuberculosis so can What I have just be TB or can it be Lupus with Tuberculosis

    Is it a combination of the two or is it really TB?

    I also Have a rheumatoid factor of 36 (don't really know what this means-so if you do help!), normal is anything under 20 and a`slightly raised erythrocyte sed rate

    All other test Anti-dsDNA,Sm,La, etc came back negative

    • ANSWER:
      You have a dysfunctional immune system. You may have an autoimmune condition yet to be given diagnostic label. It may change with time and it is causing a false positive PPD and rheumatoid factor positivity
      YOU do not have TB
      Keep a chronologic profile of your history and summary of lab tests for the rest of your life

  34. QUESTION:
    !!!PLEASE!!! Help me understand AUTO-IMMUNE BLOOD TESTS & SYMPTOMS?
    Hi.
    I went to a DR last month and he pulled these tests. I have not been back yet. Waiting for my next appointment.

    I do not understand how the antibodies can be as they are and my how bad my symptoms have been with the abscence of detectable inflammation in the blood work!

    I have NOT been DX'ed with lupus as of yet.

    My symptoms are SEVERE, Chronic fatigue, chronic joint pain with very mild inflammation, chronic migraines, electrolyte imbalance, heavy menstraul bleeding, etc.

    Can !!!ANYONE, PLEASE!!! help me with understanding why I feel SO BAD with out any inflammation???

    My ANA is 1:1280, Nucleolar.
    My ANTI RNP is positive.
    My ANTI SM is postive.
    MY ESR was on 5/23 it was 16. On 5/29 it was 12. MM/HR.
    My DNA AB was negative.
    My CH50 is 66.
    My C3 was 127.
    My C4 was 19.7

    THANK YOU, THANK YOU, THANK YOU!!!
    Also, please note that I occasionally take NSAIDS. 1-2 X's a week. Not enough to affect inlammation blood tests to my knowledge.
    GlutenFreeGirl: Thank you so much for the answer. I have been gluten free since 12/06. I do NOT have a definite DX of C.D. but a DR recommended I tried going gluten free due to chronic stomach issues. It has worked wonders as far as my stomach issues and I have lost 30 lbs!!!
    +++++++++
    Chris:
    Your answer has helped me understand the ESR & hs-CRP side to things. Thank you!!! Thank you!!! Thank you!!!

    Although, I must say one thing-my ANA is 1:1280. That is the ***highest*** the lab measures.

    I might join your group. I need all the info and help I can get right now.

    I am not getting many answers from the DRs I am subjected to.

    Thank you again for the answer!

    • ANSWER:
      Hi I'm Chris, I personally have Lupus, Sjorgren's, and a couple other autoimmune diseases. I am sorry you are so distressed. I am going to start with the easiest stuff first. First, I own a support group for people with autoimmune diseases, and all the information Im about to write was pulled from our files. Your ANA is very mildly positive, and the pattern suggest that it can be almost any autoimmune disease, likely sjorgrens which is very much like Lupus. I have it, and truth is, it causes almost the same problems as Lupus, so they really feel like one in the same. Your ESR or SED rate which measures inflammation is normal, but it does not mean you dont have inflammation, your blood is just not picking up on it.
      I had a hard time finding much info on CH50,c3,c4, however they are consistant if positive with Lupus, sjorgrens or other connective tissue diseases. Antibodies to the Sm antigen are found almost exclusively in lupus, and often help to confirm the diagnosis of SLE. Antibodies to RNP (ribonucleoprotein) are found in a number of connective tissue diseases. When present in very high levels, RNP antibodies are suggestive of mixed connective tissue disease (MCTD), a condition with symptoms like those of SLE, polymyositis, and scleroderma. On the RNP being positive, my feeling with all the other evidence leads me to think its lupus or sjorgrens still. Heavy menstrual cycles when we have polled group memebers from a couple diffrent groups seem to affect about 80% of us. In fact I was under 30 when I had to get a hysterectomy. Chronic Migranes, are and can be a mainstay of autoimmunes, or allergies. I just moved from a house that was infested with mold, which caused brain swelling, which led to 5 months of chemo. Once we moved out, the migranes left, unless I get near mold, or too stressed out. TOPOMAX is the medication of choice for most memebers in our group that suffer from migranes, you need to see a doctor and talk to them about a perscription, in the meantime, icepacks help greatly. The fatigue is hard, there is no easy fix. for me it comes and goes, but once you get some kind of diagnosis, they will give you some medications, which after 1-2 months may help with that overwhelming fatiguge and what is called brain fog (feeling out of it). The dr, should have been able to give you somthing for your electrolyte imbalance, usually some kind of vitamine or supplament type protocol for a month or so. depending where your pain is, I like Icy Hot patches, they work, and if you can, find some kind of community pool for the summer if you dont have sun sensitivity or have somthink like aymca indoor pool and just wade around, it helps the joint and muscle pain greatly

      also included is the 11 critera for lupus
      Diagnostic criteria for lupus
      Provided by:
      Last Updated: June 29, 2004
      Diagnostic criteria for lupus
      The following criteria are used to distinguish lupus (systemic lupus erythematosus, or SLE) from other autoimmune and rheumatic diseases.

      A person with 4 of these 11 conditions can be diagnosed with lupus; 3 symptoms suggest that lupus is probably present, and 2 raise the possibility of lupus. Symptoms may be present all at once or appear in succession over a period of time. 1

      Butterfly (malar) rash on cheeks
      Rash on face, arms, neck, torso (discoid rash)
      Skin rashes that result from exposure to sunlight or ultraviolet light (photosensitivity)
      Mouth or nasal ulcers, usually painless
      Joint swelling, stiffness, pain involving two or more joints (arthritis)
      Inflammation of the membranes surrounding the lungs (pleuritis) or heart (pericarditis). This inflammation is called serositis.
      Abnormalities in urine, such as increased protein or clumps of red blood cells or kidney cells, called cell casts, in the urine
      Nervous system problems, such as seizures or psychosis, without known cause
      Problems with the blood, such as reduced numbers of red blood cells (anemia), platelets, or white blood cells
      Positive antinuclear antibody (ANA) test
      Signs of increased autoimmunity (antibodies against normal tissue), as shown by laboratory tests
      References
      good luck
      chris contact me anytime

  35. QUESTION:
    I was given a diagnosis of Fibromyalgia?
    I've been sick and sore since I was 11, when I was 18 I was diagnosed with Fibromyalgia and Chronic Fatigue Syndrome but a very useless Rheumatologist (he rushed me in and out within 15 minutes and said he needed to get home and had to cut it short).

    I've seen two other GPs/Primary doctors about my symptoms, one suggested Lupus and the other suggested Mixed/Undifferentiated Connective Tissue Disorder.

    My symptoms are..
    Pain in my joints, not in the muscles or anywhere else other than the joints. Especially my knees and ankles. I walk with a limp.
    Fatigue, I can't do any amount of exercise (excluding gentle walking) with out having to have a nap. It can usually take me a few days to recover.
    Swelling (but my inflammatory levels have been normal) in my fingers. My rings don't fit on some days.
    Sore throats.
    IBS and celiac disease
    Mouth and nose ulcers.
    Raynaud's disease
    I often get sick with colds and flues.

    Two years ago I went to a doctor who checked my bloods and said I had high ANA levels, but my usual GP wont check my ANA levels, she says they're not useful. My inflammation and CRP were all negative.

    Any suggestions?

    Thanks.
    Never too late- I have two doctors in my immediate family, including an anesthesiologist who is prepared to prescribe me medication for my pain (if I was one of his patients). I have physical symptoms, it's a bit hard to deny that.
    CHRIS- But my CRP and inflammation levels all came back normal.
    I've been on a gluten free diet for the past 4 years. I live in New Zealand and haven't traveled to anywhere I could have contracted Lyme disease.

    • ANSWER:
      This does not sound like fibromyalgia to me. Usually fibro give you pain in your muscules. All of your symptoms could be from rheumatoid arthritis. A good rheumatologist can tell the difference by seeing where the pain is. There are meds that help prevent flair ups of RA. If that is what you have you need to treat it (and not just the pain) because over time it will cause permanent damage to your joints.

  36. QUESTION:
    Anyone with an Autoimmune Disease or SLE?
    I went to the doctor a few weeks ago because for the past two years I've have severe muscle and joint pain, random fevers, stiffness, memory issues and fatigue. I did not actually expect her to find anything but she had me come in and go over the results which were positive ANA, 1:320 titer and a speckled/homogeneous stain pattern. She suggested I might want to get tested for lupus and go to a specialist, then told me to go look over some autoimmune diseases on the internet and see if anything seemed familiar. I don't even know what I am looking for, normally i would just get the tests but I just started a new insurance plan at work and my deductible is 00 and I don't want to get a test if I don't need it. Does anyone on her have any advice or similar symptoms and/or SLE. When I say joint/muscle pain I mean severe as in some days I can barely hobble along. I also have been getting these pustuels on my hands and then all the skin peels off my fingers. I am a 26 yr old female, no history of autoimmune in my family. I was negative for lyme, positive for EBV but I had mono in the past. I'm sooo confused. I have cold toes and fingers but I always have had that, I actually ended up with frost bite on my toes a few years back because of it. I have mild hair loss, more than average (everyone at work teases me about finding it everywhere) but not crazy amounts.
    The hair loss is not significant really, thats what I was saying. Everyone really too that and ran with it.... I mostly am wondering if anyone with autoimmune diseases every experienced this sort of pain and what did it turn out to be? I feel great some days and some days I literally wake up feeling like I was beat up over night. Sometime this is set-off by small physical activity the day before but sometimes not. There are days when I cry over putting on my shirt because I can't lift my arms over my head. It is like this deep bone ache... I just was trying to get a better grasp on possiblities...because well... I'm scared. I use to run two miles a day and bike between 15-30 miles on the weekend, now it wears me out to even walk my dog.
    The hair loss is not significant really, thats what I was saying. Everyone really too that and ran with it.... I mostly am wondering if anyone with autoimmune diseases every experienced this sort of pain and what did it turn out to be? I feel great some days and some days I literally wake up feeling like I was beat up over night. Sometime this is set-off by small physical activity the day before but sometimes not. There are days when I cry over putting on my shirt because I can't lift my arms over my head. It is like this deep bone ache... I just was trying to get a better grasp on possiblities...because well... I'm scared. I use to run two miles a day and bike between 15-30 miles on the weekend, now it wears me out to even walk my dog.

    • ANSWER:
      Firstly, find a new doctor. Any doctor that recommends you go home and look up your symptoms online is not a good doctor. What is their job if we're the ones who have to do all the hard work? What do we pay them for? That's ridiculous. It can also be dangerous, for example a symptom of Lupus is sun sensitivity, you might see that and subconsciously think 'oh yeah I do have that..' when you really didn't.

      I've looked over this check list in the past, I'm not sure if it's going to be overly helpful for you, but you could print it out and tick what applies to you and take it to your lazy doctor! http://www.thyroid-info.com/articles/autoimmune-checklist.htm

      The ANA isn't very conclusive, it just suggests that there's something autoimmune going on. The pattern can give a little more information. This website has a lot about the ANA test- http://www.labtestsonline.org/understanding/analytes/ana/test.html. Also if you go to conditions/diseases at the top and search for Lupus. It'll give you more information.

      I don't live in the USA, so I don't really know how your system works, but you can't put a price on your health.

      I think you need to get a referral to a rheumatologist. They specialise in Lupus, arthritis and other connective tissue diseases. I don't have much of a family history with autoimmune diseases either, my mum, uncle and I have Celiac Disease, but that's all. I'm seeing a rheumatologist for my first appointment next week. My GP said I have some sort of autoimmune inflammatory arthritis, I'm only 21!

      It sounds like something is going on and you're best to get on top of it now and start treatment asap.

      Good luck.

      ....


Can I Have Children If I Have Lupus

After marriage every married woman dreams to give birth to a cute child because her own world starts with the coming of a new born child. a woman can realize the real pleasure after being a mother. A mother feels pleasure after seeing her new born child, laughing, walking, running and so forth. Almost every activity of her child gives her a pleasure of entertainment. When her child first time calls her mother, she becomes overwhelmed. Every woman wants to realize all these above mentioned pleasure. For this it is necessary to be a mother. But because of some rumours some women think it impossible to give birth to a healthy child after lap band surgery while it is completely baseless.

After lap band surgery getting pregnant is absolutely safe and sound. But after lap band surgery you will have to wait for one year and a half. No problem will come in the way of such women who want to get lap band surgery and pregnant. There is a reason behind to ask the patient to wait for 1to 2 years generally in this period the patient loses weight. So, the women are advised to take food in small amount. And if the women will give birth to a child in such a situation, her child will be weak while every mother wants to see her child strong and robust. So, it is advised to the patient to wait till one to two years so that, they can get stabilization in weight since then. There is a good side of lap band surgery that it can be adjusted throughout pregnancy, and the lap band can be re-inflated to help women with postpartum weight loss. In clearly the lap band does not need to be removed before getting pregnant or giving birth.


Bullous Lupus Erythematosus

Dermatitis herpetiformis in India is very affordable-Complete Information

Introduction

Background

Dermatitis herpetiformis (DH ) is an autoimmune blistering disorder associated with a gluten-sensitive enteropathy (GSE). The disease was described and named in 1884 by Dr. Louis Duhring at the University of Pennsylvania. It is characterized by grouped excoriations; erythematous, urticarial plaques; and papules with vesicles. These are located on the extensor surfaces of the elbows, knees, buttocks, and back. It is exquisitely pruritic, and the vesicles are often excoriated to erosions by the time of physical examination. Diagnosis requires direct immunofluorescence of a skin biopsy specimen showing deposition of immunoglobulin A (IgA) in a granular pattern in the upper papillary dermis. Although most patients are asymptomatic, more than 90% have an associated GSE upon endoscopic examination. Among patients with celiac disease, 15-25% develop DERMATITIS HERPETIFORMIS . The mainstays of treatment are dapsone and a gluten-free diet.

Pathophysiology

DERMATITIS HERPETIFORMIS is a disease of the skin caused by the deposition of IgA in the papillary dermis, which triggers an immunologic cascade, resulting in neutrophil recruitment and complement activation. It has been hypothesized that DERMATITIS HERPETIFORMIS is the result of an immunologic response to chronic stimulation of the gut mucosa by dietary gluten with subsequent activation of cutaneous endothelial cells and circulating inflammatory cells, including neutrophils.

An underlying genetic predisposition to the development of DERMATITIS HERPETIFORMIS has been demonstrated. Both DERMATITIS HERPETIFORMIS and celiac disease (CD) show an increased expression of HLA-A1, HLA-B8, HLA-DR3, and HLA-DQ2 haplotypes. Environmental factors are also important; monozygotic twins may have DERMATITIS HERPETIFORMIS , CD, and/or GSE with variable symptomatology.

Evidence is mounting that epidermal transglutaminase 3 (TGase3), a cytosolic enzyme involved in cell envelope formation during keratinocyte differentiation, is the autoantigen of DERMATITIS HERPETIFORMIS . Theoretically, DERMATITIS HERPETIFORMIS is caused by dermal deposition of circulating immune complexes containing both IgA and TGase3. This is supported by the finding that precipitates of skin-bound IgA from DERMATITIS HERPETIFORMIS lesions contain TGase3. In addition, it has been demonstrated that serum from DERMATITIS HERPETIFORMIS patients contains high-affinity anti-TGase IgA autoantibodies. Skin and gut TGases are both highly homologous, and serum from patients with GSE, with or without skin disease, contains IgA antibodies to both skin and gut types. The target autoantigen of TGase3 has not been demonstrated in normal papillary dermis, suggesting it is part of the circulating complex that is deposited in the papillary dermis, rather than originating from the papillary dermis.

The leading theory for DERMATITIS HERPETIFORMIS is that a genetic predisposition for gluten sensitivity, coupled with a diet high in gluten, leads to the formation of IgA antibodies to gluten-TGase complexes. These antibodies cross-react with TGase3, and IgA/TGase3 complexes deposit within the papillary dermis to cause the lesions of DERMATITIS HERPETIFORMIS . These IgA deposits can disappear after long-term (up to 10 y) avoidance of dietary gluten.

Cutaneous IgA deposits in DERMATITIS HERPETIFORMIS have been shown to function in vitro as a ligand for neutrophil migration and attachment. Although IgA deposition is pivotal for disease, an increased serum IgA is not necessary for pathogenesis; in fact, case reports describeDERMATITIS HERPETIFORMIS in patients with a partial IgA deficiency. When the disease is active, circulating neutrophils have a higher level of CD11b and an increased ability to bind IgA. In fact, the characteristic histologic finding of DERMATITIS HERPETIFORMIS is neutrophil accumulation at the dermoepidermal junction, frequently localizing to the papillary tips of the basement membrane zone.

Collagenase and stromelysin 1 may be induced in basal keratinocytes by either cytokines released from neutrophils or by contact with keratin from damaged basement membrane matrix. Stromelysin 1 may contribute to blister formation.

One study found levels of E-selectin mRNA expression in normal-appearing skin of patients with DERMATITIS HERPETIFORMIS to be 1271 times greater that that of controls. Additionally, the same study observed increased soluble E-selectin, IgA antitissue transglutaminase antibodies, tumor necrosis factor-alpha, and serum interleukin 8 levels in patients with DERMATITIS HERPETIFORMIS , providing further evidence of endothelial cell activation and a systemic inflammatory response as part of the pathogenic mechanism of the disease. Mild local trauma may also induce the release of cytokines and attract the partially primed or activated neutrophils, which is consistent with the typical location of DERMATITIS HERPETIFORMIS lesions on frequently traumatized areas, such as the knees and elbows.

Deposits of C3 also may be present in a similar pattern at the dermoepidermal junction. The membrane attack complex, C5-C9, also has been identified in perilesional skin, although it may be inactive and not contribute to cell lysis.

Hormonal factors may also play a role in the pathogenesis of DERMATITIS HERPETIFORMIS , and 2recent reports describe DERMATITIS HERPETIFORMIS induced by treatment with leuprolide acetate, a gonadotropin-releasing hormone analog. Androgens have a suppressive effect on immune activity, including decreased autoimmunity, and androgen deficient states may be a potential trigger for DERMATITIS HERPETIFORMIS exacerbation.

Apoptosis may contribute to the pathogenesis of epidermal changes in DERMATITIS HERPETIFORMIS , and recent research demonstrates a markedly increased apoptotic rate within the epidermal compartment in DERMATITIS HERPETIFORMIS . In addition, Bax and Bcl-2 proteins were increased in the dermal perivascular compartment and Fas proteins showed epidermal staining in DERMATITIS HERPETIFORMIS lesions.

Most patients with DERMATITIS HERPETIFORMIS have histologic evidence of enteropathy, even in the absence of symptoms of malabsorption. In one recent study, all DERMATITIS HERPETIFORMIS patients had increased intestinal permeability (as measured by the lactulose/mannitol ratio) and up-regulation of zonulin, a regulator of tight junctions. Thus, increased expression of zonulin may be involved in the pathogenesis of enteropathy in patients with DERMATITIS HERPETIFORMIS .

Frequency

United States

The only US study showed a prevalence of 11.2 cases per 100,000 population.

International

Prevalence has been reported as high as 10 cases per 100,000 population.

Mortality/Morbidity

Patients with DERMATITIS HERPETIFORMIS were followed (152 total) from the date of diagnosis to the end of 1989 for mortality and from 1971 or the date of diagnosis (if later) to 1986 for cancer incidence. Death occurred in 38 patients younger than 85 years, slightly fewer than expected on the basis of national general population rates. Cancer incidence was significantly increased. Cancer of the small intestine caused 1 death, and lymphoma caused 1 death. A 30-year population-based study of 1147 CD and DERMATITIS HERPETIFORMIS patients in Finland also revealed an overall good prognosis for patients with DERMATITIS HERPETIFORMIS . The total occurrence of malignancies was equal to that of the general population in both CD and DERMATITIS HERPETIFORMIS , but an increased incidence of non-Hodgkin lymphoma was noted among both CD and DERMATITIS HERPETIFORMIS patients with standardized incidence ratios of 3.2 and 6.0, respectively. Overall mortality was actually decreased in DERMATITIS HERPETIFORMIS patients compared to that in the general population.

DERMATITIS HERPETIFORMIS lesions are extremely pruritic. Morbidity results from scarring, discomfort, and insomnia due to itching. Secondary infection may also develop, requiring antibiotic therapy.

Race

DERMATITIS HERPETIFORMIS occurs more frequently in individuals of Northern European ancestry and is rare in Asians and persons of African descent. It is most common in Ireland and Sweden. This can be attributed to the shared HLA associations of DERMATITIS HERPETIFORMIS and CD including DQA1*0501 and B1*-02, which encode HLA-DQ2 heterodimers.

Sex

US studies show a male-to-female ratio of 1.44:1, but international studies have demonstrated a male-to-female ratio up to 2:1. In one study of patients with GSE, 16% of the men and 9% of the women had DERMATITIS HERPETIFORMIS .

Age

Typically, the onset of DERMATITIS HERPETIFORMIS is in the second to fourth decade; however, persons of any age may be affected.

Clinical

History

Patients typically present with a waxing and waning, pruritic eruption on the arms, knees, and buttocks. Small vesicles may have been noted. They may have associated worsening of disease with dietary intake of gluten. Many do not report any GI symptoms until prompted.

Physical

The diagnosis is suspected based on the distribution of the eruption.

  • Flesh-colored-to-erythematous excoriated papules or plaques with herpetiform (ie, small, clustered) vesicles are symmetrically distributed over extensor surfaces, including the elbows, knees, buttocks, and shoulders.
    • It rarely occurs on the posterior (nuchal) scalp and face. Lesions occur infrequently on the oral mucosa, but males are more likely than females to have involvement of the oral and genital membranes. Palms and soles are spared. Digital purpura resembling vasculitis can occur. Erythematous papules and urticarialike plaques occur less frequently; bullae are rare.
    • The eruption is intensely pruritic; patients often present with erosions and crusts in the absence of vesicles, which have ruptured due to excoriation.
    • Typical symptoms include burning, stinging, and intense itching. Rarely, if ever, are patients totally asymptomatic, although the degree of itching varies.
    • DERMATITIS HERPETIFORMIS is a lifelong disease, although periods of exacerbation and remission are common.

Causes

DERMATITIS HERPETIFORMIS has recently been proposed as a cutaneous manifestation of asymptomatic-to-mild CD. The genetic predisposition to the development of gluten sensitivity underlies the disease.

  • Gluten is a protein present in grasses of the species Triticeae, which includes barley, rye, and wheat. Rice and oats belong to different species and are generally well tolerated. Strict compliance with a gluten-free diet results in normalization of the small bowel mucosal changes and control of the cutaneous manifestations of DERMATITIS HERPETIFORMIS in most patients.
  • The GSE does not cause symptoms in most DERMATITIS HERPETIFORMIS patients. Less than 10% exhibit symptoms of bloating, diarrhea, or malabsorption. However, greater than 90% show abnormalities upon endoscopic examination. Two thirds have villous atrophy detected on intestinal biopsy specimens. The other third shows elevated intraepithelial lymphocyte counts, increased T-cell receptor gamma/delta intraepithelial lymphocyte counts, or both.
    • The critical role of associated GSE in the pathogenesis of DERMATITIS HERPETIFORMIS is confirmed by the fact that resumption of a gluten-containing diet in patients with DERMATITIS HERPETIFORMIS results in a return of the characteristic skin disease.
    • Mild steatorrhea or other signs of mild malabsorption (eg, altered D-xylose absorption, iron or folate deficiency) can be demonstrated in 20-30% of patients with DERMATITIS HERPETIFORMIS .
    • Patients with DERMATITIS HERPETIFORMIS and no apparent GI disease can be induced into developing DERMATITIS HERPETIFORMIS by increasing gluten intake, which is often termed latent GSE (CD).
  • IgA circulating immune complexes are present in 25-35% of patients with DERMATITIS HERPETIFORMIS , although no association with disease severity has been noted. These immune complexes also have been noted in patients with isolated GSE and are believed to be related to the presence of the gut disease.
    • IgA antibodies to gliadin (a portion of wheat protein), reticulum, and smooth muscle endomysium have also been noted in patients with DERMATITIS HERPETIFORMIS and in those with isolated GSE.
    • IgA endomysial antibodies are most specific for gluten sensitivity and are found in 80% of patients with DERMATITIS HERPETIFORMIS and greater than 95% of patients with CD. The presence of IgA antiendomysial antibodies correlates with the extent of the gut disease; however, some DERMATITIS HERPETIFORMIS patients do not have detectable IgA antiendomysial antibodies, even during episodes of active skin disease.
    • The criterion standard for the diagnosis of DERMATITIS HERPETIFORMIS remains the presence of granular deposits of IgA in normal-appearing perilesional skin.
    • Patients with bullous pemphigoid, cicatricial pemphigoid, Henoch-SchAnlein purpura, and alcoholic liver disease also may have IgA deposits in normal skin; however, the pattern of IgA deposits is different from that seen in patients with DERMATITIS HERPETIFORMIS .
  • In patients with DERMATITIS HERPETIFORMIS , 10-15% of their first-degree relatives have DERMATITIS HERPETIFORMIS or CD. HLA studies have conclusively established the presence of a genetic predisposition for DERMATITIS HERPETIFORMIS . Patients with DERMATITIS HERPETIFORMIS have an increased expression of the HLA-A1, HLA-B8, HLA-DR3, and HLA-DQ2 haplotypes. This is identical to the HLA association found in patients with isolated GSE. Most persons with these HLA types do not have DERMATITIS HERPETIFORMIS or GSE. Associations of HLA and DERMATITIS HERPETIFORMIS are as follows:
    • For HLA-B8, the association with DERMATITIS HERPETIFORMIS is 58-87%, versus 20-30% for control patients.
    • For HLA-DR3, the association with DERMATITIS HERPETIFORMIS is 90-95%, versus 23% for control patients.
    • For HLA-DQ2, the association with DERMATITIS HERPETIFORMIS is 95-100%, versus 40% for control patients.
  • Other associations include the following:
    • Associated GI conditions include gluten enteropathy, gastric atrophy, gastric hypochlorhydria, and pernicious anemia.
    • Associated autoimmune diseases include dermatomyositis, type 1 diabetes mellitus, myasthenia gravis, rheumatoid arthritis, SjAgren syndrome, systemic lupus erythematosus, and thyroid abnormalities. Thyroid abnormalities are present in as many as 50% of DERMATITIS HERPETIFORMIS patients and include hypothyroidism, hyperthyroidism, thyroid nodules, and thyroid cancer.
    • Associated neoplastic conditions include GI lymphomas and non-Hodgkin lymphoma; patients are at increased risk of developing these cancers. A gluten-free diet may reduce incidence of DERMATITIS HERPETIFORMIS -associated lymphomas.
    • CD usually involves more severe and widespread intestinal involvement. CD has been associated with genetic abnormalities, including Down syndrome, Turner syndrome, and William syndrome. Liver disease, neurologic disorders, and other skin diseases are also increased in CD, possibly due to common HLA regions on chromosome 6 or immune molecule cross-reactivity.
    • Gastric manipulation (surgery) may induce DERMATITIS HERPETIFORMIS .
    • Several chemicals have been associated with induction of DERMATITIS HERPETIFORMIS , including potassium iodide and cleaning solutions.
    • Case reports have describedDERMATITIS HERPETIFORMIS induced by treatment with leuprolide acetate.

Differential Diagnoses

Bullous Pemphigoid
Erythema Multiforme
Linear IgA Dermatosis
Neurotic Excoriations
Scabies
Transient Acantholytic Dermatosis

Other Problems to Be Considered

Eczema
Papular urticaria

Workup

Laboratory Studies

  • The diagnosis is made on the basis of skin biopsy results. However, other tests should be performed depending on the presence of symptoms of associated syndromes. Serum markers, such as IgA endomysial antibodies, are negative in up to 10-30% of patients with DERMATITIS HERPETIFORMIS . Arguments have been made in favor of testing for tissue transglutaminase for diagnosis, but tissue transglutaminase enzyme-linked immunosorbent assay positivity can occur in many autoimmune diseases because of impurities and cross-reactivity.

Procedures

  • The diagnosis is made after observing characteristic findings from skin biopsy specimens. The biopsy sample should be taken from the edge of a lesion for hematoxylin and eosin staining and from normal-appearing perilesional skin for direct immunofluorescence staining.
  • Direct immunofluorescence of lesional skin is often falsely negative. The vigorous immune response degrades the IgA antibody at the site. Therefore, biopsy specimens for the direct immunofluorescence studies should be taken from healthy-appearing skin.

Histologic Findings

Biopsy specimens of lesional skin reveal neutrophils in the dermal papillae, with fibrin deposition, neutrophil fragments, and edema. Eosinophils may be present. Papillary microabscesses form and progress to subepidermal vacuolization and vesicle formation. Vesicles form in the lamina lucida, the weakest portion of the dermoepidermal junction, due to neutrophil lysosomal enzymes

The histologic differential diagnosis of early skin lesions includes bullous lupus erythematosus, bullous pemphigoid, epidermolysis bullosa acquisita, and linear IgA disease. The histologic differential diagnosis of late skin lesions includes bullous drug eruption, bullous pemphigoid, erythema multiforme, and herpes gestationis.

Granular IgA deposits in dermal papillae of perilesional skin observed by direct immunofluorescence is the criterion standard of diagnosis. Inflammation in lesional skin degrades the immunoreactants and is usually negative for the diagnostic granular pattern. Because deposits are found throughout normal-appearing skin, the standard practice is to obtain biopsy specimens from normal-appearing perilesional skin for direct immunofluorescent staining.

Treatment

Medical Care

Control of the skin disease can be achieved with medications, dietary avoidance of gluten, or both.

  • A gluten-free diet is very difficult to achieve; however, limiting intake of wheat, barley, or rye products can lessen the symptoms.
  • Dapsone (diaminodiphenyl sulfone) and sulfapyridine are the primary medications used to treat DERMATITIS HERPETIFORMIS .
    • Before easy availability of direct immunofluorescence, rapid improvement after dapsone therapy was a chief diagnostic criterion for the disease. However, many diseases respond to dapsone, and this should not be used as the only diagnostic criterion. Dapsone is readily available at most pharmacies and is the first-line drug therapy.
    • For patients unable to tolerate dapsone, particularly those who develop hemolysis, sulfapyridine may be substituted.
    • The mechanism for therapeutic effect of dapsone in DERMATITIS HERPETIFORMIS is unclear. It may be related to the inhibition of neutrophil migration into the area, thus, decreasing the inflammatory response.
    • Improvement may be dramatic; symptomatic improvement of skin lesions often begins within hours. No new lesions form for up to 2 days after a dose of dapsone; however, dapsone does not improve GI mucosal pathology.
  • Other, less effective treatments for DERMATITIS HERPETIFORMIS include colchicine, cyclosporine, azathioprine, and prednisone. UV light may provide some symptomatic relief. Cyclosporine should be used with caution in patients with DERMATITIS HERPETIFORMIS because of a potential increase in the risk of developing intestinal lymphomas.
  • One case report describedresolution of DERMATITIS HERPETIFORMIS after initiation of the Atkins diet.
  • Nonsteroidal anti-inflammatory drugs may exacerbate DERMATITIS HERPETIFORMIS ; however, ibuprofen appears to be safe.
  • Iodides may elicit or exacerbate DERMATITIS HERPETIFORMIS .

Consultations

  • Consider consultation with a gastroenterologist for evaluation and for recommendations regarding GSE.
  • Consult with a dietitian regarding patients who are modifying dietary intake to avoid gluten or who are instituting an elemental diet.

Diet

Dietary intake of gluten causes the disease, and elimination improves it.

  • Most patients (as many as 80%) respond to gluten-free diet with control of their skin disease. Some patients are able to totally discontinue dapsone therapy. Compliance with a gluten-free diet is difficult and requires a motivated patient, and the best treatment response occurs with absolute gluten restriction in the diet.
  • Strict dietary vigilance may be required for 5-12 months before the dapsone dose can be reduced.
  • Maintaining a gluten-free diet is the only sustainable method of eliminating the disease, not only from the skin, but also from the GI mucosa.
  • Patients on a gluten-reduced diet may experience a decrease in symptoms; therefore, diet reduces the dosage of dapsone required for disease control.
  • Neither IgA deposition nor circulating antibodies correlate with gluten intake in short-duration studies; however, some studies have suggested a correlation with complement deposition. Avoidance of dietary gluten for 10 years or more has resulted in loss of cutaneous IgA deposits, which then return upon reinstitution of gluten in the diet.
  • Elemental diets may improve the disease within weeks. These diets consist of free amino acids, small amounts of triglycerides, and short-chain polysaccharides; they are marketed by pharmaceutical companies. One report has suggested that this improvement may be independent of gluten ingestion; however, this finding has not been confirmed.

Follow-up

Further Outpatient Care

  • Dietitians and gastroenterologists are helpful in addressing the GSE.

Complications

  • Complications are related to the GSE, the risk of developing lymphomas, and the potential adverse effects of medications (dapsone).

Prognosis

  • DERMATITIS HERPETIFORMIS is an ongoing disease process of variable severity.
  • The prognosis is good for patients who can tolerate dapsone and the few who can maintain a gluten-free diet (which may decrease the risk of lymphoma).

Patient Education

  • Educate patients regarding the use of a gluten-free diet as well as the adverse effects and complications of dapsone.

Miscellaneous

Medicolegal Pitfalls

  • Failure to consider and diagnose DERMATITIS HERPETIFORMIS can result in the continuation of a distressing disease in a patient who can be treated successfully with dapsone.
  • Failure to mention the association of DERMATITIS HERPETIFORMIS with gluten sensitivity and the association with lymphoma can result in further distress to the patient. Although maintenance of a gluten-free diet demands a motivated patient, it should always be offered as an option.
  • Failure to diagnose DERMATITIS HERPETIFORMIS with immunofluorescence can result in an erroneous diagnosis and the concomitant associated adverse effects of medications (eg, dapsone) used ineffectively.
  • Patients must be monitored when using dapsone or sulfapyridine. Very commonly, patients' hemoglobin levels drop by 1-2 g/dL while taking dapsone. Larger decreases may be seen. Patients should be counseled regarding the signs of a pronounced hemolytic anemia or methemoglobinemia, including malaise, shortness of breath, tachycardia, or jaundice. Most patients can continue the dapsone if the anemia is mild and they are asymptomatic.

Special Concerns

  • Polymorphic lesions and an atypical presentation, including a paucity of the characteristic vesicles may make clinical diagnosis difficult.
  • Histopathologic and immunologic confirmation of clinically suspected disease is mandatory for diagnosis.